Are you sitting quietly? I’m going to read you a story 🤗🎀
I am so flipping proud of this kid!!!
It brings me to tears thinking how far he's come!!!! He is the strongest, bravest, and is so so determined he is going to do so many great things!
Not only am I beaming with pride because I know how hard he works to be able to do the simple things that come naturally to his peers...
But also because it wasn't that long ago last year that someone didn't see him, didn't see his worth, didn't see what he was capable of. They advocated against him, they didn't know better, they didn't understand what FASD was, they didn't understand how trauma still lingers in his body. Now they see him, they value him, and understand more then they did before.
I am so proud of you!
You did it!
Just some photos of the kids this week. The yellow lab is one of our three labs- the other two are black labs. We also have a geriatric chihuahua with attitude. And Breanna has a kitty. Sometimes, it feels like a zoo around here. Poopsie (in the photos) is deceptively mellow here- normally he is a clumsy, hyper (but loving) dog. All our animals are great with the kids, enduring overzealous hugs and the like. The other dogs are similar, but Poopsie is definitely the winner in the crazy, ill mannered sense. Kind of like our life - it can seem like a nuthouse around here at times, but at the end of the day, it all works out. Hannah and Max make me step back and see that none of that matters much in the big scheme of things. They make us live more in the moment and just deal with the messes when they come our way. They help us see the beauty in the ordinary and to find happiness in even the little things. Some days, they show us just how challenging parenting in general and special needs parenting more specifically can be. When that happens- and in our house, crazy happens🤣- taking a step back and putting it in perspective is the goal. In the end, we aren’t going to remember those “perfect” days. We will remember the days where everything went a little nuts, and smile💕
#downsyndromelife #specialneedsparenting #justbereal #downsyndrome #downsyndromeadoption #loveourlabs #geriatricchihuahuas #notbroken #morealikethandifferent #beyourself #hannahandmax
Toy BAHAs for you favorite doll or Elf on the shelf.
She said #whatcouldhappen
when she started to get stage fright. This kid. She has Down syndrome, a hearing impairment and is blind in one eye and without glasses, can see clearly within 3 feet with her good eye, just finished her dress rehearsal for The Nutcracker at Phoenix Symphony Hall. This is the real deal and she did it! With no glasses! What an amazing production! If you get a chance, go to see it! I ❤️ Ballet Arizona! #shethoughtshecouldsoshedid
One of my moms favorite hashtags is #morealikethandifferent
and on most days that’s 100% correct. Yesterday though, was one of those days that a lot of people will never experience. A full day at the children’s hospital- visiting specialist after specialist for a yearly exam....and it was SO MUCH FUN!!! 🤷🏻♀️🤷🏻♀️🤷🏻♀️ Didn’t used to be this way, but after 3 years, I think we are finally getting the hang of it!
After completely rocking this day, dancing my little heart out with the @sixersdunksquad
and the local news station, getting tons of compliments and high fives for my strength and new skills, getting a new doll with long beautiful hair (my fav), smoothies and treats, and a day with mom to myself...I’m feeling great! Take that, Down syndrome 👊👊👊
#sassyandstrong #theluckyfew #t21rocks #hospitaldaysarelong #allgoodtilnextyear
No photos, mom! I’m in pretty good spirits considering I have RSV, an ear infection, sinus infection, and pink eye all at the same time. Let’s hope these meds kick in and I am better in no time!
This is our “It’s only Wednesday” face! 😝
I don't know where he learned this, but this silly face is his go-to these days. The first time I made it back at him he cried from terror and nearly flipped out of the cart at Target as he tried to get away from me! Now it's funny all around...except when you're trying to discipline and he whips this out on ya #littleturd
We started the dreaded four month sleep regression during Thanksgiving week. Both of our kids had been great sleepers before this started. Greyson didn’t have a sleep regression— he sleeps like his Dad. You know how Dads sleep 😴? Quinn has slept through the night since before turning two months so I guess this is payback for the lack of sleepless nights we had in the beginning 🤦🏾♀️. In Quinn’s defense, we moved her to her own room, stopped swaddling her and removed her from her Dock-a-tot all around the same time. She probably thinks she’s sleeping in outer space—poor girl. Seems like some nights are better than others, she even made it through a few nights last week but this week has been brutal. If anyone is wondering what I want for Christmas, it’s uninterrupted sleep, I wear a size 8 hours.
Rumor has it that there is something strangely satisfying about seeing children’s nose being cleared of all the mucus so quickly 🤔😜 Talk about motherhood🤣 By the way let’s take a moment and appreciate the way Colt says ‘GO’ @downrightwonderful
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Don’t forget, by using the code NOSIBOO1 while purchasing on Amazon you get -$35 OFF, only until tomorrow, just use the link in our BIO and Go get your Nosiboo Pro! 🤩‼️🎁⭐️
Check out this awesome wheelchair attachment! This would be a sweet toy for anyone in a wheelchair. Tag someone who would love this! 🚘😎
It’s no secret that #OurStaffisWOW
. Their relentless efforts into seeing our individuals reach their potential, learn new skills, and live their best life is inspiring. This holiday season, we’ve competed in a bake off, an ugliest Christmas sweater competition, and a door decorating contest! Friendly competition never tasted or looked so good! We’ve created amazing memories! Congratulations to our winning programs: Art (door), Administration (sweaters), and Melissa B. + Suzi (bake-off) 💚
We've been quiet on here for the past few days. Had to take Hudson to the ER again during the night on Friday. Little buddy is okay now....but his continuous congestion has given him breathing difficulties. ⠀
It was our 2nd ER visit in 20 days for the same issue...so our ENT has agreed we need a much more aggressive treatment plan to help Hudson. Over the next few weeks, Hudson will meet with additional specialists and partake in studies to help us identify the best treatment options. Thankfully all of the congestion is in his throat and hasn't moved to his lungs - no pneumonia! Phew 🙏 ⠀
In the interim, you can find us in the bathroom sitting in the steam, taking elderberry supplements, sitting on the couch using a nebulizer, drinking lactose-free milk or diffusing essential oils. Hudson's pediatrician joked that I'm an organic respiratory therapist now. ⠀
Prayers are always welcomed for our little man! Thank you everyone for your love and support and checking in on us. #holdingmoonbeams
This photo was taken one year ago when my sweet baby was just one and a half months old. He was tucked into a onesie that was too big for him. Everything was too big for him! Now he is such a big boy, climbing on everything, trying out steps, getting into all the mischief he can find. In those days I prayed for him to make it to surgery and then make it past surgery. Everything was colored by the increasing struggle with his heart. It felt like such a mountain before us, such a challenge to scale. Now here we are on the other side, the scar on his chest serving as evidence of every difficult step he took to climb that mountain. I am so thankful to be on the other side, I am so thankful to watch him outgrow new cloths in a week! I am so thankful he has the strength to pull over our shoe rack. I am so thankful he has the energy to disobey me countless times by pulling himself up on the TV stand to play with the Play Station buttons. This little warrior has fought hard and with God’s grace he has overcome!
#theluckyfew #upsyndrome #nothingdownaboutit #downsyndrome #avsd #chd #atrioventricularseptaldefect #heartwarrior #joywarrior #specialneedsmom #savedownsyndrome #morealikethandifferent #zipperclub #openheartsurgery #momlife #inclusion #bekind #warrior
I've been doing a thing that I know I shouldn't, and I thought if I say it out loud here then other mamas that are doing it too, won't feel so alone.
My friend has a beautiful little girl, the same age as Kenzie who also has Down syndrome. She posts the most amazing videos of her daughter, and while we live across the country from each other, I can watch her little one grow and learn.
And lately, she's learning so much. More than Kenzie. She's signing words, and saying the word along with it. She's walking up stairs alone, she's drinking out of a cup... she's doing things that Kenzie is very far from doing. I've been comparing Kenzie and this little girl, I've been celebrating her victories and sinking with disappointment that my daughter isn't doing the same.
The thing is, I never compare Wally to any other kid. He does what he does, and it's never on a timeline.
But for some reason, it's not enough that most parents are cruelly told how limited life will be for someone with Down syndrome, we also feel an unreasonable amount of stress, anxiety and fear that those words might one day come true. So we push, and push and do everything we can to help our child achieve to the best of their ability - and if that ability doesn't match up with another child on the same path... well, it feels crushing. How unfair that we not only feel a desire to advocate and speak the wonders of our kiddos, we also feel the weight of expectations we see another child achieving. I've never felt that same heaviness of comparison for Wally that I do for Kenzie and her circle of peers.
Comparison truly is the thief of joy, so why am I stealing it from myself? Its a hard person to be - a special needs parent - and I don't feel the need to justify why. If you're reading this and you have a rockin'kiddo too, you know why. But I see you, and I see how hard that child of yours is working, how hard YOU are working. I needed a reminder today, and maybe you do too... no matter what stage your child is at, it's right where they are supposed to be ⭐️
For 24 hours, this game will be included for FREE with every order of $25 or more! The "Move With Me" spinners game usually costs $16.95, but today they are our gift to you! You will also get guaranteed delivery before Christmas in the U.S.! No promo code needed, and no need to put the game in your cart. It will be automatically included with every $25+ order! You may also still use the $10 holiday promo code on our website! Shop link in profile @specialneedsgames
Game details below! 🎄 Photo credits: @bekahbehnke @chosenforjoy @theautismcafe @lifewithmicah @amanda_booth @lilcocobea @sweet.on.sutton @mommytor_az @thebisants @kylieky23
This has been one of the most popular games our family has created. It is great for working on body parts, motor skills, language development, and following instructions in a FUN way! The "Move with Me" Spinners game!
This durable set comes with 2 different spinner wheels which include 20 body parts and movements, and countless combinations!
Start with one, then work up to using both. Begin by learning to identify each body part. Spin, then follow the prompt!
To work on following two-step instructions, spin both, then say, "Do this, THEN that."
Our family creates all games shown here. See them all in our online shop. Link in profile! 😊
@myhandsongames #myhandsongames #gamesforspecialneeds #specialneedsgames #downsyndrome #specialneeds #autism #handsonlearning #sensorytoys #slpeeps #specialneedsmom #sensoryplay
#downsyndromelove #occupationaltherapy #playtherapy #cerebralpalsy #adoption #learnthroughplay #autismmom #nothingdownaboutit #differentnotless
#iteachspecialed #hyperlexia #specialneedsadoption
Hudson and I have been pretty sick the past four days and this man has been taking care of us and bringing a smile to our faces. So thankful for this hubby of mine💛