122,369 posts

I have dreams about this image, so I drew it.
#Repost @healdocumentary with @get_repost ・・・ Yes boundaries.🙏🙏🙏🙌 #repost @liminal.lands 🦋 HEAL is now available online for rent or purchase. Link in bio. #boundaries #autoimmunedisease #chronicfatiguesyndrome #epsteinbarr #medicalmedium #mentalhealth #deepakchopra #mariannewilliamson #healdocumentary
My dad brought Griffin to deer camp and this is the picture he sent me. 😂 Besides this adorable cutie, things for me have been tough. I’m finding to find strength but am struggling. I don’t know what I am going to do about my living situation and it’s been causing me a lot of stress. Thankfully I only have one more day of work before the 4 day weekend. I’m trying to stay strong but this has been hard, really hard. I have lost a lot of faith and hope but I am trying to find hope somehow. My doctor nearly cried today as I was bawling in her office. I don’t know what’s getting me through days anymore to be honest. I come home from work and cry for hours from the pain. I just don’t want to do this anymore. I am so exhausted and so beaten down that I’m not sure how much more shit I can take. With the falling snow, I realize that things are only going to get worse. Please send prayers that I can find a better living situation. Mentally I’m in the worst place of my life. My worst symptoms have all been nurological. I struggle working on the computer, driving home and a lot of eye sight problems. My pain has been the most severe it’s been in years. My doctor today is going to order LDN for me. I should be starting at 1mg dose by next week. I will have to stop taking my night time tramadol and am scared that I won’t be able to get any sleep. I’m praying that after a few months this can help somehow. I’m continuing to see my therapist to try and work through how awful these past months have been. I don’t want to fight anymore and sometimes I feel so bad I don’t care if I do. If anyone has suggestions on things I can do to help myself cope, please feel free to message me. I feel awful posting so many posts of feeling hopeless but this is the truth and I don’t think it would be fair to not share my struggles. I know things can get better, but right now it’s okay to be upset and sad and heartbroken. It’s okay to feel exactly how you are feeling. #lymedisease #lymediseaseawareness #bartonella #babesia #chronicpain #chronicfatiguesyndrome #chronicillness
I'm organized and productive. I swear... 😅😅😅😅 Not going to lie. This #entrepreneurlife is starting to get to me. Please send help.
Success is in the eye of the beholder 😉. I was once the former (Pinterest) mom and now I’m the latter. Either way, we celebrate all accomplishments equally. #chronicillnesslife #chronicillnessmom #fibromyalgia #cfs #invisibleillness #chronicfatiguesyndrome #dysautonomia
#Repost @healdocumentary • • • Yes boundaries.🙏🙏🙏🙌 #repost @liminal.lands 🦋 HEAL is now available online for rent or purchase. Link in bio. #boundaries #autoimmunedisease #chronicfatiguesyndrome #epsteinbarr #medicalmedium #mentalhealth #deepakchopra #mariannewilliamson #healdocumentary
"Illness narratives usually have startling beginnings - the fall at the supermarket, the lump discovered in the abdomen, the doctor's call. Not mine. I got sick the way Hemingway says you go broke: 'gradually and then suddenly.' One way to tell the story is to say that I was ill for a long time - at least half a dozen years - before any doctor I saw believed I had a disease..." - Meghan O'Rourke, "What's Wrong with Me?" The New Yorker Do any other #autoimmunedisease sufferers relate to Meghan O'Rourke's experience? I certainly do... #highsensitiveintuitive #highlysensitive #HSP #autoimmunedisease #autoimmune #autoimmunecondition #chronicillness #butyoudontlooksick #Invisibleillness #hashimotosthyroiditis #hashimotos #chronicfatiguesyndrome #chronicfatigue #CFS #adrenalfatigue #anxiety #stress #panicattacks #depression #insecureattachment #anxiousambivalentattachment #complexdevelopmentalchildhoodtrauma #trauma #somaticexperiencing #fibromyalgia #mentalhealthawareness #womenshealth #somaticexperiencing #mentalhealth
That feeling you get when, while getting you and the kids ready for the day ahead, you get replaced in the marital bed by another man. 😅 #dadlife #tiredgirl #heiscutetho
Yesterday was my Cardiologist follow up appointment, the one I wasn’t too happy to go to. I went there with the best possible attitude, as you can see in the picture. The picture was taken before seeing the doctor. When the doctor came in, he asked me to give him any updates about my health since the last appointment. So I gave him the summary of my appointments with the Endocrinologist, Neurologist, Rheumatologist, Sleep specialist and Functional doctor. On my last appointment, he suggested to start on Desmopressin for my POTS. But, a couple of days later he called personally to tell me not try it because he wanted to do more research and bloodwork. I followed his advice and did not try it. Yesterday, he discarded the Desmopressin entirely as an option because it was too risky in my case. Honestly, I felt so much relief because I was kind of scared with the side effects of that medicine. He suggested an out-of-the-box medicine to treat my POTS, that at the same time can target my Rheumatoid Arthritis. He did not feel comfortable with me starting Plaquenil yet. So he wants me to try the out-of-the-box medicine first. Last week, my Functional Doctor also recommended me the same out-of-the-box medicine. I noticed it once I got home and compared their prescriptions. Having both of them thinking in the same medicine and approach, kind of gives me a sense of relief and hope. He told me my case was getting too complex because it was involving too many areas in general. He brought to the table the possibility that in the future I may need to try IVIG treatment. I wasn’t expecting to hear that from him, honestly. I was surprised and overwhelmed with all of the info. He told me that he has been reading and looking through some research papers, and talking to the doctors in charge of them, to get a better picture and understanding. He admitted he was learning through the process, because he is having more patients with similar symptoms to mine. So, the appointment that I didn’t want to go, ended up being a productive one. You never know. Sometimes, you just have to take a leap of faith. #dysautonomia #pots #eds #mcas #rheumatoidarthritis #chronicillness
Who is that? Yep it’s me ~your IG friend🤓 First off— I have been debating on posting this - shy ? Yes! I initially just randomly took this pic last week because for the first time in a LONG time I liked what I saw~ in more ways than one...... This is to show you that transformations are totally possible ❤️ I was one to never take full length pictures .... who WAS always in pain but no one ever knew ... who WAS taking a mix of pain killers, muscle relaxers, high blood pressure meds, xanex and lyrica to basically be able to function - frankly how I was able to function I still can’t figure out but I got through..... who WAS just thinking my life would be that because I never thought I would live a normal life with EBV/CF and CRPS/RSD 😒 plus the other issues from the car accident.... HOWEVER.... I was wrong .... after getting pregnant with my first son... my body changed..... I went into full remission .. how?? Because of the hormones a woman produces during pregnancy and after... however I noticed after the birth of my second son..... my symptoms starting coming back.... the pain, the discoloration and fatigue and I was not about to go down that road again! I was not going to allow my body to be taken over and away from me ever again..... I am happy to say .. for Transformation Tuesday ☺️. That I am feeling great .... I have energy, I don’t have the constant pain and life is bright 💫. So please know... if you have gone through or going through anything of what I just shared.. you can get through it! I am here for you ❤️. Please feel free to DM 🤗
TOO MANY APPOINTMENTS • I’ve had over 150 appointments this year and I can’t help but wonder if this grueling schedule is actually harmful to my health. Previously I used to take “medical holidays” when it got too intense, but I don’t have that privilege anymore. I have to show up to these appointments unless I’m willing to let my health get even worse than it has been. Spoiler alert: I’m not willing to do that. It’s a catch-22 that almost any chronically ill person will tell you. - I’ve gone to my pain doctor’s office in a ton of pain and left in even more pain than I started with, but I had to see my doctor if I wanted help. I’ve had appointments with my neurologist where a minor headache turns into a full-blown migraine for days on end because it was too much for my body. Pretty ironic, huh? - When I get really overwhelmed on a high pain and/or low energy day and I have several appointments, I try my best to focus on the gratitude I have for my medical team. I have some amazing medical professionals in my corner. Don’t get me wrong, going to all these appointments even with amazing doctors is demanding in every possible way, but it could be worse. I could be spending this much time going to appointments only to have doctors not believe me or be willing to help. I’ve had that before and it was way worse to have a team of dismissive doctors I only saw a couple times a month than a great team I see with great frequency. - When I get home, I try to do something I enjoy like a craft or watch a documentary. What do you do when you’re worn out from so many appointments?
Finally got some answers about what’s going on inside my body. I got some additional tests done and found out I have the Epstein-Barr virus and an autoimmune disease. Both this virus and disease is serious scary stuff. But I’m not afraid of it! Now that I know what’s going on with me. I’m gonna dominate this thing, and be free of it once and for all! 👊🏽💪🏽 People tell me..”Since it’s a virus..you will always have it.” No..I believe in my God, who is my guide and showing me how to HEAL my body. Today, tomorrow, the next day, etc...I’m gonna keep on smiling, because I believe in the possible. ✨ . . . . . . . . . . #realtalkwithhannah #thisgirlhannah #highcortisol #instatruth #ibs #whentraveling #bethechange #loveyourself #chronicfatiguesyndrome #thisismystory #tellyourstory #ebv #entrepreneur #organic #yeathatgreenville #herbalmedicines #relationships #marriage #yourvoicematters #plantbasedwife #herbalsupplements #travelwithme #healingfromchronicillness #WFPBdiet #healingwithfood #foodismedicine #autoimmunehealing #Traveladventures #exerciseisplaytime #autoimmunewellness
After I planned for a long night filled with sleep, it turned out to be a rather sleepless night😫 I've decided to not cover my acne scars in selfies anymore. I'm so sick of having to hide my skin. My ME/CFS causes my skin troubles and I'm just not going to cover it up. I have scars, but that doesn't make me any less of a woman or a person. Yes, sometimes I still use filters to hide to worst of the blemishes, but I'm working towards not doing that at all anymore. We are all beautiful just as we are. #insomnia #millionsmissing #canyouseemenow #ME #CFS #MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicillness #invisibleillness #dysautonomia #insomniac #fighter #warrior #survivor #spoonie #spooniesisterhood #spoonielife #selfie #awake #bedroom #sleeplessnights #summer #skinproblems #acne #scars #blemishes #skin
I look forward to the future, but I admit I’m not quite sure what that future is. In seasons of hardship I often focus too hard on the struggles of that season and I forget all the times God has seen me through. It may be hard right now, but I know this will only last so long and then I’ll be moving into the next stage of my life. . . I am so incredibly thankful for my amazing friends and family. I didn’t have many good friends as a child and never truly experienced what it was like to have a really close friend that I could count on until just a few years ago. And now I can say that I have a few of those friends that I trust completely and I feel confident and comfortable around 💕 I love and cherish all of you with everything in me (you know who you are). Thank you for staying by my side and helping me be the best that I can be 💕😘 I only hope I can do the same for you 🙌🏻
Tonight I was happy with the condition of my hair for one moment. My ME does not allow for healthy hair most of the time, but tonight my curls were partially present. #hair #millionsmissing #canyouseemenow #ME #CFS #MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicillness #invisibleillness #dysautonomia #curlyhair #fighter #warrior #survivor #spoonie #spooniesisterhood #spoonielife #selfie #curls #bedroom #summer
It is OK to #treatyourself to some much needed rest today! We understand. Extreme fatigue is a major symptom of #EpsteinBarrVirus . Comment below your favorite ways to rest and relax.
✨Day 6 #scoliyogachallenge ✨ Wide-Legged Forward Bend ______________💚_______________ As my daughter goes to take this picture for me she says, “Wow mommy you can really see your scoliosis a lot with this pose!” It’s interesting because people look at me and have no idea. They have no idea of the pain and struggles that scoliosis warriors deal with everyday! Everyone looks “normal” but yet we are all struggling one way or another! Never judge a book by its cover! 👊 Some of the many great benefits to this pose are.. 🧘‍♀️ Strengthens and stretches the inner and back, legs and spine. 💚 . . #scoliosis #scoliyogi #yoga #scoliosiswarrior #scoliosisnj #scoliosisfighter #spine #backcare #fitlife #holistichealing #fitness #scoliosisexercise #scoliosisawareness #scoliosisstrong #backhealth #spondylolisthesis #chronicpain #chronicfatiguesyndrome #neckpain #healthandwellness Stay 💚💪 Thank you for the challenge... @backupyogi @scoliyogagirl @alexmyoga @marypowellyoga @forever_fused @omstarsofficial @hayleyelysefit @korsisisters
If you choose to see everything as a miracle, then where you are right now is perfect. There is nowhere to run to; there is nothing else to do except be in this moment and allow what is to be. From that place of radical acceptance, major change can happen. The first step in any transformational experience is acceptance and surrender to the present moment, the way that it is. From that place we have the awareness, humility and power to change what is. 🌿 #chronicillness #invisibledisability #posturalorthostatictachycardiasyndrome #mastcellactivationdisorder #ehlersdanlossyndrome #dysautonomia #chronicfatiguesyndrome #depression #anxiety #yoga #yogagirl #fitness #canada #photography #invisibleillness #chronicpain #mentalhealth #quotes #followforfollowback #hEDS #pots #MCAD #potssyndrome #spoonie #natural #warrior #health #hypermobileehlersdanlossyndrome #followtrain #follow4followback
The cutest puppa in the world 😍
🌿Eucalyptus and greenery are my favorite way to decorate lately, especially this time of year! We don’t really have enough space for a tree, however I did spruce up our balcony with some colorful Christmas lights! (Do you decorate before or after thanksgiving? Sometimes I get so excited I just can’t wait!) Speaking of Christmas- holidays can be a tough time, especially for my #chronicillnesswarrior friends. It got me thinking a lot about how my fear of judgement really can inhibit me and how I deal with it. Link in bio if you’d like to read :) hope y’all have an amazing thanksgiving week! P.S- do you have a favorite plant based holiday recipe? Let me know if you do! 💚💃 • • • • #chroniclymedisease #lifestyleblogger #plantbasedlifestyle #herxheimer #cfsme #fibromyalgia #chronicfatiguesyndrome #houston #autoimmunedisease #autoimmunity #chronicinflammatoryresponsesyndrome #mycotoxins #moldillness #butyoudontlooksick #chemicalsensitivity #lifestyleblogger #plantbaseddiet #eatmoreplants #candida #guthealth #lymedontkillmyvibe #healthandwellness #simplifyyourlife #lessismore #eucalyptus #lifestylephotography
Yes boundaries.🙏🙏🙏🙌 #repost @liminal.lands 🦋 HEAL is now available online for rent or purchase. Link in bio. #boundaries #autoimmunedisease #chronicfatiguesyndrome #epsteinbarr #medicalmedium #mentalhealth #deepakchopra #mariannewilliamson #healdocumentary
- ✨ ✨ Be the badass person you are. We can handle ANYTHING. Each day is a new day to start again. Stop the negative self talk. Give yourself a damn break. Some slack, for once. Some self love & self care & self respect. Time to wash all the bullshit away. Hold your head up high. We can do it. We got this. 🌟 🌟 #instamood #strength #hope #mecfsrecovery #myalgicencephalomyelitis #mecfs #chronicillness #chronicillnesswarrior #invisibleillness #mentalhealth #mentalhealthadvocate #girlboss #spoonie #spoonielife #mood #chronicfatiguesyndrome #chronicpain #mentalhealthsupport #quotes #qoutesoftheday #selfcare #selflove #selfrespect
Finley's being so incredible recently! His alerts are so spot on. Tonight he kept me safe as I sat in the shower to warn up, & did a really amazing seizure alert (repeatedly alerting, focused throughout). Once I'd come around from my seizure he instantly flopped down on top of me & went to sleep 😂 Like, what a hero!! A friend helped me find something I've been searching high & low for: an emergency alert button that sends texts when pushed! So I have one of those on the way. Finley will be trained to push it in response to me having a seizure or blacking out, & then if Lyle's in another room or we're waiting outside the supermarket, he'll be alerted & can come see if we're okay 🙂 #ilovemyboyfriend #puppy #Labrador #assistancedog #workingdog #dogsofinstagram #spoonie #disabled #disability #chronicpain #POTSsyndrome #dysautonomia #hypermobile #actuallyautistic #chronicpain #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicallyill #chronicillness #nonbinary #transgender #trans #transmasc #fulltimecarer
Today's been a big recovery day. I am soooo sore from so much walking and sitting yesterday. I try to not take tramadol during the day if I can control my symptoms with MMJ, CBD, etc, but it's been much needed today. I worked on a few little projects in bed but I started feeling really potsie sick this afternoon and ended up puking from the head spinning. I've been really bad about not drinking my electrolyte drinks (I only crave water) which has not been helping things. Planning on tomorrow being a relatively quiet day as well so I can gather my spoons for Thanksgiving. My jaw pain/tension is not getting any better so I'm a little worried about how much pain I'll be in from talking. But I'm excited to see family and get out of the house with Dakota for the first time in a few weeks. . . #spoonie #spoonielife #chronicallyill #chronicillness #POTs #potsie #eds #edszebra #ehlersdanlos #ehlersdanlossyndrome #chronicpain #ehlersdanlostype3 #edstype3 #hypermobileehlersdanlos #migraines #hypermobileeds #fibromyalgia #chronicfatiguesyndrome #chronicfatigue #ehlersdanloszebra #chronicmigraines #gastroparesis #dysautonomia #disabled #chroniclyme #lymedisease
Just an update: I’m making so much progress in recovering from Chronic Fatigue Syndrome caused by a limbic system injury in my brain brought on by Anti-Depressant Withdrawl. In December of last year, I began dealing with a wide range of symptoms from debilitating fatigue and dizziness to electrolyte imbalances to memory and cognition problems, thyroid and hormone imbalances to cardiac arrhythmias. I also developed (CIRS) a mold toxicity and am battling other neurotoxins because of the weakened immune and autonomic nervous systems. It’s been the most difficult time of my life and at times I’ve become a shell of myself but I have fought and have embraced the road my life has taken never once doubting God wouldn’t pull me through this difficult time. I’ve known a darkness and a fear that I didn’t even know the human heart could know. I’ve felt despair and have watched my world as I’ve known it crumble. However, little by little I’m getting my strength back, my energy levels are coming up and as my husband puts it.. my dimples are coming back!! I’ve accepted the grace of God and have developed a passion to create awareness of the dangers of antidepressants and antidepressant withdrawl. There is a world of hurting people out there but you don’t see them because they don’t show up to church, they don’t come to dinner but they are on here like I was searching for answers as our medical model is lacking in understating of the damage caused by antidepressants and the treatment plan to get people off of antidepressants is causing damage. People’s lives are being turned upside down. These people are then being told by their doctors that they just need more medication furthering the problem. Anti-Depressant withdrawl is very real and isn’t a need for more medications. It’s an experience straight from hell that our medical system has got to start looking at for what it is and change the way this is managed. I’m healing and the people that believe they can heal from this will but it’s a road nobody should go down. I’m grateful for my small victories today. I’m grateful that my body is able to do things like go out to the farm and brush a horse. It’s the little things...
LIAR, LIAR // #chroniclymedisease has definitely made me a better liar, and I bet all you #chronicillnesswarrior out there can completely relate. . I’d say theres about one day a month where I’m not in pain, but every day I say “I’m fine”. It’s weird to smile through the darkness, to deny your everyday realities to strangers AND the people you care about most because you don’t want them to get sick of your “complaining” if you told the truth. . It’s sad, it’s lonely, it’s scary, it’s dark and that’s why I created #thechrillness - so we can support each other (without the lies). . How do you deal? Are you straight up honest? Or do you hide the truth from those around you? . 💓, @laura_macleod
A lot of people ask me about Keto friendly foods and even though I drink the ketones to get into ketosis (which are diet independent), I figured I would share with you a cute chart that I found. REMEMBER guys KISS (keep it simple stupid lol). Here are a few tips I have learned and want to share with you: -Don’t go and dramatically changing anything it WON’T last long term. 90% of diets fail within the first 6 months! -Slowly integrate changes in & remember to celebrate how awesome you are doing in the journey. LOVE your body the whole way just how it is. -F**k the SCALE or tape MEASURE. Please don’t continuously weigh yourself and focus on just feeling better. When I really got this and divorced the scale the weight started falling off because I focused on feeling better, moving better, having energy and having fun and laughing more. I was able to start living life finally. Not only did the weight start coming off I have kept it off for 15 months now and am still shrinking with minimal effort. -MOST IMPORTANT is keeping your MIND strong! Focus on putting yourself first and loving the process of learning about your body and what it needs to be healthy. Fall in love with yourself again and have compassion every day that you are doing it. Nothing great comes fast and easy. How bad do you want to feel better and regain your life back? Staying consistent daily is key no matter how big or small that may be. 🤗❤️ * * * * * #happy #healthy #keto #ketodiet #burnfat #lovethejourney #selflove #strongmind #weightlossjourney #feelbetter #lupus #lupuswarrior #fibromyalgia #fibromyalgiawarrior #potssyndrome #chronicillness #chronicpain #chronicfatiguesyndrome #sandiego
Within me, there is an animal, a warrior spirit. It’s not a male or female but it is made up of the collective battle cries of my ancestors. It will never back down. It will never be defeated. 🦁 I’ve endured so much. I’ve survived, I’ve struggled, I’ve suffered. I’ve lived, I’ve felt, I’ve lost. But one thing I can say is I have never backed down! I’ve never backed down from a fight, never back down from anyone. Never took “no” for an answer, never took bullshit from anyone, never took attitude from people who thought they could dish it out. I’m a Lukela and the proud daughter of one of the strongest, toughest men I’ve know; Abraham Keala Lukela III. This fight is long from over, this day is pushing me to a new breaking point; opening new doors and emotions inside of I never knew I even had. Weakness I never knew I could allow myself to release. But I am a warrior. Raised by warriors. It’s a bloodline that runs thick through me 🙏🏽 Today is test, like everyday. And I say to the universe “FUCK YOU!” #chronicillness #chronicpain #chronicfatiguesyndrome #chronicillnesswarrior #chronicpainprincess #chronicpainliving #epsteinbarr #moldtoxicityawareness #4yearanniversary #warrior #roadtorecovery #recoveryroad #hawaiian #hawaiianblood #morphe #jamescharles @jamescharles @morphebrushes #jamescharlesxmorphe #jamescharlesxmorphepalette #makeup #makeuptransformation
Today I rested as much as I could and managed a shower which I desperately needed. I don't want to admit how long it had been since I had anything other than a sink shower. I think I may need to purchase a few things like waterless shampoo/conditioner, baby wipes, and such to help on my extra bad weeks. Thank you all for your support and I hope I can offer as much kindness and encouragement as y'all show me. I know I will never get better, but I can trust that God will be watching me no matter what happens. Also this snapchat filter is awesome! #pots #postularorthostatictachycardiasyndrome #potsie #potssyndrome #potsie #chronicillness #chronicillnesswarrior #chronicallyill #spoonie #spoontheory #spoons #chronicfatiguesyndrome #myalgicencephalomyelitis #rheumatoidarthritis #ra #mecfs #mcas #undiagnosedmcas #SeronegativeRheumatoidArthritis
When you eat 5 chips and 1/6 can of beans and you feel uncomfortably full... 😒 these past few days have been way too stressful to eat. 🍟 #stress #mentalhealth #tinyappetite #feelingblue #chips #bakedbeans #losingweight #chronicfatiguesyndrome #cfs #bpd #anxiety #knottedstomach #needabreak #lowmood #sad #seasonalaffectivedisorder
Last week I talked about the plethora of chronic inflammatory and auto-immune conditions that are linked to Leaky Gut. So this brings about the question, WHY NOW? Why is all of this showing up NOW? 🤷🏼‍♀️ 🤷🏼‍♀️ Well, it just so happens that several things are happening all at once in our environments and it is all converging on our gut. 😫 😫 1) CORRUPTION OF THE FOOD SUPPLY. 2) RISE OF ENVIRONMENTAL TOXINS. 3) STRESS! 4) GERM WARFARE 5) OVERUSE OF MEDICATION . . All of these things are coming together at once and amassing a major attack on the trillions of micro-organisms that live within us. However, we CAN help reverse this. If we can reclaim our microbial diversity through micro-exposures (small, repeated exposures to bacteria, soil, dirt, plant oils), we can reestablish the natural symbiotic relationship that is so critical to our well-being. ❣️ ❣️ So how do we get those micro-exposures? Eat seasonally and locally and spend more time outdoors are 2 great places to start! . . I highly suggest you all take the quiz at www.draxe.com/leaky-gut-quiz to see what your risk factors and likelihood that you are experiencing Leaky gut are. I was surprised that I scored a 7, which means it is pretty likely that I have some issues with leaky gut. {{All information taken and summarized from "Eat Dirt" by @drjoshaxe . I wish i was this smart - but i have to read and learn too - #knowledgeispower }}
This is just too big to post the full image 😅 Painsomnia kept me up until 4 AM, but at least I had some time to do some art and listen to My Brother My Brother and Me. My knees and hips were keeping me awake last night so I made this goofy drawing to make me feel better. I’m thinking of maybe doing an art post each week, they’re really fun to do! - Tomorrow I’m going home!!! My partner and I are leaving at 9 AM and hoping to get home around 3 PM if possible. I’m super excited to see my family and my friends! I’m having dinner with my family and I’m going to go to an escape room for my friend’s 20th birthday! I hope y’all have a good night!!! - [ID: A drawing of me, a white nonbinary person with short, brown hair. My hands are on my knees, and my legs are squiggly and curly. I have a yellow shirt on, blue pants, and striped socks. On the red background there are words that say: “my legs are causing me PAIN!” Half of my body and the background are covered with blue shadows. End ID] - #art #digitalart #chronicpain #chronicillness #chronicillnesswarrior #chronicpainwarrior #chronicfatiguesyndrome #chronicfatigue #painsomnia
Sorry for my complete absence this last month, it’s been a bit of a struggle! Am going to try and start using posts as attempts at more mindfulness and self-advocacy that I’ve recently been awful at. I’ve lost so much confidence in the last year with what feels like a constant battle with my body. It’s so hard being in such an inaccessible place with so few people to talk to, and has been difficult that when I started, I invested so much in a friend and getting to know one person, only to have them completely abandon and forget about me and form their own friendship group which did not include me. It seems to me that sometimes the people who have ambitions to do good in the world and do good work, don’t necessarily always apply the same ethics and morals to their own life and treatment of people. It’s actually those small things which probably have the most impact in doing good in the world. So because I can’t say it to actual people here who are being very uncaring and incompassionate, I’ll vent it here to this compassionate community. Sending so much love out to anyone else struggling in these cold, dark early nights and here’s to taking one day at a time. Be more kind 💜 ~ ~ ~ ~ ~ #fibrowarriors #spoonielove #bemorekind #homesickness #fibromyalgia #citylights #nycphotographer #nycnightlife #sotired 😴 #friendshipissues #loneliness #lonelinessthoughts #solidarityispower #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicpainwarrior #spooniewarrior #selfadvocacy #selflove #notgivingupnotgoingdown
People can only empathize to the degree to which they’re comfortable feeling that emotion themselves. ❤️ Sympathy refers to feeling sorry for someone, which has its place. Empathy, however, refers to putting yourself in someone else’s shoes. With sympathy, the feeling involved is that of being sorry for that person, but with empathy, you feel what the other person feels.⁣ ⁣ So you’re sharing your health issues with a friend who is healthy. This friend can try their absolute best to channel a feeling in which they also once felt trapped, isolated, and afraid in order to provide an empathic response. However, how can you realistically feel what another person’s feeling (true empathy) if you don’t have this emotional frame of reference? On top of this, fear often gets in the way of most healthy people’s ability to empathize with our situation. People don’t want to imagine that a young person who’s doing everything they can to be healthy could possibly experience a debilitating, life-changing illness, because if that’s true, then it could also happen to them.⁣ ⁣ When people aren’t emotionally capable of feeling something with us, they might unintentionally act dismissive and invalidating. In response, we might label these people as ignorant, selfish, disrespectful, or just not caring, but the reality is that they struggle with empathy. ❤️⁣ ⁣ @brenebrown has taught me the importance of having at least one friend where you can share all of your complex emotions and be met with authentic empathy. It doesn’t mean we need to cut out all other friends who aren’t capable of this, we just don’t need to share our lives on the same level to every person we cross paths with. As Brown says, “not everyone’s earned the right to hear your story.”⁣ ⁣ Image description in comment section below ⬇️
Our featured practitioner is Dr. Keith Dunbar - FREE appointments! Keith is very kindly offering to help to teach anyone to self inject Magnesium and B12 ( both supplements are very important parts of Dr Myhill's protocol ) This is what Keith has to say on his profile page. "I am a retired, no longer registered, former GP wih chronic fatigue, who self-injects with B12 and magnesium. I am happy to help anyone, via a Skype consultation, who has been advised to have these injections, but has been unable to find anyone to advise and guide them on how to give them. I would not charge for providing this service. I would not expect it to take more than 15 minutes or so ' Please go to https://naturalhealthworldwide.com/search.profi Ie.pa ge.php?pract.id:254 to book a FREE appointment with Keith. If you are not already registered as an NHW patient, please register here - 3 fields only required - really quick process! https://naturalhealthworldwide.com/patient.sign .up.p hp
I just want to thank my 600 followers who have been on my journey to share my recipes and part of my life. It has definitely been a learning experience but had so much fun doing it. I will let everybody know when my book comes out. “I’d rather die dancing” , my book, talks about why I got sick and how I got well! This too is a tough journey but I did it! I can’t wait to share it with everybody. Thank you so much! Sincerely, gluten-free gail.
*Help my real life thanksgiving miracle come true!!* . If you’ve been following me you know that I am battling Late Stage Neurological Lyme Disease and that I am no longer responding to antibiotic treatment - the only option available to me in the United States. Without treatment I will lose not only my mobility, but also my speech, coordination and ability to do basic tasks like read and write. In the last week I’ve felt the facial paralysis I normally experience only on the right side of my face spread to my left eye and cheek and it is scary as HECK. Please, if you are able to help in any way now is the time. I have 10 days left to reach $30,000 so I can secure my spot at a specialized treatment center in Germany. For more info, to donate or to share, please visit GoFundMe.com/savelauranow (also linked in my bio). I’d also love to hear if anyone has any creative fundraising ideas - I’m feeling desperate and afraid 💓 Thank you to all the angels who have already gone above and beyond to get me where I am now: You are forever a part of my story. Maximum Love, Laura
Last night we saw @jessiej at Cambridge Corn Exchange. She was absolutely amazing. She fantastic sing and such an inspiration lady. What she was saying last night, really connected with me and so many other people..#jessiej #music #inspirational #concert #gig #musicislife #jessiejtour #cambridge #livelifenow #chronicillness #chronicfatiguesyndrome #fibro #fibromyalgia #endometriosis #endo #hysterectomy #chronicfatigue #warrior #alive
#ChronicIllness #ChronicallyIll #InvisibleIllness #InvisibillyIll #ChronicPain #Fibromyalgia #Fibro #FibromyalgiaWarrior #SpoonieLife #Spoonie #ButYouDontLookSick #Fatigue #CFS #ChronicFatigueSyndrome #ThisIsChronicIllness #FibromyalgiaSucks #FibromyalgiaAwareness @Regran_ed from @fibromyalgia_sucks - Fibromyalgia is a pain that you can’t really explain or understand unless you have it. I try to explain how it feels the best I can, but I still don’t feel like it comes close to the actual pain I really feel. Have you found a good way to try to describe your fibromyalgia pain? - #regrann
my first ‘5 ingredients or less’ meal for this week’s #12weeksofslimmas #swcomedinewithus challenge! burgers (not that you can see them 😂) 1 syn each, with cheese (hex A), bacon, lettuce and fried tatties 😍 this was honestly delicious and the butgers are worth buying and synning compared to homemade syn free!
Sorry for pity post. Feel absolutely awful and stuck in bed. Feeling really guilty for everything that's not being done. Shout out to any other #spoonies who wish to commiserate with me! 😘 #spoonie #spoonielife #chronicillness #chronicfatiguesyndrome #cfs #cfsme #guilt #guiltyparty #felinecomfort
Oh, man, the rain! I didn't have to even look at the weather and I knew it was going to be either rainy or cold. My hips, especially, work well as barometers and weather gauges. They get really sore thanks to my bursitis. #fibromyalgia #fibromyalgiaawareness #chronicpain #osteoarthritis #pain #chronicillness #chronicfatiguesyndrome #fibromyalgiaawareness2018 #uctd #undifferentiatedconnectivetissuedisease #rheumatologist #chronicillness #chronicpainwarrior #myconnectivetissueshaveissues #methotrexate #folicacid #autoimmunedisease #knuckleswelling #autoimmunedisorder #rheumatology #trochantericbursitis
Haven't been feeling well for the last couple of weeks and I went to my Doctor's appointment's yesterday and today. I'm on another round of antibiotics and steroids for the next 10 days, but I'm going to fight this the best I can. Life isn't stopping here, so I HAVE to feel better. Cuddling with my furbabies helps me relax every time. #lovemyshihtzu #invisibleillness #unconditionallove ❤️ #marebears_journey #chronicillness #chronicfatiguesyndrome #sickandtired #sickandtiredofbeingsickandtired #stillsick
i miss florida so much! i had such a wonderful time. i was dreading it, all the walking.. the standing... the strain. but with my knee supports, supplements and regular breaks; i survived 🙋🏼‍♀️🥳♥️ i had a few very painful episodes and a mental breakdown but i managed my physical and mental health very well! and i’m very proud 😇 #florida #universal #wdw #fibromyalgia #dissociation #chronicfatiguesyndrome #fibrowarrior #mentalhealth #cfsme #spoonie #spoontheory #chronicillness #chronicpain #chronicfatigue
Sometimes you don’t have the energy but you make yourself go to the gym and try to push away CFS. Sometimes you can only do 30 mins of core and yoga but I showed up and fought a little bit more #chronicfatiguesyndrome #chronicfatigue #chronicfatigueawareness #cfs #chronicfatiguewarrior #chronicfatiguefighter
In my night meditation I wound up realizing that I had a block for allowing good to come in. It made me think to share it as many trying to heal and reconstruct their lives on the positive path after trauma, abuse, or toxic interactions may too unknowingly hold this block inside. For many there may be a connection, a pathway if you will that has aligned to light up that whenever you are feeling good ... the rug is pulled out from you. If that is the case as I have realized it was for me, I say to you begin to sit and “feel good” open yourself and allow for new pathways to build around the magic and safety in feeling good. The universe will support you... 🙏🏼❤️💜❤️ if you work with people impacted by adversity even children understand that good feelings can also be triggers, in my work I would see this in children in play.. how the excitement could turn on all the lights then quickly fight or flight responses took over.....amazing how I never applied it to myself until last night. Sometimes these children are my lighthouse 😘!#feel #goodvibes #safe #iamsafe #trauma #traumainformed #traumainformedschools #traumainformedpractice #thebodykeepsthescore #thebodyremembers #neuroplasticity #retrainyourbrain #free #changeyourbrain #adversechildhoodexperiences #ptsd #chronicpain #chronicfatiguesyndrome #fibromyalgia #warrior #healyourlife #love #light #transformationtuesday #breakthrough #motivationalquotes #raiseyourvibration #cptsd #higherfrequency #frequency
self love and care is so important! you must listen to you body & do what is best for you / your body. rest, eat what you want, stay in bed passed your alarm, so “no” to social plans, binge watch netflix, cry, laugh, paint your nails, do your make up for no reason, retail therapy. #fibromyalgia #dissociation #chronicfatiguesyndrome #fibrowarrior #mentalhealth #cfsme #chronicillness #chronicpain #spoonie #spoontheory #selfcare #selflove #depression #anxiety #love #motivation #art
it is currently 7:39am and I’m running on 0hrs n 0mins of sleep so today’s going about as well as you can imagine 🧞‍♀️ I’m planning to do a full hair routine in a bit, but I really wanted to attempt a #pinkwednesday shot first (sorry it’s a bit crap) 💗 also quick lil shoutout to my #insomnia .. pls go home n take your friend #hypersomnia with you 🌈✨ have a lovely wednesday everyone ✨ #chronicfatiguesyndrome #sleepdeprivation #ausbeauty #ausbeautybabes #ausbeautyaddicts #spoonie #skincare
#Success 👏 Symptom free for months off all meds after 6 months of treatment. No more joint pain, brain fog, anxiety or depression. Back at work full time without any physical or cognitive limitations 😇 #DrFrid #DrElenaFrid
It can be isolating when people constantly "hope you feel better soon", but you're not the only one. I hope you all find a little beauty in today, in pain or not, fatigued or not. 💌
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