#CHD

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Happy Birthday to the sweetest baby boy around. You are turning into such a little goof ball. I love watching your personality develop and turn into the person you will become. It is a pleasure to be your mommy. You are remarkable in so many ways. I am most thankful for your health when a mere 2 years ago you came fighting into the world and you haven’t stopped. No one could look at you and know your struggle because you are stronger than your CHD. This is what I pray for you, that you grow up knowing that you are strong, you are a fighter. You are a warrior. I love you Landry Rudolf! • • #heartworrior #CHD #happybirthday Photo credit @berninemarie
Our family ❤❤❤💛. It finally feels good to look at a family picture and see everyone's faces. I can't tell you how often my stomach sank when it was time to gather together for family pictures at holidays, family get togethers, reunions, etc. It always feels incomplete. This photo shoot gifted to us from my dear friend @aschaenzle felt joyous and light, and I think it was because I knew Henry's face would be seen. Our family. My boys. My driving force, all wrapped up in one photo. Seeing Henry included in these pictures just feels so right. Have you had family photos taken post-loss that included pictures or other mementos of your little ones? How did it go? How did it make you feel?
FaceTiming big brother! Should be heading home shortly! Thank god! #siblinggoals #squadgoals #chd #hospital #hospitallife #specialneedskids #specialneedssiblings
Elante#chd
This custom was created for a amazing little CHD warrior & quickly became a FAV! • Available TODAY on our website 🤗❤️
The @mendedheartmalas website is up and running and we are also on Facebook now! Be sure to visit all our sites, or just whichever social media you prefer 😉 the link is also in my bio. #mendedheartmalas #chdawareness #ebsteinsanomaly #heartwarrior #allforjaxon #iloveaheartwarrior #amendedheartisaspecialheart #chd #mended ❤malas
Could not be any prouder of you Isaac my little computer geek 🤓 .... you may not be perfect in everything, but many things cannot perfect without you... Stay special in your own little way 💙 - 💫Always Unique Totally Intelligent Sometimes Mysterious💫 school report 2018
ASK ME ANYTHING! - I'm getting ready to give him his dose of Propranolol in this image. It's a beta blocker we use to keep Jack's heart rate "normal. - Jack was born with SVT. Supraventricular Tachycardia which basically means his heart can race really fast. 298bpm is the highest his has been recorded (that we know of). - I became a Heart Mom without realizing it for months. I didn't think I deserved the "title" because he hasn't had a surgery or because his condition is manageable and he can outgrow it (potentially). - But I've thrown out those sh@# thoughts and am owning my new role as Heart Mom. I'm going to be bringing more and more awareness to CHD (congenital heart disease) as time goes on! - Also, I'm going to attempt this whole "Ask me anything" button for Instagram storoes. So ASK ME ANYTHING about Jack's heart, our journey, the future.....in the comments below and I'll answer in my stories. Or at least attempt to! - 📸 credit: @wildeyed - p.s. congenital means "present from birth". I didn't know this at first and felt totally silly that I didn't. Just thought I'd let you know so it doesn't hold you back from asking any questions!
Now available on Spotify! #CHD #Pediatrics #cardiology #globalhealth #ablation
Follow Page.. @suit_and_style Pic by. @jagjeet_kaur123 ⚠👌 👌⚠ Follow page ✔ Send Your HD pics ✔ Suit Lover ✔ Girls Style ✔ Share Page ✔ Like All pics✔ - - - - - - - - - - - - - - - - - - - - - - - - #like4like #follow4follow #patialasahi #kaint #patiala #chd #share #punjab #punjabi #wmk #gbu #star #super #singer #Ghaint 🔝 🔝 😊Follow page 🚩@sunanda_ss @iamhimanshikhurana @officialguri @nishabano @amrindergill @genius_gagan @onlyjashan.in @parmishvarma @jassie.gill @virat.kohli @priyankachopra @jassie.gill @ 🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝 🔝___Follow page ___✌🔝 🙏Please Like And 🙈Share
Sketch booking from an old medical book and I badly love it badly badly. So badly 💀😍
Happy Friday, dear followers! I wanted to pop on to say hello and introduce myself as part of #fridayintroductions because I haven't taken part in awhile! I'm Becky, and these are my people ❤ I started Blue Fox in 2015 after the financial firm I worked for closed its branch here in Michigan. I saw the opportunity and took the leap of faith of starting my own handmade business so I could stay at home with Lincoln. It was a slow start, things gained momentum, then our world was turned upside down and we learned what is most important in life. Motherhood has been my greatest adventure, and my wisest teacher has been grief. Together, they're a powerful force and have created a rocky, winding path to finding love, acceptance, healing, and self-realization I never even knew I needed. Lee is my rock, my voice of reason and decisiveness, my high school sweetheart, and the backbone of Blue Fox, and my boys are my driving force in life. I love my cat, being outside, coffee, and carbs 😉 Thank you for being here with us, and supporting our business! 📷 by my talented and loving friend, @aschaenzle
This place may break my bank but it may just change Ryder’s life for the future. What I’ve learned over the last year is that I’ll do anything to help my children thrive and be their best. #specialneedsmom #specialneeds #mowatwilsonsyndrome #raregenetics #chd #heartwarrior #heartmom #thestruggleisreal #momlife
Waiting is not my strong point. Not having every bit of information makes me miserable. The cardiology office called yesterday to let me know that I am “stable”, but no further information on my echo. I am waiting for the full report, waiting for the monitor to be done, waiting for my follow up, waiting for answers and the full picture. I am going crazy waiting for this, but I’m trying to take the life lesson here and learn how to relinquish control. #heartmama #heartwarrior #chd
Amigo a gente não procura, o coração é que encontra. Hoje, no Dia do Amigo, uma homenagem especial aos amigos que encontramos nessa jornada de quem trabalha com o coração. #criancas #pediatra #coarctacaodaaorta #celula_c #CélulaC #caduceus #famíliasdocoração #UCMF #hospitalportuguês #RCP #congenitalheartdefects #congenitalheartdefectsdisease #CHD #1em100 #cardiopatiacongenita #diadoamigo
Bê acabou de entrar no centro cirúrgico para fazer uma gastrostomia endoscópica. Pude entrar com ele e ficar até a sedação,ele entrou dormindo traquilo e não acordou quando o monitorizaram e fizeram a sedação❤️ Que Deus mais uma vez esteja junto de toda a equipe,guiando as mãos da Dra Eunice e todos os envolvidos,para que o procedimento seja da forma mais tranquila possível 🙏🏻 #shce #chd #chdwarrior #hlhs #cirurgiadeglenn #glennsurgery #glenn #cirurgiacardiacapediatrica #cirurgiacardiaca #norwoodsano #norwood #norwoodprocedure #hlhsbaby #hlhssurvivor #sindromedehipoplasiadocoracaoesquerdo #childrensheartlink #hlhsmiracle #1em100 #traqueostomia #traqueostomy #1em1000 #mayoclinic #meiocoraçãoeumavidaporinteiro #pequenoscoracoes #Bê #BêGuerreiro #Bêscoitinho #gastrostomia #gtm #gtubebaby
Two years ago (yesterday) Oliver had his full heart repair. Sometimes it’s hard to imagine my child was so sick, because he seems so strong now. But then those memories and feelings are burned inside my heart in a deep, deep way that will forever make me grateful for all that we went though and overcame. For where we are today. Every single day with him is a beautiful gift we have been given and it’s truly so precious to me...even on the hard days, I have this constant reminder. It’s a hard truth to face, that Oliver’s heart will never be perfect or whole because a broken heart never is, no matter the repair. But in some mysterious way, God allows it to function well despite all that it’s been through and despite the fact that it just isn’t built the way it should have been. I am forever grateful and indebted to CHOP and all the staff who cared for us (and continues to care for us long after we’ve left). You were also a gift from God and just what my heart (and obviously Oliver’s) needed. You cared for our whole family during the hardest time in our lives. I am so grateful that this is a day we can look back and be thankful for, to celebrate, to reflect on. To see how far Oliver has come and to praise God for every beautiful day we have with him ❤️😭 —the ramblings of a hormonal, pregnant momma #olivergrey #chdwarrior #chd #heartwarrior #zipperclub #downsyndrome #nothingdownaboutit #theluckyfew
You can not slow this girl down! & as you can see stickers are a great wardrobe choice. 👌🏻 . . . Everybody showers Ang with stickers whenever she is near, this was 1/5 the stash of stickers she received yesterday for just showing up to every part of her appointment which consisted of check in, pulmonary function test, doctor check, & X-ray. (Which all took 4 hours btw and add six hours of driving — Solo with 3 kids — let’s just say momma is tired) She behaves for it all like the princess she is because -you know what- she’s just used to it. No new news to share besides that she is looking and breathing well for being off meds and nightly oxygen for 3weeks now! . . . For all of you that don’t know, Angela was born with CHD. Because of the defects she was born with her lungs just don’t work 100%. This last winter was a battle with every sickness and she was put on daily meds to help control issues with her lungs & asthma. She also slept with oxygen at night. So yesterday was a regular appointment but with a new doctor just to make sure we’re still on the right track with everything. We had been seeing someone closer to home this last year but have been waiting to establish care with the best in the area which is at Duke! Now her whole team is at Duke and that helps everyone see the whole picture whenever something comes up. . . . Who else lives fulltime with disabilities of some sort!? I love to listen to other families who don’t let these things slow them down. Life here is so short & we thank God we are not limited daily with this little miracle He gave us.
Jack found his brother’s #iPod and now this is our life. He listens to the same songs Mathew did while trying to recover from his open heart surgery. It’s adorable...especially the headphones...and it makes me cry a little to hear them again, but I love that this brings them closer together. #sweetbabyjack #weheartbabymathew #unknownbrother #siblings #chd
Sangue Jovem Campinas presente no Pacaembu! Santos 1 x 1 Porcada (20/07/18) O ritmo é nosso! @sanguejovemcampinas @sanguejovemoficial @santosfc #SangueJovemSantos #SangueJovemCampinas #SJS #CHD #SFC #imperanointerior #ossinistros
I’m currently stuck in some pretty nasty traffic because of some major flooding in downtown Charleston currently- going on 2 hours and I’m only 1.5 miles from the hospital 😩 Thankfully I can call into the PCICU to talk to the nurse and get an update. Last night they took #ouraugiegray off the prostaglandins because they were keeping his heart rate up in the 200s rather than the 140s where they should have been and giving him a fever. As of this morning he has been able to keep his heart rate down, fever gone, and blood oxygen levels where they need to be 🙌🏻 We serve a #GoodGoodFather Thank you for all your prayers and encouragement. Keep ‘me coming! #dtga #transpositionofthegreatarteries #chd #heartwarrior
The most recent updates Of my niece Evelyn. She is so strong, and has so many people backing her! She still has a long road to recovery and will need a 6th open heart surgery but it hopefully won’t have to be for a while. Thank you to all who have been praying and continue to pray! Also if anyone wondering why they leave her chest open, it is because it is for if she would have any more emergency surgeries(she has had one before) #tough #warrior #evelyn #roadtorecovery #surgery #openheartsurgery #chd #chdwarrior #chdprincess #princess #keeppraying #praying #please #strong #hlhs #hlhswarrior #hlhssurvivor #survivor #2018
Here we go! Ready to have a repaired heart! ❤️❤️❤️
#sec -26 #CHD ...,
ਬਹੁਤੀ ਕਰਦੇ ਨੀ ਹਵਾ ਨਾਹੀ ਟੋਹਰ👌ਹੈ ਦਿਖਾੲੀ ਸਾਡੀ ਓਹਨੀ ਕ ਚੜਾਈ ਜਿੰਨੀ ਰੱਬ 🙏ਨੇ ਬਣਾਈ।। #sardariforever #turbanatorfashion #yellow #loveturban #lovesardari #smile #downtoearth #pb10_wale_sardar #ldh #follow4folow #likeforlike #sikh #pagg #wmk #ammy #lv #instagramers #wavecinemas #pb10 #citco #chd #chandigarh #patialashahipagg
Sometimes go out and remember good things is good #lake #chd #fine #weather 😍 #goodtimes
Unprocessed dark chocolate contains antioxidants and flavonoids that relax blood vessels and can decrease blood pressure. This sweet treat in small amounts (about a gram a day) can actually improve your overall heart health! * * * #cardiology #hearthealth #nationalheartassociation #heartdisease #CHD #chdawareness #heartwarriors #hearthealthy #cardiovascularhealth #heartcare #heartdoctors
As today is a day for sharing first and last day school photos, I wanted to join in with Jessica’s first and last day of Year 1. She started the year on her sixth birthday, so excited to be going back to school. She wasn’t well on her last day but wanted to go in to take part in her Year 1 production. The difference between her colour in these two photos really does bring it home how unwell she was in those last weeks. She was such a little trooper. I wish so much that we could be looking forward to having her home for the summer. She would be so proud today of her little sister finishing preschool and so excited about the prospect of her new sibling arriving in the summer holidays. #rememberingjessica #schooldays #heartangel #myheartkid #heartwarrior #chd #childloss
I can still remember how it felt when they told me you were gone. Even though my heart broke instantly in that second, it strangely kept beating. All I could say when I was brought to you was, "Noooooooo." It still seems unreal that you're not here with me now. I love you SO much. ♡ Yousha'a ♡ 03/03/2018 - 09/03/2018 - ∞ #NineteenWeeksSinceYouLeftUs #LookAtThatFace #FridaysAreHard #chdawareness #chdaware #chdwarrior #chd #congenitalheartdefect #pulmonaryatresia #atrialseptaldefect #hrhs #hypoplasticrightheartsyndrome #hypoplasticrightheartsyndromeawareness #heartmom #heartache #heartbroken #heartwarrior #heartangel #angel #baby #newborn #grief #love #mabonengheartandlungs #linkinbio I shared the story link in my bio.
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Follow Page.. @suit_and_style Pic by. @suit_and_style ⚠👌 👌⚠ Follow page ✔ Send Your HD pics ✔ Suit Lover ✔ Girls Style ✔ Share Page ✔ Like All pics✔ - - - - - - - - - - - - - - - - - - - - - - - - #like4like #follow4follow #patialasahi #kaint #patiala #chd #share #punjab #punjabi #wmk #gbu #star #super #singer #Ghaint 🔝 🔝 😊Follow page 🚩@sunanda_ss @iamhimanshikhurana @officialguri @nishabano @amrindergill @genius_gagan @onlyjashan.in @parmishvarma @jassie.gill @virat.kohli @priyankachopra @jassie.gill @jassmanak 🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝🔝 🔝___Follow page ___✌🔝 🙏Please Like And 🙈Share
#HappyFriday ! Start your weekend this evening at Classic Harley for Food Truck Friday! Featuring Gourmand Cafe - try twists on street food from around the U.S. . #foodtrucks #chd #harleydavidson #itsthefreakinweekend #grub #goodpeople #goodeats
For this week's Follow Friday, we're featuring @lindsayalano. Lindsay knows a thing or two about living life with a single ventricle after having three open heart surgeries as a child. She has been through some challenges due to her CHD, but her realistic positivity is an inspiration and something worth sharing with all of you. In her words, "While I don’t know what the future holds, I am choosing faith over fear." Thanks @lindsayalano for putting yourself out there, you are a true #chdwonderwoman ! 💪🏻❤️ #chd #chdawareness #chdcare4life #fontan #congenitalheartdisease #chdwarrior #mymendedheart #chdstrong #invisibleillness #1in100 #ourheartsroc
Cheeeeeeseeeee Look at this face ❤ #eadiesjourney #chd #chdwarrior #littleheartsmatter #heartlink
what is seen is temporary but what is unseen is eternal 🔥😍🤗 . . . . . . . . . . . . #chd #chandigarhdiaries #chandigarhblogger #likeforfollow #likeforlikes #followforfollowback #follow #yellow #bengaligirl #bongbeauties
Aku semangat, aku gembira, dan aku juara loh touring tiap bulan ke @rshs_bandung. Tmbah sneng lagi, krna skg smbil nunggu obat qt bisa jajan di mesin keren d dket apotek. tmn2 sperjuangan jgn lupa jajan dsna yah, jgn jajan obat mulu ..... Wkwkwkwk . . #pulmonalstenosis #patentductusarteriosus #penyakitjantungbawaan #kelainanjantungbawaan #littleheartcommunity #littlewarrior #chd #chdwarrior #chdawareness #chdsurvivor #pejuangjantung #pejuangtangguh #poli #kardiologi #bedahmulut #tht #rumahsakithasansadikin #kaysan #anaklaki #anaksholeh #anak #myhero #bobotoh #bobotohcilik #persib #hanrshs2018 #harianaknasional #bandung
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