#dsdn

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Thanks for Rosas birthday love friends. Rosa has hit the big 3 and is no longer my baby!!... She celebrated by wearing a #tutu and making it clear who's boss around here. 👊 #ipaintmyownreality #t21 #dsdn #downsyndrome #downsyndromeawareness #iamable
How beautiful is our sensory bin today at school!!! Learning about Autumn season at @toddenindia Norah loves tactile and sensory inputs, it helps her explore,understand and learn better. What better way to learn about autumn in winter than this super stimulating sensory bin!! #picoftheday #youcandoanything #theluckyfew #toddlersden #babiesofinstagram #nothingdownaboutit #sensoryplay #december #lifestyle #momblog #proudmom #daughtergoals #happysoul #therapy #babymodel #dontlimitme #morealikethandifferent #bornthisway #limitededition #warriorprincess #sensorybin #lifestyleblogger #iamable #dsdn #blessedwiththebest #downsyndromerocks #strengthandconditioning #loveislove #instagram #almostfamous
❤️❤️❤️ Thank you @hpets666 for the amazing photo! #peanutstrong #christmas2018 #changingthefaceofbeauty #dsdn
This afternoon as the clock flipped over to 1:53pm, I lay curled around you in bed watching you sleep. Your eyes fluttered, your mouth was open in a half smile, fine hair floating out in all directions. I breathed you in – you utterly content with a belly full of milk and me utterly content with my arms full of you. Perfect, marvelous, wonderful you. It’s been a year since we first met. Blink. A year. Blink blink blink. Where did it go? Yes, the year but also my fear. The uncertainties. The overwhelm. Where did it all go? I’ve gone back and read On the Night You Were Born a number of times now and I can barely relate. I want to reach back in time and hug the woman who wrote it tight. To whisper in her ear that everything is going to be just fine. She wouldn’t have believed me but I would tell her fervently that a year from now, you will find it hard to conjure up the grief. The intense sadness will be replaced with a love so strong that you want to yell it from the mountain tops. Everything will be okay. In the beginning, I thought about Izzy’s Down syndrome 24-7. There was not a moment that passed that it wasn’t on my mind. I had a permanent Down syndrome thought bubble above my head. When we were in public I had the strangest urge to blurt it out to anyone who even glanced her way. It felt like such a Big Deal that it was all I could think about. I went to bed and woke up thinking about it. I oscillated wildly between acceptance and despair. Down syndrome, Down syndrome, Down syndrome. All the time. But as time marched on, the thought bubble started to dissipate. Perhaps I grew accustomed to the idea or more likely, it was because other than Izzy being diagnosed with Down syndrome, Down syndrome essentially played no role in our day to day lives. Izzy was growing into a happy, smiling, engaged baby. She was eating, pooping, rolling, grabbing, smiling and doing everything a baby is supposed to do. Then one day I realized that I hadn’t thought about Down Syndrome in a few hours. Then a few days. Then all of a sudden the scale tipped and the thought bubble popped. Now I have to remind myself. Oh yeah, she has Down syndrome. [Continued in comments 👇]
We had such a great time at our DSA’s Holiday Party at Morgan’s Wonderland! We are so lucky to live in a city with such an amazing place like Morgan’s Wonderland, an “ultra accessible” amusement park for kids of all abilities ❤️ • • • • • • • • • • #weloveyoualottie #downsyndrome #trisomy21 #t21 #dsdn #changingthefaceofbeauty #downsyndromeawareness #theluckyfew #upsyndrome #morealikethandifferent #nothingdownaboutit 💙💛 #lifeisbetterwithyou
Tonight is our first day and night in the #hospital for this stay, but marks day 19 for the year. The repair around the duodenal stenosis was successful which we are #thankful for. We were told to expect a 4 to 6 day stay. So now we wait, and I sleep on the room couch yet again. It's not the most comfortable place to sleep but I know I wouldn't sleep good at home so here I am. Praying for a quick recovery so we can go #home . . . #sleep #beeps #ngtube #nothingdownaboutit #morealikethandifferent #dsdn #theluckyfew #t21 #upsyndrome #downsyndrome #lifeisbetterwithyou #ndss
Charlie bear ❤, Mi niño hermoso, I'm blessed and thankful for you. #dsdn #theluckyfew
Hey #YOU ! Have a #beautiful today! 👺 ( It's from: autismspeakscanada ) ........................... Rain or shine, Jill LOVES taking pictures with you at our Walks! Especially when you’re as colourful as Team Miss Mo! , , , , #autism #autistic #autismawareness #acceptance #adhd #specialneeds #disability #autisticmemes #autismo #inclusion #autismspeaks #asd #autismmom #lightitupblue #strongasamother #dsdn #nicumom #sensoryoverload #warriordailys #littleneedhelp #kidsautism #disabilitylittle #advocatelittle
Ronin's rocking a new look, and it's the cutest! 😍🤓 #dillidallieyewear #dillidallikids #firstglasses #rockthe21 #dsdn
The only guy I'll ever need. 🖤 . . . . . . . . . . . . . . . . . #1in700 #dsdn #nothingdownaboutit #myeverything #ily
He checks on his baby sister the second he gets home from school 😍#clarahoey #martyhoey . . . . . . . . . . #nothingdownaboutit #globaldownsyndrome #dsdn #theluckyfew #t21 #trisomy21 #downsyndrome #downsyndromebaby #downsyndromenewborn
Not where I hoped to be today...but I am so grateful for doctors and nurses that are on top of things and take Aviyah’s well-being seriously. We are in the hospital for at least a night as she has dropped weight quickly, is not taking in a lot of fluid, and is febrile. She is charming everyone and I’m grateful she looks so good. I am also grateful that these doctors are being so proactive so we don’t find ourselves in a spot where it’s much harder to come back from. So Aviyah and I will have some mother daughter time in the hospital tonight and hopefully she just gets even better ❤️ thank you for the prayers for my sweet girl and her warrior heart❤️ . . . . #mom #momma #momlife #babygirl #aviyahgrace #avigahswarriorheart #dsdn #downsyndromelove #downsyndromeawareness
She makes even the darkest days bright. I can't imagine what I was ever so afraid of when it came to the differently-abled. If I knew the magic that they have inside of them to make us see the joy in the unexpected and the light in the darkness I would have never feared them and gravitated towards them. God gave me Ivette so I can finally see the world as the miraculous thing that it is instead of the sorrowful hole that I thought it was. #dsdn #nothingdownaboutit #theluckyfew #trisomy21 #ivetteinspires #downsyndrome #extrachromosome #downsyndromelove
To this amazing little girl who made me a mommy. I look at you and at times am flooded with so many emotions. I get so excited thinking about your future and I'm so proud of all these amazing fun things you are doing. Watching your personality develop has probably been one of my favorite things! Your curiosity will take you on many adventures and your determination will take you to many places. I think about some of the challenges that you have overcome and know that one day you will move mountains! . . On a side note... Please tell me I am not the only one who takes a bunch of random pictures of their child sleeping!?! When I watch her sleep my mind wanders to all these amazing things, what do you think of?
"Different is not worse, it's just different." -Jackie Weldon, Rockin Mom to Lauren . . #dsdn #downsyndromeawareness #downsyndrome #dsawareness
Efter förskola och jobb så lagade jag och denna lilla loppa mat sen smet mamman iväg för att göra en del av tomtens ärenden 🎁🎄 ————————————————————————- : : : : : : : : : : : #familytime #sweden #mom #toddler #theluckyfew #kärlek #t21 #sindromededown #vimedbarn #viföräldrar #levameddowns #familj #intesåkonstigt #kärlek #littlesuperhero #downssyndrome #tacksam #funkis #funkisföräldrar #dsdn #shopping #specialneedsmom #specialneeds #loveofmylife #mat #kitchen #barnmat #christmas #minichef #kock #minikock
I was feeling stumped on gift ideas for Lucas. Blakely was 10 months old for her first Christmas so she interacted and played more. I'm so excited for these toys that will help with his development. We are really working on neck muscles right now and head control so we got him this fun turtle mirror with toys to help him look up during tummy time. Some wrist and sock rattles to help him "find" his hands and feet and the wubbanub will hopefully keep his paci in. He loves to fall asleep with one but has a hard time keeping them in his mouth due to low muscle tone and his itty bitty mouth. #babysfirstchristmas #Downrightperfect #lifewithLuc #LucasDean #T21 #upsyndrome #dsdn #omnetriumperfectum #theluckyfew #downsyndromeawareness #PT #musclebuilding #Christmas
Zane can count!!! One of his favorite characters is the Cookie Monster. 🍪 . . . He refuses to let me video him counting. I had to sneak this video when I heard him counting in the car. . . . #counting #numbers #cookiemonster #dsdn #downsyndromelove #2yearsold #able #nolimits #provethemwrong #downsyndromelove #smart
Last night in the tub Lindie was all over the place. Crawling to the other side. Putting her face in the water. Playing with her toys. Trying to pull up to stand. I kept wondering where my baby was, all while trying to keep her from drowning or pulling out her g-tube in her excitement. 😆 After a long season of what has felt like slowness, it seems like Lindie is in a new season developmentally. She’s hitting more “milestones” and doing a lot of new things. It’s exciting . . That being said, I’ve also appreciated the slowness. At first it was really hard for me to see Lindie’s peers pass her developmentally, those typically developing and those with Down syndrome alike. But as that slow season drug out it also helped me appreciate Lindie more— her laidback personality, her ease with things, her taking her time with things, her being my baby longer and letting time linger. And really, it has become a joy! . . Don’t get me wrong— I’m excited for her and all the new discoveries she’s making. I guess I’m just learning the art of being content with both and want to encourage other mamas currently sitting in that slow season to snuggle up and enjoy it. Because, like our other typically developing children, our children with Down syndrome grow up too. So enjoy every second. 🥰💗 . . . . #theluckyfew #downsyndrome #upsyndrome #changingthefaceofbeauty #downrightperfect #downsyndromelove #morealikethandifferent #nothingdownaboutit #motherhoodrising #motherhood #motherhoodunplugged #joyfulmamas #picoftheday #documentyourdays #inbeautyandchaos #thehappynow #dsdn #lifeisbetterwithyou #trisomy21
I swear every new Hazel stage is my favorite, but I want a big pause button on 2.5. Her fashion sense and independence and sense of humor and sheer joy about getting to walk by herself at the store... all my favorite things right now 😍 . . . . #theluckyfew #dsdn #nothingdownaboutit #lifeisbetterwithyou #thisistwo #toddlersofinstagram #childhood #motherhoodunplugged
Siblings. We have the best in the world, hands down. So supportive, kind and proud💙 Thanks for sharing your 📷 @melsfam 🖤 My Brother Is Down Right Perfect. Available in all sizes and various styles. Link in profile👆🏻 . . . #alilsomethingextra #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent mhp#changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
Lucy’s new favorite thing to do lately (if she REALLY likes you 😉) is to get all excited and grab your face to bring it in for a kiss. She didn’t quite get her sister’s face completely for a kiss in this video, but you can see how much she tried and how much LOVE she has. I love it!! #theluckyfew #downsyndrome . . . #downsyndromeawareness #joubertsyndrome #13qdeletion #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #dsdn #upsyndrome #hardofhearing #bilateralhearingloss #specialneeds #downsyndromediagnosis #sharingdownsyndrome
The fabulous @meghanjohnsonphotography took some Christmas minis for us last week. This little beauty and handsome dude did amazingly! If only everyone were as happy as #lilyruth , the world would be a better place. #therobmob #braydendale @gapkids @ameliazobow 🎄🎅🏼❤️ . . . #lovesforlilyruth #welcometoholland #lillianruth #trisomy21 #avcanaldefect #heartwarrior #zipperclub #homiewithanextrachromie #lifeisbetterwithyou #wouldntchangeathing #weareallable #dsdn #downsyndromediagnosisnetwork #babiesofinstagram #ds #downsyndrome #lovedoesntcountchromosomes 👧🏼🎀💛💙
Love grows here. The sign on the wall says it all. The world is uplifted in love as true as you, my love! . #downsyndromenaturally #theluckyfew #dsdn #t21love #CelebrateUnique #downsyndromelove #nothingdownaboutit #Iamable #specialneedsmom #t21 #trisomy21 #downsyndromerocks
Mosaic Down syndrome. People with Mosaic Down syndrome have a mixture of cells. Some have two copies of chromosome 21, and some have three. This is a rare form of Down syndrome that occurs in 2% of all Down syndrome cases. The more you know!
Happy fourth birthday to the best thing that is ever happened to me! I am so proud of the little boy that you have become and so thankful that I get to watch you grow and blossom and challenge yourself every single day. You made me a mom and I am forever grateful for that. Happy birthday my nugget!
His favorite song..."This little light of mine..." No coincidence that he shines light and joy wherever he goes. #dsdn #keepthemlittle #letthembelittle #trisomy21 #nothingdownaboutit #upsyndrome
ミスドでポケモンドーナツ、ゲットだぜぇーっ!クオリティの高さにビックリ🤯 もちろんママとパパが美味しく頂きました😏 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ We “caught” a couple of the new limited time only Pokemon doughnuts at Mister Donut (@misterdonut_jp )! Mister Donut is a popular doughnut shop in Japan. Their doughnuts are quite good! They tend to be light and fluffy and not as sweet as most American doughnuts. Anne seemed to like the Pokemon doughnuts. (She didn’t actually eat them, but she tried to grab the plate a couple of times... ☺️) ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Fun Fact: A “Pokeball” is called a “Monster Ball” in Japanese! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #adore_able #changingthefaceofbeauty #downmagazine #downsyndrome #downsyndromeawareness #dsdn #extrachromosomeextracute #fourteenmonthsold #lifeisbetterwithyou #lifewithds #misdo #misterdonut #mixedbaby #morealikethandifferent #pikachu #pokeball #pokemon #theluckyfew #t21 #1歳2ヵ月 #生後14ヵ月 #ダウン症 #チーム21 #ハーフ #ピカチュウ #ポケモン #モンスターボール
Boogie time at Grandad @stewart.wright.585 ‘s the other day💃🏼❤️
Well, we tried to avoid it, but when day three fever reached 104.4 we hauled butt down to primaries. Poor girl just can't seem to catch a break. Hopefully we will get results soon and get to head home before the snow starts.... ***Millie has para influenza!*** #1inamillieann #theflu #theysayitsgoingaround #dsawareness #esophagealatresia #eatef #myheartkid #chdwarrior #downsyndromeawareness #dsdn #nothingdownaboutit #theluckyfew
El día de hoy no me he sentido bien 🤒 He tenido fiebre, congestión nasal y dolor de cuerpo :( ... pero parece ser que pronto saldré de este cuadro. Espero mañana estar mejor para seguir haciendo travesuras . . . . #downsyndromerocks #downsyndromeawareness #nothingdownaboutit #trisomy21 #trisomia21 #t21 #dsdn #downsyndrome #sindromededown #t21rocks #t21love #extrachromosome #littlebaby #baby #emmavi #cromosomadeamor #cromosoma21 #inclusion #sinmitos #sinlimites #changingthefaceofbeauty #beautifulgirl #flu #bebeenfermita
14 days til Christmas!
These little hands are my favorite. The cute little fingers. And that crease. It’s called a Palmar crease. A single transverse palmar crease is one of the soft markers for Down syndrome. That crease is one of the markers our midwives noticed when Jonny was born. That crease is my favorite. 🖤
Oi galera, tudo bem? Hoje foi minha primeira consulta com a dentista e está tudo certinho com o meu sorriso banguela 😁 Tia Andrea, adorei te conhecer, você é muito legal 😊 Agora tenho que dormir, amanhã tem escola 😬 Boa noite pessoal 😘 __________________________________________________ #boanoite #goodnight #deusnocomando #deusmaravilhoso #felicidadedefine #gratidão #sempregrato #saúde #odonto #odontopediatria #odontologia #dentista #dentistainfantil #acessibilidade #igualdade #equidade #empatia #serendipidade #síndromededown #downsyndrome #trissomia21 #t21 #síndromedoamor #cromossomodoamor #cromossomo21 #47motivosparaseapaixonar #downsyndromeboy #downsyndromebaby #dsdn
When at Hobby Lobby 🛍 Swipe to see cutest reaction video ever 👉🏻 #christmasathobbylobby #downsyndromecutie
I’m not sure if it was more exciting taking Cooper to pick out his first Christmas tree or that a pair of his shoes finally fit his tiny lil feet ✨ Grow baby, grow!
Gigi’s first birthday party was awesome 🦖
These two have changed our lives so drastically 💛 In such an amazing way . These two have changed me for the better in so many ways . I have learned so much from them and love my little journey. In life with then 💙 I love you both 💙💛 #aunt #nephew #downsyndromelove
“Ohana means family , family means no one gets left behind or forgotten “ -Stich #11months #fewdayslate #nothingdownaboutit
Wanted to share this with you ! “Do not label me “ Please do not limit me You CAN NOT predict who I will grow to be I am just as determined to succeed As the kid who is sitting next to me I may look different, but don’t we all Everyone is different both big and small Please do not label me My life and ability is not to be preconceived I can grow up and be ANYTHING What gives society the right to tell me differently? When I grow big you will see, I will be amazing at everything! I work so hard, I try new things.. I won’t sit back and let misconception take the lead Although I have yet to sit or crawl When I get there, I will show it off With that big smile on my face I meet my milestones at my own pace ! Yes I conquer, yes I fall I may have struggles But best of all, my ear to ear smile says it all I overcome them everyday I am happy to be living my life, my way The obstacles hardest thrown at me Are the ones from others being mean You can help me live life happily Just teach your kids to be kind & accepting We can all change the world for the better, let’s join forces and do it together ! It’s Views and stigmas are so out dated. We are more alike than different let’s celebrate it ! Take a second to contemplate... the world can really become SO great Here’s a challenge let’s start with you, Pass this along and see what it will do... -Kelly Monroe Hernandez -IG: @babybottles.and.bigboybikes - allpoetry.com/14106048
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