The Cancer Scare 💔
After all the tests & the diagnosis of MS, I was on the road to recovery in hospital with treatment of an IV Methylprednisolone daily. On the 3rd day of treatment during the only hour window I was on my own (as my husband had to drop our daughter off), my neuro team came into my room at the hospital & sat down with sombre looks on their faces. They proceeded to tell me that they got my results back from my LP fluid that was taken from my spine & they have discovered a population of cancerous B cells. They told me that they suspect I have Hodgkins Lymphoma.
My whole entire world was turned upside down & I felt as if my soul left my body in that very moment.
They explained they need to do further tests & discuss with a haematologist team but they will be suspending my MS treatment & will give me further news once it’s at hand. I was left there alone on my bed in tears with three other elderly patients in beds next to me just listening to me sobbing behind the curtain.
I didn’t know what to do. I called my husband & he sounded like a broken man who was holding back the tears...it killed me! I then called my parents who were on their way to a well deserved weekend away (which they were very hesitant to take in the first place due to what was going on but I forced them to go & reassured them I was fine) and they were just in shock.
I then just covered my face with my bed sheets and tried to cry myself to sleep. Within half an hour, I had a tap on the shoulder & my husband & all of our parents were there to rally around me to cry together.
My father in law thought it would be funny to “borrow” a fancy display wheelchair from the store downstairs & bring it up to me to take me for a spin as I could barely walk with the loss of feeling from my waist down. This day soon turned into a day I won’t forget as some devastating news turned into a memorable day with my loved ones.
The medical teams decided the diagnosis wasn’t conclusive & I would need to be re-tested in two months time. I had to go through scans & lumbar punctures all over again in late Jan of this year & nervously awaited the news.
***Continue reading in the comments*** ⬇️
My No. 1 supporters 💕
My husband and I have been together for 10 years now and married for just over 3.
Together we have achieved so much but the birth of our daughter 16 months ago was by far our greatest achievement.
When I was first experiencing what I now know were MS symptoms, my husband didn’t once doubt my concerns and was so emotionally and physically supportive through those testing times.
After many visits to the hospital over the period of a week where I was being told over and over to just take their referral to see a Neurologist to be tested outside of the public hospital system (which would take months to even get in to see them), I’d had enough and wanted answers now!
Through a relative on my husbands side of the family (thanks to my father in law), we had a contact who called one of the hospitals and raised alarm bells for me to be seen and admitted until I had answers.
I was finally admitted and a bunch of tests lied ahead of me that night. A 2 hour MRI scan of my brain and spine, a CT scan, a very traumatic lumbar puncture, countless tubes of blood taken and the list goes on. The next day I had the diagnosis ... I had Multiple Sclerosis!
And you know what?! My husband was by my side every single day of those ten days I was in hospital and every day since. He would drive over 40 mins every day to arrive at the hospital at 7am and drive back home at 10pm. He would sit in the most uncomfortable chair at my bedside and kept me distracted from what was really going on. This of course was made easier with the massive help of our amazing parents whom took on the job of juggling our daughter and her needs and also bringing her in to see us when we needed that moment of pure happiness just being in her presence.
It was times like that, that you truely appreciate what you have and what a blessing it is to have such an amazing support network ☀️
#multiplesclerosis #ms #reality #reallife #scarytimes #husband #daughter #love #lovemyfamily #familyfirst #hospital #sick #mswarrior #livingwithadisability #livingwithadisease #neurologicaldisorder #instagramers #instatag #blessed
- This is what we saw last October but we had no clue what it was while driving on 101 freeway to see a movie! The next morning our lives all changed with fires everywhere! When we all posted about this or called the news ... everyone’s posts were deleted( by who?) and the news & State Farm insurence called me basically crazy. No one will ever convinced me these California fires are global warming! It’s ARSON... WAKE UP PEOPLE SOMETHING IS GOING ON THESE PAST 2 YEARS! #terrified #scarytimes
wild Santa Ana winds in California
I took a few shots of the smoke over Los Angeles from my place . The first one was from today at 4.30pm - the 2nd one was yesterday at 4.00pm - The 3rd one is from Saturday at 4.00pm and the smell of the fire was so intense that day too ... it has been quite an intense time . I can only imagine what all the people who lost or don’t know if they lost everything feel . What an inspiration are The Firefighters . Thank you for your undeniable strength and endurance that you have been displaying everyday since it it all started ! Thank You !!! 🙏 #woosleyfire #scarytimes #sadtimes #losangeles #california
These are a few of the pictures that I look at every year. I haven’t shared them because to be honest, they make me pretty emotional. But the top two pictures are right before and during the cesarean...The bottom two are right after everything happened. I woke up from the emergency hysterectomy and asked to see the babies first thing. I was obviously not as ready as I thought. I was completely drained and you can see that I had absolutely no color to my face like something traumatic just happened. It’s still kind of scary to look at these pictures and think that the time difference between these pictures is just by a couple of hours. I had them at 9:24am and everything was done and had happened, hysterectomy and 2 blood transfusions before 1pm! I’m so incredibly blessed and thankful that I had the doctor that I did. I don’t think I would be here today without him. ❤️ #DrByrkeBeller #HeIsTheBest #Blessed #ScaryTimes #HappyToBeAlive
Soooooo...this is what has been going on in my life over the last couple of weeks....and even now I keep having moments of "holy sh%$ what am I doing". But yeah, I have worked in my current job for just under 16 years but have been unhappy for awhile so decided to get off my chunky butt and do something about it. I am now working my notice and will start my new job in a few weeks. #lifechanges #scarytimes #excitingtimes #lifeisarollercoaster
We step out of the theater- Bohemian Rhapsody was pretty good!
But to step out and see the hazy and smell quite literally a toxic breeze. -
I can’t help but think of all those homes at risk or gone. And all that property turning to ash.
So strange when life altering events happen how we look at photos from just a few days before and see ourselves as so naive and innocent. How do we ever know what the future holds in store for us? We simply don’t and must deal with what is handed to us. Life can sometimes be scary, in more ways than we imagine.
Thoughts and prayers going out to those victims of the bar shooting and also the destructive fires here in California. Looks like my brother and family no longer have a place to call home.
#woolseyfire #californiafires #prayforcalifornia #huntingtonlibrary #scarytimes #californialiving
PLEASE help us pray for all of us here in Southern California as no State in the Union is perfect and here in sunny Southern California we have fires and earthquakes. I want to send all my prayers out to all I know and all I don't know to those who have had their lives destroyed with these ravishing flames. They are still not contained and very close to where I live but my thoughts and prayers are with all today and always. As a sidebar though I WISH in the months of May-September they would have Billy Goats out on the hills eating the brush as this could truly alleviate a lot of this problem. ALSO, a huge THANK YOU to the wonderful firefighters who do most dangerous, incredible, amazing work during these scary, stressful times. WE WILL get through this as we always do! #calipride #califires #wewillovercome #scarytimes #wetakecareofeachother #wecometogether #risingfromtheashes #stressfultimes
Went up to Chico to help my parents with their move to Lake Almanor- didn’t realize we’d be semi-evacuees- luckily they secured our area of Southeast Chico but felt scary last night and this morning - so sad for all the loss #campfire #chico #scarytimes
Photo from my phone couldn’t capture the proper orange color of the sun. The smoke in the air is a sad reminder of the fire raging near Chico, praying it gets contained quickly. Sending prayers to all involved including the brave firefighters. #californiafires #millvalley #orangesun #scarytimes #california
thinking of all the people affected by another catastrophic fire 🙏🙏🙏
Today’s been hard and as a mother having to explain shootings on the regular is becoming insane. I can’t imagine being a parent not knowing where my kid is then having the cell phone ping that they are inside the building still. I watched news coverage and seeing a grown man sobbing about his son was heartbreaking. As a parent you do imagine what if? And it’s gut wrenching thought to have cross your mind. To the parents out there having to explain this on the regular I feel your pain, and all we can do is educate them to some extent, but to what extent I don’t even know. How many times do we have to see this on the news?