Heute möchte ich euch Luca vorstellen. Seine Mama hat uns geschrieben und viele Bilder geschickt. Sie wollte sich bedanken, denn unser tolles Team in der Klinik hat es geschafft, dass sie sich von Anfang an, wie zu Hause gefühlt haben. Solche Nachrichten gehen ans Herz und zaubern uns ein Lächeln ins Gesicht.😍💜🦁
Luca ist am 21.06.18 geboren und hatte einen extrem schweren Start ins Leben. Er hatte einen Tumor am Herzen und musste operiert werden.
Jetzt scheint das gröbste überstanden zu sein und Luca wächst und gedeiht.
Wir freuen uns, dass es dem kleinen Löwen nun so gut geht. Er ist einfach ein Kämpfer.
#minilöwen #miniloewen #frühchen #preemie #nicu #purpleforpreemies #leipzig #kleinerkämpfer #ukl
Logan's First Bath 💦 at almost 3 weeks old! Here's hoping his twin brother isn't far behind him ♡
This photo certainly brings back memories, same hospital and same tub as our little boys first bath - one of my absolute favourite milestones while in hospital 😍 📸 @jodieee_r
Theo’s first smile 😊 Theo is now 20 weeks old but he is “6 weeks corrected”. This means it’s 6 weeks since his due date, so if he was born on time he would be 6 weeks old. So although my little boy has been living and breathing on earth for over 14 extra weeks, developmentally he is only 6 weeks old. It’s a strange concept to get your head around at first, and I’m not massively keen on the “corrected” terminology but it is what it is. If we’re out and about and people take an interest by asking his age (and omg they do so much), I tell them his corrected age. Being so early I have been wondering if Theo’s developmental milestones will be a little slower but this week Theo has given us his first “social smile”, right on track at 6 weeks old! This is a huge milestone, although the smile was at Grandma and not at me. Our little miracle continues to amaze us every day. We are so proud of him 💫
New video up now on my family channel go check it out. Link in the bio and below.
1 am feedings are rough, but so perfect. Each baby takes about 30 minutes to feed sometimes 45 if burping is a little rough. Then it takes me a little bit to fall back asleep and before I know it, my alarm is going off to feed them again. I struggle out of bed to do it all over again, and I wouldn’t change a thing.
I haven’t done much self care since I had my children. I’ve felt too guilty for haircuts, outings with friends - even nipping to the shops without the babies feels dead weird. BUT my mental health needs sorting and with the help of my perinatal team and my family I’m starting to put stuff in place to get myself back to...normal? I’m not sure that will happen but somewhere near. I’m not ready to share my full PND experience yet as I’m still working through it and trying to get better. But I’m deffo not in at the deep end anymore at all, so it feels like a good time to document some of the stuff I’m doing to sort myself out. So... as well as counselling and medication I’ve been advised to take some time each week for myself with absolutely no babies. Yesterday I managed to get through a whole day with the babes (we actually had a lovely day together) and put them to bed on my own. So I decided it would be a good opportunity to run a bath, watch a new episode of Fleabag and have a glass of wine. I washed my hair, used some posh bath oil and shaved my legs. I can’t tell you how amazing it felt!!!!!! Prob in my top 3 baths ever.
If you’re interested - the other two best baths were in Budapest and in Iceland. 💦
Thornton’s dark continental for breakfast...why not 🤷🏻♀️ Please note he’s already stuffed two in his mouth, didn’t even realise he could open them. Just hope it puts him in a good mood before nursery 😂
Eloise is 15 months old today 💕🙌 but I’m doing a throwback photo to a year ago when she spent the day in hospital as we got her started on treatment for her haemangioma 🍓 She had only been home for a few weeks so seeing her in hospital 🏥 again and hooked back up to the monitors brought a lot of anxious feelings bubbling right back up to the surface. It didn’t seem fair that after just getting through her NICU journey we were back at the hospital and about to embark on our dermatology journey (I didn’t even know at the time that this was going to be quite an experience in itself). She looked so tiny in the big kid hospital cot and I just wanted to climb in there with her and cuddle her 💕🙈 Have a look at that little arm poking out though ... she never did like being swaddled! 🙈🥰🙊 She would always squirm around until she had an arm free! I’m sure the nurses in SCBU thought I was terrible at swaddling but I always used to make it easy for her to get her arm out before I left her for the day 🙊💕🙊 💕
Wee little angel 👼 11 inches
It is truly amazing seeing how small and strong your little ones are! .
Order your own custom birth doll with the link to my etsy page in bio.
Highlight of Levi’s day: Being nosey. Every once and a while he likes to sit up and survey his surroundings, maybe wiggle around a bit... Big man is doing his best; every day that goes by is a blessing. He’s just working on getting bigger and stronger day by day. He is now 8 lbs, 1.2 oz, and staying handsome. We’re holding off on the ROP surgery, he had an echo today to determine possible heart surgery (waiting to hear back from the cardiologist) and he’s back on another round of steroids for his lungs. He is such a sweet boy, and we are so glad he is our little fighter 💜 #preemie #nicu
1 month and 3 days old on the day that should have been his birth date!! He is one tough fighter and so so SO loved!!!💙
Can’t wipe this cheeky grin off our little warriors face today 🎈Today would be Lox’s First Birthday if he wasn’t in such a rush to meet us last year! 😊
Until Lox is about two we need to keep both his age (15 months) and corrected age (12months) top of mind as a preemie’s development follows their corrected age not their actual age.
At approximately the age of two these timelines will come together and we can expect to see the same levels and speed of development as a full term baby. It’s at this point that Lox will be able to drop his “two sets of birthdays”... but until then, we will keep the parties rolling! 🎉💙🎈...It’s not everyday you get the chance to have a second first birthday! 👏 💙💙Happy Birthday Baby Boy!! 💙💙 #birthday #boy #love #warrior #preemie #micropreemie #iugr #iugrbaby #corrected #firstbirthday #nicu #nicugrad #tinybutmighty #miracle #baby #family #celebration #birthdaybreakfast
It's so easy to wish away time when life is tough, but it's also so important to be in the moment and soak up the little things that will make it all worthwhile ♡
the face I make when I’m down to my last Diet Coke. also the face this babe makes that makes my heart burst. give me all of the babies. this Riggins is just the best, even when we’re up aaaaaall night — hence the concern for available caffeine ya know?? #clusterfeeding #preemie #rigginshimala
He was such a good boy today!!! 😭 I’m happy to say that we got a positive report from the cardiologist. She even said she can’t tell Luke was a preemie or that he went through all that he did in the NICU. This little guy is making strides!! And I’m also happy to report that the day is finally over. Join us tomorrow on our early morning OT session followed up by a long SOAR clinic visit where we get to talk with and get evaluated by the neonatologist, dietician, PT, and OT. Goodnight 🌙💤 #preemie #micropreemie #cardiology #ekg #pda #mynicubaby
For the first time since giving birth to him I finally got to see and hold my precious baby boy 32 hours later. My heart is so full. ♥️ Looking at this tiny, beautiful human we created who doesn’t look a darn thing like me has me counting my blessings tremendously. I’m so ridiculously in love with my tiny family. I’m thanking God for every single moment spent with these two boys. Keep on fighting my sweet boy. Mommy & Daddy aren’t going anywhere. •
#beauluke #preemiebaby #preemie #hawaiibaby #fighter #mymircale
I’m trying to be transparent about our experience with Jacob. Being open has allowed me to talk with others going through complications with pregnancy, which is an amazing feeling because having that support is something I wish I had because it’s lonely when those around you don’t understand or see the severity of the situation. I was fortunate to have made a good friend during my time in the city, especially with Shaun being gone and having to be far from home. ... I was 1 in 200 pregnant women with placenta previa, 1 in 100 to have a placental abruption (happened twice), and 3.1% to have a subchorionic hematoma. Basically, we had the first pregnancy nobody dreams of having.We were wrongfully diagnosed with low lying placenta at 20 weeks when we had our first bleed. At 24 weeks, our first transfer out to a tertiary level hospital, we were diagnosed with placenta previa and a partial placental abruption. These words meant little to me, as I didn’t look much into the risks that can come along with pregnancy because you never think that it’ll be YOU. At my last prenatal appointment before I was referred to a high risk OBGYN, the doctor told me “I wouldn’t worry too much, you probably won’t bleed again”. How I wish that was the case. Soon our days were filled with dreadfully waiting for the next bleed. By the time Jacob had come by emergency csection, I had a total of 2 partial abruptions, almost 3 weeks in the hospital (would have been from 27 weeks until 32 weeks had we not found somewhere to stay in Edmonton or Calgary within 20 mins of the level III hospitals, and from 32 weeks till delivery had he not been delivered), and 8 antepartum hemorrhages,which got closer together and became more intense with the further along we went with the pregnancy, to the point where I wasn’t allowed out of bed because I was passing clots the size of my fist every time I stood up. I am petrified for when we try to have another little one. Having a csection places anyone at a higher risk for other placental issues such as accreta, increta, percreta. Some may say “well I wouldn’t worry about that”, but from my experience, the statistics haven’t exactly been in my favour.
If anyone else has been watching This Is Us, you might see a glimmer of what NICU life is like. Currently in the show, a main character had a preemie baby at 28 weeks and these episodes definitely have all the feels. I feel like a horrible mother to admit this, but I had a hard time bonding with Sadie when she was first born, which is what they were depicting on tonight's episode. This is something I never thought I'd have an issue with as I have always wanted to be a mother. I don't know if it was because she was so small that she barely looked like a "real baby" or the fact that I wasn't able to hold her until she was 5 days old and even then was only allowed a max of 1 hour a day. Or that I was just getting use to actually being pregnant when she was born and had barely felt her kicking inside of me. I think it was a combination of a lot of things. And I think its normal to have felt that way. I do remember when it happened... when that bond sank in and consumed me. It was just one random day, out of the blue, while I was holding her in the NICU and it just clicked. I don't remember how old she was, but it all of a sudden just sank in, that I was holding my child and that I was her mom. And wow... what a wonderful and unimaginable feeling that was and continues to be. Being a parent is exhausting and stressful but when those little eyes look up at you or they wrap their arms around you, it makes it all worth it. Just wanted anyone else that might feel or have felt the same as me know that you're not alone and that you're still a great parent. It will click one day so hold on tight cause when it does, it rocks your world!
#SadieStrong #micropreemie #trachbaby #gtubebaby #preemie #preemieworld #nbcthisisus