Join us for the inaugural Motorbike Ride 4 Epilepsy from Archerfield to Flagstone on Sunday 18 August. This ride is organised by our amazing volunteers Mark and Sandi Unnasch, partnering with Revolution Rider Training and raising funds and awareness for Queenslanders living with epilepsy. Funds raised will go directly to Epilepsy Queensland to provide information and support services.
The ride is an opportunity for family members and friends of people living with epilepsy to come together or social riders looking to support a great cause!
After the ride enjoy burgers at The Barn & Scotty’s Garage then return at your own pace.
To secure your entry we ask for a $50 tax-deductible donation via Everyday Hero http://bit.ly/Ride4Epilepsy. If you wish to increase your impact share your Everyday Hero page with friends and family so they can also make a donation towards Epilepsy Queensland.
#epilepsy #rideforepilepsy #epilepsysupport #epilepsyfamily #epilepsydad #seizures #MotorbikeRide4Epilepsy #motorbike #motorbikelife #motorbiker #motorbikeride #motorbikeBrisbane #motorbikeQueensland #motorbikerideforcharity #ride4charity
The Mate App works with Alert to visualize Embrace data, enabling you to see your day at a glance!
You will be able to get a holistic view of your daily routine including how much you’re moving and resting and any #seizures
that may have occurred.
MATE is free to download from either the iOS App Store or Google Play store!
Learn more at Empatica.com/mate —————————————————————
, cleared by the FDA, uses advanced machine learning to detect possible convulsive seizures and sends alerts to caregivers.
It also provides rest and physical activity analysis to better understand your lifestyle.
#HealthTech #EpilepsyMonitor #Wearable #Tech #EpilepsyAwareness #EpilepsySupport #TechForGood
*Link in bio* I had a blast working with @seizyfreezybeautiful
to share my story and spread awareness! Thanks to her for all of her hard work and I hope you go check out her account 💜
Epilepsy is a spectrum of neurological disorders involving recurring seizures.
Epilepsy and seizures have many different causes and causes of epilepsy are often linked to the person’s age at diagnosis. You can read more about the risk factors for #epilepsy
via this link:https://buff.ly/2Focs8B
Summer reading 📖[The Sexual Power of Marijuana] by Barbara Lewis, written in 1970. I felt like this was a nice opportunity to shed some light on the word ‘Marijuana’ - For the prohibitionists of nearly a century ago, the exotic-sounding word emphasized the drug’s foreignness to white Americans and appealed to the xenophobia of the time. As with other racist memes, a common refrain was that marijuana would lead to miscegenation.
Thank you for this post yesterday @rollacostapics @rollacostapics
Happy Purple day everyone! Today is a day that aims to raise epilepsy awareness worldwide. Being epileptic is not easy. It impacts my life in the strangest of ways, I do sometimes get caught staring at people like they’re a cupcake and I often zone out when people are talking (that has its benefits) and I get so tired to the point that I often have to say no to things I would enjoy because I know the repercussions of being over tired can be serious. There are a lot of situations that can cause anxiety and worry for me and I try to avoid stress as much as possible. I’ve learnt now that I have to not worry about being perceived as difficult by insisting on things that will make my life easier (Diva!😎)
I live every day grateful that I can live a full life, epilepsy never stopped me from pursuing my dreams, it just made it more difficult, but when my consultant found the right meds for me I was able to fly. I am truly grateful to him and our NHS and the travel concessions I get. Having access to good medical care and one less cost have been life savers for me. There are a lot of misconceptions about epilepsy and I urge everyone to read up on it, there are some great organisations out there helping people every day to live with epilepsy. If you can donate please do, they need help to do vital work. I am always happy to answer questions about my epilepsy, because people need to understand it. @awarenessforepilepsy @epilepsyaction @epilepsysociety
Don't forget to follow:➡ @Epilepsy.B.Martinez
🌸 Tag & Share with your Friends⤵
🎬Directed by @epilepsyaction
#epilepsyday #epilepsylivesmatterepilepsyaction #epilepsyawareness #endepilepsy #epilepsypositivity #epilepsysupport #epilepsyactionaustralia #epilepsylife #epilepsyadvocate #epilepsywarrior
to two years ago today. Conner was about half way through his two week hospital stay. Conner had his ostomy reversed for the second time. During the stay, he had an EEG, a swallow study, medication trials and so much more.
We went into his surgery prepared for the worst - for it to be unsuccessful again and thus another surgery would take place to give him a third ostomy. That didn’t happen, thankfully, but Conner did leave the hospital with an NG tube and strict orders of nothing by mouth unless puree consistency.
For me, this was really the point where Conner’s feeding challenges got real and the possibility of a gtube got even more real. Learning something new (tube feedings) seemed so overwhelming at the time.
Two years later we are still working hard on feeding. To most, eating seems easy and second nature. In reality, it is far from that. Conner’s feeding progress is the slowest of all of his progress - and often feels like one step forward, two steps back. I’m so thankful we are past this surgery and Conner has been relatively healthy the last year or so.
Sending love to all of our friends that are in the midst of what we were in two years ago. 💙💪🏼
Don't forget to follow:➡ @Epilepsy.M.Fredrickson
🌸 Tag & Share with your Friends⤵
🎬Directed by @ourlifeafternicu
#epilepsylife #epilepsypositivity #epilepsysucks #epilepsy #epilepsyactionaustralia #epilepsyadvocate #epilepsylivesmatterepilepsyaction #endepilepsy #epilepsyawareness #epilepsysupport #epilepsyday #epilepsywarrior
I Love Someone With Epilepsy ❤️
"I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite embarrassing, falling and fitting in the street, in the shower and against the radiator initially putting myself in hospital a few times. My driving licence was taken away from me straight away so I was devastated, as I'd only just got a car.
I graduated with my degree 3 years later although I was still having seizures every few months so I couldn't have my licence, this was due to not being able to find the correct meds.
I got accepted for a Masters in Social Work, at first I loved it, until I felt discriminated by professionals. I have been told I wouldn't succeed due to my condition, my driving ability and my epilepsy affecting my memory.
I left to move to London for a management role working for a charity for young people with disabilities, I loved every second of my work here and it has inspired me so much. I have now returned to the North East to complete my MA course and hopefully continue to work for more inspirational charities in the future.
This is the first time in 8 years I have gone a year seizure free and I am so proud and would love to support others going through the struggles I have in the past!
Don't let epilepsy win... be strong... and succeed!" Thank you for sharing your story Rachel 💜 💘 Follow @Epilepsy.M.Fredrickson
for more 😉
Comment below if You like this 💕
😝 Credit @epilepsyaction
💘 Tag your friends 👇
#epilepsyawareness #epilepsyday #epilepsylivesmatterepilepsyaction #epilepsyadvocate #epilepsywarrior #endepilepsy #epilepsyactionaustralia #epilepsylife #epilepsysucks #epilepsypositivity #epilepsysupport