#bonuschromiehomies

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之之之之之之 Dear Cutler, I have good news and bad news. See these watery eyes & runny nose?? Good news is, they are not a cold, and I can still WALK with our BUDDIES this weekend in Bismarck! The bad news is BEETS. Mom thought those {{power-packed veggies}} were such a good addition to my new diet... unfortunately, all signs point to NOPE, they're not. The ROOT of the problem?? Watery-eyes-runny-nose (out of the blue) can be explained by.... beets. Bummer, another food for the "no-no" list. But really, who eats those anyway!?!?! Love you to Beets.... er, I mean BITS, Clara Violet #puntastic #punny #sorrynotsorry #passthetissue #claraviolet #byebyebeets #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
塔塔塔 Dear @lysaw07 , We don't wanna work... we just wanna bang on your drum all day!! If you've ever held 4 toddlers and a 4 year old teenagers attention without so much as a glance away from the music for 30 solid, jamming, grooving, fun-filled minutes: you are probably a music therapist. And ours is the bomb-dot-com. We L㏕㎏〒 our Wiggle & Giggle class at Music Therapy in Motion and we think ALL our friends could use a little more music in their lives! Tra-La-La, Clara & Cutler, And Co. #musictherapy #shakeitbaby #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
塔塔塔 Dear Cutler, My Monday Mash-up is: forts, dogs & jammies. Roxie and I are all cozied up in my hidey-hole, nursing a killer weekend-hangover... you know the kind where you need another day to rest cuz you just had too stinking much fun!?! There's room in here for 1 more...... just sayin. I miss you, Clara Violet #claraviolet #puppylover #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I have one question... ARE YOU READY FOR SOME FOOTBALL?!?! We sure are! My big bro is all about the Patriots, my mommy is a crazy Packers fan, and my daddy just likes to watch football period. Also, we will have lots of snacks (my fav). Cmon over!!! Future quarterback, Cutler James #4 (total Favre reference) 歹歹#football #nfl #futurehalloffamer #areyoureadyforsomefootball @nfl @nflnetwork #cutlerjames #claraviolet #beautifulsouls #pintsizeheroes #dsdn #ndss #nothingdownambassadors2018 #trisomy21 #t21 #bonuschromiehomies #theluckyfew #bekind #toddlersofinstagram #toddlerfashion #picoftheday #bffs #bestfriendgoals #toddlerlife #awesomeness #changetheworld #morealikethandifferent #
踢 Dear Cutler, HAPPY FRI-YAY!! I have a SUPER good Friday update for you! This is my WOO-HOO face (and check out that cute belly making its debut ) I have had {{the best}} week!! Mom & me have been working on my diet the last few weeks. You know how my tummy doesn't play nice most of the time!? Well... turns out, it just didn't like the food I was eating. SO- we ordered up a super-fancy blender and started making our own! (And by we, of course I mean SHE... dang, she's a good cook!) And this week my doc team gave us two enthusiastic thumbs up for all the great progress!! My tummy (and the rest of me!) couldn't be happier! Like seriously... a total 180 from a month ago! That means I have more energy and motivation to do just about EVERYTHING! Mom says this must be the UPSWING we've been praying for! HAPPY happy HAPPY, Clara Violet #blendeddiet #happytummy #realfood #eatwelllivewell #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
塔塔 Dear Cutler, Did your mom tell you that we are signed up for MUSIC CLASS at Music Therapy in Motion !?! Ahhhh- I can't wait!! Im getting geared up... so today's entertainment is brought to you by Olaf & Elsa... and well, me. I mean, I sound amazing solo... but we really should work on a duet. Can you imagine how awesome that would be!?! Tim & Faith, Sonny & Cher, Johnny & June... CLARA & CUTLER... I can see it now. Warming up the pipes, Clara Violet #lovecarters #musictherapy #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
塔儭塔儭塔儭 Dear Cutler, I've got TWO words for you: {{DANCE CLASS}}!! OH. em. GEE!! I had the best time ever at my very first dance class today! Did you know that ballet shoes are impossible to find in a 3 toddler? And 2T leotards are just as sparse?? BUT..... you know my mommy. Could my outfit be any cuter?? And that bun......... In addition to my on-point wardrobe, I LOVED EVERY MINUTE of class! I followed directions and did all the moves (in hindsight... maybe not my smartest decision right out of the chute... the jig is pretty much up trying to wiggle my way out of following instructions.) And craziest thing- when the music is groovin' my feet and legs are super strong! Something in the beat had me UP walking... like the whole time!! Only thing that could have made it better was YOU! Saving a spot on my dance card for CJT, Clara Violet @dance_etc_nd #tinydancer #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
恫恫恫恫恫恫 Dear Mr. @seguratom So we see youve gotten yourself a new show on @cbstv ... about parenting no less. Huh. Interesting. We can guarantee you that we will NOT be watching. We're sure that means nothing to you as we are just one super awesome, 2-year-old, #pintsizedpowercouple . However, we can also guarantee you that our family will NOT be watching either... and we, sir, have a HUGE family. You see, we are a part of the DOWN SYNDROME community and that is one BIG incredible family. You have made jokes about us in your comedy act. You have used the R-word to hurt and make fun of people we love and then attacked the people who called you out on it. You have defended and laughed about the use of this word and your fans have left hateful comments all over our friends social media pages. Now we hear that you have apologized and met with people from the DS community to hear what they have to say... sounds like damage control to us. Sounds like someone thinks he better fix his image before his cruddy TV show comes out. Ugh. Well, Mr. Segura, lets just see what happens shall we?! Maybe your show will be so bad it doesnt even need our family to boycott it... but boycott it we shall. We are loud, we are many, and we will make a difference. #acceptance #awareness #awesomeness #NOTWATCHINGTOM Be a better person and parent, Tom. Respectfully, Clara & Cutler Friends & Family... we are hitting the streets in our campaign wagon to make sure CBS hears us LOUD & CLEAR. {{We need your help!}} Please like, REPOST, and comment (over, and over, and over) to help our message spread like wildfire! C&C #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors ,
Dear Cutler, BIG FIRST TODAY!! Stella & me went to the DENTIST this morning!! She has been SO excited to visit the dentist... me: not so much. You know I dont really love people messin' with my mouth. But guess what?!? I DID AWESOME! I let them brush my teeth, count my teeth, and even put some goop on 'em! I hated all of it... but it was a win in the end & all looks great! Stella & I both got to drop our names in the NO CAVITY bowl! Flashin' my Pearly Whites, Clara Violet PS. Moms said hold up your signs.. not sure why she was giggling when we did. #brushabrushabrusha #nocavityclub @dakotapdgf #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
返返 Dear Cutler, And stretch and 1, and 2 and 3... AND REACH and 1 and 2 and 3..... Therapy was a killer workout today... I had tough decisions to make with picture schedules (I mean really.... how am I 'sposed to pick between swinging and biking!?!) AND I finally got to try the spider cage!! I may just take the longest nap ever!!! The cutie in the mirror rocking her {{stretchy, comfy, ballerina 儭 mermaid DotDotSmile Codie T. }} dress has some awesome moves!!!! Thanks for the high five and kisses!! Love you to bits, Clara Violet #progresseveryday #workplay #claraviolet @dotdotsmile_codiet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Baby shark do do do do do do.... That. Is. My. Jam. Seriously, I love that song. Ive got all the actions and words down perfectly (although the actions are a little tough while holding my shaker toy). My mom and dad think the best part is my Gramma Shark face. Check it out!! Lets do a duet soon, Cutler James 歹歹#musicman #dance #ilovemusic #babyshark #thatsmyjam #cutlerjames #claraviolet #pintsizepowercouple #bffs #bonuschromiehomies #downsyndrome #t21blessed #nothingdownambassadors2018 #dsdn #morealikethandifferrent #theluckyfew #toddlersofinstagram #toddlertime #letsdance #bekind #claraandcutler
塔塔塔 Dear Cutler, Happy SaturYAY!! I'm doing some bird watching today and checking on our ducklings... I know you've been wondering how they are all doing. They are still cute, but growing like crazy and are excellent {hilarious} swimmers. Sounds a little like US, am I right!?! I'm soaking up the last few days of summer before school starts... and holy moly... it's beautiful on Tulaby Lake right now! My family has had a busy couple of weeks, and we all needed a little reprieve this weekend. Hope you and your pretty mommy are resting up a bit this weekend too......... Love you to bits, Clara Violet Styled by @Gracie_lian at @gapkids #lakelife #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
儭儭儭儭 Dear Cutler, #weekendvibes got me like... Hope you're enjoying this HOT weather! I'm keepin' cool in the shade at the lake... swinging to my hearts content... not a care in the world. Only thing better, would be a little more YOU. Love you to bits, Clara Violet #lakelife #tulabyprincess #claraviolet #dsdn #nothingdownorg #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Can you see the {serious} on my face!?! Let's have a serious talk about writing. And more specifically, writing G㏕/﹩㏎. My parents and my team have been doing a lot of that lately... as I get closer and closer to THREE, we are prepping for preschool (eeek!!!) and I'm making so much progress every week that my therapy team can barely keep up!! Seriously. We are working on writing my learning goals for school, and development goals, and social goals. We are using lots of big words like 'appropriate' (which I'm pretty sure translates to BORING) and 'independent' (turns out that isnt just me being me, ugh) and 'articulation'. I guess it's never too early to get after it, RIGHT!?! My mom actually shed a little tear last week reading my new PT goals. "Clara will ambulate independently as her primary source of mobility." SERIOUSLY. 2 months ago, that really wasn't even on the radar. And now that it's in ink... I'm about to crush it. Good luck, PT LIZ. Your goals are no match for me!!!! Now.... if we could just do something about that pencil grip........... Kicking Ass, Taking Names, Clara Violet #iep #individualeducationplan #embracethegoals #crushallthegoals #preschoolprincess #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Guess who I saw today!?!? Me and Oliver had the best time at the Thief River Falls Riverfest party today :) Stella did a cool dance camp thing, which gave me lots of time to wheel around town with my friends (old ones, and LOTS of new ones!) You should see me cruisin' around in my chair lately... Dad just about has a heart attack when I take off... I've got it DOWN! It's still my favorite when a friend gives me a little push though...... Happy Saturday!! Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Moms, When we are moving between therapy appointments, and stop for knucks on the way... please don't embarass us in front of our friends with all that {{OMG... how cute are you two in your matching puppy pants!?}} nonsense. Jeesh. We know... real cute. Places to be, Goals to crush, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #claraviolet #cutlerjames #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @redsattic
Dear Cutler, Happy Tuesday!! I'm rocking my yellow Cons and lemons while spreading sunshine all over Daisy Circle... and I just couldnt be happier about it. I'm feelin' G R E A T this week and cant wait to see Y O U tomorrow!! I giggled at your awesome jumping and smooching skills--- think PTLiz will let me try!?!?! Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors #lovecarters @converse @carters
Dear Cutler, My morning workout was {{AWESOME}} today!! I killed it on the swing... jumped like a jumping bean on my sunny tramp... and walked the track (from kitchen to playroom) a times like a champ. All in my favorite unicorn J/﹪﹪@〒㏎ with bed head. 予 My tummy hasnt been playing nice the last couple weeks. So when I woke up to sunshine and a burst of energy, mom said "LETS DO THIS!!" Needless to say... it was an early nap day. Cant wait to see ya tomorrow, Handsome! Your sunshine, Clara Violet #progresseveryday #claraviolet #tinyfighter #dontdismyability #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Let's talk progress for a minute. It's no secret... I just haven't been feeling the greatest the last couple months. HOWEVER: I am making progress LIKE/\OSS! {{Case & Point}} I am officially a WALKER!! Mom is calling it.. I can get up on my own in the middle of the room... I take my time... I dont just totally dive at the end and I'm SO proud!!! Also... I'm saying and signing new things every day. Like- every day. Mommy just cant handle it. She's all over me with kisses and clapping and whooping!! So this super-human resilience is working really well in my favor See ya soon My Love, Clara Violet #lovecarters #tinybraidsOMG #nursestylist #tinyfighter #progresseveryday #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Thank for coming to my lake yesterday!!! And for singing the Tiny Turtle Song. And for bringing your pretty mommy. And the the pool party (even tho that wasn't so much your favorite part.) Theres just nothing better than sharing a sunshiney day by the water with your BFF. Love you to bits, Clara Violet #lakelife #tulabylake #turtlesong #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I hope you had a safe and happy 4th of July!!! I sure did. My whole family went out to our friends place and had yummy food and lots of fun! I got to play some basketball with the big kids (I. Was. Awesome.) and watched them shoot off some fireworks. Those suckers are LOUD. I wasnt super impressed with the firecrackers and bottle rockets (they dont do much and again... they are LOUD), but the smoke bombs we kinda interesting in nice, QUIET, colorful way. Apparently when it gets darker the BIG BOOMERS come out and my brother says they are da BEST maybe I will check those out next year. Also, my mom tried to slow me down for a hug and a pic... moms are so clingy!! Am I right?!? Cant wait to hear about your 4th!! Missing your face, Cutler James 歹歹#fourthofjuly #fireworks #redwhiteandblue #somuchfun #holiday #celebrate #cutlerjames #beautifulsoul #claraviolet #tinyfighter #bffs #pintsizepowercouple #morealikethandifferent #theluckyfew #downsyndromeawareness #t21blessed #nothingdownambassadors2018 #ndss #dsdn #bonuschromiehomies #smilesformiles #notimeforhugs #bekindalways #changetheworld #toddlerfashion #toddlerlife #toddlersofinstagram #betterwithyou #love
Dear @dotdotsmile_codiet , You win some... and you lose some. 不 Don't be fooled! These lake-lovin' #brandreps are ready for July 4th, and they LOVE their new matchy-matchy {{americana}} tank dresses!! They also may have been a little irritated with me for interrupting the twirly dance party for a picture. 毋 USA USA USA, Clara (& Stella) #dotdotsmile #dotdotsmilebrandrep #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, I saw a little bit of our future today... I can just imagine us in 60 years: hopefully we can retire by then and spend our days chatting it up on the porch. I bet we'll still love to watch the neighbors dogs, and we'll invite all the kids to come play. I'll enjoy gardening, and and you'll still love to snack on Goldfish Crackers. It will be glorious, and I'll still be head-over-heels for my best friend. I love you, Clara Violet #oldsouls #foreverlove #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, You are cordially invited to join me at Tulaby... like ASAP. Please come play in the SUN (with 50 spf of course) in the WATER (with a floatie, duh) and by the CAMPFIRE (from a safe distance.) PS. Gramma Ginny built us a GINORMOUS new swingset. 予 I have {{THE CUTEST}} new @janieandjack swimsuit & shades and I'm saving you a seat on the deck. Do you think they make UMBRELLA DRINK sippy cups!? Channeling my inner Audrey Hepburn, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear @albrechtclare96 , You and your Country Inn & Suites hotels R㏕$℉!!! Thank you for hooking me up with a comfy place to rest between appointments this week!!! We LOVED your big snuggly beds!! Actually..... I thought it was HILARIOUS when my mom let me hog the covers! But really... top notch digs, my friend! You guys are some of those "Man, there are really great people in the world" kind of people!! Hugs & Kisses, Clara Violet @countryinn #kindnesswins #thankfulgratefulblessed #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Your mom was right about the cute guys in baseball pants!! You gotta get a pair..... Im losing my mind over my first BIG LEAGUE GAME!! We have VIP seats... its a BEAUTIFUL night in St Paul and we all have smiles for miles! #GOTWINS Wish you were here, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Remember when I saw you today at therapy and I chased you (slowly and carefully) up the stairs in PT?!?! Good times. Heres a little secret... When I caught up to you at the top, I thought about maybe giving you a little smooch but my bubble got the best of me (that bubble is, however, getting smaller and smaller) so I just clapped and smiled and made silly faces!!! Also, I got to play in the beans today. That. Is. Fun. The best part is throwing them all over the floor when its time to get out!! I do not recommend putting them in your mouth as they are NOT at all tasty. I love our therapy dates, throwing beans, and most of all... YOU!!! Cutler James 歹歹#downsyndromeawareness #t21blessed #t21 #nothingdownabouthim #nothingdownabouther #nothingdownambassadors2018 #ndss #globaldownsyndromefoundation #bonuschromiehomies #theluckyfew #beautifulsoul #tinyfighter #pintsizepowercouple #cartersbaby #bestfriendgoals #toddlersofinstagram #toddlerlife #picoftheday #bekind #awareness #acceptance #awesomeness #changingtheworld
Dear Clara, I got sunshine. I got jammies. I got early morning deck time with mommy. All thats missing is YOU. Come over soon... please and thank you. Smiles for miles, Cutler James 歹歹 #downsyndrome #cutlerjames #beautifulsoul #claraviolet #tinyfighter #pintsizeheroes #bffs #bffgoals #t21journey #t21journey #theluckyfew #nothingdownambassadors2018 #advocate #bekind #carters #cartersbaby #jammies #summer #smilesformiles #bornthisway #chromiehomie #bonuschromiehomies
HAPPY FATHERS DAY You've maybe noticed that our moms have a lot to say all the time... while our dads stay pretty quiet! BUT dont let that fool ya- we pretty much think our Daddys are {{SUPER潃HEROS}} !! Let's have a little fun with that and blow it up with some daddy-love! Tag your favorite DADDY or AWESOME GUY and tell us why he is so SUPER SPECIAL! Lovin' Up our F/㎏〒 guys, Clara & Cutler #fathersdaylove #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, In case you were wondering... I managed to find something cute to wear at the lake today. This may be my new favorite dress... ever. Its a rainy, lazy day at Tulaby! We managed to get out for a little bit to check on Grammas flowers, but mostly there's just LOTS of snugglin' and snoozin' going on. Think you and your pretty mommy can make it here by naptime!?!? Happy Satur-yay, Clara Violet @dotdotsmile_codiet #dotdotsmile #smileybrandrep #thatbowtho #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, What's your favorite color?? Bet you cant guess my mom's ... think summer & lemons. She poured her heart out on FB this morning... its definitely worth a look https://m.facebook.com/story.php?story_fbid=844166185772494&id=559693987553050 Radiating Sunshine, Clara Violet #theluckyfew #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Happy Wednesday Therapy Day!! Help me out here... Stella called us 'cute little SWINGERS' and my mom giggled... whats so funny about that?? We are awesome on the swings and duh, we're real cute. Adults are so weird. Hold on Tight!! XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Summer is pretty awesome, isnt it?! Sunshine, lazy days (ok... we are super busy with therapy and being awesome, so I guess our days arent exactly lazy), and NO PANTS!!! Ha ha!! Sometimes when its super hot outside I ditch my drawers and chill on the deck. I got a brand new water table so youll have to come over and splash with me!! Ooooo... lets invite Huddy and Mac and make it a Brat Pack deck party!!!! How does that sound??!! I love a good party, Cutler James 歹歹 #cutlerjames #beautifulsoul #claraviolet #tinyfighter #downsyndromeawareness #downsyndrome #t21awareness #t21blessed #t21love #nothingdownambassadors2018 #ndss #dsdn #dsconnex #bekind #benice #toddlerfashion #toddlersofinstagram #picoftheday #deckparty #summertime #bratpack #pintsizepowercouple #bestfriendgoals #friendsarefamily #bonuschromosome #bonuschromiehomies
Dear Cutler, So... we should probably start apartment hunting. Im pretty much independent now. I mean, I survived all weekend without my mom... so did Daddy. Mom got to watch BiG BrO Alex's team WIN the lacrosse state championship title while me and Dad held down the fort at home for two whole nights- our daddy-daughter weekend was a great success! Ok... maybe Im getting just a little ahead of myself with picking out towels and dishes... BUT it was a BIG weekend of firsts for all of us... and even tho everything went perfectly, I was REALLY happy to see Mommy last night. XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Ahhhh... there is nothing like a nice soothing tubby in the sink. Just me and the bubbles relaxing our cares away... this is the life. WAIT A MINUTE... theres mom... whats she doing??!! Taking pictures AGAIN?!?! Awwww man... IM IN THE TUB!!! SMH (literally). Moms and cameras... Uffda. Chillin in the tub, Cutler James 歹歹#cutlerjames #claraviolet #beautifulsmile #beautifulsoul #tinyfighter #downsyndromeawareness #trisomy21 #t21family #morealikethandifferent #bornthisway #upsyndrome #nothingdownambassadors2018 #ndss #dsdn #bonuschromiehomies #tubby #tubbytime #bubblebath #smiles #awareness @theellenshow #sillygoose #smh #momlife #toddlersofinstagram #picoftheday #pintsizepowercouple #love #t21blessed #theluckyfew #cuteness
HAPPY NATIONAL BEST FRIEND's DAY!!! Its as if today was made for us!! We had to squeak in an early morning play/coffee date to celebrate! Our wish for you today!? That you would find a friend who lifts you up, helps you down, holds your hand, wipes your tears, laughs at your jokes, celebrates all your successes and loves you like family EVERY DAY. We do not take lightly how lucky we are to have found that in each other... all four of us. 手 XOXO, Clara & Cutler Lana & Amy too...... #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids @carters @oshkoshkids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors #nationalbestfriendsday #friends #bffs #bestfriendgoals
Dear Friends, Today was a {{BiG}} day!!! It was our first time working out at the big gym together... and OH MY>> Did we have F.U.N!! Clara hasn't been well enough in almost 2 years to play/work with our therapists at the clinic... we've been so THANKFUL to be able to work with them at home... BUT, she is doing great, making progress, and is ready for some adventures (outside our fairytale playroom!) SO, today our summer schedules started and we BOTH were RoCkStArS!! Another great STEP towards conquering the world together! (Get it?? Cuz we are super brave & silly at the top of the steps!? Jeepers, we are clever.) Crushing Our Goals, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, You know how Im kinda opinionated?? Like... about everything?? Well- my newest passion (thats what I call it anyway... Im not stubborn, Im passionate) is WARDROBE. Seriously. My mom finally started asking for my input and Im not afraid to give it to her. I dont like tight or binding... cuz duh... but I also have strong feelings about color and cut. And they change every day. Mom thinks its SUPER FUN. This adorable B&W number?? A fave for sure. I'll call ya tomorrow to discuss our therapy day wardrobe choices to make sure we coordinate effectively. M U A H, Clara Violet #lovecarters #toddlerfashionista #littleblackdress @carters #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @changingthefaceofbeautt @nothingdownorg
Dear Cutler, HAPPY SUNDAY!! My heart is full today after a day FULL of //fun// yesterday... including girl-talk and #matchymatchy outfits for Stella & me!! Mom says she can't handle the level cuteness... I think now would be a good time to ask for a pony... or a pool... or just about anything. Feeling GREAT & looking FAB, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #sistersister #2018Ambassadors @changingthefaceofbeauty @dsdn @nothingdownorg
Dear Cutler!!! I tried calling you earlier.... but I figured I better just send you a note!!! OH. EM. GEE!!! We busted over {{7000 LIKERS}} on FB last night!?!?!?! And we are making new IG friends every minute .... Can you imagine??? Thats a whole lotta love!! Lets get together to celebrate today!! LoVe YoU! Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @dsdn @nothingdownorg @changingthefaceofbeauty @theellenshow @ellentube
Dear Cutler, You are my sunshine!!! Not to be confused with the sun glaring in our eyes during pics today... cuz thats kinda silly... but the sparkly, happy, bright spot in my day kinda sunshine ALSO-- We totally killed it for therapy today! Feels so good to get back to work!! Love you, Love us... Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @dsdn @nothingdownorg #lovecarters
You guys!!!!! 100k+ views!?!? Oh. EM. JEEPERS! And thats just ONE publication.... Twitter is all a-buzz... we have nearly 200 new 'likers' on FB... and a slug of new IG friends! Good grief!! We sure are lovin' all the LOVE for @claraandcutler !! @insideedition call us!! We're ready for a sit-down #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed @nothingdownorg #2018Ambassadors #changingthefaceofbeauty #dsdn @dsdn @CTFOB
Dear Friends, So..... you guys know how we are BFFs? Soul mates!?! Inseperable!?! Well... a bunch of news publications {{AROUND the WORLD}} thought EVERYONE should get a glimpse of our J㏕兙!! This is the @insideedition version... can you believe it!?! INSIDE EDITION?! DAILY MAIL!? THE SUN!? just to name a few :) Go ahead- GOOGLE "CLARA & CUTLER" !!! Post a link when you find em so we dont miss one! Lapping up the Limelight, Clara & Cutler #pintsizepowercouple #nothingdownorg #2018Ambassadors #changingthefaceofbeauty #dsdn #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #chromiehomies #bonuschromiehomies #t21blessed
Dear Cutler, OPERATION HOLIDAY WEEKEND is a GO!!! I'm feeling good today... with close follow-up planned and a shitty home routine (unfortunately, no pun intended) I got two thumbs up and busted OUT! Daddy came to get us ... and me and mommy couldn't be happier!!! We are going home to pack up everyone and head to the LAKE tomorrow. We decided this weekend at the lake isnt so much a WANT, as it is a NEED! Headed HOME, Clara Violet #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, This sucks. You know how grown-ups always say "you'll feel so much better...." and "almost done, just hold still..." or "it's OK, it's OK, it's OK" ?? Well... I dont think any of them have had to do ANY of this {CRAP}. Ever. They may be right.... but seriously. WTH!? Im feeling a thousand times better than last night. I dont like the plan...and Im exhausted, but things are moving (if you know what I mean) and now the goal is to keep the flood gates open, so no one ever says the "O" word ever again. Yikes. Look who popped in with some stuff from home and a hug today!? My favorite #hirschsprungswarrior Mac!! He gave me a little poop-talk.. er, I mean pep-talk. 拎 Resting up, ready for "better", Clara Violet #hirschspringspartyoftwo #kickinghirschsprungsass #hirschsprungs #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, Please send love, light and prayers for Clara... she went from feeling awesome, to rotten in a matter of hours. She has a bowel obstruction, and is one miserable little girl. We are currently at Sanford Health Childrens in Fargo... waiting on a plan. Weary, sad, and worried, Lana #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, TOGETHER AGAIN!! Besides the obvious reasons, we are SO happy Clara is feeling more like herself finally!! So good in fact, that we made it to Mac's Birthday party yesterday!!! THE BRAT PACK was all together again for the first time in ages!!! Happy kids... happy moms... HAPPY VILLAGE! THANKFUL & BLESSED, Clara & Cutler #thebratpack #mickeymac #huddybuddy #claraviolet #cutlerjames #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, You remember the I-miss-you face from a couple days days ago? Well... I still miss you like crazy, BUT I am feeling much 儭SPARKLIER儭 today! At least this morning anyway... Im going back to the OR this afternoon so they can take another look at my under-carriage... that will help the docs decide what our next best steps should be. I was feeling super hopeful yesterday that things were moving along... was really packin' in the calories... even got outside to the garden! But, the fully leaded food clogged me up again. Already. So... not really sure what to make of that. Mommy is researching the best delivery method for prunes... yet another GTube silver lining. Yuck. Next up: NAP. 0330 was too freaking early to get up today. At least that what mom tells me. Oops. Love you lots... Miss you most... Clara Violet #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, This is my I-miss-you face. Mommy and me decided this morning that even though things are still pretty cloudy here... we are just gonna focus on the bright side! So- here's what's great: First, my sore bottom is SO much better! I can finally SIT on it... seriously, diaper-rash gone rogue can kiss my butt. Mommy is playing scientist mixing up all kinds of tricks... and we think we landed on the magic mix! Next, Im getting some CALORIES finally today! Lets hope they don't all go to my ass! I mean... we hope they do, cuz then the plumbing is working... but, you know... girlish figure... And finally, HSM3 on Netflix is on-deck. @Zacefron , call me... just as a friend- of course. Mommy and me are snuggled in for a quiet couple of days cleaning out my stopped up belly, slowly replenishing with some food fuel, and hydrating, hydrating, hydrating. They are taking me down to the OR again on Monday for another look at things. Hopefully, I'll feel like smiling soon! Love you to bits, Clara Violet #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, We didnt quite make it to Monday :( Clara is inpatient in St. Paul... again. With her touchy balance between ok and not, her pediatrician and surgeon decided we had exhausted all attempts to keep her comfy at home... and it was best to get her here and regroup. She is battling something. It may just simply be slow healing... there may be something that has healed incorrectly... or her little gut may just be yelling, "Uncle! Uncle!! Uncle!!!" Whichever it may be, we hurt for her. I would guess we'll be bunking here until at least Monday... which means Im officially changing Mothers Day to next week. Please adjust your plans accordingly. Back in February, I gathered up my tribe and we all got #theluckyfewtattoo . I'm feeling the pull-back something fierce. I have faith... and so much support. I know she will be fine... but Im feeling very tested, and frankly: its about damned time for the launch. "Anarrowcan only be shot bypullingit backward. So when life is dragging youbackwith difficulties, it means that it's going to launch you into something great." --Unknown Thankful for your prayers and support, Lana & Clara Violet PS. Cutler, we miss your face. Tell your mommy she should bring you shopping this weekend. Here. XOXO. #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, We didnt quite make it to Monday :( Clara is inpatient in St. Paul... again. With her touchy balance between ok and not, her pediatrician and surgeon decided we had exhausted all attempts to keep her comfy at home... and it was best to get her here and regroup. She is battling something. It may just simply be slow healing... there may be something that has healed incorrectly... or her little gut may just be yelling, "Uncle! Uncle!! Uncle!!!" Whichever it may be, we hurt for her. I would guess we'll be bunking here until at least Monday... which means Im officially changing Mothers Day to next week. Please adjust your plans accordingly. Back in February, I gathered up my tribe and we all got #theluckyfewtattoo . I'm feeling the pull-back something fierce. I have faith... and so much support. I know she will be fine... but Im feeling very tested, and frankly: its about damned time for the launch. "Anarrowcan only be shot bypullingit backward. So when life is dragging youbackwith difficulties, it means that it's going to launch you into something great." --Unknown Thankful for your prayers and support, Lana & Clara Violet PS. Cutler, we miss your face. Tell your mommy she should bring you shopping this weekend. Here. XOXO. #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, We're having a hard time mustering up some sunshine today. Besides the rainy spring day (which we love actually... time to green it up around here!) Its kinda cloudy at our house. Clara just feels crappy. After visits with docs and surgeons, we made a quick trip to the ER last night in Fargo, thinking we'd likely be admitted. Luckily, her labs looked ok (no dehydration- a win!) but her xrays showed some pretty major constipation. Despite the ultra-dramatic, heart-wrenching BMs she has every couple of hours, she's totally backed up. And her bottom? Holy inferno batman. So... we are pumping in Milk of Magnesia & treating her skin with some serious power house paste. We follow-up in St Paul on Monday... hoping she can hold tight til then. For now, a sitz bath is about the only place she's sort of comfortable... or a lap. All of us are exhausted and so sad thats she feels so rotten. In a nutshell #HIRSCHSPRUNGSSUCKS . Hoping for sunnier days ahead, Clara & Co. #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Daddy, H/㎜㎜兙 B@㎞㎡%¥/兙!!!! Your Sunshine, Clara Violet **PS. I'm making progress... slowly but surely. I'm smiley sometimes (like this- cuz duh, BIRTHDAY!) but most of the time I'm kinda sad. My bottom hurts... and I just feel yucky. I am sleeping OK, and things are definitely moving thru... but its not very comfortable yet. We're hoping for tolerable soon! Im taking lots of warm baths... and have a literal arsenal of creams and pastes and goop for my sorry little tush. I have a follow-up to check things out next week ... REALLY hoping everything looks to be healing up as it should! The plan for the week is to REST, HEAL, REPEAT. For today, I rocked a messy bun, soaked up some warm, sunny weather- and celebrated my #1 guy's birthday! #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Home. Is. Awesome. You came home yesterday and guess what???? My mom and big bro are coming home today from Kentucky!!!! I cant wait to see those guys (and I hear my mommy is pretty excited to see me too)!! Excited to have everyone in one place, Cutler James 歹歹 PS. Daddy had to take me to urgent care Monday night cause I wasnt feeling so great. They said I have pneumonia, but it didnt look super bad so they gave me meds and I got to go home. Stupid germs. #homeiswheretheheartis #cutlerjames #beatifulsoul #claraviolet #tinyfighter #nothingdownambassadors2018 #babysmiles #chromiehomies #downsyndrome #upsyndrome #dontlimitme #bonuschromiehomies #theluckyfew #morealikethandifferent #cutekidmodels #toddlersofinstagram #home #germssuck #happykids #myheart #trisomy21 #pintsizeheroes #sparkle #awareness #awesomeness
Dear Cutler, {{ I'M OUT !! }} and a day ahead of schedule!!! The good docs at @childrensmn gave me the green light to continue to healAT HOME!!! I have some things to keep a close eye on... my sad little bottom needs extra TLC, I need to get my calorie intake back up to where it needs to be, and Im still pretty uncomfortable-- BUTT (hehe, I added an exta "T" on purpose... cuz, well... that shits funny... omg. I cant stop) I can work on those things at home with the help of OurN Melissa!! So, Daddy is driving like the wind and me and mommy are plotting our car naps! Thanks for all the prayers and well wishes!! They are working and I'm back on my way to great things! XOXO, Clara Violet & Co. #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, I busted outta my room for a bit today!! Check out this awesome skyway-- its all kinds of MINNESOTA cool! It looks like the Northern Lights at night all lit up... and the stars make animal sounds when you touch 'em!! The loons are my favorite Its been a tough couple of days. I've been VERY sleepy... and keeping my bum from hurting has been of key importance. Mom says we now know that I am, in fact, human... and not some invincible super-hero. Well... not all the time anyway. This walk (and some new friends we met along the way) cheered me up! Now we just need those darned ruby slippers......... Clicking my heels, Clara Violet #kickinghirschsprungsass #hirschsprungs #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
#Repost @claraandcutler with @get_repost 颯颯 Dear Friends, Well... today was kinda rough. EXCEPT for the part where our fave beauty queen- trailblazer- dancer- college babe- and {ROLE MODEL} Mikayla Holmgren stopped for a visit with her amazing mama Sandi, and they brought bubbles!!! That part was awesome! Thank you @mikdancermom and @mikholmgren_inspiring_others you made our day!!! Blessed with great friends, Lana & Clara #momgoals #bestbuddies #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Friends, Well... today was kinda rough. EXCEPT for the part where our fave beauty queen- trailblazer- dancer- college babe- and {ROLE MODEL} Mikayla Holmgren stopped for a visit with her amazing mama Sandi, and they brought bubbles!!! That part was awesome! Thank you @mikdancermom and @mikholmgren_inspiring_others you made our day!!! Blessed with great friends, Lana & Clara #momgoals #bestbuddies #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Great work with the grass!!!! Cant wait to get my toes in it with you! There is good news & less good news at Childrens today. First: the good news. I ditched my IV this morning so I get to wear my comfy jammies instead of that goofy hospital gown! That also means I'm not tethered... so I can nap with mommy in her bed {dreamy} !! As long as I keep taking in fluids, I can stay unhooked and free to snuggle! Next, the less good news: I dropped one teeny tiny little pebble of a poop this morning. Yikes. That sucked. Things are moving (yay) but it doesnt feel so good (less yay.) So... Im not quite as sparkly today as I was yesterday. Lots of hold-me snuggles and kinda nervous hugs... good thing mom and dad are both super good at those. Food is going so-so. Im getting enough fluids... but my tummy isnt real excited about the food in the fluids... so Im not anywhere near my calorie goals... we have some work to do with that. All in all, no BAD news just a few things to check off my list still before I can come home to you! Healing like a BOSS, Clara Violet #kickinghirschsprungsass #hirschsprungswarrior #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Whats in your Friday lunch box?! Doc said, "Who wants to start some feeds!?" And I showed 'em! I got to start some food today.... so far so good! Slow and steady will win that race... Don't wanna get ahead of myself- but mom and the docs talked for a minute about when I can bust outta here... it might be sooner than we planned!!! 拎 It all depends on how this food moves through and OUT the patched up pipes. Praying for a smooth exit plan- in a number of ways... hehe. Cheers, Clara Violet #kickinghirschsprungsass #hirschsprungswarrior #tubieprincess #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
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