Are you sitting quietly? I’m going to read you a story 🤗🎀
Astrid är verkligen inne i ett utvecklings flow just nu, jag hänger inte riktigt med. Gåvagnen kastade jag ut för någon vecka sedan för den inte användes. 🙈 Men det funkar minnst lika bra med en Ikea pall. 😉 När jag har försökt gå tränat med henne förut så har hon bara satt sig ,men idag ställde hon sig själv upp och började putta pallen. Det är som att hon har allt klart inom sig (äta med sked, sätta klossarna på pinnen) hon behöver bara processa lite sen kommer det helt av sig själv. Jag är så himla stolt!!! ❤ Astrid tecknar även att hon är duktig på slutet av filmen, undrar om hon har hört det några gånger. 😊😆#proudmommy #triosmy21 #t21rocks #t21 #nothingdownaboutit #downrightperfect #downisup #downsyndrome #downsyndromelove #sweetbabygirl #walk #kansjälv #loveofmylife #love
This afternoon as the clock flipped over to 1:53pm, I lay curled around you in bed watching you sleep. Your eyes fluttered, your mouth was open in a half smile, fine hair floating out in all directions. I breathed you in – you utterly content with a belly full of milk and me utterly content with my arms full of you. Perfect, marvelous, wonderful you.
It’s been a year since we first met. Blink. A year. Blink blink blink. Where did it go? Yes, the year but also my fear. The uncertainties. The overwhelm. Where did it all go? I’ve gone back and read On the Night You Were Born a number of times now and I can barely relate. I want to reach back in time and hug the woman who wrote it tight. To whisper in her ear that everything is going to be just fine. She wouldn’t have believed me but I would tell her fervently that a year from now, you will find it hard to conjure up the grief. The intense sadness will be replaced with a love so strong that you want to yell it from the mountain tops. Everything will be okay.
In the beginning, I thought about Izzy’s Down syndrome 24-7. There was not a moment that passed that it wasn’t on my mind. I had a permanent Down syndrome thought bubble above my head. When we were in public I had the strangest urge to blurt it out to anyone who even glanced her way. It felt like such a Big Deal that it was all I could think about. I went to bed and woke up thinking about it. I oscillated wildly between acceptance and despair. Down syndrome, Down syndrome, Down syndrome. All the time.
But as time marched on, the thought bubble started to dissipate. Perhaps I grew accustomed to the idea or more likely, it was because other than Izzy being diagnosed with Down syndrome, Down syndrome essentially played no role in our day to day lives. Izzy was growing into a happy, smiling, engaged baby. She was eating, pooping, rolling, grabbing, smiling and doing everything a baby is supposed to do. Then one day I realized that I hadn’t thought about Down Syndrome in a few hours. Then a few days. Then all of a sudden the scale tipped and the thought bubble popped. Now I have to remind myself. Oh yeah, she has Down syndrome. [Continued in comments 👇]
Love you... TO INFINTY AND BEYOND ✨🌚 Thanks to @wildbird
for allowing me to keep my baby girl close and snug! I can’t believe I just barely started slinging! Definitely going to start slinging earlier with my next mini! I LOVE IT! Do you sling? And how old did you sling until?!
Thanks to the little bro for capturing this dope image @nik_the_thicc
🤘🏽and by Iittle I’m mean my 6’3 lil bro!
En el festival de navidad de mi hermana Victoria. Si, amo a mi mama 🤣🤣 no le pierdo la vista 😍
Well, he didn’t cry but he definitely didn’t smile 🤪 (Elf in training 😂) Loved having this jolly fellow at Church tonight! ...And even though Jesus is the true reason for the season...some Santa Magic is fun too! Loved how this Santa couldn’t wait to get his hands on Daniel 💙🎅🏻 #falalala #tistheseason #theluckyfew #nothingdownaboutit
🎄🎅🏻😍 Merry CHRISTmas!
No photos, mom! I’m in pretty good spirits considering I have RSV, an ear infection, sinus infection, and pink eye all at the same time. Let’s hope these meds kick in and I am better in no time!
Ok all you Calhoun Outlet Marketplace (Georgia) shoppers and @rakoutfitters
lovers....they have Grace’s candidly kind tees in all 6 styles. (see the go with the flow & dramanatic hanging behind Grace) We dropped by to check out the display & all their other cool stuff and ran into one of Grace’s bff’s , Krystin:) Can you tell they were happy to see each other? Krystin keeps everyone at RAK straight a couple days a week. RAK has the most awesome stuff! Grace is wearing one of their Patagonia coats over her dramanatic tee! Not only do they have the coolest things, they employ people with differing abilities, give back to charities in a big way and are owned by one of the kindest most respected families I know.They have supported Grace since the beginning and we are GRATEFUL! So if you’ve never been to RAK you need to go and you might just have the pleasure to meet Krystin as well! ❤️❤️❤️ #justbekind #candidlykind #bffs #entrepreneurlife #theluckyfew #instores #customtees #grateful #thankful #shop #nothingdownaboutit
What are some of your guy’s Christmas traditions!?🎄
This is our “It’s only Wednesday” face! 😝
We love Christmas time 🦌 🎄🎁🎅🏼🤶🏼🍪🥛🥂🍻❄️☃️🌟🕊💗
I don't know where he learned this, but this silly face is his go-to these days. The first time I made it back at him he cried from terror and nearly flipped out of the cart at Target as he tried to get away from me! Now it's funny all around...except when you're trying to discipline and he whips this out on ya #littleturd
Nic usually doesn’t take his eyes off of Colt, but when he is on his own it’s easy to see how much he really understands and can communicate with sign language. People have asked me if I think he will ever talk. I assume he will in his own time, but I really have no idea. We will continue to grow his (and our) sign language skills so he can be a great communicator in whatever form that takes. He will be 3 years old in a month and is still working very hard to say “ma ma” so we are just going to celebrate every victory and not worry about the timeline. I’m so proud of this boy! ❤️❤️
#proudmom #signlanguage #downrightwonderful #nothingdownaboutit #lovehim
! Meet Kelly, a Volunteer at New Jersey. "PALS has given me such an incredible outlook on life while giving me the opportunity to build friendships with so many amazing individuals. I have grown as a person since I began volunteering at PALS. I am so thankful!" The #PALSVolunteerApp
is open. Apply today (link in the bio).
This cutie pie was FINALLY evaluated for speech therapy today. I have been pushing for it for months. I was told he wouldn’t qualify but my mama gut knew better. He qualified for almost the max amount. He will be going 2hours a week. Almost as much as Jace. Mom guilt is super high on this one. I should have fought harder. I should have worked with him more.
We have the best therapists and I know he is going to do amazing. We all believe we are beginning to see some delays from Down Syndrome now and that it’s not preemie related. So forward we go. Please lift him up in your prayers as we have an occupational therapy eval coming up as well. #parkerandrew #mosaicdownsyndrome #nothingdownaboutit #theluckyfew #t21