#nothingdownaboutit

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Mia at just over 2 months old 😭 this actually doesn't seem real haha. Look at those skinny little legs! What I would do for a cuddle with tiny Mia, looking at this picture I can almost smell her little new smell that she had 😍
Om ni ser någon svischa förbi på Läjets gator så är det bara Noel som är ute och glider i sin nya BMW 😍🏎 Det bästa är att man kan spela sin favoritmusik i den också 🎼 #noelmeddetlillaxtra #downsyndrom #downsyndrome #t21 #nothingdownaboutit #downisup #intesåkonstigt #barnensdagväst #jollyroom
my favourite little people 👧🏻👶🏻 #littlebubs #upsyndrome #nothingdownaboutit
Barbröstad, rosett i håret och med en stövel så hjälper Juni pappa att gräva plats för sandlådan😂 ————————————————————————- : : : : : : : : : #letkidsbekids #kids #sweden #sverige #lek #girls @blaklader #family #vimedbarn #kaos #mom #toddler #theluckyfew #intesåkonstigt #downssyndrome #mama #t21rocks #levameddowns #nothingdownaboutit #summertime #family #skottkärra #allaslikavärde #youmatter #doityoureself #sandlåda #kreativakaos #letsgetdirty #dirt #boots #wheelbarrow #jollyroom ————————————————————————
And just like that I have a pre schooler! It’s Lucas last day EVER at nursery, I’m not sure my emotions are ready for this and I’m not sure me stress levels are ready for six week of three kids full time 😬 emotional day all round today #happyfriday
Her new uniform at new school. For us ; parents of a kid with down syndrome, it’s such a pride to see our special kid can attend a regular school. After observed, this girl ; who has sunshine in her eyes could join #stnicholas school and got the same treatment as the other kids. Yes, she is soooo happy. Look at that smile! 😘 • #lifeisbetterwithyou #beautifulgirl #downsyndromeawareness #upsyndrome #downsyndromecuteness #downsyndromerocks #trisomy21 #nothingdownaboutit #downrightperfect #theluckyfew #happygirl #happylife #downsyndromerock #kidsgram #downsyndrome #morealikethandifferent #wouldntchangeathing
Denna sommar kommer vi att minnas. Underbart väder och många dagar vid sjön. Badat nästan varje dag 😀🧜‍♀️ • This summer we will remember. Lovely weather and a lot of days by the lake. I have jumped in the water almost every day😀🧜‍♀️
Y’all,I gave birth to a bonafide nut. 🤣 This kid’s favorite place is Whataburger. Every time we pass a big orange W sign he asks for “real cheese.” Doesn’t matter what time of day; doesn’t matter if he just ate. So when I took him on a surprise lunch date this week, his joy and excitement were completely untamable. #wadebaby #nothingdownaboutit #theluckyfew #differentlyabled #fullycapable
These two crack me up! Finn needed to eat too so @mtowne112812 stepped in. I think we all had fun eating today. #liamodinmc #intensivefeedingtherapy #phoenixchildrenshospital #rockintheextrachromosome #nothingdownaboutit
Swimming with Reggie is one of my most favorite things to do 🏄🏼‍♀️🏊🏼‍♀️💦 #Swimming #HotSummer #NothingDownAboutIt ☀️🌈#DownWithReggie #SummerFun
Baby boy is finally big enough try to hold his own body temperature. So here we are with an open incubator, clothed and swaddled. So far so good! #nothingdownaboutit
I think one of the best things is looking down all the time and just saying I can’t believe that little human is mine. Ever since I was little I wondered what my children would like and couldn’t wait to be a mother! Now here I am with my little human and I’m mind blown how beautiful she is!😍
My little tough guy 💙 20 days ago you were having your fourth surgery and now you are rolling over and laughing like it was nothing 💪🏻 Never imagined I could have a son with such a big spirit. I admire you and I love you so much! It feels so good to be your mom 💙 . . . . #nothingdownaboutit #theluckyfew #changingfaceofbeauty #joyfulmamas #upsyndrome #downsyndromeawareness
Oh my goodness.... I don’t even know how to handle this. Millie learned that everyone laughs when she dances crazy, then this song came on and it’s just too much. The eyes, the rhythm, the dedication... she's perfection #sillymillie #chromosomecutie #danceallday #sassypants #theluckyfew #nothingdownaboutit
Day 1 - Orlando, New Jersey, Truro Canada what a stressful but fun day. Traveling with Lauren always puts me on edge. The diabetes, having to rush her, eating, time zones and most of all did I forget something 😳🤯but she did great today and I even survived. Lauren has already made some friends on the Brazilian team 😉🤔and OMG the lobster, can’t wait to eat one 👍. It going to be a great week, making new friends, new place and some swimming. #gottalovethatgirl #teamusa #dsiso #worldchampionship #type1diabetic #downsyndrome #peoplewithdsrock #theluckyfew #dswsc #swimming #arenawaterinstinct #nothingdownaboutit #typeonewarrior
I had to unwrap her so I would be able to sleep, but first a picture. She was such a stinker this evening, but my heart melts every time I walk in and check on her at night. ❤️#dsdn #nothingdownaboutit #theluckyfew #downsyndromeadoption #sleepingbeauty
My Little Girl!❤ Little Alexia!❤ You would be 2 today... What I could do to hold you again...To touch you, to kiss you again.... Just...Just to see you one more time... I Miss You... Your Smile... Your sweet Laugh... We Miss You so Much Little Girl!❤💔 So heartbroken... But today is the day when You were BORN!❤ its Your Day!❤ and I am so glad that I was with You, with our Mom when she delivered You!❤ You are our little precious Present! You'll always be!❤ Happy Birthday my Little Sister!💖 I know one day I will be able to hold you again in my arms! But now its so hard... I Love You!❤ I will always Love You!❤ and I / We will Miss You Forever...!💔❤❤❤ . . #memory #birthday #herbirthday #littlesister #sister #loveher #missher #inhermemory #forher #missyou #hard #grief #always #hungarian #hungariangirls #nothingdownaboutit #forever #inmemoriam #memoryofher #baby #babygirl
Mi mamá no se aguantó y se metió a bailar....o quizás quería salir en el video 🤔🤪🙈 Lo que definitivamente hay que arreglar es el Flow @raulpower y @gabopower ajjajajaja ustedes quizás puedan ayudarnos con eso? 🤦🏻‍♂️ My mom could not stand it and she started dancing ... or maybe she wanted to appear in the video 🤔🤪🙈 What you definitely have to fix is ​​the Flow @raulpower and @gabopower ajjajajaja can you maybe help us with that? 🤦🏻 #jueves #thursday #winter #flow #dancing #mom #laparva2018 #winterholidays #iamable #theluckyfew #smile #t21rocksss #cool #yesyoucan #nothingdownaboutit #t21 #nice #happy #behappy #sindromededown #like #lukivaldes #downsinmitos #downsyndrome #nice #chile #enjoy #unomas #inclusion
Took our bath in the pool tonight, she thought it was the greatest thing ever. ☺️🙃 #nothingdownaboutit #downsyndromeawareness #nothingdownaboutit #dsdn #momlife #outdoorlife
Some days I wonder how we created such a magical little human✨
We are hanging out in the emergency room while they run labs. Emily has been throwing up for about a week now and today she has had no appetite and was very sluggish. We got home from her swallow study and she had a fever of 103.6 and her cardiologist had me being her in for labs right away. We need to keep any bacterial infection away from her heart. ❤️ I’ll update again when labs come back. Praying for no admit!!!! #downsyndromebaby #endtherword #changingthefaceofbeauty #nothingdownaboutit #t21rocks #photooftheday #babiesofinstagram #babiesofIG #trisomy21 #homiewithanextrachromie #downsyndromeisbeautiful #downsyndromerocks #babygirl #morealikethandifferent #t21awareness #downsyndrome #theluckyfew #shouttheirworth #chd #chdwarrior #chdsucks #chdmom #chdawareness #chdfamily #gtube #tubiebaby #babysignlanguage #childhoodunplugged
“Dad, look at all those flavors!” Pretty sure @lacroixwater should be paying him for this free ad. #freshthyme #ourrockton #nothingdownaboutit #t21
My little sweet pancake is feeling better. He woke up and was his usual self, full of smiles and wanting to cuddle with mommy.... Now we just relaxing watching cartoons. . . . #sweething #mommycuddles #sweetboy #cartoontime #feelingbetter #nothingdownaboutit #upsyndrome #youwriteyourownstory #itsonlydownsyndrome #stpio
All ready for softball practice. I’m pretty sure 85% of why he plays is the outfits. EVERYTHING has to color coordinate. From HEAD to TOE. (There’s a good chance the athletic undergarment matches too but I didn’t check.). His sports sense of style is a battle we have given up on him. I admit I’m a tad bit envious of his “I don’t care what anyone things style”. #nothingdownaboutit #downsyndromerocks #theluckyfew #downsyndromeawareness
What was one of your favorite moments with you family this week? 💜💜💜
Our Daily Fred: My favorite son-in-law is always thinking of creative ways to involve #myveryserious #myjoshuagiraffe in play...and get him out of his comfort zone. #nothingdownaboutit #morealikethandifferent #aaronthesoninlaw @hollyenicholson
Volunteer Bash! #nothingdownaboutit
The reality of being a parent of a special little girl such as her is that I will have to be on full alert for many years when it comes to where she is at and what she is doing. Unlike most “typical” children she will not grow out of her fearlessness, her lack of boundaries and her #toddlertude defiance anytime soon. She is always 100mph and has little fear of the unknown. Sometimes she surprises me and I can see that she acknowledges danger or her limitations, but it’s rare. Most times, I have to keep a very close eye on her and keep up with her because if I don’t I will lose her or she will hurt herself. I am not complaining- just wanting to share the minor struggles that exist for #specialneedsparents and let the ones out there who experience the same thing know that you are not alone. 😘 #shesarunner #reallife #roadid #worthit #dontloseher - - - 💛👧🏻💙 #downsyndromeangel #savedownsyndrome #dschildrendeservelife #extracutechromosome #theluckyfew #t21 #downsyndrome #downrightperfect #trisomy21 #downsyndromeawareness #bornthisway #nothingdownaboutit #upsyndrome #specialneeds #changingthefaceofbeauty #t21love #promoteDSresearch #specialneeds #advocate #dontscreenusout #differentisbeautiful #morealikethandifferent #t21love
Oh my babies. Nova is growing up so fast, and Wynter goes from kicking, pushing, and snatching toys from him to giving him hugs and kisses. This is the most interesting relationship that I’ve ever had the privilege to witness. ❤️❤️ #WynterandNova . . . . . #newmama #motherhood #mymotherhoodjourney #uniteinmotherhood #parenthood #mamaof2 #2under2 #siblings #sisterandbrother #morealikethandifferent #nothingdownaboutit #theluckyfew #blessings #lightofmylife
Playing with tissue paper, boxes and brother is EXHAUSTING! Lo had a big day with PT, a DT evaluation and meeting new people! #downrightperfect #downsyndromerocks #theluckyfew #downsyndromeawareness #morealikethandifferent #changingthefaceofbeauty #Trisomy21 #nothingdownaboutit #upsyndrome
Almost a sleep. So gratefull. Thanks for choosing me little man❤️❤️❤️💎 love u 2 the moon and back❤️ #downsyndromeawareness #downsyndrome # downsyndromerocks #nothingdownaboutit #loveofmylife # loveyoutothemoonandback #sograteful #proudmomma
When Parker says, “Add more weight Sammy!” that can only mean one thing.. - Today, Parker benched a total of 50lbs. for five repetitions (without my help) for a personal record and increased his seated rows up to 55lbs. for ten repetitions. - With hard work, consistency and the right attitude, abilities will outshine disabilities.
We’re getting ready for a big family camping trip soon and this Wil Can Fly photo comes to mind. We have only been camping one other time with Wil and we had a scary moment where he booked it for the forest. We are all really excited for the trip but a little nervous about our little runner taking off. If you have any suggestions for a good GPS tracking watch or any other tips for keeping little runners from getting lost in the great outdoors we would love to hear them 😁 @nikkizl #wilcanfly #tbt #dadlife #downsyndromelove #downsyndrome #downsyndromeawareness #downsyndromerocks #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #mystory #babiesofinstagram #changingthefaceofbeauty #instababy #toddlersofinstagram #downrightperfect #instadad
I've offered her chicken forever but she ALWAYS turns it down. She saw the rest of us getting our grub on and pointed to the drumsticks, asking for her own. I expected her to push it away after observing and exploring it a second. She really got after it! And another emerging skill is drinking out of an open cup! . . . #momentswithmavis #mavisthetoddler #homieswithextrachromies #rockthe21 #lifewithds #theluckyfew #cantstopwontstop #nothingdownaboutit #inherowntime #tinybutfierce #lifeisbetterwithyou #threenager #preklife #gainzzz
FLASH | Look at this cutie. Easton and his mother have been working on learning and naming body parts. This kit from @specialneedsgames includes a mirror so your child can see their own body parts as they identify each one. We love when parents take home therapy play ideas and @everydaywitheaston is doing an incredible job! . . . . . . . . . . . . #specialeducation #specialneedsgames #games #learning #education #adore_able #motherhood #motherhoodunplugged #motherhoodrising #motherhoodismagic #motherhoodisdarling #igmotherhood #downsyndrome #downsyndromeawareness #upsyndrome #nothingdownaboutit #theluckyfew #morealikethandifferent #lifewithds #clickinmoms #momswithcameras #instamoment #instamom #childhoodunplugged #childhood #lifeisbetterwithyou #letthembelittle
This has been 6 months in the making... today Sam had his first (of many) tea party with Maddie 💗💙 He watched her so intently, I cannot wait to watch their bond unfold! . . . . #motherhoodunplugged #thisismotherhood #mumssupportingmums #momlifeisthebestlife #mommyandme #letthembelittle #teapartytime #littleloves #nothingdownaboutit #lifewithatoddler #lifeisbetterwithyou
We got the results back from Lucy’s MRI yesterday and I’ve had some people asking about them so I thought I’d share! Lucy had an MRI done to check for extra fluid on her brain and her neurologist told us that the results showed that Lucy had a stroke.😳😐 She is not sure when this happened but thinks it was around the time when Lucy was having a lot of heart and lung problems, right before her surgery (at least that makes the most sense as no one picked up on it). This helps to explain more why Lucy has a difficult time with her motor skills, eating, and even the fact that we have wondered why she favors her right arm and leg more than her left. Because Lucy was a baby when this stroke happened her neurologist said that she has been able to bounce back quite well, even to the point of rolling around and holding her head up. We will be doing a test in the future to figure out in more depth the parts of her brain that have been damaged. So I will keep you posted! We are just so grateful everyday for this miracle girl!! 🧠 ❤️ 💪 #mri . . . #downsyndrome #downsyndromeawareness #joubertsyndrome #13qdeletion #downsyndromelove #nothingdownaboutit #congenitalheartdefect #openheartsurgery #zipperclub #heartwarrior #sleepapnea #lowmuscletone #t21 #trisomy21 #theluckyfew #dsdn #upsyndrome #changingthefaceofbeauty #bilateralhearingloss #hearingaids
annnnd some more party pictures bc our Ju Ju only turns 1 once! 😝😍
I've finally sorted through all of Judah's party pictures! Thanks to everyone who came to celebrate our sweetest one year old! 😍
Heute zum ersten Mal im #freibad 🏊‍♂️ Zum ersten Mal in einem unbeheizten #babybecken 👶🏼 💦 Meiner kleinen #wasserratte haben die kühleren Temperaturen aber nichts ausgemacht. Im Gegenteil! 🤷🏼‍♀️ #meinbaby #liebe #mama #derapfelfälltnichtweitvomstamm #julibaby2017 #meinbabywirdgroß 👦🏼❤️🇺🇸🇬🇧We‘ve been to the open air #pool for the first time today. Josh totally loved it. No fear, no tears no nothing. He saw the water, conquered and splashed! 😉 #likemotherlikeson #mylittlewaterbaby #growingupsofast #lifewithjosh #t21 #downsyndrome #nothingdownaboutit #theluckyfew #changingthefaceofbeauty
We are in the midst of planning our 2018 Families Helping Families Galas. If you believe in what we are doing, and want to be part of it all, please join us. Saturday, September 22 we will be in Quincy, MA at Granite Links Golf Club and on Saturday, December 1 we will be at the NEW Rockford Bank and Trust Pavilion in Rockford, IL. We have big goals this year and we need your help to bring them to life! _ These nights are of course for a cause, but we love to have a good time. So join us! There's nothing better than a fun night for a good cause! MA event link in profile. _ #changetheworld #inspiration #charity #giveback #heartstrong #athankfulheart #babysweetheart #futurehearts #heart #chd #doitwithyourheart #congenitalHeartDisease #congenitalheartdefect #1in100 #chdwarrior #developmentaldisabilities #nothingdownaboutit #openheartsurgery #heartwarrior #happybaby #myhero #hearthero #heartsurvivor #kindnessmatters #chdaware #theluckyfew
Multi-tasking today; eating 🍊, doing some stretching and posing for mummy. Such a hard life 🙇🏻 . . . . . . . . #nothingdownaboutit #t21 #trisomy21 #downsyndrome #extrachromosome #theluckyfew #iamable #differentlyabled #thisboycan #zebedeemodel #zebedeemanagement #childmodel #disabledmodel #mamasandpapashighchair
Ahi vamos poco a poco🤗 con práctica, constancia y paciencia todo se logra 😉 🙌🏼 . Usando maroon spoon, se facilita bastante 👍🏼
Surgery follow-up is tomorrow! The redness in her eye is fading already, so that’s a good sign. We’re hoping for a clean bill of health so we don’t have to go back to ophthalmology for another 3 months or so (and reeeeeally hoping our doc is back from maternity leave by then! 😬) ETA: ophthalmology legit just cancelled her follow up at 4:55 pm today. Told us we’d have to call back tomorrow to reschedule if we absolutely have to. Uh, yes. We do absolutely have to. . . . #kerriganadeline #ohheymissk #toddlerlife #unicornlife #toddlermom #toddler #downsyndrome #downsyndromemom #trisomy21 #t21 #t21mom #upsyndrome #theluckyfew #dsdn #cdspg #nothingdownaboutit #lovedoesntcountchromosomes #friendsdontcountchromosomes #lifeisbetterwithyou
And because it’s still Colt’s Birthday week, I found this pic and had to throw it in on #tbt ! ❤️Three year’s ago and he was pushing his walker for the first time. (Those legs and outtie belly button that stuck out even more because of his umbilical hernia😂😍)❤️ . Thank you all for the birthday wishes and kind messages on Colt’s birth story and celebration clip! I am so grateful for all the love and kindness! . For those that asked, yes, I will be doing Nic’s adoption story in the near future. Many of you have followed along with his story from the beginning but for those who don’t know the details I’ll put it all together with some information to help others considering adoption, specifically relating to international Down syndrome.❤️❤️ (swipe left for a picture of Nic pushing the same walker only 5 months ago!) #nothingdownaboutit #birthdayboy
Det låg något gulligt på golvet och distraherade mig när jag lagade mat ❤️
Sunny deck and one of his favourite tracks- he had to jump outside!
Sunny days in Cambridge means dancing outdoors for both the boys.
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