Imorse blev jag väckt av min son vid 7. Det första jag gjorde var att kolla klockan på telefonen. Får lite panik när jag inser att det är morgon och jag har inte varit uppe och kollat Alice inatt (hänt kanske 5 ggr på 4 år, men då höll ju bebis nr 2 mig vaken halva natten istället😅) Sedan kollar jag hur Alice ligger på telefonen och ser att telefonen visar 3.2 (man ska ligga mellan 4-6) och jag springer in i Alice rum för att kolla så hon mår bra. Alice ligger i sin säng och kollar på film och ler och nästan skriker "God morgon" när hon ser mig. Skönt tänkte jag, inga kramper, svimningar, tvångsmata detro och hon dog inte inatt heller. För det är det som är problemet med diabetes, även om hennes värden har varit EXAKT mellan 4-6 i en månad innan kan hon ändå dö idag. Jag ska förklara mer om det senare. Iaf så går vi upp, jag tar ett blodprov på henne så snabbt jag kan, kalibrerar hennes telefon som man måste göra innan hon äter något, annars blir det fel värden. Sedan får hon snabbt ett glas mjölk. Jag packar alla hennes diabetes grejer i hennes väska, ser till att allt finns med, från nålar till teststickor till ketonmätare, och sedan åker vi till förskolan.
#diabetes #diabetic #typ1 #dexcom #levautanattdö #barnmeddiabetes
‘Did I wash out that old glucose tabs tube?’ No Laura, you didn’t.
I’m going to be vulnerable and real and hard for a second. Today I checked my blood sugar once. That’s right, I poked my finger, drew blood and checked the amount of sugar in my blood one time. And that one time reading wasn’t even good enough to warrant it being the only one I got today. But it was.
I didn’t want to deal with the highs and lows of the day. My dex wasn’t working properly, I was counting my carbs and bolusing what I thought was an appropriate amount and I still only checked once.
Am I proud of this? No. Does it happen every now and then? Yes. Were there days (yes with an s) in a row in college where I went without a single finger stick to see what my blood sugar was? You bet.
You see this is the other side of diabetes we don’t like to talk about. The side where some days you just don’t want to deal. The days where you tell yourself you’ll pick back up tomorrow, because that’s as good as it’s going to get for the time being. These days make me feel like shit. Not physically like diabetes can sometimes, but mentally. Like I failed the day and I’m only hurting myself by doing this. And while that’s all true, I know it’s necessary.
These few and far between “days off” (if you can count checking your blood sugar once, regulating your insulin and counting carbs subconsciously a day off) are better than the alternative. The spiraling; the not even knowing where your glucose monitor is, the lying to your friends and family about your health all the time, the body aches and backlash that your organs are enduring. I’ll take a ‘bad day’ over that any time.
No one is perfect. No one can do everything right all the time. Sometimes we eat the pizza and sometimes we make a low carb dinner at home. It’s all about balance. In every aspect of your life. But you know what? Tomorrow is a new day and it’s completely up to you how you handle it.
#becwiththebetes #diabetes #typeonediabetes #type1 #type1diabetes #typeone #t1dlookslikeme #typeonetotypenone #dexcom #tandem #jdrf #dexcomwarrior
🔌 Insulin Dealers Anonymous 🔌 .
. 🐻 Coming to a town near you with Humalog, Novolog and the one and only El Type 1 Chapo & Pusha Type 1. .
. 🔌 Okay, for reals! This guy right here is Cody wearing his brand apparel @sugarlessclothing
He’s possibly hosting a meet up in the Bay Area and wanna share this to encourage more of y’all to get into meet ups to make homies within the community like dis! Tag your diahomies below!! 🐻🌎 .
”insulin dealers anonymous,
how many vials can that Mazda fit.” .
#diabeticthuglife #type1apparel #diabeticswag
6 used #dexcom
transmitters, each lasts around 90 days. These transmitters have helped me manage my #diabetes
with a sense of control. I can’t imagine how I can live without my personal #compass
... with this tiny device, I am able to view my blood sugar 24/7! I’m amazed and are so grateful for this technology! I don’t like living with diabetes, but I’m thankful I have so many options in managing this disease. I’ve heard that I can donate my used transmitter to someone who recharge them and give it to those who couldn’t afford to buy them brand new??? How amazing?!?!?!?!!! I would love to help anyone with diabetes with these amazing technologies! #diabetestype1 #insulinpumpforlife #dexcomwarrior #moderntechnology #blessed
I’ve noticed I’ve gotten quite a few new followers this past month so I thought I would go ahead and reintroduce myself!
Hello new diabuddies!!
•My name is Kathryn, but I go by Kat.
•I’m 23 and currently live in Indianapolis,Indiana
• I was diagnosed at age 3 and have had a useless pancreas for 20 years now
• I am a Master of Public Health student at @iubloomington
with a concentration in Professional Health Education
• But I went to @lifeatpurdue
for my undergraduate degree in Public Health and root for the Boilermakers always!
• Most of my research is diabetes related, but I also have a huge passion for vaccination awareness and substance abuse prevention
• I am a BIG believer in the power of diabetes camp and programs. They work.
• I am a Certified Health Education Specialist (CHES)
• I am a Program Manager for an amazing non-profit that focuses on the opioid epidemic Indiana and the rest of the country has going on right now.
• I get to marry the LOML (hi @mnlrtz92
) September 1st, 2019 💕
• I have two dogs, Sulli and Bailey, as well as a dwarf rabbit named Noodles
• I’ve been told by multiple people that I tend to tell people I have type 1 diabetes BEFORE I tell them my name
Thanks for following me and going on this crazy roller coaster ride called diabetes together! .
#diabetes #diabetic #type1diabetes #type1diabetic #typeone #typeonediabetic #typeonediabetes #diabetesawareness #dexcom #dexcomwarrior #warriorup #ches #mph #indy #typeonestrong #type1warrior #type1life #t1d #t1dlookslikeme
I just couldn’t resist! Fundraising for JDRF, a beautiful 13.1 mile run, through the happiest place on earth! Such a stellar combination and one I could not pass up! Let’s hope for steady blood sugars in-training and the countdown to race day starts NOW!! #typewonderful #type1diabetes #omnipod #dexcom #TeamJDRF
I have an appointment with my endocrinologist tomorrow and honestly, I am so excited for it! I think my A1C has gone up a bit, but nothing my endo and I can’t troubleshoot and get better control of. But, mostly, I am excited to tell my doc about the additional weight I’ve lost! In total, over the last roughly 2.5 years (a few months before T1D diagnosis), I have lost 47 lbs and gone down 3 clothing sizes — which is why this pic is being taken from the fitting room! 😜 It has not been easy at all. I have struggled, I have cried, I have complained to my endo countless times about how hard it is to exercise with type 1 diabetes. Workouts were hard on my blood sugar; eating carbs just to be able to withstand a complete workout without going low is beyond frustrating. My endo would have to continually remind me that even though I wasn’t seeing changes on the scale, I was still reaping the benefits on my heart, lungs, and other areas of the body to keep me healthy! In my head I would roll my eyes, even though what he was saying was absolutely true! .
I started really wanting to lose weight after I was diagnosed with type 1 diabetes because of the misdiagnosis of type 2 I received from other doctors. They really harped on me about my weight and said I needed to basically stop eating carbs and I could lose the weight and reverse my “type 2 diabetes.” Obviously, we know how that story ended — I was properly diagnosed as a T1D very quickly after. I never wanted another doctor to look at me and think my diabetes came from my weight. It was insulting and hurtful when my PCP suggested I lose weight so I could decrease or go off of insulin, even after my endocrinologist had properly diagnosed me with T1. Funny thing is, I take more insulin now then I did back then with all the extra weight! My goal was to get down to a normal BMI, so doctors would stop focusing on my weight as being the cause of my diabetes. I’m still 15 lbs away from that goal, but I plan to get there! To be clear, my endo never pressured me to lose weight, he has always been 100% supportive and encouraging with my diabetes and entire health picture 💙👨🏻⚕️
Just finished my workout with a blood glucose of 5.9 ! As you can see, my bg was going down around 6:30 (1h prior my workout). To avoid getting a low during my workout, I took around 40g of carbs to stop my blood glucose going down. This in turn stabilized my blood sugar before and after the workout. Here are some tips on how you can maintain a normal blood sugar before a workout:
1- Decrease your insulin if you’re having a meal an hour or two before you’re workout. This way, you’ll have less insulin on board during your workout.
2- If you weren’t able to decrease your insulin, make sure you take fast acting carbs and workout. Watch out with overtaking carbs, it can lead to higher blood glucose levels right after your workout.
3- The amount of sugar you take should be according to the type of physical activity you will be performing ; a heavy weight training usually increases your blood sugar, while a cardio session usually tends to decrease your blood sugar. Therefore, don’t take any sugar if your blood sugar is ~ 10 mmol/L if you’re going to lift heavy, but keep an eye out if you see your blood glucose decreasing. If you’re going to perform a cardio session and your blood sugar is in that range, take around 20-40g of carbs. @jdrf_canada
Que rico competir! 🚴 🏃🏼 🚴
Dolió pero se gozó! 🤕
Recuperando ritmos de competencia! 🔥 (Ojalá regresen rápido 😅) #JustDoIt
DS day #15
Question: What is the worst restaurant your dad has ever taken you to?
Answer: Hooters in Switzerland. My dad said he needed to have wings, and as you can tell my mom and I did not want to be there. Thankfully it’s the only Hooters I have ever been to! I know this has nothing to do with Down Syndrome, but sometimes you just need to have a little laugh!
💙We had Tre's endocrinology appointment today. They made a mistake in scheduling and we haven't seen them for 6 months, so today was for correcting prescriptions, getting a new Dex prescription, and tweaking all doses because I'm drowning in crazy numbers these last couple months!! A1C is 7.2, which some say is great, I say is too high for him. So reeeeeally praying he gets approved for the Dexcom and we can try to get better control of his numbers again! It's so HARD!! And some of you parents do this with 2, 3, even 4 T1Ds!!! Howwwwww!🙀 The best part about today, is seeing his doctor, Doctor Kate, who also has type 1 diabetes! She just KNOWS, ya know? She doesn't question me endlessly about numbers I can't explain, doesn't make me feel bad about our rough few weeks...she looks me in my eyes and says "IT'S DIABETES, AND IT'S HARD. You're doing really great!" She also let's Tre hear his own heartbeat, so she's like his bestie👫👩⚕️ (and mine🤫)
Here's to waiting to see if insurance thinks my kid is worth more test strips and a Dexcom!🙄👍🏼👊🏼 #fighter #readyforit
#type1diabetes #overit #t1warrior #t1d #autoimmunedisease #invisibledisease #t1dlookslikeme #thisisdiabetes #beyondtype1 #livebeyond #dexcom #t1dmom #insulindependent #weneedacure #sickofpricks #curet1d #endt1d #type1warrior #t1dstrong
I’ve been off the pump (and Loop) for the past two weeks, and wanted to share my experience. Instead of basal/bolus, I have been using Tresiba and Fiasp pens. At first, it was incredible. My BGs were flat (bottom graph), I was diligently carb counting and injecting, and I never wanted to go back. Fast forward, and I am at my wits end. I don’t know what changed, but I’m bottoming out at 2am every night, feeding myself carbs, and waking up still in the 30s and 40s every morning. I’m bloated, my brain is working slower, and I feel like crap just because of all the sugar I have to inhale before 7am. I’m on a rollercoaster for the rest of the day, unhelped by inaccurate Dexcom sensors. But now I’m stuck in a dilemma. I don’t want a tube or machine attached to me again. I finally understand the resistance to starting pumps, and I am almost wishing that I didn’t know the freedom of free pockets and the ability to roll over in bed without getting tangled in tubing. I’m still working on changing my Tresiba dose, but I cannot sustain these early morning lows for much longer. If anyone has any insight, it would be much appreciated! Please help me maintain my freedom, at least until I can download the Basal IQ in November, and then I’ll consider my t:slim again 😣 #diabetes #type1diabetes #dexcom
Have you heard about inhalable insulin? CGM implants? Porcine insulin? Join us tomorrow at 7pm in WILK 3231 to talk about diabetes tech of the past and future 💉📲 #byudiabetesclub
Our little bionic babe! 🖤
Testing out a demo pod for an Omnipod (insulin pump). Have to do some pump training and start the process but hopefully Claire will have one early next year! 🤞
✔️ And they’re covered! 🙌
✖️ Wish Dexcom was too 😒
So far my only concern is she only seems to like everything on her arms. Does not want anything on her stomach yet, rubs sensors off her back so the only other option is her thighs 🤞 Trial & error once we get it I guess. Just hard on her poor little arms if there’s constantly something on them both instead of rotating sites.
Anyone have any experience with Omnipod?
Good? Bad? Ugly? Lol .
💙💉 #befearless #socute #omnipod #dexcom #type1diabetes #insulinpump #strongkids
On rare occasions, the stars line up just right and I get to change my pump and cgm at the same time. Documenting the few seconds I'm not a cyborg. 🤖 #diabeticproblems
It’s finally feeling like fall y’all!! On tonight’s menu we’ve got my favorite turkey chili, meal plan approved of course! 💁🏼♀️😋
My husband shared a #reddit
thread with me this morning, about #T1Ds
being 10x more likely to suffer from alcoholism and attempt suicide 💔
I can’t say this information surprised me. Just looking back at these two days, shows how different it can be. •
This is why:
- routine is so important for me
- I try to eat low(ish) carb
- I need time to recharge
- sometimes I can’t follow through - people who “get it” are so important •
I’m a pretty private person and struggle to articulate how tiring living with #diabetes
can be. It’s not the finger pokes, infusion set changes, or Dexcom insertions that make it difficult. It’s the constant, relentless, brain power I have to devote to simply be alive. It’s the realization that no matter what success I have today, tomorrow is a brand new day where things that worked before now don’t do a damn thing. It’s frustrating. And exhausting. • •
So, to my fellow #t1dwarriors
y’all are kicking ass! You can do it 💙💙 #type1diabetic #t1diabetes #type1diabetes #t1diabetic #thisistypeone #thisistype1 #t1dlookslikeme #t1strong #dexcom #insulinpump #chronicillness #tired