#invisableillness

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When it's work to go to class, but so worth it in the end 💖 - - Thank you @simps2al07 for welcoming me into your class of awesome ladies!! And @allierosehein I so appreciate your consistent kind support during this past session and these past few weeks especially. - - This new trick is a work in progress and was challenging because of some pain I've been experiencing, but it is always rewarding to put forth the effort and see what happens! - - My body still struggles, there are still challenges to overcome and pain to endure, but getting out there and trying always gives me hope. I remember where I was a year ago, or even a session ago and that small effort over time has yielded such beautiful gifts. Gifts in endurance and strength, in new friendships, and a vision for what I might be able to accomplish continuing on the journey. #polefitness #encouragement #invisableillness #grateful
IVF CYCLE 2 - DAY 1 OMG I just did my first injection all by myself!! During our first round hubby had to do all the injections because I just couldn’t bring myself to do one. But last night I kept waking up and stressing about it and having dreams about it and it was driving me crazy so I got up early while hubby was still asleep and just did the bloody thing! Ok well I sat there for about 15 minutes with the injection in my hand while I built up the courage but I got there in the end haha! New skill unlocked! 💉😆 . . . #IVF #ICSI #ivfcycle2 #ivfjourney #infertility #realfaceofendo #endo #endometriosis #endosucks #endowarrior #endostrong #endosister #endometriosisisreal #endoawareness #helpusfindacure #chronicpain #chronicillness #invisableillness #butyoudontlooksick #spoonie #endobelly #endobloat #painsucks #womensupportingwomen #femalehealth #endoaustralia #1in10 #fightlikeagirl #mystupidendo
Thank you to my Beautiful Friend @listingsbyjennifer for your generous donation to the Mississauga Walk for Lupus Ontario. It means the world to me! 💜💜 If you need help buying or selling your home, Contact this Beauty! To Make A Donation Visit the Link in My Bio Every little bit helps! #listingsbyjennifer #lupus #lupusawareness #walkforlupus #walkforlupusontario #walkforlupusontario2018 #mississauga #mississaugawalkforlupusontario2018 #livinglupie #invisableillness #chronicillness #sle #nephritis #findacureforlupus
Well decided to use an #app to see if i should colour my real hair and ditch the wigs/headscarf for summer.. 100% not letting the natural grey take over as it makes me look more ill (which i do anything not to look like lol fake it till you make it sort of thing) So do i dive in with this purple never dyed my real hair in 37yeara of being alive havent even had a treatment like a perm since i was 13 so its nearly 100% untouched lol.... #beauty #app #hairfilter #hairstyles #haircolor #haircolour #fibromyalgia #cfs #strokeawarness #stroke #pcos #cfs #chronicpain #invisableillness #spooniebeauty #spoonie #life #summer2018 #beautythroughpain
Happy FriYAY!!! . . . I have been looking forward to this weekend for a while because it includes a small road trip with @from_nacho_to_macho ❤ . . . I slept into noon... on accident but it felt soooo good! Went for a run and realized that the epic hill I wanted to run was a lot closer than I realized...It felt so empowering to not only run down the .3 mile hill but also run the entire way back up! I also completed leg day from my new workout program...I do not advise doing that right after a hill run 🙈 . . . A little stretching later, inhaling my loaded salad and I was off to the coffee shop at the bottom of the hill. My plan is to get caught up reading my book club book while Kevin finishes up his workday. . . . What has been your favorite part of your day? Mine so far was conquering that hill!
Be strong little wildflower the wind will die down shortly • • #chronicpain #chronicillness #invisableillness #invisablepain
Isaiah is 2 MONTHS seizure free. Had to update this because like a lot of us who reach a mark such as one year seizure free, we have seizures days/months later which ruins the streak. But we are still fighters. Isaiah is a fighter so let’s all show him love and support. Keep it up buddy! #highfiveisaiah #epilepsywarrior — Be strong Isaiah!!! 💜 @highfiveisaiah @zayazolasmama#seizetheday #epilepsyawareness #epilepsy #epilepsywarrior #epilepsylife #epilepsyfighter #epilepsyadvocate #epilepsystrong #invisableillness #survivor #purpleribbon #awareness #chronicepilepsy
Photo from @utter_dil_emma 💜Depop exclusive! 💘 Link in our bio 💫
How do you deal with RAINY GLOOMY days? Well. Today I decided to make my life brighter. Not get caught up in the blah. So dress WILD and BRIGHT!! It’ll change your mood. Happy Friday! #carpediem #gloomy #yoga #yogaeverydamnday #breathe #plantbased #namaste #migraine #vertigo #chronicillness #invisableillness
Today is hard. I’m tired and tears easily flow. My body is fighting hard right now. I have a lot of work happening with my jewelry business which is good. Hard to keep up with special orders and farmers market. I am so doing this! This is what #invisableillness looks like. Rolled out of bed tied my hair back and running errands. I think it’s very hard for people to understand that I am compromised when I look like a normal healthy human. #lymewarrior #lymecantkillmyvibe #lymeawareness #jewelrymaker #reachforyourdreams #getup #keepmovingforward
24hrs difference 😢 this is exactly how chronic illness works... still hope every time that it won’t creep up on me, but without fail! #chronicillness #chronicpain #fybromyalgia #lupuswarrior #thestruggleisreal #fybromyalgiasucks #invisableillness #whatadifferenceadaymakes #hatethisillness #livingwithadisability
Omg thank you so much @spoonfulsofkindness !!!❤️ this picture is totally amazing I love your work so much! I absolutely love this picture you drew of me! I am in awe!!! 💜💜 - - - - - #crps #rsd #anemia #ddh #hipdysplasia #brokenfemur #health #ill #mental #spoonie #badass #health #strong #survivor #warrior #fighter #invisableillness #journey #chornicillness #chronicpain #hsd #mms #iv #ivmeds #painmeds
Proofs from my brain (or more neck modelling) yesterday. Upright neutral, extension and flexion positions. I joke about brain modelling because people have stolen pictures of my MRI and used them for other purposes including claiming their pictures of their own brain. So I consider my brain a worldwide model... #chiari #eds #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #chiarimalformation #uprightmri #cci #cranialsettling #craniocervicalinstability #instability #chronicillness #invisableillness #hypermobile #hypermobilitysyndrome #heds #syringomyelia #pots #posturalorthostatictachycardiasyndrome #ist #dysautonomia
We fibromites seem to be certain personality types : hard workers, nuturers, people pleasers, responsible, loyal, caring ... Who don't care for themselves half as much as for others. We have to realise we are worthy of self care and love too. Resting is not wrong, sinful or lazy. It is necessary because our bodies have little or no fuel or resources left to keep fighting. We are on fumes here. So we must play it smart and conserve and ration our energy supplies. 🌼 🌼 🌼 https://m.facebook.com/story.php?story_fbid=1033670006800100&id=244060669094375 🌼 🌼 🌼 #noguilt #sicknotlazy #oktodonothing #fibroawareoz #fibromyalgiaawareness #fibromyalgia #chronicillness #chronicfatigue #chronicpain #invisableillness #CFS #cantwork #askforhelp #painmanagement #dontgiveup #chronicpainsurvivor #spoonie #disability #fibrowarrior #fibrofighter #spoons #support #believeme #approvedillness #brainfog #insomnia #encouragement #explainingnotcomplaining
Moving day.. This was Thursday morning determined to pack some things.. 30 min. Later completely unable to walk.. 😓 I felt so defeated and useless. Here is the crazy thing.. Well one of many crazy things about having an invisible illness. For me anyways.. I don't even believe me.. I think it's in my head sometimes. I went from healthy to this over night. I just can't be THAT bad??! But. It is.. It sucks.. On the bright side... As I stumbled around with my daughters neck pillow on my husband just looked at me while he packed and said.., "you look so cute in your neck pillow." 😍 I am so blessed.. Can't wait for my family's new adventure in our new home. Anyways. Thanks for listening 💓🤗 Have an awesome weekend friends.. . . . . #movingday #positivevibes #chronicillness #invisableillness #packing #spoonielife #spoonie #sjogrens #easydoesit #grateful #chronicpain #neveralone #friday #newadventure #selfieoftheday #selfie
I'll make this day a good day even though my body doesn't agree with me.. #pushthrough #goodday #byforce #fuckthispain #invisableillness #butyoudontlooksick #iamafighter #letsgo #croptop #bikinigirl #summer
Endometriosis and infertility, this is a very painful subject for me because at the moment there is a big question mark over if I will be able to conceive. My tubes have fluid in them and they are tangled up in scar tissue and my ovaries are in a bit of a state, there are tests they can do to check when im ready to start trying. However I have had to mentally prepare myself for the worse because that way I hope the world around me won't come crashing down if I hear those words ' I'm sorry it doesn't look good' There are options tho which I am so very grateful for. For me it's a wait and see kinda thing. My heart goes out to all of you who have had that bad news and I'm sending all the love and strength to you all. Endometriosis has a lot to answer for and one day I wish we will all be able to say ' I HAD endometriosis' stay strong you amazing beautiful warriors!! 💛💪💛 #endometriosis #menopause #pcos #endowarrior #infertility #endometriosisawareness #endoandinfertility #brave #strong #invisableillness #incrediblewomen
Being able to feel good enough to ride my boys is a rarety these days, but i can never get enough of the happiness i feel when i ride ❤ #ankylosingspondylitis #fibromyalgia #invisableillness #autoimmune
When your friend refers to visiting you as 'a welfare visit' ! 😲😤😬 #fibromyalgia #disability #invisableillness #chronicfatigue #cfs #invisableillness #spoonielife #ehlersdanlossyndrome #eds
This is what happens when your taking too long taking your #medication before bed and the #dog decided its past her bedtime lol.. Onto the bed and fast asleep before i get a chance to get in bed... I have to be the only women with a kingsizs bes sleeping in less than a single twin bed lol why? Because the furbaby takes over the bed lol Mind love her sooooo much xxxxx #spoonie #spooniepet #spoonielife #fibromyalgia #cfs #strokeawarness #stroke #pcos #cfs #chronicpain #invisableillness #photography #cornwall #family #welshfamily #shihzu #lhaaoapso #bichon #spoiltbaby #baby #mygirl
I haven't actually felt "normal" for almost 20 years, probably longer if I really sit and think about it. But I can't always do that as it puts me in a downward spiral of anger, worry, regret, frustration, negativity. I'd love a "normal" but sadly this will never be the case. #bdp #borderline #borderlinepersonalitydisorder #emotionallyunstablepersonalitydisorder #emotionallyunstable #anxiety #depression #dealingwithit #memoriesdontdie #thoughtshurt #frustrated #frustration #bipolar #mentallydrained #mentalhealthillness #mentalhealth #mentalhealth #mentalhealthissues #mentaldisorders #whatsnormal #invisableillness #itcomesbacktoyou #itsoktobeyou
"In order to LOVE who you are, you must first ACCEPT the experiences that shaped you" - Unknown ...This quote hits home... I don't talk too much about my struggle with Ulcerative Colitis anymore mostly because I don't want to be a debbie downer and because I honestly thought I had come to terms with my diagnosis a long time ago but it was recently brought to my attention that I clearly haven't. I'm still holding on to hope that I'm going to wake up one day and my life/health will go back to how it once was...(btw I've been holding on to that hope for the past 7 years...and no luck yet) rather than just accepting it for what it is, I fight it, I bottle up my feelings about it and hide them away so I can appear to have it all together in return this only adds more turmoil to my sanity and more weight to my shoulders and for what? Why do we do this? Why do we think we need to be OK all the time? It's a lot of work to put on a fake smile and I'm exhausted.... Working on growing my acceptance and authenticity today... 🙏 #workinprogress #thoughtfulthursday #yogaeverydamnday #yogaforthesoul #acceptance #ulcerativecolitis #ibd #autoimmunedisease #invisableillness #skyarcher
2 very different appointments today: Infectious disease went okay (more or less, a little more on the less - for reasons I am not going to completely go into) and GI went amazingly well. I am going to go in order of how things happened. In the morning Infectious Disease happened at the local children’s hospital and most of my numbers came back fine. The doctor came in with a paper with my history on it and what he wanted to cover. HIV negative, TB negative, antibodies negative, overall blood counts within normal ranges. We brought up the fact that the eosinophils are high (we got a call) and he said that the overall is normal so it is fine. This doctor is convinced that my antidepressant (which I started after the fevers started) is the cause of the fevers 🤨 none the less the plan includes stopping that but whatever. The rest of the plan is to get a CT of my sinuses to see if I need another round of antibiotics and to see my Rheumatologist (one of my markers is up and i have a fever and joint pain - the joint pain has always been around so again whatevs). We already messaged her and she agrees that I need to get in to see her soon because of the fever. Idk what happened after the appointment or if it was just that I had my hopes up that he would know what to do about the fever, but I had another major meltdown where I could hardly talk and was scratching myself and just totally imploding. On the complete contrast GI was amazing, I went in having a bit of trouble because I was just over the whole day and coming out I was so happy because things are looking up. The pain is still around and we were not able to do the pill test before this appointment (insurance problem). But we brought up stopping the antidepressant (it was prescribed for the GI pain) and he was okay with me stopping it because it has not made a hugely marked difference. We discussed what to do now and when he realized the pill test had not been done because of insurance he said that he will pay for it 😳 This is amazing, I didn’t and still don’t know what to say. (Rest In the comments)
Self care at the salon: It’s been a year since I’ve had a hair cut! These are the parts of your life that you drop like crumpled petals when you walk in stride with “sick” for too long. .Photo, color, and cut by Adrian Franco . . #yellowhair #microbangs #butterbeerhair #orangehair #selfcare #sickgirlsclub #crps #chronicpain #invisableillness #hystersister #mentalhealth
It's 2.15am and I am currently in the middle of a hypo 😣 I went to bed with a reading of 19mmol which is surprising considering I had fishcakes and cabbage for tea plus a 45 minute walk shortly after. Either I've over corrected or my blood sugars hadnt reacted to the walk just yet. Anywho here I am in the kitchen recovering. - - - Just wondering if any of my fellow diabetics have any strong cravings when having a hypo? Mine is all of the above but strongly Marmite on toast. I dunno what it is but if I have a hypo I feel strongly compelled to have Marmite on toast. Just a little fun fact 😂 - - - Anyway I'm off back to sleep now as my alarm goes off in 4 hours 🙈 god bless diabetes and interrupted nights zzzzz 😴😴😴 - - - - #diabetes #diabetic #sugar #chocolate #craving #type1diabetes #t1d #t1dlookslikeme #t1diabetes #invisableillness #diabadass #strong #diabetescommunity #fitfam #exercise #bloodsugar #bloodglucose #insulin #novorapid #levemir #hypo #hypoglycemia #support #illness #chronicillness #diabetesuk #meme #diabetesmeme
Proud mom moment. When my 4 year old son notices that I got my nails redone and he says, "Mommy I love your new nails, they are so pretty!" Raise boys to respect and love their mothers so when it is time for them to leave the nest they know how to respect and truly love their wife. 💞💞💞 #singlemomsofboys #respect #Godfirst #mommysonbond #momwithcrohns #invisableillness #singlemomof1
2 yrs ago I felt horrible!! Couldn't get out of bed, had pain from my head to my toes and completely exhausted, was so bloated from inflammation and swelling, couldn't think thru the brain fog, had so much anxiety & depression from feeling like this was how I'd feel the rest of my life!! Well guess what?? It wasn't!! Within a few days of starting some natural, plant based, Non GMO, Vegetarian supplements, I could feel energy start to return to my broken body. Within a week, I could actually think, yes the brain fog was lifting and I was out of bed walking around the house again!! Within 30 days, I could see that this stuff was the real deal, the miracle I'd been praying for, even though I started it to prove it wouldn't work and I'd be getting all my money back within the 60 day guarantee!! Man was it one of the best decisions I've ever made. It's so simple really, Every health issue in the book boils down to Gut Health. Get your Gut Healthy...you'll get healthier.If you want to know more, comment or msg me. I love helping others get healthy too! #autoimmunedisease #fibromyalgia #thyroidissues #energynow #chronicpain #chronicfatigue #invisableillness #fibrowarr #lupus #spoonie #hypothyroidism #anxiety #depresssion #ilovegreatdanes #greatdanesofinstgram #yayainsandiego 💗 #ilovebostons #ilovegrandkids #ilovedogs #i 💗helpingpeople
Sleepy time... 💤 · Another hot summers night, windows all wide open, soft breeze through the muslin, breezeway blinds, it almost feels like we are all on holiday and on the euro continent, a Greek island or at a Swedish holiday family home..!! · Hopefully will get some sleep tonight... #nightynight · · #fibrowarrior #spoonie #summerchild #freshface #nomakeup #bedtime #insomnia #chronicfatigue #irony #mtbgirl #hoopgirl #scottishgirl #swedishgirl #disabledandcute #30something #summertime #coastalliving #chronicillness #chronicpain #mychroniclife #invisableillness #hiddendisability 🏴󠁧󠁢󠁳󠁣󠁴󠁿💜☀️🇸🇪🇬🇷⚓️♿️💋😴
Every time I am on IV pain medication I always have a very swollen red face and causing my eyes to dilate. Does this happen to anyone else frequently? I try and avoid my IV pain meds if I can take them orally in the hospital or when I leave. My face looks funny in all these pictures hehe. Today I had a re eval at with my back PT since my last surgery and my back has gotten worse since the last surgery so I got referred to start and try dry needling treatment. If any tips on starting it thank you! - - - - - #crps #rsd #anemia #ddh #hipdysplasia #brokenfemur #health #ill #mental #spoonie #badass #health #strong #survivor #warrior #fighter #invisableillness #journey #chornicillness #chronicpain #hsd #mms #iv #ivmeds #painmeds
So first cycle since my implant was removed and theses are the things that make it bearable! (Not included are the medications because they vary depending on pain level, cramps, etc) ~ ☆Therapy Wheat Pack (mine is in Rust) from @camdenco.nz via @createdhomewares . ☆Magnesium cream from Wicked Sensation NZ via @ekohub . ☆"Pick me up" oil from @thenudealchemist via @hokutonz . ☆"Clary Calm- womens monthly blend" oil from @doterraaunz also via @ekohub . ☆Menstrual cup from @thehellocup Why I use them: The heatpack is super comfy and helps with cramps and the heat also provides a level of pain relief- with my chronic pain as well as endo pain is incredibly difficult to manage with out incredibly strong medications I don't function well on. ~ The magnesium cream when rubbed directly onto the skin above the area helps with muscle pain- I currently have it on my lower back and lower abdomen. ~ The doterra oil also works on pain and cramps- I use it throughout the month too- and it rolled onto the skin above the area ~ The Pick me up oil makes me feel less lethargic and helps balance my mood better ~ The hello cup is a menstrual cup- it does what they do lol depending on the amount I use either a med or large cup as they both fit but the volume is different. #endometriosis #endosisters #endo #chronicpain #endowarrior #invisableillness #endostrong #endometriosisawareness #health #womenshealth #periodproblems #journey #blogger #nzmade #natural #healing #essentialoils #crueltyfree #supportsmallbusiness
This picture sums up how my arms feel after my workout ☠ who knew 3lb weights could feel so heavy!?! Don't believe me? I'm more than willing to send you a link so you can try it for yourself!
Contentment: Something I’m not good at, don’t know if it’s nature or nurture with me but always been very competitive and now learning I’m not who I was and can’t do what I use to. That’s one of the hardest things to get through my thick skull lol. Like big time. Don’t tell me I can’t or shouldn’t or won’t. But now I have to behave lol. I hate it. I can handle the pain and stuff but not being able to run or lift my ass off sucks. Im learning to be happy with what I do and content too. Still don’t like it but that’s life :) im learning so much. We have to make the most of this life. Sending much love to U all. #yournotalone #staystrong #invisableillness #livelovelearn #livelovelaugh #psoriasis #psawarrior #psoriasisawareness #arthritisawareness #arthritissucks #arthritis
The countdown is on folks! Only 23 Days left until the Mississauga Walk for Lupus! Last year my team and myself raised $7000.00, thanks to everyones donations. I would like to reach that goal again, but I need your help. To make a donation, visit the link in my bio, search my name, Nat Samaroo so you can sponsor me for the walk directly. I am also collecting cash and cheque donations if you cannot manage to donate online, just send me a private message. If you would like to join and walk with Me and my team, Team Nat, you can register online, it's easy to sign up! If you would like a walk t-shirt to wear the day of, it will be a minimum of a $10 donation. There is a Barbecue afterwards, along with a raffle, as well as a bake sale. I will also be selling various Purple Accessories for the walk, so I will fill all if your purple needs for the day. There will be activities to keep the little ones occupied, so bring the whole family. *Please note, there will be a small charge for food, nothing too crazy, but it is all for a good cause! *All proceeds from this day will go to Lupus Ontario for Lupus research. #lupus #lupusawareness #walkforlupus #walkforlupusontario #walkforlupusontario2018 #mississauga #mississaugawalkforlupusontario2018 #livinglupie #invisableillness #chronicillness #sle #nephritis #findacureforlupus
As a lot of my friends and family know I had a really tough time at the beginning of the year with my mental health, I completely broke down and was a mess. I now see the bright side of it as I work at an incredible salon with an amazing woman I have my amazing clients at home and I am smashing it at the moment I have picked myself up and turned it around completely, I had weeks that I couldn’t even get out of bed. I just want to say thank you to everyone who has supported me through the good and the bad. YOU ARE ALL AMAZING!!!! @ellecoate_elixir @amanimama @annabelle.gp #hardworkpaysoffs #canberraeyelashextensions #workyourassoff #beautytherapycanberra #canberra #mentalillnessawareness #invisableillness #itsokaynottobeokay #anxiety #mentalhealth #blacklabelbeauty #ilovemyjob
An unfinished work of art 🥄🦓🥄🦓🥄🦓
😊 ~ you’ve always come out stronger~ • • #chronicillness #invisableillness
I read something in an ADHD group on Facebook that a parent overheard another parent saying to her child "don't be friends with anyone who takes medicine". . For the longest time my husband and I fought against putting Chloe on medicine for her ADHD. Do I want her off of them...YES! . Is she a bad person or child because she is on them? NO! . But even if I didn't have a child on medicine, I would never say to either of my children..."don't be friends with anyone on medicine". . It's true that parents raise their kids to be the way they are. . Hate is learned! . . . . . #adhd #adhddiet #adhdlife #adhdkids #adhdkids #adhdtips #adhdproblems #adhdawareness #adhdparenting #adhdmom #adhdsupport #adhdprobs #adhdkid #adhdisreal #ahdhbrain #invisableillness #mentalhealth #mentalillness #adhdmeds #mentalhealthmeds #adhdnation #hyperactive #behavioralhealth #behavior #parenting #raisethemright #raisethemkind
hey, I'M BACK with my gorgeous dog Lilly!! how are you all doing? I'm soo sorry it's been so long since I've posted on here but I promise you I'm planning LOADS of interesting posts! I just wanted to know what posts you would like to see? I'm thinking of doing like a post every week about an important topic, for example: vaccines, suicide, feminism, body confidence, equality & stuff like that. is that something you would be interested in? if so what other topics would you like me to discuss? I'll also obviously be posting my usual stuff about my animals (of course hahah!), general updates, physical health, mental health, my medications, other things that helps me, my tubes & what they're for, awareness posts and any other stuff I feel like talking about. so if you have any ideas of what posts you'd like to see from me, please do let me know, I love & appreciate your opinion ALWAYS! thank you for all the support you have continued to give me over the years ❤️ #lillytxm p.s - yes I do have red hair!! I dyed it lol x
Tray tables and seat backs in the upright and locked position and service dog stowed under the seat in front of you. 😂 We made it safely to Jersey and Luna was amazing on her third flight! We sat next to a woman who loved her, she was so impressed with her behavior, but she was also very respectful of her and her job so at the end of the flight while we were waiting to deplane I let Lu interact with her as a reward for being so good and to help make this woman’s day! #servicedog #psychiatricservicedog #medicalalert #medicalalertdog #alertdog #responsedog #tasktrained #ownertrained #workingdog #workingk9 #bipolardisorder #anxiety #panicattack #chronicillness #invisableillness #mentalillness #diasability #disabled #invisabledisability #spoonie #dog #dogtraining #collie #roughcollie
Finally after a long struggle I graduated as an Adult Nurse with First class honours! A long mental & physical battle, constantly told I should stop again or 'rethink' it due to my Ehlers Danlos Syndrome. But it's done! @wartinmestgate_ bought some cute zebras (the mascot) along to the ceremony! #UEAGrad2018 #nursingdegree #firstclass #againsttheodds #determination #ehlersdanlossyndrome #eds #chronicpain #chronicfatigue #chronicillness #invisableillness #neurosurgerynurse #graduation #ncfc #norwichcityfootballclub #zebra #zebrastrong #ohuea
Thinking of this beautiful, quiet, breezy dinner out on the water. The rest of the evening was a memory of hilariousness to never be forgotten. I don’t drink wine often as I know it’s a trigger for #migraine . But I did ok and hit Yoga next day. #gome #carpediem #bettyandwilma #mothersanddaughters #roadtrip #ftlauderdale #memories #love #yoga #chronicillness #invisableillness #migraineawareness #plantbased #medicalmedium @shellyjoines
"Tell the story of the mountain you climb. Your words could become a page of someone else's survival guide." . What powerful words! . This is why I actually opened this account. . I'm going to be honest with you all... I had a hardest time opening this account. I'm extreamly shy and thought to myself who would want to read what I have to say anyhow? I dont know what I am doing 🤷‍♀️ Lol! . Then I realized neither does anybody else really. Were all in this together trying to figure this chronic illness shit out! . Sharing our journeys and experiences in hope to help not only ourselves, but another lost soul out there. . So here I am sharing my mountain that I am trying to climb aka my healing journey ♡ #dontgiveup . As always much L♡VE to everyone in there healing journeys! ♡ #healingtakestime
Some #throwbackthursday #familyphoto of me when i was a #littlegirl the one in the corner is myself and my mam she means the world to me xxx Love photos a snap in time a moment to keep forever. #familyiseverything #familyislove #family #welshfamily #celticfamily #irishfamily #painthroughtheyears #chronicpain #invisableillness #photography #cornwall #fibromyalgia #cfs #strokeawarness
Who here suffers with wrist pain? . . . Being diagnosed with carpal and cubital tunnel at the age of 19 was not a life goal of mine. I spent so many years thinking I was limited by the diagnosis and it wasn't until the last few years that I realized that I am so much more than that label. . . . Yes, they're going to be days that I am in pain and I don't want to exercise but in all honesty that is an excuse. Because even if my wrist or elbows are in pain I can still go for a walk and I can still do so many things. And while my right wrist is really tight and clunky right now, getting on my mat and stretching it out and breathing into the pain was exactly what my body needed. . . . I am tired of a label telling me what I can and cannot do. That doesn't mean I'm going to be unsafe but it does mean I'm going to live my life to the fullest! Who's with me? . . . Thank you @beachyogagirl for inspiring me to move through my pain and for creating yoga practices like this wrist warm-up. You have been a ray of Hope on the days that my pain says no and I hope someday to be that ray of hope to someone else ❤ . . . . . . . #carpaltunnel #cubitaltunnel #chronicpain #invisableillness #fitteacher #doyogarunfaster #yogacommunity #bestill #stretchitout #TeamInspireJoy
It was quite an eventful evening... and or course it had to be my middle finger 😉 I started preparing my dinner at 4:00 as usual and about 5 minutes later my mom hears a yelp/gasp and knows something must be going on. I was cutting a cantaloupe and had slipped and cut my middle finger full force. When she came into the kitchen I was standing over the sink and pinching off the blood to my finger. After she saw it and it was bleeding all over (I let go so she could see it) she drove me over to urgent care. Usually there is a really long wait but it was almost empty tonight. I got in, got weights, my blood pressure and all that stuff. (I must say places should have a cuff between baby and the typical adult one because that one makes my arm have bruises - this time it looks like an ❗️) The doctor came in and looked at it We informed her of my EDS and she said she had never heard of it. She left to get stuff to clean it out (and I think she looked EDS up, which I really appreciate because usually doctors who you are going to see only once don’t know what it is and don’t even take the time to look). When she started cleaning the blood started rushing out and I got a bit faint so I laid down before I fainted 👍. After the cleaning she tried pressure for a few minutes to stop the bleeding but there was no change. She then grade a numbing agent which is also a type of vasoconstrictor in hope that it would stop the bleeding so it could be stitched. When she came back after a few minutes the vasoconstriction had slowed the bleeding but not stoped it. She said that it was okay because she she didn’t want to stitch it because of keloid scaring. So then she used steri strips reinforced by glue to close it up. And now no water on that finger for at least 8 days or until the strips fall off. (Typically I think it is 4-6 days but she said 8 to allow it to heal - this and the steri and glue instead of stitches makes me thing she quickly researched it) Tomorrow is GI and Infectious Disease so 🤞that tomorrow we find a plan for my fever and my stomach.
Raw feeding? 🍗🥓🥩 When I first saw dogs eating raw meat I was completely disgusted, and confused. How could this be sanitary? How could this be healthy? Well after a ton of research, I’ve decided to put Ellie on a raw fed diet for half of meals. The main reason I’ve decided to make this change is Ellie’s allergies. For weeks now she has been licking her paws, sneezing, rubbing her nose, and overall just scratching her body. After trailing several different kibbles, I was looking for other options and a raw diet is one that has helped a lot of dogs with allergies. For a lot of reasons (time, energy, space, etc.), I will only be feeding her raw in the evenings. While I am continuing to learn, I am slowly transitioning her to raw food by adding extras to her kibble. This is something you can do with your dogs or cats too! Not all people can or want to feed raw, which is completely okay! But, you can also add extras to your pets food to increase the nutrients. When kibble is made, it is cooked under large amounts of heat which decreases the nutrients. What’s in her bowl? Blueberries, kefir cubes, quail egg and smelt! Blueberries add antioxidants as well as vitamin C and fiber. The little balls are homemade probiotic treats made with banana, peanut butter and kefir (the recipe is in my highlights!). Quail eggs are a complete source of amino acids and add unprocessed animal protein. Raw smelt adds vitamin B6 & 12, potassium and omega 3 (be cautious not to feed your dog smelt in bulk as it contains Thiaminase which can cause a vitamin B deficiency). As you can tell, Ellie is super excited to eat her meals, way more before on just kibble. I’m so excited to see the other health benefits that a raw diet can help with! Do you feed or supplement raw foods? (Please check with your vet before making any dietary changes) 🐶 • • • • • #spoonie #spooniestrong #invisableillness #butyoudontlooksick #disabled #disabledandcute #chronicillness #chronicillnesswarrior #mcad #mcas #mastcellactivationdisorder #cfs #fibromyalgia #eds #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #rawdogfood #rawfeeding
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