#chronicillness

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S E L F L O V E || I started viewing Resting As an act Of love And self care. Now it's a priority Not a secondary thing I'm forced into doing Because my body Is no longer able To do What it used to. I choose To rest Now. . . . . Normally I've done all my xmas shopping/making by now. I've told my siblings what were doing. I've done some xmas baking. Planned the beautiful feast on xmas day. I'm in the xmas spirit. I was blessed to have almost 4 weeks or very improved health recently. But as with this illness those bursts never last and I was surprised it lasted this long. I've fallen into a bad crash where my joint/bone pain is raging. What's helping me through this time, where you can feel quite helpless to this illness, is definitely practicing mindfulness, putting things into perspective, using uplifting and grounding essential oils, listening to music and embodying acceptance. This time of year puts everyone into a dizzying, glistening, exhausting state sick or not. Take extra care of yourself, enjoy what you can, rest as often as you need to help you through and count your blessings ♡ #perception #selfawareness #rest #acceptance #growthroughwhatyougothrough #mindfulness #bekindtoyourself #selfcompassion #selflove #healing #wellbeing #chronicillness #invisibleillness #chronicpain #fibromyalgia #myalgicencephalomyelitis #spoonie #mecfs #catsofinstagram
A #mindfog mood (orange and yellow acrylic paint with fine liner on watercolour paper.) #chronicillness #chronicillnesswarrior
@hagrid_dobby_ellie and Quincy having pre-CGC snuggles to calm their nerves before the test tonight💜🐩
Love new traditions during the holidays. Loved walking around looking at Christmas lights with my sister and nieces ❤️🎄🥄
Dear Frankenbelly, I’m sorry for all the times I said I hated you. You’ve been through a lot, and you’re proof I’m a warrior! • Dear Endo Belly, I’m sorry for all the times I’ve been ashamed of you. It’s never your fault, and today it’s okay you’re being so extra. • Dear Body, I’m sorry for all the times I’ve called you ugly. You’re what literally carries me through my toughest battles, and I’m so grateful to have you. • Love, Kim . . . . . . . . . . . . . Personal account: @onlygagacanjudgeme . #endometriosis #fibromyalgia #adenomyosis #pain #sick #chronicpain #endo #endofendo #excision #chronicillness #spooniespice #invisibleillness #endometriosisawareness #spoonie #endowarrior #scars #endosisters #endostrong #spooniestrong #fightlikeagirl #hospital #spoonielife #spoonieproblems #chronicpainwarrior #periodproblems #surgery #endobelly #frankenstein #selflove #bodypositive
Repost from @drnicolegalante _ Disease Reversal Nighttime Meditation from Liver Rescue by @medicalmedium - At night, call upon the Angels of Order (bring order to a diseased, inflamed, or weakened liver) out loud. Close your eyes and envision these 3 angels around you in bed, walking in a circle around you. See them creating a pressure of light in the circle and applying this pressure of light to your body and into your liver. Continue to envision this for as long as you can, whether 3 minutes or 30 minutes or until you fall asleep for assistance with healing your body and liver. 🙏😇😴
Quincy just passed the CGC test!! Yay! She did awesome with no training tools, treats, or anything! Just a flat collar and a handsfree leash 💪🏻 so proud of how far we have come 😭💜🐩 thank you @obedientbeast for teaching us again 💕
http://siardica.weebly.com #writing #poetry #poem #chronicillness
Just a girl and her dog checking out the Christmas Tree. 🎄🎄 It was a completely uneventful day for us! Thank goodness, because we have eye doctor Wednesday, dentist Thursday, and ENT and CF Clinic Friday. Must be the end of the year! Deductible resets January 1 😫🥺😭 Hope you all have a great week, and STAY HEALTHY! All these appointments freak me out just a bit right before Christmas. Masks and hand sanitizer for the win!! #christmastree #christmas #boxer #agirlandherdog #girlsbestfriend #lazyday #tuesdayvibes #doctorsappointment #dentist #eyedoctor #clinic #ent #cysticfibrosis #asthma #sinusitis #happyholidays #chronicillness #specialneeds #cffamily #raisingteens #spoonie #spoonielife #justbreathe
This last month has been a tough one. I lost someone very dear to me and my whole world has been turned upside down. The stress has caused my CRPS to flare up like never before. Today I spent an hour at the beach, walking in the water, wiggling my toes in the sand. It was just the grounding I needed. There is nothing like the sound of the sea and Mother Nature to soothe your soul. So grateful ❤️🙏🏻 . . . #takingcareofme #thesea #mothernature #tasmania #discovertssmania #crps #crpsawareness #chronicillness #chronicpain #complexregionalpainsyndrome #beach #grounding #gratitude #selfcare
I’ve spent the afternoon looking at festive Christmas pictures of Xavier and friends. It’s been bittersweet. I miss my friend. I miss his loud laughter and the way he always mispronounced words. I miss our adventures. I miss his hugs. Looking at the pictures I also miss me. I think this picture, taken at Santacon a few years ago, is the perfect visual depiction of how it has been for me the last few years. My father-in-law had died a few days before this picture. I was at a loss as to how to help my husband through his pain. We had just recovered as a couple from the loss of Tristan now we were faced with new challenges. My health was quickly deteriorating as well. On this day I was feeling completely broken and lost. I’m there but I’m separate, physically and mentally. My grief made me separate. My pain and fatigue made me separate. My anxiety and depression, my guilt and fear, and the anger and frustration I felt made me separate. I looked at picture after picture and remembered how alone I felt in each one. When I first started getting sick Xavier would become frustrated at me. He couldn’t understand why I couldn’t just push through and suck it up. After he injured his leg he started to understand my situation a little better. He and I had several deep conversations about how miserable and terrifying it is to be young and not be able to do the things you want; to still feel like yourself inside but trapped inside a physical body that is falling apart. The idea of going through something like that scared him. He saw how it was breaking me. Xavier was the one person aside from my husband that really took the time to reach out and make sure I was ok and that Kenny was ok. He would still get frustrated at me for bailing but he never stopped asking me to come along. I’m in a better place now. I’m not physically better but I’m much better at coping with my situation. Only, I don’t have Xavier there to laugh about it. I miss you, my friend. #xavierfretard #missyou #santacon #christmas #gonebutnotforgotten #chronicpain #chronicillness illness #chronicfatigue #raredisease #fibromyalgia #autoinflammatory #depression #anxiety #invisibleillness #spoonie #spoonieproblems
The last few days have been a bit chaotic here. The money was due to register our vehicle and we do not have it. Originally we were going to get a rental, but that did not work out so in the mean time my family shares the car and uses uber to get to and from work. It's something we did not expect and sucks having two vehicles unable to use one and having to pay for rides, but it is what it is and being sad and angry won't fix this, though we all had our moments. Now it's all about focusing on what we do have and what moving is giving us slowly but surely. Eventually these storms will pass and we just need to get through it all. Today we ran a few errands and I love getting out!!! I feel like my dog but who cares?! I love car rides now! They use to be brutal, but I can tolerate them more in Nevada. Being home all day, it's great to get out for a little bit and seeing the mountains when I can! See the snow caps in the second pic?! There even more stunning in person and one day I'll get a better picture, I promise. But truly seeing mountains each day is such a blessing. It's also so awesome seeing snow but not having to feel it.❄💕 Hope you are having the best day you can! We hit a few bumps over here, but were hanging in there. Sending love and hugs your way! . . . P.S My phone has slowed its data drastically, but in a few days I will be posting more instagram stories again and posting more regularly. If only high speed data was unlimited haha . . . #mountains #snowtops #snow #dryclimate #desert #flannel #chronicpain #chronicillness #chronicbackpain #spoonielife #spoontheory #invisibleillness #doilooksick #ehlersdanlossyndrome #ehlersdanlos #heds #hypermobilty #legalizemedicalmarijuana #medicalrefugee #risingzebra
The brains intricate circulatory system 😳🤯. Mind blowing, ah. And, probably a good idea to look after it 😉. #sydney #biology #travelgram #anatomy #skeleton #world #science #blood #naturopath #foodasmedicine #nutrition #nutritionist #functionalmedicine #wholefoods @bodyworldsvital
As we close out 2018, I have a lot of things to be thankful for. One in particular is my life itself. I've kept this pretty seperate but it's time to speak up for what I stand for now with my new Foundation, EmPOWERThePATIENTS @empower_hart. 7 months ago I was diagnosed with Graves Disease which is a severe overactive thyroid. After several attempts to get it into remission, I ended up needing a total thyroidectomy. Graves is an autoimmune disease which means I have it for life but removing my thyroid helped with the symptoms. A week after my surgery I started having breathing and heart issues, dropped 35lbs and was recently diagnosed with a pheochromocytoma, a 1-8 in 1million rare tumor on my adrenal gland. If not treated quickly and carefully it can be fatal. Throughout this journey I decided to standup and advocate for rare disease and chronic illness patients, especially those with "invisible illness"... Don't I look fine in these pictures? You'd never know I spend most of my days at Cleveland Clinic now. It's so important to be kind and not to judge others because you never know what they are going through. Be grateful for what you have and cherish everyday. Always believe in yourself because with that, you can overcome anything 🙏🙏 🎗️🎗️🎗️🎗️🎗️🎗️🎗️🎗️🎗️🎗️🎗️🎗️ . . . #EmPOWERThePATIENTS #raredisease #warrior #autoimmunedisease #autoimmune #chronicillness #invisibleillness #spoonie #invisibledisability #spoonielife #hashimotos #gravesdisease #butyoudontlooksick #lupus #survivor #survivorseries #inspiration #motivation #pots #chronicfatigue #illness #patient #healthcare #advocare #anxiety #empower #selfcare #awareness #fibromyalgia #mentalhealth
Earlier in the day I cried because my doctors still can’t figure out why I’m experiencing these symptoms. “It’s never going to get any better than this,” I thought, “Can I really get through med school like this?” The day ended with my mom showing me a really cute, potential interview suit because application season is fast approaching. This is #chroniclife . Take the hits. Pick up your head. Keep moving forward. #autoimmunedisease #chronicillness #lupus #heartfailure #premed #saltlakecity
How are you with saying no? I am a work in progress as far as this skill goes but having children has, fortunately, given me a ton of progress. I remember reading some scientific research once about how offspring are biologically wired to try to get more from their mothers than the mothers can provide and still survive. That sounds about right, in my experience. My kids have never been like, “yes, you deserve to sleep in and then go have a spa day.” In order to do treat myself the way I deserve to be treated, I have really have to practice at saying no. This is especially hard for the people pleaser in me, who would prefer never to disappoint anyone. But I love what Brene Brown says about always trying to choose disappointing someone over feeling resentful. Sometimes I have to use my phone a friend and call someone who can help remind me that boundaries are compassionate for everyone involved and that it’s not my job to protect everyone against disappointment. Here’s my son practicing today with this pretty amazing boundary setting tool that might come in handy as you navigate holiday demands and remember that YOU MATTER. Your self-care matters. It’s the first thing that matters. Today: morning snuggles; not waking up sick; hanging out by the fire; O laughing his head off about the no microphone; doing a dance workout with O running around and my mom helping so much; my dad having safe travels; being able to work from here; working a full day but having it go by so fast and just feeling so grateful for that; prioritizing my self care today; driving through my old neighborhood and telling O fun stories; driving up Parley’s Canyon listening to old CD’s I made and singing along; having such a fun afternoon with old friends and new ones, educating people about stuff that matters to me; the gorgeous views from M’s house; snuggling with O on the couch; my little buddy chatting with me on the drive home; Facetiming with S and E; O devouring his burrito; making it to bedtime; a little time to myself to sit by the fire and read.
BioSuperfood restores the inner genius of the body to spark a revolution against aging and disease.˙⁣ ⁣ By regrouping thousands of naturally occurring, balanced, and synergistic nutrients to overcome the inefficiencies and blockages in the digestive system. BioSuperfood increases nutrient absorption, enhances regeneration of all cells, reduces the load on the cleansing organs of the body, and awakens the hypothalamus. This in turn triggers cellular awakening and metabolic healing in the trillions of cells in your body, boosting your immune and nervous systems and other vital organs. The downward spiral towards disease is reversed into an upward spiral back to health and vitality.⁣ ⁣ #amino #astaxanthin #biosuperfood #brainhealth #cancerawareness #chronicillness #diseaseprevention #enzymes #foodallergies #guthealth #guthealthmatters #healingfoods #holistichealth #holisticnutrition #macronutrients #micronutrients #naturalenergy #naturalhealth #nutrientdense #nutrients #nutritioniskey #organicfood #plantbased #plantbasedfood #proteinfood #spirulina #superfood #superfoodnutrition #vitamins #wholefood
Respect your body's limits ❤ I have found this to be literally the hardest thing about chronic illness. Because in my case most of my symptoms and consequences happen *after* doing something (although some are sooner). So its tempting to ignore my limits because i tend to think im stronger than I actually am. As y'all can guess, I'm not, which i usually am painfully reminded of after the activity or exertion has passed and its too late. 🙃 I'm still learning to pay attention to my body's warning signals. Today i socialized with some people, and took a break partway through due to those signals, to lay down and then eat my secret stash food im the hall before going back in. Due to recognizing those signals, i knew to head home after to lay down rather than go hang out more after. Even tho i wanted to go. Because of listening to my body, i was able to have a safe and fun night out and minimize the damage, rather than risking causing a flare (fingers crossed at least...) Listen to your body, and be safe ❤✌ - - - - #lifelessons #chronicillness #chronicillnesslife #chronicallybadass #invisiblydisabled #bread #disabled #disabledandcute #queer #wheelchair #wheelchairlife #mobilityaid #wheels
Currently acting as a heating pad for mama #hotdog #chiweenie #chronicillness #bestfriend #sleepy
Fun fact about my past: many years ago, long before my physical ailments I used to be a dancer 🙃 For about 8 years, I danced hip hop (believe it) for a dance company and it gave me life. Ever since I was old enough to walk I was swaying to the beat of every song I heard. However thanks to 5 immensely stressful college years, and my declining health these last couple years, I had to give it up back in 2011. . . These days I’m constantly being told what I can and cannot do. Doctors who have known me for 5 paid minutes set these massive limitations on what I’m able to achieve and I’m tired of it. So this month I decided to get my ass back on the dance floor, even if it killed me. And it was one of the best decisions I’ve ever made. Every class I’m reminded how lucky I am that I still have legs that can withstand my weight for any amount of time. And it gives me hope for my future. Sure, its incredibly painful and at least one joint partially dislocates every week, but hell that happens when I sit down to pee, so at least now I’m lookin good while falling apart 💃 😎 . Major props to the best dance partner I could ever ask for @frankskupien , who had never taken a class in his life but is getting out there and pushing himself out of his comfort zone anyways. SO proud of you babe ❤️ . . #babysteps #salsa #latindance #dance #danceclass #learning #growing #couplesgoals #love #passion #therapy #mentalhealth #chronicpain #chronicillness #EDS #fibromyalgia #POTS #polyneuropathy #strongwomen #chronicpainwarrior #evolve #pain #fuckyou #loveyourself #loveyourlife #anxiety #depression #PTSD #mentalhealth #win
Trying to help my back by slowly and slightly improving its arch where I can. I may have #ankylosingspondylitis but it isn't totally fused yet! #chronicillness #backissues #inflammation #yoga #yogi #chronicallyillyogi #patientlife #spoonie #stretching #startlowgoslow #smallsteps
When you go deeply into the present, gratitude rises spontaneously - Eckhart Tolle Coming back to the present is my number one practice these days. I truly believe if you can be present in a moment it becomes a lot easier to stay tuned into your authentic self. And if you're operating from your authentic self, you can show up in that space. And that's all we really have to do. Show up. Be present. Be authentic. But sometimes even when you show up, it doesn't paint the perfect imagine of your self. And that's okay. I think we get wrapped in this idea that our best version of our self is only shown as this happy, joyful self. Sometimes, showing up in the challenging, draining, sorrow filled moments is our best self. Because in those moments we are becoming. And through becoming, we are the most purest, authentic, beautiful, messy version of ourselves. And that's worth celebrating. Even through tears. Your messy, heavy, saddened, yet authentic version of you today is worth celebrating. And if I was sitting beside you I would have gratitude for you. Just as you are. #becoming #bestself #autoimmunedisease #chronicillness #leakygut #soul #love #peace #kindness #bekindtooneanother #authenticity #supportoneanother
Yes. Yes. Yes.
In a way, I'm lucky that I experienced sickness from a young age. I grew up with it, I was molded by it, I didn't see the outside of hospital walls until I was already a woman. Jokes aside, being diagnosed with Crohn's at 11 allowed me to have a longer period to adjust to my body and all that has happened to it. I still struggled, I had problems with my body image, I was in pain all the time, but being ill so young has taught me how to be strong as a young adult. . . . . . . . . . . . . #mexico #vacation #inspire #travelgirl #travelblogger #travel #cruise #vacation #luxury #lifestyle #styleblogger #style #trip #explore #adventure #believeinyourself #anxiety #chronicillness #chronicpain #christmastree #christmasgifts #winter #crohns #ibd #migraine #ootd #cruiseship #playadelcarmen
So many exciting things tonight!🥰🙌🏼😲 - - 🎄Learned about a new product launch (see stories!)💊 - - - 🎄New program to start the new year goals while qualifying to win prizes! 🎁 - - - 🎄 Team call with leaders where I won a cute beanie for building my business this month! - - Guys if you are already planning on trying to be healthier and lose weight in 2019, you are gonna want these tools to help you reach your goals!! And why not make extra money by helping people work towards their goals with you??! Getting your own products for free is a no brainer! 😜 - - #glutenfree #nongmo #vegitarian #plantsonly #poweredbyplants #workharderandsmarter #weightloss #weightlossgoals #newyearsresolution #newyearsresolution2019 #extraincome #livehealthy #feelbetter #lookbetter #instafit #plexus #metaburn #suppliments #holistichealing #chronicillness #spoonie #crunchy #crunchylife #crunchymom #holistichealing #promocode #discount
I can’t believe that people are being told that fruit is bad! Chances are the same tainted sources scaring you away from eating fruit are most likely encouraging you to eat more EGGS and more PROTEIN PROTEIN PROTEIN!! ... do yourself a favour, and please allow me to guide you towards a second opinion on this matter—as my source @medicalmedium has the clean, untampered with truth about fruit and your health.... please be open minded to the fact that you may have been misdirected and misinformed about fruit... but I’m here to support and share with you that if you want to live a long healthy life, and have a chance to be a future centurion—you must not be afraid to eat fruit...and lots of it! “There is a movement at the top of our health industries, both conventional and alternative, that is intentionally trying to steer you away from eating fruit, even though fruit has been known to be healthful and necessary for our well-being since the beginning of time. It may be difficult to believe that those in the medical world do not have our best interest in mind. However, the medical industry is just that: an industry. As much as we try to think of the entire world of health care as pure in motive, it is still a business, and a massive one at that. When money is involved, especially to the degree it is in the medical industry, motivations are skewed and greed creeps in. If the population eats less fruit, the medical industry makes more money from pharmaceuticals, procedures, and care that suddenly become vastly more necessary due to the increase in chronic illness.” Anthony William 💚SPIRIT💚 . . . . #medicalmedium #SPIRIT #thyroidhealing #lifechangingfoods #liverrescue #thesmileenthusiast #helpingothers #autoimmunedisease #chronicillness #antiinflammatory #vessel #youtuber #followme #knowledgeispower #awareness #raisingawareness #futurecenturion #100 #goodlife #healthylifestyle #longevity #centurion #londonontario #smileaerobics #organic #livelong #instahealth #fruitfear #nofruitfear
Work lunches don't actually have to suck, just sayin! 👌🏻 This week I made a Massman-ish curry in the #instantpot with chicken thighs, onion, scallion, coconut milk, garlic, and ginger. After releasing the pressure, I stirred in baby spinach and some sous-vide eggplant that Nick made earlier in the day. Reheat at work and top with two medium-boiled eggs. Happy desk lunch, sorted. 😘 (Admittedly I worked from home today because my body is still very mad at me for last week's fooding, but this is my lunch M-F this week!) ⏳ Macros: 48P/26F/20C (not including eggs) 💪🏻 . . . #food #foodporn #foodphotography #whole30 #paleo #glutenfree #pressurecooker #sousvide #mealprep #mealplan #worklunch #lunch #protein #eggs #iifym #iifymgirls #chicken #curry #tuesday #bekaneggs #yum #chronicillness #workfromhome
Tattoo Day with my girl @sandi.knox.fit 😁 I needed something to signify the past year as it has been a whirl wind of ups & downs, lots of emotions both good & bad AND in the end, the year capped off on a high😊 This tattoo is not done but stage 1 is complete ✅ The 2 ribbons are for my mom & me....teal green is the colour for Ovarian Cancer, she fought the fight & kicked it in the ASS 🥊🎉 Yellow is for Endometriosis (Adenomyosis does not have a ribbon yet....or at least not one I’m aware of) I had major surgery at the end of Aug to cure me of Adenomyosis & to remove all the Endometriosis that was visible to the eye of my surgeon. It is not a cure for it but the odds of it growing again are slim because of where it was in my body 🙌 & it took away any chance of developing ovarian cancer 🎉 The dragonfly signifies so many things but what stuck out for me was strength, courage, transformation. The term Spoonie signifies chronic illness which are usually invisible illnesses. I have other reasons as well but am keeping them personal at this time 😉 One of the reasons I wanted to share this publicly though is that we never know what others are dealing with so always BE KIND. You may have friends that bow out of plans last minute, always BE KIND, you may have friends that become quiet, pull away or take more sick days then most others....always BE KIND. Just because people don’t look sick doesn’t mean they aren’t so always BE KIND #onehellofayear . . . #endometriosis #endowarrior #endosisters #adenomyosis #ibs #ibswarrior #ovariancancer #dragonfly #dragonflytattoo #spoonies #chronicillness #invisibleillness #surgeryrecovery #healthylifestyle #fitover40 #tattoogirl #tattoo #friendssupportingfriends #alwaysbekind #yougotthis #rewardyourself
What are you speaking??
This Honey Lavender Kombucha was my first attempt at making kombucha at home and the recipe has become a favorite. It is super easy to add a little honey and dried lavender to your homemade kombucha brew as it only adds one step that requires minimal effort. What are your favorite kombucha flavors? I’ll post a recipe for the most popular choice (if i haven’t already). #bonaippetit #aip #autoimmuneprotocol #autoimmunepaleo #totesaip #kombucha #aipdiet #aippaleo #paleolifestyle #paleolife #aipfriendly #paleofriendly #paleorecipes #glutenfreefood #paleoliving #recipeoftheday #paleodiet #paleoeats #paleoapproved #holistichealth #holisticliving #foodismedicine #primal #holisticnutrition #glutenfreeliving #holistichealing #chronicillness #holistic #gfree #healthiswealth
Please help us meet the #austin Jingle Bell Run goal by donating! Thank you to all our 2018 donors! We're so close to our goal! #WeLiveYes #atx #nonprofit #arthritiswarrior #arthritis #chronicillness #kidsgetarthritistoo #christmas
I had the worst doctor's appointment today - ever. I honestly think the doctor, who founded and runs a highly esteemed pain clinic, is losing her mind. She told me I have to get off gabapentin, even though it's helping a lot, because it will make me "stupid" and cause me to gain 10-70 pounds. Yet she suggests terrifying treatments like 6 hour, IV injections of ketamine! She changed all her plans for me, telling me she wants to get my "genetics" tested first. (I told my pharmacist all of this and she was shocked, saying that none of it is grounded in science.) When I complained about waiting for an hour and a quarter for my appointment, her excuse was a serious violation of patient confidentiality: a patient just before me had attempted suicide! She kept repeating "suicide," something you shouldn't do with someone with #chronicpain and #PTSD ! The whole time, she was sort-of vibrating, talking too fast, talking over me, bullying me, etc, to the point that I think she might have been on cocaine. I'm seriously thinking of reporting her. But, hey, I looked good, right? 😕
Question for the #endosisters : what yoga and exercise can I safely do in this post-op week? My body is really suffering from lack of my normal (even though I’ve cut back a lot because of pain) yoga home practice. Help? #endometriosis #adenomyosis #spoonie #ovariancyst #endowarrior #uterinefibroids #postop #surgery #laparoscopy #yoga #chronicillness #chronicpain #fascia #psoas #homepractice #workfromhome #fatigue #exhausted #demdarkcirclesdontlie
Hey everyone! Sorry I've been so absent, school is out for the holidays and I have been buried in grad school applications. I'm pretty sure I'm losing my mind! 🤯 That being said, I haven't been meal prepping much. Plus, I got sick a couple of weeks ago and have been pretty out of it since. Any time I get sick now, I immediately start craving vegetable curry. I'm assuming it must be all the nutrients and vitamins...idk. Anyway, here is a bowl of homemade vegan curry that I made a few days ago. I'm been surviving off of this since then lol 😂. Wish me luck with grad school. 😬 . . . . . . . . . . #mealprep #mealprepping #prepping #preppingforsuccess #chronicillness #chronicpain #chronicfatigue #youcandoittoo #behealthy #liveyourlifetothefullest #liveyourlife #fibro #fibromyalgia #fibrowarrior #fibromyalgiaawareness #invisibleillness #vegan #curry #homemade #vegancurry
Shawm showing off the girls to his son -the one that just became a cop. I LOVE that he is interested in learning about this amazing plant and how it is helping me! Education starts with one person at a time😄 #lovemymmjlife #rockingmydisability #learningtogrow #growingcannabis #grownmedicine
Will she ever change her clothes? Who knows. But at least she’s washed her face👶🏻👣👏🏻
Turmeric tea with 2-3 drops of Frankincense before bed is my new favorite thing 😍 ... ... (I use my handheld milk frother so the oil doesn’t just sit on top, and yummmm - so soothing!)
"But you don't look sick". "I can't believe you have MS" "I'm so sorry to hear you have that disease ". "how are you able to work?" "you look fine". Yesssss.... things I hear regularly! Who can relate? What does sick look like? How should I look? Why wouldn't I work? I don't feel fine..... one day I'll post a picture on a bad day... maybe then it will be believable?? #multiplesclerosis #mssucks #chronicillness #chronicpain #disease #sick #mssupport #mswarrior #msfighter #msclimb #korisklimb #myjourney #mymsjourney
Quite random but as I was going thru pics I laughed & realized I missed Halloween again for a 3rd year in a row. Why?! All spine related. Last year I was in the hospital postop from spine surgery just like this year...this year I was still intubated & in ICU. Last year I was walking the halls looking 100% ridiculous 😂😂 . . My family & I try really hard to make the best out of situations that aren't ideal. Last year my dad & sister put together a Superman costume. My dad even found Daisy a bow & Superman skirt. She rocked it 🐶 My family was trying to lift my spirits & this did the trick. I went walking in the hallways w/ Daisy. . . This was the 2nd time in the halo brace & it was the death of me. It was very heavy on my lumbar spine. I was less than 2 months from having C6-L2 fused which is why I'm not standing up straight. If you're scratching your head bc you're thinking didn't she have a long fusion this year? The answer is yes. Last years fusion failed so skull-L3 was done. But this isn't meant to be a medical post really 😊 . . When I look at pics like these they make me smile & laugh. They bring good memories during a bad time period. There are so many serious medical pics so I ❤ when I come across pics of me goofing around in a hospital setting, & any pic w/ Daisy. . . When I'm in the hospital we get to make the most of it. We interact w/ the nurses, & try to get to know them. Usually we have a bucket of candy for the medical staff bc it's pretty much a guarantee to get a smile by everyone from the outside world 😁 try to make the best out of whatever situation you're dealing with 💕 . RIP Daisy * * * * #invisibleillness #chronicillness #chronicpain #chronicdisabilities #rawandreal #healthjourney #zebra #zebrastrong #invisibledisabilities #spinalfusion #chronicpainwarrior #fightlikeawarrior #fightlikeagirl #fusion #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #butyoudontlooksick #makethemostoutofit #supperman #halloween #boxer #boxerofinsta #boxersofinstagram #dogcostume #inspirations #motivate #halo #smile #smilethroughthepain
Responsible clinics have an informed consent form multiple pages long when they regularly do parasite cleanses with patients. This is for good reason. . . If the toxins released in the cleanse are not effectively removed, they resettle elsewhere in the body - some in “okay” places like the fat, skin, bone, leading symptoms like difficult weight loss, skin disorders like rashes, brittle bones, etc. - and other places like the brain, kidneys, and blood vessels, etc. potentially causing severe problems that may not be reversible. Check the side effects lists of the anti-parasitic medications to gain proper respect of what can happen when this goes wrong (everything on the list, including blindness and death, is there because it has happened). . . Even without those drastic effects, these drugs, especially when dosed at a level that’s needed to be effective (generally higher and longer than conventional recommendations), are potent and can take someone from “fine” to debilitated overnight - that can be brief if adjustments can be made as needed, but things can get scary fast if not. . . I won’t prescribe these medications when someone is unwilling or unable to follow through with everything that they may need to do (likely: colonics, enemas, a strict supplement routine without missing doses, drinking a lot of water, maintaining regular meal times, possibly neural therapy, staying in touch with me throughout, etc.) during the cleanse in order to stay safe. . . This is frustrating for some patients, especially those facing acute parasite symptoms (which can be maddening) - but it needs to be understood, this scenario is like being a lifeguard when someone is swimming with sharks. When in those roles, the swimmer is trusting the lifeguard to tell them if there’s danger and either prevent them from getting in the water, or help them to get out. . .
Luckily, while sometimes this really is the best treatment, there are usually better ways to manage the issue (see next post). . . #parasites #chronicillness #holistichealth #parasitecleanse #detox #besmart #besafe #bebest #justkidding
You know that saying don't sweat the small stuff. It really isn't worth it. Is there something going on in your like that cause weighing down on you mentally more than it really needs to? Just let it go. #letitgo #dontsweatthesmallstuff
Today was a special day. My first social outing in a very long time. I got ready! I drove myself! And I made it through an entire dinner! Yes, I had a migraine, was dizzy, had visual disturbances, and my heart was tachy with palpitations! But it was nothing I couldn’t handle. Some of these symptoms I can fight through, and no one would know. In the back of my mind I did have a little uneasy feeling bc POTS is very unpredictable....I just never know when a major symptom may flare up. Especially one that might land me in the ER. Luckily I was surrounded by my all my amazing nurse friends. I am constantly shutting up that uneasy voice....I don’t allow it to dictate my life. If there is something I want to do, I set my mind to it, I ask the Lord for His help and if it is His will, and I go. And whatever happens, If it happens, then that’s when I’ll deal with it. No need in creating more anxiety or anxiety at all over something I have no control. Knowing that God is in control and trusting in Him is my moment to moment practice. Had a wonderful time tonight. :) #potssyndrome #chronicfatiguesyndrome #pots #potsie #healed #thankyougod #glorias #nurse #nurselife #girlsnight #rn #friends #thankful #chronicillness #cure #tuesdaymotivation #tuesdayvibes
Disease Reversal Nighttime Meditation from Liver Rescue by @medicalmedium - At night, call upon the Angels of Order (bring order to a diseased, inflamed, or weakened liver) out loud. Close your eyes and envision these 3 angels around you in bed, walking in a circle around you. See them creating a pressure of light in the circle and applying this pressure of light to your body and into your liver. Continue to envision this for as long as you can, whether 3 minutes or 30 minutes or until you fall asleep for assistance with healing your body and liver. 🙏😇😴 #angels #healing #meditation #medicalmedium #chronicillness #autoimmune #drnicolegalante #healinginseattle #wellnessintegritywisdom #scottealey #primrosecottage
When it comes to healing, we have to DIG DEEPER than the physical. It all starts in the mind. Everything that was ever created once began as a thought. During the embryonic stages of life, one of the first things to develop is the brain. When you are happy, your brain sends signals in the form of chemicals to the rest of your body. When you're sad it also sends signals in the same way. Let's say you have a big project coming up at work and you have been constantly thinking about how you are going to get it done. Every day closer to the deadline you get an increasing throbbing in your head, but you ignore it. Or lets say there is something you really wanted to say to someone but you couldn't find the right time to bring up. Every day you avoid speaking up, you get a tickle in your throat that slowly gets sore. These signs are the physical manifestations of the mental and emotional changes, that attempt to WAKE YOU UP TO YOU! Your physical body is asking you to pay attention, and dig deeper! When you ignore these signs, they develop into symptoms, that worsen over time and keep you out of balance. Just as your mind can be the key to the dis-ease you feel and see in your body; it can also be the key to your healing! I want you to think back before all your pain started and ask yourself, what was on my mind or what was going on in my life around that time? Where there any major changes? What signs did I ignore? Again, when it comes to healing, you have to DIG DEEPER. How do you dig deeper? You must re-establish the connection between your mind, body, and nature! Learn how by joining our 4 week live online course on "How to Break Free From Long Term Suffering and Move Toward Healing: End symptoms, Uncover the root cause, and Live Your Best Life" . Comment below for more details or click the link in the bio to fill out a survey regarding the course. #holistic #holistichealth #healing #mindbodysoul #natural #wellness #disease #chronicillness #chronicpain #mindovermatter #elearning #onlinelearning #health #alternativemedicine #integrativemedicine
Doing an in home sleep study because insurance won't pay for a real one. Thanks @bluecrossblueshieldkc for making hard times even harder!👍 #edsawareness #blanketporn #arttherapy #kansascityartist #healthcareforall #chronicillness #potssyndrome #mcas #sleepstudyselfie #sleepstudy #hypermobility
#Repost @greatcbdreviews with @get_repost ・・・ Warning to small CBD companies. Now that hemp is legal, a lot of corporate companies with big money are targeting you. They are offering you opportunities to have your products on tv commercials but for a cost of 25k+. The goal is to squeeze you out of the market. Just like on Facebook and Instagram, TV stations cannot publish CBD ads. Stay safe out there. Now more than ever we have to stick together. DM us if you ever have any inquires on working together, questions or concerns. We are here to help! . . Are you @420withcbdreviews ? @cbdunfiltered @talkcbdtv @cookingwithcbd @nugcbd #cbd #cbdreviews #cbdbusiness #supportsmallbusinesses #endthestigma #transparency #cbdproducts #cannabinoids #cannabislife #cannabiscommunity #cannabisculture #medicalcannabis #mmj #420 #cannabliss #cannabiz #chronicillness #chronicillnesswarrior #chronicpain #anxiety #depression #stressrelief #painrelief #selfcare #selfhealing #holistichealth #feelbetter
Later in the week I’ll be releasing my first interview with @vinnietortorich I spent about an hour talking with Vinnie and his NSNG is I think a great way to eat for many of us with AS. Of course first consult with your Dr and adjust if needed based upon what your Dr suggests. #aswarrior #ankylosingspondylitis #vinnietortorich #nsng #eatright #chronicillness #purecoffeeclub #purevitaminclub #looseweight
True story... when you get an IV every month as your meds and your immune system pretty much hibernates... yes I will mace you with Lysol 😷 #immunosuppressed #tysabri #fluseason #chronicillness #coveryourmouth #ms #muliplesclerosis #msfighter #msstrong
On a short crystal walk with nose to the ground and then I looked up and saw this. So grateful to be out today. It has been awhile. Grateful for simple and beautiful experiences. #healthylifestyle #autoimmunedisease #chronicillness #stressrelief #gratitude #hiking #easternsierra #sierra #explore #seasonalliving #simplicity #dowhatyoulove #positivenutritionmindbodyspirit #positivenutritionmbs #functionalnutrition #jangoldbergnutritionist
Where did you find that soul of yours? It’s gorgeous ☺️💛✨ Here’s 2 lovin’ you
Here’s 2 lovin’ YOU 💛✨ ... & much love to those that support & care about us each day
I divide my life in two. Not before I got married and after. Not before my four children and after. Not even before 40 and after. It’s now “ohh that’s before I got sick” and “today”. I’m grateful for “today”. I hope for a happily ever after. I just never thought I would go to bed and wake up sick and never get better. #meaction #endmecfs #chronicfatigue #solvemecfs #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #chronicfatigueawareness #openmedicinefoundation #meawareness #cfsawareness #mecfsawareness #cfsmeawareness #cfidsawareness #invisibleillness #chronicillness #chronicallyill #canyouseemenow #dysautonomia #youdontlooksick #posturalorthostatictachycardiasyndrome #tooyoungtobesick
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