#mctd

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Important reminder 💛 • 📷: @my_vision_photography #chronicloveclub
It truly warms my heart to be apart of such an amazing community . . . Spinning alongside these beauties. @elevatedblends & @gratitudegoddess33. . . . #dragonstaff #firefans #propmanipulation #hooplah #hoopersofinstagram #flow #flowarts #performingarts #fire #dance #movement #community #mctd #autoimmunewarrior #love #light
Alright. Today was, hands down, one of the best days I’ve had in a while and the happiest I’ve felt in a while. I made my way down to Zoo Culture and was able to get a 250# deadlift PR, which is 15# above my prior one (235#). Bradley Martyn’s dog Bam hung out with me and gave me some encouraging licks before this attempt, which was a hardcore game changer and honestly the reason I probably was able to make such significant gains! • I also got a bench PR of 95#, which I didn’t film because I thought I would be able to hit 100#. But hey, a PR is a PR and I got two of them!! • So many changes are happening in my life right now that it’s been really hard for me not to give in to my neurotic, anxious tendencies. Lifting and getting into that #thicccnessculture has been so crucial in helping me with that, and, along with some other measures, I feel like I’m taking the right steps that I need to get back on track in both mind and body. • #healthinstagram #fitstagram #autoimmune #mctd #healthjourney #fitnessjourney #lifestylechange #antiinflammatory #health #fitness #athletictraining #athletictrainer #strengthandconditioning #cscs #atc #dualcertified #zooculture #bradleymartyn #bammartyn #deadlift #pr #1rm #benchpress #250 #95
-WAKE UP Call with @walgreens #☎️ || (#sponsored ) Most of you don't know this, but for years I have struggled with a chronic illness. I've spent a great amount of time in doctors offices having testing done and taken many trips out of state to get a diagnosis. I was eventually labeled with Mixed Connective Tissue Disorder. Unfortunately, autoimmune disorders are sneaky and not the easiest to name. In MCTD, as in other autoimmune disorders, your immune system — responsible for fighting off disease — mistakenly attacks healthy cells. It is considered an overlap disease and is used by some doctors to describe a disorder characterized by features of systemic lupus erythematosus, systemic sclerosis, and polymyositis. -My chronic illness has caused my body to reject certain foods, medications and just shut down on me at times. There were days that I couldn't grip a pencil to write or even walk. I've learned that one of the best things I did was to adopt a positive outlook on the whole situation. When I was constantly trying to figure out what was wrong with me (and how to fix it) the stress just escalated my problems. The other key helpful factor was to work with my doctors on the proper diet, exercise and medications to help make me well. - As a soon-to-be Mommy of 3 it is so very important that I take care of myself in order to properly take care of my babes! This is why I am so excited to partner with @walgreens in their mission to stress the importance of drug adherence & following what your doctor prescribes! Did you know that over 50% of Americans do not take their medications properly? No matter how busy you are, Walgreens services can help you stay on top of your medications and the #walgreens 24/7 Pharmacy Chat is always available to help! Download the app and help spread the word to loved ones!
I’ve learned this lesson many times in life. It takes so much more energy to stuff or avoid emotions, and the emotional energy is stored in our bodies. I saw it with my massage therapy clients, and I’ve experienced it personally. Welcome the emotion, give it space, lean into it because buried emotions never die. • ACCESSIBILITY: Image is a quote by Dr. Toni Bernhard that reads: The good thing about the blues is that, like the weather, they blow in and blow out. They arise in the mind, stay awhile, and then pass. I’ve learned not to try and force them away because that almost always intensifies them. Instead, I like to disarm their sting by greeting them with friendliness, even though they’re uninvited guests. I’ll say something like, “I know you, blues. Come to visit again, have you?” Then I just wait them out, perhaps by cuddling my dog or making my favorite hot drink or watching a movie on TV. #ChronicIllness #NewMeds #SideEffects #Pain #Blues #UCTD #MCTD
Yes, it says 1 mile. Was going to try to do the #3milesfor30days challenge but after I started I realized that wasn’t going to happen. My illness is really affecting my legs. I started lifting again 3 weeks ago and was finally feeling like I had gotten my strength back in my muscles but I guess I was wrong. I will keep going and hopefully get back to baseline. #fitandhealthy #healthy #healthylifestyle #mctd #getlean #fitchick #weightloss #weightlossmotivation #workout #1milefor30days #getripped #bikiniready #ssssc #systemicsclerosis #chronicillness #cml #dontgiveup #systemicsclerosissinescleraderma #walk #run #crawlifyouhaveto #justdoit
Breakfast on the go. Cup cakes smuttered in syrup. ***Using Gluten free pancake mix and a little brown sugar. #lupus #mctd #rheumatoidarthritis #glutenfree #autoimmune
Mental health awareness week might have been last week but this message is so important for everyday for everyone. Women, men, teenagers, children. As a fan I’m excited for love island to start but I know im going to be super jealous of all the girls with stupidly amazing bodies. I’d kill for a body like that but I know for me it’s not going to happen. 4 years ago today I was in hospital spewing my guts up because I was so ill with all the medication the hospital were giving me to try and get me better when they had no clue what was wrong with me when I should have been a bridesmaid for my cousins wedding. I was gutted I missed it but later that day I finally had a diagnosis but with this diagnosis came steroids in order to get me better. For 10 months I was on steroids to which I eventually had to be weaned off but with this I gained over three stone in weight and I felt at my lowest. It affected me mentally and not many people know that. My anxiety went through the roof to the extent I only left the house to go to work. I didn’t want to socialise feeling that I would be the ‘fat’ one of the group. I didn’t feel comfortable in my own skin and to this day I’m still struggling to get the weight off. Yes I’m much slimmer than what I was when I was on those steroids but at times I’m still not 100% happy with how I look. I’ve always struggled with my weight but now instead of hating my big bum and thighs, I embrace my curves and it’s simple. LIKE IT OR LUMP IT! I’m always going to be curvy and I’d rather embrace my curves than set myself a goal like looking like one of those girls off love island which would look so ridiculous on me. Too many peoples mental health is affected because of body image. The expectations for a ‘perfect’ body is too high. Love the skin that you are in and fuck anyone who judges you because you’re not some size 4 model. Embrace your curves and love yourself 💕 #bodyimage #mentalhealth #mystory #4years #mctd #reminiscing #onwardsandupwards
Lately the beasts are winning. The pain is debilitating. The fatigue is insurmountable. The anxiety is suffocating. I don't have the strength right now to cling to hope. I don't have the strength right now to cling to joy. Each sunrise brings the hope of a new day and then the pain returns. Each sunset brings the promise of rest and then I lay awake at night tossing and turning from anxiety, pain, and insomnia. So I take a breath and remember grief is holy and grief is to be felt unashamed. I've lost this battle, but I still plan on winning the war.
Watch "Exercise as a Treatment for Myositis" video session by Helene Alexanderson, associate professor, PhD, physical therapist at the Karolinska University Hospital and Karolinska Institutet in Stockholm Sweden. 👉Find the video and exercise programs for #polymyositis and #dermatomyositis , along with a separate program for inclusion body myositis patients, at http://bit.ly/myositis-exercise #exercise #inclusionbodymyositis #necrotizingmyopathy #raredisease #autoimmune #jdm #juvenilemyositis #inflammatorymyopathy #myositis #health #nonprofit #MSU #antisynthetasesyndrome #mctd #muscledisease
I wanted to share a proud Mama moment. My baby boy has graduated! I'm so very proud of course...now on to bigger and brighter things. Congratulations my son, I love you! #mirrorstruthbyjen #younique #bossbabe #makeup #cosmetics #skincare #fragrance #premium #crueltyfree #empoweringwomen #validate #uplift #style #fashion #mermaids #autoimmunedisease #mctd #scleroderma #sjogrens #polymyositis #raynauds #fibromyalgia #ptsd
I used to take mirror selfies all the time. This is the first one I've been brave enough to take since I started using a wheelchair. It's not pretty -- this bathroom is in a church and it's straight out of the 80's, lol -- but I felt pretty last night and I got brave and took the shot and HERE IT IS. :D . . . . . #chronicillness #pots #eds #hashimotosdisease #mctd #ambulatorywheelchairusersexist #babewithamobilityaid #wheelchair #uglybathroom
here's a photo from a week ago to say that i am alive and i am struggling to deal with grief and the effect the mental stress of greiving a loved one is having on my body ( so much #PEM 🙄) but im doin' my best to push forward and enjoy the little things like golden hour and authentic tacos . . . . . . . . . . . . . . . . . . . . . . . #update #healthupdate #fibromyalgia #rhuematoidarthritis #cfs #sjogrens #mctd #personal #spoonie #authenticity #greif #postexertionalmalaise #pem #chronicpain #chronicfatigue #chronicillness #florida #goldenhour #tacos
I haven’t been to gym since last week. I can’t go today (Chicklet emergency) and I can’t go on Friday (have to help my mother). Chances of me going tomorrow? Slim to none. I was so damn proud of myself for going back to gym. For swallowing the pain. For being the unfit, overweight, disabled one in the class. The one who can’t do the exercises properly...but turns up anyway. the one who really doesn’t look like they belong there. It took a whole lot. And I was really damn proud. I posted about it because I was proud of myself. And I wanted to show what I was doing, because lots of people want to some form of exercise but don’t know what to do, what’s safe, or where to even start looking. #ra #mctd #chronicillness #chronicpain #hiit #spinclass
Dinner - family of five Meat dinner once or twice a week Chicken and pasta #lupus #mctd #glutenfree #rheumatoidarthritis I can't let this disease win. I have a family to live for. And I'm not going down whit out a fight 💪
Ignore my goof in the middle lol I got stabbed many times today for an IV #lupus #lupusawareness #mctd #chronicillness #chronicillnesswarriors #spoonie #invisibleillness #diaryofalupiegirl
What was that....
Who gets physical symptoms when the weather is cray? 💁🏼‍♀️ A few weeks ago I started keeping gluten free limited sugar cereal on hand. Usually I try to go grain free, however, when I am nauseous and the weather is not stable like it is now and has been for a few days. Gluten free cereal is a great thing even though it looks nice today, I feel more storms coming tomorrow. These are cheetah chomps from Target, organic, gluten free, and really good with almond milk. Does anyone else have a staple food they turn to when weather is making them feel gross? #glutenfree #cereal #almondmilk #staplefood #healthy #spoonie #connectivetissuedisease #yum #lupus #mctd #organic
What path are you starting today? #camping #backpacking #hiking #outdoors #mctd #igdaily #igers #medical
I have to say that when everyone is having Jimmy John's at work my gluten free lunch is best! 😋😋 #lupus #mctd #rheumatoidarthritis #autoimmune #betterfoodchoices
TECHNIQUE TUESDAY For Lush Lashes To get a better curl, use the three-pump system with your lash curler. Start with a squeeze at the base of the lashes, then a squeeze in the middle and end with a squeeze at the tips of your lashes. #mirrorstruthbyjen #younique #bossbabe #makeup #cosmetics #skincare #fragrance #premium #crueltyfree #empoweringwomen #validate #uplift #style #fashion #mermaids #autoimmunedisease #mctd #scleroderma #sjogrens #polymyositis #raynauds #fibromyalgia #ptsd
Well body, it's been a good run. Nice to see you fucking suck again. 4 days of increasing Kidney pain, got to much to handle. Right now, we know I have a severe Kidney Infection (duh) and a swollen spleen. So for safe measures, doctor did a urine & two blood cultures, in addition to basic urine and blood work. See, Lupus and immunosuppressants are confusing to say the least, you are always playing Russian routlette. Iummunosupprants leave your body basically a garbage can to catch anything, including infections you need to do to labs to confirm, but they also mask those results, so in come those awesome cultures. Except they can't be done in the same poke. So, double poke, plus bad veins, equal definitely more than two pokes. So we wait now, luckly everything was sent STAT, so sooner than later for results. The good thing is, they don't think it's my Nephritis. The bad is, now I need to find out why this is Kidney Infection 5 of the year and why my spleen is swollen, or what fucking bacteria is floating around my body causing this all, this time. #mylife #youdontwantit #sle #lupus #mctd #chronickidneydisease #lupusnephritis #lifewithanautoimmunedisease #lifewithnoimmunesystem #iwillnotquit #butfuckthissucks #bloodwork #donttakeallmyblood #givemeanswers #thistooshallpass
Read about "The pain med taper debacle" The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain. Included in this article is a survey for those with #myositis . We ask all myositis patients to please take this survey, whether you have #pain or not. 👉 Read post and find survey link at http://bit.ly/myositis-pain-taper In light of this crisis for those living with myositis, MSU is leading an initial survey to help determine if a larger study about Myositis, Pain, and Opioids is warranted. #inflammatorymyopathy #raredisease #autoimmunedisease #empowering #health #nonprofit #MSU #polymyositis #dermatomyositis #inclusionbodymyositis #sibm #necrotizingmyopathy #necrotizingautoimmunemyopathy #IMNM #jdm #juvenilemyositis #amyopathicdermatomyositis #CDC #chronicpain #autoimmune #antisynthetase #antisynthetasesyndrome #mctd
Today I met with a psychologist for one to one counseling - the weight of my health, my sons mental health, and life was becoming too heavy. There is nothing wrong with seeking help when you feel as though your mental health is decreasing. May is Mental Health Awareness Month and I believe in therapies like counseling- individual, group, couples, family, child, and others. I feel like this is going to be a good thing for myself and my family. I'm excited! Thankful for therapists and counseling and will keep y'all updated on treatment. #mentalhealthawareness #mentalhealthawarenessmonth #mentalhealth #mentalhealthmonth #counseling #therapy #chronipain #chronicfatigue #depression #anxiety #lupusawareness #lupuslife #lupus #fibromyalgia #fibromyalgiaawareness #mctd #mixedconnectivetissuedisease #mixedconnectivetissuediseaseawareness #pain #painmanagement #beingSICKsucks #jesusDOESNT
. 1分1秒生きたいと思う人の気持ちとかわかんないのかな? 日本の財政を背負ってる人だけど、もう少し思いやりのある言葉でも良いのではないだろうか? 明日は我が身なのに… 自分がそうなったらきっと何事もむしろそんな発言すらなかったかのようにする人が多いのも残念ながらこの国のあるある。 #膠原病 #こうげんびょうと読みます #混合性結合組織病 #mctd #線維筋痛症 #負けるな自分 #病は気から #ヘルプマーク #目に見えない #戦う仲間
Knowing about the sleeping autoimmune disease that was starting to surface 3 years ago when I was having crazy symptoms and no one could think to connect all the different random dots makes looking at my timehop weird. On one hand I like seeing my pictures from 4 years ago and earlier because I was literally a different person. On another hand its heartbreaking to so clearly be able to see all the ways the various illnesses snuck up on me. But at the same time, I see how sick I was last year at this time- unable to even sit up without fatigue overwhelming me... A 7 month flare that led to my diagnosis. It led to me begging for help. Begging for tests. Bloodwork. Anything really. I KNEW there was something so completly wrong. Smh. Listen to your bodies yall. You know it best. If something is wrong scream it from the rooftops until someone listens. #mctd #mixedconnectivetissuedisease #connectivetissuedisease #autoimmunedisease #autoimmuneillness
#サザン ヤフオクドーム翌日 #20歳の誕生日祝い 長崎→福岡へ 2日目は、 福岡に一人暮らしして 1年の娘 20歳のお祝いランチ会🥂 名前の由来そのままに 育ってくれている娘😭 20年、なんて早さ! 母もますます きらめこう✨笑 #一緒にいるといつも楽しい ❤️ #有田焼の器 で前菜! #女ライダー #主婦ライダー #YAMAHA #DS250 #MCTD
So many worries... [Yellow background with black text says my partner is getting surgery tomorrow and being disabled means I’m worried about 1) It going well 2) my ability to be a caretaker 3) all of my worrying causing a flare up] #chronicillness #invisibledisability #spoonie #spoonieproblems #autoimmunedisease #chronicfatigue #fibromyalgia #uctd #mctd #lupus #rheumatoidarthritis #lgbt #lgbtq #intersectionality #chronicpain
Did this thing today where I poisoned myself with protein from animal urine, and man made chemicals, puked my brains out and sweat profusely while they gave me drugs so it wouldn't kill me, by closing my airway or paralysis of the heart. It's called chemotherapy, you can't hold anything down or taste anything besides a metal/bloody copper taste so dont worry about the slab of deli meat they put on 2 pieces of bread, and your in a room with others so you are the 2 star entertainment. I 15/10 dont recommend. This has been a PSA from yours truly. #chemotherapy #mctd #killinit
Come checkout our new video!!! MCTDs KeystoneCleanUp https://youtu.be/eNiLm6Ij1nU #camping #hiking #backpacking #outdoors #mctd #medical #leavenotrace
It’s my 1 year Pilates anniversary! I signed up for a 3-month commitment and surpassed that. Pilates has helped change my body and mind. It is currently helping me maintain my strength as I was diagnosed a couple months ago with an autoimmune disease. Pilates will continue to be a part of my life. I’m so glad it found me. . . . . . #pilatesunicorn #unicorn #pilates #clubpilates #cpnorthcenter #clubpilatesnorthcenter #mindbodyconnection #health #exercise #autoimmunedisease #livingwithmctd #mixedconnectivetissuedisease #mctd #autoimmunediseaseawareness #mctdawareness #butyoudontlooksick #chicago #northcenter #northcenterchicago
The strongest people are not those who show strength in front of us but those who win battles we know nothing about ... 💕 ...When I relinquished control it all started to fall together. I simply began to understand the fight was never intended for me to take on alone it was simply another opportunity for God to reveal his power ... 💞 #lupusawarenessmonth #autoimmuneawareness #mctd #mctdsupport #monday #mondaymotivation #inspiration #autoimmunewarrior #godfightsmybattles #strengthfromwithin #hope #courage #god #peace #strength #holistichealing #healed #whole #able #lovingmethroughthestorm #spirtualjourney #healthjourney #coach #lifecoach #mom #consultant #advocate
I have a wide variety of illnesses. I'm on a plethora of medications prescribed by various doctor's. Pain follows me everywhere. I found an alternative route when my flares are out of control. Thank you @the.dab.haus #cbd #cbdlife #cbdtincture #cbdoil #naturalhealing #godsplant #cbdhealth #mirrorstruthbyjen #younique #bossbabe #makeup #cosmetics #skincare #fragrance #premium #crueltyfree #empoweringwomen #validate #uplift #style #fashion #mermaids #autoimmunedisease #mctd #scleroderma #sjogrens #polymyositis #raynauds #fibromyalgia #ptsd
Get ready!! 4D is coming back in stock soon!! 😍 Pre-order 👏🏻 yours 👏🏻 NOW 👏🏻 so you are sure to have your mascara in THIS shipment; otherwise you'll have to wait until the NEXT shipment! Inbox me or go to www.mirrorstruthbyjen.com to order 💗 #mirrorstruthbyjen #younique #bossbabe #makeup #cosmetics #skincare #fragrance #premium #crueltyfree #empoweringwomen #validate #uplift #style #fashion #mermaids #autoimmunedisease #mctd #scleroderma #sjogrens #polymyositis #raynauds #fibromyalgia #ptsd
The sun is shining and we need to sparkle in the sunshine! I use benevolent. Let me help you get your summer highlighter! www.mirrorstruthbyjen.com #mirrorstruthbyjen #younique #bossbabe #makeup #cosmetics #skincare #fragrance #premium #crueltyfree #empoweringwomen #validate #uplift #style #fashion #mermaids #autoimmunedisease #mctd #scleroderma #sjogrens #polymyositis #raynauds #fibromyalgia #ptsd
#サザン2019ヤフオクドーム #サザン40周年 まさかの 23回目結婚記念サプライズ。。 #サザンオールスターズ しかも 初日のアリーナ席10列目 奇跡が続き過ぎてる。。。 ライブ後は人生初の 牛タン刺身、、最高✨ #美味しいビール #日本酒は辛口好み #たんか 本店 #結婚記念日 交際30周年記念だったのねー 元気に動ける幸せ ありがとう😊 #膠原病 #MCTD #女ライダー #主婦ライダー #YAMAHA #DS250 #サザンオールスターズライブツアー2019
Gluten free vegan meals Mexican rice & ground vegan tacos #lupus #mctd #rheumatoidarthritis #mylifewithlupus
It took us 2 days to get less than 2km but OMG it was so worth it!!! Muffins, cakes, donuts, squares, scones and everything is:⁣ ⁣ Gluten-free⁣ Plant-based⁣ Naturally Sweetened ⁣ ⁣ I LOVE that the kids can eat whatever they want and I don’t have to say no. I love that I can eat whatever I want without thinking.⁣ ⁣ Today in my Stories I’m talking about my Crohn’s journey, because it’s #worldibdday - and giving up gluten and going plant-based is a huge part of how I manage my health. ⁣ ⁣ What’s your IBD story? Do you have Crohns or Colitis? Do you know or love someone with IBD?⁣ ⁣ Let me know! 😘💗✨⁣
Celebrated one week until Gabby is one by going to The Children's Museum for her first time!! She absolutely lovedddd it and loved all of the kids that were there. 😍 Can't believe there's only 7 days left... 😲 #11monthsold #baby #love #girlmom #babygirl #invisibleillness #fighter #chronicillnessfighter #autoimmunedisease #outofspoons #butyoudontlooksick #nomorespoons #beyou #beyourself #mctd #gastroparesis #spoonie #spoonielife #GabbyMarieSerne #childrensmuseum #nolongerababy
Well full disclosure, why hide it. I was on my way out the door to ACEN and then something happened that cannot be helped even with my wheelchair or Butrans patch. Only thing that helps due to the nature of it are meds that take me out of commission for a full day. I looked good though...new wig and hat for my Male Ashe. I'm so sorry @ those who wanted to see me/me and my spouse. Thanks @purplebastard_ for putting up with this shit and thanks for taking care of me a-fucking-gain. Hoping the rest of our plans this year work out #overwatch #cosplay #overwatch #overwatchcosplay #ashe #ashe #diy3dprinter #workinprogress #wip #c2e2 #acen #outofcosplay #cosplayer #3Dprinter #3Dprint #fabrication #plastidip #paint #guns #armor #props #transcosplayer #poccosplayer #mixedcosplayer #asheoverwatch #genderbendcosplay #chronicillness #chronicpain #mctd
Tried on every piece of clothing in my closet tonight. Left the house wearing the same thing I’ve worn every day this week. 🤷🏼‍♀️😂 But here are the 3 most important words of this post: LEFT. THE. HOUSE. Yesssssss. I felt so happy to be out! Hope you are all feeling love from family and friends. Happy Saturday, Lovelies! 💗💗💗
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