#cutlerjames

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Dear Clara, I feel SUPER 💥 today!!! Guess why??? Yep, cause I get to see you!! I can’t wait!!! Perhaps we can slide down the slide, play in the ball pit, and/or chase each other up and down the steps?! Therapy rules!!! See you soon, Cutler James ❤️❤️#cutlerjames #claraviolet #cutecouples #cutebabies #cutetoddlersofinstagram #superman #heros #pintsizepowercouple #pintsizeheroes #lovebirds #bestfriendgoals #awareness #acceptance #awesomness #t21 #nothingdownambassadors2018 #bonuschromosome #theluckyfew #bornthisway #bekind #love #kindness #💛💙
Dear Clara, You are officially a WALKER!!! Probably the cutest one I’ve ever seen. So, now that you are walking and I am walking, you know what that means??!! Romantic strolls on the beach!!! Ok... I guess we don’t have any beaches and I don’t really understand the whole romance thing quite yet. How about a sweet stroll through the park?? Oooo... we could take Roxy for a walk... I love that dog!! Let’s do it. A 💛💙best💛💙friends💛💙park date. I’ll bring the cooler and the vacuum, you bring Roxy (and the mommies can come too)!! You are incredible my lady, Cutler James ❤️❤️#pintsizeheroes #pintsizepowercouple #bestbuds #cutlerjames #claraviolet #morealikethandifferent #theluckyfew #milestones #wecandoanything #t21blessed #t21journey #nothingdown #dsdn #ndss #parkdate #vacuum #downsyndromeawareness #momlife #toddlersofinstagram #babymodels #awareness #acceptance #awesomeness #💛💙
Dear Clara, So... my mom and dad are going to the Tim McGraw and Faith Hill concert tonight and, get this, they are NOT bringing us with. What in the heck?!?! Something about “past our bed time” which is ridiculous, cause who needs bedtime when Tim and Faith are in town?!?! Bedtimes are for babies and we are TODDLERS. duh. Pretty sure Tim and Faith would love a couple of super cute back-up singers... I mean we totally rock the Tiny Turtle song. Oooo... I feel a collaboration coming on!! Clara and Cutler sing and sign the hits with Tim and Faith. Soul 2 Soul 2 Soul 2 Soul tour (get it... 4 souls)!!!! Seriously, I’m pretty sure they would L❤️VE us. I love singing/singing duets with you, Cutler James ❤️❤️#soul2soul #cowboy #cutlerjames #claraviolet #biggestlittlefans #duets #downsyndrome #t21 #t21journey #morealikethandifferent #theluckyfew #timmcgrawandfaithhill @faithhill @thetimmcgraw @97kyckfm #meetandgreet #toddlerfashion #picoftheday #pintsizepowercouple #bffgoals #awareness #awesomeness #bekind #countrymusic #nothingdown #ndss #dsdn
Dear Clara, I hope you had a safe and happy 4th of July!!! I sure did. My whole family went out to our friends’ place and had yummy food and lots of fun! I got to play some basketball with the big kids (I. Was. Awesome.) and watched them shoot off some fireworks. Those suckers are LOUD. I wasn’t super impressed with the firecrackers and bottle rockets (they don’t do much and again... they are LOUD), but the smoke bombs we kinda interesting in nice, QUIET, colorful way. Apparently when it gets darker the BIG BOOMERS come out and my brother says they are “da BEST” maybe I will check those out next year. Also, my mom tried to slow me down for a hug and a pic... moms are so clingy!! Am I right?!? Can’t wait to hear about your 4th!! Missing your face, Cutler James ❤️❤️#fourthofjuly #fireworks #redwhiteandblue #somuchfun #holiday #celebrate #cutlerjames #beautifulsoul #claraviolet #tinyfighter #bffs #pintsizepowercouple #morealikethandifferent #theluckyfew #downsyndromeawareness #t21blessed #nothingdownambassadors2018 #ndss #dsdn #bonuschromiehomies #smilesformiles #notimeforhugs #bekindalways #changetheworld #toddlerfashion #toddlerlife #toddlersofinstagram #betterwithyou #love
Dear Clara, We need to talk. Don’t get me wrong... I’m all for vacation, and I totally understand the whole lake vibe, but 10 DAYS?!?! That is a LONG time. I am not so happy about this whole distance thing. I mean, no Clara, no Stella, no Roxy??!! You are my three favorite gals (not counting your mommy and my mommy of course). Also, no therapy date on Wednesday due to the 4th of July?!?! Sigh... I miss you. Hey, speaking of the 4th of July, your eyes are like sparklers and I see fireworks when we smooch (ok... we don’t actually smooch ‘cause of my bubble, but I hear that is a VERY romantic thing to say)!!! 😉 Missing my gal, Cutler James ❤️❤️#smooth #cutlerjames #claraviolet #beautifulsoul #tinyfighter #bffgoals #romance #bestfriendgoals #littlelovestory #happilyeverafter #downsyndrome #t21journey #t21blessed #nothingdown #nothingdownambassador #ndss #dsdn #chromiehomie #toddlerfashion #toddlerfun #thoseeyes #handsome #imissyou #summer #claraandcutler #picoftheday #happy #bekind
Dear Clara, I got sunshine. I got jammies. I got early morning deck time with mommy. All that’s missing is YOU. 😘 Come over soon... please and thank you. Smiles for miles, Cutler James ❤️❤️ #downsyndrome #cutlerjames #beautifulsoul #claraviolet #tinyfighter #pintsizeheroes #bffs #bffgoals #t21journey #t21journey #theluckyfew #nothingdownambassadors2018 #advocate #bekind #carters #cartersbaby #jammies #summer #smilesformiles #bornthisway #chromiehomie #bonuschromiehomies
Dear Whoever wrote “The Wheels on the Bus”, That is my JAM!!! Seriously... that song has it all!! Wheels, doors, wipers, and my favorite version even has a PUPPY!!🐶 During therapy this week, Kayla and I worked on some eating stuff (I love snacks) and I was asking for your song the whole time... so she played it for me!!! Food, my favorite tune, and a mirror equals FUN and SHENANIGANS!! I am guessing you won multiple Grammy awards. Looking for a CD of your greatest hits, Cutler James ❤️❤️#wheelsonthebus #goroundandround #thatsmyjam #cutlerjames #beautifulsoul #claraviolet #tinyfighter #downsyndrome #upsyndrome #nothingdown #ndss #dsdn #t21blessed #morealikethandifferent #theluckyfew #therapy #workisfun #lookatme #sillygoose #pintsizepowercouple #bffs #t21journey #nothingdownambassadors2018 #bornthisway #bekind
Dear Clara, Summer is pretty awesome, isn’t it?! Sunshine, lazy days (ok... we are super busy with therapy and being awesome, so I guess our days aren’t exactly lazy), and NO PANTS!!! Ha ha!! Sometimes when it’s super hot outside I ditch my drawers and chill on the deck. I got a brand new water table so you’ll have to come over and splash with me!! Ooooo... let’s invite Huddy and Mac and make it a Brat Pack deck party!!!! How does that sound??!! I love a good party, Cutler James ❤️❤️ #cutlerjames #beautifulsoul #claraviolet #tinyfighter #downsyndromeawareness #downsyndrome #t21awareness #t21blessed #t21love #nothingdownambassadors2018 #ndss #dsdn #dsconnex #bekind #benice #toddlerfashion #toddlersofinstagram #picoftheday #deckparty #summertime #bratpack #pintsizepowercouple #bestfriendgoals #friendsarefamily #bonuschromosome #bonuschromiehomies
Dear Clara, Ahhhh... there is nothing like a nice soothing tubby in the sink. Just me and the bubbles relaxing our cares away... this is the life. WAIT A MINUTE... there’s mom... what’s she doing??!! Taking pictures AGAIN?!?! Awwww man... I’M IN THE TUB!!! SMH (literally). Moms and cameras... Uffda. Chillin in the tub, Cutler James ❤️❤️#cutlerjames #claraviolet #beautifulsmile #beautifulsoul #tinyfighter #downsyndromeawareness #trisomy21 #t21family #morealikethandifferent #bornthisway #upsyndrome #nothingdownambassadors2018 #ndss #dsdn #bonuschromiehomies #tubby #tubbytime #bubblebath #smiles #awareness @theellenshow #sillygoose #smh #momlife #toddlersofinstagram #picoftheday #pintsizepowercouple #love #t21blessed #theluckyfew #cuteness
Dear Clara, It’s my turn for some hospital time. I zipped down to Fargo EARLY this morning with Mom and Dad and checked into Sanford for a quick tune up on my tear ducts. It’s supposed to be quick and easy (think ear tubes), so let’s hope I can bust out right after I wake up. We checked in at 7:45am, but I didn’t get back until almost 10 so I was SUPER DUPER hungry and thirsty when they took me back (have the crackers ready Mom). Anyway, what does one do to pass the time while wearing hospital jams that fit perfectly (Heeheehee... the pants are waaay too long)??? Let me show you... Don’t worry my love, I got this!! Cutler James ❤️❤️ #cutlerjames #claraviolet #beautifulsoul #tinyfighter #hospitallife #imhungry #jammies #samedaysurgery #sanford @sanfordhealth #downsyndrome #morealikethandifferent #theluckyfew #igotthis #t21 #t21journey #pintsizeheroes #pintsizepowercouple #upsyndrome #dsdn #ndss #nothingdownambassadors2018 #sillygoose #hospitalgoals
Dear Lana, HAPPY HAPPY BIRTHDAY TO YOU!!! We love you more than vacuums and ice-cream (that is a LOT of love). We hope you have an awesome birthday and you get lots of cake and ice-cream and hugs and kisses!! 😘 We really hope we get to see you soon to celebrate!!! Let’s light up this post with “Happy Birthdays” to Lana!!! Happy Birthday to an amazing lady, Cutler and mommy❤️ PS. My mommy wanted to sing you a birthday song, but don’t worry... I put a stop to those shenanigans. Your ears can thank me later. 😜#sheisabadsinger #cutlerjames #claraviolet #beatifulsoul #tinyfighter #beautifulbabies #happybirthday #stillyoungatheart #weloveyou #downsyndrome #nothingdownambassadors2018 #t21love #t21blessed #morealikethandifferent #family #friendsarefamily #trisomy21 @lanaleabeaton #cakeandicecream #picoftheday #toddlerfashion #toddlerlife #toddlersofinstagram #birthdaygirl
Dear Clara, Over 7,000 likes?!?! That’s super duper AWESOME!!! I was so excited by this news I just had to get out and do something BIG... Wanna know how I celebrated?!? I mowed the deck!! Have you tried mowing yet?? It’s a lot like vacuuming except you do it outside. Best. Idea. Ever. You know what would be cool?? His and her riding mowers!!! We could mow off into the sunset... so romantic. Ahhhhh summer, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #nothingdownambassadors2018 #downsyndromeawareness #upsyndrome #t21awareness #t21love #theluckyfew #morealikethandifferent #advocate #bekind #dsdn #ndss #mowing #summerfun #toddlersofinstagram #picoftheday #babysmiles #somuchfun #luckymom #changingthefaceofbeauty #dontscreenusout #lifeisbeautiful #lifeisbetterwithyou #love
Dear Clara, After our fun therapy date yesterday I went home and played a super fun game with my mom. I call it “Chase me around the house while I eat this raspberry popsicle all by myself because I’m BIG”. My mom called it “Please try not to drip raspberry popsicle juice on the carpet”. We have so much fun!!! Also, popsicles rule. My mom says excuse the mess cause playing with me is more fun than putting stuff away, Cutler James ❤️❤️ #cutlerjames #claraviolet #beatifulsoul #tinyfighter #downsyndrome #nothingdownambassadors2018 #upsyndrome #t21awareness #t21blessed #t21family #dsdn #ndss #toddlersofinstagram #toddlerlife #videooftheday #changetheworld #makeadifference #popsicle #catchmeifyoucan #gettingsobig #pintsizepowercouple #bornthisway
Dear Clara, What a weekend!!! You got to relax at the lake, I got to see a lot of dogs (I love those guys), and our story went GLOBAL!!! 🌎 For real... it’s pretty cool to be able to google our names and see all kinds of POSITIVE HEARTWARMING stories pop up!!! Honestly... bad news is for the birds. Clara and Cutler news is where it’s at!! Let’s keep spreading our message: awareness, acceptance and AWESOMENESS! Positive vibes rule!💙💛💙💛💙💛 More great news... my mom is done with work for the summer!!! To celebrate, we had a Starbucks breakfast date. I love Starbucks (my mom REALLY loves Starbucks). We had a blast and I sat by the window so I could see all the traffic go by! Cars are cool. Hope to see you soon, Cutler James ❤️❤️ #cutlerjames #claraviolet #beatifulsoul #tinyfighter #downsyndrome #nothingdownambassadors2018 #ndss #theluckyfew #morealikethandifferent #upsyndrome #t21rocks #t21journey #awareness #acceptance #awesomeness #starbucks #coffeeformom #happykids #toddlerfashion #toddlerlife #picoftheday #smilesformiles @starbucks #toddlermodel #mommyandme #t21moms #changetheworld #changingthefaceofbeauty #globalsuperstars
Dear Clara, I’m so excited you are home! Just in time for a nice long weekend!! Quick question: My mom says I need to work on my hide-and-seek skills. What do you think?? I think I’ve got this game mastered. Hiding and seeking, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #beautifulbabies #nothingdownambassadors2018 #ndss #dsdn #theluckyfew #morealikethandifferent #sillygoose #hideandseek #ucantseeme #picoftheday #instatoddler #toddlerfashion #toddlerlife #goodtimes #t21fun #t21blessed #pintsizeheroes #summerfun #familylife #momlife #bestfriendgoals
Dear Farmers, THANK YOU for growing potatoes because french fries are amazing. I like to see if I can get the whole thing in my mouth cause that is a big flavor explosion I tell you. Mom and dad, however, insist on smaller bites. I do not believe they fully grasp the pure deliciousness of the fry. Keep up the good work... you grow some tasty stuff!!! No ketchup needed, Cutler James ❤️❤️ #cutlerjames #claraviolet #chromiehomies #babybffs #downsyndrome #t21blessed #trisomy21 #theluckyfew #morealikethandifferent #bekind #acceptance #pintsizepowercouple #beatifulsoul #beautifulbabies #toddlerfashion #toddlerlife #pictureoftheday #tinyfighter #smiles #frenchfries #yum #cuteness #toddlersofinstagram #ndss #dsdn #nothingdownambassadors2018 #love #curls #toddlercurls
Dear Friends, 💛💙 TOGETHER AGAIN!! 💙💛 Besides the obvious reasons, we are SO happy Clara is feeling more like herself finally!! So good in fact, that we made it to Mac's Birthday party yesterday!!! THE BRAT PACK was all together again for the first time in ages!!! Happy kids... happy moms... HAPPY VILLAGE! THANKFUL & BLESSED, Clara & Cutler #thebratpack #mickeymac #huddybuddy #claraviolet #cutlerjames #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Dear Clara, We went to the park the other day and I checked out the swings for the first time! Swings are really fun... although this one might require a booster seat cause I haven’t hit my major growth spurt yet... before you know it though, I’ll be dunking basketballs!! Heeheehee I’m really glad you’re home Clara. I worry about you when you are gone for too long. I miss your pretty face. Let’s get together ASAP. Park date??? Cutler James ❤️❤️ #cutlerjames #claraviolet #beautifulbabies #beatifulsoul #pintsizeheroes #pintsizepowercouple #tinyfighter #downsyndrome #t21blessed #nothingdownambassadors2018 #morealikethandifferent #theluckyfew #upsyndrome #picoftheday #instatoddler #summertimefun #parkdate #swingset #sunshine #t21journey #momlife #happybabies
Dear Clara, I know you aren’t feeling so well and that stinks. I’ve been trying to find a way to help you find a comfy spot for your sore bumper... and I think I found the answer. Two words: ANGEL SOFT. This stuff is perfect. It’s soft and made for little angels like us!!! Honestly, it makes a great pillow, so imagine resting your sore bum on this little slice of heaven!! I’m thinking they should put our faces on the package, cause duh... angels. Also, if you open it up... 6 rolls of fun!! Let’s have a TP party, Cutler James ❤️❤️ #cutlerjames #claraviolet #beatifulsoul #tinyfighter #pintsizepowercouple #nothingdown #iamable #angelsoft #nothingdownambassadors2018 #dsdn #ndss #softside #comfy #picoftheday #toddlersofinstagram #toddlerlife #morealikethandifferent #theluckyfew #t21journey #t21blessed #loveletters #bestfriendgoals #downsyndromeawareness #bekind #getwellsoon #luckymommies
Dear Clara, I miss you. It’s been a while since we’ve had a play date. You have been far away in the cities and recovering from a big time surgery, and I’ve been working on getting rid of this dumb pneumonia. Ugh. We need a dose of sunshine and a double dose of each other!! I also know that my mom misses your mom. So... I’m thinking picnic. When we are both feeling a-ok, let’s load up that wagon and hit the park!!! How does that sound?!?! One more thing... haircuts. I’m not so sure what I think about that idea. I mean, seriously, I rock the slicked down wet hair and who doesn’t love fluffy baby curls?! My mom thinks it may be time for a trim... I tend to have a different opinion. I miss your face, Cutler James ❤️❤️ #cutlerjames #beatifulsoul #claraviolet #tinyfighter #toddlerfashion #toddlerhairstyles #picoftheday #downsyndrome #nothingdownambassadors2018 #tubbytime #dsdn #ndss #cuteness #morealikethandifferent #theluckyfew #bonuschromosome #extraawesome #advocate #awareness #upsyndrome #changetheworld #downsyndromemommy #ican #notbroken #beautifulbabies
Dear Clara, Home. Is. Awesome. You came home yesterday and guess what???? My mom and big bro are coming home today from Kentucky!!!! I can’t wait to see those guys (and I hear my mommy is pretty excited to see me too)!! Excited to have everyone in one place, Cutler James ❤️❤️ PS. Daddy had to take me to urgent care Monday night cause I wasn’t feeling so great. They said I have pneumonia, but it didn’t look super bad so they gave me meds and I got to go home. Stupid germs. #homeiswheretheheartis #cutlerjames #beatifulsoul #claraviolet #tinyfighter #nothingdownambassadors2018 #babysmiles #chromiehomies #downsyndrome #upsyndrome #dontlimitme #bonuschromiehomies #theluckyfew #morealikethandifferent #cutekidmodels #toddlersofinstagram #home #germssuck #happykids #myheart #trisomy21 #pintsizeheroes #sparkle #awareness #awesomeness
Dear Clara, How are you doing?? I just know you are sparkling the heck out of that place and on your way to a VERY speedy recovery! ❤️ Here’s the latest news from home: 1. Today my mom and Wyatt leave for Kentucky (that is far away). My big bro (Wyatt) and his buddy are the 2018 MN State Robotics Champs so they earned a bid to WORLDS!! How cool is that?! My brother is pretty awesome. My mom is super proud and excited... but I know she is really sad about leaving me for a few days. I keep telling her not to worry cause daddy and I will be just fine, but you know how moms are. I have a feeling I’m in for a LOT of kisses before they go!!!😘 2. Last night I conquered the grass. It’s not so bad really... I tried it with shoes first and then, get this, BAREFOOT!!!! Dad tells me it will be better when it’s all green and soft. I still think grass is weird. Anyway... it’s pretty busy here this morning. I’m being helpful by chucking things over the gate and down the stairs. Missing my girl, Cutler James ❤️❤️ #cutlerjames #claraviolet #beatifulsoul #tinyfighter #babybffs #bestfriendgoals #sohappytogether #downsyndrome #nothingdownambassadors2018 #dsdn #ndss #morealikethandifferent #theluckyfew #notbroken #outside #springtime #bonuschromosome #purejoy #pintsizepowercouple #trisomy21 #awareness #awesomeness #toddlersofinstagram #toddlerfashion #happy
Dear Cutler, Me and Elmo are on our way! Its a beautiful, sunny day for a drive. Daddy's got the music turned up and mommy and me are having a party in the back seat! Will keep you posted tomorrow... I check in bright & early! SAINT PAUL OR BUST! XOXO, Clara Violet #kickinghirschsprungsass #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors
Dear @carters , T•H•A•N•K Y•O•U for the beautiful, thoughtful, amaze-balls gifts!! More importantly, thank you for {INCLUDING US} and for embracing ALL kinds of beauty! You truly are with us every step of the way!! We LOVE this pic... and we LOVE working with you! 💙💛💙💛 XOXO, Clara & Cutler #lovecarters #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Friends, If you're not doing your || HAPPY MONDAY || dance... you should be. We are ALL SMILES (see what we did there!?) on this sunny Monday morning! Working hard for therapy, sprinkling in some playtime, and enjoying some much needed TOGETHERNESS. It will be a couple weeks before we see each other again... we dont even wanna think about it. So we're dancing instead. Shaking our groove thangs, Clara & Cutler #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty @gapkids #t21blessed #2018Ambassadors #nothingdownorg
Dear Clara, That wagon is sweet!!! I can’t wait take take a spin in that hot-rod with my best girl!! Can you say PICNIC IN THE PARK?!?!❤️ This spring weather is awesome. The last few days Mom and I have been exploring the great outdoors and here are some highlights: *Dogs. Lots of dogs out on walks... and not just little dogs, but dogs the size of horses! I love those guys. *Kids. Lots of kids outside to wave to and say HI to. Kids are nice. *Sunshine. Warm and bright. Makes me squint. 😎 *Grass. Ick. Still not a fan (even with shoes on). What’s the deal with that stuff?? It’s all squishy and tickley and uneven. Weird. Enjoy the sunshine my love... but avoid that grass stuff until I get it figured out, Cutler James ❤️❤️#cutlerjames #claraviolet #babysmiles #beatifulsoul #beautifulbabies #chromiehomies #cutest_kiddies #downsyndromerocks #downsyndromeawareness #nothingdown #nothingdownambassadors2018 #theluckyfew #morealikethandifferent #bonuschromosome #sunshine #springfever #learnsomethingneweveryday #explore #toddlerfashion #toddlersofinstagram #picoftheday #thatface #awareness #acceptance #awesomeness #changetheworld #savedownsyndrome #love #bekind
Dear Cutler, I have a wagon built for two and a walk with your name on it!! Stella and I took a maiden voyage today in my new @radioflyerinc ... It was my birthday gift from Gramma Ginny back in November. So now, with (most of) the snow gone we can FINALLY get outside for a ride!! Bring a sippy cup... it has cupholders! 😍 Happy Fri-YAY, Clara Violet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #toddler #toddlerlife #toddlerfashion #toddlerlifestyle #photooftheday #cutekids #cutebaby #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Cutler, I saw the good Dr. P. for my pre-op yesterday... and we are #clearfortakedown . One more thing to double-check tomorrow, but if all holds steady, we are headed to St Paul next week to put my guts back together. Im not nervous (cuz duh, Im Clara) but mommy is. We weren't really ready for this yet, but as usual I make my own rules... and that makes mom a little uneasy. Basically, the part of my gut that Im NOT using is angry. So, our best option is to do the 'take down' procedure, hook me back up and {PRAY} for the best! So... gonna need you to do that for me... and all our friends too. Also, any of my #Hirschsprungs friends out there who have dealt with dis-use Colitis- or a late take-down- send me some success stories! 💩 Tryna stay healthy, Clara Violet #kickinghirschprungsass #hirschsprungsdisease #hirschsprungssucks #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #theluckyfew #photooftheday #instaphoto #chromiehomies #bonuschromiehomies #claraviolet #cutlerjames #changingthefaceofbeauty #t21blessed #2018Ambassadors #nothingdownorg
Dear Clara, Look at me!!! I discovered a secret hideout and I’m pretty sure there is plenty of room for two in here!! I call it “CLARA AND CUTLER’S SECRET HIDEOUT”. My mom says I am cute and funny (well, duh) although I’m not sure what’s so funny about a top secret hideout? I mean, will she think it’s funny when we tell her RULE NUMBER 1: NO adults allowed?!?! Also, topic number 1 for discussion in said hideout will be: Moms who won’t let their kids take a bath whenever they want. I got your back my love. Exploring new places, Cutler James ❤️❤️#cutlerjames #beatifulsoul #claraviolet #tinyfighter #beautifulbabies #hideout #sillybaby #downsyndrome #trisomy21 #nothingdownambassadors2018 #theluckyfew #morealikethandifferent #upsyndrome #forts #toddlers #toddlerfun #picoftheday #momlife #bonuschromosome #toddlermodels #toddlermoments #changingtheworld #awareness #love #bestfriendgoals #claraandcutler #ndss #dsdn #advocate
Dear Clara, My mommy and I were being all snuggly the other night and she said, “CJ, let’s take a cute, cuddly, lovey-dovey selfie!” I’m pretty sure I nailed it. Never a dull moment, Cutler James ❤️❤️#cutlerjames #claraviolet #beatifulsoul #tinyfighter #downsyndrome #trisomy21 #nothingdownaboutit #nothingdownambassadors2018 #bonuschromiehomies #theluckyfew #morealikethandifferent #sillyfaces #goofball #sillybaby #cheeser #personalityfordays #dsdn #ndss #selfieoftheday #toddlerlife #toddlersofinstagram #momlife #babysmiles #babymodel #awareness #toddlergoals
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