#DownSyndromeHero

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Slept in his own room for the first time last night - well, until 5am anyway 😁 Also, new haircut courtesy of mommy. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Still happy to wear his bunny hood. Quite an achievement for a kid who, until recently, would not let anything touch his head. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Can we go in yet? Arrived at school a touch early, so I had to deal with an impatient Noah trying to force his way through the school gate :D www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
My little grommet proudly lugging his heavy school bag to school yesterday. He's so in love with school 😁♥️ www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Refused to let me put that hood on his head until he caught a glimpse of how it looked in the mirror, after which he was quite happy to wear it to bed. Fashionista in the making. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
We have crafts at work and I painted this flower pot. Mom said I could have 1 of her cactus. She's going to teach me how to take care of it. I picked this 1 because it looks like a thumbs up! It’s saying, GO RED SOX!! Red Sox is the Miracle League Team I’m on. #premature #2hearthsurgeries #Downsyndrome #Downs #downsyndromeawareness #keepcalmitisonlyanextrachromosome #trisomy21 #downsyndromerocks #worldawareness #3 .21 #downsyndromeawarenessmonth #octoberisdownsyndromeawarnessmonth #upwithdowns #downsmagazine #earlyintervention #downsyndromehero #iwearblueandyellow
Conniving little grommet breaks into this trademark angelic smile that makes you rethink punishing him when he's naughty. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Caught this little grommet stealing my tub of mud crab from the kitchen this morning to eat for breakfast before school. This kid has expensive taste in food. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Caught this little grommet stealing my tub of mud crab from the kitchen this morning to eat for breakfast before school. This kid has expensive taste in food. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Caught this little grommet stealing my tub of mud crab from the kitchen this morning to eat for breakfast before school. This kid has expensive taste in food. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Getting ready for OOSH (out of school hours care) this morning because Thursday is my market day. He's been getting a bit of the rockstar treatment from the regular, older kids there, which is pretty cute to see. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
"Reading" his favourite book before bedtime - In The Night Garden's Everybody Loves Christmas - which was his Christmas present from our friend Sue. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Tried to deprive Noah of hugs because he deliberately knocked food off the table, so he figured picking up his toy would fix the problem. *Sigh* www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Someone's growing up - baby Noah finally able to wear the clothes given to us years ago by Brydie Arlington who, like me, ran a stall at Orange Grove Farmers' Market. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Like clockwork, baby Noah gets excited every time there's an action scene in a show I happen to be watching on my Yoga computer. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme #DifferentIsBetter #LenovoIN #netflixshows
Uncle Mike and the family dog sitting on grandma and grandpa’s porch a few years ago. So grateful that when grandpa saw him as a baby abandoned at the hospital, he brought him home and into the family. It was long before I was around, but I know my life would be lacking without him as my uncle.
Baby Noah's favourite toy, which is in fact an exercise balancing board I intended for my own use. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Poor little grommet had a temperature 2 days ago, and also 2 weeks prior. I think our weather's been messing him around a bit. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
***Link in my Bio*** As this was an unexpected and unfortunate event, my brother in law has set up a #gofundme account to assist us in uncle Curt’s expenses. If you have time to read what my brother wrote, you will get a glimpse of what an amazing man Uncle Curt was. Definitely the happiest person I ever met. If you were in a bad mood, he would change it in an instant. Any little bit helps! $1 $5 $10 thank you in advance.
That look of glee when he came across some keropok (prawn crackers) while raiding the apartment for food because dinner was taking too long. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
His teacher left a note to say he didn't eat his lunch because he didn't seem well, but evidently he's better now that he's home because he's setting the table to communicate that he wants dinner. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Both of us feeling a bit under par the last couple of days; been to the doctor's but no meds required unless he catches a fever down the track. www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
Fun evening at the 2018 School Dayz Prom. You where to dress up as a person you would see in school(teachers, bus drivers, cheerleaders etc). Hailey was a Mad Scientist and won beat costume prize. Swipe for another picture #swipe #madscientist #funnightwithfriends ❤️ #premature #2hearthsurgeries #Downsyndrome #Downs #downsyndromeawareness #keepcalmitisonlyanextrachromosome #trisomy21 #downsyndromerocks #worldawareness #3 .21 #downsyndromeawarenessmonth #octoberisdownsyndromeawarnessmonth #upwithdowns #downsmagazine #earlyintervention #downsyndromehero #iwearblueandyellow
Noah decides he wants to help with the housework by fetching the broom from the laundry and trying to sweep the floor (without much success) www.BabyNoah.com.au #babyNoah #DownSyndrome #dsdn #hydrops #AVSD #duodenalatresia #NICU #PICU #jackiemlife #T21 #DownSyndromeAwareness #DownSyndromeHero #LifeWithDS #DisabilityIsNotInability #T21Rocks #theluckyfew #wouldntchangeathing #thisisme
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