#raproblems

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Iโ€™m so excited to have been chosen to be the Adult Honoree for the 2019 Walk to Cure Arthritis! Click the link in my bio to read my story, donate towards my fundraising goal or to join me at the walk on May 4th! ๐Ÿ’š#WTCAHou #RAWarrior #ChampionOfYes
My struggle for this week. I worked Monday & that's it ๐Ÿ˜ž I've had nagging pain all week & no energy at all. I pray next week is better ๐Ÿ˜ฃโค #thestruggleisreal #painalldayeveryday #fatiguesucks #rawarrior #raproblems #chronicillnessstruggles #chronicpainsucks ๐Ÿ˜ 
My struggle for this week. I worked Monday & that's it ๐Ÿ˜ž I've had nagging pain all week & no energy at all. I pray next week is better ๐Ÿ˜ฃโค #thestruggleisreal #painalldayeveryday #fatiguesucks #rawarrior #raproblems #chronicillnessstruggles #chronicpainsucks ๐Ÿ˜ 
Round 2 of Actemra. According to my infusion nurse, this is the one where a lot of patients start to notice a difference. ๐Ÿ™๐Ÿผ๐Ÿ’š #RAWarrior
I have to sit in a room and wait for people. This is what I have chosen to do with my time. #RAproblems ๐Ÿคช๐Ÿ˜
2018, as hard as you were, I wouldnโ€™t take back one second. Physically, one of the most difficult years of my life. At the same time, there was so much happiness, growth and success. Looking forward to what 2019 has in store! #TopNine
Feeling the CHRISTMAS SPIRIT! With this yummy cup of sweet hot chocolate (that I should definitely not be having ๐Ÿ˜œ#RAproblems ) โœจ๐ŸŽ„โฃ๏ธ
My Facebook has the full length @ facebook.com/lenacolettewinton #messiahwaswortheverymile #starofwonder I can't play full fret because it hurts my finger and wrist joints...just not happening. #raproblems #adaptando
Semi-announcement time.... I was asked to be the Adult Honoree for the 2019 Walk to Cure Arthritis!!! More details to come, but Iโ€™m honored to represent my fellow adults living with this disease. Everyone save the date- May 4th! I had so much fun at the committee holiday party tonight, even though we were missing most of the group. Looking forward to a great year!
Since so many people have asked, I figured I owe you guys a health update. Ever since Cadence was born, the Remicade that worked for me for over 10 years, stopped working. Over the last year Iโ€™ve been taking steroids every day in addition to the Remicade treatments, and we increased to the highest allowable dosages, but it still wasnโ€™t enough. I started a new medication called Actemra last Friday. It isnโ€™t good to be on steroids for a prolonged period of time, so the goal in trying this new medicine is to be able to stop taking them. So far, I havenโ€™t noticed any difference at all. From what Iโ€™ve read it can take anywhere from 2-12 weeks to notice the effects of the medication, so Iโ€™m still hopeful. I canโ€™t tell you how much it means to me that so many of you care about my health and pray for me. The love and support from this peanut, her daddy, our family and all of you is the best medicine, so thank you. ๐Ÿ™๐Ÿผโค๏ธ #RAWarrior
All I want for Christmas is for this new medication to stop my RA in its tracks! #RAWarrior
Not everyday but yeah, most days...๐Ÿ˜ฑ๐Ÿ‘ฝ๐Ÿ’€ #sleephelpsbutyoucantsleep #RAproblems #zombiemode ๐Ÿ“ท: WomenWithRheumatoidArthritis
I may have gone overboard on the size of my board this month - - - #ra #college #collegelife #raproblems
In true #AutoimmuneDiseaseProblems form, Iโ€™m honoring the 7 year anniversary of my formal #RheumatoidArthritis diagnosis (after ~3 years of symptoms) by beginning a new treatment regimen. In the last decade, my body has mistakenly attacked my thyroid, my lungs, my GI tract, my gallbladder, my skin, my scalp, my eyes, and my joints, of course. After having a whopping dozen other treatment regimens fail to adequately tame my furiously confused immune system, Iโ€™m really hoping that this will be lucky number 13 ๐Ÿคž๐Ÿป๐Ÿคž๐Ÿป Anyone have experience with #Xeljanz or #XeljanzXR you can share? Itโ€™s a relatively new drug, and I recall a bit of controversy prior to the FDA approving it. Iโ€™m not usually this nervous about new meds, but my body has been misbehaving unpredictably lately, so Iโ€™m being more cautious than usual. #FingersCrossed ! #LifestylesOfTheChronicallyIllAndFabulous #MyConnectiveTissuesHaveIssues #RA #RAproblems #RheumatoidDisease #MixedConnectiveTissueDisease #MCTD #AutoimmuneDisease #BodyIsBrokenButMySoulIsGolden #MCAS #MCAD #MyImmuneSystemHatesMe
Today, someone surprised me with $20 and a note that told me to go get this incredible #AmericanTourister #vintageluggage set from the thrift store as an early holiday gift. So stoked! One of them is a combo lock....and itโ€™s locked. Iโ€™ve tried every trick Iโ€™ve learned in all my years of collecting vintage luggage and itโ€™s not budging, so Iโ€™m sitting here going through 1000 possibilities one number at a time. ๐Ÿ—๐Ÿ—๐Ÿ— . . . . #collector #luggage #traincase #thishurts #raproblems #spoonieproblems #600sofar
๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ I full on biffed it while trying to take these pics ๐Ÿ˜‚๐Ÿ˜‚ Iโ€™m talking full blown flipped in the air, fell on my back, wind knocked out of me, waited ten minutes before realizing I was still alive, biffed it ๐Ÿ˜‚It was worth it though, cuz sheโ€™s freakin cute ๐Ÿ˜๐Ÿ˜ . . . . . . . . #raproblems #autoimmunemom #autoimmunedisease #marinewife #toddlermom #momlife #itwasworthit #biffedit #sandiego #andalilbeauty #usmcfamily #2yrold #fallincali #momfail #itsdefinitelymonday #monday
Last week, I stayed up past bedtime to join two other mommies and talk about being a mom with RA on the Mommyโ€™s Juice Box Podcast. I promise, itโ€™s not a sob-fest. In fact, they start every episode with a โ€œDid you want to kill your husband this week?โ€ segment. ๐Ÿ˜‚ Spoiler alert- I did want to kill him. My episode was called Warrior Princess Momma, but check out their other episodes as well and subscribe! Mal and Melisa, thank you for having me on, I had a blast! #RAWarrior #MommysJuiceBox
After almost 3 weeks away Iโ€™m reuniting with this babe ๐Ÿ˜ I still look at her this way. Thank you for coming to take care of me even at 30 years old. #RAproblems #bestfriendgoals . . . . . . . . . #mama #sunday #family #oldie #tbt #boston #newyork #love #bff #bestfriends #love #laughter #sundayfunday #sundayvibes
This Fridayโ€™s cocktail hour came early! These treatments are never fun, but I have a smile on my face anyway because this medicine will get me through another 6 weeks of living with this disease. Canโ€™t stop fighting! #RAwarrior
Breakfast ๐Ÿ˜ #RAproblems #painbegone
Oh HI winter! I think you cut in front of fall so please move back 6 weeks! Thanks from a body so not ready. #coloradocold #falcon #freezing #fireplaceison #RA #raproblems #rheumatoidarthritis #jointsdontlikethecold #sostiff
Shout-out to the caregivers. Iโ€™m so lucky to have a strong group of family and friends to support me when I need it. But this guy, he sees it all. From 10 days postpartum when I woke up with the most unbearable pain Iโ€™ve ever experienced, to calming me when Iโ€™m not seeing reason, to going in to work late on mornings when I canโ€™t get myself or Cadence ready, to reminding me how strong I can be on days when I donโ€™t even want to get out of bed. Caregivers take on the disease by choice, and I canโ€™t thank him enough. #WorldArthritisDay #RAWarrior
My RA is really taking a toll on me this year, so I invested on some ergonomic hooks and compression arthritis gloves. The hooks are amazing. Trying the gloves out for the first time tonight, but just putting them on relieved some of the ache #raproblems #ra #ifthisismythirtiesimscaredofoldage
Right!! I'm trying to get up & get ready for work but it's not working out ๐Ÿ˜’ I just want to lay around all day. #fatigueallday #fatiguesucks ๐Ÿ‘Ž #ineedenergy #stupidra #raproblems
RA is a weird disease. Some days, I can barely get out of bed. Others, I can kick butt on a paintball field. Every day is a different battle, but Iโ€™m proud to be a fighter. #RAWarrior
Looking for more ResLife content now that both episodes have premiered? Donโ€™t worry! More behind the scenes photos, videos, and interviews to come! . . . . #savethecox #reslifebestlife #reslife #youtuber #comedy #lol #saturdaysarefortheboys #saturdaysareforthegirls #collegelife #collegefootball #raproblems #collegehumor #college #collegegirls #collegeboys #420 #beerpong #imshmacked #bong #bongrips #highthoughts #webisode #saturyay #saturdayvibes
Makeup Sunday. Look a little less like death. Wonโ€™t be wearing it to work though. 20 minutes of wasted time. I like sleeping. #raproblems #ra #nofilter #autoimmunediseases #fibromyalgia #chronicillness
THE WAIT IS OVER! The #reslifeshow PART TWO is now streaming on #YouTube ๐Ÿ“ข Watch it now -- we know you need something to binge while you do 2 months of laundry. Hey, it's okay. The ResLife #webseries airs out its dirty laundry in this #episode too. . . . #newepisode #savethecox #reslifebestlife #reslife #youtuber #comedy #lol #saturdaysarefortheboys #saturdaysareforthegirls #collegelife #collegefootball #raproblems #collegehumor #college #collegegirls #collegeboys #420 #beerpong #imshmacked #bong #bongrips #highthoughts #webisode #saturyay #saturdayvibes
After a couple days of no rain I had actually started to feel better. Now I feel like the tin man again. I really donโ€™t like rainy weather. #pleasestopraining #walklikethetinman #potentialRAproblems #RAproblems #RAflare
Our opening title sequence was one long tracking shot -- which meant no cuts allowed! We think we did a good job of capturing each character's personality in this take. What do you think? . 3 MORE DAYS TILL PART TWO DROPS ON #YOUTUBE โ€ผ๏ธ . . . #webseries #newepisode #reslifeshow #savethecox #reslifebestlife #reslife #youtuber #comedy #lol #humpday #humpdayhumor #saturdaysarefortheboys #saturdaysareforthegirls #collegelife #collegefootball #raproblems #collegehumor #college #collegegirls #collegeboys #420 #beerpong #imshmacked #supportindiefilm
Another day, another dollar.... Keep going! Things are becoming easier since I have been taking the cbd oil. I'm always so tired but lately I've noticed I have a little more energy to keep going. Maybe it's giving me a couple extra spoons a day..., ๐Ÿค”๐Ÿฅ„๐Ÿฅ„๐Ÿฅ„ #motivation #KeepGoing #keepgrowing #keeptruckin #dontstop #getit #cbd #hempie #spoonie #ranoutofspoons #spoontheory #raproblems #invisibleillness #goodvibes #goodhealth #mentalhealth #stopbigpharma #natural #naturesmedicine
LINK IN BIO โ€ผ๏ธ . Welcome to Sycamore Springs University. The residents are loud, the parties are out of control and the RAs are... doing their best. And by best, we mean anywhere from the bare minimum to wildly inappropriate. Watch the chaos unfold on #YouTube now -- PART ONE IS READY FOR #STREAMING ! Make sure to subscribe to get alerted for part two! . . . #webseries #newepisode #reslifeshow #savethecox #reslifebestlife #reslife #youtuber #comedy #lol #saturdaymorning #saturdayvibes #saturdaysarefortheboys #saturdaysareforthegirls #collegelife #collegefootball #raproblems #collegehumor #college #collegegirls #collegeboys #420 #beerpong #imshmacked
Me. This past week or so. I've been busy with errands and work and my body is so over it. My hands and knees are aching and I want to just sleep into next week. For the most part I've been able to stick to my calories but it's been a rough go at it since my pain is usually when I eat for comfort. I keep reminding myself that, the more weight I lose the better I'll feel with that extra pressure off my bones and joints. . . . #fit #fitfam #fitness #newme #timeforachange #motivation #momlife #workingmom #mom #weightloss #goals #walkingwithbaby #fattofit #fitmom #livingwithRA #rheumatoidarthritis #warrior #raproblems #rawarrior
The RHD & RAs keep a lot hidden from residents, but we were able to show...this? . Watch the full teaser at (https://youtu.be/EtQLcvvSi-w) . . . #instacomedy #comedy #comedyvideo #youtubeshow #youtuber #youtubechannel #theoffice #parksandrec #barstoolsports #reslife #reslifeforlife #reslifebestlife #reslifeproblems #raproblems #doordecs #webseries
Fatigue sucks! Mine is awful today ๐Ÿ˜ž I slept a lot but I still feel so weak ๐Ÿ˜‘ #fatiguesucks ๐Ÿ‘Ž #weak #mybodysaidlaydown #raproblems #chronicillnessproblems #fatigueallday #fatiguealwayswins ๐Ÿ˜ก
Would the staff do it with a co-worker, marry their boss, or kill each other during a 3 AM shift? . Watch the full "F*ck, Marry, Kill?" teaser at (youtu.be/9vHNhfc4Eek)! . . . #youtube #love #webseries #episode #series #comedy #indiefilm #supportindiefilm #trailer #creators #college #collegegirls #collegelife #collegehumor #reslife #reslifeshow #raproblems #ralife
Nothing but the truth! Other spoonies... Isn't it easier to just say I'm fine??? #truth #painalldayeveryday #thestruggleisreal #thepainisreal #lifewithra #rasucks #raproblems #ifyouonlyknew ๐Ÿ˜”๐Ÿ˜”๐Ÿ˜”
Weโ€™re going to talk about my toe for a bit, (swipe if you dare) and some of the weird unexplainable things that can come with RA/chronic illness. So my toes have bothered me incessantly the last two years, the nails will go months without growing, the pain is awful, I take very good care of them and put spacers in them to help realign the bones every now and then. For over a month though, one on my right foot has been hugely swollen, turned purple for a few weeks, and the pain was unbearable. I kept doing nerve blocks with ice. I held off for my rheumy appt where he tried to drain it, expecting pus, but it was full of blood and under a ton of pressure, he wanted to remove the nail and hopped over to my podiatrist who wasnโ€™t in that day, so I still have the nail. We did a round of cephalexin and then he referred me to follow up with my podiatrist across the hall, who today said that part of my condition and meds just means that things will take so much longer to heal and to not put it off in the future.
Conversations with myself while walking down stairs. Procrastination will be the death of me. #raproblems #rheumatoidarthritis
All week I have been planning to take care of myself... I was running on fumes. Last night I started to experience the worst #raflare since starting humira. Literally EVERYTHING hurts. Stuck in bed today...I usually push through but, today I've been sat down literally... #raproblems #rasucks ๐Ÿ‘Ž
Standard night time routine ๐Ÿ˜‚๐Ÿ˜‚ when you start using pain relief cream like a moisturiser ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ #RAproblems #RA #rheumatoidarthritis #chronicillness #chronicpain #healing #spoonie #sleepy #fatigue #spoons #invisibleillness
Preparing myself for the busy work week! Throw your legs up the wall... meditate... breathe. I spend 15 minutes like this... then spend 15 minutes trying to get up ๐Ÿ˜‚ #raproblems #my_ra_life #depression #anxiety #inflammation
Who says you canโ€™t have a cocktail while getting some work done? ๐Ÿ˜‚ Happy Thursday, everyone!
Infusion day! This is my last one on schedule and then I have them spaced out just a tiny bit more trying to align them more with my husbands work schedule because theyโ€™ve been lined up in a way that he cannot take me so it has been a pain trying to get here. Being independent and then having to rely on someone to take a whole afternoon every two or four weeks to cart you to an appointment is a huge adjustment and actually really hard to do. Hopefully this will be the last oddly scheduled appt. in other news, my beloved twelve month old meticulously kept @chihaircare dryer is kaput after developing a ball of fire inside the barrel much like the throat of Smaug before vanquishing an intruder after his treasure.
I just want to feel better. #raisabitch #raproblems #surving #butiwanttolive
Rain rain go away I am freezing today! #raproblems #autoimmunehates coldandrain
Accurate.... I cleaned all day yesterday and today I feel like crap ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ #raproblems #chronicillnessproblems #thestruggleisreal #cleanthensufferfordays #cleaningisbrutal #cleaningwithra
After much research and debate I am going to give this probiotic a try for two months. #rheumatoidarthritis #leakygut #whyarethingssoexpensive #highhopes #bathroomwarrior #getoutofmyway #raproblems
Today, I wore makeup and went out for the first time in a week, and I felt SO pretty and it felt so weird every time I saw myself, and tonight when I took it off, I still felt pretty, which I think can sometimes be a hard to reach place when you are constantly battling yourself each day, and it can be easy to forget that behind the pain and the schedules and meds, youโ€™re still you, whether you are covering it up to appear โ€œnormalโ€ or not(whether itโ€™s concealer or a brace or special socks or sleeves for your many sticks, whatever), you are beautiful, you are worthy, you are irreplaceable. This is your reminder, from me to you. ๐Ÿ’™
What is my MOST PITA thing that happens to me daily? Dropping something flat on the floor! I have it figured it out for the most part, but still..... #pita #wheelchairproblems #raproblems #rheumatoidlife #everydaywithra
When you try to work out.... ๐Ÿ˜’ shoot or even clean ๐Ÿ˜ก #raproblems #chronicillnessproblems #thestruggleisreal #beingfitwithraisastruggle #mybodyhatesme
Dear RA, Today you are well and truly doing me in. Just one day pain free is all I ask, one day I don't wake up stiff and swollen after being up half the night in pain... Just one day I don't limp as I take my children to school... Just one day without a horrible migraine I can't shift. One day I have the energy to do the things I want but also do what I want without knowing I'll suffer even more the next day.... Please RA just give me break ๐Ÿ˜ฉ๐Ÿ˜ญ๐Ÿ˜ด #rheumatoidarthritis #RAwarrior #chronicpain #fatigue #invisibleillness #rheumatoid #rheumatoiddisease #autoimmunedisease #chronicmigraine #depression #anxiety #swollen #stiffjoints #raproblems #flareup #immunesystem #chronicfatigue #limp #tired #sickandtiredofbeingsickandtired #fightforacure #badraday #fedup #badday #struggle #struggleisreal #givemeabreak #newbodyneeded
Iโ€™ve been a little MIA lately. Iโ€™ve been taking advantage of these quieter days, (and staying out of the heat!) spending them writing grants and working on the launch of something BIG for ENC, the culmination of one of my big dreams from my top three plan last year. I DID get taken out by my lovely hubs for a movie ๐ŸŽฅ , gelato ๐Ÿจ, and a starlit walk on AB last night though which was so nice. I keep running little fevers the past month, annoying, uncomfortable, but Iโ€™m working through it, hoping itโ€™s a phase that will wear off because otherwise I am doing fine on the Orencia thus far. I had some reservations about sharing my persistent fevers the last few weeks; at nationals there were concerns over my abilities to represent & commit with my condition, and that makes me really sad, but if you are a follower then you would know to never question my ability or commitment to my work and my cause, and sharing every step of the way, good and bad, has been a huge part of building my story and platform. Yes, I have a chronic illness. No, it does not define me, nor will I allow it to limit what I plan to accomplish on this path. Reviresco, I grow strong again. ๐ŸŒฑ
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