#cerebralpalsywarrior

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So Ryan tried put his #splashy bath seat in the bath for the first time at his grans house. (at home we only have a shower) he absolutely loved it. It was great to see him have time to actually play in the bath and kick his legs in the water 💚. @fireflybyleckey love how easy your splashy seat to travel around with. #cerebralpalsykids #cerebralpalsyawareness #cerebralpalsy #cerebralpalsywarrior #fireflysplashy #splashy
Happy 4th Birthday my gorgeous girl 🥳❤️
• F R E E A S A B I R D • I don't think I have ever seen C so smiley. From the minute he walks through those gates today he was so giggly & kept grinning from ear to ear. _________________ Last week he told us that he wanted to ride Sparky more. So we are going to start doing Hippotherapy twice a week! 😍 It's so amazing to see Cayden become so passionate & excited about his hippotherapy. ________________ He loves petting Sparky & tossing carrots into his bucket. The connection he has with animals is so heartwarming to see. If you've never tried Hippotherapy/Equine Therapy or Horseback riding. I highly recommend it! 🐎 . . . . . . . . #EquineTherapy #Hippotherapy #horsebackriding #HopeForHIE #HIESurvivor #cerebralpalsywarrior #CPWarrior #cerebralpalsykids #ManesForMovement #🐎
When Knox was born, I would watch him try his hardest to get his chubby little thumb into his mouth and I knew at that moment that this Mama had a thumb sucker. ⁣⁣⁣⁣ ⁣⁣⁣⁣ Thing is, he was never able to land his thumb in his mouth but after much persistence he was eventually able to get his pointer finger in and boy did that bring him comfort. I thought it was unusual but really quite cute. Little did I know at the time but that was one of many signs that my Son had Cerebral Palsy. He wanted his thumb but the damage done to his brain wouldn’t allow his hand to open up for him to get his thumb in the correct position. What this Mama thought was cute and sweet was actually a sign that something wasn’t right. ⁣⁣⁣ ⁣⁣⁣ Now, the finger in the mouth is a sign that this strong little boy is tired and needs a nap 💤 ⁣⁣⁣⁣ ⁣⁣⁣⁣ ⁣⁣⁣⁣ ⁣⁣⁣⁣ #cerebralpalsyWarrior #cerebralPalsy #blessed #happyhealthyBoy #thumbsucker #knoxCole #naptime
Christmas is getting so close had to wear the reindeer pjs! #target #specialneeds #cerebralpalsy #cerebralpalsywarrior #youtuber #sensorykid #christmaspjs
Bugün Marmara Üniversitesi Hastanesinde yeme,yutma ve çiğneme terapimizin son seansını yaptık. Bir çalışma için bize teklif getirmislerdi ve bizde Çınara yarar sağlıyacağı için kabul etmiştik. Iyikide etmişiz çünkü hocamız @nasim_savalan tarafından çok güzel ve kayda değer bilgiler öğrendik. Çalısmaya basladıgımizda ortasinda ve son aşamasinda yapilan testlerler degisiklikleri gözlemledik ve olumlu olumsuz sonuçlarını değerlendirdik. Ve şunu gördük ki bilim bilim için yapılırsa bilim toplum için yapılırsa fayda sağlar. Biz de bu çalışmada bilime bir nebzede olsa katkıda bulunduysak ne mutlu bize. #yemeyutmaterapisi ..#herşeygüzelolacak #hidrosefali #hydrocephalus #cerebralpalsy #serebralpalsi #cerebralpalsyawareness #epilepsi #epilepsy #epilepsyawareness #pesetmekyok #instagram #instagramkids #nörogelişimselterapi #nörogelişimseltedavi #hidrosefali #hidrosefalus #cerebralpalsy #cerebralpalsykids #cerebralpalsylove #cerebralpalsyawarenessmonth #cerebralpalsywarrior #cerebralpalsymom #cerebralpalsidenkorkmuyoruz #serebralpalsi #canoglum #baloglum #minikadam #minikmucizem #mucizelereinanın #heranımızıölümsüzlestiriyoruz
It’s amazing how your life adapts to things you never knew you could do in life, you wake up and do things without a second thought.. This is Ryan’s medication each morning , 5 different drugs and a flush of water before we start bolus feeding him his milk. In one day he gets 13 dozes of medication and 3 feeds. #cerebralpalsyawareness #cerebralpalsykids #cerebralpalsywarrior #cerebralpalsy
When you wanting to go home and your child cracks it. So you you stop 🛑 helping and he laughs and takes off on his own without any help...... Lucky he can’t run fast 🥰 sharing a proud mummy moment with all tristyn adopted uncle and Aunty, grandmothers and grandfather #giftedwithcerbralpalsy #cerebralpalsywarrior #fuelbyketones #ketoneoperatingsystem #proudmum #proudmummymoment #inspired #strength #heknewhecould #heknewhecouldsohedid
When you wanting to go home and your child cracks it. So you you stop 🛑 helping and he laughs and takes off on his own without any help...... Lucky he can’t run fast 🥰 sharing a proud mummy moment with all tristyn adopted uncle and Aunty, grandmothers and grandfather #giftedwithcerbralpalsy #cerebralpalsywarrior #fuelbyketones #ketoneoperatingsystem #proudmum #proudmummymoment #inspired #strength #heknewhecould #heknewhecouldsohedid
When you wanting to go home and your child cracks it. So you you stop 🛑 helping and he laughs and takes off on his own without any help...... Lucky he can’t run fast 🥰 sharing a proud mummy moment with all tristyn adopted uncle and Aunty, grandmothers and grandfather #giftedwithcerbralpalsy #cerebralpalsywarrior #fuelbyketones #ketoneoperatingsystem #proudmum #proudmummymoment #inspired #strength #heknewhecould #heknewhecouldsohedid
Today was Dominic’s last day of HBOT! He completed 40 dives at 1.5 ATA with 100% oxygen for 45 min with 2 five minute air breaks. It’s been a crazy couple weeks during this, but has definitely been worth it! Dominic’s seeing gains in sensory, vision, and spasticity! He also has 5 new teeth just since starting the treatments!! First pictured is Dr. Wennerstrom. She’s amazing! Her daughter’s very close in age to Dom and they got to play with each other often ❤️ The second pic is Amy. She monitored us during most of our dives and has been doing this for 25+ years. Her and Dom became good buddies! Dr Carey, Amy, and every single one of her staff treated Dom and I like family. We’re going to miss seeing the girls everyday! Now that we’re done, he’s going to take a 2 week break from oxygen at home. Then for 4 weeks he’ll go back to getting O2 at 2L for 45 min 2x a day 5-6x/wk. Then we’ll talk to Dr Carey and see from there. (This is part of Dr Harch’s new protocol) #DomStrong #brave #strong #lifewithoutlimits #actuallyican #hyperbaricoxygentherapy #hyperbaricchamber #hbot #cerebralpalsy #awareness #cerebralpalsywarrior #hopeforhie #spasticity #hemiplegia #sensory #cvi #nicubaby #nicusurvivor #tbi #earlyintervention
Thanks to snap world for helping my perpetually indecisive self anxiously settle on this cozy thing. Team yellow forevzzz. #cerebralswagger #cpwarrior #cerebralpalsyawareness #cerebralpalsywarrior @robynlambird
Hyde update: Well I have sever degenerative arthritis. Missing quite a bit of cartilage when my foot connects to my leg and in a few other spots. Best way I can ease the pain is either get a ankle fusion but would lose the mobility in my ankle, get a ankle replacement surgery but the doctor said I'm too young for it but that may be what has to happen. Got a cortisone shot...hurt more than stretching my ears 💀 should last for a few months when it finally kicks in. Didn't talk too much about the MRI because of all my past surgeries it was hard to tell the old damage from the new damage. Pain and bad news today but keeping my head up high and staying hopeful 😁 #CerebralPalsyWarrior #SpasticDiplegia #HydeIsActingtheFool
Melinda gave Charlie to "Indian corn" treat from @snaks5thavenchew !
Thought I would share one piece of our bedtime routine for those of you wondering what setting up TPN looks like every night! This bag then gets hooked up to a permanent IV on Brody’s chest (called a central line), and gives him extra nutrition since his digestive system can only handle about half of what his body needs. Without this right now, Brody would quickly become malnourished and starve. . Our supplies are delivered to our door every two weeks, and much of it is stored in a special refrigerator - all of it, sterile. We have done this procedure over 400 times, so we have gotten quite quick at it! It usually takes us about 10 minutes, plus a few extra steps not in the video. . After this, we give him a bath, administer a reflux medication, and prepare his formula and feeding bag for his overnight feeding pump. . Disclaimer: if you are also a HPN expert, GO YOU! Please remember that every team’s procedures are slightly different, so if mine doesn’t look exactly like yours, don’t worry! 😊 . . . #tpndependent #shortgutsowhat #tubiekid #micropreemie #cerebralpalsywarrior #cvi #cviwarrior #impossibleisnothing
Eeee Wandering Mermaid of the week time YAY ✨❤️🌈💕 This week we are celebrating the BIRTHDAY @fromthiswindow ( it’s also this lovely ladies birthday today ✨❤️💕) I could not be prouder of my sister and best friend @fromthiswindow ✨ This beautiful soul has achieved so much and is such an inspiration ! This week @fromthiswindow had the most inspiring article published in @huffpostuk which was incredible - and I cannot wait for @fromthiswindow to share more of her magical work with the world ❤️ @fromthiswindow is living proof that you are not defined by any disability or illness you may have. Dream and dream big and then go out there and and accomplish those dreams ✨ Keep doing you boo, I love you so dearly ✨I hope you enjoyed your birthday ✨❤🧡💛🌈💚💙💜✨ . . . . #queen #girlcrush #inspiringwomen #youarenotyourdisability #inspiration #dreambig #huntgramcolor #incolourfulcompany #cerebralpalsyawareness #colourfullife #followyourdreams #instalike #disabilitypride #rainbows #disabilityawareness #inspiringhumans #instalikes #instalove #colourful_shots #photography #cerebralpalsywarrior #rainbow #motivate #disabilityadvocate #instalikes #huffingtonpost
Happy birthday to my nephew, JJ! Ten years old today! Auntie loves you to pieces! 🎉🎈😘 #birthdayboy #nephew #thisisten #bigboy #family #cerebralpalsywarrior
Absolutely breaks your heart when this one says “mam I was upset this morning because I cannot walk” you might not be able to walk but you are the strongest little boy I know, everything you go through in life and you still have a smile on your face. We are so proud of you!! 💔💔 #cerebralpalsy #cerebralpalsykids #cerebralpalsywarrior
🌺BRAIDING SPECIAL🌺 $35 per service or 3 Natural Braiding or Twist services for $100 💙 #imaniscreations #cerebralpalsy #entrepreneur #blackman #cerebralpalsywarrior #cerebralpalsyawareness #webuyblack #specialneedsmom ♿️💙dm @reese523 to care for your loved ones 💙♿️
#repost @catateo72 Mateo became a yellow belt this week in Judo. However this class led by a member of the Israeli National Judo team is about more than Judo, it is about life. Thank you Gali for the priceless lessons this class provides and to the moms who have become my inspiration and my tribe and most importantly to the kids in this group who have shown me what true inclusion means whether that is full involvement with quadratic cerebral palsy, type 1 diabetes, celiac, autoimmune disorders, children learning in their second and third languages, switching back and forth between Hebrew, English and Kereni Spanish and a communication device she manages with eyewear. The kids don’t even notice who has what challenge but notice enough to be empathetic, loving, kind, compassionate and a little or a lot wild and crazy. #judo #judolife #judogali #inclusionmatters #cerebralpalsy #cerebralpalsykids #cerebralpalsywarrior #type1athlete #type1diabetes #celiacdisease #autoimmunedisorder #foodallergyawareness #homeschooling #homeschooljudo #compassionkids #kidathletes
Spastic hemiplegia is a neuromuscular condition of spasticity that results in the muscles on one side of the body being in a constant state of contraction. It is the "one-sided version" of spastic diplegia. It falls under the mobility impairment umbrella of cerebral palsy. Cerebral Palsy is the most common motor disability in childhood. Cerebral means having to do with the brain. Palsy means weakness or problems with using the muscles. Symptoms of Hemiplegia. •Muscle stiffness or weakness on one half of the body. •Favoring one side of the body. •Keeping one hand fisted. •Difficulty balancing and walking. •Lack of fine motor skills. •Developmental delays, especially with motor skills. My disability challenges me daily. Some days are easier than others. Some days I’m in more pain than others. Some days my body frustrates me more than others. But I’m glad that I was born with Cerebral Palsy because it has made me an emotionally strong and brave person. Plus I have a really high pain tolerance so a lot of pain that the average person might find unbearable, is pretty bearable to me. I used to be embarrassed about my disability, sometimes I still am when I struggle to get around. But I’ve realized that I can’t get rid of it so I might as well embrace it and work with it, rather than trying to fight it. I have a wonderful support system full of people who help me whenever they can, love me unconditionally and never give up on me even when I’m close to giving up on myself. I appreciate each and every one of these people more than they can imagine. I am different, not less. This crutch is called Constance. She helps me get around on bad days. #cerebralpalsy #mildspasticcerebralpalsy #spastichemiplegia #cerebralpalsywarrior #cerebralpalsyawareness
#алешинмаксим_видео #алешинмаксим_умелки Друзья!🙋‍♀️ Хочу сказать огромное преогромное спасибо каждому из вас за помощь, поддержку и веру в нашего маленького героя! Благодарим всех, кто с нами идет с самого рождения и тех, кто присоединился совсем недавно! Мы ценим каждого из вас!❤ ⠀⠀ 🎬Смотрите сами! Вы причастны к этому событию как никто другой! Максим пытается идти за одну ручку по улице из центра до машины! Это просто непередаваемая радость! А за ней годы работы, вложенных сил и веры! Он не закручивается в сторону и не падает! Старается себя удержать!💪 ⠀⠀ Спасибо всем вам за то, что даете силы и энергию двигаться дальше! Идти нашим путем! Вопреки всему! ⠀⠀ Мы не сдадимся! Потому что от таких моментов растут крылья за спиной и хочется еще большего!🧚‍♀️ ⠀⠀ Ждем ваших ❤! ⠀⠀ И пусть в вашей жизни всегда будет вера и место для чуда!🙏
Proud Mom moment 😊Malakai did awesome at physio the other day. He did unsupported sitting on the floor (with the help of the table in front of him of course) but still so great! His balance is slowly improving. He was working on trying to pick up small pieces of food and feed himself. #cp #cpwarrior #cerebralpalsy #cerebralpalsymom #cerebralpalsystrong #cerebralpalsyawareness #cerebralpalsywarrior #momlife #toddler #toddlersofinstagram #curls #disability #specialneeds #therapy #physio #physiotherapy #occupationaltherapy
#preemiepower 💜 ! Here's our #preemiesuperhero celebrating #worldprematurityday at #sunnybrookhospital . We love to see the NICU staff and old friends, plus raise #prematurityawareness . This guy, like most preemies, has NO idea what he went through and how much he fought to survive <690 grams, 25 weeks>. He's just in it for the pizza! #preemie #hemikids #cpkids #cerebralpalsy #cerebralpalsywarrior #hemiplegia
November 17 is World Prematurity Day and because of that Mason will always have two days of celebration for his birth!! Some people never get to meet their hero, 🤗🤪 I gave birth to mine. So if y’all are wondering why the Empire State Building is purple tonight that’s why. Let’s light up the world purple for the preemies!! Superhero Mason is a little miracle. . These pictures are from his first day in this world vs today. #23weeker #blessed #littlemiracle #prematurityawareness #ahero #cerebralpalsywarrior
Não desanimes com o diagnóstico que os médicos te dão (o meu era viver para sempre num estado vegetativo) com fé e perseverança tudo pode acontecer #cerebralpalsywarrior #ronaldo #strongboy #cerebralpalsyandscoliosisstrong #cerebralpalsy #cerebralpalsyawareness #strong #cerebralpalsyfighter #cerebrapalsyparent #especialneeds #disabilityawareness #disability #dontgiveup #cristiano #wheelchairlife #mentalhealth
Izzie had a great day out shopping with me, her Dad and Brother. For the most part she was well behaved. A bit annoyed with her AFO'S on but she did pretty good considering she would have thrown a major fit in the past. TODAY was a successful shopping trip! #cerebralpalsy #cpdiva #cpwarrior #cerebralpalsyawareness #spasticquadriplegiccerebralpalsy #cerebralpalsywarrior #cpdaily #cpmomlife #cpparent #cpdadlife #cpfamily
Today is World Prematurity Day! I never knew much about preemies or how common they are (about 1 in 10) until I had E. Many of our friends and online buddies are preemies too. So thankful for the medical advances today that have helped millions of babies born too soon. Preemies are fighters from the start and I am always in awe of E's resilience, determination and her warrior heart! #cpwarrior #cp #cpstrong #cerebralpalsywarrior #cerebralpalsy #sdr #sdrchangeslives #sdrawareness #preemie #prematurity #worldpreemieday #worldprematurityday #preemiepower #smallbutmighty #warrior
This has been my view since 7.30pm this afternoon. Little man fell asleep without dinner. Every time I get out of bed or move a get a mermour and a wiggle, with a reach out from his arm or hand.... not game to go to the toilet ..... #motherslife #singlemum #cerebralpalsywarrior #onelove #onelife #mychild #mylove #ourlife
Christopher Hills has cerebral palsy but he is determined to live life to the fullest despite his limitations. Christopher participated in this year, City to Surf to raise funds for the Cerebral Palsy Alliance. Christopher used a new racing wheelchair and was assisted by the Cerebral Palsy Alliance's fundraising team who helped him up Heartbreak Hill to cross the finish line.⠀ When Christopher was eighteen, he started his own video editing business called ”Switched On Video Editing”. For more of Christopher's story visit my blog ⠀ ⠀
So this morning I asked you all what YOU wanted to know about Brody & our story. I’ve believed from the start that our story was meant to be shared, no matter how hard that was sometimes, and you all responded and stood with us as we battled so, so many things! Now that we are out of the hospital and I don’t post every day, I’ve been finding when I talk to people that I don’t always explain everything clearly, or mention alllll the things that are life with Brody! . So, if you’ve got a question about Brody or want to know more about ANYTHING, head on over to my Instagram stories and ASK! There’s already been so many good questions! I’ll be posting the answers all to my highlights in case you miss them 😊 Or, if you’re not sure how to use Instagram stories (I feel you!) or missed the opportunity, you can also ask in the comments below 👇 . Also, how awesome is this shirt from @shopjumpingjack ?! They design T-shirts and do fundraisers for children and families dealing with medical/special needs! This shirt was for a sweetheart named Sawyer who was diagnosed with Cerebral Palsy #yourdifferentisyourbeautiful . Go check them out! . . . #differentlyabled #micropreemie #ex25weeker #cerebralpalsy #cerebralpalsywarrior #cvi #cviwarrior #shortgutsowhat #tpndependent #tubiekids #jumpingjack #impossibleisnothing #advocatelikeamother #specialneedsmom #momsofinstagram #motherhoodunplugged
Watching #bbcchildreninneed2018 from a very different perspective this year! Never in all of my wildest dreams did I think I would be a parent with a child receiving help from this, but then I don’t suppose anyone ever does 😔 steps conductive education centre receives a lot of their funding from children in need and the place has been a lifeline for us.... they are amazing with Joey and the staff work tirelessly to help him reach his potential. I don’t share my feelings a lot but I am not ashamed to say joeys diagnosis floored me, I’ve been through every emotion, guilt, blame, anger, worry but week after week they are there to listen, help and share the load.... ❤️#bbcchildreninneed #childreninneed #cerebralpalsy #cerebralpalsywarrior #conductiveeducation
Corwin has learned so much about horses!
Corwin was so excited to "drive" our new tractor!
Took the Dog-o for a ride to the Credit Union. She's spoiled and got two treats from the teller. #cerebralpalsy #cerebralpalsywarrior #cpstrong #instagram #achieve #life #rolemodel #disability #disabled #truck #ford #carhart #dog #ride #money #treat #eye #eyes
#алешинмаксим Друзья! Всем привет!🙋‍♀️ Мы рады приветствовать всех, кто к нам совсем недавно присоединился!❤ ⠀⠀ Расскажу вам немного о наших хештегах, по которым удобно ориентироваться на страничке: 🖲#алешинмаксим - все посты с нашей страницы под единым хештегом 🖲#алешинмаксим_документы - документы Максима 🖲#алешинмаксим_проверено - проверка страницы согласно правилам ведения благотвортельных сборов в сети 🖲#алешинмаксим_реквизиты - реквизиты для благотворительной помощи Максимке 🖲#алешинмаксим_интересное - полезная и интересная информация для всех 🖲#алешинмаксим_отчет - отчеты о полученных и потраченных средствах на реабилитацию 🖲#алешинмаксим_аукцион - проводимые аукционы в помощь Максиму 🖲#алешинмаксим_акция - проводимые акции в помощь Максимке 🖲#алешинмаксим_рецепты - наши рецепты 🖲#алешинмаксим_хвостатаяпятница - пятничная акция во время сборов 🖲#алешинмаксим_видео - все видео со странички 🖲#алешинмаксим_история - история Максима в нескольких частях 🖲#алешинмаксим_моимысли - тут все понятно, думаю, мои мысли и чувства 🖲#алешинмаксим_развивашки - наши занятия дома 🖲#алешинмаксим_новости - Максимкины новости 🖲#алешинмаксим_умелки - наши умелки 🖲#максимходи - личный хештег Максима и наименование группы в ВК и ФБ 🖲#мальчиктрудяга - личный хештег Максима, напрямую связанный с его повседневной жизнью 💪 Что бы вы еще хотели видеть на нашей страничке? Какие темы были бы интересны?🙂 ⠀⠀ Пишите! Не стесняйтесь! Будем рады каждому вашему комментарию!☝️😉 ⠀⠀
Smile 🙂😍❤️
Sasha was so happy it was snowing outside! Mom I have to go outside and see it I love the snow ❄️☃️#specialneeds #cerebralpalsy #cerebralpalsywarrior #specialneedsmom #snowing #lovingsnow #winterhascome #sensorykid
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