#dsdn

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We have a new blog post up today, folks. “Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be.” -Shel Silverstein Brian Donovan, our second keynote speaker, opens with a series of inspirational quotes, and that one brought tears to my eyes. Before Sienna arrived, I spent so much time wondering about this baby growing inside of me. I had dreams for her and our family......... #linkinbio #dsdn #thisisdownsyndrome #theluckyfew #youvegotthis #wevegotyou #upsyndrome #nothingdownaboutit #nothingdown #rockinmoms #lifewithds #bandofmoms #rockinsiblings #rockinmomretreat2018 #mytribe
A little fun with the window and paint in a baggie. Zane enjoyed it. #paint #happytuesday #dsdn #downsyndromelove
Sonny loves sticking his tongue out✨👶🏽❤️ #downsyndrome #trisomy21 #dsdn
8 weeks old💙❤️ #downsyndrome #trisomy21 #dsdn
Baby sonny👶🏽❤️ #dsdn #downsyndrome #trisomy21
I haven’t been very active as I’ve been in hospital very poorly but I’m homeeee👶🏽💙🙏🏼 my new milk is making me gain weight but my family love me chubby☺️❤️ #dsdn #downsyndrome
I think we need start on some new signs! Willow has these down and has been doing them unprompted! This morning she kept telling her OT during therapy that she was “all done”. 😆Such a smart girl. ❤️ #downsyndromeadoption #dsdn #nothingdownaboutit #theluckyfew #tubiebaby #babysignlanguage
This little lady colours our lives so beautifully, outside the lines. She is so perfect, with her almond-shaped eyes, cute little nose and her rosy red cheeks. 💕💕 . . . #trisomy21 #t21 #upsyndrome #luckyfew #nothingdownaboutit #dsdn #downsyndrome #chdwarrior #heartsurgery #downsyndromeawareness #littlelove #alovesobeautiful
Epic Mom’s Night Out🖤 It may have ended with a late night swim and this security officer asking us to vacate the pool... turns out, when we tried to play the ‘we are just a bunch of parents with kiddos who have DS,’ he replied ‘me too!’ What?! He has a 5 year old with DS. Guaranteed a night we won’t soon forget❤️ . . . #dream #dreamretreat #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
Happiness = getting attacked by this monster! #dsrocks , #nothingdownaboutit , #dsdn , #scarymonster
Hi friends. It's a rainy day here in Minnesota. Today I found out I weigh 9lbs 7ozs (5 months old)... I didn't quite hit my goal but I'm resilient and will keep on eating, rolling, smiling and giggling! 😁💙🍼 . . . . . . #pocketsize #zoeywithanextrachromie #homieswithextrachromies #hatseason #upsyndrome #downsyndromeawareness #downsyndromecutie #downsyndrome #theluckyfew #morealikethandifferent #trisomy21 #cutie #dsdn #dsam #downsyndromeadvocate #nothingdownaboutit
I love how brave my nugget has become. He’s working hard in PT trusting his body and his balance and it’s really showing. He’s absolutely obsessed with playgrounds now, especially slides. I love watching the wheels turn while he figures out how to get over an obstacle and how he claps for himself when he figures it out 😊
Talking to daddy is always fun! This girl has been so vocal lately and we love it. Lucy’s hearing aids are still getting worked on and so she loves to be LOUD so that she can hear herself. Next week we get her hearing aids back on and I am really interested to see how she will do with them. I’m thinking she’s not going to like them again, but we will see...Also, Lucy’s big feeding therapy evaluation is tomorrow and I’m really anxious to see what they say, especially since these past couple of days she has decided to not eat again 😞. Oh Lucy girl, we love you!🤞❤️. #hardofhearing . . . #downsyndrome #downsyndromeawareness #joubertsyndrome #13qdeletion #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids
Thank you to @jacksbasket for celebrating babies with Down Syndrome and for the lovely basket made special for our twins, Mia and Talia. They loved getting into it and finding all the goodies. 💕💖 #jacksbasket #celebratingbabieswithdownsyndrome #dsdn #dsala #twinlife #twinventures
I can't believe you're mine 😍💛 #dsdn #lifeisbetterwithyou #wouldntchangeathing
Have mercy child, if you got any sweeter I don’t think my heart could handle it 😍
A sweet smile to light up your Tuesday! ❤ Repost from @jkranz17. Tag your pictures with #dsdn for a chance to be featured. #downsyndrome #dsawareness #downsyndromeawareness #humansofjoy #upsyndrome #nothingdownaboutit
🖤GIVEAWAY🖤 Whoa! 6k giveaway! We can’t believe it😆 One lucky winner will win a store credit❤️ To enter: 1. Like @alilsomethingextra321 2. Like this photo 3. Tag two friends in the comments of this post Unlimited tags are allowed for additional entries BUT only one tag per comment/no repeats. . Contest ends 9/26/18 at 10 EST. This giveaway is not sponsored or endorsed by IG. . . . #alilsomethingextra #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeiabetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #shouttheirworth #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks #downrightperfect #teamds #downrightawesome #giveaway
Eli got his new glasses and he’s actually keeping them on 🤗 They changed his prescription quite a bit and it seems to have done the trick. He wouldn’t keep his old pair on for more than a second, so we’re really happy he’s been wearing them. They definitely make a noticeable difference in his vision 🤓 #kidswithglasses . . . . . . . . #cameramama #momswithcameras #babieswithglasses #momblogger #cutestbaby #twoyearold #dsdn #t21 #winnipeg #trisomy21 #winnipegblogger #downrightperfect #thesugarjar #morealikethandifferent #changingthefaceofbeauty #sindromededown #homiewithanextrachromie #sindromedown #downsyndrome #downsyndromelove #theluckyfew #magicofchildhood #candidchildhood #ywg #t21rocks #nothingdownaboutit
Good morning Delila. She tells me “switch” at the end because she wants me to turn the lights back off. Love her #switch #brightlight #morning #downsyndrome #theluckyfew #mosaic #dsdn #changingthefaceofbeauty #delilaaveri
"If you think you can, you can." This is one of my favorite shirts/outfits! . . . #oldnavy #downrightperfect #downsyndrome #theluckyfew #Դաունիհամախտանիշ #dsdn
When life gives you challenges, may you find the silver lining to always keep your Smile!! This girl brings the biggest smile to my face. #keepsmiling , #silverlining , #dsdn , #downsyndrome , #dsambassador
Poppy's baby gro slogan could not be more apt. She has been a fighter since being in the womb when she would kick and punch me like it was going out of fashion and she hasn't stopped all 18 days of her life. Despite the jaundice, despite the weight loss, despite the VSD and ARSA she's my little fighter who seems to be astounding every paediatrician, Dr and midwife she meets due to her muscle tone and strength. She had to go to the GP yesterday because of a chesty cough. The GP said to me who told you she had trisomy 21 because I can't see any features? I laughed and said she definitely has it, her cells were tested. Oh he says, I would definitely have missed that diagnosis if I was assessing her postnatally. I think my little superstar is tearing up the rulebook!! #nofilterneeded #dsdn #thisgirlcan #t21journey
Покажу мою любимую съемку на данный момент😌 ⠀ Все шилось ручками именно под Лисёну👐 Такой маленький человечек, а такое большое вдохновение) ⠀ ___________ #доча #дочка #сд #синдромдауна #синдромлюбви #солнечныедети #дети #trisomy21 #dsdn #downsyndrome #t21 #детимодели #модель #цветы #крестьянка #костюм #ручнаяработа #фотографмосква #фотограф #фотосессия
Att ha en s t o r e b r o r 💛 Så glad över att mina tre får ha varandra och älska varandra på samma vis som jag har fått. En sån rikedom att ha syskon att glädjas och växa upp med 🍂 . . . #nothingdownaboutjunia #livet #kärlek #love #syskon #siblings #dsdn #downsyndrome
When you are sleeping then an annoying flash disturbs your slumber. #grandmaismybiggestfan , #dsprincess , #dsdn , #downsyndrome
The sweetness of this boy is immeasurable... #thedsn #dsdn #downsyndromelove
She's on the move! But she only goes in reverse so we find her backed into funny places. She doesn't seem to mind. 😊
Bedtime stories with my brother, Lucas. He makes me laugh. #dada #nitenite #downsyndrome #dsdn #heartwarrior
My brothers taught me that if you make a mess mom will still clean it up, but it works even better when you’re the cutest #SavedByGrace #Mess #silly #dsdn #downsyndrome
This Katie from Brevard county special olympics. This was her first powerlifting meet! She's made great progress and really dialed in her form in the past two months. Can't wait to see what's in store for her at States in November! . Love seeing this, powerlifting done right! Coach @kimacosta312 has Katie on the right track with amazing form. I can not emphasize how important form is. Can’t wait to see her in future competitions.
A smile like this is too good to keep to yourself!😁#nothingdownaboutit #theluckyfew #downsyndrome #upsyndrome #t21 #dsdn
I’m late in posting this, but thank you so much to everyone who joined Lorelai’s team, donated, and cheered us at this years Buddy Fest for the NW Down Syndrome Association. It’s wonderful to take a day to celebrate this community, but we also know that advocacy today will create more opportunities for meaningful inclusion as our little girl grows up. It was our second year participating, and we look forward to many more to come for Team Disney Bound and Down. #disneyboundanddown #DSDN #theluckyfew #downsyndromerocks #buddyfestnw #inclusion #pdx #ohana #ohanameansfamily
Who stayed dry in the SAME PAIR OF UNDERWEAR all day?!!!🙌😭
W O W!!! . This little bundle of love is 17 months old today 😯 I know, how??! . . These days I’m definitely noticing the shift from baby to toddler. She is learning so many new things every day, and keeping us all so very entertained 🤗 She definitely has us all wrapped around her adorable little finger, and we wouldn’t have it any other way 💛 • • • • #babylove #toddlerlife #downrightperfect #upsyndrome #theluckyfew #morealikethandifferent #happy #love #baby #instacute #instababy #babiesofinstagram #adorable #cutekids #thebump #thatsdarling #documentyourdays #momlife #family #kids #downsyndrome #downsyndromeawareness #t21 #dsdn #monday #mondaymotivation #wow #little #skyzoneventura #babygirl
Delila loves peanut butter crackers. She loves even more to separate the crackers and lick off all the peanut butter first. #peanutbutter #ritzcrackers #snacktime #yum #mess #downsyndrome #theluckyfew #mosaic #morealikethandifferent #love #dsdn #delilaaveri
How did we go from a little baby on an exercise ball working on her core to a big girl running through therapy art work in one hand and high fives for everyone with the other 💕
That one time no one wanted the Dream Retreat to end, so we extended our stay to keep the fun going! 🌈 Sad to see everyone head home but so glad we got some extra time with some of our favorite people! Best launch team around- we love you all! . . . #dream #dreamretreat #ds #t21 #321 #downsyndrome #upsyndrome #theluckyfew #morealikethandifferent #changingthefaceofbeauty #t21love #lifeisbetterwithyou #nothingdownaboutit #t21awareness #rockthe21 #rockin #rockinit #photooftheday #dsdn #dsrocks #downsyndromeawareness #teamds #downsyndromelove #extrachromosome #specialneeds #downsyndromerocks
Day number I.don't.even.know. anymore of a neverending stay. Where I watch my daughter on #lifesupport so machines can breathe for her. So.much.fun. The days are long, lonely, scary, and so little progress or even like today backwards regressions. There is no tomorrow. Everything is day by day. Sometimes hour by hour. And we just keep holding on and walking it out. Spirit lead me where my trust is without borders Let me walk upon the waters Wherever You would call me Take me deeper than my feet could ever wander And my faith will be made stronger In the presence of my Savior I will call upon Your name Keep my eyes above the waves My soul will rest in Your embrace I am Yours and You are mine #ventilator #downsyndrome #congenitalheartdefect #ngtube #tubefedbaby #redhair #hospitallife #specialneedsbaby #medicallycomplex #avsd #rhinovirus #picu #iculife #dsdn #infantilespasms #lifeofourlittlepeanut
Back in April Lily got 2 screw implants placed. The right one failed 😞 so she ended up having a bone graft on the right side. Last Thursday she had another screw put in the right side. Hopefully that will take. If not she may end up with a bridge. Her teeth journey has been a long one, but we are starting to see the light at the end of the tunnel. #periodontics #implants #teeth #downsyndrome #downsyndromerocks #downsyndromeawareness #downsyndromelove #downsyndromeadoption #t21 #trisomy21 #chromosomallyenhanced #theluckyfew #dsdn #changingthefaceofbeauty #individualswithdisabilities #daughter #lifeisbetterwithyou #channelkindness #bekind
Thank you to @mepperson18 for purchasing a shirt and supporting my fundraiser! Click the link below to order your’s today! You have until Wednesday, October 3rd!! . https://www.customink.com/fundraising/loves-for-lily-ruth-down-syndrome-awareness-walk-ash . . . #lovesforlilyruth #welcometoholland #lillianruth #trisomy21 #avcanaldefect #heartwarrior #zipperclub #homiewithanextrachromie #lifeisbetterwithyou #wouldntchangeathing #weareallable #dsdn #downsyndromediagnosisnetwork #babiesofinstagram #ds #downsyndrome #lovedoesntcountchromosomes 👧🏼🎀💛💙
Happy baby 🤗#dsdn
Me and my baby boy 😍#dsdn
Can't believe he is almost 1 month...🤗#dsdn
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