#nothingdownaboutit

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“If you could possibly understand how precious and powerful your experience of this one lifetime as yourself is, you wouldn’t be trying to go anywhere else. If you could know the perfection of time and space, you would slow each moment down to drain every possible nuance of juice and flavor from it. When you leave this place, your body and mind and the earth which holds you, you will look back and only wish you had known the immense richness that you hurried through trying to find better states of being. But this is the best bite. Heaven is here. Nirvana is now. As soon as you know that for sure your life will never be the same again. In fact, in every way it seeks to get your attention. Begs you to awaken to the magic right before your eyes.” Caleb’s friend lost his mother yesterday, suddenly. Heartbreakingly. Just coming into his teen years and with unique needs, we pray that his family can adjust and adapt and figure out how to go on without her. As we pray for this family, and try to understand how things like this happen, we realize how short life really is. That each day is to be treasured and respected. No throw away days. Live life to the fullest! #treasureeachmoment #lifeisprecious
This is what happens when big brother is in charge of fun! . They were riding their bikes in the garden while I made breakfast, and I went out to shouts of . "Yes River, we are finally black like Baba!!" 😂 . . ❤they want to look just like Daddy❤ - - #mumlife #momlife #morealikethandifferent #theluckyfew #nothingdown #nothingdownaboutit #downrightperfect #downsyndromelove #specialneedsmom #mixedracechildren #daddyandson #fathersandsons #pbloggers #familylife #familylove #instamom #instafamily #instakids #childrenofig #kidsofinstagram #instakids #mumswithcameras #momswithcameras #boymom #boymum #momofboys #candidchildhood #cameramama #letsgolittles #bestofmom
Thank you @mamasaidtees for this amazing shirt (one more 😉) bought on #worlddownsyndromeday and that I will wear proudly thinking of sweet wonderful Wil @thatdadblog @nikkizl and so many other great kids and humans! 😍👌 #inclusive #beinclusive #downrightperfect #nothingdownaboutit #everydaykind #choosekindness #mamasaidtees #teeswithamessage #wilcanfly #theluckyfew
Had another casting on Thursday and lovely to see more of #teamzebedee again!! #casting #teamzebedee #london #babymodel #nothingdownaboutit
Ne büyük bir mucize evlat. Dünyaya bir canlı getirmek ve onu büyütmek büyüdüğüne şahit olabilmek. Doğduğu andan itibaren iyiliği de kötülüğü de siz işliyorsunuz içine sizin ve evinizin içinde ne görüyorsa kayıt ediyor doğduğu günden beri sizin doğrularınızı doğru biliyor kendine. Çocuk olduktan sonra her söz hareket her davranış minicik iki gözü olan yürüyen bir kamerayla kayıt altına alınıyor umarım farkındasınızdır. Etrafınızda nasıl bireyler görmek istiyorsanız öyle işleyin bebelerinizi insanlık ekin içine sevgi ekin şiddet kötü söz uzak olsun evinizden kutsal olan ne varsa öğretin kötüyü iyiyi öğretin birde yaşayan hiçbir canlı arasında fark olmadığını hepimizin aynı ve eşit olduğunu öğretin. Umarım dünyaya daha güzel hatıralar bırakmanın tek yolunun bu olduğunu farkederiz bir an önce 🙏 Geleceğimiz çocuklarımız 😘 . . . . . . . . . . #downsendromu #downsyndrome #nothingdownaboutit #iyigeceler #özeleğitim #goodnight #family #life #kids #baby #babygirl #cute #bebek #melek #annebebek #like #love #dünya #instagood #instababy #babylife #çocuk #pretty #happy #mom #family #familylife #insan #like4like #pink
Günaydın 😘 Fotoğraftaki sırıtığı görüyorsunuz benden uzak ve bağımsız takıldığı için dünyalar onun olmuştu bu anı paylaşmalıydık 😍😍 . . . . . . #downsyndrome #downsendromu #nothingdownaboutit #günaydın #goodmorning #family #instagram #bebek #annebebek #just #like #love #babylove #instagram #keşfet #pretty #happy #mom #life #kids #baby #babygirl #cute #bebek #melek #angel
Heeeyyy 🙋 Duydunuz mu perşembe günü abla oluyorum 😍 Annem için bol bol dua istiyorum sizden 🤗 Melisaya gelince hele bir doğsun da binicem üstüne vurucam kırbacı vurucam kırbacı 👿😈 🤣 #downsyndrome #downsendromu #nothingdownaboutit #bebek #baby #babygirl #instababy #like #love #babylove #instagram #keşfet #pretty #happy #mom #momtobe #family #familylife #annebebek #instacute #cutebaby #like4like #followme #sister #kardeş #şükür #dua #smile #selfie #dikkat
Look at this little face 😍😍😍 she was so good last night after her jab takes everything in her stride this one, her sister on the other hand was not a happy bunny it was a long night with her #tiredmommy
Bir insanın vücuduna 1 yılda kaçtane iğne girebilir 🤔 Melek Ece'nin elinin üstünde iç bileğinde 30 40 taneye yakın her ikisindede iğne izleri kalmış geçen gün farkettim 😐 Aslında ne çok şeyle savaşmışız biz zaman giderken anlamıyorsun belki ama izler hatırlatıyor yaşadıklarınızı. Hastane ikinci evimiz gibiydi bir zamanlar yeni yeni yaşıyoruz aslında hayatımızı biz hala devam eden kontrollerimiz var tabiki. Mesela geçen hafta kalp kontrolünde doktor kapaklarda hafif kaçak olduğunu söyledi ama ameliyattan sonra olan birşeymiş kilo aldıkça kapanabilicek birşey olabilirmiş ama bir anne için bunu duymak çok zor sıkıyor insanın canını. Lösemi atlattığı için 3 yıl risk grubunda ve hemotoloji kontrolleri devam ediyor ödüm kopuyor o kan sonucunu göstermeye dakikalar kala herşey yolunda dediğinde çözülüyor dizlerimin bağları dünyalar benim oluyor. Bu küçük kız aslında ne çok şey başardı gördüklerinizin dışında o benim kalbimin ritmi. Eğitimmiş bireyselmiş fizikmiş benim için hep ikinci planda kaldı hatta üçüncü planda olabilir çünkü hiçbir zaman başaramıcağı birşey olucağını düşünmedim. Şimdi değilse yarın yarın değilse 1 ay sonra belki 3 ay sonra dedim zaten yapıcak bunları bu telaş neden eğitime nezaman başlamalıyız diyenlere söyleyebileceğim tek şey zamanın tadını çıkarın bebeğinizin sağlığı yerindeyse haftada 2 saat zaten eğitim denilen raporla anılan şey bende yeni öğrendiğim için söylüyorum sizden öğrenicek ne öğrenirse siz daha çok ilgileniceksiniz herzaman rapor alıp eğitime başlamanızla bitmiyor herşey siz bebeğinizin baş öğretmeni fizyoterapisti olucaksınız gerekirse siz eğitim alıcaksınız kitaplar okuyup bilir kişilere danışıcaksınız. Demem o ki bebeğin herşeyi senin sayende başarıcak güzel anne bebeğinin tadını çıkar 😊😇 #downsyndrome #downsendromu #nothingdownaboutit #t21 #özeleğitim #eğitim #sağlık #baby #babylife #life #kids #babygirl #instababy #instacute #cutebaby #like #love #babylove #instagram #keşfet #pretty #happy #mom #family #bebek #annebebek #just #special #sweet #goodnight
Siz mutluluğu neyle tarif ederisiniz bilmem ama benim mutluluğum bu minik kurabiyenin gülüşünde saklı 🙏 Büyüyor zaman çok mu hızlı geçiyorsun acaba biraz yavaşlasan mı Melisa doğduktan sonra please 😋 İyi geceler diyor Melek abla herkese 🙋 . . . . . . #downsendromu #iyigeceler #özeleğitim #babylove #love #cute #bebek #annebebek #just #like #instagram #pretty #happy #mom #goodnight #baby #babygirl #like4like #life #babylife #kids #special #instagood #instacool #cool #şükür #family #nothingdownaboutit #elbise #familylife
Heeeyyy 🙋 Duydunuz mu perşembe günü abla oluyorum 😍 Annem için bol bol dua istiyorum sizden 🤗 Melisaya gelince hele bir doğsun da binicem üstüne vurucam kırbacı vurucam kırbacı 👿😈 🤣 #downsyndrome #downsendromu #nothingdownaboutit #bebek #baby #babygirl #instababy #like #love #babylove #instagram #keşfet #pretty #happy #mom #momtobe #family #familylife #annebebek #instacute #cutebaby #like4like #followme #sister #kardeş #şükür #dua #smile #selfie #dikkat
Ne büyük bir mucize evlat. Dünyaya bir canlı getirmek ve onu büyütmek büyüdüğüne şahit olabilmek. Doğduğu andan itibaren iyiliği de kötülüğü de siz işliyorsunuz içine sizin ve evinizin içinde ne görüyorsa kayıt ediyor doğduğu günden beri sizin doğrularınızı doğru biliyor kendine. Çocuk olduktan sonra her söz hareket her davranış minicik iki gözü olan yürüyen bir kamerayla kayıt altına alınıyor umarım farkındasınızdır. Etrafınızda nasıl bireyler görmek istiyorsanız öyle işleyin bebelerinizi insanlık ekin içine sevgi ekin şiddet kötü söz uzak olsun evinizden kutsal olan ne varsa öğretin kötüyü iyiyi öğretin birde yaşayan hiçbir canlı arasında fark olmadığını hepimizin aynı ve eşit olduğunu öğretin. Umarım dünyaya daha güzel hatıralar bırakmanın tek yolunun bu olduğunu farkederiz bir an önce 🙏 Geleceğimiz çocuklarımız 😘 . . . . . . . . . . #downsendromu #downsyndrome #nothingdownaboutit #iyigeceler #özeleğitim #goodnight #family #life #kids #baby #babygirl #cute #bebek #melek #annebebek #like #love #dünya #instagood #instababy #babylife #çocuk #pretty #happy #mom #family #familylife #insan #like4like #pink
Günaydın 😘 Fotoğraftaki sırıtığı görüyorsunuz benden uzak ve bağımsız takıldığı için dünyalar onun olmuştu bu anı paylaşmalıydık 😍😍 . . . . . . #downsyndrome #downsendromu #nothingdownaboutit #günaydın #goodmorning #family #instagram #bebek #annebebek #just #like #love #babylove #instagram #keşfet #pretty #happy #mom #life #kids #baby #babygirl #cute #bebek #melek #angel
BEE 🐝 CUTE , BEE 🐝 HONEST & BEE 🐝 KIND !! #Always (Bumble Bee ❤️ top from @emmawarrendesign ) thank you Emma 😘 #upsyndrome #nothingdownaboutit #cutie #homiewithanextrachromie #sunnysaturday
Ready for a party! 💛
These past few weeks have been emotionally draining on me. In the past 4 weeks this beautiful little girl of mine has had 7 more medical appointments, including two more hospital visits (one on this same day that these photos were taken) to help treat another ear infection and stomach bug. Kalisye has been hit hard with colds since we moved, and now we are starting to really experience some of the bumps that come with her DS. We are so blessed that she has been in such good health, and while these bumps are small, it still hurts, as a mother, to see my baby struggle. Her failed hearing test and ENT consultation has led to the scheduling of her first procedure under general anesthesia: a myringotomy with PE tubes. Her cardiology consult led to the scheduling of an overnight sleep test to assess her for obstructive sleep apnea (at the age of 16 months 😢) and her recurring cough when she drinks has earned her another appointment for a swallow evaluation to rule out aspiration. Her tendency to lose weight quickly when sick, matched with her difficulty to gain weight, makes any little cold stressful that much more stressful. And her chronic congestion always makes breathing and drinking a bit more difficult...who knew that children as young as Kalisye could take Flonase, daily 🤷🏻‍♀️ While we are so fortunate to have healthcare providers who anticipate Kalisye’s needs, before they become serious problems, it never gets easier hearing that Kalisye may have to face, yet another challenge. Lately I’ve found myself questioning if I’ve been doing my part as a parent. Shouldn’t I have caught these things earlier?? How could I not have noticed that my child was having difficulty hearing?? Can any other parents relate? 🙋🏻‍♀️ On a very positive note, I would like to thank all of those amazing individuals (like all those at her daycare and our friends at our local Down Syndrome Association) and of course our very supportive family, who help make this journey easier, even during some of the harder weeks 💖 #KalisyeP #myupsidestory #nothingdownaboutit #momswhoblog #ds #t21 #theluckyfew 💙💛
Making progress! Hudson took his very first steps back on February 18th. On that day he took 3-4 very wobbly steps. Since then he’s been slowly working on his strength and gaining confidence. Today, with very little help he wanted to walk! And we could tell he was so proud! Can’t wait to see what kind of trouble this walking machine will get into this summer! . . #babyhudsonscott #t21 #theluckyfew #downrightperfect #nothingdownaboutit #upsyndrome #theyseemewalking #rainboots
This sweet boy’s smiles fill my ❤️ . He loves kisses from mamma...#nothingdownaboutit #theluckyfew #lovehim
Top o’ the mornin’ to you! This kiddo continues to thrive post-surgery! We are so incredibly humbled and thankful for all of the help and support!! Thank you all so much! I cannot even begin to say how much it means to us! 💛💙💛💙 #theluckyfew #upsyndrome #nothingdownaboutit #savedownsyndrome #downrightperfect #downrightadorable #downsyndrome #translocation #robertsoniantranslocation #Trisomy21 #homiewithanextrachromie #avsd #atrioventricularseptaldefect #atrioventricularcanaldefect #alittleextra #morealikethandifferent #heartwarrior #openheartsurgery #heartwarriorbaby #firsttimemom #firstborn #boymom #parenthood #babyboy #sunsoutgunsout #dapper
His new routine. He wants Jack in his bed before he goes to sleep.
@donorschoose is a nonprofit organization that helps public schools get the funding and experiences our students deserve!! Today is the last day to get donations doubled by using code RIPPLE at checkout!! Please help support our classroom, every dollar counts ✨❤️💪🏼 link in bio 🔝😁 #specialeducation #specialeducationteacher #iteachsped #kindnessiscontagious #kindnessmatters #choosekind #putkidsfirst #inclusion #acceptance #awareness #autismawareness #upsyndrome #nothingdownaboutit #theluckyfew #abilitynotdisability #teachersfollowteachers #teachersofinstagram #flexspace #flexiblelearning #lakeshore #donorschoose #rippleeffect #differentisthenewnormal — Nothing beats knowing you made a difference 😊
My sweet girl, I never knew how much I needed you 💙💛💙💛💙 #downrightperfect #downsyndromeawareness #nothingdownaboutit #trisomy21 #omnitriumperfectum
I wish we could all look in the mirror and see ourselves the way Rockwell sees himself. He absolutely see pure awesomeness when he sees his reflection. It makes him so happy. Wow! Look at that amazing kid! #theluckyfew #nothingdownaboutit #downrightperfect #RockPlusAChromosomeMinusAPancreas
Callan's first intentional word was "dadda." He would say it a lot when his dad was out of town for work when he was around 7-8 months old. At 2, he now goes around the house looking for his dad saying "Daaad?" Yep, Daddy is his favorite. Daddy is my favorite too! (Sorry for the blurry pic). #theluckyfew #learningwithdownsyndrome #throwback #downsyndrome #nothingdownaboutit #morealikethandifferent
This week life....well it’s been hard. Feeling like I’m barely holding it together and managing stress. The truth is I let things get to me, worried too much about what the future holds, tried to control things I couldn’t control and wanted answers that God isn’t ready to give me. So tonight I sit beside him, we talk about dumb stuff, tease each other and then he laughs and it melts it all away. I can’t sweat the small stuff with that squinty eyed smile sitting next to me. Already I feel my tank filling back up and the knots in my shoulders melting away. I plan to soak him in and enjoy the moments with him. Monday I’ll face the new week with a fuller heart and a grateful spirit because of him. Because of him.......I am blessed. #downsyndrome #downsyndromeawareness #downsyndromerocks #theluckyfew #nothingdownaboutit
We cannot thank you all enough for the outpouring of birthday wishes for Henry!! It really means so incredibly much to both him and us! This kiddo was so wiped out tonight. . #henryharrisonska
I got a Agent in LA! Gail is awesome and so is KMR. #nothingdownaboutit #sohappyandproud #beyourself #mynormal #includeus
On our way!!! Prayers appreciated for a safe and uneventful journey HOME!! Thank you all for the birthday wishes, support, prayers and encouragement. We have been blessed with an incredible village.
REPOST - if you aren't following @ablefinder , you should! We love this organization and what they believe in! . . . Why #IAMABLE ? Because we want kids like Oskar (@heidiiver80 ), Charlie (@charlies.way ), Grayson (@emmeruth ) and Elliot to grow up in a world that recognised them by their worth, strength, heart and ability! ❤️🌏✨ #Repost . . . . #toddlersofig #toddlersofinstagram #downsyndrome #ambassador #downrightperfect #ability #inclusion #inclusionmatters #advocate #nothingdownaboutit #theluckyfew #downrightawesome #morealikethandifferent #sewamazingandmore #instacute #instakids
{110/365} We're home and already back into our routine. I dropped Aidan off at the ball field for practice bofore his game. And Hazel and I came to the studio to get a few things done before we head back to meet the rest of the crew for the game. When we got back from the trip I snapped this picture because her little outfit was so cute. Good thing I got the photo, because less than an hour later (at the studio no less), Hazel had the blowout of her little life. Thank goodness it didn't happen on the 6 hour car drive today......She actually slept through 90% of that ride! ;) . . . . . . . . . . . . . #hazelgrace 💖 #newbornbaby #ourblessedlife2018_365 #ourbittybaby ❤️ #m4hlifein52 #nothingdownaboutit #theluckyfew #t21 #changingthefaceofbeauty #downsyndrome #downsyndromelove #ourjourneywithds #morealikethandifferent #livingwithalittleextra #iamable #jj_its_kids #childhoodunplugged #candidchildhood #pixel_kids #ourcandidlife #momtogs #thedocumentarymovement #momswithcameras
So fast and so slow. ❤️
You’re welcome 😉 #nothingdownaboutit #theluckyfew
Play time 🌈💕💙💛 sooo excited #nothingdownaboutit #theluckyfew #beautiful
Weeee q rico q es viernes 😊😊😁😁 #trisonomia21 #sdpadresenaccion #downpanama #sindromedeamor#nothingdownaboutit #dsdn
Gosh... we sure are the lucky ones 😍😍! #theluckyfew #graysonlevi #downthisroad #dearmom #nothingdownaboutit
Comment below!!!❤️❤️❤️
If I sing 'are you sleeping brother John' one. More. Time...... ...😶...😂😂😂... ...Just kidding. Doesn't bother me a bit 🤪😄 Look at the joy on their faces when we get to 'morning bells are ringing' This is the best! 😍😍😍😍😍 . . . . . . #momlifeisthebestlife #childrenoftheworld #kidsforreal #lifewithkids #momtogs #celebratechildhood #cameramama #toddlerlife #sahm #toddlers #instagood #instakids #momswithcameras #treasuredmoments #cherishedmoments #mytinymoments #downsyndrome #trisomy21 #downrightperfect #bruder #toddlerroom #letthekids #momlife #nothingdownaboutit
Went on a thrilling ride as King of all wagons, and I was certainly not even the slightest bit cold 😂😂 📸@keeaarstie
I love you with my whole heart for my whole life. 💙
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