Today, 4 years ago, after a terrifying day and night spent in the hospital, Mama fighting like crazy for her sweet girl, I came back in contact with a doctor who chose to think outside the box. It was from her, that we heard the words INFANT BOTULISM for the first time. This doctor spent the rest of that day on the second floor of CHOA fighting for this babe of mine. By evening, the diagnosis came in the PICU.
Those days were so dark, I remember especially the night being so so dark. I will never forget how many of you showed up for Skylar and my family during that time. I love sharing with Skylar how you all loved us so well. I was forever changed through that time. Sitting in a PICU, at Christmas, on the neuro floor.... it’s eye opening. Makes you a different person. As hard as it all was, I wouldn’t change it. I am better for it. Thankful I am so fortunate to have made life long friends through the experience, including her doctor that caught in that day on the 2nd floor. @ltgoblue
we Bakers sure love you. The nurses that cared for her, love each of you so. For those that don’t know... these nurses care for your kid there, but a big part of what they do means taking care of parents too... that job isn’t easy.
I like to use this time to remind all you Mamas to listen to your gut. You listen and speak out until you are heard. Sometimes your spouse might even doubt, and that’s ok... you know that babe. You just keep at it. Yell if you have to. Always ALWAYS trust your instincts.
Skylar, we love you so much. You are perfect. You are strong. Beautiful. Kind. Loving. You are a fighter. I am thankful to be your Mom. Thanks again to each of you who cared for her. She is here today without a doubt because God placed each of you at the right time to help her fight. We love you all so much.
#skylarmonroe #four #infantbotulism #survivor