#crohnsawareness

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Faz um tempinho ja mas quando me graduei de savate/kick box da franca. Sometime ago i got my white gloves in savate. #crohnsawareness #crohn #nevergiveup 💪 #savate #brazil #santoandre #kickbox
☀️☀️SUMMER REMINDER☀️☀️For all my spoonies on biologics- ‘‘tis the season for sunshine! At least here in Oregon it is. It was 75 today! I know I post on this topic multiple times throughout the summer, but please do yourself a favor and apply a high SPF sunscreen before exposing your skin outside during these summer months. When you’re on biologic medications, you have a significantly higher increased risk of skin cancer because biologics give us all the funk. Even if you aren’t on biologics WEAR SUNSCREEN AND PROTECT YOURSELF. -yours truly, Sara, the palest person you’ll ever meet. ✌️#ulcerativecolitis #crohnsdisease #crohns #biologics #skincancer #skincancerawareness #sunscreen #wearsunscreen #autoimmune #autoimmunedisease #chronicillness #spoonie #ommp #protectyourhealth #ulcerativecolitisawareness #crohnsawareness #ulcerativecolitisandcrohns #summer
Day 16 #opensesame @cyogalab @palomahuner @gmcyoga #garbhapindasana variant This freaking pose!!!! I could barely squeeze my arms through the Lotus! It looks like my hands are going to eat me! Lol 😂 not much here..... the balancing has come pretty easy now so that's a plus! My lotus is getting more and more comfortable, thank goodness!!!! It was so beautiful yesterday I went out and the deck and did the next few poses! Loving the sunshine....even though I really love snow more! 😉 My view from our deck, across Fairfield island and onto our beautiful b.c. mountains is a sight to see. I need something to raise my phone up so you can all see that view!!! Projects! Plus I've already planted in my garden! So exciting! Peas, radishes, lettuce, carrots!!! I love watching it all come up and grow. It fills my heart right damn up!!!!!! 😘 I am happy in life and today that is what I am grateful for. Practicing graditude every day opens your eyes to the beauty that surrounds us! Let the light in peeps! 🤗 #crohnsfighter #ostomywarrior #crohnsawareness #ostomyawareness #crohnsdisease #loveyourself #yogini #yogalover #yogalife #liveyogaoffthemat #breathethrough #youareenough #findthecalm #findyouredge #findyourinnerstrength #nevergiveup #bepresent #mindfulness #bethebestyou #bethechange
Happy Tuesday! 💕 Join our Women Empower Women support group. Our community consists of inspirational WOMEN from across the globe here to support and encourage one another! Join our open FOLLOW LOOP to meet social Influencers, Bloggers, Health & Wellness Advocates, Small Business’ and Mamas! To participate FOLLOW these steps: 1. Follow Hosts @the.sunnyside.up @judgymummy @thewellbeing_mama & click on the link in hosts bio 2. Join the chat and download the image and the script to repost 3. Tap on #womencollectivefl05 4. Follow Everyone under the hashtag 5. Comment 🍓 on everyone you follow
Well #Sugarloaf 🍞🏔 it was a pleasure! Thank you for such spectacular views 🙌🏼 - With 2/3 mountains done for the #hh3mountainchallenge for #CrohnsAwareness & donations on the up, I don’t think I could be anymore proud of this team! 🏔💜 Today we faced terrible winds 🌬 & were almost literally blown off our feet! Besides tsunami rain storms 🌊🌧 & zombie apocalypse fogs 🧟‍♂️🌫.. we’ve combatted it all! - This was just one of my many mad ideas 💡 💭 & it’s become something quite spectacular! 👏🏼 Raising money, making memories into crazy tales & seeing some spectacular sights along the way! 💗😝 I’ve loved every moment so far. - I’m so proud that not only do we get to support such an amazing, crazy, wild, funny, caring & life-loving girl like Hannah 💗 ..but now we can help others! This isn’t something we do every day (that’s for sure 😂👏🏼) & it’s definitely something I’d encourage others to do 💗 - - #peace #love #happiness #follow #like #charity #sugarloaf #mountain #mountainwalk #fitness #fitnessblogger #girl #friends #couple #boyfriend #love #happy #nature #outdoors #girlwholifts #puma #boohoo #tan #makeup #hair
If I spent as much time on the toilet whilst out as I do at home I think they would be calling security! #crohns #crohnssucks #crohnsdisease #crohnsdiseasesucks #crohnslife #crohnswarrior #crohnsfighter #crohnsawareness #ibdawareness #ibdsuperheroes
So thought I’d show you what it looked like without the bag on, even did a little time lapse of it showing its movement as it sits still and how it constantly moves. PLEASE DO NOT SWIPE TO SEE THE PICTURES IF YOU DON’T LIKE SEEING BITS OF BODY PROTRUDING #stoma #ileostomy #ileostomybag #ileostomylife #crohns #crohnsdisease #crohnswarrior #nakedstoma #bowelmovement #crohnsawareness #crohnslife #ibd #ibdawareness #youwerewarned #crohnsandcolitis #crohnsfighter #loopileostomy #invisibledisease #invisibleillness
Hey guys! Happy Monday! Looking for some new topics and ideas to talk about. So if you have any suggestions please feel free to drop it down here in the comments section! I love sharing anything from my journey. Thanks! #crohns #crohnsdisease #crohnsandcolitis #disease #colitis #crohnsandcolitis #ulcerativecolitis #ibs #crohnswarrior #humira #entyvio #crohnsawareness #colitisawareness
"The bad days teach you patience and the good days teach you gratitude" After having life saving emergency surgery back in November and waking up to find that I had an ileostomy I was devastated. I didn't want my life to be this way, but having an ileostomy has given me my life back. I've put on 2 stone since surgery which is a great achievement for me since I've never reached over 8 stone. #loveyourstoma #loveyourself #loveyourstory #crohnsawareness #ileostomy
So one of the most commonly asked questions I get : Does anyone in your family have IBD/How did you get it? My answer is no, I didn't even know what IBD was. However, I've heard of families that have multiple people with IBD in their family's. So like most questions- it varies from patient to patient. However, when I was young (and still unaware soccer was not my sport) I suffered from another autoimmune disease, ITP that I eventually outgrew. Research suggests there may be a connection between ITP and IBD but has not been confirmed. If I can outgrow ITP, I am determined to beat IBD, together with this great community 💜 #crohnsdisease #crohnswarrior #crohns #crohnsfighter #crohnslife #crohnsawareness #crohnsandcolitisfoundationofamerica #crohnsadvocate #advocate #cure #remissionismymission #ibd #ibdawareness #ibdwarrior #ibdsuperheroes #ibdadvocate #autoimmunedisease #itp #research #hockeyhatsatsoccer #community #standtogether #support
Getting out most mornings for a 9 mile ride then home for breakfast 🥞 love life & making the most of it ❤️🙏🌗 #strava #stravabike #stravacycling #crohns #crohnsdisease #crohnsawareness #arthritis #cycling #mtb #mountainbike #fitness #workout #fitnessworkout #foxracing #fox #hope #rockshox
I am noticing soo many awesome changes with my body 🙌🏽 Lord knows I’m busting my ass...literally.. It is so motivating when you start seeing the changes you are pushing for!! It takes time And consistency.. I have really found a love for fitness💜 I have never felt more confident ever!! Still not even close to where I want to be but progress is progress. I treated myself to some new bikinis. 🤗🤗🤗 #workout #fitnessmotivation #girlsthatlift #bootyfordays #bootybootybooty #bootybuilding #doingitforme #consistencyiskey #motivation #bootymotivation #gymmotivation #gym #itslifestyle #notadiet #progressnotperfection #loveyourself #bikiniseason #summertimeiscoming #tattoos #girlswithtattoos #tattooedandemployed #livingwithcrohnsdisease #crohnsfighter #crohnsawareness #happiness #blessed #makeyourselfproud #ilovehashtags
😴 Extreme fatigue — READ BELOW 👇 Does anybody else suffering with an IBD feel extremely tired during the day, having little energy to do a lot, getting tired/worn out quickly after doing something simple but then can’t sleep at night? 😫 — Sometimes it’s as simple as taking a shower. I can be exhausted afterwards, weak/no energy and I have to go for a wee 10 minute rest to get my energy levels back up again. 😴 — You’d think with me not doing much right now as I’m giving myself time to recover by relaxing I should be sleeping sound as a baby 👶🏻 but no. It doesn’t work like that. I AM CONSTANTLY TIRED. 🤔 Then when it comes to going to bed, I am wide awake! 🙃WTAF 🙃 it is driving me slightly up the wall not going to lie. — Is it the medication?? I don’t know!! Who else suffers from this and can give any advice? Feeling physically and mentally exhausted can feel so draining and frustrating. That’s why it’s best to try and be positive about the situation and try to find different ways to relax and unwind to reduce stress levels. Well that’s my advice and opinion on it. Would anybody like a blog on things that I do to relax/de-stress? — Follow for daily updates!! 💜 Puffy/dark/tired eyes are just the best 👍🏻
Lunch today. I tried Tuna a few weeks after I had my stoma and I didn't react well to it, very watery output. So I'm now 5 months post of and reacting to food better so thought I'd give it another go. And it was a success!! I mix my tuna with, vinegar, salt and pepper, salad cream, cheese and cucumber (removed the skin of course). Cooked some mini frozen baguettes and all done. Went down (and came out) a treat 😋😉 #crohnsawareness #crohnsdiease #inflamatoryboweldisease #ileostomydiet #ileostomy #ostomydiet #stoma #whatieat
Day #15 #opensesame @cyogalab @palomahuner @gmcyoga #galavasana or #flyingpigeon Feeling very strong here. I also managed to stay in this on my weaker side so yay for that!!! Although every time I go to lift the back leg off my arm and I lose my bottom foot grip and fall out. So not quite there but I'm going to do it over and over and figure it out!!! 😍 Yesterday was so nice I took my practice to the deck! And all my bulldogs joined me of course! Bully yoga is a thing right !?! 😉😋 #crohnsfighter #ostomywarrior #crohnsawareness #ostomyawareness #crohnsdisease #yogini #yogalover #yogalife #liveyogaoffthemat #youareenough #breathethrough #loveyourself #findthecalm #findyouredge #findyourinnerstrength #nevergiveup #bepresent #mindfulness #bethebestyou #bethechange
What's your views on this? I had no support from the healthcare system when i decided i wanted to try and heal naturally. I felt judged and stupid, especially as healthcare is free for me in London. I felt ashamed to come back and admit that i needed more help, more drugs and within that more side effects. Which of course i would go back to them for more drugs to help😴 #crohnstraveler #crohns #colitis #remicade #entivyo #humira #crohnsawareness #presnisolone #entocourt #nomoneyinthecure #curecrohns #mentor #publicspeaker #advocate #blogger #vlog #youtuber #crohnsmeds #ibdmedication #fundraising #ibdresearch #ostomy #illium #healthcaresystem
Reposting this because I just finished 6 months of chemotherapy and I’m feeling myself. Everyday is a struggle with my Crohn’s but the past 6 months has been the hardest time of my life. I’m taking it easy but still conspiring and up to no good so expect some new films this year. To everyone suffering with invisible illnesses, I hope you all make it through today with a smile on your face. It’s difficult, but you have a purpose and you can be a beacon of hope for others following you who need some light in their time of darkness. It’s important that we all be more mindful of the role models we’re becoming. So many people are relying on you and you don’t even know it. Keep fighting. . . . . #chronswarrior #crohnsdisease #crohnsawareness
Happy Monday! ☀️ today is colonoscopy prep day, with my first (probably of many!) procedure tomorrow, today is a day of not eating ANYTHING 😫 and drinking only clear liquids followed by a cocktail of laxatives to clear the system, oh isn’t IBD pleasant ☺️ to say I am #hangry is an understatement, and it’s only 1pm!! But in all seriousness the procedure will be super helpful to get a full picture of what is going on in my body and the extent of the fistula I have which will ultimately determine what biologics I need to take and reassess the current dose of immunosuppressants - so definitely a step in the right direction! ⏩💜 #crohnsdisease #IBD #monday #mondaymotivation
Day 14 #opensesame @cyogalab @palomahuner @gmcyoga #bhairavasana variant or #legbehindhead This pose is slowly opening for me, just like my hips are opening slowly.... we are all connected, they are all connected, I am starting to see 🙄 I am enjoying the pose quite a bit now and I am staying to just BREATHE! The fact that I am smiling at the camera shows just how comfortable I really am. It was not always like that and I have worked at the hips and my mental strength which have all helped a lot. Practice and all is coming is true. It may be slow, it may not always be comfortable.....but staying true and consistent paves the way to success! This also means taking days off when needed, listening to your body saying it needs a break between yoga days. That's been my hardest lesson learning.... (not learned, always learning) to take a rest day and to not stress missing days either. Life happens and what is meant to be truly will be. There's hope in that.....a light that shines for me there.... 🌞 #crohnsfighter #ostomywarrior #crohnsawareness #ostomyawareness #crohnsdisease #yogini #yogalover #yogalifestyle #liveyogaoffthemat #breathethrough #youareenough #loveyourself #findthecalm #findyouredge #findyourinnerstrength #nevergiveup #bethebestyou #bepresent #mindfulness #liveinthemoment
Sometimes people just need a boost to know how wonderful and strong they are. This girl is @jessica_westcott91 she’s my best friend and she has this horrible disease called Crohns. I can’t begin to tell you the hell this girl has been out through in the last 7 years. What I can tell you is about her spirit. This girl is a fighter. She will never let her illness define her. She will never let it take control and she will never be broken by it. There are good days and bad days, but this girl can bring sunshine to your life despite living her own stormy day. She is a fierce friend. This girl is so loyal and loving, it’s hard to put into words how far she will go for you. Even on the worst days of her illness she will drop everything to make her friends and family happy. If that isn’t strength I don’t know what is? She’s invincible. Nothing will destroy this girls spirit. There are some days she needs reminding of that, but not often. The pride I feel to call this girl the godmother to my son and my best friend is indescribable. She’s a force to be reckoned with. If any of you know anything about Crohns you’ll know how horrendous the uphill climb is. This girl is an inspiration. This girl is Jess Fucking Westcott. And if you don’t know her, you should. I love you. #fighter #spirit #nevergiveup #bestfriend #love #inspirational #godmother #kind #beautiful #special #forcetobereckonedwith #proud #strong #wonderful #crohns #crohnsdisease #warrior #crohnsawareness #keepgoing #keepsmiling #family #mygirl #fitnessmotivation #dontstoptheparty #alwaysandforever #crohnsandcolitis #crohnsandcolitisuk #fightingdisease #amazingwoman #womenempowerment
Yup...this would be me waiting for important test results...🙋🏻‍♀️🙋🏻‍♀️ (fun fact: the first concert I went to was Bush with Veruca Salt opening. Not this Veruca Salt luckily. Can you imagine 30 minutes of her singing “I Want It Now”? 🤣) #impatient #impatientlywaiting #testresults #crohns #crohnsdisease #ibd #crohnsawareness #mastcellactivationdisorder #sucroseintolerance #lactoseintolerant #allergies #foodallergies #foodintolerance #ijustwannaeat
#IBDSuperHeroes believe 💜 Even on the days you couldn't feel less "heroey", remember where you've been, what you've fought through already and the percentage of bad days you've gotten through so far! You've got this. You CAN do it. You've done it before. You're DOING IT NOW 💜 Shared from @sharik1198 - Someone at work mentioned their child’s school was having super hero day. They were to come to school dressed as their favorite super hero. Then someone suggested we should have that at work and we should dress up. I said I was going to dress as myself😊 I BELIEVE! #ibdfighter #ibdhero #crohnsandcolitis #ibdsuperheroes #beyourownhero #honoredhero #crohnsawareness #crohnscolitisawareness #believeinyourself #selfpower #missiondriven #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #CureIBD #IBDawareness #IBDproblems #IBDwarrior
This afternoon I’ve been really struggling with my stomach and I’m in limbo while I await an MRI scan. So I’ve spent the afternoon in bed with this little dude and had a surprise visit from @jackmilton96 ❤️ I am so fortunate to have someone who supports me even on the bad days (and there are a lot of those lately)😫 back to my liquid diet tomorrow after 2 meals this weekend have left me crippled😭 #crohnsdisease #crohns #awareness #liquiddiet #chronicillness #swollen #pain #bed #kitten #crohnswarrior #crohnsawareness #boyfriendgoals #love #support #fighting #instagram #instadaily
Not great when you think everything is going well then you just go right down hill! #crohns #crohnssucks #crohnsdisease #crohnsdiseasesucks #crohnslife #crohnswarrior #crohnsfighter #crohnsawareness #ibdawareness #ibdsuperheroes
Meds 💊 — READ BELOW 👇 Everyone’s IBD (inflammatory bowel disease) is different and everyone gets treated with different kinds of medication. Sometimes these medicines work and other times they don’t, It’s all trial and error to see what works best for you. — Medication that I’m currently taking: Prednisolone, azathioprine and adcal calcium & D3 — AZATHIOPRINE Why am I being treated with this? I am taking azathioprine as my main "pain killer" the idea behind this medicine is to reduce my steroids and eventually come off them without suffering another flare up and also to help reduce the inflammation. Azathioprine is a immunosuppressant, this means that this drug suppresses/ reduces the strength of the body’s immune system. The immune system is important for fighting infections but if your like myself and have a low immune system sometimes immune cells attack the body’s own tissues and trigger chronic inflammation. Is it working for me? At this moment in time, I’m not sure. Azathioprine is a slow acting drug. It could take up to 3-6 months before starting to notice the benefits. These drugs were prescribed to me by my consultant in the hospital and I am now being monitored by my gp as part of "shared care" between the hospital and doctor. I’m getting regular blood tests taken by my gp, testing full blood count, liver function tests .These are important seeing as Azathioprine can suppress normal bone marrow function and can cause liver complications. — PREDNISOLONE Why I’m being treated with this: It is a steroid which helps to reduce inflammation (I am inflamed in my bowel) Is it working? My recent blood results show that my inflammation markers have come down but are still very high so something must be working. — As with all medicines they come with side effects. Side effects that I am currently experiencing are insomnia, sweats, indigestion/heart burn. (I’m taking lansoprazole for my heart burn) — What medicines are you taking for IBD? Are they working for you? Do you suffer from any side effects? — Follow for daily updates 💜
Love when the sun comes out because I can wear my favourite summer dress. I bought it while we were in Portugal 2 years ago, so pleased I still for in it.. Just love the pretty colours and patterns. Looks like it's the going to be the last of the nice weather here, so got two loads of washing done. #makeupfree #nomakeup #sunny #summer #crohnsawareness #crohnsdisease #inflamatoryboweldisease #ileostomyfashion #ileostomy #ostomy #stoma #bagwhatbag #sepsissurviver #whatostomateswear #ootd
Sunday Brunch💥💥 • roasted brussels, red potato & pancetta hash {onion, bell pepper, garlic, thyme, pepper, red pepper flakes}, sunny side up egg, sliced avocado & grape tomatoes • #fromthetaylorkitchen . . . . #eatclean #cleaneating #brunch #breakfast #roastedbrusselsprouts #brusselsprouts #avocado #pancetta #sunnysideupegg #eatincolor #foodie #instafoodie #foodstagram #crohns #crohnsdisease #crohnsawareness #livingwithcrohns #lifewithcrohns #invisibleillness
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