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"The bad days teach you patience and the good days teach you gratitude"
After having life saving emergency surgery back in November and waking up to find that I had an ileostomy I was devastated. I didn't want my life to be this way, but having an ileostomy has given me my life back. I've put on 2 stone since surgery which is a great achievement for me since I've never reached over 8 stone.
#loveyourstoma #loveyourself #loveyourstory #crohnsawareness #ileostomy
😴 Extreme fatigue — READ BELOW 👇
Does anybody else suffering with an IBD feel extremely tired during the day, having little energy to do a lot, getting tired/worn out quickly after doing something simple but then can’t sleep at night? 😫
Sometimes it’s as simple as taking a shower. I can be exhausted afterwards, weak/no energy and I have to go for a wee 10 minute rest to get my energy levels back up again. 😴
You’d think with me not doing much right now as I’m giving myself time to recover by relaxing I should be sleeping sound as a baby 👶🏻 but no. It doesn’t work like that. I AM CONSTANTLY TIRED. 🤔 Then when it comes to going to bed, I am wide awake! 🙃WTAF 🙃 it is driving me slightly up the wall not going to lie. —
Is it the medication?? I don’t know!! Who else suffers from this and can give any advice?
Feeling physically and mentally exhausted can feel so draining and frustrating. That’s why it’s best to try and be positive about the situation and try to find different ways to relax and unwind to reduce stress levels. Well that’s my advice and opinion on it. Would anybody like a blog on things that I do to relax/de-stress? —
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Puffy/dark/tired eyes are just the best 👍🏻
Lunch today. I tried Tuna a few weeks after I had my stoma and I didn't react well to it, very watery output. So I'm now 5 months post of and reacting to food better so thought I'd give it another go. And it was a success!! I mix my tuna with, vinegar, salt and pepper, salad cream, cheese and cucumber (removed the skin of course). Cooked some mini frozen baguettes and all done. Went down (and came out) a treat 😋😉 #crohnsawareness #crohnsdiease #inflamatoryboweldisease #ileostomydiet #ileostomy #ostomydiet #stoma #whatieat
Reposting this because I just finished 6 months of chemotherapy and I’m feeling myself. Everyday is a struggle with my Crohn’s but the past 6 months has been the hardest time of my life. I’m taking it easy but still conspiring and up to no good so expect some new films this year. To everyone suffering with invisible illnesses, I hope you all make it through today with a smile on your face. It’s difficult, but you have a purpose and you can be a beacon of hope for others following you who need some light in their time of darkness. It’s important that we all be more mindful of the role models we’re becoming. So many people are relying on you and you don’t even know it. Keep fighting. .
#chronswarrior #crohnsdisease #crohnsawareness
Happy Monday! ☀️ today is colonoscopy prep day, with my first (probably of many!) procedure tomorrow, today is a day of not eating ANYTHING 😫 and drinking only clear liquids followed by a cocktail of laxatives to clear the system, oh isn’t IBD pleasant ☺️ to say I am #hangry
is an understatement, and it’s only 1pm!! But in all seriousness the procedure will be super helpful to get a full picture of what is going on in my body and the extent of the fistula I have which will ultimately determine what biologics I need to take and reassess the current dose of immunosuppressants - so definitely a step in the right direction! ⏩💜 #crohnsdisease #IBD #monday #mondaymotivation
Meds 💊 — READ BELOW 👇
Everyone’s IBD (inflammatory bowel disease) is different and everyone gets treated with different kinds of medication. Sometimes these medicines work and other times they don’t, It’s all trial and error to see what works best for you.
Medication that I’m currently taking:
Prednisolone, azathioprine and adcal calcium & D3
Why am I being treated with this?
I am taking azathioprine as my main "pain killer" the idea behind this medicine is to reduce my steroids and eventually come off them without suffering another flare up and also to help reduce the inflammation. Azathioprine is a immunosuppressant, this means that this drug suppresses/ reduces the strength of the body’s immune system.
The immune system is important for fighting infections but if your like myself and have a low immune system sometimes immune cells attack the body’s own tissues and trigger chronic inflammation.
Is it working for me?
At this moment in time, I’m not sure. Azathioprine is a slow acting drug. It could take up to 3-6 months before starting to notice the benefits. These drugs were prescribed to me by my consultant in the hospital and I am now being monitored by my gp as part of "shared care" between the hospital and doctor. I’m getting regular blood tests taken by my gp, testing full blood count, liver function tests .These are important seeing as Azathioprine can suppress normal bone marrow function and can cause liver complications. —
Why I’m being treated with this:
It is a steroid which helps to reduce inflammation (I am inflamed in my bowel)
Is it working?
My recent blood results show that my inflammation markers have come down but are still very high so something must be working. —
As with all medicines they come with side effects. Side effects that I am currently experiencing are insomnia, sweats, indigestion/heart burn. (I’m taking lansoprazole for my heart burn) —
What medicines are you taking for IBD? Are they working for you? Do you suffer from any side effects?
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