Break || Thurs 27th June
What a day. Gastro, a broken camera lense, a screaming child and exhaustion. Yep! I’ve got gastro (suspected anyway). On top of an already worn out mama, everything just seems to be going wrong. My pram tipped over and my camera lense broke and as a result no longer focuses. I’ll figure it out, but don’t think for a second that tears weren’t shed.
Westerns been irritable since we arrived in the Hunter Valley and it’s more exhausting then usual. I’m unable to put him down, leave him alone or sleep. Whoever said holidays are always relaxing; lied. We will be home soon and back into his comfort zone. Although I am devastated, my heart says explore but Western says stay close to home. Which is fine, he is my main priority but my goodness how I long to go away for weeks and explore the earth. Unfortunately I think I’ll just have to put it on hold for now. Life is just getting too hard.
Thanks to a lovely friend helping me through and talking me up, I’m going to be booking a psychologist app when I arrive home. Things are just getting too much to deal with in my own mind and having someone to offload to is hopefully going to help.
This is me officially signing off for the weekend. We will be back Monday and fresh (hopefully) at home. We have some exciting things coming.
What are your remedies to deal with a messy mind?
Na nowej wystawie Riviery Sztuki możecie podziwiać plakaty z różnych edycji @gdyniadesigndays
- festiwalu nowoczesnego projektowania! 📐📏
Dla wszystkich odwiedzających wystawę przygotowaliśmy #KONKURS
Wystarczy zrobić zdjęcie ulubionego plakatu GDD w dowolnej aranżacji - selfie, sam plakat lub kompozycja, zamieścić je na swoim profilu instagramowym i dodać hasztagi: #plakatyGDD
. 📱Wśród uczestników konkursu wybierzemy czterech autorów najciekawszych zdjęć, na których czekają nagrody: zestaw MANUBA kolekcja GDD 2019 oraz niepowtarzalne gadżety festiwalowe. 🎉
Konkurs trwa do 14 lipca 2019 roku.
▶Więcej szczegółów na profilu @gdyniadesigndays
#gdd #gdyniadesigndays #centrumriviera #rivieragdynia #centrumrivieragdynia
Treating your child’s hypotonia (low muscle tone) isn’t always a straight, simple path. But there are definitely do’s and don’ts. Here are three of each. Link in the bio to learn more. What advice do you have for parents who recently received the diagnosis?
So this one had his special first induction into Secondary School today. He loved it. I'm so happy. I'm also nervous about next week and his 2 day induction with everyone else. I still haven't been told if he will have a 1:1 or someone there to support him. I still haven't been informed of a plan. Tomorrow is also sports day another tough day for him. I hope it runs smoothly. Looks like yet again I have to chase up a meeting after false promises.
Selamat DR. Dr. Virna D. O, SpM(K) atas launching Virna Glaucoma Implant. Insya Allah bermanfaat bagi masyarakat Indonesia khususnya bagi penderita glaukoma.
I was so lucky having mentored directly by dr. Virna herself in inserting this glaucoma drainage device during my fellowship.
O ya, the last pic is Prof. Morgan, one of glaucoma consultant in Perth. Got a chance 2 or 3 times to meet him. Kind-hearted, humble and love to share his knowledge. (Still in my dream) Wish I could get any chance doing fellowship with Prof. Morgan. Aaamiin.. #masyaaallah #tabarakallah #glaucoma #gdd #glaucomadrainagedevice #pmma #vgi
Alhamdulillah for the parents' recommendation.
A therapy center in Selayang now opened, precisely for special need kids (autisme, down syndrome, learning difficulties, global developmental delay) age 3-9 years old. A free screening on development milestone is provided upon first trial session. Spread the words around to the family, relatives and friends with different need child.
Op Shops || Wednesday 26th June
I don’t have a caption but here is a pic of me rocking my op shop finds and having a dirty mirror. 🥰
What’s the best things you’ve found at the op shops?
Today I wanted to run.
I have never EVER been a dig my head in the sand type of person. I face things head on. I make lists, I take action I go 'get em'. But today like a few days I've had since Winter was born was hard.
Nothing especially difficult was going on. But I was extremely sleep deprived from Winter and the troubles we have been having with her sleeping. I struggled to get going in the morning. It took me 2 hours to get everyone ready and by that time Winter needed a nap. My thoughts raced "Hazel cannot do ANYTHING herself, this is so hard, I have 2 babies on my hands". I was getting annoyed that she was grabbing my arm trying to tell me what she wanted.
Then feelings of guilt that while I'm trying to get my kids ready and do simple tasks like empty the dishwasher I'm not doing anything valuable with my kids.
Today I wanted to run.
Strangely I ended up having more time than I normally do to engage with Hazel and teach her some things. She either didn't want to play with me or I couldn't keep her attention on the things she needs to learn. I looked up at her list of goals and I was overwhelmed with what she needed to learn and how little I've done for her lately. Then there is Winter who after wearing her harness is throwing her left leg out when she walks assisted. "2 kids who can't walk", my thoughts go to the worst places.
Today I wanted to run.
My body is sore all the time from not sleeping. I never get to the gym. I desperately need an eye brow wax, a massage, a dentist trip just a day to myself, oh yeah but with what money? You have a special needs child you cannot afford to spend anything. I'm so tired I have to look at the calendar every minute to remember what we have on, physio Monday, o.t Tuesday, speech, Wednesday, day care Thursday Friday and then where to fit the doctors appointments and other events. Then I worry about Winter who desperately needs to socialise, to do play groups to have the chance to grow and learn. Who watches Hazel picking up her bad habits. What time? When? (Continued in comments)
Read again if that didn’t sink in. After all, who do you think your child got all those great qualities from?
Esperar es difícil, pero Dios te sorprenderá con algo mejor de lo que imaginas❤🙏☝
Overload || Tues 25th June
In the Hunter, it is wet, cold and muddy (which we’re not sad about). Western is unsettled. He seems to be missing home and is noticing how different things are here. Our routines are broken and it’s just a little too much for him to handle.
He had a sensory overload today at the shops. I normally let him watch his videos on my phone to drown out the world around him, but it had died. So we had to wing it. Luckily this beanie covered his ears to muffle the sounds around him a little and the shade in the pram helped a lot.
He is okay. Missing home, but okay. We’re learning a lot on this trip. I get so overwhelmed as I just want him to be happy and enjoy that around him, but I’m having to train myself to remember he has a different thought pattern to me and that’s okay. Getting away for more then a few days is just a little too much, so maybe we will start small and walk a smaller path before jumping to climb rocks that are a little too shaky. On the plus side, we get to spend time with our cousins. Which is refreshing. I truly wish we lived closer. I wish the kids could grow up along side each other. Maybe one day 🍂
What’s the craziest thing to happen on one of your holidays? ✨ #inspiremyweek_mn
Where is your favourite holiday pool?
One of my tasks this week is to book a summer holiday. I know - we've still not done it yet 🙈.
I'm keen to go abroad but away from the Mediterranean heat. Big Bear is desperate to go somewhere with a great pool/splash park. Where do you recommend?
Acho que ja perdi as contas de quantas vezes subi no palco da festa mais esperada do ano por todos nós do litoral gaúcho!!! E nesse ano não poderia ser diferente... Sempre com aquele gostinho de primeira vez e a alegria de tocar em casa!!! Obrigado a todos responsáveis pelo evento, músicos que estão ao meu lado, a todos que acompanham nosso trabalho e rotina de shows.... #GDD
Today we had a transition meeting ready for school and I've recieved a report from complex communications teams observations of my boy. Half relief half heart breaking to read that in most developmental areas he has such significant delays. All the support is in place for school in September and this report will be one of the first pieces of evidence used for his diagnosis. For a child who struggles so much every day he hides it so well and is so well behaved. My perfect boy I wish I could make his life easier but I wouldn't change him at all 💙💙 #complexdelays #gdd #asd #autism #specialneedsparenting #additionalneeds
❤️❤️❤️ My hero this little man. As I sat and listened to him chatter away tonight something we were told would never happen. They told us he wouldn't walk properly he wouldn't talk. He would struggle. He doesn't walk he runs free. He finally after 11 years can string a sentence together. He does struggle but he is the funniest more courageous young man ever and I'm incredibly proud to call him my son... This is 5th award for horse riding.. Look at that smile ☺. #fighter #autism #adhd #sensoryprocessingdisorder #dyspraxia #gdd #incredible #proud
Hace algún tiempo los amigos de @papumba
, para quienes había hecho arte en varios proyectos, me arengaron para que me largue a hacer game design de algunas de las actividades de Papumba Academy y por suerte me re copé. Hoy hice capturas de algunos de esos juegos y aquí van!
#gamedesign #gdd #characterdesign #papumbaacademy #childrengames