I’m gonna let ya’ll get right into the story. But we’d shared Advocacy Alliance Member: Nicole’s @_intheloop_
about this disease as well. What’s interesting about Katie’s journey is how she wanted to act “ok” & hide it, like nothing was bothering her, physically. This hiding led to more problems, emotionally & physically, & now instead she is putting it all out there for herself & others! Welcome, Katie!
“I was diagnoised in 2017 with Lupus SLE, Discoid Lupus, & that was a shock to my family & myself. My life forever changed that day. I would forever battle a disease I won't win. I was going to be taking drugs daily, sometimes 14 pills a day, that would wreak havoc on my body. On the outside, I put on a smile & tried to keep positive. Because I didn't look sick physically, people around me thought lupus was a fakers disease. That felt shameful, which made me feel even more like I had to hide who I was & what I struggled with. .
July 1, 2018, I dropped to the ground with a preforated ulcer, one that has a 50% mortality rate, which was caused by autoimmune suppresesnt drugs, the steriods, & stress. I was making myself sicker by trying to be okay.
I was rushed into surgery & had 15 mins to live due to the severity. My stomach acid was eating my internal organs from the hole that’d been created from ‘being ok’ all the time. When I woke up I had a 12 inch scar from where they had to pull my entire internal organs out to clean out my body. I'm 30, I was not okay, I was not fine. I decided that day I would not let anything stand in the way of allowing myself to be okay. I would yell it to the rooftop if I had to. This was not going to kill me.
I rememver laying in that hospital bed hating my life & everyone around me because I didn't understand what I had done to deserve this. Lost my job, my health, time with my daughter, more health complications. Why me? Then on the third day I realized it should in fact be me - & for the best reason. I was gonna tell my story & share the good bad & the ugly. I was not going to be (⬅️for remainder)
🤙#Lupus #Scars #Strength #Advocate #Blogger #OpeningUp #Real #Raw