#chronicfatiguesyndrome

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I took a small break from posting and tried to gather my thoughts after a difficult decline in my health; recently, the tumultuous cycles and constant episodes of my disabilities have left me so exhausted, so frightened, so full of rage. Sometimes, especially with multiple conditions, illness snowballs and leaves one in an avalanche that they cannot possibly escape from unscathed. I am not new to this avalanche, but this does not leave it any easier to bear each time. • This avalanche takes more than it gives. It takes pride, freedom, stability, even more tangible things like work and school and relationships. Its current is strong and chaotic and cold and isolating. It seems endless; yet somehow I have to remember that it will pass. It will pass. • In lieu of my own crisis, I have chosen to stay at school (for the time being) and in turn make various adjustments alongside even more accommodations. I am grateful to have a wonderful support team both on and off campus, comprised of family, friends, and professionals - and of course my best angel girl Percie, who does such a good job of looking after me. • And so, these are my truths: I have worn out my way of fighting, but I am still alive; I have miscalculated my demons, but I am still alive; I have touched the edge with my hands and it has left me burned, and bruised, and ashamed, but I am still alive. I am still alive, and you are still alive, and this has to, this must, count for something. • Image Description: Percie sits in tall grass that has yellow flowers. She is looking to the right and has her tongue out. She is wearing a yellow flower bandana from @theatomichound
Love these beautiful works of art by Erica Kathleen, so resonant with how nature helps heal a broken heart trying to begin again each day. Also inspired by her raw honesty in documenting her journey with painful hemochromatosis and educating others about this surprisingly common but often misdiagnosed blood disorder. One of the most common genetic disorders in North America, the disease causes iron to build up in the body to dangerous levels, which can lead to joint damage, heart problems, underactive thyroid, liver disease, and other complications if left untreated. Symptoms include joint pain, fatigue, heart palpitations, abdominal pain, foggy memory, and skin that turns a gray or bronze color. I encourage any patient with such symptoms to ask their doctor for a hemochromatosis blood test because it's frequently misdiagnosed as chronic fatigue syndrome or fibromyalgia. To get some great paintings/prints/T-shirts and support her efforts in raising money for stem cell treatments, check out @erica_kathleen_artist and @erica_kathleen_art. #artist #art #painting #healing #hemochromatosis #blooddisorder #chronicfatiguesyndrome #fibromyalgia #ericakathleen #painrelief #acupuncturist #alwayslearning #naturegirl #openheart #resilient #womenwhorunwiththewolves #joy #grateful #blessedday #beautyiseverywhere
Time. Time to rest. Time to evaluate. Time to heal. I've had to take time off around 2 weeks from the gym. I've been suffering with a cold and a virus which has triggered my chronic illness. I admire anyone with a chronic illness. I'm tired, cranky, my fibromyalgia is getting triggered and I'm tired on top of my cold. Life of chronic illness! It's okay to rest, it's okay to sleep, it's okay to not be going mental and putting pressure on yourself 🤙 . . . . . . . . . . . . . #fibromyalgiawarrior #fibrofighter #fibromyalgiaawareness #fibromyalgia #chronicallyawesome #chronicfatiguesyndrome #chronicallyfabulous #chronicillness #gymgirlgains #gymlife #gymlifestyle #healthylifestyle #weightlifter #missingthegym
Knowing what your body wants and needs and giving it the opposite is not only extremely detrimental to your health, it is not love. ______ You don’t feel like working out? You feel tired? _____ Go give your body some rest. _____ When you are truly healthy at the mitochondria level, you will not need to motivate yourself to get up and go move your body in some form of exercise most of the time. _____ Yes, some days you will be more tired. And that’s okay. Listen to your body and rest. _____ If you are too tired to exercise most of the time, it means you need to heal your mitochondria not go force yourself to workout. _____ It is not your fault that you are not motivating yourself enough. The problem is deeper at the cell level. Take care of that and you will NEVER Ever have a problem with motivation again. _____ #healthychoices #healthyfood #healthyeating #nutrition #healthylifestyle #healthyliving #weightloss #fatigue #instahealth #iodine #seavegetables #exercise #hypothyroidism #cold #meditation #chronicfatiguesyndrome #paleo #vancity #ketogenic #getfit #vancouver #mitochondria #coffee #dha #healthylife #peakperformance #wellness #selfcare
Me for the last 36 hours 😴🛌
It's why I don't wear mood rings, I don't think my changing moods would be suitable to get a good read 😂 ⠀⠀ Yes it's human nature to be up and down but since being diagnosed I struggle to keep up. Pain is a great host for anger, frustration etc so it's a case of learning to go with the flow and hoping others around you are thoughtful and empathetic enough to take you as you are good and bad ❤️🌈 ⠀⠀ #costochondritis #bursitis #chronicpain #undifferentiatedconnectivetissuedisease #emotionalwellness #mood #inflammation #depression #anxiety #endometriosis #epilepsy #fibromyalgia #raynauds #ms #chronicfatiguesyndrome #addisonsdisease #autoimmunedisease #chronicillness #cysticfibrosis #crohnsdisease #lupus #spoonies #scleroderma #invisibleillness #lymedisease #migraines #rheumatoidarthritis #ehlersdanlossyndrome
AVAILABLE NOW! The Infection Game by Dr Sarah Myhill & Craig Robinson explains that our big killers, from cancers & coronaries to dementia & diabetes, are largely infection-driven—while supplying the know-how needed to win the fight against them. Buy the print and e-book for a special and one-time only all-in price on our website. - - - #MEcfs #CFS #MyalgicE #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFIDS #PwME #CFIDS #antibiotics #bookstagram #health #immunesystem #infection #armsrace #dementia #worldalzheimersmonth #alzheimersmonth #alz #alzheimers #std
Boundaries This, I must admit, is sometimes a difficult subject for me. It is easier to put up boundaries than to keep them repaired and in good condition. How do you feel about boundaries?
With all the highs and lows of chronic illness, I’ve had to learn to focus on gratitude, focus on joy, focus on the positive. Let’s face it, sometimes chronic illness is a bunch of suck. Just lots and lots of suck! That suck then sucks the life out of you. It’s drains your energy. Drains your joy. One of the hardest realities I’ve had to face is that our brains are programmed to look for negatives. It’s a survival mechanism meant to protect. It’s good when a lion shows up on the scene, but bad when we hear negative comment from someone and then obsess about it’s meaning (what, you don’t do that too?!). Even when I get great news like yesterday (what a high!!), I still have to focus on the little stuff. Train my brain to look for that, instead of the negative. Here’s my list for yesterday: -Puppy that cuddled me through my harsh morning fatigue -Phlebotomist that got my follow-up blood draw in 1 stick! -Husband that made my smoothy so I could rest. -Friends that graciously work around my body’s crazy schedule and make time for me anyway. -Those same friends cheering with me when I got the phone call from mayo. -Those same friends’ kids who show me lots of love -A new (to me) album from Hillsong, encouraging my heart What’s on your list today? . . . . #workingtowardwellness #gratitude #gratitudejournal #choosejoy #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #fibromyalgia #fibromyalgiawarrior #chronicfatigue #chronicfatiguesyndrome #spoonie #spoonielife #chronicdisease #insomnia #insomniac #bebetternotbitter #better
My view today. I’m resting in bed as we have more rain. I want to talk about meditation today. I am new to meditation. As I’ve aged and my life has changed I found myself in a place emotionally that wasn’t a good place. I began changing my life with diet, lifestyle and exercise. While there was improvement I knew there was still something missing. I have a lot of emotional baggage. A lot that I had not dealt with and it was affecting my living my best life. So I began with guided meditation. It wasn’t easy in the beginning and some days it’s still hard to turn off my mind. But I must say the results have been astounding! I am a changed individual. I am much calmer. The negativity is gone. The panic and anxiety attacks are gone even in what used to be more worst moments. I now recognize triggers that I never acknowledged before. Each day brings a new opportunity to live my best life. In all that has occurred through meditation my pain levels are down and I’m assuming that’s because my stress level is down. I’m resting today but it’s mostly just a bummed out mood. Just one of those days you want to be lazy and watch it rain. I’m not down due to stress, anxiety or pain. Please don’t be closed to giving meditation a chance. And if you do try be patient with yourself. I promise you if you show up each day and remain committed to your mental health you will see changes in your life. Changes that will bring so much peace, joy and love to your world. You will see the world and people in new eyes. Blessed Be. #fibromyalgia #chronicillness #chronicpain #chronicfatiguesyndrome #choices #healing #simple #homesweethome #myreality #plantbased #cleaneating #meditation #herbs #plantmedicine #meditation #lifejourney #triggers #peace #peaceofmind#change #positivity #good #honoryourlife #selfcare
I kept this secret all to myself for a whole week. Didn’t think it would get printed. Emailed Gazette last Tuesday but was too late to go in last weeks paper. I then looked in the paper when mum came back with it & to my surprise I saw my letter was in. Mum at first didn’t know why I was looking so pleased with myself. I then stared at the paper & she then worked it out. Mum is very proud of me for doing this. All what I’ve said is absolutely true!!! I had to do something!!! #Gazette #ThornburyGazette #ThankYouForPrintingIt #MEAwareness #Ignorance #MEIsInvisible #MESufferer #ChronicFatigueSyndrome
Reflecting on the fact that I have to LEAVE this paradise in 48 hours ☹️ • Good things that happened today: 1) Got to chat to @cnicholas22 about his Australian adventure AGAIN (forgot to mention it yesterday, sorry bro) 2) I have done FA all day and it has been amazing. Now to make dinner and open our special bottle of wine. We move onto Pisa tomorrow ✌️ • • • #lblog #lbloggersuk #lblogger #bodypos #bodypositive #curve #curvegirl #positivity #positivevibes #happiness #goodthings #travel #holiday #tuscany #italy #chronicillness #chronicfatiguesyndrome #chronicillnesswarrior
Page 10of 30 here's the bit where that earlier tiny video of me making a cup of Tea fits in (chckle).#adrenalfatigue #cfs #chronicfatiguesyndrome #chronicfatigue #exhaustion #fatigue #fybromyalgia #mecfs #me #tea
Soooo much forgetfulness as of late, guys. Sincerest apologies for that. I have not been getting much sleep lately so my mind is not functioning very well. I have an hour long commute to and from work every morning and evening. When I get home, I should be in bed in less than an hour, but that hasn't been happening lately. Once I move into town I'm hoping to find a good routine, but right now it's super tough. I'll get there though. . . My fibro was so awful yesterday I was so close to crying at work and in public. Which is quite out of my character. My hands were in more pain than they've ever been in a flare. I had to limit my note taking to save myself from even more agony. My hands are still in a lot of pain today, but we'll see how the rest of it goes. . . On the bright side, I learned how to make myself a Latte!! 😂 . . I hope you're having a tolerable pain day 💜 . . . . . #fibromyalgia #chronicillness #chronicpain #spoonie #invisibleillness #chronicfatigue #fibro #fibrowarrior #spoonielife #chronicfatiguesyndrome #depression #anxiety #pain #chronicillnesswarrior #chronicpainwarrior #cfs #ibs #fibromyalgiaawareness #fibrofighter #selfcare #warrior #fibromyalgiawarrior #chronicdisease #chronicallyill #life #painrelief #selflove #faith #survivor #awareness
[Werbung wegen Fredverlinkung] Home sweet home. 😍 Erstmal vielen lieben Dank für eure super lieben Nachrichten gestern! Das war wirklich großartig! Da sag mal einer Instagram sei oberflächlich. 🤗❤ . Ich hatte mich gestern noch mit der Erwerbsunfähigkeitsrente auseinander gesetzt und überlegt, wie es irgendwie gehen könnte (eigentlich geht es nicht). Da mein nächster Gutachtertermin erst Ende Oktober sein sollte, und ich dann ja auch erstmal in Reha soll und so, und ich daher noch ein bisschen Zeit habe, war ich trotzdem wieder etwas entspannter. Irgendwie geht's ja immer weiter. . Außerdem werde ich gucken, dass ich vielleicht doch früher zu einem Immunologen kann. Vielleicht ist das noch ein Ansatz.🤔🤓 . Habe mich dann heute Morgen bei meiner Psychologin ausgekotzt, auch über Freds Herrchen, der mal wieder völlig daneben ist. Für dieses Theater fehlt mir mittlerweile wirklich jedes Verständnis. Aber eine Lösung hat meine Therapeutin natürlich weder für das eine, noch für das andere. 🤷🏽‍♀️ . Zuhause habe ich dann meine Post aufgemacht und Überraschung, es war eine Ladung zum Gutachter dabei. Für Anfang Oktober, am ersten Tag seit 2 Jahren an dem ich mal sowas wie Urlaub mit meiner Schwester mache (sie hatte mir ein Wellnesswochenende zum Geburtstag geschenkt). Also viel früher als erwartet. Und dann auch noch bei einem neuen Gutachter in Bochum, der vermutlich keine Ahnung von CFS hat (der vorherige Gutachter, der mir im Rahmen seiner Möglichkeiten mehr oder weniger geholfen hat, und sich über CFS informiert hat, steht aus unbekannten Gründen nicht mehr zur Verfügung). 🙄🤦🏽‍♀️ .. . Also, ich bin ja echt nicht der Typ, der gerne jammert. Aber ernsthaft, mein Leben macht es mir wirklich nicht leicht positiv zu bleiben. 🤷🏽‍♀️🙄🤨 . Mein Sachbearbeiter bei der Versicherung war ausnahmsweise mal gut drauf und verschiebt den Termin. Immerhin. 🤷🏽‍♀️ . Zurück zum Problem mit der Erwerbsunfähigkeit, es muss eine Lösung her: Es hat nicht zufällig doch wer ne Million oder so, die er mir geben könnte, oder? 🤔😁 Würde mich auch mit lebenslanger Dankbarkeit und Keksen oder so, erkenntlich zeigen. ❤ Ich finde, das wäre schon ne Überlegung wert. 😉😂
Each new page starts with bold so I know where I've got to.its not significant.thid is page 4. #mecfs #me #cfs #chronicfatiguesyndrome #chronicfatigue #exhaustion #fybromyalgia #fatigue
New blog post is up! ‘Should Thyroid Patients Have The Flu Vaccination?’ 💉 The topic of vaccinations is always very controversial and heated, but I’ve covered both sides of the argument to consider when you’re a thyroid patient faced with the decision of a flu jab. You decide for yourself. 🦋💙#hypothyroidism #underactivethyroid #chronicillness #chronicfatiguesyndrome #chronicfatigue #thyroiddisease #thyroidwarrior #hashis #hashimotos #hashimotosthyroiditis #hashimotosdisease #hashimotoswarrior #adrenalfatigue #autoimmune #autoimmunedisease #thyroidawareness #spoonie #theinvisiblehypothyroidism
Had my first shot last night. I’d like to thank Mini Me for fighting through tears (hers) and phobia (hers) and pushing through to be my extra hand. Now let’s kick some #fibromyalgia /#chronicfatiguesyndrome ass! But first, I’m gonna kick this remote control’s ass and watch that #ahsapocalypse premiere. #b12shots #b12injections #b12deficiency #fatigue #spoonielife #spoonie
#review time! I bought this weighted cat (Tabby Fidgety Cat) off Amazon for £27.99. I find weighted items extremely helpful, especially if they're nice to stroke, & the added fidget/stim toys are an extra bonus! As this is aimed at dementia patients/the elderly it did say it was very lightly weighted, although the weight was not given. I weigh it as 325g. It's a really nice size, extremely soft, & you can definitely feel the weight. There's a ribbon (which I'm not a huge fan of although it's nice to plait!), large wooden beads (which I love) & a thick plastic-y pocket. The cat also comes wearing a collar with a bell (see 2nd pic!), but as it's a velvet-y collar & I have huge issues with velvet, I took it off. I find it's much nicer feeling with the collar off too 🙂 This is a perfect alternative to constantly along Finley for pressure, or hoping the cats choose to spend all their time lying on me 😂,I absolutely love it so far, although ss I'd prefer the weight to be closer to 1kg I might put something in the pocket to add extra weight. But overall it seems great! I've called him Toshi...Derghan is very jealous, I keep telling him this isn't to replace him 😂 #actuallyautistic #stimtoy #weightedblanket #cuddlytoy #fidgettoy #autism #ASD #assistancedog #stormali #60mphwinds #spoonie #disabled #disability #chronicpain #POTSsyndrome #dysautonomia #hypermobile #chronicpain #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicallyill #chronicillness #kitten #catsofinstagram
#repost of a repost of a repost - I took it from @thespooniesisterhood 😊 Progress. Yesterday I felt so sick, with a brain fog, nausea and stomach pain. I was complaining to myself about feeling so miserable. As I was complaining, I brushed my teeth, loaded the dishwasher and responded to my mum's text. I then remembered me a month ago. I couldn't brush my teeth for a week. I didn't shower for two weeks. I was ordering uber eats and dirty containers were accumulating on my floor, I didn't have it in me to clean them up. My lowest point now is such a tremendous progress from how I felt in the past. This is my progress. This is something to be proud of. 😊 #spoonie #chronicillness #mentalhealth #proud #progress #badday #cyclicvomitingsyndrome #strong #gettingbetter #spooniestrong #chronicfatiguesyndrome #bipolardisorder #depression #itgetsbetter #myownhero #iammyownhero #warrior #mentalhealthwarrior
You don’t need to be a leader to make a difference in this world. You don’t need to be healthy to make a difference. You don’t need to make a grand gesture to make a difference. You can make a difference through the smallest of ways. By offering a smile to a stranger on the street who might be having a bad day. By offering a family member a listening ear or a shoulder to cry on. By sticking with a friend who struggles with life. By saying ‘I understand’ and ‘I am here for you’ and showing it. You make a difference by loving someone and making sure they know. ⠀ ⠀ Never underestimate how your existence can change someone else’s world entirely.💕⠀ ⠀ [Image description: a picture of two shadowy stock figures, one supporting the other by physically offering their shoulder for the other to put their arm around. There are stars everywhere around them. in the middle the text: ‘Helping one person might not change the world. But it might change the world of one person’.]⠀ ⠀ #spoonie #spoonielife #spooniewarriors #chronicillness #illness #invisibleillness #chronicfatiguesyndrome #cfsme #cfs #mecfs #ibs #gravesdisease #autoimmunedisease #autoimmune #fibromyalgia #fibro #menieresdisease #menieres #anxiety #healthanxiety #vertigo #fatigue #migraine #chronicpain #tinnitus #hearingloss #mentalhealth #awareness
I have been entertained by this for the last hour and a half 😁 clearly I am a child. The little squares come off so you can make your own pictures life a Lego notebook! I decorated the back too 😊 @ginaka2 I love it ❤ Does anyone else find that they get entertained by really little things when they feel poorly? Like, grown up things hold no interest but you feel like if you had your pick of the toy shop and kids tv that you'd feel better? ☺ _ #chronicallyfatiguedme  #itsthelittlethings #stationery #chronicillnessmeme #chronicillnesscommunity #meawareness #mecfs #myalgicencephalomyelitis #myalgicencephalopathy #chronicfatiguesyndrome #cfsme #cfs   #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnesswarrior #butyoudontlookill #butyoudontlooksick #Invisibleillness   #dontforgetaboutME #actionforME #millionsmissing #spoonie #spoonies #spooniesupport
Really fancy some of these 🤤 looked much nicer than my lunch (which was really nice though and would have gone perfectly with these! Pita bread with Quorn chicken, salad and Nando’s lemon and herb Piri Piri sauce but forgot to picture because I’m totally out of it 🙁🙈) Sorry for lack of posting! Just not feeling very well and very stressed. My Drs surgery won’t prescribe me the Ivabradine so am waiting for the cardiologist to sort it out and I’m worried about how I’m going to feel if I come off them. I have 4 days worth left 🙁 They haven’t done masses but they’ve definitely helped 🙁 In other news I have no washing machine and am running out of pants 😂 #pots #potssyndrome #Eds #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #anxietyrecovery #chronicfatiguesyndrome #chronicillness #chronicillnessawareness #chronicillnesswarrior #anorexiarecovery #edrecovery #eatittobeatit #recovery #spoonie #spooniestrong #spoonieproblems #spoonielife
it's frustrating to be exhausted the very minute you wake up, Even after a full night's sleep. 😴 Today all I've been able to do is the bare minimum. Now I'm just sitting watching YouTube and trying to doodle something. 🐥 To some people I must seem very lazy, but I don't have the luxury to be lazy, you'd have to have the means to do stuff and choose not to. 😐 This isn't a choice. I don't even remember what it feels like to have a normal amount of energy for the day. heck I don't even remember what having half the energy feels like! 😭 I just wish I could do normal things. I wish I could study or work but I can't. I wish I could see my friends, go to a movie, clean my closet, earn money. but I can't. Hope someday it'll change 🌼 ~J~ #fatigue #imsotired #alwaystired #chronicillness #chronicfatiguesyndrome #chronicfatigue #tiredofbeingtired #tirednotlazy #depression #anxiety #livingwithdepression
Here I am with my feet up in a chair last week at Devil's Dyke. @aikopriv made sure I had it (even going so far as to tell the pub staff that I need my feet up for medical reasons and not to bug me about it 😂). She and the others then went for a walk while I, necessarily, was left in the pub, with my coke and a portion of chips. As lovely as all of this was, it’s times like these that disability is reinforced to me; when I necessarily have to be left behind, because I don’t have the energy, the route isn’t accessible or it just isn’t practical to bring along a girl in a wheelchair. Don’t get me wrong, no one abandoned me and I’ve made peace with this reality for the most part. It’s just that the reality of disability stings, as much as I try to insulate myself from it. Sometimes, no amount of positive thinking, filling my life with disability-friendly activities and understanding friends takes the edge off of disability. Sometimes it just sucks. And that’s okay too. [image description: my feet are up on a chair and the interior of a pub is visible in the background.] • • • #heds #eds #ehlersdanlos #pots #potsie #dysautonomia #myalgicencephalomyelitis #chronicfatiguesyndrome #cfs #spoonies #chronicillness #disabled #disability #invisibleillness #butyoudontlooksick #wheelchair #devilsdyke
Brain Fog is one of the symptoms we frequently see our clients struggle with as part of the cluster of symptoms associated with cfs/me, fibromyalgia. As overall improvement is experienced with personalized homeopathic treatment, the brain fog lifts as well. The holistic approach of homeopathy takes the full cluster of your individual symptom picture into consideration when choosing the homeopathic medicines for your specific case. Always natural and no side-effects 🍃🌺 #holisticmedicine #brainfog #cfsrecovery #painawareness #mecfs #cfsme #fibromyalgia #fibromom #cfsawareness #invisibleillness #SevereME #chronicillnesswarrior #chronicpain #chronicfatiguesyndrome #unrestfilm #homeopathy #homeopathycfs #homeopathyme #homeopathyfibro #naturalteatmentcfsme #gardasilgirls #hpvvaccineinjury #vaccineinjury #homeopathicdetox
“Bald girls can be princesses too ❤️” •••••••••••••••••••••••••••••••••••••••••••••••••••••• Check out one of our amazing ambassadors Savannah proving beauty doesn’t have to be defined by societal standards! Today we hope you take the time to love the gorgeous body you’re in whether you’re tall or short, have a body that has changed a lot recently, have a new medical accessory, or maybe a part of your body you’re still working on loving! 🤗 •••••••••••••••••••••••••••••••••••••••••••••••••••••• ⬇️⬇️Tag a beautiful human below & help us prove beauty can look different on everyone! #sickfightsback #fightlikeawarrior • • • • • • #chronicillness #chronicpain #chronicfatiguesyndrome #epilepsy #endometriosis #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #autoimmunedisease #arthritis #anxiety #scoliosis #spoonie #dysautonomia #fibromyalgia #gastroparesis #lupus #lymedisease #cysticfibrosis #migraine #mentalhealth #type1diabetes #crohnsdisease #colitis #mitochondrialdisease #eatingdisorderrecovery
Too bloody tired to drive home so matey serving up coffee..why tell this story? Folks with .M.E need coffee for the hit.. without it it's lights out or close.i often sound drunk .pupils dilate etc lolling head..it's brainfog x10 coffee leaves me manic but it's the shot that fixes things for an hour then the body can't rest and the mind races but total exhaustion sets in.i will be in bed now for a few days..but I used to build and restore sports cars after a change of career from chartered surveyor following my last car accident..I gently point out this page is for M.E etc and this isn't me looking for sympathy. That's not love, just irritating.#mecfs #me #cfs #chronicfatiguesyndrome #chronicfatigue #exhaustion #fybromyalgia .
A friend had me visit him..A trip out in the Aston Martin Peugeot (Bluebell in background)...I've been standing five mins I'm shattered so me off home ..but he knew I'd love this sports car..I did. And still do..dreams🙄 xxxxxxxx. #mecfs #me #cfs #chronicfatiguesyndrome #chronicfatigue #exhaustion #fybromyalgia #fatigue #dreams
One of them days 🤷🏻‍♀️💭💭💭#fordayswhenyoudonthavetheenergytosayit #sorrynotsorry
🌱The 3 basic things in life that we need to be healthy are clean water, clean food and clean air. . . . 🌱Air, would probably be the most important since you take a breath abour 16 times every minute. . . . 🌱Putting some awesome house plants in your home can help to clean the air and make for a beautiful environment. . . 🌱In fact, for some people the act of watering and caring for a plant can even reduce stress. . . 🌱If you are suffering with a health or weight problem and would like some help please go to my website and fill out my free online weight loss and health evaluation and one of my wonderful staff will get back with you ASAP. . . . 🌱For Instagram the link is in my bio. . . 🌱www.alternacareinc.com/healthcare-evaluation . . . 🌱Image creds go to @consciousvibrancy . #alternacare #weightlossjourney #weightloss #autoimmunedisease #thyroidhealth #thyroiddiseasewarrior #adrenalfatigue #rheumatoidarthritis #lupas #chronicfatiguesyndrome #chronicfatigue #anxiety #depression #leakygut #leakygutsyndrome #holistichealth #cleaneating #thenewhealthy #functionalmedicine #holistic #wellness #naturalmedicine #healthandwellness
It's my birthday! Woke up to this beautiful mesage on the mirror 🤗 i am so greatful for having my family and so much love around💖💖 Having a chronic illness like ME/CFS can really mess up with your mind. You might begin to believe that you have no worth (because of hours of pain and staying in bed), you will learn that those who don't share a similar condition with you will never really understand what you are going through, but that doesn't mean thay can't feel your pain and share love with you. Today, choose to focus on little bright and shiny spots in your life🌟 Count every smile, hug and good word you hear, get or give to others🌟 And don't forget to share here also so others can be inspired too 💙 .  #chooseyourlife #This_is_ME #cfsme #vida   #love #chronicfatiguesyndrome #fadigacronica #fadigacrônica #fibro #fibromyalgia #fibromialgia #vida #chronicfatigue #inspiration #mindfulness #mind #bodyandsoul #soul #alma #afirmação #affirmation #sindromedafadigacronica #cura #healing #blog #chronicpain #myalgicencephalomyelitis
Here’s something most of u won’t know about me. I suffer with severe fibromyalgia. I was diagnosed in my early 20’s after spending thousands of pounds on specialists to get answers. My rheumatologist said I’d be in a wheelchair by the time I hit 30, due to the serious mobility issues I suffer. I swore I wouldn’t let that happen & I fight everyday to keep moving & to look like nothing is wrong with me. I’m writing this to show that u should never judge a book by its cover. Some days it’s taken incredibly strength for me to battle through the agony, put my face on & smile as I struggle to do everyday tasks most people take for granted. I don’t want to complain or say why me, because why not me? I left my tv work because my health struggles & pain were making it impossible to be reliable for live tv! The reason I count as severe, is because I suffer with every single symptom ever recorded as part of fibro, & I also have a few other autoimmune conditions where my body attacks itself. I’m only sharing this now as today is particularly bad! I didn’t sleep a wink with excruciating leg & knee pain that has persisted all day 😢 the knees seize up & its extremely painful to straighten them & walk, but I know if I don’t I could end up needing a wheelchair. Whatever conditions you suffer with just remember, there’s always someone worse off. Fight everyday because to be alive is a blessing & not a given. I’m extremely lucky to have the family & loved ones & have & id suffer every single day all over again if it meant I got to share this life with them. Be blessed & conquer everyday 💪🏻😊 #fibromyalgia #extremepain #muscleaches #jointpains #chronicfatiguesyndrome #problemsfromheadtotoe #everydayabattle #dontgiveup
Cabbage/carrot/pepper/tomato salad with sesame seed oil/brags/ginger/cumin/lime served with raw bread. 🤗eat real food and never go hungry. A hungry body is a starved body! #detoxretreat #chronicfatiguesyndrome #raw #livingmucusfree #healingfoods #cleanse #salad #detoxfoods
When I fast i make the best food... zucchini, asian pear, peppers, mange tout, carrots with a tomato/onion/ginger/turmeric/date/lime/brags sauce #detoxretreat #chronicfatiguesyndrome #livingmucusfree #detox #fruit #cleanse #healingfoods
Im excited to be heading off after work tomorrow to spend the weekend housesitting at the beach. A different beach to my beach, about 90 minutes north of home. Planning to enjoy walks, books, quiet time, photo taking, and handily timed that my brother car got dropped off today. Worked out it’s worth 10x the amount of my car. When I bought my car my Wishlist was one that would get me from A to Z and had cup holders as when my previous car had been broken into they took the cup holders which was most inconvenient!!
Spring is here but the nights are cool. Trying to set aside all the thoughts about to do lists. Rest now and tomorrow I will employ my #TinyTasks strategy to work through and get some of those things done. Tiny tasks are bight size steps that inch me towards completing bigger tasks. Sometimes I write out the steps. Other times the steps are clear but our head tends to jump to wanting to be able to do it start to finish or not face getting started. You can do #TinyTasks one at a time even with a rest inbetween or one today and one tomorrow towarda a particular goal. What can you break down into #TinyTasks to get started on today (or tomorrow)? Please share and get #TinyTasks into the spoonie vocabulary and tool kit. DM me your email address and I will add you to my Little Letters newsletter. (Book Discount code!!) 2nd image:So many of us with chronic illness are high achievers and very capable people. When chronic illness messes with this it gets so hard to recalibrate and approach tasks and goals in a new way. Chipping away even a mimute at a time may be a helpful approach. Breaking things into #TinyTasks that are manageable on more days rather than only good days. Being faced with work on X overall task, goal or project is bound to be overwhelming when simple tasks like showering take so much effort. If you have a list of #TinyTasks you can spend 1, 5 or 15 minutes inching forward instead of spending even longer with swirling thoughts around your head about where to start or if it's worth it for a few minutes. We can waste so much energy in a murky muddle when energy and brain power are low. Do #TinyTasks make sense to you? Is there something you are working on with this sort of approach already? Or is there something you now want to try with #TinyTasks ? I'd love to hear. I use my #TinyTasks method for working on my website and writing projects like finishing me new Get Creative ebook-Unlock Time and Energy so you can fit Creative Activities into Your Life (whatever your life looks like….).(link in bio) as well as baking, sewing and craft projects. I also use it around the house and for anything challenging to plan/deal with/work through.
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