#claraviolet

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Dear Cutler, I have a wagon built for two and a walk with your name on it!! Stella and I took a maiden voyage today in my new @radioflyerinc ... It was my birthday gift from Gramma Ginny back in November. So now, with (most of) the snow gone we can FINALLY get outside for a ride!! Bring a sippy cup... it has cupholders! 😍 Happy Fri-YAY, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I saw the good Dr. P. for my pre-op yesterday... and we are #clearfortakedown . One more thing to double-check tomorrow, but if all holds steady, we are headed to St Paul next week to put my guts back together. Im not nervous (cuz duh, Im Clara) but mommy is. We weren't really ready for this yet, but as usual I make my own rules... and that makes mom a little uneasy. Basically, the part of my gut that Im NOT using is angry. So, our best option is to do the 'take down' procedure, hook me back up and {PRAY} for the best! So... gonna need you to do that for me... and all our friends too. Also, any of my #Hirschsprungs friends out there who have dealt with dis-use Colitis- or a late take-down- send me some success stories! 💩 Tryna stay healthy, Clara Violet #kickinghirschprungsass #hirschsprungsdisease #hirschsprungssucks #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #theluckyfew #photooftheday #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
We only have 1.5 weeks until I am full time teaching. I’m going to miss being with her all day every day - it’s going to be like a piece of me is missing 😢 . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #growingfamily #themotherchronicles #claraviolet #1yearold #baby #babygirl #style
Dear Clara, Look at me!!! I discovered a secret hideout and I’m pretty sure there is plenty of room for two in here!! I call it “CLARA AND CUTLER’S SECRET HIDEOUT”. My mom says I am cute and funny (well, duh) although I’m not sure what’s so funny about a top secret hideout? I mean, will she think it’s funny when we tell her RULE NUMBER 1: NO adults allowed?!?! Also, topic number 1 for discussion in said hideout will be: Moms who won’t let their kids take a bath whenever they want. I got your back my love. Exploring new places, Cutler James ❤️❤️#cutlerjames #beatifulsoul #claraviolet #tinyfighter #beautifulbabies #hideout #sillybaby #downsyndrome #trisomy21 #nothingdownambassadors2018 #theluckyfew #morealikethandifferent #upsyndrome #forts #toddlers #toddlerfun #picoftheday #momlife #bonuschromosome #toddlermodels #toddlermoments #changingtheworld #awareness #love #bestfriendgoals #claraandcutler #ndss #dsdn #advocate
You can’t tell from this photo but Clara has been particularly adventurous today! Not only did she chase down another little girl carrying a pink dragon, shouting “dinosaur!” but we also had poo incident 🙈 This parenting stuff I tell ya! 😂 . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #growingfamily #themotherchronicles #claraviolet thank #1yearold #baby #babygirl #style #stylish #babystyle #babyspam #cute
Dear Clara, My mommy and I were being all snuggly the other night and she said, “CJ, let’s take a cute, cuddly, lovey-dovey selfie!” I’m pretty sure I nailed it. Never a dull moment, Cutler James ❤️❤️#cutlerjames #claraviolet #beatifulsoul #tinyfighter #downsyndrome #trisomy21 #nothingdownaboutit #nothingdownambassadors2018 #bonuschromiehomies #theluckyfew #morealikethandifferent #sillyfaces #goofball #sillybaby #cheeser #personalityfordays #dsdn #ndss #selfieoftheday #toddlerlife #toddlersofinstagram #momlife #babysmiles #babymodel #awareness #toddlergoals
Not a usual post from me but I thought I would check in with you all about my weight loss journey. Since November I have lost 15kg and 6 of those in the past 7 weeks due to eating ketogenic. I am not a nutritionist or health expert but I know this is working for me. I am not perfect, I have stretch marks and cellulite but this body carries me through life and created my daughter. I want my daughter to be body positive, so this is me - loving myself- not just for me but for my daughter. . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #postpartumjourney #themotherchronicles #claraviolet #babybody #mombod #mumbod #curvyfit
Dear Cutler, Can you say ROSE GOLD KICKS!? 😍 I got my new @Surestep.products braces yesterday and the EXTRA WIDE sparkly @Newbalance shoes mommy ordered are PERFECT! That can be tricky for teeny feet ... so we are feeling like total WINNERS over here today! Of course, they are ridiculously cute... BUT fashion aside, the extra support for my wobbly ankles and feet is AMAZING! My stance is better- my legs are straighter- and I look like such a {BIG} kid! If you thought I was fast before... wait til you see me now!!! With HAPPY feet, XOXO Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Its Monday. Im still losing my mind over her haircut 😍 and then she does this. Plops down in the sunshine - looking as angelic as possible - and shows off her new move. 'Can you PRAY Clara?' Yep... clearly. Mondays are no match for us. 💛💙💛 #claraviolet #tinyfighter #tinykidbigprayers #morealikethandifferent #downsyndromeawareness #2018Ambassadors #nothingdownorg #changingthefaceofbeauty #dsdn @claraandcutler
Dear Clara, I love your toothy grin!! Teeth are the greatest, am I right? Well, except when they are just starting to pop through and you wind up with drool on your tummy and mom and dad are constantly chasing you around with a towel... Uffda. Anyway... I got all cleaned up yesterday for our therapy date today!! Check out my fluffy hair. It is ON POINT. Shampoo AND conditioner for extra manageability and shine. Can’t wait to see your new bangs, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #downsyndrome #theluckyfew #chromiehomies #trisomy21awareness #nothingdownambassadors2018 #ndss #haironpoint #babysmiles #babyfashion #toddlerhairstyles #toddlerlife #sillygoose #teething #morealikethandifferent #upsyndrome #dontlimitme #awareness #awesomeness #pictureoftheday #bestfriendgoals #pintsizepowercouple #love
I cut approximately 19 tiny little baby hairs on her head... and all of a sudden she's a toddler. I. Cant. Even. 😍😍😍 #firsthaircut #rockingthebangs #claraviolet #tinyfighter #tinybigkid #lovecarters #morealikethandifferent #changingthefaceofbeauty #2018Ambassadors #nothingdownaboutit @carters @claraandcutler
Dear Cutler, Im working on trading in my signature tongue-out smile for a more toothy grin. Stella has been helping me practice today... mommy says I'm the cutest little pirahna ever... and daddy is figuring out how we are gonna negotiate a family deal on braces to fix our matching underbites someday! 😂 #saycheese #morealikethandifferent XOXO, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, Anyone in MINNEAPOLIS/ST PAUL today!?! Drop by @kittsona and shop the @thekinndproject P•O•P U•P S•H•O•P from 1:00 - 3:00 !! We wanted to be there {IN PERSON} but, LIFE. So... we're sending YOU in our place! Need an EXTRA incentive!? We'll send you an 8x10 signed GLOSSY if you go, post a pic of the shop and TAG us! **Bonus points if we are in the pic!** 😉 So... go do some shopping... spread some kindness... And say hi to the peeps at our fave boutique! ❤❤ Killin' it with Kindness today & always, Clara & Cutler #bekind #thekinndproject #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Cheeky monkey always stealing my phone 🙈 Clara loves all sorts of mechanical devices and will spend long periods of time fiddling and exploring objects with lots of parts. I love watching her play especially when she doesn’t notice I’m watching. Their little minds are truly incredible 💕 . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #growingfamily #themotherchronicles #claraviolet thank #1yearold #baby #babygirl #style
Dear Clara, Happy Friday!!! Also, there’s Charlie (my cat). Sometimes he distracts me cause I kinda want to touch him, but not really. I’m pumped for the weekend!! Oh, and I took a page from your book by climbing up onto a cooler last night cause that’s super safe. Let’s climb on stuff together soon, Cutler James ❤️❤️ #TGIF #classiccutlerjames #beatifulsoul #claraviolet #tinyfighter #pintsizedaredevils #ididit #sillygoose #babysmiles #lotstosay #downsyndrome #nothingdown #nothingdownambassadors2018 #chromiehomies #powercouple #beautifulbabies #toddlerlife #toddlersofinsta #theluckyfew #morealikethandifferent #awareness #advocate #changetheworld #changingthefaceofbeauty #happy
What is it about a sleeping babe that gets me all goo-goo eyed every time!? 😍 #claraviolet #tinyfighter #eyelashesfordays #stillgrowing @claraandcutler
Dear Friends, My apologies for the knee-deep mush... but sometimes these kids just stop me in my tracks. Have you ever witnessed true love between friends? Like, real honest-to-goodness, unbreakable, unwaivering LOVE? I sure hope you have... and I really hope you have a friend like that in your life. Its hard for me to imagine such a bond between two people so young... but Clara & Cutler truly, genuinely ADORE each other. I witnessed this today (for like the million'th time) and by a stroke of luck was snapping some pics. The results take my breath away. Cutler was just not having a great morning today... nothing in particular, not crabby, not ticked... just not his usual bubbly self. Clara picked up on it right away. She carefully approached him and spotted a tear on his cheek... she gently wiped it away... and then gave him the sweetest hug ever. The level of amazing in that kind sweetness for a full-throttle toddler is overwhleming... and then, the fact that even in a funk Cutler let her in... I cant even. We are so blessed to witness these littles grow and learn and love together. Thank you for sharing that with us... 💙💛💙💛 With a FULL heart, Lana #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
These holidays have been so great! Having Carl at home with us fills the house with so much love and joy... and more importantly he takes pictures of me hehe . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #growingfamily #themotherchronicles #claraviolet thank #1yearold #baby #babygirl #style #stylish #babystyle #babyspam #cute
Dear Clara and all of our “peeps” (see what I did there??!!), I hope everyone has a wonderful day and finds lots of eggs and eats lots of ham. Also, apparently there was a rabbit in the house last night... a magical rabbit!!! HAPPY HAPPY EASTER!! This bunny fellow rules!! Check out my new ride!! I will totally be crusin’ with my best girl. Thank you EB!!! Lovin’ the bunny, Cutler James ❤️❤️#cutlerjames #chromiehomies #claraviolet #besties #crusin #newride #happyeaster #easterbunny #downsyndrome #nothingdown #nothingdownambassadors2018 #happiness #awareness #awesomeness #babysmiles #babymodel #toddlersofinstagram #toddlerfashion #pintsizeheroes #pintsizepowerhouse #pintsizepowercouple #love #morealikethandifferent #theluckyfew #happy #loved
Dear Cutler, In case you're wondering... I found something cute to wear for Easter. @dotdotsmile.codiet came to the rescue once again... I know that dilemma has probably been keeping you up at night. #chicksandpeeps for the win!! Hope you are having a glorious Easter weekend! We are kicking off our celebrations today and I've got a good feeling about the bunny visit tonite! 🐰 Full of Love, Hugs & Hope, Clara Violet #dotdotsmilebrandrep #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors
Once upon a time two best friends were gazing out a squeaky clean window... this is the conversation overheard by two incredibly proud mamas. Cutler: It’s a big world out there, isn’t it? Clara: It sure is... a big wonderful world. Cutler: It’s kinda scary out there. Clara: Just hold my hand. We’ve got each other... always. Cutler: I love you my friend. Always. Dream big little ones. You got this. ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #babysmiles #beautifulbabies #dreambig #dreamers #bestfriendgoals #bffs #downsyndrome #nothingdown #nothingdownambassadors2018 #ndss #dsdn #theluckyfew #morealikethandifferent #bonuschromiehomies #changetheworld #spreadthewordtoendtheword #beautiful #awareness #awesomeness #peekaboo #momlife #toddlerfashion #toddlerlife #pintsizeheroes #pintsizepowercouple #love
Dear Clara, I have an idea. HGTV Fixer Upper junior!!!??? Check me out helping my mom and dad spiff up the windowsill. Of course I am explaining the design process step-by-step so everyone can create this budget friendly look. 1. Blocks on 2. Blocks off 3. Blocks back on What do you think?! We could totally be the next Chip and Joanna Gaines!!!!! Home improvement is my thing, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #babysmiles #beautifulbabies #claraviolet #downsyndrome #downsyndromeawareness #nothingdown #nothingdownambassadors2018 #trisomy21 ❤️ #theluckyfew #morealikethandifferent #awareness #acceptance #awesomeness #hgtv #fixerupper #style #toddlerfashion #toddlershenanigans #pintsizeheroes #pintsizeheroes #incrediblekids #bekind #loveoneanother #spreadthewordtoendtheword #changetheworld @chipgaines #homeimprovement #icandoanything
Dear Clara, GUESS WHAT?!? You know how I started a new daycare last week?? Well, I was super nervous (my mom was double super nervous) cause as you know, my bubble and stranger danger are real things and I’m a tad of a lone wolf at times. But get this... I. Love. It. My daycare lady is really really patient and kind (we got her name from your mom so we knew she would be awesome) and I have even let a few of the older kids close to my bubble (not quite in yet... but close). There is one 4-year old that kinda makes me giggle (don’t worry... we are just friends) because she reminds me of fun times with Stella!! The only things missing are you... and your mom... and my mom... 😉😊. Tryin’ new things and developing a smaller bubble, Cutler James ❤️❤️ PS... I love your pretty face. #downsyndrome #trisomy21 #cutlerjames #beautifulsmile #beautifulsoul #claraviolet #babysmiles #theluckyfew #morealikethandifferent #nothingdown #nothingdownambassadors2018 #makeadifference #bubble #sillyfaces #upsyndrome #thatface #toddlerfashion #pintsizeheroes #pintsizepowercouple #personality #awareness #awesomeness #toddlerlife #momlife #mommyandme #love
Dear Alex, I know you like to act cool.... cuz duh... you are. But you can't fool me. I see you. I see how you always find me to say good morning before school and good night before bed. I love that you always know where I am and how Im doing... even when I'm not home. I know most big guys dont wanna smooch their kid sisters out in public... but you never turn me down. I see that mom puts you in the inner circle of peeps she trusts to take care of me. I can literally feel how proud you are when you introduce me to your friends. Im pretty much the luckiest little sister ever. Dont worry though... your secret is safe with me. I wont tell anyone that you are secretly a big teddy bear. Promise. Love you to bits, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #photooftheday #cutekids #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg @amcarthur13
The BEST 5th graders- EVER!!! Thank you for inviting Clara and I to come and play!! 💙💛💙💛 #toddlerinthespotlight #morealikethandifferent #claraviolet #tinyfighter #nothingdownaboutit #2018Ambassadors
Clara brought copies of the newest @nothingdownorg book for all the kids in James' class today! They swarmed the cover girl for a signed copy...... it may have been the cutest thing I've EVER seen. #toddlerinthespotlight #morealikethandifferent #claraviolet #tinyfighter #nothingdownaboutit #2018Ambassadors
Dear Mommies, Silly. You should have gone swimsuit shopping like we did for our first SWIM DATE!! Our new @carters swimsuits are ON POINT. @amy.moreland JEANS??? IN THE POOL!?!? **Sigh** better luck next time! 🤣🤣 Diving in HEAD FIRST as usual, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #ad #sponsored #lovecarters
How did I get so lucky!?! #theluckyfew #claraviolet #lovemycircus
Dear Friends, I bet your Monday Meeting isn't nearly as cute as ours!? As usual... Clara is in charge (her new @carters romper says it all) and Cutler just wants a hug... what would your shirt say today if you could pick!? Making B•I•G plans, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #lovecarters #ad #sponsored
Dear Cutler, Im trying to sweet talk my Daddy into getting us one of these! Like, pretty please with a cherry on top!?! I think it would be AMAZING in our playroom! 😚 I had the BEST time at @gigisplayhousefargo with the 2&Under group this morning! I met some {{extra cute}} new friends... we did some SUPER FUN activities... and I told everyone all about you! Im serious.... we gotta go together next time!!! AND... its really time for us to start thinking about firing up an honest-to-goodness chromie-homie playgroup in our town!!! Are ya with me!?!? Jumping for J•O•Y, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #lovecarters
Dear Cutler, OH. EM. GEE. 💛💙 Do you see this adorable new spring stuff!?! I am FREAKING OUT cuz @carters sent it as a little GET WELL gift!! Can you imagine!? I cant decide what to wear first!! As for the GET WELL part?? Yep... I'm doing that! Im feeling SO much better! The gazillion meds I'm on (including the nasty "E" word I have to do every night) are working and it shows! We are definitely on the right track and Mom says someone put a quarter in me :) I'm counting the minutes til we can have a playdate!! Feeling the LOVE, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #lovecarters
Today is Clara’s first day at daycare. I am super nervous for what our routine will look like with her I care and me with my busy teaching schedule 🙈 Trying to remind myself of my teaching motto for this prac - good vibes only ✌🏻🌻 . . . #australianmum #aussiemum #mumswithhustle #momsofinstagram #mumlife #momlife #motherhood #love #parenting #firsttimemum #firsttimemom #momswithcameras #mummyblogger #mommyblogger #family #growingfamily #themotherchronicles #claraviolet #1yearold #baby #babygirl #style #stylish #babystyle #babyspam #cute
Dear Clara, Guess who is feeling better and looking much less polka-dotted??!!!! Me!!! Guess who is home from the big city hospital and looking sparkly??!! You!!! Guess what is next Wednesday??!! World Down Syndrome Day!!! WANNA PARTY like it’s 1999?? *I have no idea what that means as that was like a hundred years ago* I can’t wait to see you and quietly adore you from inside my bubble, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #babysmiles #babyfashion #feelingbetter #theluckyfew #pintsizeheroes #pintsizepowercouple #germsaredumb #downsyndrome #nothingdown #nothingdownambassadors2018 #iamable #awesomeness #awareness #toddlerfashion #happiness #bornthisway #makeadifference #advocates #nevertoosmalltomakeadifference #chromiehomies #toddlersofinstagram #lifeisbeautiful #trisomy21
I know I drive him crazy. Im "that" mom in the hospital.... and even more so THAT wife. Im controlling and cranky and fussy. I overthink, and get irritated when i think others arent thinking enough. I forget to share information... or I assume that others already know. You can probably imagine how it goes if I miss a conversation or meeting. I dont small talk. Mostly cuz my brain is too full with all the other stuff. I dont ask for more towels or different pillows or an aspirin, unless its for Clara. I get up and make my bed before rounds start. I check lab results online as soon as they are up- incessantly- and ask about every one. EVERY ONE. I know all her doctors and nurses and how to (sucessfully) get ahold of them. I repeat first & last & date of birth in my sleep. But this guy... he's the cool dad. The easy going, yeah whatever guy. He goes with the flow, doesnt even know what crabby is and high maintenance? Ummm no. He hears the cliff note version of report, and doesnt sweat the fine details. He doesnt question the team... but asks me later if they were on our same page. He assumes they are thinking as hard as we are. He knows to say, "you should wait to tell me that until my wife is here" for all the right reasons. He knows where every nurse and doctor and cleaning person live, how many kids they have and what their significant other does for a living. Literally. He makes us more comfortable in our less-than-comfortable accomodations. He's totally comfortable taking consult from the couch bed (maybe shirtless.) He has no idea where to find med lists, lab results or orders. And remember doctor names? Nope. This is not an easy journey. But together, I know we've got this. We are ying & yang... and I am so thankful for our balance. ❤❤ #claraviolet #tinyfighter #kickinghirschprungsass @claraandcutler
PEACE OUT ST PAUL!! Nothing happened very fast today... but I think the packed bags and 'go-home' jammies sent a clear signal. We are ready to be HOME! But dont worry... it wont be long before #tinyfighter brings her sparkle back to @childrensmn . Our instructions going home are to stay healthy... clean up that messy colon... and rest up. Its time to put her plumbing back together. We have mixed feelings about that... nerves, hope, concern, relief, nerves (oh- did I already mention the nerves?) But have every faith in her medical team. Keep sending healthy, happy vibes our way... and pat yourselves on the back. Your prayers and well-wishes pulled our girl (and her weary parents) through a bumpy road yet again!! With love, Lana, Scott & Clara #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #kickinghirschprungsass
Dear Cutler, Ugh. Cant tell you how great it feels to be in my own jammies... no extra tubes (cuz dude, I got enough of those already) and a couple days of good strong meds on board. Today is a 'hang out' day. Me (and my blood sugar level) are happy to report that my belly is accepting food!!! We took it slow yesterday and I'm back to my home routine this morning... so far, so good! AND I got a great night sleep last night- mark that down... it happened! I SLEPT straight thru- IN THE HOSPITAL. Kind of miraculous. Im here one more night for sure... they're gonna do a radiology scan of my belly tomorrow and the surgeons are having a meeting of the minds to discuss my 'moving forward' plan. If all goes well, we are on our way home!! So... take an oatmeal bath or something to get rid of those spots so we can play! Don't get me wrong, you're still one handsome little devil... but I want no part of that business! 😉 See you soon Captain Super Pox, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg #kickinghirschprungsass
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