#cerebralpalsywarrior

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Ini adalah jalan2 Mas Eza paling jauh yg prnh d lakuin ..2hari sblm brgkt galau mau ikut atau engga bolak balik mastiin kalo mas Eza kondisinya fit ,karena saya mau mas Eza dlm kondisi oke utk d ajak jalan walau cuman muter2 naek mtor . Anak "ajaib" ini bs d kategorikan gampang sakit dan ketularan , jd kalo ada 1 orang d rmh yg kena batuk/ flu psti dia kena juga .. Pas hari H, saya niatnya mau buat dia tidur d jalan karena lumayan lama sekitar 4jam d jalan. Eng..ing..eng . Dia seger dong., d bis dia ketawa2, dia g bs diem pkoknya He's so happy lah 😁😁 . Sampe akhirnya sampe dan nginep disana dr abs magrib Mas Eza tidurnya pules . Alhamdullilah . Pdahal biasanya dia suka banget begadang😴😴.. Bsoknya saya dan Abinya bawa dia ke pantai buat nemenin mba Enji maen pasir. Awalnya dia cuman d gendong kaya d foto ini , dan dia seneng banget liat banyak orang,banyak suara,banyak anak2 kecil lari2 (Alhamdullilah respon Mas eza itu kategori baik utk hal disekelilingnya , dia ga suka sendirian , dia suka rame walau cuman suara tv😊😊) . Nah saya mulai ragu utk nurunin Mas eza k pantai karena emg cuaca panas bgt, tp stlah d yakini sm Abinya kalo Mas Eza bakal baik2 aja akhirnya nurut lah . (saya tipe ibu yg panikanπŸ˜‘πŸ˜‘) . Saya tau main pasir itu salah satu terapi sensory buat tangan dan kaki dia , cuman yaa karna blm pernh saya ragu 😁😁.. D gendong sama Abinya ,kaki dan tangannya d taro d pasir , dia awlanya kaget ,muka merah , badan kaku , muka panik tapi lagi2 bersyukur ga lama kemudian dia enjoy ,trmasuk main air d kakinya .. Good job boy!! Walau cuman sktr 10 menit main pasir dan airnya ,tp lumayan lah buat perkenalan ke dia .. So , we have a plan buat ajak Mas Eza eksplor alam lagi, doain sehat yaa buat Mas Eza , semoga nanti kalo d ajak eksplor alam lg dia seneng dan sehat terus .. Makin bisa cinta alam dan bersyukur atas semua ciptaan Allah .. Semangaat -- selamat hari mingguπŸ’ͺπŸ’ͺ #berbagiceritaanakcp #cerebralpalsy #cerebralpalsywarrior #specialneedchild
There were so many amazing things at the new exhibit that opened today, Human Plus. Ines was captured by the engineering and advanced technology for custom wheelchairs for the beach, for creating music, for dancing, playing rugby. Her favorite by far was the adaptive mono-skiing. My bones are used to Florida heat, but I may have to get her to snow again! #orlandosciencecenter #accessforall #cerebralpalsy #cerebralpalsywarrior #capturethemoment
E had her first Sportball class today. We wanted her to try something different and one of her PTs recommended it. She had so much fun and the coaches were awesome! Each week they will focus on a different sport that involves a ball. Today she kicked and threw balls, chased hulahoops and played games. E really enjoyed it and though she can't "run" yet, she definitely has gotten faster and I even saw a few times where both feet were off the ground as she hurried around. So proud of her and her enthusiasm! #cpwarrior #cerebralpalsy #cerebralpalsywarrior #sdr #sdrchangeslives #sdrawareness #trynewthings #sportball
Lunch time! Shai has a floppy airway that causes aspiration and choking so only eats pureed food and it has to be thickened to honey consistency. He's eating 2nd stage Gerber chicken noodle dinner #cerebralpalsy #cerebralpalsyawareness #cerebralpalsywarrior #melanin #king #naturalhair #babymodel #gerber #target #walmart #learningtostand #learningtowalk #learningtotalk #coolguy #naturalhairkids #kidswithdisabilities #alabama #manbun #celebrities #disney
This mornings motivation comes to you through my beautiful daughter who faced her fears and overcame them last night. I’m so proud of her!πŸ˜πŸ™ŒπŸ» Due to her autism, she has always HATED parades. They are just too loud and overwhelming. We haven’t even been to one in ten years due to her having a meltdown. So this week she had a dilemma. The Best Buddy Club that she belongs to had a float in the homecoming parade and wanted her to ride on it. It would have been easier to stay home where she’s safe and comfortable, but as the week continued and we daily told her she could do it, I saw some courage rise within her. Last night she did it! πŸ‘ŠπŸ»πŸ‘πŸ» She was so scared but she got up on that float and did it afraid! And she had fun! πŸ˜€ This may seem like nothing to you, but in our house this was huge! πŸ™ŒπŸ» It showed her she could do it. She could step out of her comfort zone and accomplish something she was scared of. What are you scared to do? Let Aliyah be your motivation to step out and do it afraid! ❀️ #ourautism #autismacceptance #cerebralpalsywarrior #bestbuddies #wearespartans
😊 SMILE 😊 Hooray for the holidays 🌈 Hope this smile brightens your day as it does mine every day. Love you @benjaminsbuddies . . . . . . . #perthmum #perthlife #boymum #smilesformiles #cpmum #cpsuperstar #cerebralpalsy #cerebralpalsykids #cpkids #cerebralpalsywarrior #cerebralpalsylife #cerebralpalsyawareness #cp #differentabilities #cerebralpalsymum #cpfun #cpmumma
She's Feelin cool for getting a new baby at Walmart πŸ˜† #cerebralpalsywarrior #cpmom #cpkids #princessonwheels #cerebralpalsy
Happy Friday!!!! Sasha loves riding the bus as the bus driver says she always laughing and telling a joke. Just love her so much ❀️❀️ #specialneeds #specialneedsmom #cerebralpalsy #cerebralpalsywarrior #cmvawareness #wheelchairgirl #alwayslaughing #supersasha #happyfriday #sensorykid
I was born on July 5 at 31wks because my mom had a placenta abruption, I had to spend 51wks in the NICU, in November of 2018 I was diagnosed with CP, it hasnt been easy but with the help of my therapist, my mom and the Lord I have come a long way. Im a CP warrior!! #cerebralpalsy #cerebralpalsyawareness #cerebralpalsywarrior #melanin #king #naturalhair #babymodel #gerber #target #walmart #learningtostand #learningtowalk #learningtotalk #coolguy #naturalhairkids #kidswithdisabilities #alabama #manbun #celebrities #disney
Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest complement, Or the smallest act of caring, all of which have the potential to turn a life around. ~Leo Buscaglia . . . At bedtime Ellie has gotten into the habit of asking us for massages. As soon as she senses our touch, her whole body relaxes and her eyes close. she is the picture of bliss. πŸ’†πŸΌβ€β™€οΈ In the past we have taken her in to have a professional massage and she laid quietly the whole time, which if you know Ellie, is not typical. She is very skittish around new people and new situations. I am so grateful That she finds relief in this way. Massage at home we can do! πŸ™ŒπŸ» . . . #massagetherapy #spasticity #hometherapy #papasgirl #cerebralpalsy #cerebralpalsywarrior
Play centre therapy... Massive achievement, Amelia’s been to this play center before but only really ventured into the under 3s section. Normally I carry her into the older bit as she finds it really tricky. Not this time, she mastered the steps from top to bottom and look how open her hand is 😍! Love sneaking in extra therapy with Amelia that to her is just fun and playing. I can see lots more play center trips coming! #abilitynotdisability #pediatricstroke #pediatricstrokesurvivor #hemiplegia #lefthemiplegia #cerebralpalsy #disability #icandoit #iamable #lefthemi #therapy #specialneeds #cerebralpalsywarrior #nevergiveup
Y hoy fue nuestro ultimo dΓ­a de terapias intensivas en Alemania, le damos inmensas gracias a esta grandiosa Mujer que nos ha cambiado la vida, ella ha compartido su don con nosotras y ahora debemos trabajar fuertemente en casa con todo lo aprendido, tendremos dΓ­as exhaustivos e intensos, pero todo es para mi bien! #guerrera #paralisiscerebral #microcephalyawarenessday #guerreradedios #cerebralpalsy #crebralpalsyawareness #cerebralpalsywarrior
AquΓ­ entrenando!! Hoy estoy lentΓ­simo 😬. Pero voy a mi!! πŸ’ͺπŸΌπŸ‡΅πŸ‡· #goals #riftonpacer #rifton #TeamSebastian #cerebralpalsywarrior #cerebralpalsy #keepwalking #SebastianMyEndlessRace #instagram
One of my missions in life is to build a bridge between the disabled and the abled body community. I do this through my podcasts and through global outreach on social media. Learn more about me and my books by clicking the link in my bio. #NewYorkTimes #IGBooks #KindleBooks #CP #cerebralpalsywarrior
Such a model! You all should check out our little online business - @aruma_apparel - featuring the shirts Jinara is wearing πŸ˜‰ can’t tell me they’re not adorable?! 😜❀️
Today Jada had her appointment at the Cerebral Palsy Clinic. Jada's medical equipment has been on hold due to an insurance problem. After lots of advocating, countless phone calls and two visits to court, her insurance issue will be resolved in October. It will be a such a relief for Jada to finally get her new wheelchair. She will be getting her first bath chair which will make bathing safer for her (and help my back too!). She is outgrowing her ankle braces. Her new ankle braces will be more supportive and go up to her knee (like her braces did when she was younger). For as much as Jada eats (she will eat second helpings AND her twin sister's leftovers πŸ˜€), her metabolism is so fast and it is hard for her to gain weight. I am happy that Jada gained a few pounds and has finally reached the 50lbs mark! ✨ #JadasJourney #CerebralPalsyWarrior #PediatricStrokeWarrior #Inchstones #cpwarrior #ataxiccerebralpalsy #ataxiaawareness #hypotonia #wheelchairlife #strokewarrior
His new word is β€œPLEASE”! I know it’s not perfect but he gets the concept and can get it out to where we understand it and that’s all that matters! So proud of my boys and all their progress they have made since starting school last January. πŸ’™ #cerebralpalsywarrior #epilepsywarrior #PACCwarrior #speech #myrockstar
@berrypickens thanks for the adorable tshirt! We love it!πŸ’šπŸ’š #heartbreakertoecrusher #cerebralpalsywarrior #cpmom #cpkids
It’s official I’m officially a journalist for disabled writers i’m so excited to see what this journey brings me #cerebralpalsyawareness #cerebralpalsywarrior #cerebalpalsy #cerebalpalsyawareness #writerscommunity #writersofinstagram
I knew I done messed up I got in the car and moo moo looking like take me with you mommy ugh this hurts my heart cause she really wanted to come in the car with me and drive she loves being in moving cars #disabledandcute #blackgirlsrock #melaninpoppin #cerebralpalsy #cerebralpalsyawareness #cerebralpalsyprincess #teammoomoo #cerebralpalsywarrior #school #schoolbus #differentlyabled
#5DollarsForSalvador Any amount is welcome I am SALVADOR. I had a FAIR AFFILIATION WHEN I WAS BORN and I spent 27 days in an incubator in the neonatal intensive care unit... my BRAIN was affected and I was paralyzed from fright... Now I have a possibility for my neurons, it is called NEUROGENESIS in the USA, North Carolina With your help I will be able to achieve it. SALVADORΒ΄S HEROES www.gofundme.com/heroes-de-salvador @cerebralpalsyshredder @shopatlantiswatches @anxietysupport.info @sanelly.quinterotv @intersectionallyactivism @yourcpf @maysoonzayid @yourcpf @nationwidekids @k.shantel_spot @jerronmarcel @fifiandmo @sophiabush @missbrittany1986 @christinaasmallwood @robertdowneyjr @lelepons @gofundme
πŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’šπŸ’š All Ben has ever wanted is a pain free life. He needs vital treatment every week & it's no longer funded on the NHS!! Ben's treatment coats Β£1800 every single month. @idcwristbands kindly donated awareness wristbands for Ben to sell & raise funds towards his treatment. #cerebralpalsy #cerebralpalsywarrior #cerebralpalsysucks #cerebralpalsyboy #charity #fundraising #VitalTreatment #brave #lifewithpain #,helpbenwalk gofundme.com/benbaddeley
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Working hard on sit to stand with his fav Ms. Morgan. Two days a week he now has physical therapy and boy are we excited to see what this extra workout is going to do for him! #mylittlecpwarrior #cerebralpalsy #cerebralpalsywarrior #cerebralpalsyawareness #masonparkerlustig #cfldreamplex #dreamplex #physicaltherapy #therapyeverydayexceptfriday
Ini rutinitas kita ber2 ya mas .. Seminggu 3x utk sekolah,dgn 5 sesi terapi . Dan Mas Eza ini pinter yaa kalo dblg mau sekolah dari malem dia bakal begadang dan tidur d semua sesi latiannya , tp ini kalo dr mlm d blg bsok mau jalan2 pake gojek dia bakal tidur nyenyak dan bangun pagi. Akhirnya emaknya hrs siasatin mas eza dan blg kita mau jlan2 ..(ga boong kan mas , emg jalan2 naek gojekπŸ˜‚πŸ˜‚) Dan ini uda hampir 2bulan pake gendongan ergo baby hipseat. Sedikit cerita tentang gendongan ini, Eza adalah anak CP dgn tipe spastik quadriplegia yg artinya ototnya kaku d bagian kedua tangan dan kedua tungkai kakinya. Yg kalo dia seneng,sakit,gasuka apapun emosi yg dia rasa bakal kaku badannya , dan itu berasa kaya gendong papan πŸ˜•πŸ˜•. Awalnya msh suka d gendong pake gendongan samping , tp lama kelamaan karena makin gede makin berat dan yg psti makin panjang πŸ˜…πŸ˜…, makin ngeri klo d bawa naek gojek karena pasti kaki panjangnya kmana2 . Akhirnya stlah konsul ke terapinya, emaknya mutusin untk pake gendongan model kangguru ini , Prtama kali pake d blg sulit bgt juga enggga , dblg gampang bgt juga engga ,karena saat mulai d gendong kaki nya g bs d kangkangin, kaku bgt.. Kepala dongak k atas terus , d tmbh kalo naek mtor otomatis makin lebar kakinya jdnya makin kaku dehπŸ˜‘πŸ˜‘. Tp kita g nyerah y mas . Kita ttp pake gendongan ini smpe skrg , dan skrg uda terbiasa dengan gendongan ini , ga susah lg klo d sruh ngangkang kakinya , g kaku lg klo d ajak naek mtor.malah skrg pinter klo uda liat emaknya pake gendongan dia seneng karena tau mau jalan . Faedah nya dr sharing kali ini adalah , kita jangan nyerah πŸ’ͺπŸ’ͺ apapun kondisi anak , dan yg psti jangan kalah akal .kita hrs lebih pinter 😁😁😁 #cerebralpalsywarrior #cerebralpalsy #berbagiceritaanakcp #semangatutkeza #specialneedchild
Taking a breather from everyday obstacles and enjoying the day with these boys and my mama😍 #specialneedsmom #takeabreather #enjoylife #momlife #momofboys #huberwinery #feedthefish #smiles #cerebralpalsywarrior #specialneedsparenting
I love him exactly as he is. And I hate that I can't talk with him about all the changes happening in his world right now. One feeling does not negate the other. #nonverbal #specialneedsparenting
Well, today is the day! Today it has been ONE YEAR since we brought this little turkey home. One year since our wildest dreams came true.. we brought our baby boy home to live with us. And we had no idea all of the joy, adventures, and excruciating heartache the year would bring. From learning how to cook up TPN and hook up your IV every night (turning your nursery into a science lab), to poking you with blood thinner needles to NOT poking you anymore, to blending up every random food under the sun to get you to stop throwing up, to celebrating Christmas as a family, to getting multiple diagnoses that taught us more about who you are and what you need, to watching you learn how to roll and laugh, to very recently saying β€œsee you later” to your most amazing PopPop. . Although we couldn’t have expected what this year would hold, we are so thankful to have had you at home with us. . We are learning more about love every day, and to celebrate all the little moments we get with you. We love you, Brody bear πŸ’™ . Pc: @phocusphoto . #cerebralpalsywarrior #shortgutsowhat #tubie #cvi #ex25weeker #micropreemie
Was such a good girl today - did a lot! Did some painting at playgroup and played with all the other kids, did lots of walking up and down the driveway, went for a cruise in her car and also her little wizzibug. Look at her go! She’s so clever! 😍 Now she’s off to Sydney with her parents for a check up, I’m sure they’ll be amazed with her. ❀️
Look at this poster I found at my therapy unit 🀩🀩 #cerebralpalsywarrior #inspired
Spine is aching, granny yells at me for not stepping properly. Hardly hold tears, I hate feeling so weak. But I am becoming stronger than I used to be. #cplife #cpdoesnotstopme #cp #cpwarrior #cerebralpalsypostive #cerebralpalsy #cerebralpalsylife #cerebralpalsywarrior
G I V E A W A Y !!!!!!!!! October is coming soon and there is so much awareness to be spread! πŸ™ŒπŸ½ We have several tees for October awareness and we are giving one away to one lucky winner! How to Enter: βž•LIKE this picture βž•FOLLOW @littlest_warrior βž•TAG a friend! Unlimited tags are allowed for additional entries BUT only one tag per comment/no repeats This giveaway ends Wednesday, September 19th at 10pm PST and a winner will be announced within 48 hrs in the comment section of this post.
Can you believe that September is already half way over?!? This month we are donating 10% of all sales to @sch_india - go check them out ❀️#littlestwarriordonates #cpwarrior
We found these socks at the Dollar Store and Emerson thought they were awesome β€œPink Superhero!” They just fit in her #afos but we made them work. πŸ˜ƒπŸ˜ . . #anklefootorthosis #cerebralpalsy #ataxia #spasticdiplegia #cerebralpalsyawareness #cerebralpalsykids #cerebralpalsywarrior #specialneeds #specialneedskids #superhero #epilepsy #epilepsyawareness #preemiepower #micropreemie #raredisease #reebokshoes #reebok @reebokcanada @reebok
🚢🏻physiotherapy 🚢🏻 today’s efforts on the litegait treadmill! Working on walking! πŸ’ͺπŸΌπŸ‘πŸΌ Taj has been using the litegait treadmill for just over 2 years, on and off. It’s one of the hardest tasks so consecutive steps like these are a huge win!! Good effort at physio today Taj, hopefully a kickstart to a week of successful appointments! #litegait #litegaittherapy #gaitanalysis #walking #learningtowalk #walk #therapy #rehabilitation #rehab #physio #physiotherapist #physiotherapy #paediatricphysiotherapy #paediatricphysio #paediatricrehabilitation #cerebralpalsy #cerebralpalsyawareness #cerebralpalsykids #cerebralpalsymom #cerebralpalsywarrior #cerebralpalsystrong #cp #tbi #hypoxia #dystonia
Casually defying odds #cerebralpalsywarrior
Green beans and bacon - A television series inspired me to prepare this delicious recipe πŸ˜‹ Go check it out on my blog! #bacon #greenbeans #easysidedish #cerebralpalsywarrior #lessthanfiveingredients #sharingtheloveofjesusthroughcooking #theraputic #occupationaltherapy
My little muffin @samfvella #cerebralpalsywarrior #toocute #baby #boy #myboy πŸ™ŒπŸ½β€οΈ
Been doing this for 21 years with no nursing just me, at times I get tired but god gives me strength. We went from going to the hospital every other month when she was younger. To not being in the hospital for 6 years !!! I took her out of school because she was getting sick from the other kids due to her low immune system and since I've done that no hospitalizations. I have a true fighter, love her to pieces ! Good morning everyone, we waiting on football. Well I am lol I'm sure she will go to sleep. #cerebralpalsy #cerebralpalsywarrior . #cerebralpalsyawareness #scoliosis8
Don’t really like photos of myself on here πŸ˜‚ but my mini bestie and I 😍❀️
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