#crohnscolitis

6,032 posts

Loading...
Netflix has been my saviour from boredom whilst I've been in hopsital. Two series of Ru Paul down, many many to go😂 having my last dose of antibiotics tonight. My CRP has come down again to 18 and I've been pain relief free all day🎉 fingers crossed tomorrow is home time🤞 #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsawareness #ibdandme #ibdawareness #ibdwarrior #ibdsuperheroes #netflix #netflixandchill #netflixandill #hospital #hospitallife #painfree #chronicillness #invisibleillnessawareness #invisibleillness #nurse #better #happy #bedtime #ostomybag #ostomyblogger #ostomywarrior #ostomyawareness #ostomylife #blogger #blog
All levels are welcome! Do yoga, do good. #crohnscolitis #crohnscolitisawareness #doyogadogood
Stuck with this shit for 24 hours straight. Fascinating how quickly I get dehydrated. Skipped this shit last night cause me, @understrekk and @larz_61 watched Luleå kick HV 71's ass, so it's totally worth being a bit dehydrated, although, I'm insanely sick of being attached to this fucking tubes. Hope I get my specially made backpack soon, then I can carry this shit with me. Perfect being at the gym working out and get nutrition straight in the vein, the gainzzz should come pretty quick, and I sure need gainzzz. Now I'm just skinnyfat and weak as fuck! 😂 #smofkabiven #glucose #crohns #fistula #shortbowelsyndrome #crohnscolitis #crohnsdisease #crohnsawareness
I had the cheek to eat at Uni yesterday whilst also getting chewed up over a situation that is a trigger for my crazy. My crohns didn't agree with this renegade behaviour, eat before tea time whilst not at home and stressed out! The bare nerve! My digestive system punished accordingly, I'm fooking paggered today, already feeling guilty for still being in my dressing gown past 9am though. I need to get over myself, the world doesn't need me that much that I'll be missed if I don't put my clothes on all day. . Something I've noticed about us folk that suffer regular ill health, whether it be physical, mental or both, is that we tend to big up our own importance. Like everybody is gonna immediately notice we're not there or didn't do something, that we are needed and that if we can't do what we normally do, things will fall apart and people will be angry or disappointed in us. I keep having to remember TO GET OVER MYSELF. People have other shit going on, are more than capable of coping without me and really aren't that bothered if I'm not on "top form" every now and then. Especially on a day when I don't have to do anything pressing. It's a business day, and being a creative and working from home really gives me the freedom to be kind to myself today. The guilt of not going out to buy Pudsey ears for my youngest is easily balanced by making her a sponsorship form early doors this morning for the fundraising she wants to do. . I really need to get over myself, I'm not that special.....and today that can only be a good thing!! GET OVER YOURSELF. . #crohnsdisease #crohnscolitis #ptsd #ptsdlife #mentalhealth #invisibleillness #lazyday #selfcare #selfawareness #getovermyself #nothingspecial
#fuckthisbag #feelmeh #ostomy #lovinglife #realasfuck #iainthiding #crohnscolitis #crohnswarrior #crohnsboy #ileostomybag #ileostomy Do need to find some weight tho👀 anyone recommend any shops?😂🤣😂🤣😂 who's a shamed, YOU! That's your problem, #swivel 🖕💜💜💜💜💜💜💜💜💜💜
Update- my CRP has come down to 30😮😮🎉🎉 still slightly raised but dropped dramatically, hopefully it'll stay down! Scheduled for an MRI scan in the next few days to hopefully find something and I may be able to go home if it's not done before Thursday so fingers crossed. I also managed to write 150 words of my first assignment, took me 4hrs because I'm constantly interrupted by something but it's a start. #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsandcolitis #crohnsawareness #spooniewarrior #spoonielife #spoonieproblems #ostomyblogger #ostomybag #ostomywarrior #ostomylife #ostomyinspo #ostomy #grateful #veterinarynursing #university #health #home #scan #hospital #improving #feelingbetter #crp #bloods #blogger #blog
Uh-oh!! I think I let my eyes get bigger than my stomach 😛🤯 Ain’t no way I’m gonna finish this bad boy of a plate! We have here the Bigfoot chicken fried steak and eggs along with hashbrowns and two pancakes! The Black Bear Diner here knows how to give you more for your buck that’s for sure 😋🤤💜 . #breakfast #chickenfriedsteakandeggs #blackbeardiner #foodporn #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness #nocolonstillrollin
Getting my workout in for the morning! Since recovering from my vitamin D deficiency, I’m definitely feeling a lot better and doing more than what I can do prior to my deficiency. I’m also doing my utmost to stay on top of my vitamin supplements and going in for frequent checkups. 💪🏼🏋🏻‍♂️ . #gym #gymlife #weightloss #weightlossjourney #crohnsdisease #crohnscolitis #crohns #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness #nocolonstillrollin
Transfomation Tuesday... Well here goes to growth outside of my comfort zone now 😭🙏🥂🙌😍 Looking forward to having some fun on this new journey, inspire and motivate you too. 😁 #arbonnerepresentative #vegan #nutrition #stomagirl #stomalife #crohnscolitis #runnergirl #transformationtuesday
Thank you for your heart felt farewell @crohnspool ・・・ Rest In Peace, Stan Lee 😔🙏🏼💔 Thank you for the creations you have made over the years. They had given me hope to overcome the pain I had suffered and endured from my battle with Crohn’s. They were the perfect escape for me as I was coping and healing. You will forever be in my heart and may your memory continue on kind sir. EXCELSIOR!!!!!! . #stanlee #stanleequotes #ripstanlee #quotes #quoteoftheday #comicollector #comicfan #comiclover #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness
#Repost @itcouldbeworseblog (@get_repost ) ・・・ With my STELARA (ustekinumab) Self-Injection #5 , I go through my shot process and try to discuss getting a flu shot, a quick update on my Crohn's disease, vacation, surgery, and, what others could possibly expect. There was quite a bit to mention while I administered my medication. I also mention getting a yearly flu shot, the past 8 weeks, vacation and sun exposure, having surgery and the stress that comes with that, etc. Watch the video if you like, I try to offer up information on Crohn's disease, Stelara and side effects, and what I go through every eight weeks. #crohns #itcouldbeworse #stelara #ustekinumab - https://m.facebook.com/story.php?story_fbid=2162528050740990&id=1586159345044533 - - https://youtu.be/7WGY0VGgD04 - - itcouldbeworseblog.com -
#Repost @itcouldbeworseblog (@get_repost ) ・・・ Just look at this wonderful and stunning handmade stained glass ribbon I was given for my Crohn's disease, hence the purple theme. How thoughtful of Kim for making me this gift that will hang on my window. I'll get to enjoy it every morning with my coffee. Kimmy, it is absolutely beautiful and I am so glad to call you a friend. Photos do not do it justice, people. I love it. #crohnswarrior #stainedglass #ribbon
With my STELARA (ustekinumab) Self-Injection #5 , I go through my shot process and try to discuss getting a flu shot, a quick update on my Crohn's disease, vacation, surgery, and, what others could possibly expect. There was quite a bit to mention while I administered my medication. I also mention getting a yearly flu shot, the past 8 weeks, vacation and sun exposure, having surgery and the stress that comes with that, etc. Watch the video if you like, I try to offer up information on Crohn's disease, Stelara and side effects, and what I go through every eight weeks. #crohns #itcouldbeworse #stelara #ustekinumab - https://m.facebook.com/story.php?story_fbid=2162528050740990&id=1586159345044533 - - https://youtu.be/7WGY0VGgD04 - - itcouldbeworseblog.com -
Like damn clockwork I swear 😳 #crohnsiscray #crohns #colitis
Hey there, Instagram. 👋🏻 I noticed a bunch of new followers this week, so I thought I’d introduce myself! . I’m Erika, a 26 yr old Masshole with a passion for all things earthy crunchy. I study politics & anthropology while building my own business. I love what I do— I get to see lives change. 💕 . My interest in natural health came from my own frustration with my body & all the doctor visits and testing and meds- I was DONE. Completely over it. So I hopped on Google and after a LOT of research I found Paleo, then I found oils, then I found intentional movement. More on all that later. 👍🏻 . I went from not feeling well enough to leave my bed to hiking 2-4 miles almost every single day. (Even in the rain!) . So now, I get to empower others to make decisions to better their own health & lives- which is somehow magically making my own life feel even better. It’s AMAZING. And I love my tribe! 💖 . I’m happy we’re connected & can’t wait to interact with you! Let’s be friends, come say “hi” anytime. ☺️
Once again, f*ck you Crohn's disease. You're the most annoying thing I've ever dealt with my whole life. You're the biggest bully, you attack all my organs, cause a bunch of other symptoms that I had no clue about, caused so much complications, forced me to do a second round of low dose chemo, endure so much pain where I feel like I'm being ripped apart, have a picc line put in, yet, you still haven't stopped me. I still continue to push forward when you try to take me down. The daily struggles I face, the chronic pain, nausea, anxiety, depression and a bunch of others that come along with it are no match. #fuckyoucrohns #crohnswarrior #crohnsdisease #fyouibd #fyoucrohns #crohnsflareup #crohnscolitis #crohnscantstopme #crohnsdiseasewarrior #crohnssucks #ibdwontstopme #ibdlife #iwontbedefeated #crohnie #crohnielife #spoonie #spoonielife #chronipain #chronicillnesslife #chronicnausea #chronicallyill #chronicinvisibleillness #chronic #autoimmunedisease #instacrohns #warrior #crohnscomplications #colitis #crohnscolitiscanada #inflammatoryboweldisease
Rest In Peace, Stan Lee 😔🙏🏼💔 Thank you for the creations you have made over the years. They had given me hope to overcome the pain I had suffered and endured from my battle with Crohn’s. They were the perfect escape for me as I was coping and healing. You will forever be in my heart and may your memory continue on kind sir. EXCELSIOR!!!!!! . #stanlee #stanleequotes #ripstanlee #quotes #quoteoftheday #comicollector #comicfan #comiclover #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #stomalife #ostomyawareness #nocolonstillrollin
Update- saw an actual proper good gastro doctor. Not mine because he's on annual leave but he was just as good! He's still baffled as to what's wrong with me though! My CRP hasn't come down today, still 158 and he's not convinced it's an infection but is keeping me on the antibiotics til I've had 5 days just so I'm covered. He's said I don't need steroids because until we know what it is, we don't know if they will even help and they're such a mild form that they wouldn't help anyway. So hurray glad I didn't take them!! He is arranged for me to have an MRI scan, maybe a CT scan but not sure when that will be done. I've got to stay in til Wednesday to see him again and if I'm ok and my CRP comes down I can go.. if it stays up I have to stay in 😥 fingers crossed it improves🤞 #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsandcolitis #crohnsawareness #crohnsdisease #ibd #ibdandme #ibdawareness #instacrohns #invisibleillnessawareness #inflammatoryboweldisease #crp #bloods #hospital #doctor #consultant #gastro #paracetamol #ward #netflix #bored #medicalmystery #medicine #autoimmune #ostomywarrior #ostomyawareness #ostomyblogger
Just look at this wonderful and stunning handmade stained glass ribbon I was given for my Crohn's disease, hence the purple theme. How thoughtful of Kim for making me this gift that will hang on my window. I'll get to enjoy it every morning with my coffee. Kimmy, it is absolutely beautiful and I am so glad to call you a friend. Photos do not do it justice, people. I love it. #crohnswarrior
Chaos. 😂 One Step Forward, Two Steps Back -- It Could Be Worse Blog -- http://itcouldbeworseblog.com/2018/11/10/one-step-forward-two-steps-back-it-could-be-worse-blog/ #crohns #fibro #itcouldbeworse #blog #newblogpost #linkinbio
Some days (like today), this is about as much workout motivation as I have 😂 • • Honestly, I’m still trying to learn how to pace myself and not overdo it physically when my Crohn’s starts acting up...I know it’s important to rest and help my body heal and that’s not something I’ve been very good at in the past. So I’m learning to do better and forcing myself to make some days a shavasana-only day :-) • • #yogadogs #pitbullsofinstagram #crohnsfitnessfood #crohnsdisease #crohns #crohnscolitis #crohnswarrior #crohnsjourney #mycrohnsjourney #IBD #crohnie #ibdawareness #crohnsawareness #inflammatoryboweldisease
True strength doesn’t come from a physical capacity. It’s the capacity of our heart and that drive to continue to persevere and never give up. We do it not only for ourselves but the people we love and cherish and to also help those that may be in need of our love, support, encouragement and kindness. I do my best to be the best person I can be to influence and inspire those that need it the most! The support that I have received on here really amazes me and the people I have met that have had many struggles amaze me just as equally if not have me awestruck! I will do my best to continue to give support and encouragement to those out there that need it the most! Stay strong and positive everyone and continue fighting! DON’T GIVE UP AND BACK DOWN 💪🏼👊🏼✊🏼💜 . #hercules #inspiration #inspirationalquotes #quoteoftheday #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #irritablebowelsyndrome #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness #nocolonstillrollin
I DID IT!! 💯 done and dusted‼️ For the longest time I dreamed of this day. I never knew if completing a Century would ever be in the cards for me. . And to do it with your support by raising more than $4,100 for @crohnscolitisfoundation is just icing on the cake! I clocked in at 6:20, way ahead of my goal of 7 hours. I can’t thank my friends and family enough for being by my side as I crossed the finish line! And of course the support of my Team Challenge family and coach. Definitely one of the best weekends of my life. . It all really sank in while @taylorsable was brading my hair the night before the race. “It’s so thick and long! I remember when it was so brittle you had to have your extensions.” “Ya I remember your wig wearing days.” Said @gianmitchell . Well this disease can take away our hair. It can take away our organs. It can take away our bone mass and blur our vision. But it can’t take away our spirit!! I ride in honor of anyone affected by these diseases! Thank you all for your support!! It means the world to me. 💜 . . . #century #palmdesertcentury #roadbiking #giantbicycles #teamchallenge #crohnscolitis #jpouch #cycling #roadbike #crohnsdisease #nocolonstillrollin
Update: just been seen by a gastro doctor.. quite funny really as he tried to see me in clinic on Wednesday and I point blank refused to see him because he didn't know me but this time I had no choice! I will be moving to the gastro ward once a bed is available.. hopefully never because I hate gastro wards. I should have sympathy but I just can't stand being surrounded by people vomiting etc. They're keeping me on antibiotics for now but he's not convinced they're working fully because my CRP should have dropped a lot more than it has. But I feel much better so surely it's working?! He's starting me on IV steroids. He wanted me on hydrocortisone but I said I didn't want the ones that caused moonface so he's putting me on budesonide which is only mildly absorbed and good for only Crohn's but only because I seem well and that if I get worse I'll have to go on the moony ones.. but I don't think I'm going to get worse.. they're going to try and get me an MRI scan whilst I'm in but if I'm fine enough to go home before it's sorted I'll just have it as an outpatient as originally planned. He's not convinced it's an infection and more like to be Crohn's related, could be something like a part of my bowel is being pinched and affecting blood supply which can cause acute pain. I just want to see my consultant because he will have the best plan for me! #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsawareness #steroids #moonface #ibd #ibdandme #ibdawareness #invisibleillnessawareness #instacrohns #inflammatoryboweldisease #specialistmedicine #spoonielife #spooniewarrior #gastro #gastroenterology #ostomybag #ostomyblogger #ostomywarrior #ostomyawareness #antibiotics #augmentin #hospital #bloods #tired
Next year I'll still be running for peace and awareness. My choosen charity will be the #NSPCC preventing abuse, which includes physical, emotional, sexual and grooming towards babies, children and young people. I will still be raising awareness for #palestine , the future of their children and young people should be that of the world's most interest. I hope my message delivers #peace and #unity and an end to #childabuse which is happening right now. Can't wait to get out training in 2 weeks with my new mate Chewy Stoma. Back volunteering in 2 weeks too, you will find me at the #chillfactore #manchester with the #crohnscolitissouthmanchester crew. ( I'll be sat down, so so gutted I have to miss the activities on this one.😭😭😭😭 I will update near the time) #halfmarathons #marathons #ultras #childrenssocietyindependentvolunteer #crohnscolitisvolunteer #dancing #fun #nspcc #palestine #crohnscolitis #childrenssociety #peacearoundtheworld #runningforpeace #runnergirl #ukrunchat #running #stomagirl #ravegirl #unitednations #arbonnerepresentative #worldpeace #educate #refugees #letchildrendecidewhotheyare
Chaos. 😂 One Step Forward, Two Steps Back -- It Could Be Worse Blog -- #crohns #ganglion #fibro #itcouldbeworse http://itcouldbeworseblog.com/2018/11/10/one-step-forward-two-steps-back-it-could-be-worse-blog/
Autoimmune disease attacks every organ in the body, including your joints. It is very painful and exhausting to live with but in the end, I am a strong girl and a fighter... a warrior... nothing can stop me no matter how ill I may become from Crohn's. I already have a picc line in my arm for treatments and other meds... I am a true fighter. I will admit that I do have my days where I am just tired of fighting my illness 24/7. I do miss the old days when I wasn't sick. I will for ever charish those moments and of course the new ones that are yet to come even during this fight. I have faced many challenges this disease has brought me and will push through whatever else it decides to toss at me. #autoimmunedisease #crohnswarrior #crohnsdiseasewarrior #crohnielife #crohnie #ibdwarrior #ibd #inflammatoryboweldisease #instacrohns #warrior #fighter #fightagainstcrohns #chronipain #chronicillnesslife #chronicillnesswarrior #invisibleillness #chronicinvisibleillness #piccline #lowdosechemo #chemoforcrohns #crohnscolitis #crohnsfacts #crohnscolitisfacts #ibdfacts #crohnslife #ibdlife #crohnstreatments #lifewithcrohns #sideeffects #crohnscomplications
This definitely counts for life/running too...and post surgery recovery...🤓🙌 #life #mountains #adventures #runnergirl #stomagirl #crohnscolitis #motivation #ourbeautifulworld
#crohnscolitis #crohn 'swarrior #invisibleillness #bloating My stomach has been ANGRY. More specifically, my intestines. I am SO bloated that my normal fitting leggings are uncomfortable. My face and my stomach have blown up from the excess fluids I got after my reaction to my infusion on Wed. I've been MISERABLE body wise. My partner, who admittedly doesn't notice much, noticed how puffy my face is. I don't even want to take selfies with my makeup because of it. The second picture is from three days ago trying a new color and i loved it! But I'm so self-conscious lately. I can't help it. I've been struggling with my body these last few days. I was doing so well with the remicade and lowering dose of prednisone. I had to up my dose this morning because yesterday (thursday, sorry it's after midnight now) I was in SO much pain. I'm really hoping it's not the lowering of the pred. I really want to come of this forsaken medication. I ended up binging last night. I was mad and sad and just wanted to eat EVERYTHING my eyes fell on. So I did. And I feel guilty but I know it's the med and I'm doing better tonight. But my pants don't fit, my face is swollen, and I'm just so tired of this body. Where's the exchange section? No returns? I want to talk to the manager please.
#kickforcrohnsandcolitis at Paul Brown to support finding a cure for Crohn’s and Colitis! This is how I feel about Crohn’s: 🖕! #crohns #findacure #crohnscolitis #crohnssucks #cureforcrohns #seizethedey
Entyvio day!!! I almost missed this appointment! I thought i was supposed to see my gi at 3:15 today but turns out i only had my infusion at 1pm!! I obviously didn't show up then but the amazing nurse called and was able to get me in a bit later 🙏. At least i got this in and i see my gi on the 21st, i got it now lol! Hida scan was normal but kidney function is off again so back to the nephrologist I go (20th). Ill take a break any day now please and thank you 🤦‍♀️🙏🤞. Have a lovely Friday everyone 🤗💜💜 #crohns #ibd #crohnscolitis #ostomy #ilesotomy #enytvio #entyvioinfusion #nocolonstillrollin #keepfighting #babeswithbags #tattoedgirls #inkedgirls #girlswithtattoos #bekind #loveyourself #loveeachother
Indeed. We are all human beings and it’s only human nature to have and feel these emotions. Never let anyone tell you how you’re supposed to feel, especially when they have no clue with living with a chronic illness. It’s also a wise idea to express and let out those feelings and not bottle them up as I had done for so many years. Don’t ever feel that you’re weak for experiencing these emotions either because it takes a strong person to show and let out those emotions and it’s the first step of growing and being strong. 🙏🏼💪🏼💜 . #life #lifelessons #itsokman #stayingstrong #emotions #struggle #lifestruggles #quotes #quoteoftheday #quotestoliveby #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #stomalife #ostomyawareness #nocolonstillrollin
The season of Crohn’s... It seems that no matter what I do, my body fights me every winter/holiday season. Without fail, when November and December come around, my Crohn’s likes to remind me that it’s still there. Last winter, I gave up all my fermented foods to try the #carnivore diet, in hopes of knocking out the symptoms that were returning then. • • This picture was taken a few years ago on a ski trip with friends to Breckenridge. Although I was on Humira at the time, I still struggled. I remember most nights curled up in my bed with silent tears from the pain that felt like shattered glass in my colon. I took handfuls of Tylenol on those night, but it didn’t help. • • So, fast forward to today, I’ve had a rocky few months, but a week ago I thought I was on the mend. I had brought back raw milk and boiled carrots—which seem to have positive effects on my digestion—but it was one step forward and two steps back, because my symptoms are back...though thankfully mild. • • I try to not let Crohn’s stop me from enjoying life, but the struggle is hard sometimes. So keep your head up and know you’re never alone. Remember to look for the positive even when the going gets tough. Gratitude and positivity have powerful effects on our mental and physical well being. So even though Crohn’s likes to remind me it’s still there, I’m choosing to be grateful and focus on the fact the most days I still feel really good and pain free, I have a supportive husband and IBD community around me, and I have a team of doctors and health care professionals I trust who are only a phone call away. • • How many of you find that a specific time of year exacerbates your IBD symptoms? What are you grateful for, even in times of challenge? • • #crohnsfitnessfood #crohnsdisease #crohns #crohnscolitis #crohnswarrior #crohnsjourney #mycrohnsjourney #IBD #crohnie #ibdawareness #crohnsawareness #inflammatoryboweldisease
If you don’t get your flu shot, I will not be able to hang out with you - I have enough trying to kill me. #immunosuppressed #crohnscolitis #ibd
This is an emotional one for me to write but I’ve always kept my Instagram up to date with my health and have used it as a diary of sorts. I’ve just been given my date for my ‘barbie butt’ surgery, hopefully my final surgery. I feel that UC has taken so much of my life, and none of it has been easy, I have never been in remission, I have never stopped needing to go to the loo and I haven’t been medication free for 7 years. As you can imagine this is a big deal, it’s a major surgery but I’m so lucky I have an amazing surgeon and I’ll be pleased to leave this part of my life in 2018. Any tips would be appreciated xo ~ ~ ~ ~ #ibd #inflammatoryboweldisease #crohns #crohnscolitis #crohnsdisease #uc #ulcerativecolitis #barbiebutt #surgery #ostomy #ostomate #ostomybag #ileostomy #bagforlife #nocolonstillrollin #lifetakesguts
My mom made a whole Thanksgiving dinner for tonight since I will not be home for the holiday. To boot, she made all foods on my restricted diet. 🙌🏻 . . . . #mom #thanksgiving #turkey #scd #scallops #cranberry #thanksgiving #holiday #ulcerativecolitis #ibd #family #momoftheyear #fall #tablesetting #veggies #organic #glutenfree #eatclean #colitis #crohnscolitis
Pro tip: You can’t shit your pants if you aren’t wearing any...😎🌴🥂 Heading home today and ready to bring you more 🔥 memes! Shirts @ crohnsiscray.com #crohns #colitis #crohnsiscray
Just got out from seeing my consultant. Spoke to him about my symptoms etc and within the next 4 weeks (although I don't believe it'll be that quick😂) I'll be having a scope of my ileostomy and rectum and an MRI scan of my small intestine, with NO moviprep 🎉🎉🎉 I hate the stuff and it always passes through me before I'm even in the scanner so he said I don't have to have any! The ileoscopy will look at the distal end of my small intestine and the MRI with give a bigger picture. It will look at my already existing stricture to see if it's got worse (which is what I believe) and will also tell us the cause of it- hot or cold cause. So if it's hot it means it's got lots of blood and inflammation there meaning I'd have to change medication etc and if it's cold it means it's due to scarring. I believe it's the 2nd one and if that's the case I can have a balloon inserted into my stoma to dilate it, tear it and promote healing. I can have this if it's the hot one but it's less likely to heal because it's active inflammation. There was even talk of having a reversal of my stoma depending on my rectum which I was told was never an option under a different consultant but tbh I actually don't think I'd want to do that. Ripley's a part of me now💕 pretty sure I discussed a million other things but it's gone from my brain as I sit and drink coffee in the hospital restaurant killing time before acrobalance class😂 I really love my consultant and he always accommodates and listens to me, makes the world of difference
Yesterday’s lunch, turned into dinner and now breakfast. What are your favorite roasted veggies? This combo is heaven to me. Brussels sprouts, red pepper and purple sweet potato. Over quinoa with a balsamic and coconut amino dressing. . . . #eattherainbow #glutenfreevegan #letfoodbethymedicine #crohnscolitis #selfcarewarrior #healthyself #crohnsdiet #roastedveggies #quinoa #buddahbowl #veganeats #glutenfreerecipes
#nocolonstillrollin 💜 • Had my #ibd Clinic appointment today with my wonderful gastroenterologist Just a check up but good to discuss my recent rectal stump issues It’s settled at the moment so she’s happy to see how things go and only perform a dilatation and scope if I stop passing mucous or have abdo pain • My bilirubin is elevated but I’m not jaundiced, this often occurs and is due to my #gilbertssyndrome Which doesn’t seem to cause any issues • My iron stores are a bit low, aka ferritin, so will re-check my bloods in 3 months • Have lost some weight but think that’s due to my recent #sinusinfection • Wore my #nocolonstillrollin Top for the occasion 😄 designed by the lovely @emjayuc 💜 #crohnsdisease #crohnscolitis #ulcerativecolitis #ileostomy #ostomyfashion #ostomy #stoma
SO excited to share these with all of you guys! We are collaborating with @myundigo to bring you an awesome giveaway. Undigo makes portable, sterilized underwear in these convenient pods. Perfect to bring almost anywhere in case of an emergency. I am in Mexico this week for my wedding anniversary and brought a pair down just in case😎🌴 To enter the giveaway: 1. Must follow @myundigo and @crohnsiscray 2. Comment on this post with your size (S, M, L) and favorite emoji 3. Three winners will be selected at random on November 15th. Good luck and check these guys out! #crohnsiscray #crohns #colitis
Want easy-to-peel hard boiled eggs? Use an #InstantPot . • • If you’ve never stumbled across this tip before, an Instant Pot is basically magic for hard-boiled eggs. I love eggs—especially the ones I get locally straight from a farm—and I love hard-boiled eggs because they make a quick, easy, portable lunch and they don’t bother my digestive system...but I HATE peeling them! I get so frustrated when an egg won’t peel and I sometimes smash it and throw it away. But not with the Instant Pot...eggs are easy to peel, EVERY SINGLE TIME! • • Anyway, if you don’t have an Instant Pot and enjoy hard-boiled eggs, I recommend you go get one. I Know I wish I would have learned about this trick a long time ago! • • #crohnsfitnessfood #crohnsdisease #crohns #crohnscolitis #crohnswarrior #crohnsjourney #mycrohnsjourney #IBD #crohnie #ibdawareness #crohnsawareness #inflammatoryboweldisease • • #carnivore #CarnivoreKeepsMyCrohnsAway #ketovore #carnivoreketo #carnivorediet #ketocarnivore #meatheals #carnivoreplus #keto #foodismedicine #mycrohnsdiet
I mean, I obviously do have a “bad ass” sooooo.... #crohnscolitis #ibd #ibdwarrior #sotired #flare #prednisone
If only champagne was the cure!! Going to at least see for myself though 😉🥂 #crohnsiscray #crohns #colitis
Little did I know that #parksandrec would be such an important part of my life. I quoted it in my wedding vows, and the flu episode with Chris speaks to me on a personal level a lot... #ibd #crohnscolitis #please #Imsotiredandsore #overshare #sorrynotsorry #poop
Breakfast courtesy of @smoothieshuttle helping digestion get back on the right track. This one is The Full Moon, it has strawberries, bananas, vanilla frozen yogurt, and 2% milk. #smoothiediet #smoothiebreakfast #digestivehelp #crohnscolitis #ibdproblems #crohnscrusher
You know what? You don’t always wake up with a joyful attitude. I woke up today feeling like I just wanted to stay in bed all day. I wasn’t exactly cranky but I wasn’t Little Miss Sunshine either. My #colitis is flaring a little and sometimes I just want to stay in bed when I’m not feeling 100 percent. Yet I rallied for the hike we had already planned, and I asked to stay close to home rather than drive north. I didn’t want to be far from home with stomach issues. . We walked and talked for three hours. Jack, who mostly would rather stay home and watch his iPad, was having a blast. He was looking for monsters in the “haunted” woods, talking about vampires, and threatening to beat his dad in a foot race. He was climbing up and down rocks with both trepidation and confidence. Jack is apprehensive sometimes with certain movements or activities. Some people with #autism are hypersensitive to vestibular stimulation. But he did it and gained confidence with every step. Then in the evening he did his homework: adjectives, nouns and writing sentences using each. He was frustrated by the task but again, he did it. And he did great. . Jack reminded me today that when you’re a little down you get up, face the day and maybe you’ll find a little joy. I loved how much he enjoyed the walk through the woods, that he wasn’t on his iPad, and that for a little while I forgot about my stomach. It was a great day of cheering each other on, lighting the way for one another. #BeTheLight Tap photo to shop this tee, or click the link in my bio.
Still got those butthole anemia eyes, but managed to get to the couch today. #ibd #crohnscolitis #prednisone
The Gladiator Therapeutics Far Infrared Blanket can help increase circulation. Plasma is the liquid part of the blood that does most of the work. It carries red blood cells, white blood cells, platelets, and dissolved oxygen, transports nutrients to nourish and repair cells and carries away waste products. #ScienceBehindTheBlanket #GladiatorTherapeutics #FarInfraredBlanket #RecoveryattheSpeedofLight #crohnsdisease #crohns #crohnswarrior #crohnsfighter #crohnssucks #crohnsawareness #crohnslife #crohnsproblems #crohnscolitis #crohnsandcolitiusuk #crohnssurvivor #crohnsprobs #crohnsandcolitisfoundation #crohnsdiseasesucks #crohnsandcolitisawareness #crohnsrelief #IBD #inflammatoryboweldisease #ibs #irritablebowelsyndrome #ulcerativecolitis #circulation #bloodflow #plasma #oxygen #nutrients
Adding this to my Christmas list! 😂👍🏻 #crohnsiscray #Crohns #colitis
Bag? What bag? What is it like working with an ostomy? Well, when I went back to work after my surgery almost 12 years ago, I was worried about what life would be like working with one. To my surprise, I was actually able to do a lot more than what I was capable of prior to my surgery, considering that I do a lot of heavy lifting and constant movement and excessive bending over. I noticed I was a lot stronger and able to lift and military press these blue pallets as you can see if you swipe left. And if anyone has encountered these pallets, you will know how heavy they are as I struggled lifting them from the side and had to catch my breath. I was able to move without feeling dizzy and lightheaded and also move a lot faster as well. One of the things I learned really quickly, though is that I had to wear my pants a bit higher and a size bigger than I normally did before because if I had too much air or output inside the ostomy, I was afraid it may pop as I bent over. The only downside, which isn’t too bad is that my ostomy can annoy and bother me when it starts to get full as it distracts my concentration. I still get overwhelmed and anxious when I’m stressed but after all, we all tend to feel that way from time to time. All in all, I wouldn’t be where I’m at if it wasn’t for my ostomy which has given me not only my life back but my strength as well 👊🏼💪🏼💜 . #work #worklife #supervisor #vons #safeway #workingwithanostomy #crohns #crohnsdisease #crohnscolitis #ileostomy #ostomy #ostomate #colitis #ulcerativecolitis #ibd #ibdsucks #ibdwarrior #crohnswarrior #inflammatoryboweldisease #ulcerativecolitiswarrior #ucwarrior #chronicillness #invisibleillness #superstoma #stomalife #ostomyawareness #ibdsuperheroes #NoColonStillRollin #getyourbellyout
Same plan tomorrow. Hoping to rest this off and let the massive amounts of prednisone do its job. I’m exhausted and annoyed but trying to listen to my body! #ibd #ibdawareness #crohnscolitis #anemic
In this photo I couldn't stop worrying.. the more I get to know this illness, it just gets scarier. Please don't tell sickly people its all up to them to get better because it's not, optimism helps but it's not a cure. Thank you all for everything😍 Tbh I'm more confused now than I've ever been.😣✌
Gladiator Therapeutics uses far infrared technology to help break down the water molecules that are found within your blood naturally. With smaller water clusters, the blood can move throughout the circulatory system faster, which helps you find Recovery at the speed of light! #ScienceBehindTheBlanket #GladiatorTherapeutics #FarInfraredBlanket #RecoveryattheSpeedofLight #crohnsdisease #crohns #crohnswarrior #crohnsfighter #crohnssucks #crohnsawareness #crohnslife #crohnsproblems #crohnscolitis #crohnssurvivor #crohnsprobs #crohnsandcolitisfoundation #crohnsdiseasesucks #crohnsandcolitisawareness #crohnsrelief #IBD #inflammatoryboweldisease #ibs #irritablebowelsyndrome #ulcerativecolitis #circulation #betterbloodflow #h20 #waterclusters
next page →