#bonuschromiehomies

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Dear Cutler, Here we go! Send all the prayers to Children's Minnesota St Paul. One of us is a little more ready than the other....... These are our "Buh-bye Crap Bag" smiles! Will keep ya posted, my love. Game on, Clara Violet #kickinghirschsprungsass #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21derful #t21 #theluckyfew #photooftheday #hirschsprungsdisease #chromiehomies #bonuschromiehomies #claraviolet #changingthefaceofbeauty #t21blessed #nothingdownorg #2018Ambassadors Clara & Cutler
Some days the cape is a little easier to see than others... especially when Auntie @amy.moreland finds the p•e•r•f•e•c•t "I GOT THIS" outfit. @gapkids... meet your new superhero! 💙💛💙💛💙💛💙 #kickinghirschsprungsass #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21derful #t21 #theluckyfew #photooftheday #hirschsprungsdisease #chromiehomies #bonuschromiehomies #claraviolet #changingthefaceofbeauty #t21blessed #nothingdownorg #2018Ambassadors @claraandcutler
Dear Cutler, Me and Elmo are on our way! Its a beautiful, sunny day for a drive. Daddy's got the music turned up and mommy and me are having a party in the back seat! Will keep you posted tomorrow... I check in bright & early! SAINT PAUL OR BUST! XOXO, Clara Violet #kickinghirschsprungsass #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors
Dear @carters , T•H•A•N•K Y•O•U for the beautiful, thoughtful, amaze-balls gifts!! More importantly, thank you for {INCLUDING US} and for embracing ALL kinds of beauty! You truly are with us every step of the way!! We LOVE this pic... and we LOVE working with you! 💙💛💙💛 XOXO, Clara & Cutler #lovecarters #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, If you're not doing your || HAPPY MONDAY || dance... you should be. We are ALL SMILES (see what we did there!?) on this sunny Monday morning! Working hard for therapy, sprinkling in some playtime, and enjoying some much needed TOGETHERNESS. It will be a couple weeks before we see each other again... we dont even wanna think about it. So we're dancing instead. Shaking our groove thangs, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty @gapkids #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I have a wagon built for two and a walk with your name on it!! Stella and I took a maiden voyage today in my new @radioflyerinc ... It was my birthday gift from Gramma Ginny back in November. So now, with (most of) the snow gone we can FINALLY get outside for a ride!! Bring a sippy cup... it has cupholders! 😍 Happy Fri-YAY, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I saw the good Dr. P. for my pre-op yesterday... and we are #clearfortakedown . One more thing to double-check tomorrow, but if all holds steady, we are headed to St Paul next week to put my guts back together. Im not nervous (cuz duh, Im Clara) but mommy is. We weren't really ready for this yet, but as usual I make my own rules... and that makes mom a little uneasy. Basically, the part of my gut that Im NOT using is angry. So, our best option is to do the 'take down' procedure, hook me back up and {PRAY} for the best! So... gonna need you to do that for me... and all our friends too. Also, any of my #Hirschsprungs friends out there who have dealt with dis-use Colitis- or a late take-down- send me some success stories! 💩 Tryna stay healthy, Clara Violet #kickinghirschprungsass #hirschsprungsdisease #hirschsprungssucks #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #theluckyfew #photooftheday #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear GiGi's Playhouse, We had a super duper good time yesterday at 2 and under playgroup! We got to see lots of friends that live in different places and played with some pretty cool toys. There were stories and songs and even a slide (unfortunately our tennis shoes prevented us from reaching turbo speed, darn it)! There was so much to do and see and we were very busy. Finally, we decided we needed a little “us” time and sat down to express our inner artists. We are very talented with crayons. *FYI: the red does NOT taste like cherry and the blue does NOT taste like blueberry. Lesson learned. Playgroups rule, Clara and Cutler ❤️❤️ #downsyndrome #nothingdown #nothingdownambassadors2018 #bonuschromiehomies #bestfriendgoals #ndss #playgroups #toddlerstyle #toddlersofinstagram #toddlerlife #crayons #artists #pintsizepowercouple #morealikethandifferent #changetheworld #theluckyfew #awareness #acceptance #awesomeness #friendsforever #familyfun
Dear Clara, My mommy and I were being all snuggly the other night and she said, “CJ, let’s take a cute, cuddly, lovey-dovey selfie!” I’m pretty sure I nailed it. Never a dull moment, Cutler James ❤️❤️#cutlerjames #claraviolet #beatifulsoul #tinyfighter #downsyndrome #trisomy21 #nothingdownaboutit #nothingdownambassadors2018 #bonuschromiehomies #theluckyfew #morealikethandifferent #sillyfaces #goofball #sillybaby #cheeser #personalityfordays #dsdn #ndss #selfieoftheday #toddlerlife #toddlersofinstagram #momlife #babysmiles #babymodel #awareness #toddlergoals
Dear Cutler, Can you say ROSE GOLD KICKS!? 😍 I got my new @Surestep.products braces yesterday and the EXTRA WIDE sparkly @Newbalance shoes mommy ordered are PERFECT! That can be tricky for teeny feet ... so we are feeling like total WINNERS over here today! Of course, they are ridiculously cute... BUT fashion aside, the extra support for my wobbly ankles and feet is AMAZING! My stance is better- my legs are straighter- and I look like such a {BIG} kid! If you thought I was fast before... wait til you see me now!!! With HAPPY feet, XOXO Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, Im working on trading in my signature tongue-out smile for a more toothy grin. Stella has been helping me practice today... mommy says I'm the cutest little pirahna ever... and daddy is figuring out how we are gonna negotiate a family deal on braces to fix our matching underbites someday! 😂 #saycheese #morealikethandifferent XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, Anyone in MINNEAPOLIS/ST PAUL today!?! Drop by @kittsona and shop the @thekinndproject P•O•P U•P S•H•O•P from 1:00 - 3:00 !! We wanted to be there {IN PERSON} but, LIFE. So... we're sending YOU in our place! Need an EXTRA incentive!? We'll send you an 8x10 signed GLOSSY if you go, post a pic of the shop and TAG us! **Bonus points if we are in the pic!** 😉 So... go do some shopping... spread some kindness... And say hi to the peeps at our fave boutique! ❤❤ Killin' it with Kindness today & always, Clara & Cutler #bekind #thekinndproject #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, My apologies for the knee-deep mush... but sometimes these kids just stop me in my tracks. Have you ever witnessed true love between friends? Like, real honest-to-goodness, unbreakable, unwaivering LOVE? I sure hope you have... and I really hope you have a friend like that in your life. Its hard for me to imagine such a bond between two people so young... but Clara & Cutler truly, genuinely ADORE each other. I witnessed this today (for like the million'th time) and by a stroke of luck was snapping some pics. The results take my breath away. Cutler was just not having a great morning today... nothing in particular, not crabby, not ticked... just not his usual bubbly self. Clara picked up on it right away. She carefully approached him and spotted a tear on his cheek... she gently wiped it away... and then gave him the sweetest hug ever. The level of amazing in that kind sweetness for a full-throttle toddler is overwhleming... and then, the fact that even in a funk Cutler let her in... I cant even. We are so blessed to witness these littles grow and learn and love together. Thank you for sharing that with us... 💙💛💙💛 With a FULL heart, Lana #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, In case you're wondering... I found something cute to wear for Easter. @dotdotsmile.codiet came to the rescue once again... I know that dilemma has probably been keeping you up at night. #chicksandpeeps for the win!! Hope you are having a glorious Easter weekend! We are kicking off our celebrations today and I've got a good feeling about the bunny visit tonite! 🐰 Full of Love, Hugs & Hope, Clara Violet #dotdotsmilebrandrep #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors
Once upon a time two best friends were gazing out a squeaky clean window... this is the conversation overheard by two incredibly proud mamas. Cutler: It’s a big world out there, isn’t it? Clara: It sure is... a big wonderful world. Cutler: It’s kinda scary out there. Clara: Just hold my hand. We’ve got each other... always. Cutler: I love you my friend. Always. Dream big little ones. You got this. ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #babysmiles #beautifulbabies #dreambig #dreamers #bestfriendgoals #bffs #downsyndrome #nothingdown #nothingdownambassadors2018 #ndss #dsdn #theluckyfew #morealikethandifferent #bonuschromiehomies #changetheworld #spreadthewordtoendtheword #beautiful #awareness #awesomeness #peekaboo #momlife #toddlerfashion #toddlerlife #pintsizeheroes #pintsizepowercouple #love
Dear Alex, I know you like to act cool.... cuz duh... you are. But you can't fool me. I see you. I see how you always find me to say good morning before school and good night before bed. I love that you always know where I am and how Im doing... even when I'm not home. I know most big guys dont wanna smooch their kid sisters out in public... but you never turn me down. I see that mom puts you in the inner circle of peeps she trusts to take care of me. I can literally feel how proud you are when you introduce me to your friends. Im pretty much the luckiest little sister ever. Dont worry though... your secret is safe with me. I wont tell anyone that you are secretly a big teddy bear. Promise. Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #photooftheday #cutekids #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg @amcarthur13
Dear Mommies, Silly. You should have gone swimsuit shopping like we did for our first SWIM DATE!! Our new @carters swimsuits are ON POINT. @amy.moreland JEANS??? IN THE POOL!?!? **Sigh** better luck next time! 🤣🤣 Diving in HEAD FIRST as usual, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #ad #sponsored #lovecarters
Dear Friends, I bet your Monday Meeting isn't nearly as cute as ours!? As usual... Clara is in charge (her new @carters romper says it all) and Cutler just wants a hug... what would your shirt say today if you could pick!? Making B•I•G plans, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #lovecarters #ad #sponsored
Dear Cutler, Im trying to sweet talk my Daddy into getting us one of these! Like, pretty please with a cherry on top!?! I think it would be AMAZING in our playroom! 😚 I had the BEST time at @gigisplayhousefargo with the 2&Under group this morning! I met some {{extra cute}} new friends... we did some SUPER FUN activities... and I told everyone all about you! Im serious.... we gotta go together next time!!! AND... its really time for us to start thinking about firing up an honest-to-goodness chromie-homie playgroup in our town!!! Are ya with me!?!? Jumping for J•O•Y, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #lovecarters
Dear Cutler, OH. EM. GEE. 💛💙 Do you see this adorable new spring stuff!?! I am FREAKING OUT cuz @carters sent it as a little GET WELL gift!! Can you imagine!? I cant decide what to wear first!! As for the GET WELL part?? Yep... I'm doing that! Im feeling SO much better! The gazillion meds I'm on (including the nasty "E" word I have to do every night) are working and it shows! We are definitely on the right track and Mom says someone put a quarter in me :) I'm counting the minutes til we can have a playdate!! Feeling the LOVE, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #lovecarters
PEACE OUT ST PAUL!! Nothing happened very fast today... but I think the packed bags and 'go-home' jammies sent a clear signal. We are ready to be HOME! But dont worry... it wont be long before #tinyfighter brings her sparkle back to @childrensmn . Our instructions going home are to stay healthy... clean up that messy colon... and rest up. Its time to put her plumbing back together. We have mixed feelings about that... nerves, hope, concern, relief, nerves (oh- did I already mention the nerves?) But have every faith in her medical team. Keep sending healthy, happy vibes our way... and pat yourselves on the back. Your prayers and well-wishes pulled our girl (and her weary parents) through a bumpy road yet again!! With love, Lana, Scott & Clara #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #kickinghirschprungsass
Dear Cutler, Ugh. Cant tell you how great it feels to be in my own jammies... no extra tubes (cuz dude, I got enough of those already) and a couple days of good strong meds on board. Today is a 'hang out' day. Me (and my blood sugar level) are happy to report that my belly is accepting food!!! We took it slow yesterday and I'm back to my home routine this morning... so far, so good! AND I got a great night sleep last night- mark that down... it happened! I SLEPT straight thru- IN THE HOSPITAL. Kind of miraculous. Im here one more night for sure... they're gonna do a radiology scan of my belly tomorrow and the surgeons are having a meeting of the minds to discuss my 'moving forward' plan. If all goes well, we are on our way home!! So... take an oatmeal bath or something to get rid of those spots so we can play! Don't get me wrong, you're still one handsome little devil... but I want no part of that business! 😉 See you soon Captain Super Pox, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #kickinghirschprungsass
Dear Cutler, Know where the best place to relax in a hospital is?? Yep. Daddy's lap. 💙 And I'm seriously snuggled in....... I think mom might be a little jealous. Will be bunkin' at @childrensmn St Paul for a few more days. Thats not awesome... BUT I did just convince the good docs to take out my stupid IV. And by convince I mean, I took out my IV. Luckily mommy hates the extra tubes as much as I do... and she plead my case against starting a new one. G-tube access saves the day, yet again! Miss you a bunch- hopefully by the time I get home, your bumps will be gone and we can play catch-up!! XOXO, Clara Violet FOR MORE OF AN UPDATE... CHECK OUT Clara & Cutler ON FACEBOOK. #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #kickinghirschprungsass
Dear Hand, Foot, and Mouth Disease, TAKE. A. HIKE. Seriously, you are messing with my healthy streak. Ugh. What are you anyway?? I don’t even go to daycare and my mommy and daddy are super careful about gems. Apparently somehow, somewhere, I touched the wrong thing and then put my hands in my mouth (duh... I’m 2 and teething) and wham-o I look like I have the pox. However, as cruddy as you are HFM, I’m still as adorable as ever and not even you can steal my 2-year old thunder. So there. Wash your hands... a lot... cause germs are jerks, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #beautifulbabies #downsyndrome #chromiehomies #germssuck #morealikethandifferent #theluckyfew #washyourhands #cuteasever #bonuschromiehomies #summerplease #nomoregerms #nothingdown #nothingdownambassadors2018 #bornthisway #toddlerlife #momlife #getwellsoon #love
Dear Friends, IT'S TIME TO TAKE A STAND!!!!! And who am I to argue!?!? Im standing tall (OMG- really!?) and asking you to please >>> >>>SPREAD THE WORD TO END THE WORD<<< There is no place in this world for the "R" word! Not in the medical world... not in social circles... not in schools... not anywhere. So PLEASE. Stop using it. And tell ALL your friends to do the same. Respectfully, Clara (& Cutler... who is a little under the weather today, but agrees with me completely.) #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #spreadthewordtoendtheword
Dear Cutler, Since Mother Nature isn't ready to give up on Winter just yet... those 9 new inches of ❄snow❄ mean approximately forever until Spring... and swingsets. So... we hooked up my swing in the playroom and GOLLY I'm having a WEE!! I'll leave it up so you can try tomorrow! Think we can BOTH fit?? Cant wait to see you 💙💛 Curing Cabin Fever, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Lady Clara, You are right... we are not babies anymore. We are TODDLERS... two year olds... practically “threenagers”. Therefore check out my big boy look!! Just a guy... chillin in a chair... no pants. Ahhhh maturity. Mommy says I’m still her baby, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #beautifulbabies #babysmiles #morealikethandifferent #theluckyfew #nothingdown #nothingdownambassadors2018 #bonuschromiehomies #ndss #dsdn #iamable #toddlerlife #two #toddlerfashion #pintsizeheroes #wdsd2018 #love #awareness #acceptance #awesomeness #claraviolet #tinyfighter #chromiehomies #fightinghawks @undmhockey
Dear Cutler, Now that we are both TWO... I think we need to start acting a little more mature. I mean, we're not babies anymore........... So, I got all spiffed up in my new @DotDotSmile.codiet dress (ummm... lipstick print in empire?? Yes please!) And I invaded Stella's big girl room to do my make-up. I think my mom cried a little... something about 'too big...' Jeesh. What a sap. BIG Kid'ing Like a Boss, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #dotdotsmile #dotdotsmilebrandrep
Dear Cutler, PUCKER UP, BUTTER CUP! Im ready for your BIRTHDAY KISSES!! 💋 I know I say it all the time... but I think today (YOUR 2ND BIRTHDAY!!) is a really great opportunity to {shout} from the rooftops that I am so •THANKFUL & GRATEFUL• for our friendship! You make my world a better place, and I am so proud to be your girl! I cant think of a cooler guy to change the world with! Wishing YOU the Happiest of Happy Birthdays, My Love 💙💛 XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, Today was {{ E P I C }} We met SO MANY new friends at the @nothingdownorg photo/video shoot! It was INCREDIBLE! They said I could share a sneak peak of my video look... but O•M•G. I cant wait to see how everything comes together! There was a whole lotta dancing and a whole lotta CUTE going on!! WDSD won't know what hit 'em this year!!! Everyone says I need to bring you next time! 😘 With a HAPPY heart, Clara Violet **Clara did AWESOME today! She was a charmer as always... with hugs and high fives for everyone! I am so proud I could just burst... cant wait to share the finished product!** --- Lana #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I am having the best day!!! I hit up the Atlantic City Aquarium and TOUCHED a shark and a stingray! Can you imagine!?!??! After that we checked out the boardwalk, saw the ocean, and played a quarter at Ceasars. We lost that... BUT still came out on top today! I found a "My Girlfriend Went to Jersey, and All She Brought Me Was This Shirt" tshirt... but it didn't come in a 3T. What the heck!?! XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Clara, I have a lot to say this morning. I know you will totally understand my message, but lots of people out there might not speak toddler so here is the translation: “It’s almost Valentine’s Day and I can’t wait! I love you and mommy and daddy and all my family and friends. We are super close to 6,000 likes (friends)... can we hit 6k by the end of today?? YES WE CAN... love and share!! Also, my daddy is silly and my hair is on point.” Sunday giggles are awesome, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #theluckyfew #dsdn #ndss #nothingdown #nothingdownambassadors2018 #giggles #happy #chromiehomies #bonuschromiehomies #sillyboy #lifeisbeautiful #awareness #acceptance #awesomeness #jammies #babysmiles #toddlersmiles #dontlimitme #morealikethandifferent #trynottosmile #momlife
Dear Cutler, Happy Saturday! I've had such a busy week... so a nice, lazy Saturday watching Glee in my beanbag chair is everything! My new wheelz are finally here (even cooler than I imagined,) it was my 2nd Heartiversary yesterday ❤ AND it was Feeding Tube Awareness week- I celebrated that by locking in my reservation with Dr. Carrie and her @sanfordhealth Intensive Feeding Clinic in April... she says its time to EAT!!! OY VEY. Its a lot for a Little Diva to keep up with... guess Im really taking #PROGRESSEVERYDAY up a notch! XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Clara, Im SUPER busy counting today... Im counting my piggy bank (cuz, duh... Valentines Day is just around the corner and imma get you something nice) AND I'm counting all our ••NEW FRIENDS••! Holy Smokes-- there's a whole lotta love coming our way! ❤ how many do you think we can win over today!?! #10kbyvalentinesday Hugs & Kisses (from a distance) Cutler James #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, We did the coolest thing this weekend... ☆17☆ of us spent the day together yesterday. We spent the day doing what we do best. Supporting, sharing with, and learning from one another. We laughed, shook off some nerves and came together to show the world the we are proud to support our bonus chromies by rocking #theluckyfewtattoo !! There is a real and true movement happening in the Down syndrome community, and we are thrilled to be a part of it. Each of us (as have 100s of others across the world... maybe even 1000s) got tattoos of 3 arrows. They symbolize {Unity + Courage ♡ Among Us} The arrows proudly announce that despite the challenges and heartache we may face from time to time raising and caring for people with Down syndrome, we >>>RISE UP & MOVE FORWARD<<< Each of the tattoos are slightly different, yet very much the same... just like us, and our kids. Our hearts are full today pouring over pics of yesterday... thinking of the great conversation, and fantastic company. We truly are blessed to be some of #theluckyfew ❤❤❤❤ Lana & Amy #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #photooftheday #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #thedsdn
Dear Cutler, HAPPY GO RED DAY! Me and Melissa are wearing our red and Im double checking her ticker for heart day! We both check out A-ok! Did you know February is Heart Month!?!? Yep... another month to celebrate one of our challenges & triumphs ❤ ALSO.... we made 102 new FB friends yesterday!!!! OH. EM. GEE!! How do we do that on IG!?! Lets take a class....... ❤❤❤❤ Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, Let's do a little Monday Morning Multiple Choice! In this picture, I'm smiling BIG because: A. Im rocking my first pair of pigtails, and OMG. 😍 B. Our Valentines Day shirts from last year still fit me.❤ C. Its Monday and you'll be here soon to play! 🤗 D. All of the above. Lovin' the Monday Vibe, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, Im in my Sunday Best (i. mean. really.) and taking my sparkly gold new wheels for a spin! Mom pretty much freaks out everytime I do this trick... and I'm all, "yeah... so? I do this... whats the big deal??" 😉 Cant wait for our playdate tonite! Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I MISS YOU. What do ya say we have a dance party at my house this weekend!?! Im picking out some sick beats... making us an Alexa playlist... pretty much ready to rock this like Poppy. Please bring your sweet moves. XOXO, DJ CVB #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I miss you!!!! I've been a little out of touch this week... sorry, Love. I just haven't been feeling so great and mom is running on fumes. You'd think with all my crazy health stuff that'd I'd get a PASS on the run-of-the-mill kids illnesses.... but alas, my ears have gone rogue and it kicked me in the shorts. BUT- I think I am on the mend... and I'm getting a shiny new set of tubes soon!! In other news... mommy scored this RIDICULOUSLY cute custom @pearlandfawn romper for me for Christmas, and Holy Unicorn Farts, Batman... its my new fave. I think we need to shop for some new matchers!!! Lets get back on track TOGETHER this week!! Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #postyourpearls
Dear Friends, We hope 2017 treated you well... and that all your wishes and dreams for 2018 come true! We kiss 2017 goodbye with love (even tho she didn't always play nice...) and have nothing but hope, anticipation and excitement for the year to come! T•H•A•N•K ♡ Y•O•U for showering us with love and support as we continue to navigate this incredible journey together! 💙💛💙💛 Lets DO this, 2018!! XOXO, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #babiesofinstagram #instababy #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors @nothingdownorg
Dear Cutler, Walking outside is a HARD NO today. That ridiculous weather man says its -27° at the lake today... yuck. SO- I decided I'd try my hand at this 'walking' thing inside this weekend. OmG. You're right... this new trick is the BOMB DIGGITY. 💛💙 Going places, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #babiesofinstagram #instababy #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed
Dear Friends, We can't even look you in the eye... its been DAYS since our last letter. Ugh... sorry to leave ya hanging! We were just so busy enjoying our families and friends and this AMAZING holiday season! We were showered with beautiful gifts, thankful for stuffed, happy tummies, and full of joy with all the sparkly, snowy fun surrounding us! Our playdate this morning was made even more special with a visit from two of our super fans! Ava & Elise... We ❤ you, and your pretty mama too! Having a Happy, Happy Holiday! Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #babiesofinstagram #instababy #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed
Dear Cutler, Im working on my letter to Santa... and instead of feeling like asking for stuff... im just feelin' {THANKFUL} today. So here's the top of my thankful list: 1. YOU. Cuz duh. 2. MELISSA. She's not just an RN... she's OUR N. And shes amazeballs. 3. @emilygilbertson gets all the heart eyes. I put in a good word with the B•I•G💚❤💚G•U•Y to be extra good to you three. Happy Friday My Love, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #babiesofinstagram #instababy #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed
BREAK ☆ THRU ☆ ALERT!!!! This may just look like a silly, kids-being-kids picture... but its a ••BIG DEAL•• for these two! If you've spent time with Cutler in person, you know that his 'bubble' is a little larger (and more important/dramatic) than most. He charms and smiles from a distance for the most part, and very few people break into the inner circle... including Clara Violet! Not sure what changed this morning... but they are all over each other today!!! Including willingly making a jungle gym out of Cutler James!! Maybe they just missed each other........ 💛💙 Happy Monday, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdown
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