#EpilepsySupport

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What a morning we had at @llhtulsa ! Conner and I got to paint together and he got messy! I’m so proud of him for exploring new textures! He hesitates with unfamiliar textures and has been known to vomit when touching something new. I love when Conner makes progress with sensory challenges. It’s something you can’t always see with your eyes, but it can effect many parts of the day! πŸ’™πŸ’ͺ🏼 * Follow us @Epilepsy.M.Fredrickson for moreπŸ’ * πŸ“· Via : @ourlifeafternicu #epilepsypositivity #epilepsysucks #epilepsylife #epilepsylivesmatterepilepsyaction #epilepsywarrior #endepilepsy #epilepsyactionaustralia #epilepsyawareness #epilepsyadvocate #epilepsyday #epilepsysupport #epilepsy
We just LOVE this amazing purple eyeshadow look from @the_chloe_mua ! Chloe has created the look to mark four years since her little sister was diagnosed with epilepsy πŸ’œ looks beautiful Chloe! * Follow us @Epilepsy.B.Martinez for moreπŸ’ * πŸ“· Via : @epilepsysociety #endepilepsy #epilepsyawareness #epilepsypositivity #epilepsywarrior #epilepsysupport #epilepsyday #epilepsyactionaustralia #epilepsyadvocate #epilepsylife #epilepsylivesmatterepilepsyaction #epilepsysucks
Letter Z A list of potential impacts/parts of epilepsy which aren’t always recognised. Thanks to our volunteers for helping to come up with this list. If have any experiences of these impacts which you would like or share or anything to add to the letter β€˜Z’ list, feel free to comment below (note: everyone has different experiences with epilepsy and these may not apply to everyone!) ☺️ DoubleTap & Tag a Friend Below‡ πŸ’‹ 😍 πŸ’Ÿ πŸ™ Plz Follow us - @Epilepsy.M.Davis * Tag your love 😘 * βœ… Turn Post Notification on πŸ“£ βœ… Follow, like and comment ✏ βœ… Tag your friends πŸ‘₯ * πŸŽ₯🎞 @epilepsypositivity #epilepsylife #epilepsyday #epilepsyawareness #epilepsysupport #epilepsyadvocate #epilepsylivesmatterepilepsyaction #epilepsysucks #epilepsyactionaustralia #endepilepsy #epilepsywarrior
Join us for the inaugural Motorbike Ride 4 Epilepsy from Archerfield to Flagstone on Sunday 18 August. This ride is organised by our amazing volunteers Mark and Sandi Unnasch, partnering with Revolution Rider Training and raising funds and awareness for Queenslanders living with epilepsy. Funds raised will go directly to Epilepsy Queensland to provide information and support services.ο»Ώ ο»Ώ The ride is an opportunity for family members and friends of people living with epilepsy to come together or social riders looking to support a great cause!ο»Ώ ο»Ώ After the ride enjoy burgers at The Barn & Scotty’s Garage then return at your own pace.ο»Ώ ο»Ώ To secure your entry we ask for a $50 tax-deductible donation via Everyday Hero http://bit.ly/Ride4Epilepsy. If you wish to increase your impact share your Everyday Hero page with friends and family so they can also make a donation towards Epilepsy Queensland.ο»Ώ ο»Ώ #epilepsy #rideforepilepsy #epilepsysupport #epilepsyfamily #epilepsydad #seizures #MotorbikeRide4Epilepsy #motorbike #motorbikelife #motorbiker #motorbikeride #motorbikeBrisbane #motorbikeQueensland #motorbikerideforcharity #ride4charity
Only 5 sleeps until Purple day 2019... Laura has shared the impact epilepsy has had on her memory. What is one thing you’d like more people to know about epilepsy this Purple day? πŸ’œ DoubleTap & Tag a Friend Below‡ πŸ’‹ 😍 πŸ’Ÿ πŸ™ Plz Follow us - @Epilepsy.B.Martinez * Tag your love 😘 * βœ… Turn Post Notification on πŸ“£ βœ… Follow, like and comment ✏ βœ… Tag your friends πŸ‘₯ * πŸŽ₯🎞 @epilepsysociety #epilepsyday #epilepsylife #epilepsysucks #endepilepsy #epilepsyawareness #epilepsyactionaustralia #epilepsywarrior #epilepsypositivity #epilepsysupport #epilepsyadvocate #epilepsylivesmatterepilepsyaction
The Mate App works with Alert to visualize Embrace data, enabling you to see your day at a glance! You will be able to get a holistic view of your daily routine including how much you’re moving and resting and any #seizures that may have occurred. MATE is free to download from either the iOS App Store or Google Play store! Learn more at Empatica.com/mate β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€” The #Embrace2 , cleared by the FDA, uses advanced machine learning to detect possible convulsive seizures and sends alerts to caregivers. It also provides rest and physical activity analysis to better understand your lifestyle. #HealthTech #EpilepsyMonitor #Wearable #Tech #EpilepsyAwareness #EpilepsySupport #TechForGood
Today is the international awareness day for . What will you be doing today to raise awareness of epilepsy? πŸ’˜ Follow @Epilepsy.B.Carlton for more πŸ˜‰ * Comment below if You like this πŸ’• * 😝 Credit @epilepsyaction * πŸ’˜ Tag your friends πŸ‘‡ #epilepsyawareness #epilepsysupport #endepilepsy #epilepsyadvocate #epilepsyday #epilepsyactionaustralia #epilepsylife #epilepsypositivity #epilepsywarrior #epilepsylivesmatterepilepsyaction #epilepsysucks
*Link in bio* I had a blast working with @seizyfreezybeautiful to share my story and spread awareness! Thanks to her for all of her hard work and I hope you go check out her account πŸ’œ
Epilepsy is a spectrum of neurological disorders involving recurring seizures. Epilepsy and seizures have many different causes and causes of epilepsy are often linked to the person’s age at diagnosis. You can read more about the risk factors for #epilepsy via this link:https://buff.ly/2Focs8B
Aly shared a lovely photo of her and her dog Penny, who she says lays next to her as she regains consciousness after a seizure. πŸ’œ β€œEpilepsy is tough, but Penny is by my side.” 🐢 @acanfieeld Don't forget to follow:➑ @Epilepsy.M.Fredrickson 😎 βœ… 😍 * βœ…πŸΆπŸ’“ * 🌸 Tag & Share with your Friends‡ * 🎬Directed by @epilepsysociety #epilepsywarrior #epilepsyawareness #epilepsylivesmatterepilepsyaction #endepilepsy #epilepsysupport #epilepsysucks #epilepsyadvocate #epilepsyday #epilepsypositivity #epilepsyactionaustralia #epilepsylife
βœ” Please doubletab and tag a Friend below Happy Purple Day πŸ’œ A day for raising awareness, advocating, myth-busting, educating and celebrating people with epilepsy all over the world 😊🌎 * 🐾 Follow us @Epilepsy.B.Carlton πŸ’ * πŸ’• Make sure you push like follow for daily pics! πŸ˜ƒ * πŸ’ž Thank you my friend Via: @epilepsypositivity #epilepsyadvocate #endepilepsy #epilepsyactionaustralia #epilepsysucks #epilepsylife #epilepsysupport #epilepsylivesmatterepilepsyaction #epilepsyday #epilepsyawareness #epilepsywarrior
Describe with an emoji 🌸 😘 Double Tap and tag your Friend.πŸ’–πŸ’–πŸ’– [Via|Cre|From|Repost]:@epilepsyactionaustralia #canineepilepsy #epilepsystrong #epilepsyfoundation #epilepsywarrior #fuckepilepsy #epilepsysupport #epilepsylife #epilepsyday
Summer reading πŸ“–[The Sexual Power of Marijuana] by Barbara Lewis, written in 1970. I felt like this was a nice opportunity to shed some light on the word β€˜Marijuana’ - For the prohibitionists of nearly a century ago, the exotic-sounding word emphasized the drug’s foreignness to white Americans and appealed to the xenophobia of the time. As with other racist memes, a common refrain was that marijuana would lead to miscegenation.
Thank you @emmylouwhite for sharing this with us! β€œJust wanted to share that my 7 year old son, Rupie who has epilepsy has tonight earnt his purple karate belt...on Purple Day!!” * FOLLOW πŸ‘‡πŸ‘‡πŸ‘‡πŸ‘‡@Epilepsy.M.Davis * πŸ“· @epilepsypositivity #endepilepsy #epilepsyactionaustralia #epilepsyday #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsylife #epilepsyadvocate #epilepsylivesmatterepilepsyaction #epilepsysupport
Thank you for this post yesterday @rollacostapics @rollacostapics (@get_repost ) ・・・ Happy Purple day everyone! Today is a day that aims to raise epilepsy awareness worldwide. Being epileptic is not easy. It impacts my life in the strangest of ways, I do sometimes get caught staring at people like they’re a cupcake and I often zone out when people are talking (that has its benefits) and I get so tired to the point that I often have to say no to things I would enjoy because I know the repercussions of being over tired can be serious. There are a lot of situations that can cause anxiety and worry for me and I try to avoid stress as much as possible. I’ve learnt now that I have to not worry about being perceived as difficult by insisting on things that will make my life easier (Diva!😎) I live every day grateful that I can live a full life, epilepsy never stopped me from pursuing my dreams, it just made it more difficult, but when my consultant found the right meds for me I was able to fly. I am truly grateful to him and our NHS and the travel concessions I get. Having access to good medical care and one less cost have been life savers for me. There are a lot of misconceptions about epilepsy and I urge everyone to read up on it, there are some great organisations out there helping people every day to live with epilepsy. If you can donate please do, they need help to do vital work. I am always happy to answer questions about my epilepsy, because people need to understand it. @awarenessforepilepsy @epilepsyaction @epilepsysociety Don't forget to follow:➑ @Epilepsy.B.Martinez 😎 βœ… 😍 * βœ…πŸΆπŸ’“ * 🌸 Tag & Share with your Friends‡ * 🎬Directed by @epilepsyaction #epilepsyday #epilepsylivesmatterepilepsyaction #epilepsyawareness #endepilepsy #epilepsypositivity #epilepsysupport #epilepsyactionaustralia #epilepsylife #epilepsyadvocate #epilepsywarrior
to two years ago today. Conner was about half way through his two week hospital stay. Conner had his ostomy reversed for the second time. During the stay, he had an EEG, a swallow study, medication trials and so much more. We went into his surgery prepared for the worst - for it to be unsuccessful again and thus another surgery would take place to give him a third ostomy. That didn’t happen, thankfully, but Conner did leave the hospital with an NG tube and strict orders of nothing by mouth unless puree consistency. For me, this was really the point where Conner’s feeding challenges got real and the possibility of a gtube got even more real. Learning something new (tube feedings) seemed so overwhelming at the time. Two years later we are still working hard on feeding. To most, eating seems easy and second nature. In reality, it is far from that. Conner’s feeding progress is the slowest of all of his progress - and often feels like one step forward, two steps back. I’m so thankful we are past this surgery and Conner has been relatively healthy the last year or so. Sending love to all of our friends that are in the midst of what we were in two years ago. πŸ’™πŸ’ͺ🏼 Don't forget to follow:➑ @Epilepsy.M.Fredrickson 😎 βœ… 😍 * βœ…πŸΆπŸ’“ * 🌸 Tag & Share with your Friends‡ * 🎬Directed by @ourlifeafternicu #epilepsylife #epilepsypositivity #epilepsysucks #epilepsy #epilepsyactionaustralia #epilepsyadvocate #epilepsylivesmatterepilepsyaction #endepilepsy #epilepsyawareness #epilepsysupport #epilepsyday #epilepsywarrior
Our next Moving Up, Moving Out Movie Series event will be on Saturday, June 29th! Transition-aged youth and their families are invited to attend an educational event featuring a panel of youths going through their own transition process from pediatric health care to adult health care. After the panel, attendees will be invited to a FREE PRE-SCREENING OF SPIDER-MAN: FAR FROM HOME! This event will be held at the AMC Lowe’s Waterfront beginning at 1:00pm. CALL TO RSVP TODAY - SPACE IS LIMITED! #epilepsy #epilepsyawareness #epilepsysupport #epilepsyeducation #epilepsywarrior #purple #powerofpurple #pittsburgh #412 #seizure #seizures #1in26 #spiderman #spidermanfarfromhome #marvel #movie #movienight
We have come a long way but have so much further to go. What do you wish for the future for people with epilepsy? πŸ€” #epilepsy #epilepsyawareness #epilepsywarrior #epilepsyfighter #epilepsysupport
ΒΏConocΓ©is nuestros cΓ³mics para hablar de la #epilepsia a los jΓ³venes? Β‘PodΓ©is obtenerlos gratuitamente en el enlace de nuestra bio! https://vivirconepilepsia.es/comics-hablar-la-epilepsia-los-ninos #epilepsiainfantil #epilepsy #epilepsyfighter #epilepsysupport #epilepsyawareness #epilepsywarrior #neuro #neurologia #neurology #brain #cerebro #medicina #salud #health #pediatria #neuropediatria
Aly shared a lovely photo of her and her dog Penny, who she says lays next to her as she regains consciousness after a seizure. πŸ’œ β€œEpilepsy is tough, but Penny is by my side.” 🐢 #dogs #dogsofinstagram #dogsofinsta #dog #epilepsy #epilepsyawareness #seizure #seizures #seizurefree #epilepsysupport #epilepsywarrior @acanfieeld
Give your opinion! πŸ’• πŸ’— Double Tap and tag your Friend.πŸ’–πŸ’–πŸ’– [Via|Cre|From|Repost]:@shirleysloveofstyle #epilepsyawarenessday #epilepsymom #canineepilepsy #epilepsyaction #purpleforepilepsy #epilepsyproblems #epilepsysupport
Hey everybody I am the director of the New Mexico Epilepsy Foundation. We are working diligently to raise money to fund research through UNM to discover a cure and save lives. We are also going to be providing classes on CBD and other technologies as well as support groups. If anyone would like to get involved or donate to our cause please get ahold of me. πŸ’œ #epilepsyawareness #findacure #cbdoil #epilepsywarrior #epilepsy #epilepsysupport #stopepilepsy #newmexicolove #albuquerque #505 #newmexico #epilepsyfighter #epileosyfoundation #helpusfindacure #everydonationcounts #charity #nobhillabq #centralave #fundraiser #plantsaremedicine #cannabiscures #medicinalherbs #medicalcannabis #medicalcbd #cbdcures #cbdforepilepsy @nmepilepsyfoundation
I Love Someone With Epilepsy ❀️
Keep being strong πŸ’œ πŸ’˜ Follow @Epilepsy.M.Davis for more πŸ˜‰ * Comment below if You like this πŸ’• * 😝 Credit @epilepsy.talk * πŸ’˜ Tag your friends πŸ‘‡ #endepilepsy #epilepsysupport #epilepsyawareness #epilepsypositivity #epilepsyday #epilepsyactionaustralia #epilepsywarrior #epilepsylife #epilepsysucks #epilepsylivesmatterepilepsyaction #epilepsyadvocate
Part of Conner’s post op therapy will include the spider cage 3 times a week. This has been such a good addition to Conner’s therapy routine. He’s able to be more independent without therapist’s hands on him. The bungees act as the hands and provide him with support. Bungees can be taken away to challenge him more. He has to figure out how to correct and move his body without physical cues from anyone. * FOLLOW πŸ‘‡πŸ‘‡πŸ‘‡πŸ‘‡@Epilepsy.B.Martinez * πŸ“· @ourlifeafternicu #epilepsyawareness #epilepsyactionaustralia #epilepsyadvocate #epilepsylivesmatterepilepsyaction #epilepsysupport #epilepsyday #epilepsy #epilepsypositivity #epilepsylife #epilepsysucks #epilepsywarrior #endepilepsy
βœ” Please doubletab and tag a Friend below Our full : A - Z Impacts Campaign! It has been wonderful to see so much interest and engagement from our followers on Instagram throughout the campaign this month. Each day we have been thrilled to see so many individuals connecting over shared experiences, as well as other members of the public who are not directed affected by epilepsy showing an interest. We have also been able to add lots of additional impacts (which will be included in our blog post) suggested by Instagram followers during the campaign. Thanks again to all who have been involved - we hope to run many more awareness campaigns in the future! * 🐾 Follow us @Epilepsy.M.Fredrickson πŸ’ * πŸ’• Make sure you push like follow for daily pics! πŸ˜ƒ * πŸ’ž Thank you my friend Via: @epilepsypositivity #epilepsysucks #epilepsysupport #epilepsyadvocate #epilepsywarrior #epilepsylife #endepilepsy #epilepsylivesmatterepilepsyaction #epilepsyawareness #epilepsyday #epilepsyactionaustralia
βœ… Follow, like and comment πŸ“ 🌸 πŸ’˜ Double Tap and tag your Friend.πŸ’– [Via|Cre|From|Repost]:@forced2bhealthy #endepilepsy #epilepsysociety #purpleforepilepsy #fuckepilepsy #epilepsyday #epilepsyproblems #epilepsyfoundation #epilepsyaction #dogswithepilepsy #epilepsyfamily #epilepsysupport
Only one sleep to go...πŸ˜΄πŸ’œ Is everyone all ready for tomorrow? Remember to tag us and use so we can see all of your amazing photos! * Follow us @Epilepsy.B.Carlton for moreπŸ’ * πŸ“· Via : @epilepsysociety #epilepsypositivity #epilepsylife #epilepsysupport #endepilepsy #epilepsyadvocate #epilepsywarrior #epilepsyawareness #epilepsysucks #epilepsyactionaustralia #epilepsyday
Childhood Epilepsy is a horrible disease, some children suffer over 100 debilitating seizures per day. The toll it takes on the family is also devastating. Love And Cannabis is a new podcast produced by MJBulls Media that shares the journey of one family who is helping their child overcome the disease with cannabis. Go to MJBulls.com to listen to new episodes every Weds. #loveandcannabis #loveandcannabiscansavetheworld #loveandcannabisisallweneed #loveandcannabisisalwaystheanswer #loveandcannabiscansaveus #loveandcannabiswillsaveme #loveandcannabiscansavetheworldwith #cbdepilepsia #epilepsy #epilepsysucks #epilepsyfighter #epilepsylife #epilepsysupport #cureepilepsy #epilepsyadvocacy #epilepsycure #cbdepilepsy #cannabisepilepsy #cannabisepilepsia #cannabisepilepsymedicine #mjbulls #loveandcannabispodcast #cannabispodcast πŸŽ™οΈ #cbdpodcast #medicinepodcast #familypodcast #familypodcasts
... πŸ’– πŸ’• Double Tap and tag your Friend.πŸ’–πŸ’–πŸ’– [Via|Cre|From|Repost]:@epilepsyactionaustralia #canineepilepsy #epilepsyfamily #epilepsysupport #epilepsyadvocate #epilepsyawarenessday #epilepsyday
Morning you lovely lot. Well had a great day yesterday but unfortunately today is another rubbish day. You’re all probably sick of reading the same thing lately 😬πŸ€ͺ. Just taking it easy today and hoping I don’t have any more fits coz it’s my beautiful niece @eveblackburnxx show tonight at @lipaliverpool 🀞. Another pic from yesterday when I was looking & feeling lots better!! Have a great day everyone xxxπŸ’œπŸ’œπŸ’œ . . . . . . . #shirleysloveofstyle #sharemysquare #epilepsysupport #epilepsy #epilepsywarriors #proudaunty
You can affect epilepsy by spreading the word about seizure first aid. Like and share our seizure first aid information to your family and friends. Let to because everyone can make a difference in the fight. Don't forget to follow:➑ @Epilepsy.B.Carlton 😎 βœ… 😍 * βœ…πŸΆπŸ’“ * 🌸 Tag & Share with your Friends‡ * 🎬Directed by @endepilepsy #epilepsywarrior #epilepsysucks #epilepsypositivity #epilepsylivesmatterepilepsyaction #epilepsyawareness #epilepsyactionaustralia #epilepsyday #epilepsysupport #epilepsyadvocate #epilepsylife
"I was diagnosed at 18 with epilepsy, I had just passed my driving test and started University. I had Tonic-Clonic seizures having no idea when they were going to happen, I thought it was quite embarrassing, falling and fitting in the street, in the shower and against the radiator initially putting myself in hospital a few times. My driving licence was taken away from me straight away so I was devastated, as I'd only just got a car. I graduated with my degree 3 years later although I was still having seizures every few months so I couldn't have my licence, this was due to not being able to find the correct meds. I got accepted for a Masters in Social Work, at first I loved it, until I felt discriminated by professionals. I have been told I wouldn't succeed due to my condition, my driving ability and my epilepsy affecting my memory. I left to move to London for a management role working for a charity for young people with disabilities, I loved every second of my work here and it has inspired me so much. I have now returned to the North East to complete my MA course and hopefully continue to work for more inspirational charities in the future. This is the first time in 8 years I have gone a year seizure free and I am so proud and would love to support others going through the struggles I have in the past! Don't let epilepsy win... be strong... and succeed!" Thank you for sharing your story Rachel πŸ’œ πŸ’˜ Follow @Epilepsy.M.Fredrickson for more πŸ˜‰ * Comment below if You like this πŸ’• * 😝 Credit @epilepsyaction * πŸ’˜ Tag your friends πŸ‘‡ #epilepsyawareness #epilepsyday #epilepsylivesmatterepilepsyaction #epilepsyadvocate #epilepsywarrior #endepilepsy #epilepsyactionaustralia #epilepsylife #epilepsysucks #epilepsypositivity #epilepsysupport
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