#CHD

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โ€ข[Run with your heart. Not with your legs]โ€ข After a violent atrial fibrillation last week, I doubted whether I should start this run.. I have had contact with my cardiologist, and listened to my heart carefully. I started, and even improved my time! #5EM #finish 41.04min #pace 5'06" #average #bpm โ™ก151 #damloopbynight #zaandam #dtd #2018 #proud #medal #running #friends #personaltraining #improvement #legs #heart #dancingheartpatient #runningheartpatient #chd #openheartsurgery #survivor
๐Ÿ’• client dairies ๐Ÿ’• mah dear friend and stunning client from New York slaying in her @mohtarmatheboutique outfit .... you look so pretty โค๏ธ This beautiful outfit can be customized in any colour combination and style.... โ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝโ€”๏ฟฝstudio visit by appointment only.. _______________________________________________________for appointment nd inquires call us 7986728878 or DM .... ______________________________________________we ship worldwide ๐ŸŒ#clientdairies #clientpics #mohtarmatheboutique #mohtarmaclients #blessedtohavethem #thankyougod #punjabisuit #shararasuit #punjabiboutique #chd #USA #canada #dupatta #pajamisuit #customizedlehenga #lehenga #weddingoutfit #chandigarh #canada #usa #punjab #india #indianbride #punjabiwedding #boutique #punjabioutfit #designer #frilledlehenga #featherdupatta #ruffleslehenga
Mummy & Ollie spent the afternoon at a baby shower โค๏ธ Ollie was extremely anti social & I'm pretty sure he has a fear of people in general after being poked & prodded by so many doctors & nurses over the past 9 months ๐Ÿ˜ฌ But it was still a lovely afternoon celebrating a beautiful Mum to be ๐Ÿคฐโค๏ธ
ํ‰์†Œ์— ๋‘์‚ฐ์—์„œ ์ข‹์•„ํ•˜๋Š” ๋ฆฐ๋“œ๋ธ”๋Ÿผ์„ ์ˆ˜์ธ๋ฐ ์ข‹์€์ผ์— ํ•จ๊ป˜ํ•˜๊ณ ํŒŒ ๊ธฐ๋ถ€ํ•˜์˜€์Šต๋‹ˆ๋‹ค ์‹ฌ์žฅ๋ณ‘์„ ๊ฐ€์ง€๊ณ  ์žˆ๋Š” ์•„์ด๋“ค์—๊ฒŒ ์กฐ๊ธˆ์ด๋‚˜๋งˆ ๋„์›€์ด๋˜๊ธฐ๋ฅผ ๐Ÿ™๐Ÿปโœจ#๋‘์‚ฐ๋ฒ ์–ด์Šค #๋ฆฐ๋“œ๋ธ”๋Ÿผ #CHD
Design#your #dreams #sector -17#chd #
๐ŸŒผCan you see it? . . . #beauty #flower #photoofflower #chd #color #ksesha_ryazhenka
โ™ฅ๏ธ If you are involved in the heart community, you will most likely know who #superZola is! Itโ€™s been almost a year and a half since I have followed their story on social media, and it was so much fun meeting them in person! @given_today
Sheโ€™s back! Eye surgery went well as you can see from the princess wear. Sheโ€™s a real warrior. #heartwarrior #princesspaislee #paisleestory #chd #strabismussurgery #toddlerlife #2yearsold
Cottesloe Beach ๐ŸŒŠ๐ŸŒž
All sizes Available Quality 7@๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ A70016 Same Day Shipping Slip (24hrs) DM/Whatsapp for order- 7626093757 #jatt #chandigarh #ludhiana #photooftheday #quotes #picoftheday #instame #selfie #eyes #jatt #much #instagram #like4follow #likesforlikesback #bloggerstyle #style #kurta #pajam #black #sun #followme #arb #blog #delhi #chd #osm #liker #looks
The Faculty of Pharmaceutical Sciences organized the Panjab University Pharmaceutical Sciences Convocation, wherein successful graduate and postgraduate students of 2016-17 batch were awarded degrees. (pc : @vikas.kinha ) #education #panjabuniversity #chandigarh #india #campus #pharmacy #science #campuslife #instagram #picoftheday #photooftheday #convocation #celebration #student #pu #chd
Focusing on pointing my toes #pointyourtoes #circus #lyra #circus #cctga #ebsteinsanomaly #chd #scorpion #ijustlearnedthis #jaxbch #saltaer #inapped6hoursafterclass @pravaha_bird Iโ€™ve missed you and am so happy youโ€™re home!๐Ÿ–ค @sarahkbrooke Thanks for getting this awesome shot too!!
This is a face of a happy 28 month old little boy. He is smiling... He is happy.... He runs and plays.... He laughs and sings... He loves reading.... He loves his mommy and daddy.... To look at this smile you would never know.... He has been in hospitals a total of 9 months of his life.... He was born one month early to avoid death.... He couldnt eat for the first 13 days of life.... And then another 4 days after his 1st surgery.... He had 2 open heart surgeries before 21 days old.... He had a pacemaker for 1 year.... He almost died 4 times.... He was hooked up to an artificial heart for 5 months to keep him alive.... He has had 8 major surgeries... 7 minor surgeries and 1 every year for life... He has a new heart.... If it wasnt for the decisions of a mother and father it the deepest tragedy of their lives, gavin would not be here.... They let there child go to let my child live.... They gave the greatest gift anyone could give another person.... They gave the gift of life... Please become a donor so you can see more smiling faces like this one #hearttransplant #becomeadonor #donor #giftoflife #life #gift @davidfosterfoundation #davidfosterfoundation #transplant #stolleryhospital #calgarychilderns #chd #1in100
Nike airzoom Quality 7@๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ All sizes Available for A70027 Same Day Shipping Slip (24hrs) DM/Whatsapp for order- 7626093757 #jatt #chandigarh #ludhiana #photooftheday #quotes #picoftheday #instame #selfie #eyes #jatt #much #instagram #like4follow #likesforlikesback #bloggerstyle #style #kurta #pajam #black #sun #followme #arb #blog #delhi #chd #osm #liker #looks
So many great problems to train on for the #PortlandBoulderRally coming up in October! Thank you to @american_heart for supporting me, and allowing me the opportunity to spread the word about my congenital heart disease and CHD families. ๐Ÿ“ธPC: @daveburdickphotographer #pbr #climbing #bouldering #climb #competition #portland #oregon #pdx #pnw #strength #fitness #gym #heart #โค๏ธ #congenitalheartdisease #chd #chdwarrior #heartwarrior #heartwarriorninja #americanninjawarrior #lifewithoutlimits
Itโ€™s very hard for me as a mom to even stop and think about everything my daughter went through ever since she was born. She had 4 open heart surgeries, multiple hospital stays and so many medical procedures that when I do think about it it gives me anxiety. I was there for all of it. I cried when I couldnโ€™t ease her pain. I cried when I had to hold her for one more time they needed to find her vein for an IV. I cried when she looked at me helpless and I had to say, โ€œIโ€™m here Victoria, it will be okay!โ€. But no matter how hard I cried, I also had so much hope for her. I told her countless times when she couldnโ€™t even understand me, that she was strong, beautiful, smart. My husband and I never treated her differently. We always promised to just be there for her and create an environment of opportunities and a safe place for her to develop. We allow her to express herself. We donโ€™t judge her choices, instead we guide her. Of course we understand she has physical challenges and she may not be able to run a marathon but we NEVER focus on what she canโ€™t do. So far it has been working. She is amazing, fierce, resilient... but anyways, Victoria loves arts. That is her strength! She has always had a love for performing arts and music. And we are so proud to say that after many auditions and callbacks she will be performing in her very first professional production in December in Atlanta. We are beyond excited. My little girl has been cast on Madelineโ€™s Christmas. This is her first professional production and we will be there supporting her with her dreams. We love you Victoria. You are inspiration to so many... โค๏ธ #madelineschristmas #cast #theatrechild #performingarts #chd #hypoplasticleftheartsyndrome #hlhs #survivor #horizontheatre #atlanta #brodwayhereshecomes #icandoanything #fierce
#๋‘์‚ฐ๋ฒ ์–ด์Šค #๋ฆฐ๋“œ๋ธ”๋Ÿผ #ํ•ดํ”ผ๋นˆ๊ธฐ๋ถ€ #๋จผ๋กœ #chd #์„ ์ฒœ์„ฑ์‹ฌ์žฅ๋ณ‘ #ํ•ดํ”ผ์ถ”์„ # ์šธ ๋‘์‚ฐ ์„ ์ˆ˜๊ฐ€ ์ข‹์€์ผ ํ•˜๊ณ  ์žˆ๋Š”๋ฐ ์กฐ๊ธˆ์”ฉ์ด๋‚˜๋งˆ ๋™์ฐธํ•ด ๋ด…์‹œ๋‹ค !! ํƒœ๊ทธ ํด๋ฆญ ๐Ÿ‘‰ ๋ฆฐ๋“œ๋ธ”๋Ÿผ ํ”„๋กœํ•„ ๋งํฌ์ฐฝ ํด๋ฆญ ๐Ÿ‘‰ ๊ธฐ๋ถ€๊ณ ๊ณ  !! ์ฆ๊ฑฐ์šด ์ถ”์„์—ฐํœด ๋˜์„ธ์š” ๐Ÿ™†โ€โ™‚๏ธ๐Ÿคฉ๐Ÿ˜๐Ÿ‘๐Ÿ˜Š
โœŒ๐Ÿ‘‘Urban Stars๐ŸŒŸโค ๐ŸŒŸ #๐Ÿ”š #trending โ›ณ๐ŸŽฌ #Artists #Chandigarh ๐Ÿ—ผ๐Ÿ”#City #stunts #Mohali #CHD #i #Sectors ๐Ÿ“ท#Punjab โ›ณ๐Ÿ—ผ #patialatouch #punjabi_trendz punjabiโค๏ธ ๐ŸŽฌ๐Ÿ“ท#car #lovequotes forever๐ŸŒŽ๐Ÿค˜ Follow Page๐Ÿ‘‡๐Ÿ‘‡๐Ÿ—ผโ›ณ @chandigarh_mohali_mehkma ๐Ÿ‘†๐Ÿ”๐Ÿ”œ๐Ÿ”œ๐Ÿ˜Ž๐Ÿ‘ @vehlijanta_official ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ”œ๐Ÿ”š๐Ÿ˜˜ โ›ณ๐Ÿค˜๐Ÿ—ผ๐Ÿ†๐Ÿ”š๐Ÿ”š๐Ÿ”œ๐ŸŒŸ @ CITCO 's Updates #Love # #Dm ur HD Pics๐Ÿ˜๐Ÿ‘‰๐Ÿค˜๐Ÿ‘‡Admin @prabhjot_nandha #๐Ÿ˜Ž๐Ÿค˜๐Ÿ‘†๐Ÿ”š๐Ÿ”œโค ## Stylish Shouts๐ŸŽฌ# #Swags ###Tohrified ๐Ÿ‘‘ ๐Ÿ’ž๐ŸŒŸ#Shonki #Mehkma # #Famously ๐ŸŒŽ# Stylish Shootouts#pindaale ๐Ÿ˜Ž #Swagy #jatt #Punjabi Stars ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ F๐ŸŒŽll๐ŸŒŽw๐Ÿค˜โœŒ๐Ÿ๐Ÿ˜Žโ›ณ๐ŸŒŸ๐Ÿšจ๐Ÿ””๐Ÿ”ฐ๐ŸŽฉ๐ŸŽ“๐Ÿ‘•๐Ÿ‘“โŒš๐Ÿ’น๐ŸŽ†๐ŸŽ€
โœŒ๐Ÿ‘‘Urban Stars๐ŸŒŸโค ๐ŸŒŸ #๐Ÿ”š #trending โ›ณ๐ŸŽฌ #Artists #Chandigarh ๐Ÿ—ผ๐Ÿ”#City #stunts #Mohali #CHD #i #Sectors ๐Ÿ“ท#Punjab โ›ณ๐Ÿ—ผ #patialatouch #punjabi_trendz punjabiโค๏ธ ๐ŸŽฌ๐Ÿ“ท#car #lovequotes forever๐ŸŒŽ๐Ÿค˜ Follow Page๐Ÿ‘‡๐Ÿ‘‡๐Ÿ—ผโ›ณ @chandigarh_mohali_mehkma ๐Ÿ‘†๐Ÿ”๐Ÿ”œ๐Ÿ”œ๐Ÿ˜Ž๐Ÿ‘ @vehlijanta_official ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ”œ๐Ÿ”š๐Ÿ˜˜ โ›ณ๐Ÿค˜๐Ÿ—ผ๐Ÿ†๐Ÿ”š๐Ÿ”š๐Ÿ”œ๐ŸŒŸ @ CITCO 's Updates #Love # #Dm ur HD Pics๐Ÿ˜๐Ÿ‘‰๐Ÿค˜๐Ÿ‘‡Admin @prabhjot_nandha #๐Ÿ˜Ž๐Ÿค˜๐Ÿ‘†๐Ÿ”š๐Ÿ”œโค ## Stylish Shouts๐ŸŽฌ# #Swags ###Tohrified ๐Ÿ‘‘ ๐Ÿ’ž๐ŸŒŸ#Shonki #Mehkma # #Famously ๐ŸŒŽ# Stylish Shootouts#pindaale ๐Ÿ˜Ž #Swagy #jatt #Punjabi Stars ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ F๐ŸŒŽll๐ŸŒŽw๐Ÿค˜โœŒ๐Ÿ๐Ÿ˜Žโ›ณ๐ŸŒŸ๐Ÿšจ๐Ÿ””๐Ÿ”ฐ๐ŸŽฉ๐ŸŽ“๐Ÿ‘•๐Ÿ‘“โŒš๐Ÿ’น๐ŸŽ†๐ŸŽ€
Itโ€™s coming up on my one year anniversary of my open heart surgery and boy, what a difference a year makes. Itโ€™s still odd to think that on 11/2/17, I walked in for my pre-op and then the next day Iโ€™d be admitted for surgery where another human being would be cutting me open, stopping my heart and cutting into it in the hopes of being able to repair a 37-year-old problem. Living with multiple congenital heart defects is just what Iโ€™ve always known, so when it finally came time to fix my remaining issues, I was both excited and scared to death. Iโ€™m looking forward to my one year checkup and hopefully everything will still look good! โค๏ธ๐Ÿ’™ . . #chd #chdawareness #openheartsurgery #openheartsurgerysurvivor #chdwarrior
Share ur videos & pics...share world u seeย  by simply taging @pu_chd or use hashtags #pu_chd or by usingย  dm โค๐Ÿ’™๐Ÿ’š๐Ÿ’›๐Ÿ’œโค๐Ÿ’š๐Ÿ’™๐Ÿ’›โค @pu_chd @pu_chd @pu_chd.. ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ๐ŸŒ ๐Ÿ @pu_chd @pu_chd @pu_chd . ๐Ÿ‡๐Ÿšฃ๐Ÿ„๐Ÿ‚๐ŸŽฟ๐ŸŽฃ๐ŸŠ๐ŸŽฏโ›ณ๐ŸŽพ๐Ÿ‰ @pu_chd @pu_chd @pu_chd . ๐Ÿ‘•๐Ÿ‘š๐Ÿ‘—๐Ÿ’Ž๐Ÿ‘˜๐ŸŽฝ๐Ÿ‘‘๐ŸŒ†๐ŸŒ„๐ŸŒ…๐ŸŒŸ #panjabuniversitychandigarh ย  #panjabuniversity #Chandigarh #pu #Chd #uni #stuc #punjabi #boys #gals #fun #cars #models #desi #swaag #love #fashion #citco #dav #mcm #shoutout #dm #pics #beauties #personified ๐Ÿ’ฅ๐Ÿ’ฅ๐Ÿ’ฅ๐Ÿ’ฅ
๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜โคSatsri Akal ๐Ÿ™ ๐Ÿ™ Ambale ๐Ÿš™ Waleyo โ›ณ เจซเจฐเฉ‡เจฎ เจตเจฟเจš ๐Ÿ‘‰๐Ÿ‘‰ @ammyvirk ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡ ๐Ÿ’–๐Ÿ’–TAG OUR IMAGES TO OUR PAGE๐Ÿ’–๐Ÿ’– @ambala_the_royal_city ๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜ Follow Admin ๐Ÿ‘‰๐Ÿ‘‰ @jogpreetsingh ______________________________________________ Like โคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโค Commentโ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜โ˜ Tag your images to our page. ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡ โ–ถPROMOTE US WE WILL PROMOTE YOUโ—€ Dm your Hd pics๐Ÿ“ท๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ‘ #Ambala #shootout #city #route ๐Ÿš˜ #cant #chandigarh โค #lovers #mandeer ๐Ÿ˜Ž #galaxy ๐Ÿข #gedi #punjabi ๐Ÿ’ช #boys ๐Ÿ‘จ #swag #citco #chd โœˆ #amritsar #gedichd #gedisec17 #mohali #trending #muchtachers #elante #instalike #follow4follow #ghaint #sardar #turban #love #care #citcogediroutechd ______________________________________________ Give me your hd pics and gedi route videos ๐Ÿ“ท๐Ÿ“น๐Ÿ“น๐Ÿ“ท Follow My Page. Note:- ๐Ÿ’—เจชเฉ‡เจœ เจตเฉฑเจงเฉ€เจ…เจพ เจฒเฉฑเจ—เฉ‡ เจคเจพเจ‚ SHARE เจ•เจฐเจ•เฉ‡ SUPPORT เจœเจฐเฉ‚เจฐ เจ•เจฐเฉ‹๐Ÿ’—
โœŒ๐Ÿ‘‘Urban Stars๐ŸŒŸโค ๐ŸŒŸ #๐Ÿ”š#trending โ›ณ๐ŸŽฌ#Coming Soon #Artists #Chandigarh ๐Ÿ—ผ๐Ÿ”#City #stunts #Mohali #CHD #i #Sectors ๐Ÿ“ท#Punjab โ›ณ๐Ÿ—ผ #patialatouch #punjabi_trendz punjabiโค๏ธ ๐ŸŽฌ๐Ÿ“ท๐ŸŒŽ๐Ÿค˜ Follow Page๐Ÿ‘‡๐Ÿ‘‡๐Ÿ—ผโ›ณ @chandigarh_mohali_mehkma ๐Ÿ‘†๐Ÿ”๐Ÿ”œ๐Ÿ”œ๐Ÿ˜Ž๐Ÿ‘ @vehlijanta_official ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ”œ๐Ÿ”š๐Ÿ˜˜ โ›ณ๐Ÿค˜๐Ÿ—ผ๐Ÿ†๐Ÿ”š๐Ÿ”š๐Ÿ”œ๐ŸŒŸ @ CITCO 's Updates #Love # #Dm ur HD Pics๐Ÿ˜๐Ÿ‘‰๐Ÿค˜๐Ÿ‘‡Admin @prabhjot_nandha #๐Ÿ˜Ž๐Ÿค˜๐Ÿ‘†๐Ÿ”š๐Ÿ”œโค ## Stylish Shouts๐ŸŽฌ# #Swags ###Tohrified ๐Ÿ‘‘ ๐Ÿ’ž๐ŸŒŸ#Shonki #Mehkma # #Famously ๐ŸŒŽ# Stylish Shootouts#pindaale ๐Ÿ˜Ž #Swagy #jatt #Punjabi Stars ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ ๐ŸŒŸ F๐ŸŒŽll๐ŸŒŽw๐Ÿค˜โœŒ
Little Ellie!!! Once upon a time she wouldnโ€™t eat anything now she like pretend cooking and even likes to nibble on some fake chicken!! #ellieclarabelle #cutie #homiewithanextrachromie #chd #heartbabies #canttakeit
So, Henley threw up this morning during her 7am feeding and her tube came out too ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ Luckily, we got the tube out and off her face pretty quickly and she calmed down right away. Then she drank some more from the bottle, took a nap, had some play time and I put a new tube in. I hate putting the tube in because Henley screams and cries but Kraig made me do it because heโ€™s out of town so much and I need to get more confident with it. The process was quick, I got it in without any problems, and a few minutes later, Henley was fine. The rest of the day was great and she had lots of time to play with daddy. One of the main reasons we love the weekends... daddy daughter time ๐Ÿ˜๐Ÿ˜ . .๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization #openheartsurgery #tubeissues
Perfect weather for a fire.
Cardio kids team en acciรณn. Sรกbado movido. Caso 1. Cierre de Comunicaciรณn interatrial. Caso 2. Valvuloplastรญa pulmonar. Josuรฉ Cauich Segovia / Joan Jhonson Herrera/ Emilia Coviรกn Molina / Ely Sรกnchez Fรฉlix #cardiokidsteam #cateterismocardรญaco #chd
This morning I was upset. I was upset I had to go pick up trash along the freeway. I shouldnโ€™t have had to. My family shouldnโ€™t have had to. Picking up trash meant we were honoring Graham. Honoring a little boy who is no longer here. Honoring a little boy who should be celebrating his 3rd birthday on Tuesday. A little boy who fought like hell for 20 days. It just felt unfair. I wanted to be planning a birthday party, not walking alongside the freeway picking up garbage. The anticipation of what is to come just got the best of me this morning and I was sad. I miss my little boy. I wish so desperately he was here. For those that donโ€™t know, we adopted a section of Interstate 90 at the Washington/Idaho border. This was our way of giving back and one of the ways we keep Grahamโ€™s memory alive. We go twice a year. Usually in the spring sometime and then always around his birthday. Today was that day. As soon as we got there, the sun started to poke through the clouds and Owen found a feather laying right by the truck where we parked. I also found one as I was out picking up garbage. I knew these were all little signs that Graham was with us. He ALWAYS is. I just needed that little reminder today. โค๏ธ This is not the end. Not even by a long shot. . . . #mamagrief #infantloss #grief #weremember #heartwarrior #hlhs #hlhswarrior #chdwarrior #chd #gonebutneverforgotten #gonebutnotforgotten #missyou #chdangel
Chunk butt is happy to be home and we are happy she is feeling better and not needing any oxygen anymore!! Now to just keep her healthy and growing until full repair surgery โค๏ธโค๏ธโค๏ธ #chd #tof #tetrologyoffallot #pulminaryaretrisia #heartbaby #tubie #tubiebaby #feedingtube #medicallycomplex
A few days ago when I got home i looked at our post we shared about our story. I legit started crying with joy. If you know me you know I am a Man that takes nothing for granted. As I remembered when Abnormal Hearts first started to now, I became overwhelmed with joy because when you see something we been putting show much love and work helping others its makes us so happy. Thank you all for being amazing we couldn't do it without you. #abnormalhearts #abnormalh3earts #corazonesabnormales #hearttransplant #scars #inspiration #chd #siblings #love #life #neverquit #share #follow #nonstop #ourstory #ourpurpose #courage #believe #seeit
I am a heart mum ๐Ÿ’™โค๏ธ๏ธ Today is an anniversary. Glenn Shunt - 23rd September 1991 Still can make me cry 27 years later! All is well #ozehearts #chd #chdwarrior
I am a Heart Mum ๐Ÿ’™โค๏ธ๏ธ Today is an anniversary. Glenn Shunt - 23rd September 1991 Still can make me cry 27 years later! All is well ๐Ÿ˜ #ozehearts #chd #chdwarrior
We walked for this kid in the #madisonheartwalk today, which prompted me to finally share some of whatโ€™s been happening with us since we went to Mayo Clinic last month (link in profile). This kid is amazing and so tough, but this heart mom life kicks my butt sometimes. #chd #ebsteinsanomaly
Fashion illustrations of my @roberto_cavalli and @moniquelhuillier dresses created by @thepaperbarcompany Such wonderful, humble folks! My favorite part of the fashion events at @themallatmillenia #art #fashion #drawing #illustrations #style #mymillenia #love #happy #orlando #zippersister #chd #turnersyndromeawareness #wardrobe
My first 50k is in the books!! The @insidetrail Berkeley 50k Wow, what an incredible experience. Some seriously steep and never ending climbs (not hills, climbs ๐Ÿคฃ) insanely epic views, lots of great people, even made a new trail running buddy @chowdy ๐Ÿ˜Š I want to say a huge thank you to @s.a.spranger for talking me into this and staying with me even though you could have finished an hour earlier, you love for the sport and support was exactly what I needed. @macbethkw and @flippersunderthesea did the 10k, it was Flipperโ€™s first ever race of any kind and he did amazing, so proud of you brother!!! Huge #fuckheartdisease #zipperclub #openheartsurgery #chd #heartdisease #trailrunning #humansofhoka @hokaoneone @runinrabbit @tailwindnutrition @ultimatedirectionusa @insidetrail @xpandlaces
265/365 Our beautiful daughter getting ready for homecoming tonight! Paul would have been such a handsome date! โค๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘งโ€๐Ÿ‘ฆ๐Ÿ’ƒ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero #chdaware #heartwarrior #pcha #chddiagnosis #TOF #tetrologyoffallot #pchaohio #chdadvocacy #chdfamily #chdfunding #chdfight #chdmom #chddad #heartmom #heartdad #chdcare4life #chdaware
Huge milestone! Most of you donโ€™t know, but Anya (on left) is a #gtubekid meaning most of her food since birth has gone through a tube in her stomach. Yesterday was the first day ever that she ate and drank all of her food by mouth! One step closer to getting her #gtube removed! We are so proud of her and feel so blessed! Today we had a blast playing at the Splash Pad at the Florida Aquarium with @emileesadventures ! . . . . . . . . . #mickeybutton #gtubelife #hrhs #chd #chdawareness #hypoplasticrightheart #heartwarrior #heartwarriorprincess #floridaaquarium #flaquarium #tampa #tampalife #milestones #goals #emileesadventures
Follow Brett's Barn to keep up with all the amazing animals. #magicplace ๐Ÿ๐Ÿท๐ŸŽ๐Ÿด๐Ÿˆ๐Ÿฎ๐Ÿถ๐Ÿ๐Ÿ @brightforbrett #chd #thebrettboyerfoundation #downsyndromeawareness #ittakesavillage @supportinggoodcauses #Repost @brettsbarn (@get_repost ) ใƒปใƒปใƒป Ready for Saturday brunch! #brettsbarn #brightforbrett
My advice for all new heart parents now on The Mighty. Have hope and never give up. If you donโ€™t know what CHD is please have a read! โค๏ธ https://themighty.com/2018/09/new-heart-parents-need-to-know/ #heartbroken #heart #heartwarrior #chdawareness #chdwarrior #strongbaby #heartmom #children #chdbaby #imissmyTbaby #bubaloo #staystrong #openheartsurgery #chd #awareness #congenitalheartdisease #readit #themighty
Gianna had dance class this morning and her teacher, Ms. Debbie surprised us with this large collection of #poptabs We are so appreciative that you are now encouraging the whole Dussich Dance Studio to start popping tabs for our #PullForGianna campaign ๐Ÿ‘โค๐Ÿ’™ Keep collecting ๐Ÿค— but if you have some now, we are headed to our local Ronald McDonald House Charities (RMHC) ๐Ÿคก September 26th . Message me to plan a drop off or pick up time. #RMHC #KeepingFamiliesClose #bethechange #FreetoBeKind #PeaceLoveGianna #bekind21 #PullForGianna #CHD #Downsyndrome #Heartwarrior #_1aweek
Today I did something I have been wanting to do since Madelyn was born. Before Maddy came I would have never thought to donate blood. It was a long wait even with an appointment but it was worth it. Madelyn has used her fair share of blood products since being born so this is how I can give back for her and all the other littles going through the same things. It was an easy and selfless decision. Blood donations are always in need. #givingback #itsinyoutogive #helpsavelives #madelynsjourney #hlhssucks #chd #1in100 #blooddonor #canadianbloodservices #stollerybaby #stollerybackyard #livinghalfhearted #18882donate
When I started my career as a nurse 6.5 years ago I did not predict that I would be a Pediatric Cardiac RN, that I would leave my first job to move to another state and work for Vanderbilt, or that I would fall so deeply in love with a career that can be such a rollercoaster of emotions from day to day. To be surrounded by experts in my field who are striving to do their best for those in the fairly new world of congenital heart disease was such a great experience. This was my first Pediatric Cardiac conference and it wonโ€™t be my last! #sepcs #pediatriccatdiology #congenitalheartdefect #congenitalheartdisease #chd #1in100 #pediatriccardiacicurn #lifelongtreatment
Heart disease awareness #chdawareness #scars #scarsarebeautiful #chd
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