Rain rain go away... come again never!
K thanks ☔️🌧💦💨
I used to fight the rain it made me swollen,achy, cranky, & just an all around unpleasant person to be around. 😘
Life throws us things everyday, even rain we can’t control. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
When I workout and eat well I have control over one thing, HOW I FEEL ⠀⠀⠀⠀⠀⠀⠀⠀⠀
For years I covered up my symptoms with presidone, enbrel, humeria, plaqunil, meloxicam, methotrexate, xeljanz, and the list goes on and on.... ⠀⠀⠀⠀⠀⠀⠀⠀⠀
I’m still on medicine but I’ve been able to lower my daily cocktail of big pharm. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
I’m not Mother Nature and I can’t control the weather, my immune system, or the germs I’m come in contact with everyday as a teacher. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
What can I control? What’s the point? Everyone has control over their daily habits. Start small. Go on that walk, start eating more vegetables, get some sunlight ☀️ because we all know your just a plant. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
These small daily habits are why I’m able to do a workout on a cold rainy day, with no pain. I remember the days I could barely get to work on time because I would be swollen and unable to get out of my own way. If I can do it with my old lady joints, you can too ✌🏼❤️
Small changes + consistence = success
Last week, I stayed up past bedtime to join two other mommies and talk about being a mom with RA on the Mommy’s Juice Box Podcast. I promise, it’s not a sob-fest. In fact, they start every episode with a “Did you want to kill your husband this week?” segment. 😂 Spoiler alert- I did want to kill him. My episode was called Warrior Princess Momma, but check out their other episodes as well and subscribe!
Mal and Melisa, thank you for having me on, I had a blast! #RAWarrior #MommysJuiceBox
This Friday’s cocktail hour came early!
These treatments are never fun, but I have a smile on my face anyway because this medicine will get me through another 6 weeks of living with this disease. Can’t stop fighting! #RAwarrior
Shout-out to the caregivers. I’m so lucky to have a strong group of family and friends to support me when I need it. But this guy, he sees it all.
From 10 days postpartum when I woke up with the most unbearable pain I’ve ever experienced, to calming me when I’m not seeing reason, to going in to work late on mornings when I can’t get myself or Cadence ready, to reminding me how strong I can be on days when I don’t even want to get out of bed. Caregivers take on the disease by choice, and I can’t thank him enough. #WorldArthritisDay #RAWarrior
My RA is really taking a toll on me this year, so I invested on some ergonomic hooks and compression arthritis gloves. The hooks are amazing. Trying the gloves out for the first time tonight, but just putting them on relieved some of the ache #raproblems #ra #ifthisismythirtiesimscaredofoldage
RA is a weird disease. Some days, I can barely get out of bed. Others, I can kick butt on a paintball field. Every day is a different battle, but I’m proud to be a fighter. #RAWarrior
We’re going to talk about my toe for a bit, (swipe if you dare) and some of the weird unexplainable things that can come with RA/chronic illness. So my toes have bothered me incessantly the last two years, the nails will go months without growing, the pain is awful, I take very good care of them and put spacers in them to help realign the bones every now and then. For over a month though, one on my right foot has been hugely swollen, turned purple for a few weeks, and the pain was unbearable. I kept doing nerve blocks with ice. I held off for my rheumy appt where he tried to drain it, expecting pus, but it was full of blood and under a ton of pressure, he wanted to remove the nail and hopped over to my podiatrist who wasn’t in that day, so I still have the nail. We did a round of cephalexin and then he referred me to follow up with my podiatrist across the hall, who today said that part of my condition and meds just means that things will take so much longer to heal and to not put it off in the future.
All week I have been planning to take care of myself... I was running on fumes. Last night I started to experience the worst #raflare
since starting humira. Literally EVERYTHING hurts. Stuck in bed today...I usually push through but, today I've been sat down literally... #raproblems #rasucks
Who says you can’t have a cocktail while getting some work done? 😂 Happy Thursday, everyone!
Infusion day! This is my last one on schedule and then I have them spaced out just a tiny bit more trying to align them more with my husbands work schedule because they’ve been lined up in a way that he cannot take me so it has been a pain trying to get here. Being independent and then having to rely on someone to take a whole afternoon every two or four weeks to cart you to an appointment is a huge adjustment and actually really hard to do. Hopefully this will be the last oddly scheduled appt. in other news, my beloved twelve month old meticulously kept @chihaircare
dryer is kaput after developing a ball of fire inside the barrel much like the throat of Smaug before vanquishing an intruder after his treasure.
Today, I wore makeup and went out for the first time in a week, and I felt SO pretty and it felt so weird every time I saw myself, and tonight when I took it off, I still felt pretty, which I think can sometimes be a hard to reach place when you are constantly battling yourself each day, and it can be easy to forget that behind the pain and the schedules and meds, you’re still you, whether you are covering it up to appear “normal” or not(whether it’s concealer or a brace or special socks or sleeves for your many sticks, whatever), you are beautiful, you are worthy, you are irreplaceable. This is your reminder, from me to you. 💙
I’ve been a little MIA lately. I’ve been taking advantage of these quieter days, (and staying out of the heat!) spending them writing grants and working on the launch of something BIG for ENC, the culmination of one of my big dreams from my top three plan last year. I DID get taken out by my lovely hubs for a movie 🎥 , gelato 🍨, and a starlit walk on AB last night though which was so nice. I keep running little fevers the past month, annoying, uncomfortable, but I’m working through it, hoping it’s a phase that will wear off because otherwise I am doing fine on the Orencia thus far. I had some reservations about sharing my persistent fevers the last few weeks; at nationals there were concerns over my abilities to represent & commit with my condition, and that makes me really sad, but if you are a follower then you would know to never question my ability or commitment to my work and my cause, and sharing every step of the way, good and bad, has been a huge part of building my story and platform. Yes, I have a chronic illness. No, it does not define me, nor will I allow it to limit what I plan to accomplish on this path. Reviresco, I grow strong again. 🌱
Flashing it back to April, in Mexico.
I have never shared any of these “earned” photos because I absolutely HATED them.
I picked apart every last bit of how I looked, how I felt, and why I chose this or that to WEAR on that day.
Then I reframed, because GRATITUDE.
What if I had never EVER learned to change my situation?
. ☄️Would I be here?
What if I wouldn’t have worked my ass off to EARN that paid trip?
. ☄️Would I feel FOMO for that?
What if I hadn’t hustled EARLY that month to change 5 different women’s lives?
. ☄️Would I have even had the chance to stand and photo shoot with the trainers that completely transformed my world?
The answer to those is like this:
☄️No. I would not be HERE, embarking on my second full year as a full time work at home entrepreneur who earns the trips and changes the world. Key word, EARNS it. I work hard for these little bonuses, they aren’t a scam, they don’t just fall from the sky, they are blessings.
☄️Yes, if I was self-aware. I would WANT to immerse myself in EVERY aspect of my business, and missing that trip, or any trip for that matter, actually does give me FOMO. I have a deep LOVE for the business I run and the people I help.
☄️No, I would have given up on myself before it got good.
Don’t do that. Don’t pick yourself apart for things that are complete blessings in this life. Sure it’s Friday, and you’re feeling excited for the weekend. What if the weekend was whenever you felt like it? What if it wasn’t restricted to two days following the f word?
Perfection is something that will never exist, just like the “right” time, best results, or waiting until Monday. Life is now, and it is happening for us. Finding more guidance in that is always an option....so is hanging together on next year’s cruise, you just have to jump!!
We all have them … insecurities about our bodies: I’m too fat. My butt is too big. Why can’t I have abs like her’s?
Throw that self-doubt out the door and stop comparing yourself to others. LOVE YOURSELF for who you are because that’s what makes you unique!
Loving yourself means treating yourself right, so if there’s something you want to improve about your health and fitness, do it – but do it for YOU – not for anyone else.
I’m starting an 8 week challenge dedicated to helping a people like you achieve their health and fitness goals. Let me know if you’re interested because I am interested in helping YOU!
#selfie #nofilter #happylife #healthylife #fightingmydemons #raproblems #modify #dontgiveup #wevegotthis #beachbody #2bmindset #lift4 #joinme
Of the 54,000,000 Americans affected by arthritis, 300,000 of them are children
“You’ve got a friend in me!” I cannot say enough about how thankful I am to have the lovely Dawn in my life, as my friend, photographer, fellow mom, who was my caretaker and child wrangler today, spoiling me with strawberry sweets 🍓 and an afternoon by the pool after my infusion and trailing E and B all afternoon. She is truly such a blessing and was placed in my life last year at an art event and I mean, what are the odds? ♥️ and I’ve got my sister queen, Molly, Mrs Florida AD, with me, see the sparkly blue crown 👑
My lab this week with Patients Like Me was a bit of a bust. My veins decided to be shy and not cooperate so my blood draw was unsuccessful. PLM is one of my favorite programs that I participate in because it connects patients to others with their conditions and some of us get to contribute to their lab program which collects samples to be studied in research facilities such as Johns Hopkins or Astrazeneca where they work to develop better treatment options and hopefully a cure! Their DigitalMe program also helps you track how you’re managing your illness and how different activities might affect your progress. I’m rescheduled for next week so here’s hoping for a successful draw! ♥️
*this is my stomach*
For those who may not think I have that much loose skin let me show you this little bit. ▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴▴
I am finally back on Humira to help ease my flares from RA. Lately (and for the past 6 months) I have been flaring every day. Some days worse than others but flaring everyday nonetheless. This won’t help it immediately but we’re hopeful that with some time that this along with some other meds, that I will be able to push my RA to the back burner. Here’s hoping 🤞🏽!
Also thanks to my love @a_chef_has_no_name
for always giving me my shots because I just CANT!
Patient is not a word often used to describe a toddler, but this morning, Cadence exhibited a tremendous amount of patience.
I woke up with an RA flare up in my hands and wrists. Because of the pain and lack of mobility it took me 30 minutes to get her diaper changed and her clothes on, about 5 minutes to get her hair brushed, another 5 to get her strapped into her car seat. She went to daycare where her teacher put her hair in a ponytail for me because I couldn’t. Throughout the process, she didn’t cry or whine. She patiently sat there and let me get her ready.
Days like today are never easy, but the patience she exhibited reminds me to be patient as well. Patient with my bodys limitations, patient when frustration creeps in and patient when it feels like the pain won’t stop, because eventually it will pass. You’re my little ray of light Cadence, thank you for being you. #CadenceJane
Monday was the journey home from FL➡️NC. We have some amazing friends who were there with a hand in an hour of need, miles and miles away. On the trip north, we encountered four storms, I think, including hail in NC, as if we needed reminding that we’re for sure back in NC with the crazy weather, we saw rainbows, and the cutest Cheerwine bench halfway through SC. I managed the last two nights in FL splitting my most important meds in half with a pocket knife, and made it home to have my weekly methotrexate only a few hours late. Between the reduction in meds and the long car ride, I was so sore and stiff and feel on fire even now. New rule: bring the pharmacy, just in case.
Sunday-Monday was our extra unplanned day in Orlando, and as far as places to be stranded, we could have done worse! Michael headed back to NC with Logan in tow with friends of ours that happened to be at Disney as well, the girls and I had breakfast, caught “The Greatest Showman” in the theater downstairs, spent the afternoon at the pool, and used an UberEats discount from my newly made Uber account to order in Chinese during a movie marathon in our room.
Friday morning was my first real appointment with the chiropractor. We went over my films and the doctor’s assessment and plan for me. I managed to snap one of the films when I was alone in an office waiting (and emailing back and forth arranging a teleconf for Monday, always working) though I wish I had copies of the other three. I have some scoliosis, many misaligned or turned vertebrae, my c-spine, where it is supposed to slightly curve, is perfectly straight from the side view, and at the bottom, the discs are bone on bone. After my first adjustment, my range of motion in my neck was so much improved, I can actually look down. I wanted to sleep on it before posting. I’ve just been really sick the last couple of days. Thursday was doctor, bath, chiro, fundraiser. Yesterday was chiro, nap, bath, blueberry festival. Today was lash lift, packing, nails, nap. My endo has been acting up the worst the last twenty four hours and it needs to just chill out so my heating pad and I can part ways. 🤞🏻
This morning was a visit to my GP which ended with a referral to a chiropractor in the afternoon just before my fundraiser this evening! I had assessment, with many of my vertebrae notes to be out of alignment and had more X-rays taken and spent some quality time with the TENS unit. I go back in the morning to go over my films and begin some sort of pathway towards feeling better! My RA complicated things a bit so approaching this takes some finesse. This pain is so intense and is causing the rest of me to start freaking out from the stress of it. I did manage to tint my brows and got my toes polished between chiro and fundraiser, so I’m catching up on yesterday!
Well...this isn’t how I planned to spend today. Today was brow/lash/toes day and after my morning (low impact) exercise and daily dose of HGTV I started was suddenly assaulted by severe lower left back pain around my SI joint area that would not stop. It felt like I had been whacked with a Morningstar. After about forty five minutes of the heating pad and some stretching, I added in ibuprofen and continued the heating pad and stretching, texted Hubs that I may need to go in as I was now bracing and holding my breath against the pain. My daily pain is usually around a 6 and this was crossing the 9 level which I just can’t do. He came home and left a message...or three.. with my GP’s nurse as to if they wanted me to come in or go to urgent care as it wasn’t relenting and I was balled up in bed unable to find any way to make it subside. We finally went to express care and I got a tour of the new ER Facility that opened last week and had some X-rays, which all spoonies will expect to show both big, no surprises, nothing abnormal in urine sample aside form dehydration and my usual high ketone level. I ended up receiving Valium and a shot of Toradol, which affected me in no way, so after a while I have received my first shot ever of morphine which is making me fuzzy in the head and beginning to dull this awful pain but it is certainly still there. It feels like a rupturing ovarian cyst it is just in the wrong spot. As someone who is in pain every single second of my life, for something to take me down like this is a really big deal. It takes a lot for me to make a fuss about something as most things, I know, are just my body rebelling against itself, and to go out without my hair or face.