#bonuschromiehomies

226 posts

Loading...
πŸ’©πŸŽ‰πŸ’©πŸŽ‰πŸ’©πŸŽ‰πŸ’©πŸŽ‰πŸ’© Dear Cutler, I'm working on the decorations and streamers for my 4-week-hospital-iversary party today. 😜 I thought these were ironically appropriate..... Please bust me outta here!!! Im about to lose my shit entirely....... XOXO, Clara Violet PS. Is there something stuck to my shoe!?!? #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
β€πŸŽ„β€πŸ“šβ€πŸŽ„β€πŸ“šβ€ Dear Friends, You better RUN (go ahead... do it... break the rules in the halls) on over to @becauseicanonline and snag one of the last few (seriously! Only 9 left!) Special Edition Holiday Packages! Today is the LAST DaY to enjoy β€’β€’$10 OFFβ€’β€’ with promo code: GiveBackGus!! {{Link to purchase in BIO @becauseicanonline }} Im on duty walkin' the halls in my Because I Can.... BELIEVE top! I mean seriously...... 😍😍😍 Remember, ALL purchases this month will send some CHEER to projectarmchair.org- one of my very favorite organizations ever! Love & Kisses, Clara Violet #givebackgus #becauseIcan #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
🌫🌀🌫🌀🌫🌀🌫 Dear Cutler, The sun is pouring in... but it still feels pretty cloudy this morning. I am back at Sanford Childrens. Things were going great at home... we got all settled in... and then yesterday morning I starting checking boxes on the "watch for these things at home" list. βœ”πŸ˜•βœ”πŸ˜Ÿβœ” After sending some pics and a call to my fave surgeon (followed by some tears from everyone in the house) Mommy, Alex and I made our way back to Fargo. I was in the OR by 830pm... and we are back to square one. Hopefully, we won't have to stay too long. We are all set up to heal at home- once its safe again. I'm still sleeping off the anesthesia and pain meds this morning... not even the bright, east-facing window could wake me today. They filled my corner suite, so please send cheer to 903. β€πŸ’š Love you, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
β€πŸ’šβ€πŸ’šβ€πŸ’šβ€ Dear Cutler, GUESS WHAT!?!?!?! Yep. This is my I'M HOME face! After a long day of hurry-up-and-wait, and training, and supply gathering... I'm finally HOME with my peeps. ❀ I think sleeping in my own bed, and healing with my fave kids will be the ticket to a happy tummy by Christmas... my #1 wish this year! Can't wait to see YOU, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #HOMESWEETHOME #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ¦„πŸ’™πŸ¦„πŸ’™πŸ¦„πŸ’™πŸ¦„ Dear Cutler, Its been a busy weekend at Sanford... so many cool things in the works! ALMOST makes up for the fact that we are closing in on 3 weeks since I've been privy to the real world. Daddy & Stella were here all weekend: that makes me and mommy all kinds of warm amd fuzzy. My great-auntie & uncle came to hang out (oh my, did we have a good giggle!) And our friends at WDAY stopped by to get a taste of our little gong show! I mean... what a full calendar! I'm still holding strong... and I really mean HOLDING STRONG... as in I'm strong-arming this holding pattern keeping me here. My tummy is just not budging towards "better." It may be time to start reevaluating my goal. In my humble opinion, HOME ANY WAY POSSIBLE seems like what we need to shoot for. For tonite, me and mommy are tucked in for a quiet evening, watching Christmas movies, playing Fruit Ninja and plotting our escape. Love you to bits, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’©πŸ’™πŸ’©πŸ’›πŸ’©πŸ’™πŸ’© Dear Cutler, In case you're wondering if I'm getting enough TLC at Sanford Hospital... I am. ❀ Mommy went to grab some lunch while I was tucked in for a snooze... and came back to find me and my girls, just hanging out... in the nurses station. I don't wanna brag, but I kinda think I'm one of their fave patients. 😍 As for an update... there isn't one. Things are still in a holding pattern. Thought maybe we took a forward baby step yesterday... but nope, this morning had different plans. SO- no plans for home just yet... I'm about to start thinking we'll need to hang some Christmas lights up in here. 😜 Kidding... sort of. Cant wait to chat today! Love you, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
β„πŸ’›β„πŸ’›β„πŸ’›β„ Dear Friends, Sneaking in a Holiday Hello... albeit at the last minute! Hope everyone had a great day! πŸ’™ We sure did! Scott's mom & sister brought a DELICIOUS turkey and all the fixins up to the hospital... we had Cully's Cabin all to ourselves and the kids all played together all afternoon. Best it could possibly have been!! Panic has officially set in now tonite. I lost my shit giving Clara a bath ... and I cant stop crying. :( There is so much to be thankful for (with all of YOU on my list) and I'm a puddle because I won't be able to blow raspberries on her impossibly ticklish tummy tomorrow... indefinitely. I have faith in her team... and such a hopeful heart that tomorrow will go seamlessly, and that we will find more answers than questions. Regardless, my mommy-❀-strings are pulled pretty tight... Soaking up all your strength & prayers, Lana #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ˜·πŸ’€πŸ˜·πŸ’€πŸ˜·πŸ’€ Dear Cutler, Bedtime Stories vs Bedtime Vitals........ thats a toss up tonight. The good news is, I nailed both of 'em. The not as good news is, Im not making so much progress... maybe kinda going backwards a little. BUT, we have a handle on it. I know you (and all our friends) have been worried about me... and I know you have all been saying lots of prayers, and sending lots of light my way... we feel it! I may not be where I was hoping to be healthwise by today, but I'm definitely WHERE I need to be! My team is comin' in hot at Sanford... and that makes everyone (especially my mom) much more at ease. We should know more tomorrow about what direction my gut is going to take me... will keep ya posted. Also, your dinosaur jammies were ON POINT yesterday! I got some new Ho-Ho-Ho jams... and mom needs to go get more... these are wrangling all my lines quite nicely, but they are my only pair!! #timetoshop Miss you MUCHO, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I am just shattered today. I am trying to do right by you... and I have no way of knowing if I'm winning or losing right now. I spent the evening surrounded by beautiful, strong, passionate advocates working together to make opportunities happen for you, and all our friends with different abilities in MN.... only to be drawn back to your care to deal with your most basic need: FOOD. I had to bail out on something awesome to deal with something completely bullshit. We have lived in gut hell for 3 years now... my entire world revolves around keeping your tummy happy. We have slept (and not slept) together for literally 100s of nights in the hospital nursing your system. We try, try again, start over, try again constantly to get it right. And now... when we've finally found something good, we aren't supported by an acclaimed institution, and the clinicians who are a part of your care are silenced by outdated, ridiculous, and frankly discriminatory policy. I stood my ground today. Faced with 2 options, neither of which are in your best interest... we went with our gut and asked for a transfer. Both your dad and I agree... this was a terrible admission. Having a sick kid is stressful... having to deal with THIS and a sick kid is heart-breaking. We are enroute to our beloved Sanford ... and we have faith they will take excellent care of you (and us.) Closer to home is always better anyway, right?? I will continue to push for you, #tinyfighter . I will not let "always have, always is, always done it that way" dictate your care. I will always go with my gut. And I promise... somehow, someday we'll figure out your sad tummy for good and make all the owies go away. Until then... curl up with me, take 1000 selfies, and watch whatever Glee videos you want. I need the snuggles just as much as you do... maybe even more. I love you to bits, Little One, Mommy #kickinghirschsprungsass #mamabear #downsyndrome #downsyndromelove #downsyndromerocks #t21 #trisomy2 #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #pintsizedpowercouple #chromiehomies #bonuschromiehomies
πŸ’©πŸ’™πŸ’©πŸ’™πŸ’©πŸ’™πŸ’© Dear Cutler, Gut rest is Bβ€’Oβ€’Rβ€’Iβ€’Nβ€’G. I mean, we are all actually thankful that it isn't exciting up here... cuz that usually means scarier things... BUT, Im about to lose my mind! I'm confined to the room since poop-problems are not something anyone else wants... So... mom now has about 2 million selfies on her camera roll. πŸ˜œπŸ€©πŸ™ƒ My tummy is resting still this afternoon... but we are going to try a bit of food soon!! Mommy is a little blue in the face talking to everyone about letting me eat what I eat at home... the docs and nurses are all advocating for me, but stupid hospital policy says I can't eat mom's blends. Huh. My neighbors can have crappy fast food, but my balanced awesome food is a hard no. What in the actual hell!?!? Moms got a can of whoop-ass in her pocket........ I kinda hope she gets to use it! πŸ˜‰ I'll be here at least thru the weekend- looking forward to some MN cousin visits, but missing my peeps (that includes you... duh!!) Cheesing it up in 6018, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ¦„πŸ’™πŸ¦„πŸ’›πŸ¦„πŸ’™πŸ¦„ Dear Cutler, Well, shit. Even though I put on my hat, no one agrees with my bye-bye wishes. We passed the point of nursing my sad tummy at home, so I'm tucked in at Children's St Paul. So far labs, tests, xrays, and lots of listening to my angry bowels point to Hirschsprungs enterocolitis... again. Gut rest, IV fluids and antibiotics it is for the next few days. Say every prayer and send every positive vibe that I'm home in time for turkey!! Feeling Crappy, Clara Violet #kickinghirschsprungsass #crappydeal #tinyfighter #claraviolet #shesaunicorn #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’›β„πŸ’™β„πŸ’›β„πŸ’™ Dear Cutler, Its all sun-shiney in my playroom this morning... and that's great news. We all need a little sunshine around here! Between the ❄SNOW❄ (its beautiful... but mom says we're not ready for winter quite yet) and my ticked off tummy, and the time change that I still cant seem to adjust to 😳 we are pretty much just staying IN this weekend. Gives me a chance to catch up on my writing. ❀ I'm fighting with my belly again... the good docs are trying to figure out the newest bump in the road, and they have me trying a low FODMAP diet. Ummmm... wth!? Think any of our friends have experience with that!?! And even more specifically a dairy/gluten free low FODMAP diet!?!? I sure hope so... mom is feeling overwhelmed, and could use some help/support!! I sure wish somebody could help me get a handle on my fussy gut for more than a few weeks at a time :( In the mean time, make a snow angel for me!! Miss you bunches! XOXO, Clara Violet #trickytummy #FODMAPdiet #preschoolpeanut #fixmybelly #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸŽ‚πŸ’œπŸŽ‚πŸ’œπŸŽ‚πŸ’œπŸŽ‚ Dear Clara Violet, Happy, Happy 3rd Birthday, #tinyfighter ! As you know, we do birthdays up BIG in our house, and today is no exception! There is always so much to celebrate when any of us turns the dial up another year... but you, Yβ€’Oβ€’U Clara Violet, make birthdays almost more than my mommy-heart can take!! πŸŽ‚ I am in AWE of your heart and overwhelmed by your beauty- inside and out. I'm drawn to your sparkle, and captivated by your charm. I am motivated by your strength, and humbled by your resilience in all things. I ache for you when you're hurting, and my whole being swells when you are happy. I promise you that I will do everything I can to make your world safe, your opportunities abundant, and your possibilities endless. You deserve nothing less. As you start this year, moving out of the "baby" stage and into the BIG kid world, I'm a little sad that my baby girl is now my {tiny} BIG girl. But I'll get over it...as I am so full of hope for your bright future and can't wait to see what this year brings our way! <3 Now... LETS PARTY!!! Love you to the moon and back... twice. Mommy #preschoolpeanut #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @thedsdn @nothingdownorg @changingthefaceofbeauty
πŸ’›πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’› Dear Trisha, Today is a bitter sweet day... with my 3rd birthday next week, I'm officially an Early Intervention GRADUATE! πŸŽ“ I have LOVED every one of our awesome visits... you have made my mommies life easier... and you truly have a heart of gold!! I think there must have been a little dust in the air today, cuz I noticed both you and mom had a little tear in your eyes at the end of our last visit this morning. You have been such an important part of my team for three years- not sure what I'm gonna do on Tuesdays and Fridays without our playdates! Me and my family can't thank you enough for lovin' me up!! πŸ’›πŸ’™ Love you to the moon and back, Clara Violet #progresseveryday #earlyinterventiongrad #tinyfighter #bestteamever #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’› Dear Friends, MUAH!!!! That's a wrap! Thanks for all the ROCKTOBER L.O.V.E. and for painting your world with awareness this month! 😘 Here's hoping you get more treats than tricks tonight as we draw our favorite month to a close! We couldn't do what we do without YOU! 😍 Sealed with a KISS, Clara & Cutler #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸŽ³πŸ’›πŸŽ³πŸ’™πŸŽ³πŸ’›πŸŽ³ Dear Cutler, Speaking of feelings getting hurt... did you know your Papa's bowling alley doesn't have size 4 toddler bowling shoes?? And did you know that my mom is a fun-hater about walking on the lanes with my yellow cons?! UGH. Soul crushing. Thankfully, there was lots of other F.U.N. going on with our B.U.D.S. friends... so my feelings recovered pretty quickly. Laying the POUT on thick, Clara #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ”΄πŸ’›πŸ”΅πŸ”΄πŸ’›πŸ”΅ Dear Friends, We LOVE our therapy dates! Not just because we get to smooch in the ball pit... but because we have an AWESOME team of peeps working with us and for us to help us CRUSH our goals. Low tone gonna slow this DYNAMIC DUO down?!?! We think not. Hitting the Gym, Clara & Cutler #ROCKTOBER #PAINTWORLDWITHAWSRENEDD #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
🍎🍏🍎🍏🍎 Dear Cutler, So... apples = delicious!! Everyone in my neighborhood has an apple tree, except me! Thank goodness they share! I'm making progress with tasting & exploring food with my mouth... one of these days I'm gonna surprise everyone and just eat a whole bowl of something. Until then, I'll just keep carefully testing whatever mommy is cooking up! Gimme All The Apples, Clara Violet #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ™„πŸ€¨πŸ˜ŠπŸ˜₯πŸ˜•πŸ˜Ÿ Dear Friends, This is kind of our favorite myth. Because it's really just so silly... we mean, seriously. How BORING would it be to be blissfully happy ALL the TIME?! We can pitch a fit with the best of 'em... and we feel sad... and sometimes we worry... but yes, we are pretty happy kids. Until we're not. Love, Clara & Cutler & Huddy and Mac, too! #thebratpack #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ€œπŸ€›πŸ’™πŸ€œπŸ€›πŸ’›πŸ€œπŸ€› Dear Clara, You're the YING to my YANG. Even though we both have that 47th chromosome, we couldn't be more different... in all the coolest, most individually awesome ways. Other than the whole "you complete me" part. That feeling is mutual. ❀ The peanut butter to your jelly, Cutler James #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #yingyangforever #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ“šπŸ–πŸ“šβœπŸ“šπŸ–ŒπŸ“š Dear Cutler, I got to spend a little time at my new PRESCHOOL the other day!! Just a couple short weeks until I start and I am SO gonna ROCK this! I mean seriously, I already have this puzzle mastered and I haven't even started yet... Wish you could come hold my hand on my FIRST DAY! #PreSchoolPrincess , Clara Violet #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I’ve heard that sometimes people will say β€œI’m sorry” to mommies that have just had a baby with DS... I don’t get it. What in the world is there to be sorry about??? I mean, just look at me back then!!! Could there be a more precious bundle of joy?!?! Just say CONGRATS!!! Baby hair on point, Tiny CJT πŸ’›πŸ’™ #babycrushing #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #dsdn @thedsdn #babycutlerjames #sayanythingbutsorry #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸš€πŸ’™πŸš€πŸ’›πŸš€πŸ’™πŸš€πŸ’›πŸš€ Dear Clara, Have you ever really thought about what the "typical" kids LOOK like?! I mean, really... this isn't rocket-science. They all look different... just like kids with Down syndrome all look different. So why should we be assessed based on how we look? Super silly. Future Rocket Scientist, Cutler James #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ•ΆπŸ‘€πŸ•ΆπŸ‘€πŸ•ΆπŸ‘€πŸ•Ά Dear Cutler, How annoying were our moms today trying to get all up in our business during our playdate!?! Ugh. *Insert Eye Roll* OVER IT, Clara Violet #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™ Dear Cutler, Bet you cant guess what my favorite thing to do in the whole wide world is lately. Ok... maybe you can. ;) Higher, Higher, Higher, Clara #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’‹β€πŸ’‹β€πŸ’‹β€πŸ’‹ Dear Friends, We had the honor of presenting an award for Children's Miracle Network Fargo at the Miss Grand Forks pageant last weekend! And we kind of LOVED the red carpet........... Pass the Chapstick, Clara & Cutler #ROCKTOBER #PAINTYOURWORLDWITHAWARENESS #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™πŸ’›πŸ’™ Dear Cutler, Oh- Em- Gee!! Do you know what tomorrow is!?!?! It's OCTOBER πŸ’™πŸ’› our fave month of the year! October is DOWN SYNDROME AWARENESS MONTH! EEEK! A whole month to educate, celebrate, DOMINATE! Let's DO this! Clara Violet #T21derful #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸπŸ‚πŸƒπŸπŸ‚πŸƒπŸπŸ‚πŸƒ Dear Cutler, Hoodies (with pockets of course,) Uggs, leggings and rosey cheeks can only mean one thing!! AUTUMN HAS ARRIVED! It's a chilly, leaf-dropping day in North Dakota and mom finally broke out the warm stuff! Not gonna lie... I kinda love sweatshirt weather! Let's rake up a pile of leaves & have a Friday party! Happy Fall Y'ALL, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
⭐⭐⭐⭐⭐⭐⭐ Dear Friends, Take it from us... when you get the chance, just hug it out. πŸ’™πŸ’› The {{big squeeze}} today is brought to you by the 10k+ peeps around the globe who shower us with support & LOVE every day! What a monumental week!!! Thanks everyone for helping us crush our goals! Tell us, what should our next BIG move be!?!? Today was SUCH an awesome therapy date! Clara handedly popped Cutler's bubble... Cutler is wearing JEANS (omg!!)... Clara mastered string beads... and seriously- what could be more fun than jumping on the tramp with your BFF?! HUGS, Clara & Cutler #progresseveryday #workplayrepeat #claraviolet #cutlerjames # #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #pintsizedpowercouple #chromiehomies #bonuschromiehomies @thedsdn @nothingdownorg #t21blessed #2018Ambassadors
🀧🀧🀧🀧🀧🀧 Dear Cutler, I have good news and bad news. See these watery eyes & runny nose?? Good news is, they are not a cold, and I can still WALK with our BUDDIES this weekend in Bismarck! The bad news is BEETS. Mom thought those {{power-packed veggies}} were such a good addition to my new diet... unfortunately, all signs point to NOPE, they're not. The ROOT of the problem?? Watery-eyes-runny-nose (out of the blue) can be explained by.... beets. Bummer, another food for the "no-no" list. But really, who eats those anyway!?!?! Love you to Beets.... er, I mean BITS, Clara Violet #puntastic #punny #sorrynotsorry #passthetissue #claraviolet #byebyebeets #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’™πŸŽΆπŸ’™πŸŽΆπŸ’™πŸŽΆπŸ’™ Dear @lysaw07 , We don't wanna work... we just wanna bang on your drum all day!! If you've ever held 4 toddlers and a 4 year old teenagers attention without so much as a glance away from the music for 30 solid, jamming, grooving, fun-filled minutes: you are probably a music therapist. 🎢 πŸ’™πŸŽΆ And ours is the bomb-dot-com. We Lβ€’Oβ€’Vβ€’E our Wiggle & Giggle class at Music Therapy in Motion and we think ALL our friends could use a little more music in their lives! Tra-La-La, Clara & Cutler, And Co. #musictherapy #shakeitbaby #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸΆπŸ’™πŸΆπŸ’›πŸΆπŸ’™πŸΆ Dear Cutler, My Monday Mash-up is: forts, dogs & jammies. Roxie and I are all cozied up in my hidey-hole, nursing a killer weekend-hangover... you know the kind where you need another day to rest cuz you just had too stinking much fun!?! There's room in here for 1 more...... just sayin. πŸ˜‰ I miss you, Clara Violet #claraviolet #puppylover #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I have one question... ARE YOU READY FOR SOME FOOTBALL?!?! 🏈 🏈 We sure are! My big bro is all about the Patriots, my mommy is a crazy Packers fan, and my daddy just likes to watch football period. Also, we will have lots of snacks (my fav). C’mon over!!! Future quarterback, Cutler James #4 (total Favre referenceπŸ˜‰) ❀️❀️#football #nfl #futurehalloffamer #areyoureadyforsomefootball @nfl @nflnetwork #cutlerjames #claraviolet #beautifulsouls #pintsizeheroes #dsdn #ndss #nothingdownambassadors2018 #trisomy21 #t21 #bonuschromiehomies #theluckyfew #bekind #toddlersofinstagram #toddlerfashion #picoftheday #bffs #bestfriendgoals #toddlerlife #awesomeness #changetheworld #morealikethandifferent #πŸ’™πŸ’›
🍎🌽🍐πŸ₯•πŸ₯‘πŸ‡πŸŒπŸ… Dear Cutler, HAPPY FRI-YAY!! I have a SUPER good Friday update for you! This is my WOO-HOO face (and check out that cute belly making its debut πŸ˜‰) I have had {{the best}} week!! Mom & me have been working on my diet the last few weeks. You know how my tummy doesn't play nice most of the time!? Well... turns out, it just didn't like the food I was eating. SO- we ordered up a super-fancy blender and started making our own! (And by we, of course I mean SHE... dang, she's a good cook!) And this week my doc team gave us two enthusiastic thumbs up for all the great progress!! My tummy (and the rest of me!) couldn't be happier! Like seriously... a total 180 from a month ago! That means I have more energy and motivation to do just about EVERYTHING! Mom says this must be the UPSWING we've been praying for! πŸ’™πŸ’› HAPPY happy HAPPY, Clara Violet #blendeddiet #happytummy #realfood #eatwelllivewell #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸŽΆπŸ’œπŸŽΆπŸ’œπŸŽΆ Dear Cutler, Did your mom tell you that we are signed up for MUSIC CLASS at Music Therapy in Motion !?! Ahhhh- I can't wait!! Im getting geared up... so today's entertainment is brought to you by Olaf & Elsa... and well, me. I mean, I sound amazing solo... but we really should work on a duet. Can you imagine how awesome that would be!?! Tim & Faith, Sonny & Cher, Johnny & June... CLARA & CUTLER... I can see it now. Warming up the pipes, Clara Violet #lovecarters #musictherapy #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸŽΆπŸ§šβ€β™€οΈπŸŽΆπŸ§šβ€β™€οΈπŸŽΆπŸ§šβ€β™€οΈπŸŽΆ Dear Cutler, I've got TWO words for you: {{DANCE β€’ CLASS}}!! OH. em. GEE!! I had the best time ever at my very first dance class today! Did you know that ballet shoes are impossible to find in a 3 toddler? And 2T leotards are just as sparse?? BUT..... you know my mommy. Could my outfit be any cuter?? And that bun......... 😍 In addition to my on-point wardrobe, I LOVED EVERY MINUTE of class! I followed directions and did all the moves (in hindsight... maybe not my smartest decision right out of the chute... the jig is pretty much up trying to wiggle my way out of following instructions.) And craziest thing- when the music is groovin' my feet and legs are super strong! Something in the beat had me UP walking... like the whole time!! Only thing that could have made it better was YOU! Saving a spot on my dance card for CJT, Clara Violet @dance_etc_nd #tinydancer #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
🚫🚫🚫🚫🚫🚫🚫 Dear Mr. @seguratom So we see you’ve gotten yourself a new show on @cbstv ... about parenting no less. Huh. Interesting. We can guarantee you that we will NOT be watching. We're sure that means nothing to you as we are just one super awesome, 2-year-old, #pintsizedpowercouple . However, we can also guarantee you that our family will NOT be watching either... and we, sir, have a HUGE family. You see, we are a part of the DOWN SYNDROME community and that is one BIG incredible family. You have made jokes about us in your β€œcomedy” act. You have used the R-word to hurt and make fun of people we love and then attacked the people who called you out on it. You have defended and laughed about the use of this word and your fans have left hateful comments all over our friends’ social media pages. Now we hear that you have apologized and met with people from the DS community to hear what they have to say... sounds like damage control to us. Sounds like someone thinks he better fix his image before his cruddy TV show comes out. Ugh. Well, Mr. Segura, let’s just see what happens shall we?! Maybe your show will be so bad it doesn’t even need our family to boycott it... but boycott it we shall. We are loud, we are many, and we will make a difference. #acceptance #awareness #awesomeness #NOTWATCHINGTOM Be a better person and parent, Tom. Respectfully, Clara & Cutler Friends & Family... we are hitting the streets in our campaign wagon to make sure CBS hears us LOUD & CLEAR. {{We need your help!}} Please like, REPOST, and comment (over, and over, and over) to help our message spread like wildfire! πŸ’™C&CπŸ’› #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors ,
Dear Cutler, BIG FIRST TODAY!! Stella & me went to the DENTIST this morning!! She has been SO excited to visit the dentist... me: not so much. You know I dont really love people messin' with my mouth. But guess what?!? I DID AWESOME! I let them brush my teeth, count my teeth, and even put some goop on 'em! I hated all of it... but it was a win in the end & all looks great! Stella & I both got to drop our names in the NO CAVITY bowl! Flashin' my Pearly Whites, Clara Violet PS. Moms said hold up your signs.. not sure why she was giggling when we did. 😜 #brushabrushabrusha #nocavityclub @dakotapdgf #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’ͺπŸ’™πŸ’›πŸ’ͺπŸ’™πŸ’›πŸ’ͺ Dear Cutler, And stretch and 1, and 2 and 3... AND REACH and 1 and 2 and 3..... πŸ’ͺ Therapy was a killer workout today... I had tough decisions to make with picture schedules (I mean really.... how am I 'sposed to pick between swinging and biking!?!) AND I finally got to try the spider cage!! I may just take the longest nap ever!!! The cutie in the mirror rocking her {{stretchy, comfy, ballerina πŸ§œβ€β™€οΈ mermaid DotDotSmile Codie T. }} dress has some awesome moves!!!! Thanks for the high five and kisses!! πŸ˜‰ Love you to bits, Clara Violet #progresseveryday #workplay #claraviolet @dotdotsmile_codiet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Baby shark do do do do do do.... That. Is. My. Jam. 🎢 Seriously, I love that song. I’ve got all the actions and words down perfectly (although the actions are a little tough while holding my shaker toy). My mom and dad think the best part is my β€œGramma Shark face”. Check it out!! Let’s do a duet soon, Cutler James ❀️❀️#musicman #dance #ilovemusic #babyshark #thatsmyjam #cutlerjames #claraviolet #pintsizepowercouple #bffs #bonuschromiehomies #downsyndrome #t21blessed #nothingdownambassadors2018 #dsdn #morealikethandifferrent #theluckyfew #toddlersofinstagram #toddlertime #letsdance #bekind #claraandcutler ❀️
πŸ›ΆπŸ¦†πŸ›ΆπŸ¦†πŸ›ΆπŸ¦†πŸ›Ά Dear Cutler, Happy SaturYAY!! I'm doing some bird watching today and checking on our ducklings... I know you've been wondering how they are all doing. They are still cute, but growing like crazy and are excellent {hilarious} swimmers. Sounds a little like US, am I right!?! I'm soaking up the last few days of summer before school starts... and holy moly... it's beautiful on Tulaby Lake right now! My family has had a busy couple of weeks, and we all needed a little reprieve this weekend. Hope you and your pretty mommy are resting up a bit this weekend too......... Love you to bits, Clara Violet Styled by @Gracie_lian ❀ at @gapkids #lakelife #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
β˜€οΈπŸƒβ˜€οΈπŸƒβ˜€οΈπŸƒβ˜€οΈ Dear Cutler, #weekendvibes got me like... Hope you're enjoying this HOT weather! I'm keepin' cool in the shade at the lake... swinging to my hearts content... not a care in the world. Only thing better, would be a little more YOU. Love you to bits, Clara Violet #lakelife #tulabyprincess #claraviolet #dsdn #nothingdownorg #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
βœπŸ–βœπŸ–βœπŸ– Dear Cutler, Can you see the {serious} on my face!?! Let's have a serious talk about writing. And more specifically, writing Gβ€’Oβ€’Aβ€’Lβ€’S. My parents and my team have been doing a lot of that lately... as I get closer and closer to THREE, we are prepping for preschool (eeek!!!) and I'm making so much progress every week that my therapy team can barely keep up!! Seriously. We are working on writing my learning goals for school, and development goals, and social goals. We are using lots of big words like 'appropriate' (which I'm pretty sure translates to BORING) and 'independent' (turns out that isnt just me being me, ugh) and 'articulation'. I guess it's never too early to get after it, RIGHT!?! My mom actually shed a little tear last week reading my new PT goals. "Clara will ambulate independently as her primary source of mobility." SERIOUSLY. 2 months ago, that really wasn't even on the radar. And now that it's in ink... I'm about to crush it. Good luck, PT LIZ. Your goals are no match for me!!!! πŸ€œπŸ€› Now.... if we could just do something about that pencil grip........... Kicking Ass, Taking Names, Clara Violet #iep #individualeducationplan #embracethegoals #crushallthegoals #preschoolprincess #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Guess who I saw today!?!? Me and Oliver had the best time at the Thief River Falls Riverfest party today :) Stella did a cool dance camp thing, which gave me lots of time to wheel around town with my friends (old ones, and LOTS of new ones!) You should see me cruisin' around in my chair lately... Dad just about has a heart attack when I take off... I've got it DOWN! It's still my favorite when a friend gives me a little push though...... Happy Saturday!! Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
πŸ’«πŸ’™πŸ’« Dear Cutler, You are a really great hider... unfortunately for you, I'm an even better seeker! 😘 Better luck next time! Bubble or Not, Here I Come, πŸ’œClara VioletπŸ’œ #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Moms, When we are moving between therapy appointments, and stop for knucks on the way... please don't embarass us in front of our friends with all that {{OMG... how cute are you two in your matching puppy pants!?}} nonsense. Jeesh. We know... real cute. πŸ™„ Places to be, Goals to crush, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #claraviolet #cutlerjames #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors @redsattic
Dear Cutler, Happy Tuesday!! I'm rocking my yellow Cons and πŸ‹lemonsπŸ‹ while spreading sunshine all over Daisy Circle... and I just couldnt be happier about it. I'm feelin' G R E A T this week and cant wait to see Y O U tomorrow!! I giggled at your awesome jumping and smooching skills--- think PTLiz will let me try!?!?! Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors #lovecarters @converse @carters
Dear Cutler, My morning workout was {{AWESOME}} today!! I killed it on the swing... jumped like a jumping bean on my sunny tramp... and walked the track (from kitchen to playroom) a πŸ’― times like a champ. All in my favorite unicorn Jβ€’Aβ€’Mβ€’Mβ€’Iβ€’Eβ€’S with bed head. 🀩 My tummy hasnt been playing nice the last couple weeks. So when I woke up to sunshine and a burst of energy, mom said "LETS DO THIS!!" Needless to say... it was an early nap day. Cant wait to see ya tomorrow, Handsome! Your sunshine, Clara Violet #progresseveryday #claraviolet #tinyfighter #dontdismyability #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Let's talk progress for a minute. It's no secret... I just haven't been feeling the greatest the last couple months. HOWEVER: I am making progress LIKEβ€’Aβ€’BOSS! {{Case & Point}} I am officially a WALKER!! Mom is calling it.. I can get up on my own in the middle of the room... I take my time... I dont just totally dive at the end and I'm SO proud!!! Also... I'm saying and signing new things every day. Like- every day. Mommy just cant handle it. She's all over me with kisses and clapping and whooping!! So this super-human resilience is working really well in my favor πŸ˜‰ See ya soon My Love, Clara Violet #lovecarters #tinybraidsOMG #nursestylist #tinyfighter #progresseveryday #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Thank for coming to my lake yesterday!!! And for singing the Tiny Turtle Song. And for bringing your pretty mommy. And the the pool party (even tho that wasn't so much your favorite part.) Theres just nothing better than sharing a sunshiney day by the water with your BFF. Love you to bits, Clara Violet #lakelife #tulabylake #turtlesong #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, I hope you had a safe and happy 4th of July!!! I sure did. My whole family went out to our friends’ place and had yummy food and lots of fun! I got to play some basketball with the big kids (I. Was. Awesome.) and watched them shoot off some fireworks. Those suckers are LOUD. I wasn’t super impressed with the firecrackers and bottle rockets (they don’t do much and again... they are LOUD), but the smoke bombs we kinda interesting in nice, QUIET, colorful way. Apparently when it gets darker the BIG BOOMERS come out and my brother says they are β€œda BEST” maybe I will check those out next year. Also, my mom tried to slow me down for a hug and a pic... moms are so clingy!! Am I right?!? Can’t wait to hear about your 4th!! Missing your face, Cutler James ❀️❀️#fourthofjuly #fireworks #redwhiteandblue #somuchfun #holiday #celebrate #cutlerjames #beautifulsoul #claraviolet #tinyfighter #bffs #pintsizepowercouple #morealikethandifferent #theluckyfew #downsyndromeawareness #t21blessed #nothingdownambassadors2018 #ndss #dsdn #bonuschromiehomies #smilesformiles #notimeforhugs #bekindalways #changetheworld #toddlerfashion #toddlerlife #toddlersofinstagram #betterwithyou #love
Dear @dotdotsmile_codiet , You win some... and you lose some. 🀣 Don't be fooled! These lake-lovin' #brandreps are ready for July 4th, and they LOVE their new matchy-matchy {{americana}} tank dresses!! They also may have been a little irritated with me for interrupting the twirly dance party for a picture. πŸ‘—β€πŸ‘— USA ❀ USA πŸ’™ USA, Clara (& Stella) #dotdotsmile #dotdotsmilebrandrep #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, I saw a little bit of our future today... I can just imagine us in 60 years: hopefully we can retire by then and spend our days chatting it up on the porch. I bet we'll still love to watch the neighbors dogs, and we'll invite all the kids to come play. I'll enjoy gardening, and and you'll still love to snack on Goldfish Crackers. It will be glorious, and I'll still be head-over-heels for my best friend. πŸ’™πŸ’› I love you, Clara Violet #oldsouls #foreverlove #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, You are cordially invited to join me at Tulaby... like ASAP. Please come play in the SUN (with 50 spf of course) in the WATER (with a floatie, duh) and by the CAMPFIRE (from a safe distance.) PS. Gramma Ginny built us a GINORMOUS new swingset. 🀩 I have {{THE CUTEST}} new @janieandjack swimsuit & shades and I'm saving you a seat on the deck. Do you think they make UMBRELLA DRINK sippy cups!? Channeling my inner Audrey Hepburn, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear @albrechtclare96 , You and your Country Inn & Suites hotels Rβ€’Oβ€’Cβ€’K!!! Thank you for hooking me up with a comfy place to rest between appointments this week!!! We LOVED your big snuggly beds!! Actually..... I thought it was HILARIOUS when my mom let me hog the covers! 😴 But really... top notch digs, my friend! You guys are some of those "Man, there are really great people in the world" kind of people!! ❀ Hugs & Kisses❀, Clara Violet @countryinn #kindnesswins #thankfulgratefulblessed #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Cutler, Your mom was right about the cute guys in baseball pants!! 😍 You gotta get a pair..... Im losing my mind over my first BIG LEAGUE GAME!! We have VIP seats... its a BEAUTIFUL night in St Paul and we all have smiles for miles! #GOTWINS Wish you were here, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, Remember when I saw you today at therapy and I chased you (slowly and carefully) up the stairs in PT?!?! Good times. Here’s a little secret... When I caught up to you at the top, I thought about maybe giving you a little smooch but my bubble got the best of me (that bubble is, however, getting smaller and smaller) so I just clapped and smiled and made silly faces!!! Also, I got to play in the beans today. That. Is. Fun. The best part is throwing them all over the floor when it’s time to get out!! I do not recommend putting them in your mouth as they are NOT at all tasty. I love our therapy dates, throwing beans, and most of all... YOU!!! Cutler James ❀️❀️#downsyndromeawareness #t21blessed #t21 #nothingdownabouthim #nothingdownabouther #nothingdownambassadors2018 #ndss #globaldownsyndromefoundation #bonuschromiehomies #theluckyfew #beautifulsoul #tinyfighter #pintsizepowercouple #cartersbaby #bestfriendgoals #toddlersofinstagram #toddlerlife #picoftheday #bekind #awareness #acceptance #awesomeness #changingtheworld
Dear Clara, I got sunshine. I got jammies. I got early morning deck time with mommy. All that’s missing is YOU. 😘 Come over soon... please and thank you. Smiles for miles, Cutler James ❀️❀️ #downsyndrome #cutlerjames #beautifulsoul #claraviolet #tinyfighter #pintsizeheroes #bffs #bffgoals #t21journey #t21journey #theluckyfew #nothingdownambassadors2018 #advocate #bekind #carters #cartersbaby #jammies #summer #smilesformiles #bornthisway #chromiehomie #bonuschromiehomies
next page →