#MyalgicEncephalomyelitis

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For those like me suffering with chronic illnesses. #myalgicencephalomyelitis @undercoverautie @spoonie_village
Safe and sound at the hotel. Had a baggage delay 😵😭 but luckily there was somewhere for me to sit. We got to the hotel where we didn't have to lug our liggage. It was all taken care of 😍 Fresh cold drinks at reception and then we were taken to our room which is amazing by the way. The bed is soooooo comfortable 😤😍 Then straight down for some food which was needed. Will update more tomorrow but for now I am going to try and get some sleep. Dosed up on painkillers, hoping they kick in a bit soon. #holiday #crete #edrecovery #update #fibromyalgia #myalgicencephalomyelitis #cfs #ibs #chronicillness #chronicpain #travelling #spoonie
My latest art project💐The letter C covered in artificial roses, I also added some little pearls too. I can’t wait to hang this in my room! Do you think this is something people would buy if I did personalised orders?✨ #artsandcrafts #wherethetiredgirlsare #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatigue #cfsme #spoonie #spooniesupport #millionsmissing #spreadingawareness #mentalhealth #deppression #video #vlog #vlogger #videodiary #positivevibes #positive #weightlossgoals #weightloss #weightlossjourney ##weightlosstransformation #weightlossmotivation #rest #selfcare #selflove #warriors #spooniewarrior
Apologises for being quiet today but... I’ve got myself a new job!!!🥂😃🎉Completely over the moon!👍🏻☺️Thanks to @slimmingworld my health is the best it has been in years meaning I am able to work another job alongside running my own little business @starrynightdesignsuk. I have so much more confidence & energy now❤️This whole experience has truly been life changing! Posts will resume tomorrow but for now here’s my face😂💋🤗 • • • #4stonedown #targetmember #club10 #slimmingworlduk #slimmingworld #slimmingblog #swmafiauk #weightlossprogress #swblog #foodoptimising #fooddiary #fitness #sw #swideas #swfriends #weightloss #weightlossjourney #swrecipe #swvegetarian #club10 #motivation #weightlossmotivation #strava #myalgicencephalomyelitis #me
Gallstones are cute Thank u nurses at the Beech Unit at Worcester Royal Hospital, I got a sick en suite room and I’m being treated very well here x
I re-binged The Good Place recently, and when this scene played I about lost my shit 😂 Shouting “Hi guys, I’m broken!” with a smile on your face, to be met mostly with a confused and uncomfortable reaction is seriously the perfect summary of what it feels like to be accepting and open about having chronic illnesses 🤣 I feel you, Janet. I feel you. . . . . #spoonie #chronicillness #invisibleillness #posturalorthostatictachycardiasyndrome #potsie #dysautonomia #autonomicdysfunction #myalgicencephalomyelitis #fibromyalgia #chronicfatigue #chronicfatiguesyndrome #gastroparesis #ehlersdanlossyndrome #heds #zebrastrong #spooniestrong #chronicallyawesome #sicktiredandalone #mcad #mcas #smallfiberneuropathy #craniocervicalinstability #thegoodplace #higuysimbroken
Climbing into bed after a very long day. Actually feeling very broken at the moment and am rushing around trying to hold the cracks in my life and my health together. Tonight I am Completely exhausted. 😴 . . . Life is not easy when you’re a single spoonie mum. No one will ever fully understand what it takes for me to run my life, business and home around a recognised disability... because it doesn’t present as evidently as others. The only person who has EVER truly understood me is my mum. I’d be lost without her. . . . And tonight I’m seriously thankful for my girls. I have sheltered them from the problems in my personal life this week but they can sense there’s problems and are always there for me to hug me when I wobble. I honestly don’t know what I would do without them! 💓🤷🏼‍♀️
This picture popped up in my memories today & reminded me that today is 5 years since my final operation which was the result of sepsis. This has really made me think & reflect this evening. That day I was told I may lose my breast but we wouldn’t know the outcome until after the operation. I will never forget the fear I felt about the operation, so much so I refused to be put to sleep for fear of never waking again. Sepsis is often misdiagnosed (as was mine) and over 46k people die of sepsis every year. That is a huge number. Since I was diagnosed with sepsis & after many operations I’ve been left with a weaker immune system & been diagnosed with M.E. (Myalgic Encephalomyelitis) but I am one of the lucky ones I’m grateful for the amazing team that not only looked after me for 3 years but also supported Will & the boys through the whole long process of getting the infection out of my body. I’m thankful for them taking our views & concerns into account & allowing me to have my surgery awake (apparently I was the first person the surgeon had done the procedure on awake). I’m thankful that I was always allowed Archie by my side whilst he was such a small baby whenever I had to have a procedure or stay in over night at the hospital. I’m grateful for the specialist care I received after with all the infections I used to get. I’m grateful for the support the NHS has provided me since my M.E. diagnose. When I tell people my story, they always say gosh that’s so unlucky but I don’t see it that way, some days are tough, even some weeks, not just for me but for Will & the boys as well, but I see myself as one of the lucky ones. I could of been part of those statistics & been one of those 46k but I’m not & because of that I’m grateful & incredibly thankful to our amazing NHS. #grateful #thankful #nhs #sepsis #myalgicencephalomyelitis #invisibleillness #lucky
Infectious Mononucleosis is known to cause lenghty disability in about ten percent of its victims, with most being female. Hormonal changes, perhaps triggered by an infectious event during adolescence, are more likely to push women, and not men, into a low cortisol and immune deficient ME/CFS-like state. Homeopathy treats the 'never well since mono' successfully, whether recently, or years back, using gentle and natural homeopathic remedies🍃 We would love to have a chat with you anytime if you are wondering what this approach to recovery involves. We do all client appointments online, so your mobility or location is not an issue. Rachel, Lone and Mary ❤ Www.naturaltreatmentyoungwomenandteens.com #mononucleosis #glandularfever #cfs #cfsme #mecfs #fibromyalgia #chronicfatiguesyndrome #myalgicencephalomyelitis #teenhealth #teen #spoonies #spoonielife #holistic #homeopathy #homeopathycfs #homeopathyme #homeopathyfibro #hope #recovery #cfsrecovery #painawareness #chronicillness
👀Why do I hate losing weight? . It isn’t the way it makes me look (although I struggle with the thigh gap), it’s the way it makes me feel. . . I feel weak. . And bony. . So fucking bony. . . When I get down to 100lbs, it’s surprisingly painful to sit or lay down- it feels like my bones are sinking sharply into my skin, which makes it almost impossible to get comfortable (fibro flare comfortable). . . Last night around 2am I couldn’t take it anymore. I had shifted from my left to right side more times than my back approved, and the ridges of my hips kept grinding deeper into the skin. I still feel bruised.🤦🏻‍♀️ . . The blanket I usually tuck under them was in the wash, and I couldn’t find anything else that seemed plush or cushioned enough- but then I remembered the velvet yarn! I hobbled into the living room, snipped off Mom’s current project, and tucked the velvety mass under my side. . . ✨🙏🏻🙌🏻😇 . Relief at last! . . 10/10✨ definitely doing it again. . . . Today’s been another rest day and is helping tremendously- my cold’s almost gone! . . It feels so good to be able to appreciate time like this as productive. I’m so proud of the change in my mindset.👏🏻 . If you need extras, take mine🥄 I won’t be needing them today💜
@_jamie.sinclair_ continuing my #vassietrusttakeover sharing more of ‘Digging Out’. “I first met Brendon whilst working in his local super market. After overhearing that I was a photographer, he approached me to ask if I would photograph his monthly prescription as it was apparently something his doctor had suggested to him. We agreed to meet for pizza to discuss ideas; little did I know this would become our weekly routine for years to come. What you see in this photo is the result of that meeting - Brendon’s monthly prescription of medication...” . . . . . . . . . . . . . . #chronicfatiguesyndrome #photography #untoldstories #photojournalism #documentary #myalgicencephalomyelitis #help #Brendon #DiggingOut #jamiesinclair #medication #illness #chronicillness
And I’m back at the infusion center. My abdominal pain is still out of control and my chiropractor said she felt so much swelling that was pushing my ribs out. I’m just hoping nothing serious is being missed and that I can tough out the pain until Friday. I’m doing chiro, IV, and another alternative healing treatment today so hoping that takes the edge off my pain. I am really grateful for all your love and support. It really helps me stay strong. It means so much having your support, as well as talking to all you warriors who fight with strength, courage, and kindness every day. Together we can find hope. #chronicillness #chronicpain #ivinfusion #pwme #myalgicencephalomyelitis #chronicfatiguesyndrome #ehlersdanlossyndrome #zebra #zebrastrong #posturalorthostatictachycardiasyndrome #dysautonomia #pots #potsie #potsiestrong #potsiegirl #gastroparesis #chronicmigraine #vogmask #vocalcorddysfunction #spoonie #spoonielife #spooniewarrior #spooniestrong #spooniecommunity
This week in the membership I’m uploading a BRAND NEW yoga programme: 28 day yoga in bed programme 🧘‍♀️. This 28 day yoga in bed programme is great for those who wish to try yoga and also for those who carry out a practice but have lost track and want to get back into a routine. Split into weeks each with 3-5 restorative yoga poses you can carry out at your own pace and time. This goes in the membership beside over 15 yoga videos, yoga Ebooks, yoga programmes to download and articles to help you along your wellbeing journey. Join the tribe at www.yogamybedandme.com. #myalgicencephalomyelitis #cfswarrior #chronicfatiguesyndrome
This time tomorrow we shall be in our favourite place. 🌴✈️☀
This week is all about quick and easy food 😋 so tonight we are having tesco free from chicken nuggets, lettuce and mayo in a @bfreefoods pitta bread with oven fries 😋 I am still recovering from the weekend at my best friends wedding, and probably will be for a while. I did way too much so lots of pain and fatigue and the pem is kicking arse. Partly my own fault though as I was a bit of a idiot an after a few drinks (alcohol can give me false energy) thought I was a normal person and danced for way to long and when I dance I properly go for it (my legs and knees seriously hate me right now) . Please tell me I am not the only one who does this? I am seriously paying for it now. When will I learn? (and listen to the lovely husband when he tells me to sit down/go to bed). I did have an amazing time at the wedding so it was worth it I just need to learn to be sensible (well sensibleish) and push a little without going completely overboard. Well that got heavy quickly 😂 Thank you if you read all this (just trying to be real). Sending hugs and spoons to all who need them 🖤 #spoonie #mecfs #myalgicencephalomyelitis #fibro #fibromyalgia #invisibleillness #chronicillness #butyoudontlooksick #pwme #pem #lowonspoons #nospoons #chickennuggets #pittabread #pitta #chips #fries #glutenfree #dairyfree #glutenanddairyfree #glutenfreedairyfree #coeliac #celiac #coeliacdisease #spoonie #mecfs #myalgicencephalomyelitis #fibro #fibromyalgia #invisibleillness #chronicillness #butyoudontlooksick #f52grams #eeeeeats #foodgasm #beigefood #tescofreefrom #ovenfood
Já faz 5 meses desde que comecei a compartilhar minhas experiências e minha vida com a doença crônica ME / CFS. Eu estava escondendo isso do mundo há 16 anos e a decisão de compartilhar nas mídias sociais não foi fácil, mas eu recebo muito apoio e encontro tantas pessoas interessantes e corajosas todos os dias, e é assim que eu sei que vale a pena! então eu quero agradecer por seu apoio e vamos continuar em contato💖💖💖💖💖💖💖💖💖 . it's been around 5 months since i began to share my experiences and life with chronic illness ME/CFS. i was hiding it from the world for 16 years and the decision to share in social media was not easy but i get so much support and meet so many new interesting and brave people every day, and this is how i know its worth it! so i want to thank you for your support and let's keep being in touch💖💖💖💖💖💖💖💖 .  #chooseyourlife #This_is_ME #cfsme #vida   #love #chronicfatiguesyndrome #fadigacronica #fadigacrônica #fibro #fibromyalgia #fibromialgia #vida #chronicfatigue #inspiration #mindfulness #mind #bodyandsoul #soul #alma #afirmação #afirmacao   #sindromedafadigacronica #cura #healing #blog #healthblog #myalgicencephalomyelitisawareness #myalgicencephalomyelitis
*long rant alert* Having a bad week or so, and finding it hard to stay emotionally strong this week. Feel stretched too thin with working full time and house/life stuff plus actually trying to live a life that isn't just work or rest. I'm so fatigued that having a bath made me throw up tonight....heart rate is over 100 despite laying in bed....everything hurts....even my fingers typing this....but tomorrow I'll get up and smile for the kids and do it all over again....I just wish there was a way predict what is going to cause a flare and what isn't, trying to find rules in an illness that has none is so frustrating. If I'm wishing for things I also just wish that others could see what is going on....that is wasn't 'invisible' and they could understand that I'm truly doing my best to keep everything together. That this isn't something hat I can just 'push through' or get a lay in t the weekend and solve. Okay rant over, I'm going to ignore the housework (again!) and watch GBBO under a blanket on the sofa with my mum!!
#SIBOandME 🍽 100% done! 🤦🏻‍♀️Ugh! I’ll try putting it as short as possible. So my stomach issues as a whole have been behaving which is good news. The bad news (and very confusing news) is that my new SIBO test came back positive plus it’s increased! It’s more than last time! Wtf! So the whole diet and the supplements and all the hard work and effort have basically done nothing and it’s worse than before! I just don’t get it! So I’m feeling pissed off and upset. And screw this I’m having the next cake I lay my eyes upon cause it’s not fair 🍰Over 4 months I’ve been treating my stomach/small intestine like a temple following every piece of advice to the letter, but it’s just given me the middle finger🖕🏼Not sure what to do next apart from hope my stomach stays relatively well and bearable despite still having SIBO. #sibo #sibodiet #stomachproblems #irritablebowelsyndrome #ibs #yourachingart #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #myalgicencephalomyelitis #meawareness #chronicfatiguesyndrome #cfs #chronicmigraine #chronicinsomnia #anxiety #deppression #spoonie #spoonielife #thoughts #feelings #emotions #rant
I struggle to describe how it feels as nearly a year on from a physical set back, the fatigue I suffer from is at a complete stand still. But the other night I put my pen to the paper and wrote without thinking, and I think I finally found the words: ~ Ten steps back Still no steps forward She wants to move But a barricade blocks her to where she wants to go She cannot figure out why this barricade is there or what she has to do to beat it She tries everything And yet nothing works Frustrated She kicks, she hits, she screams, she cries Temporarily defeated Confused Exhausted She knows something needs to change But she cannot move forward So thats when it occurs to her To stop and look at the spot where she is now 🍃 It’s not where she wants to be, but maybe it’s not as bad as it first seemed Feeling hopeful She sits For she knows the barricade will one day lift Whether through effort or simply time She does not know But she has seen it lift for other people, therefore knows one day it’ll happens to her And then she’ll finally be free to move forward 🌍 But for now She has an opportunity To practise peace and happiness At the spot where she’s stuck So she sits And she waits As patiently as can be Knowing one day She’ll make it But for now This spot will have to do Because even on the bottom step She knows Peace can be attained And happiness is still achievable 💭❤️
It may not seem a lot but I'm so proud I managed both school runs today and a trip to the dentist. The dentist couldn't help though and even though I have really bad teeth/jaw/ear pain we don't know what is causing it 🤔 I hope everyone else did something today they are proud of 💕 #proud #thisgirlcan #pain #chronicillness #chronicpain #chronicfatigue #pwme #me #cfs #mecfs #cfsme #myalgicencephalomyelitis #jawpain #fixme #fighter #autumn
Round 3. Kolmannesta hoidosta selvitty. Nyt pitää vielä selvitä jälkioireista. Taas mietin etukäteen, että millä ihmeellä selviän tästä päivästä (ja tulevista). Jouduttiin taas miettimään, että päästäänkö sairaalalle omalla autolla ja pyörätuolilla, vai onko viimein pakko tilata (yksityinen) ambulanssi. Pieniä editysaskelia on hoidosta tullut, mutta kokonaistila on jatkanut huononemista. Vaikea vielä sanoa mitään, toimiiko tämä mun kohdalla vai ei. Ja jos ei, niin mitä sitten? Tässä on nyt aikalailla kiinni kaikki toivo paremmasta ja myöskin koko omaisuus. Viimeinen kuukausi on ollut oireiden rajua vuoristorataa. Olen kokenut sen, miltä tuntuu, kun keho hiipuu, eikä sille vaan voi mitään ja ainoa mitä voi tehdä, on maata tuskaisena paikallaan pimeässä huoneessa, kun jokainen ärsyke on liikaa. Voi vain toivoa, että keho jaksaa vielä. Monesti oon ajatellut, että nyt oon pohjalla, mutta löytänytkin taas vielä syvemmän pohjan. Tällaisia olotiloja en ois ees osannu kuvitella, ennen kuin koin ne. Mutta vielä on toivoa. Haluan ainakin uskoa niin. Tänään lääkäri sanoi, että ei olisi vielä luovuttamassa, vaikka toivoisikin jo parempaa vastetta. Ei siis luovuteta!💪🏼 En pysty edelleenkään vastailemaan viesteihin, tätäkin kirjotan lääkkeillä doupattuna, vaikka pitäisi levätä ja keho rasituksesta kovilla ylikierroksilla. Ja vaikka tänään oli kuukauden raskain päivä, niin se oli myös kuukauden paras päivä. Tunsin tuulen kasvoilla, näin taivaan ja auringon, hengitin ulkoilmaa kolmatta kertaa sitten toukokuun. Vain kymmeniä sekunteja matkalla autolle, mutta silti. Ja ennenkaikkea sain hoitoa. Mitä ikinä sen kanssa sitten käykään, olen kiitollinen siitä, että mun henkeä ja terveyden rippeitä edes yritetään pelastaa.💙 #myalgicencephalomyelitis #pots #IVIG #hospital #ME #canyouseeMENow #severeME #dysautonomia #millionsmissing #stillalive #stillfighting #stillsick #4yearsandcounting
B-R-A-V-E . . . If you have an invisible illness, these cards are for you. I know to everyone I look healthy and happy because I put on a brave face, but I ended up reaching out for help and understanding with my ME/CFS. I feel loads better and am getting better. Send a card to your family and friends or maybe work to get the conversation going. #cfs #chronicfatigue #myalgicencephalomyelitis #invisibleillness #hiddenillness #lympe #potssyndrome #anxiety #lupas #mind #metalhealthawareness #spoonie #spoonielife #roadtorecovery #toradesign_ #greetingcardsforsale #greetingcard #cardsofinstagram @mindcharity @timetochangecampaign #actionforme #millionsmissinguk @millionsmissing @meactnet
I have an 8:30 class, and it usually takes me a good hour and a half to get up, so I’ve been trying some different protein shakes/meal replacements to cut out the time it takes to make and eat breakfast. This is my current one, and although it’s great to not have to worry about food, I often feel quite sick after drinking it, especially because it tastes very powdery. I have this with a lot of different shakes and liquid supplements, does anyone else? And does anyone have any suggestions for avoiding the nausea?
I am officially, scarily 20 years old today. And today I will celebrate the fact that I’m alive, I’m here, I’m kicking and breathing and surviving and learning that no matter what the future holds, I will come out the other side. I don’t know how to explain this other than it wasn’t easy, and it won’t be easy, but yes, it is worth it. Of course, special thanks to my sidekick for helping to make this possible, my one in a million P-girl, sweet girl, love girl. (Also shoutout to @service.dood.sage for surprising me with the gift of her presence - best way to kick off the festivities.) I hope everybody is doing well and taking care of themselves! • Image Description: Percie sits next to Claire wearing an orange and black bandana and the blue strap of her mobility harness is visible. I am wearing a blue shirt and black jogger pants and have my arms around Percie. On my waist is a pink and black treat pouch.
These photos are such a bloody weird mishmash 😃 But Lyle snapped the first one at our local Tesco - #yay , thank you for being inclusive to #invisibledisabilities Tesco 😍 2nd pic, we re-watched #blackfish yesterday (quite possibly our favourite documentary) & for the first time I noticed #KarenPryor was very briefly mentioned in the incident logs that flash up haha!! Next, gross #Aldi cookies that were super burnt & tasted disgusting 😶 I was like "cookies in bed because I feel ill today & this will make me a bit happy...okay nope, no, they're disgusting" 😂 And finally look where Lyle left the vacuum, because he's trying to kill me HAHAHA 😂 I haven't done much today because I feel really crappy...bit of knitting, bit of training. Mainly recuperating! #spoonie #disabled #disability #chronicpain #POTSsyndrome #dysautonomia #hypermobile #actuallyautistic #spd #chronicpain #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicallyill #chronicillness #disabilityawareness
I've been successfully killed off by two and a bit lectures. As in nearly collapsed walking back to my halls sort of killed off. Third year is definitely gonna be a year where I can only do law. Which sucks but my health is more important right now and unfortunately that means I can't get involved in clubs and societys like I used to. I don't really have friends and I don't really have a way of making them. I have many aquiantances. Its not like I don't speak to people 😂 ______ Really not sure how this year is gonna work. I don't have the physical or cognitive energy. At least not to be the law student I want to be. Yeah Id like to think can get a 3rd or a 2:2 but not a 2:1 or 1st without pushing too much. ____ Aside from health worries I'm feeling happy and motivated, happy and motivated isnt enough to make me push when I feel like crap tho. I need to guilt trip myself and even then at the mo it's difficult. I need to email my disso supervisor (bleh, she gives me anxiety and it gives me anxiety), actually book a counselling appointment because let's face it I'm a mess. And I bought a wicked ticket that's technically a £50 seat bit I got it for £25! I had to get one show on this deal really. I could have got better seats on different shows but I really want to see wicked again and everything else would be nice to go with someone else which wasn't feasable as mother's not answering her phone and she would want to see the other shows I could have got better seats for. #mecfs #cfsme #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatiguesyndrome #
Alfie enforced rest, feeling terrible hoping I'm no coming down with a virus, which is a relapse nightmare with ME #myalgicencephalomyelitis #spoonielife #lymedisease #pots #cfs
Think they are trying to tell me something #spoonielife #angels #angelcards #lightworker #cfs #myalgicencephalomyelitis #pots
Ok, so I was thinking of starting a new feature. I started #bulletjournalling in January in an attempt to help my mental health. After a bit of playing around I learned how to use it for both mental and physical health and I'm pleased to say it has really helped. I go on about my #bulletjournal a lot and I wanted to share how I use it. After all, one of the reasons I started this page was to share any advice in case it helped someone else. Soooo, what would people like to see? Do you bullet journal already? Is it something you've thought about doing? Let me know! ❤ _ #chronicallyfatiguedme  #bulletjournallingformentalhealth #bulletjournallingforillness #bulletjournallingforme #chronicillnesscommunity #meawareness #mecfs #myalgicencephalomyelitis #myalgicencephalopathy #chronicfatiguesyndrome #cfsme #cfs   #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnesswarrior #butyoudontlookill #butyoudontlooksick #Invisibleillness   #dontforgetaboutME #actionforME #millionsmissing #spoonie #spoonies #spooniesupport
My #Badges from the @thesarahmillican in Edinburgh on Sunday that my fiancé and I went to for our 6th anniversary. Her support for the show was @hayles_ellis and if you haven't checked Hayley out you should because she was great (As was Sarah) They both made our night a great one 😍😍 💜💜💜💜💜💜💜💜💜💜💜💜 #AspergerSyndrome #Asthma #BowelAdhesions #CPTSD #CerebralPalsy #CervicalSpondylosis #Costochondritis #Depression #Dysmotility #Fibromyalgia #HiatusHernia #Hyperlordosis #Hypermobility #Migraines #MyalgicEncephalomyelitis  #PremenstrualDysphoricDisorder #RaynaudsSyndrome #Scoliosis #Scottish #StomachPolyps #Tachycardia
I wrote this at the end of January after the death of my friend Mag who had had severe M.E. for 25 years. A few weeks ago another person from my local M.E. support group died. We met briefly years ago at a get-together - before both of us became too ill to attend. I hardly knew K., but feel strongly affected by yet another loss of a #pwme who did not receive the medical care she deserved. #pwme #MyalgicE #MyalgicEncephalomyelitis #postexertionalmalaise #chronicillness #spoonie #invisbleillness #chroniccreativity #MillionsMissing #butyoudontlooksick #MEawareness #severeME #doyouseeMEnow #brainfog #poetry #prose #humbles
This week’s Not To Do list, courtesy of @spoonie_village . Fellow spoonies, auties, anxiety sufferers, and everyone everywhere - make this your Not To Do list! 🦄 . #selflove #autistic #autism #actuallyautistic #myalgicencephalomyelitis #mecfs #millionsmissing #chronicfatigue #spoonie #anxiety #mentalhealth #bekind
Why do people always tell me lies??? Do I have FUCKING DUMB BITCH written across my forehead.... So fed up with this 😥
Mary Poppins afternoon tea! It's so nice to go out and do things. This hermit life is not good for my sanity #spoonie #spoonielife #myalgicencephalomyelitis #me #mecfs #cfsme #cfs #pwme #fibro #fibromyalgia
Jos jotain kiinnostaa lukea mun jorinoita enemmän, niin olen Facen puolella kirjoitellut jaksamisen mukaan blogia. Linkki löytyy biosta. Onhan tämä vähän erilaista, kun aiempi ”ura” sisustusbloggarina. 🤣 Noh, ehkä vielä joskus kykenen taas siihenkin. #blogi #myalginenenkefalomyeliitti #myalgicencephalomyelitis #potilaanelämää
A sneak peak of a bespoke box for a new home "Five Portions Of... Home Accessories". #smallbusiness #investinmeresearch #myalgicencephalomyelitis #spooniebusiness
Olga and me both back on our feet / wieder auf den Beinen. The comeback is always stronger than the setback. #siehtauswiedasverdammteauenland #looksliketolkiensshire #cfsme #mecfs #cfshealth #myalgicencephalomyelitis #everydayisagift #myoldgirl
I've had a weekend away which has been lovely and exhausting. Travelling is tiring even if it was only 20 mins away! However, a change of scene was very welcome and I got to spend time with family and friends 😊 - - - #chronicillness #chronicillnesswarrior #spoonie #myalgicencephalomyelitis #m .e. #pots #dysautonomia #Endometriosis #spoonielife #chronicillnesslife #cfs
Party is done, out laws are gone, I had a nice day of colouring in and jigsaws planned but he shat all over that by waking for the day at 3am. Yes 3 fucking AM. We have no idea why but he's had a nap thank fuck and woken up full of beans so it's a sofa picnic and yawn rape apparently. #swearymum #meawareness #silentillness #spoonie #myalgicencephalomyelitis #cfswarrior #mecfs #slothstyle #ownyourspoons #mummyblogger #spoonielife #scottishmummyblogger #scottishmum #scottishbloggers #mummyblogger #knackered #threenager #fucksake
Cats love yoga 🧘‍♀️ too! Monty helping @summerhouse_by_the_sea with my yoga for neck and shoulders YouTube video. 😻 #cfswarrior #myalgicencephalomyelitis #chronicfatiguesyndrome #spooniesister #invisibleillness #youtubeyoga #yogainbed #millionsmissing #yogacat
omg u cured my depression I owe u my life.
So I went for double chocolate 😊 it has just a hint of chocolatey flavour which is perfect 👌@roffeebe along with being super generous and sending me all there flavours to try (see my last post) they also have created a discount code 'SOPHIE20' for you lovely people to use on their website to get 20% off your entire order 😊 can't wait to try all the other flavours 😊 #coffee #coffeelover #coffeecoffeecoffee #groundcoffee #caffeinefix #frenchpress #coffeetime #cafetiere #roffeebe #flavoredcoffee #glutenfree #dairyfree #glutenanddairyfree #glutenfreedairyfree #vegan #coeliac #celiac #coeliacdisease #spoonie #mecfs #myalgicencephalomyelitis #fibro #fibromyalgia #invisibleillness #chronicillness #butyoudontlooksick #coffeepic #blackcoffee #instacoffee #coffeegram
This morning I was prescribed another new medication, this makes the 5th new one this month. Thankfully the others seem to be OK, I'm just hoping this one helps without lots of side effects. I feel like all I do is collect medication 😕 📸Credit @the_spoonie_chronicles . . #fibromyalgia #fibrolife #fibroflare #fibrowarrior #myalgicencephalomyelitis #mecfs #millionsmissing #spoonie #spoonielife #spooniesupport #unchargeables #warriors #endo #adenomyosis #costochondritis #chronicpain #chronicpainawarenessmonth #newmeds #anxiety #depression #selfcare #spreadingawareness
Been off plan for 10 days with my sister's wedding and a girl's night out, alcohol, takeaways, carb filled meals etc... Can feel it now - boy I'm poorly today 😔 Anyway am only human. No regrets, back on plan today. A few days off doesn't mean you have to abandon your progress. Will bounce back soon 👍 Side note, I was thrilled to bits to be able to wear a nice outfit and was proud to have my photo taken at the wedding instead of worrying about all my fat bits!! #weightlossjourney #ketodiet #healthyeating #lowcarbdiet #loveyourbody #wedding #myalgicencephalomyelitis #Fibromyalgia
Istuminen sohvalla ja syke 123/minuutissa. On tämä kyllä ihmeellistä, miten jaksaa sydän hillua omiaan. Taidan vajota vaakatasoon. 🙄 #myalginenenkefalomyeliitti #myalgicencephalomyelitis #POTS #postorthostatictachycardiasyndrome #potilaanelämää #nofilter
My baby. ♥ Always asking me if she can do this and that for me. Always helping me when I'm adamant I'm OK and don't need help. My #minime Asking for chores that will help/benefit me in some way. She's a tough cookie who's witnessed bad days/falls/memory issues etc etc etc. The falls scared her. She constantly wants to be near me for *that exact reason* #disabledmums #mumofgirls #middlechild #spoonie #spooniemum #spoonielife #chronicillness #eds #myalgicencephalomyelitis #edshm #lefthandnervedamage
This community of warriors helps to give me hope. Not of a cure, but that together, we will get through it 🧡 . I’ve tagged some special spoonies who been particularly kind and lovely 💛
First day back at university today!! Feeling a bit nervous but positive. As I’ve been able to create a timetable that is manageable for me this year! But still it’s going to be a shock to the system to actually learn again, especially as today quite a few of my joints have decided to sublux. But I’m fully splinted and ready to take on the day. 💪followed by an evening of chilling. 👌 (photo description: Winnie the Pooh looking confused at a piece of paper, with a heading saying: “looking at the first syllabus like.”) #hypermobility #ehlersdanlossyndrome #myalgicencephalomyelitis #chronicpainwarrior #zebrastrong #chronicillness #subluxation #invisibleillness
- FURBABY - Ook al lig ik dagen achter elkaar in bed, ik slaap nooit alleen #liefjes
What's your inspiration to take your mind off being consumed by #chronicillness ...? . . . Mines all things #pink 💖 . . . 2018 @alicetemperley #temperleyriviera summer collection featuring my favourite shade of #pinks 💝💓💞Pre Orders being taken Happy days for #pinkfashion #all4theloveofpink #ilovepink #pinknation #pinky #pinklover #pinkpower #pinkprint #pinktheme #pinkworld #pinkout #pinkish #pinkday #fashion #artistic #fashionista . . . #fibromyalgia #chronicpain #fibro #myalgicencephalomyelitis #chronicfatigue #anxiety #anxietyrelief #survivor #wellnesswarrior #instagood
What's your inspiration to take your mind off being consumed by #chronicillness ...? . . . Mines all things #pink 💖 . . . Stepping in beautiful #pink pair of shoes can put a smile on any girls face 💖 Its what a girl wants💖 . . One of my favourite pair @ted_baker #pinkshoes #pinkfashion #all4theloveofpink #pinknation #pinky #pinklover #pinkpower #pinkprint #pinktheme #pinkworld #pinkout #pinkish #pinkday #fashion #fashionista . . #fibromyalgia #chronicpain #fibro #myalgicencephalomyelitis #chronicfatigue #anxiety #anxietyrelief #survivor #wellnesswarrior #instagood
What's your inspiration to take your mind off being consumed by #chronicillness ...? . . Mines all things #pink 💖 Loving SS17 @aspinaloflondon #fashion collection this #pink Pegasus feather silk twirl scarf is selling out super fast £95!! . . #pinkfashion #artistic #all4theloveofpink #pinknation #pinky #pinklover #pinkpower #pinkprint #pinktheme #pinkworld #pinkout #pinkish #pinkday #pink #fashion #fashionista . . . #fibromyalgia #chronicpain #fibro #myalgicencephalomyelitis #chronicfatigue #anxiety #anxietyrelief #survivor #wellnesswarrior #instagood
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