#anaphylaxis

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Regional BACN meeting yesterday was great! Networking and #stayingsafe #BACN #lifelonglearning #nurse #bls #anaphylaxis #aestheticscannock
Cut them up, not out!! Any one in Australia would know the stress our strawberry farmers are under at the moment. We’re doing our bit tonight and are adding some beautiful spring-time strawberries to our fruit salad!
#Repost @faactnews with @get_repost ・・・ "I’m writing this as both a registered nurse who works for an allergist, and also as a food allergy and EoE mom for over a decade. Nurses are caregivers, teachers, advocates, scientists, artists, healers and problem solvers. The ironic part is, so are food allergy moms! Nurses, my Food Allergy Mamas need your help!" Read more of #FAACT 's guest blog post: https://www.FoodAllergyAwareness.org/blog/calling-all-nurses-5-ways-to-take-better-care-of-your-food-allergic-patients/ #KnowTheFAACTs #ShareTheFAACTs #foodallergy #foodallergies #allergy #allergies #anaphylaxis #education #advocacy #awareness #foodallergyawareness #allergyawareness #support #community #outreach #FindTheFAACTs #food_allergy_life
There are lots of things that #anaphylactic #foodallergies take from a person and it's easy to obsess over those losses. HOWEVER I'm happy to report that my son CAN eat a $6.99 bag of Halloween themed chocolate minis that come in at roughly $0.40 per piece! His health is worth every penny and I will buy as many bags as it takes but yikes! However, my wheels are already turning on how to make my own. . . . . . . #ourfoodallergyjourney #allergyfriendly #allergyfriendlyfood #foodallergyawareness #foodallergymom #foodallergyfamily #foodallergies #anaphylaxis #anaphylaxisawareness #toddlerswithfoodallergies #toddlermeals #allergyfree #allergyandanaphylaxis #dairyfree #eggfree #treenutfree #peaproteinfree #peafree #igmotherhood #magicofchildhood #childhoodunplugged #motherhoodunplugged #toddlerlife #toddlersofinstagram
Earlier this year we hosted an amazing charity event. Twenty children with serious food allergies attended TeddyMedic. They absolutely loved the ambience as they learnt about first aid in fun and interactive way. They got to meet other children with anaphylaxis and learnt how to administer an epi pen and even got to ride a real Ambulance! #anaphylaxis #allergies #anaphylaxiseducation #firstaidmelbourne #foodallergyawareness #foodallergies #teddymedic #anaphylaxisaustralia #epipen #firstaid #melbourne #melbourneevents #melbourneart #nutAllergy #melbournemurals #ambulancevictoria #paramedic #simpsonsmural #simpsonsart @ambulancevic #epipen #mylan #mylanaustralia #allergyblogger #allergymum #allergykids
Busy day today! Woke up to some lab work that had come back. My #PTH levels were elevated for the third time this year 🤔 I see my endocrinologist next week to discuss next steps, but based on my last appointment with her, it seems likely that we will do further testing for #hyperparathyroidism I also had to go to the dentist today! I was SO SO nervous about having a #mastcellreaction to any of the materials they used or even worse, go into #anaphylaxis . My dentist was AMAZING! Pulled #MCAS case studies from the dental world and read up on the condition. Everything went smoothly, no issues. He was so great! [And hubby was jealous 😉😉] Made a delicious #whole30approved dinner and now relaxing before getting back to work. Is it just me or do I have more energy this week? Is it possible that the #mestinon is working this quickly? Only time will tell. #careerwithchronicillness #chronicillness #chronicallyill #POTS #dysautonomia #posturalorthostatictachycardiasyndrome #mastcellactivationsyndrome #mastcelldisorder #MCAS #epipen #sjogrenssyndrome #gp #delayedgastricemptying #chargies #spoons #spoonie #youngpeoplechronicillnesses #antiinflammatory #whole30 #whole30approved #whole30alum
My friends introduced me to this awesome vegan ice cream place! There's no dairy in any of the ice cream whatsoever, it's all coconut milk based! I was a little nervous and quite shaky but I'm proud of myself for not backing out of this. I got two yummy scoops (mint and strawberry) and ate the whole thing without having an anxiety attack! . . . . #vegan #icecream #yummy #anaphylaxis #dairyfree #glutenfree #safe #food #fare #farewalk
My instagram is becoming an ad for nut free snacks. But seriously, these are SO good, and free from the top 10 allergens. #nutfree #peanutfree #allergies #allergykid #anaphylaxis #free2b #snackbreaks @free2bfoods
I'm back! Its been a busy summer, lows but some mega highs too! Starting with this dairy free and egg free treat sent over from italy - allergy aware family!. Plus no nuts! Wondering if anyone else knows this brand? If only i could buy them here #italia #treatsthroughthepost #ashtma #atopic #food # #foodie #allergies #eczema #asthma #nutfree #eggfree #legumefree #dairyfree #soyafree #nutritious #healthyeatinghabitsstartearly #positivefoodrealtionships #anaphylaxis #alwayscarrytwoepipens #epipensaveslives #epipen #mummyblog #allergyaware #allergymum #allergyfamily #babyledweaning #eatasafamily #instafood
http://fare.foodallergy.org/site/TR/Walk/HeroesWalk?px=1097511&pg=personal&fr_id=1720 He can't wait to walk with his friends at FARE (Food Allergy Research & Education) Heroes Walk this Sunday! We hope to raise money for research leading to a cure! #FARE #foodallergymom #KFA #prayforacure #foodallergiessuck #anaphylaxis #peanutfree #peanutallergy
While I’m in my period of writer’s block, I thought I’d do a few posts to answer some questions that a lot of you have asked. And by far the most frequent is how Finley alerts/learned to alert to allergic reactions. The short answer is that I’m pretty dang lucky that he has a lot of natural instinct when it comes to alerting—not something I at all expected, but that became pretty apparent early on. He started alerting to reactions on his own at about five months old, but he would do so after they’d already gone pretty far...so more of a response. I started scent training him around that time to try and shape those natural instincts. ... But, scent training takes time...and samples. And quite honestly, my first priority during anaphylaxis usually isn’t collecting a sample of my spit (I know, shocking 😂). So, we still do a little scent training here and there, but more as a buffer to his natural alerts and other response-type tasks, like scratching response and alerting to changes in the sound of my breathing when I’m sleeping. ... This video shows Finley’s alert to me scratching. When he notices I’m itchy and scratching, he paws me wherever I’m scratching and nudges my hand away. I’ve become so used to hives and skin reactions that I often don’t notice them—which is pretty important because, for me, they’re usually the first sign of a severe reaction. So I use this as a fail-safe...in times when Finley isn’t picking up on scent beforehand and I’m not feeling a reaction, this alert can usually still happen early enough to be useful. ... So, there you have it. More to come 😊. . . #fancypantsfinley #servicedog #standardpoodle #standardpoodleservicedog #medicalalertdog #anaphylaxis
Go out for a meal Come back with the start of a anaphylaxis shock with no clue why! Now what else am I allergic to 😤 #swollentounge #anaphylaxis
The SEED allergy is another allergy that is not well-known which tend to result in a severe reactions such as anaphylaxis. Some common examples of seed that can result in an allergic reaction are sesame, flax, hemp, chia, sunflower, and poppy seeds. Although the sesame seed isn’t a new allergy researchers aren’t sure how long it may take someone to outgrow this allergy. Unlike most seed oils, sesame seed oils usually are not refined which means they do still have the allergenic proteins and they should be avoided if you have a sesame seed allergy. Another product you want to be aware of if you have a sesame seed allergy,is some cosmetics such as body oils, lipsticks, and soaps. These all can contain the sesame seed protein. I myself am extremely allergic to flax seeds. Make sure to check those labels.... #foodallergies #foodallergy #foodallergyawareness #foodallergymom #seedallergy #flaxallergy #sesameseedallergy #poppyseedallergy #chiaseedallergy #hempseedallergy #uncommonallergies #anaphylaxis #eathealthy #whyamisick #eatnutfree #allergyinspiration @eatnutfree @allergy_inspiration
One year ago today I took myself into the ER after using all of my epipens and still not feeling great. The ER doc was nice enough, and gave me the usual after anaphylaxis IV meds (benadryl, steroids, Pepsid, ativan). Not even 30 minutes later my throat was swelling again my O2 tanked and from what they told me after I was slipping in and out of consciousness. The ER doc made the decision to put me on and epinephrine drip in hopes that it would stop the cyclical anaphylaxis. Unfortunately, epi should never be pushed through a normal IV unless you are dying. So right there in the ER I got a central line placed in my vajajay.. Well in the femoral artery which was in that general area. For the next 3 days I stayed on the vajajay epi. Unable to stand, having to use a bed pan. The nurses were AMAZING they did everything they could to let me keep my dignity and would come and chat when ever they had time because they knew how awful this was. I FINALLY was able to get a picc line placed a few days later and we removed the hooha IV. It's been one whole year with a central line. One whole year of having 24/7 emergency access. I didn't start on the benadryl drip until December, but I was admitted to the ICU 8 more times between Sep-Dec on an epi drip. Having a picc line has changed my life for the better. It gave me peace of mind then, and it's keeping me alive now. I am a fighter. I wouldn't wish this upon my worst enemy, but I am also blessed to have met you lovely humans, my amazing nurses and so many other people through this battle. Today... is a bittersweet one year anniversary.
A year ago I would never have dreamed of saying this - but on Monday E ate the equivalent of a whole peanut 🥜- yes really a whole peanut!! I cannot truly express my excitement at this. We spent two hours under observation - playing a lot of rounds of our fav new family game - Skyjo - and the only side effect was a sore tummy- after a snack though even this disappeared so no antihistamines were used! We went through epipen training again with the specialist nurses. There is astill a very long way to go on this journey - but I really keep pinching myself to think of the progress that has already been made. I hadn’t fully appreciated how unique this treatment programme is, there doesn’t seem to be another in Europe, and I am so so grateful to all the staff at the Cambridge Peanut Allergy Clinic for all they do - it truly is life changing! #peanutallergy #allergymummy #allergy #anaphylaxis #boardgamesofinstagram #cardgames
The Kid's belt is great for EpiPen Carriers. "I have been looking for something that is comfortable and works for my daughter to carry her EpiPen as she enters school. SPI is the perfect find. Thank you so much. You have no idea how much it means to our family." - SPI Customer, Christine
So proud of Aiden. Last night he presented at the Madison School Board Meeting. He shared that he in fact has four lockable Epipen storage boxes that will be placed in South and North Elementary and Madison High School. (Middle School currently has one, it is in the last picture.) . Madison will be the first District in Lake County, Ohio, to have these. They will store epinephrine for use in an allergic emergency for food or insect reactions, etc. . From @ReelsAutoSales : Aiden is a 7th grader who has devoted his time and energy for the betterment of children with life threatening food allergies. Aiden has started a program to supply schools with EpiPen Cases that mount to the walls in hallways. These Epipen cases can be used in the event of a child going into anaphylaxis. . This cause hits close to home for us, because our son Lukas (2nd picture) has multiple food allergies. If you would like to help support Aiden we encourage you to make any donation you could to: https://paypal.me/allergyresoucres. If you are interested in Aiden's campaign and how it may help your school send him an email at: allergyadvocacyresources@gmail.com. Aiden always wears his #redsneakersforoakley . . Here is a story that ran in the News Herald about Aiden: https://tinyurl.com/AidenAllergy . #AllergyEmergencyKit thank you for such amazing products! And thank you Aiden and mom Katie for everything you are doing to make schools safer for children with food allergies. . . . . #foodallergyawareness #foodallergies #allergies #livlikeoaks #anaphylaxis #allergyemergency #aek #schools #epinephrine #red #redsneakers #foodallergyfriends #foodallergyfamily #allergicliving #endallergiestogether #findacure #giveandgo #epifirstepifast
🏪 Hospital General Universitario Gregorio Marañón - 19 septiembre 2018. Madrid 🇪🇸 . 🗣 XVIII Curso Coloquio de Avances en Alergología para Atención Primaria y Pediátrica . 🤕🤮🤧 Dermatitis atópica, rinitis, broncoespasmo, asma, anafilaxia . 📌 Bases inmunológicas del niño . 📌 Por qué el niño se enferma repetidamente? . 📌 Enfoque molecular de la inmunidad en la fisiopatología del asma en niños . 📌 Microbioma y el niño alérgico . 📌 Reacciones alérgicas en los centros escolares . 📌 Debe haber seguridad alimentaria en los comedores escolares . 📌 Sí influye la epigenética y el ambiente en el desarrollo de las enfermedades . 📌 La mayoría de los pacientes asmáticos no están bien controlados . 📌 Tratamiento inmunoterapéutico oral y biológicos . 📌 Anafilaxia: se debe administrar adrenalina intramuscular de manera temprana (antes de llegar al servicio de urgencias)... es el tratamiento de 1era línea incluso antes de los corticoides . 📌 Lo que no se ve en la Dermatitis atópica... la inflamación subclínica . . 🎂 Mi regalo de cumpleaños hoy por 39 años de mi primogénito 👏 Dios nos ha bendecido 👏🎂😘🙏 . . 🤓🧠👃🏻👁👄👅👍🏻👂😰🤕 . #alergologia #inmunologia #investigacion #docencia #pediatria #anafilaxia #decongresoencongreso #dermatologiapediatrica #pediatric #pediatricdermatology #depielapiel #decursoencurso #hospitalgregoriomarañon #AVDP #asma #alergia #atopia #rinitis #docenciaeinvestigacion #madrid #españa #nutricioninfantil #adrenalinaim #anaphylaxis #allergy #asthma #atopicdermatitis 👶👧🏻👩🏼‍⚕️👨‍⚕️
Wednesday shout out to all the parents / carers out there . You’ve got this 💪🏻 #allergy #allergyawareness #childrensallergies #raisingawareness #children #brave #anaphylaxis #foodallergies #keepgoing #youredoinggreat #midweekinspo
Please like and share... and support the CANpaign. ⠀ ⠀ CANpaign: It takes a team to successfully manage food allergies at school. Start now to help your child recruit the best teammates possible to make food allergy success at school a reality.⠀ ⠀ When @endallergiestogether , which raises money for food allergy research, created its powerful “Give and Go” PSA, they didn’t just grab their cell phones and start filming. They recruited a worldwide agency @bbdony to help them make it happen. And when they wanted a spokesperson for it, they didn’t choose just anyone. They recruited @jerome36bettis , a role model who appeals to young people and adults alike.⠀ ⠀ That’s what successful organizations and companies do. They recruit the best talent to develop a message and then surround themselves with influencers who will market that message to those who need to hear it. ⠀ ⠀ The same is true at school. ⠀ ⠀ During your meetings with school officials about the allergy, make it a priority to build a network of advocates who can help your child recruit the best food allergy teammates. Ask the officials specifically to help recruit other adults and children who can stand with your child. Educate the teammates first. Then let them make their magic with others. ⠀ ⠀ When looking for adults in the school, who is the teacher that everyone respects? Get that teacher on board, even if the teacher is not directly associated with your child. Well-respected teachers have incredible clout with students and can set a tone that others will emulate. The students won’t want to let their favorite teachers down. ⠀ ⠀ When we ask our children to become food allergy advocates, we have to remind them that they don’t have to do it alone. Even if they are the only ones with the allergy, it doesn’t mean they are the only ones who have a vested interested in creating an environment that is safe for all...⠀ ⠀ Read full post. Link in bio. ⠀ ⠀ #thelandofcan #thelandofnot #jjvulopas #canspirational #foodallergy #foodallergies #foodallergymom #foodallergyawareness #foodallergyfriendly #foodallergykids #foodallergymama #peanutallergy #glutenfree #dairyfree #anaphylaxis #canpaign
"I’m writing this as both a registered nurse who works for an allergist, and also as a food allergy and EoE mom for over a decade. Nurses are caregivers, teachers, advocates, scientists, artists, healers and problem solvers. The ironic part is, so are food allergy moms! Nurses, my Food Allergy Mamas need your help!" Read more of #FAACT 's guest blog post: https://www.FoodAllergyAwareness.org/blog/calling-all-nurses-5-ways-to-take-better-care-of-your-food-allergic-patients/ #KnowTheFAACTs #ShareTheFAACTs #foodallergy #foodallergies #allergy #allergies #anaphylaxis #education #advocacy #awareness #foodallergyawareness #allergyawareness #support #community #outreach #FindTheFAACTs
New research reveals challenges facing young people with food allergies and intolerances... #AnaphylaxisCampaign #Anaphylaxis ⠀ ⠀ https://www.anaphylaxis.org.uk/2018/09/13/new-research-reveals-challenges-facing-young-people-with-food-allergies-and-intolerances/
The @anaphylaxis_campaign fundraising pack had arrived! We'll be donating all profits from our supper club on 27th October to the #anaphylaxiscampaign in support of sufferers of #anaphylaxis and #allergies . Info at http://merryjelly.xyz/october-2018/ #anaphylacticshock #anaphylaxisawareness
My heart goes out to everyone impacted by Hurricane Florence. 💙 As a food allergy parent, I can't imagine being stuck in a shelter, away from my home and supply of safe food. This article shares how you can help. There are allergy-friendly Amazon Wish Lists for a few shelters. You can send food right to them if you'd like. Link to @kidswithfoodallergies article in bio!⠀ .⠀ .⠀ .⠀ #foodallergies #foodallergymom #foodallergy #kidswithfoodallergies #foodallergylife #glutenfree #soyfree #eggfree #dairyfreeliving #dairyfree #peanutfree #treenutfree #allergyfriendly #top8free #cookingwithkids #kidsinthekitchen #organic #organicfood #realfood #ollergy #parenting #parenthood #motherhood #fare #allergyawareness #allergies #anaphylaxis
Crepes! Egg-free crepes! (Shhh...Don’t tell the French; they may take offense!) 🇫🇷🍓 (ps. Instead of throwing out our beautiful Australian strawberries, we cut them and made a delicious berry coulis! Cut them up, don’t cut them out!) . . . #crepes #strawberries #smashastrawb #eggfree #nutfree #dairyfree #homecooking #vegan #vegandessert #accidentalvegan #melbournemum #anaphylaxis #type1diabetes #berrycoulis #berries #🍓 #familymeals #dessert #fooddiary #recipeoftheday #thenuttylactatingchicken
Helpful tips on how to stay safe with food allergies on a hot day! . #redsneakersforoakley #pracmedicbags #knowthedifference #medicinecase #epipencase #premiumqualitycase #insulatedbags #hotday . #Repost @redsneakersforoakley with @get_repost ・・・ When it's hot outside: Whether in the summer, fall, on vacation, or at the gym, make sure you know how to stay safe with food allergies in the heat. Here are 3 tips to keep in mind: . #1 : Make sure your epinephrine doesn’t get overheated. Do not leave your epinephrine autoinjectors in a hot car. Not in the glove box, not in the trunk. You have them on you at all times, right? Make sure they maintain their optimum temperature by using a carrying case with cooling features if you are going to be put in the hot sun. Our favorite storage case is the Frio Wallet. Proven, tested to maintain the correct temperature, and no ice pack needed. (Watch out for ice packs - they can sometimes make your epinephrine too cold.) . #2 : Make sure YOU don’t get overheated. Why? Because heat can be a cofactor in triggering an anaphylactic reaction. Know your symptoms. Keep in mind other cofactors that *might* play a role such as asthma, exercise, medicines (drugs), fatigue, acute infection, menstruation, and alcohol. And always, always, talk to your allergist. . #3 : Stay hydrated, drink lots of water and always have allergy friendly snacks on hand. When you’re running around in the heat, you might get thirsty and hungry, and be more inclined to grab a drink or bite at a restaurant or snack bar you don’t normally go to. Don’t succumb to hunger pains, something teens are sometimes prone to do in their misguided complacency. . . . . #summer #heat #cofactor #foodallergy #foodallergyawareness #tips #allergicliving #foodallergyfamily #travel #epinephrine #epipens #friowallet #anaphylaxis #staysafe . *Source on cofactors: Mechanisms, Cofactors, and Augmenting Factors Involved in Anaphylaxis https://www.frontiersin.org/articles/10.3389/fimmu.2017.01193/full
New research reveals challenges facing young people with food allergies and intolerances... #AnaphylaxisCampaign #Anaphylaxis
🌟⭐️ Meet today’s Allergy Star Kamaria , she’s allergic to peanuts. Kamaria is 4 and had an anaphylactic reaction to peanuts age 3. She is beginning to understand her allergy and that peanuts will make her very poorly. She absolutely loves bugs of all kinds and owns hissing cockroaches , hermit crabs and an ant farm! She also enjoys playing with her dolls and arguing with her little sister ! 😂 What an amazing , brave Star ⭐️🌟 #raisingawarenessofallergies #raisingawareness #foodallergies #allergy #allergies #anaphylaxis #sharingstories
Parsnips are so underrated! Mum used to always make us carrot and parsnip chips but I’ve only recently rediscovered these gems 🥕 I’m currently on the SIBO bi-phasic diet (created by Dr Nirala Jacobi) which is quite limiting so you need to make the most of the veggies that you can eat in abundance without trouble! _____________________ All you need is: • Three parsnips (thinly sliced) • A drizzle of extra virgin olive oil • A sprinkle of rosemary and salt How to turn this into chips: • Preheat oven to 200 degrees • Line a tray with baking paper • Pop all ingredient in a bowl and toss through with your hands • Evenly spread the parsnips on the tray and pop into the oven for roughly 15 mins! _____________________ Tastes naughty but is nice to your tummy 🍟 ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ ⋆ #nutfree #anaphylaxis #fructosefree #fructosefriendly #lowfodmap #fodmapdiet #fodmapfriendly #guthealth #sibo #sibodiet
#food is #poison with #mastcellactivationdisorder #mastcellactivationsyndrome #mastcelldisease #mastcellactivation causing frequent #anaphylaxis attacks. I had to get a #ged vs a #highschool #diploma because I was too #sick 😷 #sick at #school and then was too far behind to catch up with #onlineclasses #onlineschool #english #englishclass
Crepes! Egg-free crepes! (Shhh...Don’t tell the French; they may take offense!) 🇫🇷🍓 (ps. Instead of throwing out our beautiful Australian strawberries, we cut them and made a delicious berry coulis! Cut them up, don’t cut them out!) . . . #crepes #strawberries #smashastrawb #eggfree #nutfree #dairyfree #homecooking #melbournemum #anaphylaxis #vegan #vegandessert #accidentalvegan #type1diabetes #berrycoulis #berries #🍓 #familymeals #dessert #fooddiary #thenuttylactatingchicken
My moment of self-care today was to bring my lunch outside, sit under this beautiful tree and just be. What have you got planned for yourself today? xx
#emergency #anaphylaxis #anaphylaxisawareness #mastcellactivation #mastozytose #mastocytosis The horror of anaphylaxis is followed by a #huge #feeling of #gratitude #tobealive . It is also followed by days of extra suffering. At least in my case. Who else suffers so much after having to take large amounts of cortisone?
Not a day goes by that I’m not grateful for @socalfoodallergy for giving Collins the food freedom to eat foods containing eggs! Collins and Roo celebrated another great day of Kindergarten over a couple of cake pops. Cheers to eating eggs and never forgetting that that is the real treat!
Ellis Emerson is stable and is doing great eating her four foods. If all goes well, we will continue with banana, sweet potato, apple sauce, and rice cereal until the beginning of next year. We will re-test, evaluate her immune system, allergies and GI system, then develop a new treatment plan to introduce foods. Until then, we are snuggling and loving on this sweet baby!
GELATIN is a protein that is formed when skin or connective tissue is boiled. This is also a rare food allergy which normally doesn’t (but can) result is a serious allergic reaction such as anaphylaxis. Some types of foods gelatin can be found in are gummy bears, jellos, licorice, and marshmallows. Gelatin can also be found in vaccines, this is because it stabilizes the vaccine so that it remains effective after it’s manufactured by keeping the vaccine virus from freeze-drying or from too much heat. Some common vaccines that contain gelatin are chicken pox, influenza, and shingles. Shingles actually is one of the more common vaccines that contains a lot of gelatin. Although the type of gelatin found in food (bovine gelatin) is different from the type found in vaccines (porcine gelatin), if you are allergic to gelatin and are looking to get a vaccine that contains gelatin you should talk to your doctor depending on what your reaction to gelatin is they will determine whether you should be given a vaccine. To avoid an outbreak strict avoidance of gelatin is essential. #foodallergies #gelatinallergy #allergies #foodallergy #uncommonfoodallergy #rarefoodallergy #rarefoodallergyawareness #anaphylaxis #allergyawareness
Welcome to Kindergarten! 🍎 Collins started Kindergarten at the beginning of the month, and it took me about a month to prep everything for school! Collins shared allergy pencils and booklets with her friends. I think it’s important to share with her little friends about allergies, especially when kids with allergies are asked to sit at different tables or do different things. Educating about allergies, may help prevent a potential accident and create a more inclusive and understanding environment. 🥜 I also created allergy action plans that I laminate and put in her lunch pail, backpack, and just about everywhere. I am so grateful that her school allowed me to have 3 separate meeting to talk about Collins. She is a unique case. She was born with anaphylactic allergies to eggs and nuts, but can now tolerate eggs. If she tells you her throat or stomach hurts, please don’t immediately think it is allergy related, it could be her GI issues! Pretty complex when handing her over to someone else. As her advocate, I write down everything that goes in, comes out, and when she communicates symptoms. I must say, I was most nervous to have her gone because of missing information that would help me to continue to find answers as to why she is in pain. Her sweet teacher fills out a log for me so I may continue to track this information. ✏️ Parents of allergy babes, what do you do for back to school? I’m new to this game, and would love all the tips and tricks! 💡
After horrible epi shakes I had today, Magdalena’s massager came in handy for me since DPT can only do so much and Dolly want to play with her opposum. #servicedogintraining #collegelife #servicedog #servicedogsofinstagram #spoonie #epipen #anaphylaxis
This is my love letter to the world! #LOVEFORGIOVANNI Sharing the foundation for food allergy education and awareness to 196 countries. (You can almost see the logo I drew towards the edge of the paper)💌 All because of the tremendous love I carry for this little boy ❤️💔 The longest love letter to the world... The Letter will be finished once it has been signed from at least 1 person from every country on the planet. Until then, I will continue traveling and take the project to the 7 continents. Once the Letter is completed, I will make a digital copy of it and send it… into space, on orbit around Earth! In the meantime, it will be exhibited around the World, and made available to read online. What is your love letter to the world? @iamcocovan #theworldletter @refinery29 #29rooms #foodallergy #foodallergies #foodallergyawareness #anaphylaxis #epi #epipen
We will be on air at 8.40 am today to discuss AAI shortages in the UK and how this impacts on the need for people to #alwayscarrytwo Well done to the BBC for covering such an important topic and inviting us to share our concerns. #alwayscarrytwo #anaphylaxis #epipenshortage #adrenalineautoinjector #lifesaving medicine #allergies #campaign42aai #BBC #radio
It’s National Cheeseburger Day. Now, why would we post about cheeseburgers, you might ask. It’s to bring awareness to the risk of cross-contamination. We all know that fast food doesn’t have much merit on the nutritional side of the aisle, but sometimes even the best of us cave in to time constraints and weakness. And some people who are not allergy aware think it’s safe to order a cheeseburger if you tell the cashier to leave off the ketchup, mayo or other condiments for your dairy and egg allergic child. But we all know better, right? . Case in point: Wendy’s. Wendy’s actually has great allergen information listed on their website. On the ingredient list for their cheeseburgers, they note the presence of egg, milk, soy and wheat. Milk in a burger? . Note the 2 points of emphasis in the ingredients list (swipe left to see): BUNS ARE TOASTED IN A COMMON TOASTER WITH PRODUCTS THAT CONTAIN EGG, SOY, AND MILK. HAMBURGER PATTIES ARE COOKED ON THE SAME GRILL AS AND MAY COME IN CONTACT WITH INGREDIENTS THAT CONTAIN MILK AND SOY. . And there you have it. So happy national cheeseburger day, but let’s all skip the cheeseburgers and stay safe. . . . . . #nationalcheeseburgerday #cheeseburger #wendys #fastfood #allergens #crosscontamination #egg #milk #soy #ingredients #foodallergyawareness #foodallergies #allergies #livlikeoaks #anaphylaxis #epinephrine #foodallergyfriends #foodallergyfamily #allergicliving #endallergiestogether #findacure #giveandgo #alwayscarrytwo #epifirstepifast
I cut my locs and I replaced it with the same hairstyle he had. I long for moments I dreamt about...Moments as small as the icy I promised you I would give you if you ate your broccoli that night...moments like when I told you, “ ima take you on the road with me, so we can sing together”.... moments like when I told you, “don’t worry your brother got your snack and daddy saved you a kiss”.....moments like, “you are gonna love your birthday cake and birthday gift...moments like, “this is gonna be your first thanksgiving with Abuelo....moments like when I walked away for a brief moment and told you, “it’s gonna be alright, mommy got you” 😞 I live with #no regrets... I just long for those dreams I dreamt at night for him and his brother...to watch the two of them grow up together... fuss together...continue to strengthen their brotherhood...all the while preparing to keep him, as well as his brother safe daily! (His brother has severe life threatening food allergies....so let’s be clear my nervousness hasn’t decreased a bit) The laws, regulations and policies I followed to keep my baby safe failed me! I refuse to allow this to happen to another child / family! I allowed him to live and do because he wouldn’t even allow me to limit what he could do. We were so careful as a family! He wanted to go to school and I made sure to send him somewhere I felt could protect him! #anaphylaxis isn’t a condition to take lightly...and NO....#benadryl isn’t the cure for all allergic reactions. #elijahsecho If they had known the signs, they would have been able to treat the symptoms and so now here we are creating the awareness! Until I see you again....Mi Amor! Elijah- Alavi 2014-2017 My Silly twin. #love I won’t rest until something is done to protect our babies appropriately (ALL OF THEM) #elijahalavifoundation #allergymom #asthma #allergyawareness #dinahawthorne @elijahsecho @thesurgicaltechnologist @andrewcuomo @nycmayor
⭐⭐GIVEAWAY⭐⭐ • Does your little one need everything labeled for pre-school pre-k or school? Does your dance bag and shoes need to be labeled, since all ballet shoes are alike? Maybe your child has food allergies and needs there water bottles, food containers and utensils labeled to be extra safe! Well we have partnered with @mabelslabels to bring one luck winner a Ultimate Back-to-School Combo. • RULES to enter Giveaway: 1.Must ❤ this picture. 2.Must follow both @mabelslabels and my account @sweetorganicliving to enter (I will check every entry)  3.Tag your friends ONE PER COMMENT (the more you tag the better your chances to win, this also depends on how many enter) 4.Answer question- What would you label? • ⭐Winner will be randomly selected on next Tuesday⭐ • Per Instagram rules this giveaway is in no way affiliated or sponsored by Instagram. You must be USA resident to enter. [Winner will be DM one week from today!] • #labels #label #mabelslabels #foodallergies #foodallergy #foodallergymom #anaphylaxis #celiacawareness #labeleverything #giveaway #giveaways
In my hand is my breakfast this morning. This shit stops my immune system from acting like an asshole. I have a not so common or understood disease that makes my immune system behave like a fucking diva. I spent my Sunday in A&E after I took an anyphallactic response to fuck knows what. I got pumped full of steroids, and am on a high dose for the rest of the week, so now I'm just angry, got the munchies, and buzzing off my tits with a rocket up my arse. But I'm still up and at it, cos I'm fucking hardcore 😂👌💪 #mcas #warrior #hardasfuck #mastcellwarrior #wontbackdown #steriods #meds #raredisease #fuckthatshit #fitover40 #fightingfit #mastcellmayhem #anaphylaxis #chronicidiopathicurticaria #chronicidiopathicangioedema
Allergies can be stressful, especially for parents of allergic kids. We want to be available to you when you need us the most and make this journey a positive experience. Find out why we embrace a family environment in our practice with a free Meet & Greet.
Remembering Andrea Mariano. She is deeply missed by her family & friends. Andrea passed away on September 18th, 2015 due to an anaphylactic reaction. The 3rd Annual @WalkforAndrea in her honor will be held on September 30th, 2018. . . . . #walkforandrea #andreamariano #foodallergies #foodallergyawareness #anaphylaxis #foodallergyfamily #livlikeoaks #wearredsneakers #redsneakersforoakley http://www.cbc.ca/1.3238401
So today was a day that I realized that Dolly is my hero ❤️ she’s been acting weird all morning and had super bad zombies this morning but she knew something was wrong all morning only to land my ass in the ER with what seems like spontaneous anaphylaxis. She was a rockstar with heeling in the wheelchair (never done before) and going to get help (also never done before), and was an angel at the ER. #servicedogintraining #servicedog #servicedogsofinstagram #spoonie #mastcell #mastie #anaphylaxis
Same for those who don’t believe in a cure. We do. Help us find it! You can plan a fundraiser or donate here: https://eat.rallybound.org #endallergies #endallergiestogether #fundtheresearch #findacure #foodallergies #anaphylaxis
First time with mommy in the ER and using a wheelchair. So far so good for me, mommy not so much. #anaphylaxis #EDS #servicedog #servicedogteam #servicedogintraining #servicedogsofinstagram #servicedogsofig
Dinner for the family. I am now Working on tonight’s menu. With a variety of tastes, preferences and allergies, it has become natural to prepare several meals or something we all can enjoy. Have a delicious day! #thekitchenalchemistbook #thekitchenalchemist #foodallergies #allergic #homecooking #anaphylaxis #epipen #asthma #allergyawareness #foodallergy #foodallergymum #allergicreaction #memoir #cookbook #nonfiction #allergicliving
Two parties in one week for our girl this week! Feeling blessed to have such amazing friends who go out of their way to accommodate Emily and her allergies! #joy #blessed #lucky #friends #disnerds #allergyawareness #allergyaware #anaphylaxis #allergysupergirl
Insect allergies may be hard to avoid when doing outdoor activities. Take some simple precautions: -Avoid bushes & flowers where bees pollinate -Don't use perfume or highly fragranced cosmetics -Don't drink sweet drinks outside #precautions #insect #sting #bugbites #allergies #allergicreaction #anaphylaxis #immunology #prevention #besafe #insectallergy #immunotherapy
I found out just how deadly books can be yesterday...please take the time to read and share the link in my bio in hopes that it stops someone else having a reaction like me! #latexallergy #books #reading #article #blogging #allergyblog #livingwithallergy #allergicreaction #scary #latexinbooks #ereading #allergiclife #blogpost #Anaphylaxis #allergies #blogger #allergyhour #bloggergals
A special thanks goes out to all our speakers, sponsors, exhibitors and delegates for coming along and making our Corporate Conference a real success #ACCorpConf #anaphylaxis #allergens #anaphylaxisawareness #allergyawareness
An informative presentation on supply chain management from Julia Pepler, BSc (Hons),PgDip, MA. Director, Food Integrity Consulting Ltd #ACCorpConf #anaphylaxis #foodsafety #allergens
We currently have Barbara Hirst, Consultant, Food Safety and Quality, RSSL speaking about the practical application of allergen thresholds in manufacturing #ACCorpConf #anaphylaxis #foodsafety #riskmanagement #allergens #FoodIndustry #allergyawareness #anaphylaxisawareness
We have had an excellent Q&A session at today's Anaphylaxis Campaign Corporate Conference #ACCorpConf #anaphylaxis #allergens #foodsafety #riskmanagement #anaphylaxisawareness #allergyawareness
When it's hot outside: Whether in the summer, fall, on vacation, or at the gym, make sure you know how to stay safe with food allergies in the heat. Here are 3 tips to keep in mind: . #1 : Make sure your epinephrine doesn’t get overheated. Do not leave your epinephrine autoinjectors in a hot car. Not in the glove box, not in the trunk. You have them on you at all times, right? Make sure they maintain their optimum temperature by using a carrying case with cooling features if you are going to be put in the hot sun. Our favorite storage case is the Frio Wallet. Proven, tested to maintain the correct temperature, and no ice pack needed. (Watch out for ice packs - they can sometimes make your epinephrine too cold.) . #2 : Make sure YOU don’t get overheated. Why? Because heat can be a cofactor in triggering an anaphylactic reaction. Know your symptoms. Keep in mind other cofactors that *might* play a role such as asthma, exercise, medicines (drugs), fatigue, acute infection, menstruation, and alcohol. And always, always, talk to your allergist. . #3 : Stay hydrated, drink lots of water and always have allergy friendly snacks on hand. When you’re running around in the heat, you might get thirsty and hungry, and be more inclined to grab a drink or bite at a restaurant or snack bar you don’t normally go to. Don’t succumb to hunger pains, something teens are sometimes prone to do in their misguided complacency. . . . . #summer #heat #cofactor #foodallergy #foodallergyawareness #tips #allergicliving #foodallergyfamily #travel #epinephrine #epipens #friowallet #anaphylaxis #staysafe . *Source on cofactors: Mechanisms, Cofactors, and Augmenting Factors Involved in Anaphylaxis https://www.frontiersin.org/articles/10.3389/fimmu.2017.01193/full
Meet Rafael, 7: Besides being a math genius, a Minecraft master, and the creator of his own YouTube 📺 channel, he’s clearly settled well into school with his groovy 👓, a pikachu 🎒, and his go-to 🌈 sweatbands. Most importantly, he’s got his 2 Epis wherever he goes. Now, it's your turn. Show us how you #STYLEYOUREPI 👈🏼#WeBelay
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