Для тех, кто попал в ряды пациентов ВЗК. Воспалительные заболевания кишечника — это интимная проблема, пациенты недостаточно информированы о болезни и не подозревают о ее опасности и последствиях. В итоге больные часто попадают к докторам только тогда, когда проблемы достигают тяжелейших форм и не обойтись без госпитализации, а порой и резекции кишечника.
- Поэтому стоит задача - информировать людей, что есть такие серьезные заболевания- ВЗК, требующие пожизненного лечения.
Для пациентов г.Новосибирска
Страница в ВК
https://vk.com/moo_doverie ▪ Кто мы?
✔ Мы такие же пациенты или родственники пациентов с ВЗК, как и Вы;
✔ Мы понимаем Ваши проблемы и Ваши нужды, так как сами ежедневно с ними сталкиваемся. ▪ Что мы делаем?
✔ Оказываем взаимную помощь и поддержку;
✔ Организовываем дружеские встречи пациентов, проводим образовательные мероприятия;
✔ Участвуем в круглых столах и иных различных мероприятиях для освящения проблем пациентов с ВЗК;
✔ Помогаем в составлении официальных обращений. ▪ Нужна наша помощь? ✔ Обращайтесь к представителям Вашего региона. Информацию о них Вы можете посмотреть в теме обсуждения «Контактная информация» или спроси меня ▪ Хотите нам помочь? ✔ Мы Вам всегда рады! Просто напишите нам.
И помните, ВЗК – не приговор! Вместе мы справимся! #резекциякишечника #стома #взк #болезнькрона #няк #крон #неспецифическийязвенныйколит #язвенныйколит #флешмоб_историй_ВЗК #историивзк #някнск #кроннск #пациентывзк #пациентвзк #здоровье #здоровоепитание #столномер4 #лечение #лечебноепитание #ibd #crohns #crohn #us #ulcerativecolitis #crohndisease #ibdawareness #crohnsawareness #crohnswarrior #crohnsdisease
Maintenance appointment was this afternoon! Got to see my most favorite P.A. of ALL time and chat about school and post-graduate plans and Crohn's, of course! Then had my routine labs for inflammation and kidney function. Results will return in a couple of days, but based on how I'm feeling, my doctor thinks they should be great. Hoorah! 👊#standupkeepfighting #dearcrohns
Same obstruction, new hospital!
So of course the day I'm supposed to go to classes, my stoma stops working again. I decided I try to at least go today (usually I have a day before things get unbearable). I managed to drop off my project but had to head straight for the ER. Since we were in Toronto already, I decided to switch things up and go to a new hospital (gotta keep it interesting) 😜 Seeing as how Mount Sinai is one of my referrals for my reversal (and they're pretty much Ontario's IBD experts) I ended up here.
I have never been in so much pain! This blockage was so much more painful than the others. I'm definitely NOT one to demonstrate pain usually, but I was wailing in the ER (took a very long time to get any pain meds). After that I got an NG tube, had a CT, and saw some drs. I don't remember much of it all.
At one point in the night... Stella started working again! A little too well, because at 4 am I had my first explosion and woke up covered in poop. That was a traumatic bag change to say the least. Finally, just before I got moved to the ward this morning, I pulled out my NG 🙃 It felt like it was choking me and turns out it has moved so it wasn't in all the way.
Stella is still kinda working, but is SUPER retracted and still pretty painful (thank you pain meds). Hopefully I get some real answers soon so this stops happening 😌
Just a little reminder that we all have a part to play on this planet we call home, even if at times it feels like the world is against you. Make your own mark, and never be defeated! 💜 #crohnsdisease #motivation #belonging
I often think about the term “invisible illness”. Especially since people often look at us crohnies and think that nothing is wrong. Or they think because we are out having fun or trying to live a normal life that we are ok. What they don’t understand is that we are fighting this disease physically, mentally, spiritually and emotionally, 24 hours a day....no stops and no breaks.
Got these two representing for the cause. And when I saw this pic, I realized they have no clue what that actually means to me. People look at us and don’t see that we are sick. These two are rocking tattoos and don’t realize that they’re spreading awareness. Invisible illness vs invisible awareness.
#crohnstrong #crohnsawareness #twins #crohnstrong #tattoos #invisibleillness #crohns #crohnsdisease #crohnsfighter #nephewlove
Lauren Mones, also known as the Fermenting Fairy joins us on this episode of Courageous Wellness!
This week we explore the incredible power of fermented food, gut health, The Microbiome, and learn about Lauren’s incredible and courageous journey! Through the medicinal power of fermented foods, good gut health, and focusing on overall wellness she completely transformed her battle with Chrons disease, without medication. She now helps others do the same, helping clients with their own unique digestive and gut health issues.
Her fermented food products can be found at grocery stores throughout Los Angeles (tagged in the picture!) Link in profile to listen 🎧 you can listen on spotify, itunes, google play, & stitcher.
#fermentedfoods #guthealth #gowithyourgut #healthyguthappylife #raiseyourvibration #femalepodcasts #healthandwellness #wellnesspodcast #fermentation #erewhon #healthcare #selfcare #selflove #wellbeing #nutrition #liveinspired #mindbodyspirit
#wellnessjourney #chronicillness #crohns #crohnsdisease #crohnswarrior #crohnsdiet #crohnsawareness #holistichealth #holistichealing #holisticnutrition #holisticliving
Here’s to the last of my weekly blood test for Azathioprine 💉 (I hope!)... One more in 3 weeks before holiday then my review 21st August! 🤞🏼... AND I’m down to one steroid a day till I finish in 2 weeks! 👏🏼
I’m done with being bruised and looking like a pin board or drug addict (I have the drugs to thank for easily bruising!)
After what feels like such a long journey I finally feel like I’m getting back to being Nat again 👸🏼✨, the Azathioprine seems to be doing the trick, although the only down side is I must be cautious of certain things. Azathioprine is an immunosuppressant meaning my body is unable to fight of illness or disease like a ‘normal’ person can (although is helping my Crohn’s very much! 👍🏼), also my skin is more sensitive to the sunlight, meaning i now slap on sun cream like it’s going out of fashion 😎... I had a couple of little scares in the beginning (fever-like symptoms 🤒) but so far so good! I do my best not to read up too much about the side effects of Azathioprine as they all sound extremely brutal. At the end of the day my theory is to take each day is it comes and to celebrate and enjoy all the good days! 😄
Keeping my fingers, toes and anything left crossed, hoping this is the start of settling for the long term!! 🙏🏼👊🏼
#crohnsdisease #crohnswarrior #crohnsawareness #ibdawareness #ibd #azathioprine #positivevibes
• P RO G R E S S • You know when people say “if I can do it anyone can” I laugh and think - you don’t know me! I honestly can not run - I think my lungs are going to pack up and my stomach feels like it’s going to fall out. But every day I’ve done the same route and have got faster and ran for longer each time! In just one week I’m already 7 mins quicker!! 5 years ago after I had my stoma operation (during my recovery time) I couldn’t get out of bed and to walk 5m would have taken 10 mins and a lot a effort. I’m so proud of myself today ☺️🙌🏼 So at the risk of sounding cheesy - if I can do it anyone can! #5k #walkingandrunning #5ktraining #stoma #crohnsawareness #getfit #thisgirlcan
Tuberculosis Treatment. I might not have TB my specialists are just being extra careful. They said because of my recent travel history TB could be lying dormant inside me sleeping as both my blood results came back as undetermined a couple times so they don’t know if I have it or not. They can’t see it from X-rays and bloods but if it’s dormant it is difficult to detect. As I’m going on these new drugs called biologics what can happen is if you have TB and take these drugs you can become very very sick so if I do have TB laying dormant it could waken up when I take my new meds and then I could get really sick so to stop all that happening it was suggested that I get treated for TB anyway for 3 months and then I can start on these new drugs to treat my Crohn’s! There’s a list of side affects (like all drugs) I’ve to look out for. One of the common ones is that your pee, sweat, tears will change colour/ have an orangey-pinkish tone. After taking one dose I’m currently pissing a nice irn bru colour 🤣 only downside just now is waiting 3 months to get treatment for my Crohn’s 🤞🏻 it doesn’t make my Crohn’s worse!
The ugly truth.
Today was a bad day, I woke up really bloated and was feeling discomfertable.
But like the big girl I am I took 2 asperines and went to work.
The pain got worse and worse very quickly and I took 2 more asperines which took the sharp edges off but it was still painfull.
So about 11:30 I went home sick, nearly fell of my bike and thankfully a co-worker saw it happen and ran towards me. ‘You are not going home by yourself right now’. He brought me to his car, shoved my bike in the back and took me home. Meanwhile I was trying to get hold on my contact person (nurse) at the hospital, but I was to late she was gone on rounds and went home. So instead I called my regular docter and he only had a spot open for me at 4 pm.... While I waited for the time to pass I tried to sleap and that went pretty well as long as I laid very still. Any movement inflicted a lot of pain. At 4 I was sitting at the docters and it didn’t take long for him to see something was wrong, he was afraid I grew another abcsess. He called my docter at the hospital and they discussed for a little while. They decided to send me home, because there wasn’t much they could do tonight. I was given some morfine for the pain and to help me sleep (which I’m not a fan of because morfine makes me really fuzzy and nauseas and doesn’t really help with the pain). The hospital will call me tomorrow for a CT scan and to take my blood, so hopefully then we’ll know more! 🤞🏻 I’m really sick and tired of feeling sick and tired 😟 Thankfully my sister is coming over tonight to keep me company ☺️ #crohnslife #crohnslife #crohnsdisease #crohnsawareness #iambrave #spoonie #abscess #staystrong #staypositive #chronicalillness
Tomorrow is routine lab day!! Hooray! And coincidentally, one year ago tomorrow, I had an emergency scope to investigate why I was suddenly bleeding. Everything turned out alright, but it's still wild to think that I went from prepping for a sigmoidoscopy to studying abroad for an entire semester to graduating from college and, now, to preparing for the next big steps of post-graduate life. Here are a couple of things that I am thankful for: the people (and dogs) who have supported and uplifted me along the way; the medications and treatment plan that are still helping me to heal; the fact that I can stay on my parents' health insurance plan until I am 26! 🙌 #standupkeepfighting #dearcrohns
I can't handle these full body 50's but.. I did it! Sauna for 5 minutes then gonna go grab my babies from kidsclub!
I am tired... But I'm finally getting back in my groove.
Crohn's knocks me out of rhythm... But I get back to it.
I don't give up.
Bc my kids are watching.
Little changes, are much more sustainable... While they might not seem like much, over time it will improve life greatly.
You can do it. If you WHY is great enough you will find the HOW!
#MOTIVATIONALtuesday #gym #crohnsawareness #chronie
🇬🇧 Some slices of life ... It's amazing how our face is modeled from year to year
while we always remain the same being inside.
I do not think we are really changing, I think we are slowly changing.
We dig into our experiences and remove the sap to shape life in our image.
Sometimes it takes time to learn a lesson, sometimes we need several experiences to define what we do not want anymore, or what we never wanted.
And what we sincerely wish, deep in our heart, ultimately flows.
Clear and clear as water of rock, without surprise ... "Finally, it was there from the beginning ...", we say.
No action or word is a mistake, but it is a drop of paint, the color of our current thought, which writes our portrait every day a little more. "I never lose. Either I win or I learn »
---------------------------------------------------------------------- 🇫🇷 Quelques tranches de vie…
C’est incroyable comme notre visage se modele d’année en année
alors que nous restons toujours le même être à l’intérieur.
Je ne crois pas que nous changeons réellement, je crois que nous nous transformons petit à petit.
Nous piochons dans nos expériences et en retirons la sève afin de façonner la vie à notre image.
Parfois il faut du temps pour apprendre une leçon, parfois nous avons besoin de plusieurs expériences pour définir ce que nous ne voulons plus, ou ce que nous n’avons jamais voulu.
Et ce que nous souhaitons sincèrement, au plus profond de notre coeur, en découle finalement.
Limpide et clair comme de l’eau de roche, sans surprise… « Finalement, c’était là depuis le début… », nous disons nous.
Aucune action ni parole n’est une erreur, mais c’est bien une goutte de peinture, de la couleur de notre pensée actuelle, qui écrit notre portrait chaque jour un peu plus. « Je ne perds jamais. Soit je gagne, soit j’apprends »
It Could Be Worse - A Crohn's Blog has been nominated for not one, not two, but THREE WEGO Health Awards this year, and I cannot thank you all enough. 🌟 Best in Show - Blog
🌟 Best in Show - Facebook
🌟 Best in Show - Instagram
It has been a year of ups, downs, chaos, tears, appointments, and trying to find myself. I share the good, the bad, my everyday with Crohn's and Fibromyalgia.
I try to share my journey honestly and I often share too much information, but someone has to. So much shit happens with these diseases, knowing and researching everything I can, and, sharing information is very important to me.
Its because of all of you that I even received these nominations, so I thank you from the bottom of my heart.
If you haven't already, follow the LINK in BIO (or below) and endorse me for these awards - the top three nominees win!
Thank you all. It means so much to me. For Me, It Could Be Worse.
Good morning! ☀️ _
I like mine with coffee.☕️ How do you CBD?