Some important FAACT reminders from @FAACTNews
The Food Allergy & Anaphylaxis Connection Team:
. * Food allergy is the leading cause of anaphylaxis.
* The sooner anaphylaxis is treated, the less severe it is likely to become.
* Delayed use of epinephrine has been associated with fatalities due to anaphylaxis. * Anaphylaxis can occur without hives, and some studies show that fatalities are more likely when there is anaphylaxis without hives.
* Asthma, chronic lung disease, and cardiovascular disease increases risk of death from anaphylaxis.
* Epinephrine CAN be used to treat the symptoms of an anaphylactic reaction and an asthma attack. In fact, epinephrine was used to treat asthma attacks before other asthma medications were available. Asthma medication, however, will NOT treat an anaphylactic reaction. .
Speak to a board certified allergist for more information. #knowtheFAACTS #anaphylaxis #foodallergies #foodallergyawareness #epinephrine #redsneakersforoakley #livlikeoaks #stopanaphylaxis
💕 love this jewelry holder!
Today I’ve been thinking about gifts. (This cute jewelry holder was actually a gift!) Now that it’s the holiday season, I’m shopping for presents, making lists, checking them twice, etc. And this may sound corny- but I don’t really want anything? I’m mean, I’ll always welcome some extra cash or new clothes. But if this year has shown me anything, it’s quality time with friends and family is the best present! Yeah, it’s corny, but it’s true! I don’t remember the toys I got as a kid- I remember playing with my family, snuggling by the fire, singing carols, and making cookies. Presents are fun, but they’re really an excuse to be together. .
Have you started thinking about the holidays yet?
When I was healthy, there was a certain trust I held with doctors and hospitals. I believed they would be there if/when I ever needed them. They would do their jobs, to the best of their abilities, and keep my heart beating.
Unfortunately, the reality is nothing like that. Not all hospitals are built equal, and some are simply not up to par for treating a complex, rare patient. The closest hospital to me is small and inefficient. They regularly take upwards of 2 hours to bring me emergency medications during a severe allergic reaction.
This sort of wait time could be the difference between life or death for someone with mast cell disease. It is dangerous, and unacceptable.
So we must make tough choices in the midst of an emergency. If we feel we can stabilize me enough we drive 1-2 hours to the closest hospital we can trust. If I can’t, an ambulance is our only option in a situation where driving to the ER should be sufficient.
Knowing that I live so far from a hospital I can trust gives me anxiety every day. Driving hours when you’re struggling to breathe is one of the most terrifying things I have to do. I’m sad to say I’m not the only rare patient in my town that has to make these decisions and it doesn’t look like things will be changing anytime soon.
If you have a good hospital system near you, be thankful. It is a gift some of us don’t get.
(P.S not all small hospitals are bad. Some treat patients greatly and it just depends on the hospital!)
This week I've been to A&E twice for my unknown allergy. I'm thankful that I a surrounded by such wonderful and supportive family and a great work place who are putting up with me during this all. And im now enjoying being at home with Nurse Rogue haha #idiopathicanaphylaxis #anaphylaxis #feelingthankful
Back to...beef. So. Much. Beef. I am trying my best🤞🏼 not to repeat a meal for at least a month (k, I’m really trying for 6 weeks but I know that’s not realistic—I’m an #overacheiver
at heart)... we are looking at two years (+/-) in this program so I don’t want B to burn out on anything too quickly. There is nothing sexy about this meal, but I can prep it all the night before and pop it in the oven when I get home, and B 💙’s it! Asparagus is hit and miss for him, so I actually shred zucchini and mix it in the meatloaf for some added (undetectable) veggies. I sub #dairyfree
milk and use 1/4 c. applesauce as an egg replacer. There is enough for leftovers (meatloaf sandwiches!) and we get to check another box off our spreadsheet. These are @inagarten
roasted rosemary potatoes—my fav!
Also, how do you guys take such nice pics of your food? We have under mount lighting which doesn’t help, but I’m just trying to get everything on the table hot(ish), you know? Do you really stage your food? Impressive🙌🏼
#foodallergymom #foodallergyawareness #dairyfreeforlittleB #foodfreedom #tpirc #ToleranceInductionProgram #anaphylaxis #advocacy #nonuts #foodallergytreatment #dairyfree #themoreyouknow #eggfree #glutenfree
"Today I will do what others don't, so tomorrow I can do what others can't." Keep your focus and your Epis on you always. 🏒
“Failure is nothing more than a chance to revise your strategy.” Do you remember that post about us taking tiny steps with Brooks’ baked egg food challenge? We took those tiny step yesterday. Unfortunately, Brooks failed his food challenge. We don’t see it as a failure but rather a chance to take some time off to breathe and revisit it at another time.
Brooks started with a small nibble of the yellow cake I had made at home with 3 whole eggs + 1 egg white. He was completely freaked out by the texture as he’s never had anything like cake before. We smothered it in his favorite yogurt and then he gladly ate it. About the third dose of the cake he started exhibiting a small reaction. His reactions were just a couple tiny red dots. Then he got a dry tight cough, pointing to his tongue, and a sneeze. The challenge team was great and monitored him for a very long time after giving albuterol, antihistamines, and steroids. Since Brooks cannot talk to us to tell us how he was feeling (other than his pointing to his tongue) he could have had more symptoms unknown to us. With that to only a few small bites and his history of anaphylaxis - and most recent biphasic anaphylaxis - we are not able to proceed with the introduction at this point. The doctor said that we will revisit baked egg next year to see how things look but for now we continue the path of strict avoidance of egg, baked egg, all tree nuts, and sesame. We agree that it’s the right decision. We are thankful we did the challenge to know where we stand. Thank you all for your support and love. He is doing fine and is his happy normal self! Here is a pic of him playing with his suitcase of toys we brought for his challenge that turned into a 7 hour day. Big brother, Daddy, and Mommy were all exhausted by the end of the day trying to keep him entertained. 😂🥰 #anaphylaxis #anaphylaxisawareness #silverlining #foodallergies #foodallergymom #foodchallenge #foodallergyawareness #justkeepswimming #theellenshow #onepositivethingaday #foodallergyemotionalsupport #brooksiebear #johnshopkins #thankful #failure #revisedstrategy
Fridays can be tough. It's the last day of a long school week & everyone just wants to get home, kick their shoes off & relax. Life had something different in mind for us today with Miss E being stung by a bee 🐝 Not gonna lie, I'd been getting a bit complacent with life lately so this was a timely reminder to always be vigilant.
Feeling VERY grateful that she's not allergic - not even the slightest! Popped a few things on the sting & her hand didn't even swell. Stoked! Hope you guys have all had a great week x
What happens when you try to fire EpiPens that have been subjected to extreme heat and cold? In short, well, they won't necessarily work. 😨😨 This began as an experiment by @AllergySuperheroes
Eileen Rhoadarmer to see if she could use extreme heat and cold to abuse some (expired) EpiPens to the point where the solution would discolor, but she learned that they seem to require a heck of a lot more abuse before that happens. So she shifted her focus onto what would happen when she fired them. “In this video I fire five EpiPens: a control, one that spent 12 days on the dash of my car in full sun (90 degrees F outside, close to 200 inside) and was allowed to return to room temp, another one that spent 12 days in a hot car and I fired it while still hot, one that was frozen for 12 days but was allowed to thaw, and one that was frozen for 12 days and was fired while still frozen.
The results of this definitely surprised me! Based on the limited research that has been done, there is a very good chance that the (again, already expired) epinephrine in these abused devices would have been below full strength, but I unfortunately do not have the ability to test the remaining epinephrine for efficacy.” #epipens #epinephrine #hotandcold #temperatures #saftey #anaphylaxis #foodallergies #allergysuperheroes
Spotted this whilst working at
today! Sometimes this is all it takes... 👌🏼
Understanding the effect living with a severe #allergy
can have, we have created a factsheet on the psychological impact with an aim of helping to improve confidence and reduce anxiety in social situations #FactsheetFriday
This is what she normally looks like👉 swipe to see what happens when she comes in contact with peanuts or legumes. I love someone with a severe food allergy, please remember when people out, at events, restaurants, on planes etc. mention they have an allergy alittle compassion and understanding goes a long way. 👌
Three snack boxes today. Portent of things to come!! We are lucky- the boys have all their meals provided by preschool (they have been incredible at keeping Caleb safe and included) but Ethan has school orientation today so it’s snacks all round with a lunch order day for Annabelle. I honestly don’t know what I’ll do when Caleb gets to school with lunch orders. It’ll obviously be a decision based on his residual allergies and the school canteen capability. But man it gets exhausting not having all the options all the time like his siblings. Ah- it’s been a long week, think it’s early to bed tonight to wake up refreshed and not sounding so ‘defeated’. Rest well peeps!
Anaphylaxis has got to be one of the scarier issues I struggle with. It starts with flushing then itching and swelling and quickly progresses to difficulty breathing, tachycardia, hypertension. When my symptoms first start we try treating it at home with what we have ( liquid Benadryl, inhalers and breathing treatments) sometimes that isn’t enough though and we more times than not find ourselves in the ER needing more aggressive treatments and to be monitored. Thankfully the ER near my house (Not Duke where I receive all of my care) has been so amazing every single time I’ve come in. Within minutes of arriving I am treated and taken care of. I’ve gotten to know the staff here very well. Tonight was rough my symptoms were more intense and it caused my POTS to act up and I kept having spells of almost passing out while laying down. No matter how many times I go into anaphylaxis it never gets easier but one thing I repeat to myself is once I get the medicine I need I will feel better. There is a light at the end of the tunnel and this too shall pass. On the ride to the ER I was so frustrated with my body I didn’t want to deal with this I just wanted to flick the switch off but sadly chronic illness doesn’t take a break it is 24/7 it doesn’t take off on holidays and it’s ruined birthdays. But tonight I am grateful for fast working nurses and doctors who are compassionate and understanding. As soon as the doctor assessed me he asked me what I wanted to do and came up with a plan WITH me because I know what works. I am also so incredibly thankful for my parents it’s not easy having a young adult who is sick and fully dependent on them but they have done nothing but love and support me through all the mess that is my body. And last but definitely not least I am so grateful for the amazing friends that constantly let me know they are praying for me and are there for me. The love they show me always blows my mind and fill my heart with so much gratitude. I love y’all more than words can explain. It’s only a bump on the road. ♥️
#anaphylaxis #POTS #Chronicillness #invisibleillness #webewarrior #healthbeme #healthbeem #YoBodyDoYourJob @healthbeme
I love old libraries 📚
I only have two more days of classes until Thanksgiving Break! And this break is going to be very Necessary. Then I’ll just have a few more weeks of class until Winter Break!! ❄️☺️
Of course, my Winter Break will be a full quarter because of my health. I’m actually really excited! Balancing school and illness is so difficult. I need some mandatory time to relax tbh. Also, I have activities lined up to work on if I get bored (maybe I’ll get around to finishing one of my barely-started novels!), and I’m hoping that I can make a lot of progress with my treatment.
Earlier this year, when I first took time off from University, I searched and searched but couldn’t find stories about what other people like me had experienced. That’s kind of why I started this Insta in the first place- to help share my experience in case someone else felt alone. Guess what? You’re not alone! Taking time off can be the best gift ever! Don’t judge yourself by “normal” standards, because your “normal” is different. And that’s ok! .
To keep with the library pic theme, any recommendations for books I should read during my break?
Sad that they cannot figure out a way not to cross contaminate food at a restaurant billed to be suitable for everyone. I, unfortunately for my family and @piefivepizza
, prefer my pizza without a side death. Too bad because it was the easiest and best way to eat pizza. Nice that they were incredibly rude about it though. #Anaphylaxis #Allergy #ButAtLeastItsKetoRight
Celebrating a huge victory today!! It took over two weeks of effort, but, we were finally able to get [generic] EpiPens!! We are beyond grateful my specialty pharmacy made this happen! I was really getting nervous not having any Epi on hand in case my body decided to throw another anaphylactic fit. For those who may not know, there is actually a nationwide shortage of this life saving medicine. I’ve heard more than one story as to why it happened, so I won’t get into how it started. Whatever the cause, we need this shortage, and the shortages for other life saving medicines like Benadryl, to stop NOW!! People’s lives are on the line!
Allergies can be frustrating and really scary. I had an allergic reaction last night. Sometimes it’s really hard to pinpoint what makes me react, especially when we are around a lot of people. For those of you who are new, I have life threatening food allergies. It’s also a contact allergy which means I don’t have to eat it, I can just be touched by it and still react. I’ve always had them as far back as I can remember. I have to be super careful anywhere I go, wipe things down, make and bring safe snacks and we always cook from scratch. It’s always been a challenge for my parents to get people to fully understand my allergies and what is safe for me. That’s why I created @unicornkidstees
. I wanted make shirts that remind people that we have a serious allergy! I hope these cute shirts will be helpful and make food allergy and celiac kids feel special too! I’m doing much better today but I’d love to hear some of your stories! .
#kidswithfoodallergies #kidswithceliac #foodallergyawareness #foodallergylife #foodallergyfamily #foodallergies #celiackids #anaphylaxis #anaphylaxisawareness #kidpreneur
What to do about our little red head + his #FPIES
diagnosis? Nothing, at the moment. We are giving A an 18 month gut reset and then we will re-try eggs (in a doctors office challenge). In the meantime, we hope we don’t discover any additional triggers (1-2 triggers is most common but there are some children with upwards of 20 triggers); but if we do, we will be better prepared. Our emergency room experience with A was nothing short of awful and it was grossly mishandled, but it’s not entirely their fault. FPIES is an incredibly rare disease and most medical professionals have a limited working knowledge of traditional (IgE mediated) #foodallergies
, so this is WAY out of their norm. They kept him alive, which is all we cared about in the moment. Unless you actually witness the vomiting, I can see how it could present as an awful case of the flu and an overprotective Mom. The ER should have started fluids immediately and they should have been monitoring A’s blood pressure, which was dangerously low (they withheld fluids and didn't monitor his vitals until he went pale/blue/limp). As this was the second time this had happened (the ONLY two times A had tried an egg), I was adamant that this reaction was indeed from eggs, but I didn’t know what it was and the emergency team assured me it was NOT a food allergy. My Mom gut knew differently (don’t mess with an #allergymom
)...Fast forward, now that we have a confirmed diagnosis from our allergist, we always carry a letter from our doctor explaining FPIES and how to treat it for any emergency room/first responders; and we hand delivered information about FPIES to our local fire department along with fresh, homemade #top8free
cookies (nicest guys on the planet and they welcome our two little frequent fliers with open arms any time they visit). In the Price house, egg free is the way to be, and we continue to focus on B’s immunotherapy for his IgE allergies...one day at a time. Have any questions about #FPIES
? Feel free to reach out! xo
#foodallergymom #foodallergyawareness #dairyfreeforlittleB #foodfreedom #anaphylaxis #advocacy #nonuts #foodallergytreatment #dairyfree #themoreyouknow #eggfree #FPIES
This goob had a real life pancake today.
She was diagnosed with an egg allergy at the ripe old age of 1 after having a severe reaction (hives, vomiting, ER visit) and until this summer she has been totally egg-free. Right when she turned 4 this summer she passed her first baked egg challenge. I’ve been way more conservative than I’m probably supposed to be with it because THATS MY BABY and I was so paranoid of her getting sick.
So today I chose not to let fear win and make normal people pancakes with egg in them so she could enjoy eating the “special breakfast” mom was making that wasn’t what I feed my kids every morning (mamas ya feel me?!).
She had one medium sized pancake and was totally fine 🙌🏼 I ditched my usual iced coffee shake and joined my girls for pancakes and hot coffee and just watched her savor every bite.
I’d eat a gazillion empty carbs all over again if it means holding onto that moment❤️🥰🥚
The coolest girl on the playground always has her Epi on hand. #StyleYourEpi
Let’s talk #Asthma
. They often go hand in hand. Asthmatics have narrowed airways anyway so any allergy that may cause anaphylactic reaction would mean that the airways close quicker. This is during a particularly bad attack, and shows my child being transferred from resus to a paramedic bed ready for transfer to high dependency in another hospital. We carry a blue inhaler along with the epipens as with an allergic reaction it is likely to cause an asthma attack so need to get the #ventolin
to try and open up those airways ASAP. So after the epipen...ventolin #nutallergy #asthmaattack #anaphylaxis
We have sad news. Another tragic death from anaphylaxis. Our prayers and thoughts are with Edyn’s family. 💔
Edyn Shannon Sheena Peni Rubena Misilisi. 16 years old. Talented saxophonist, high academic achiever, lover of life and friend of everyone, with her trademark spiralling wild hair, died tragically from a nut allergy on Monday in New Zealand. Edyn was the beloved daughter of Morris and Bonita Misilisi, sister of Devoe Devolo Rubena and Bossy (pet), and loved member of her Niuean and Cook Island Maori families. .
These senseless tragedies must stop. We must do more.
#edynrubena #edynmisilisi #onelife2much #anaphylaxis #stopanaphylaxis #prayersandthoughts #endallergies #findacure #foodallergies #nutallergy #newzealand #manurewahighschool #maorifamily @_natachahaha_
https://www.dailymail.co.uk/news/article-6390805/How-teenage-girl-excused-dinner-dying-allergic-reaction.html Go to our Facebook to find live links to the news.
This quote is on the wall at our local children’s library. Every time I see it I’m inspired. As parents of kids with food allergies, we fly every single day because there is no other way. Imagine the possibilities if the rest of the world joins us.
, #epipen #anaphylaxis
, #anaphylaxis #allergymom
Jovial 글루텐프리 파스타 모음
어제 파스타 만들면서 보니 제가 파스타면을 종류별로 다 사놨더라구요 😅 (저는 Jovial과 관계 1도 없는 사람이예요ㅎㅎ)
에그면 (동그랗게 말려있는 면)빼고는 모두 현미로만 만들어져서 맛은 비슷해요. 취향에 따라 선택하세요!
👉 Jovial 글루텐프리 스파게티, 푸실리, 마카로니면
💢 알레르기 유발물질: 해당없음
🏭 대두와 같은 제조시설 이용
👉 Jovial 글루텐프리 에그면
💢알레르기 유발물질: 계란
🏭 대두와 같은 제조시설 이용
#식품알러지 #글루텐알러지 #글루텐프리 #글루텐프리파스타 #노밀가루 #밀가루끊기 #쌀파스타 #아토피 #알러지맘 #알러지식단 #우사미알러지정보
What if my food allergy was a real, live person? And what if I could talk to him? Every Thursday, I get that chance...⠀
— Mr. A., my food allergy, is on his phone when I arrive for our weekly meeting. ⠀
“Thanksgiving’s in a week,” he yells into the phone. “Remember to get that message out to all the troops. Food tastes better with allergens!”⠀
I don’t know who he’s talking to, but I roll my eyes as I pull up my seat and sit at the table. He continues shouting into the phone.⠀
“Milk and LOTS of butter make mashed potatoes creamier,” he continues. “Otherwise it’s bland. Bland! And we must tell everyone to add nuts to everything to give it a pizazz. That’s what makes it gourmet. Don’t let little Jonny’s nut allergy ruin Grandma’s Green Bean Almondine.”⠀
He talks a bit more before hanging up and looking my way.⠀
“You sound busy,” I say. ⠀
“The holidays are one of busiest times,” he says. “Lots of food. Lots of family. Lots of traditions.” ⠀
He pauses and adds: “Lots of chaos!”⠀
He laughs. I don’t. ⠀
“Allergens make Thanksgiving better, and we can’t ruin a good meal simply because little Mikey can’t eat dairy,” he continues. “Aunt Mary would be turning in her grave knowing we are making her traditional stuffing with fake butter. And it’s crazy to expect Cousin Bill to change his grandma’s pumpkin pie recipe just so little Chase can sit at the table. Little Chase is 10 and doesn’t have to eat it. He shouldn’t ruin it for everyone else.”⠀
Mr. A. is in rare form. I let him talk a bit more before finally speaking up.⠀
“Thanksgiving is about family,” I say. “There is no dish — no buttery mashed potatoes or pumpkin pie or Green Bean Almondine — that tastes as good as the feeling one gets when everyone in a family is welcomed at the table.” ⠀
He gives me a confused look, and that’s OK. He and his troops don’t have to believe it. We do. ⠀
#thelandofcan #thelandofnot #jjvulopas #canspirational #foodallergy #foodallergies #foodallergymom #foodallergyawareness #foodallergyfriendly #foodallergykids #foodallergymama #peanutallergy #glutenfree #dairyfree #anaphylaxis #thanksgiving @endallergiestogether @foodallergy @redsneakersforoakley
Syok anafilaktik adalah suatu reaksi alergi yang dapat menyebabkan kehilangan kesadaran atau bahkan kematian. Kondisi ini terjadi apabila pasien alergi terhadap makanan, obat-obatan, bisa serangga, dan lateks. Reaksi ini dapat terjadi dalam hitungan detik atau menit dari paparan agen alergi, di mana tekanan darah pasien turun secara tiba-tiba dan saluran udara terhambat dan mengganggu pernapasan.
#anaphylaxis #shockanafilaktik #allergic #allergen #aspirin #ibuprofen #painkillers
An almost perfect afternoon for me!
1. Experimenting in the kitchen with these yoghurt flatbreads- dairy and gluten free, based on potato starch/flour and quinoa flour so FPIES friendly.
2. A run in the rain- no headphones, no multitasking, just me, the rain and the track!
3. Cuddles with this little guy- he has settled in so beautifully to this crazy, chaotic world and we love him so much already!
Don’t forget the allergy mum reset challenge kicks off this Sunday- link in bio. xxx
I missed National Redhead Day (November 5th, for anyone else who missed this magical day)! This is our sweet baby A (not really a baby anymore, but denial is bliss) and he has #FPIES
, a rare #foodallergy
disease. At this point, thankfully🙏🏼, his only know trigger is eggs. Don’t know what FPIES is? Don’t fret, neither does anyone else. FPIES is Food Protein Induced Enterocolitis Syndrome. It is commonly pronounced as “F-Pies” as in “apple pies”. Enterocolitis is inflammation involving the small + large intestine. For the purpose of understanding FPIES, one must disregard all you know about IgE-mediated reactions (IgE reactions is what B has—immediate hypersensitivity immune system reactions—classic “food allergy symptoms,” if you will). FPIES reactions almost always begin with delayed onset vomiting/diarrhea 2~3 hours after ingestion (I legitimately never thought I would be referencing diarrhea on the internet, but I don’t want to leave this part out if it is helpful to someone) and symptoms can range from mild to life threatening (shock). In our case, A has such severe vomiting (no diarrhea) that he rapidly becomes dehydrated and goes in to shock. I am talking 30(ish) rounds of vomiting, to the point of bile, in less than 45 minutes. It is terrifying as a parent. FPIES is a tricky beast to diagnose, but ironically, due to our experiences with big brother B, we carefully chronicle our children’s food intake, which was our saving grace helping diagnose baby A.
#foodallergymom #foodallergyawareness #dairyfreeforlittleB #foodfreedom #tpirc #ToleranceInductionProgram #anaphylaxis #advocacy #nonuts #foodallergytreatment #dairyfree #themoreyouknow #eggfree
Today’s post subject: health looks different for everyone!
Last year when I took this picture, I was practicing “healthy” habits: yoga, running, eating “good” foods. I was also treating myself occasionally with things like ice cream, sleeping in, etc. Balance. Mentally, I was ok too. .
I know now I have illnesses, and the way I take care of myself is different. I discovered that most of what I was eating contributed to my pain and problems. Sure, I miss the ~convenience~ of some foods… but I sincerely never want to eat some of them again. I also learned a lot of my pains were made worse with yoga and running, and I said good-bye to that hurt too. Mentally, I feel better than I did before. Of course, I have bad moments (doesn’t everyone in the face of adversity?), but I am genuinely more content now.
If you met me before all this, you’d think the half-marathon-running and avocado-loving version of me was healthy and now I’m broken. Really, I was broken before and didn’t know it! I kept with these bad “healthy” habits and shattered. Now I’m rebuilding and learning how to actually care for myself. .
Moral of the story: everyone needs different things to be healthy! Bodies are so complex and there’s never a one-size-fits-all fix to problems. What’s healthy for you may be harmful to another person. Don’t judge. Don’t offer that well-meaning advice about that one thing your random relative did that cured her. Life can change so much, so quickly… Just support one another.
It’s too rainy and cold here in November for red sneakers, but we hope our red winter boots will do. Sending love from Canada to allergy families on both sides of the 49th! Thank you @redsneakersforoakley
for all you do to raise awareness and for encouraging people to save lives by sharing our close calls ❤️ Here’s one of ours: It was after River’s birthday party and the parents were coming by to pick up their kids. The little sisters of one of her friends scrambled in cheerfully and ran up to her room to play. I was chatting with their dad about struggles with picky eating. “They eat nothing but peanut butter these days!” he quipped, “They just had PB toast in the car.” We looked at each other with dawning horror. I bolted upstairs. I could smell the peanuts. Riv had a rash on her face and hands from sharing a big hug. She was positive she had not ingested and we knew from our Food Allergy Canada training that the 1st step in a contact reaction is to wash thoroughly! We were lucky. Her rash subsided quickly. A second later, or if she touched her mouth, she could have easily had #anaphylaxis
, which she has experienced before. I spent the evening scrubbing her room and it was a real lesson about how far kids can spread peanut butter when it’s on their hands and faces!
No one was at fault here. Young kids are messy eaters and it’s easy to forget even when you live with this every day! Now when we have a party, we remind everyone in the invitation to please wash up before coming over if they ate peanut that day and we put a sign on the door. Our friends are very supportive. They know hand sanitizer doesn’t remove allergic proteins.
Living with serious food allergies can be a daily challenge and it inspired us to start @riverspals
, a fundraiser benefiting allergy and Oral Immunotherapy research at the British Columbia Children’s Hospital - see our bio for more info. #redsneakersforoakley #bcchf
I genuinely love my kid’s kindergarten teacher, but she messaged me at around noon today to ask me if I could make a special pumpkin dessert for him tomorrow because the class is having Friendsgiving and eating pumpkin pie during the event.
Yeah sure, let me just pull a pumpkin recipe (without any of his 15 allergens) out of my ass. Haha!
Tada! I found a recipe for a single serve pumpkin AIP (autoimmune paleo, which fits around most of his allergens) mug cake on Pinterest. I'm not sending him with a mug, so a lidded Pyrex will have to do. I only had to destroy my kitchen to make roasted pumpkin purée, coconut butter from peanut and tree nut free coconut flakes, and then bust out all the regular baking crap. It smells divine though! Hopefully he likes it! 🎃 🍁
Today I got a call from the place where my daughter had anaphylaxis last week. They apologized and further explained that they in-serviced all food service staff again following the incident. In services were to review the importance of following all protocols that ensure food allergens are avoided via ingestion and cross contamination!
It's taken us almost a week to recover from the situation - physically and emotionally...because our trust was broken. Regardless of the difficulties managing food allergies, I always say we LIVE with food allergies, we don't suffer from them. It's taken us a long time to manage them in a way that feels like we can truly live our best lives. I've been saying - "We live on peace, love and (occasional) epinephrine!"
For you all still figuring it out or those who need to stay a reminder to stay vigilant, I hope you remember that knowing your emergency PLAN is VITAL and if you have an epi, you must CARRY IT EVERYWHERE! Give it if needed then go to ER! Cheers to help for all our followers ❤️#foodallergy #foodallergies #foodallergyunboxed