In the first few years after Jude’s diagnosis I took ‘autism’ pretty hard... Here was my beautiful little boy who couldn’t talk, and seemed to have so many struggles just getting through every day. He was anxious, unable to be around other children, and would eventually start to self-harm too.
Then along came Tommy and he too would be diagnosed with autism. Although both so different, life seemed to be very challenging for Tommy as well. It all seemed so unfair.
In those early years I felt completely lost. I didn’t feel like I could talk to my friends about it. They wouldn’t understand, their lives were so ‘normal.’ Autism can mean you spend a lot of time isolated from friends and family as social occasions can just be too much. It can leave you feeling like you’re doing this alone, that you’re failing as a parent, and even feeling lost.
But I came to realise you’re never alone, I just wasn’t looking in the right places.
I started to attend courses with other parents, got to know a few locally who would become great friends. Whereas I was shy and quiet in the beginning, gradually I started to open up, sharing my thoughts and feelings. Soon you discover you’re not the only one who feels that way.
I started to read blogs, join groups online, before eventually reaching a point where I thought my experiences might help other people just like me and started this page. Little did I know it would introduce me to thousands of parents and autistic adults across the world who I could talk to and learn from too.
If you’re a parent or family member feelings lost and alone right now, reach out. Find another parent at school, join that group online, even message someone like me.
If you’re autistic the same applies. There’s groups for autistic people, general autism groups, blogs, pages, so many people living lives very similar to yours.
The hardest part is taking that first step, finding your tribe and being brave enough to open up.
Trust me, once you do it will make all the difference ❤️