#spoonielife

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Have you ever seen fear or anxiety depicted in a more cute image?! I know he’s just chewing on his nuts most likely but he looked how I feel on occasions! Reality is I despise fear and anxiety… Too often it taps me on the shoulder as I edge towards sleep and it can bring the darkest of thoughts that utterly mess with sleep and my head in general, resulting in a difficult day ahead. When living with a chronic illness you definitely have to have a plan about this - a way that you take on those thoughts and hide them, change them, do what ever you need to do to make sure you keep seeing the light in life. What is truly good. We’ve got an article on our blog about how to feel better - ways in which people living with chronic illnesses have found their happy, distracted themselves or just found a great source of distraction that can maintain a feeling of positivity. It’s on today’s profile link. There is also a blog on ways to empower your support network to help you if you need a little help in getting there - so important not to be afraid to ask for help. * Please do share your thoughts too. After a sleepless night I would love to hear others suggestions as to how to keep the night demons away. In the meantime - I’m loving the squirrel!!!
This is me today. After a week of coping with physical issues and fighting the accompanying anxiety, today is a day where I am so tired, physically and mentally, that I just burst into tears continuously from feeling overwhelmed. I know I’ll be okay, but today I must accept that it’s a day of tears more than a day of smiles. It’s okay to have days like that. We all get overwhelmed at times, perhaps we do more often than others, and we need to give our bodies and minds the time and space to feel the emotions it feels without fighting or judging them. That is also a means to heal. Much love to you if you are also having a teary day💕⠀ ⠀ [Image description: a cat lies on a bed with a comfy-looking floral duvet, covering its eyes with its paws. Over it the words: ‘Some days are filled with more tears than smiles and that’s okay (it sucks! But it is okay)’.]⠀ ⠀ #spoonie #spoonielife #spooniewarriors #chronicillness #illness #invisibleillness #chronicfatiguesyndrome #cfsme #cfs #mecfs #ibs #gravesdisease #autoimmunedisease #autoimmune #fibromyalgia #fibro #menieresdisease #menieres #anxiety #healthanxiety #vertigo #fatigue #migraine #chronicpain #tinnitus #hearingloss #mentalhealth #awareness
#Repost @chronically.crazy ・・・ I need your help!! 🤞🏽 About 23 years ago I was diagnosed with endometriosis, pcos & dysmenorrhea. First of many diagnoses. First of many surgeries. Since then I have been diagnosed with arthritis, degenerative disc disease, scoliosis, nerve damage, a necrotic nerve in my spine, stenosis, bpd, ptsd, generalized anxiety disorder & panic disorder, I have had two TBI’s (traumatic brain injury) and I have undiagnosed seizures. I received a diagnosis of fibromyalgia about 5 years ago but now my doctors are thinking that is incorrect and that I have MS. I have 3 MRIs scheduled. October 11th I have a full hysterectomy scheduled. After that my neurosurgeon is trying another spinal injection to see if it helps me get back on my feet, or at least helps to curb the constant pain and slows the numbing from spreading. If it doesn’t he wants me to consider another back surgery 😩 I have been in bed again for a month, waiting for a wheelchair, unable to work and provide for my family, unable to buy my medications. So here I am asking you for help. If you’ve read this far, just for that, I appreciate you! 💚🙏🏽 Any donation helps! And if you can’t donate, spreading the word would be a great help too! 👍🏼 Thank you! Bless up! 💚✌🏼 Link in Bio ✌🏼💚 https://www.gofundme.com/sorensmedicalfund #spoonie #spoonielife #chronicillness #chronicpain #pain #recovery #healing #gofundme #share #instagood #love #cannabiscommunity #420 #710 #sorensmedicalfund #thecharmedmisfit #chronicallycrazy 💜🤪 @RepostIt_app
Friend to the rescue from looming birthday depression. Hung out, had an absolutely incredible dinner at @fezoncentral then went to see The Nun. What's a bday without being scared by deadly things?? I even fought of a migraine that tried to ruin the movie for me! Thank you so so so much to my friend Kristen for taking care of me tonight. You, my friend, are awesome! #birthday #birthdaygirl #friends #illbethereforyou #fezoncentral #thenun #thebig38 #mybirthday #celebration #spoonielife #chronicillness #disabled #migraine #depression #phoenix #arizona #lesbians #butchfemmefriends #lgbt
Day 8 of #30daysofflowers and completely forgetting what I said yesterday I decided to use Neon Gel pens today because I can! I love how it turned out, the brightness somehow makes the flower look even happier. I know what I mean 😂 #adultcoloring #adultcolouring #mindfulness #spoonielife
Yesterday morning it was all I could do to take a shower. But my fibromyalgia flare did not trigger a migraine so ya!? #SpoonieLife
So I’m trying a new med. ( Provigil )Modafinil 100mg - one in morning and one at lunchtime.... it’s meant to help reduce the continual fatigue that is ripping my life away from me. Doesn’t help with pain tho but one step at a time. Anyone tried this? The reviews I’ve read online is that it’s brilliant!?!? Happy Hump Day Chronic Warriors xx #fibromyalgia #fibroblast #fibro #spoonie #spoonielife #spoonieproblems #chronicillness #chronicpain #chronicpainwarrior #invisibledisability #invisibledisease #chronicallyill #whatsyourlabel #cbd #modafinil #fatigue #chronicfatiguesyndrome #cfs #disability #whatsyourlabel
Injecting 4 times a day, 27 tablets a day, heat pads, TENS machine, opiates daily, anti seziure medication, cool packs, laying down most of the day, using a walking stick, using a wheelchair, broken mentally - this is what this disease makes me endure every day and sometimes I cope, other days I'm completely lost, I wish it was easier, I wish there was an answer, I wish I could get help 💛 #spoonielife #chronicillness #tarlovcystdisease #meningealdiverticulumcyst #spinalcordinjury #spinalnerves #spinaldecompression #nhs #nhnn
Tonight I taught my first yoga class since finishing my diploma exams earlier this month. Another milestone achieved. This photo was the sky before class, it was a good omen. I'd love to hear what milestones you have reached this year. Or something you are pleased about getting done recently. Lots of love and energy to you all, I hope your body and mind are kind to you today ❤Claire xoxox Tag a friend who needs to see this post or would enjoy my account 💗. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable. Link in bio for my new Get Creative book- Unlock Time and Energy so you can fit Creative Activities into Your Life (whatever your life looks like….). DM me your email address and I will add you to my Little Letters newsletter for a discount code for September. #spoonieyoga
I see your strength and courage, as you rise every day to battle your chronic illness 💗 #wisdomwednesday #warriors
We've all felt a little incompetent, insufficient, overexposed, helpless, unlovable, terrified, defective, unfit and unsung at times. And deep down, for whatever reason, you might even think you deserve to. Because why else would you be feeling that way. Like the world is laughing at you.- • I promise you it's not.
Rest day breakfast*. I struggle with my rest days because it feel like it is such an indulgence at times. I am lucky enough to be able to compress my work hours in such a way that I have two days off a week.Trial and error has taught me that I need at leat one day of very little physical activity in order to rest and recharge.I didn"t have that luxury (imagine, physical health is still termed a 'luxury' in my min) when my children were small but they are all in school now. (Happy dance....ironic considering that I had thought that I would homeschool but life got in the way.) Anyway... When I manage this CONSISTENTLY, I have rest dsys where i feel well enough to do ALL THE THINGS. However, if I skip that day, my body soon let's me know about it. If I don't give in and I rest, I feel guilty and lazy. Its a hard one.Thankfully, it's out of my hands today because I'm really tired. So, fluffy blanket, book and rest it is! I think I'll manage.... *Scrambled eggs with spinach, feta and avacado...so delicious. . . .#mentalhealthrecovery #mentalhealth #spoonielife #sober #soberlife #foodforhealth #lupussucks #invisibleillness #chronicillness #healing #recovery
😮 it’s only the middle of the week 😫 #wednesdaywisdom is to have a #bath tonight to soak all my #achesandpains 💜💚💜 Blah blah fuckity blah 🙄...fuck!🤬 #celiac #fibromyalgia #chronicillness #chronicpain #witch #writer #bookworm #spoonielife
My slightly stressful morning (knocking a full bottle of water off my bedside table seconds after I woke up, and it missing all my electronics by inches), was made a thousands times better by seeing this when I came of out my bedroom 😍 #catsofinstagram
Sitter life 🤟🏻 . [Image description: Max, a white nonbinary person stood in a client's kitchen. There are two cats, Sparky and Pancho in the background. Sparky is mostly white with some brown patches, and Pancho is mostly brown with a white crest. Max has their hair scooped back in a bun, and they're wearing their favourite orange jumper and glasses to match] . . #cats #catsofig #catsofinstagram #cats_of_instagram #catstagram #catsitter #catinaflat #petsitter #bestjobintheworld #ilovemyjob #sidehustle #selfie #glasses #updo #disability #ASlife #fibromyalgia #eds #pots #dysautonomia #cripplepunk #disabledandcute #babeswithmobilityaids #spoonielife #chronicpain #lgbt #queersandcats #queer #trans #nonbinary
Do you have a health condition that has lasted 6 months or more? Do you use information or digital technology? Researchers at Swinburne University of Technology are doing a research project to learn how using technology influences people's health and well-being. To participate, visit: https://tinyurl.com/IT-ME-Swinburne The survey takes 10-15 minutes. Thanks for your support and sharing your experiences. #chronicinsta #chronicpain #chronicillness #lupus #migraine #endometriosis   #fibromyalgia #spoonie #chroniclife #spoonielife #autoimmunedisease #chronicfatiguesyndrome #depressionsurvivor #anxietywarrior #beingincurable #youngandchronic #invisibleillness #spooniesunite #diabetes #asthma #arthritis #cancer #COPD #Epilepsy #PCOS #heartdisease
The very lovely @meemoface challenged me to take part in the #makeupandasmile campaign started by @lifeoflittlethings. . The idea is to show that make-up and a smile can hide a great deal of invisible illness - and chronically ill people can face judgement or disbelief of the challenges they face just because (say it with me) "you don't look sick!" . The first pic shows me a couple of days after I got my hair done *for the first time in over a year*. The second shows the reality of the other 364 days 😂. . I have depression, chronic daily headache/migraine, sleep problems and it seems I'm on my way to a diagnosis of ME/CFS. . If I want to go out on Friday, I need to wash my hair at least a day or two before because I don't have the energy to shower, wash and dry my hair, get dressed and apply make-up all in the same day. Let alone do all that and then go out to socialise 🙈 . If I do spend time with friends or family, it only takes about 30 minutes of conversation to bring on crushing head pains which can easily last for 6 hours. 4 hours out of the house will mean 48 hours of reduced ability to function. . And still these are the good times! Because the most debilitating illness I fight is depression. Self neglect (not bathing, wearing clean clothes, brushing ones teeth etc) is an indicator of depression but low self-esteem, anxiety and guilt can drive us to put on a mask of normality before we go to our doctor/therapist/benefits assessment! - If I am made up, with clean hair and clothes society judges me 'able' - you cannot SEE that I spent the last 10 days eating and sleeping in the same outfit. You can't SEE that this is the only time I ventured out of the house for a month. You can't SEE that my legs are shaking from fatigue. You can't SEE that my head feels like it is being crushed in a vice and I am experiencing tunnel vision. . I hope this doesn't sound like a bid for sympathy - I just wanted to add my voice to the collective in the hope that we can ALL try to treat everyone with kindness. You truly have no idea what battles they may be fighting. . I would like to pass the challenge to my eloquent friend @dobbyak - if she wishes to join xx . . .
Relaxing with Gilmore Girls. This will always be one of my fave shows! 💗👌#gilmoregirls #lorelaigilmore #rorygilmore #chronicfatiguesyndrome #myalgicencephalomyelitis #spoonie #spoonielife #tv
Hey y'all🐾 Thank you for following me and my humom. We 💜 love ❤ you (((((H💛U💙G)))))<~that much💞 . . ⏬Follow our PAWPALS⏬ @lunahoney_serviceangel @lucy_the_service_dane @service.dog.dakota @_evening_colors_ @teamingwithlife @littleredservicedog @iamsampup @venus_pink_pibble @storm_the_bean_sized_sdit @service_boxer_quinn . . 🌠Please participate and follow our PAWPALS🌠 We'd love to be PAWPALS with you! But we aren't currently taking Pawpals😢. We are still accepting Pawpals to our support group, DM if you'd like to be added😊. . . 🐾💜🐾💙🐾💜🐾💙🐾 . . ⭐🥄 🥄 🥄 🥄 🥄🥄 🥄 grab 1 if you need it. I'd give my last 1 for you!⭐ . . #sdpoodle #ownertrained #sdlife #seizurealertdogs #spoonielife #medicalalert #medicalmess #SDIT #beencouraged #poodlesofinstagram 🐩 #servicedogsofinstagram #mollypoodlelove #pibblesofinstagram #adoptdontshop #dontbullymybreed #trainedandmaintained #servicedogteam #teamforlife #lupusbattle #purplebutterfly #fibrowarrior #spoonie #pawpalssupport 🐾
Trying to hold on to happy times when chronic illness takes so much and hubby’s work takes it’s toll on family life #livingwithchronicpain #livingwithchronicillness #rheumatoidarthritis #fibromyalgia #hypothyroidism #depression #anxiety #workwidow #rawarrior #spoonielife #spoonie #notenoughspoons
Morning all! Hope your day is going bless!...I swear I have nothing left in me to give! Lol...everything that goes in is coming out!...I mean I know that's the normal operation of bodily functions but between pissing every 10 minutes and being dehydrated...and swiftly ejecting food stuffs (If ya kno what I mean!) I am an empty skin bag! Lol...eyes are sticky...swollen lips...pain in every quadrant!...doctors tomorrow!...let's see what they can't do for me eh! Lol 🤢☹🤗💜 #fibro #fibrowarrior #chronicpain #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #spoonie #spoonielife #fibromyalgiaawareness #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me #copd #depression #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife
Day 6 of the #soulfoodchallenge @riverandquill I HAVE to go out today, even though I want to just pull the duvet over my head and stay cosy all day. I also want to cook a roast dinner today. Therefore, I’ve brought the veg to the bedroom and I’m prepping it in bed 😉 I’m doing what I can, with what I have, where I am. Hopefully I’m saving enough spoons 🥄 to go out and do the things in the cold wet world that I need to do! ^Stacey #saveyourspoons #fibromyalgia #caceylake #wanttostayinbed #itsraining #dowhatyoucan #lifehacks #spoonielife
My mums brief for treatment day was ‘just keep snapping no matter what’ This was 3 hours in when I started feeling like I was going to spew 🤢 • It’s a really ugly photo (the angles are sahhhh wrong and there is way too much going on 😂) but I’m so glad my mum got it because I think it’s super important to show that I may always be smiling but it doesn’t mean there aren’t times that this shit doesn’t suck. • Pretty sure at this point I was freezing, breathing through the nausea and trying to think about anything other than spewing all over myself. I may have even been thinking about where am I going to enjoy an espresso martini next #guiltypleasure #whenshitgetsreal • Thank you everyone for all your beautiful messages - I am feeling much better today 🙏🏽❤️
Being close to someone with chronic pain is hard in a different way. Here is a long letter for your partner, family and friends to help them understand your situation better. It lets them know how grateful you are for their help as well as thoroughly explains how they can help you. Get 2 1/2 pages long letter to your email over at atpeacewithpain.com! Link in bio 🌼 and let me know if there is something I forgot x
Waiting rooms of the world... 🌎 Today, I wound up leaving work early to spend around 3 hours having a bunch of tests because my specialist thinks I have c-diff. Looking at the list of symptoms from Dr Google, it makes a lot of sense! I've never had c-diff before, even though I've been dealing with gastro issues for most of my life! Do any of you lovely people have tips for dealing with it? Maybe even pointers for quicker recovery? Please and thank you 💜 #hospitallife #xray #bloodtest #spoonielife #inflammatribe #invisibleillness #autoimmunedisease #chronicfatigue #chronicillness #chronicpain #ibd #crohnsdisease #ulcerativecolitis #endometriosis #pcos #diabetes #heartdisease #fibromyalgia #ankylosingspondylitis #rheumatoidarthritis #arthritis #asthma #lupus #potssyndrome #waitingroom #cdiff #pleasehelp #pleaseandthankyou
Over the past four weeks i have had two lots of purpura rashes appear on my legs and some sporadic bruising and very minor gum bleeding. After visiting my GP three times in the last three days for testing and results i was referred on for a trip to A & E today for having a platelet count of 25. For those of you who don’t know i was diagnosed with my first chronic illness idiopathic thrombocytopenia purpura at the age of 15. This occurs when your immune system attacks your platelets. Symptoms may include easy bruising, bleeding and pinpoint-sized reddish-purple spots on the lower legs. Serious and fatal complications only occur when platelets are below 20 (and fortunately for me this hasn’t been the case for well over 7 years). I have been lucky enough to be in remission for the past 6-7 years with no symptoms at all which is amazing. Over the next six weeks i will be attending the hospital every week for blood tests and close monitoring by heamotology . Fingers crossed my body will repair itself without any steroid treatment (and the joys of the nasty side effects). Invisible illnesses sure do have their downsides. From the outside in you wouldn’t think their was anything wrong with me at all. My positive for today was spending two hours chatting away to two grandads laughing about their old age and their tickers they have to keep them going. It’s amazing the people you can meet that put a smile on your face in a waiting room 😀😀 #invisibleillness #spoonie #spoonielife #invisibleillnessawareness #raisingawareness #invisibleillnesswarrior #itp #bloodtests #platelets #chronicillness #chronicillnessproblems #doctors #moreappointments #morefollowups #chronicillnesswarrior #fighter #nevergiveup
Tive a sorte de ter professores na faculdade já em 2001 a me ensinarem estes princípios. Tratamento * não crie dependência * não faça o PCT acreditar que é fragil * não assuma a recuperação como sendo sua * não culpe coisas como postura, imagens ou outras condições anatómicas p/ a dor (a menos que justifique) * não exclua o PCT do processo de tomada de decisão * não assuma que o PCT saiba o que está acontecendo com seu próprio corpo. Repost from @trustmephysiotherapist - First we have to know what not to do, then we can focus on what we should do. We have to unlearn a lot of stuff. With most of the points, you can try to do the opposite. Make people independent, feel strong and robust. Know and explain that there are a lot of factors influencing pain and not only one simple (anatomical) thing. Great post by @karenlitzy : ・・・ “When working with people with persistent pain keep these ideas in mind with your treatment plans. 👍👍 . There is always so much you COULD do but it is just as important to remember the things NOT to do 👍👍 . Thanks to @sandyhiltonpt for her contribution to and inspiration for this short list. Please know there are many other things NOT to do this is a good start. 👍👍 . If you are a person living with pain make sure your healthcare practitioners are not doing this! If you need help and guidance please DM me...happy to help👍 . . —————————————— #chronicpain #spoonie #spoonielife #chronicillness #chronicallyill #chronicpainwarrior ” - #regrann
I have 2 new videos currently up on my YouTube channel. Links will be in my description #vlogsquad #disabled #spoonielife #spoonie #fibromyalgia #fibrowarrior #hypermobilitysyndrome #cripplepunk #cpunk #hypermobilitysyndrome #chronicallyill
Back to basics for me. I find this book useful for health planning. I'm not a fan of 'cures', but this book gives me useful prompts for managing my health, particularly physical health. Will list a mental health book tomorrow. #spoonie #chronicillness #spoonielife #chroniclife #spooniesurvivalkit
In Wal-Mart yesterday and there are 5 barking #fakeSDs in the store. I see a manager and I stop him because one of the dogs had lunged at my SD. It was a mixed dog weighing maybe 15 pounds. I had had enough. The manager proceeds to tell me, "as long as they have their gear on, or tags, or their certification then they are allowed in our store because they are real service dogs." SKREEEEECHHHH HIT YOUR BRAKES AND DON'T TAKE YOUR FOOT OFF!!!! I was livid but took the time to educate the manager who didn't realize you could buy a vest and tags on Amazon or eBay, etc. Then I covered the certificate mess. He was shocked. I was like, "pick your chin up off the floor dude." He asked that I call the head office so I can do a training for all of the local stores. He took my business card and before I could call the number he gave me, they called me. Excited to educate people who are so confused. . . ⏬Follow our PAWPALS⏬ @lunahoney_serviceangel @lucy_the_service_dane @service.dog.dakota @_evening_colors_ @teamingwithlife @littleredservicedog @iamsampup @venus_pink_pibble @storm_the_bean_sized_sdit @service_boxer_quinn . . 🌠Please participate and follow our PAWPALS🌠 We'd love to be PAWPALS with you! But we aren't currently taking Pawpals😢. We are still accepting Pawpals to our support group, DM if you'd like to be added😊. . . 🐾💜🐾💙🐾💜🐾💙🐾 . . ⭐🥄 🥄 🥄 🥄 🥄🥄 🥄 grab 1 if you need it. I'd give my last 1 for you!⭐ . . #sdpoodle #ownertrained #sdlife #seizurealertdogs #spoonielife #medicalalert #medicalmess #SDIT #beencouraged #poodlesofinstagram 🐩 #servicedogsofinstagram #mollypoodlelove #pibblesofinstagram #adoptdontshop #dontbullymybreed #trainedandmaintained #servicedogteam #teamforlife #lupusbattle #purplebutterfly #fibrowarrior #spoonie #pawpalssupport 🐾
4:15 AM EST. Laying in bed listening to The 1975. I'm letting it guide me through the pain so I can try and sleep...i have so much to do and not enough time to do it. But I can't do any of it unless my eyes agree to stay closed. So tired of hurting. #spoonie #spoonielife #ehlersdanlossyndrome #ehlersdanlos #myedshurts #fibromyalgia #dysautonomia #interstitialcystitis #arthritis #hipdysplasia #hipfai #chronicmigraines #headache #stomachache #nausea #cantsleep #chronicpain #chronicillness #the1975 #mattyhealy #love
Um yes.. I hate having to tell people I will need to wait until closer to the time to confirm if I can go to something! #willieverhaveenoughspoons ? #spoonielife #countingoutmyspoons #MyalgicEncephalomyelitis #meandlivingwithit
Breakfast out & a catch up with Jayne. But what can I get away with food wise. Hmmmm. Testing reactions to foods this week. 🍁 🍄 🍂 🍄 🍁#breakfast #pub #friends #endosisters #spoonielife #endometriosis #positivevibes #health #diet #ovaries #painrelief #pain #arthritis #spinalfusion
Painsomnia. “When it hurts to sleep. When your bed hurts you. When your pillows hurt you. When lifting covers and sheets feels like a ton of bricks” . “Lord please help me be positive and have faith that this pain will not last forever” - #rawarrior . “God I pray that those who are suffering with Autoimmune Illness seek comfort in your remembrance” . 🤲 Mashallah everything will be okay
First we have to know what not to do, then we can focus on what we should do. We have to unlearn a lot of stuff. With most of the points, you can try to do the opposite. Make people independent, feel strong and robust. Know and explain that there are a lot of factors influencing pain and not only one simple (anatomical) thing. Great post by @karenlitzy : ・・・ “When working with people with persistent pain keep these ideas in mind with your treatment plans. 👍👍 . There is always so much you COULD do but it is just as important to remember the things NOT to do 👍👍 . Thanks to @sandyhiltonpt for her contribution to and inspiration for this short list. Please know there are many other things NOT to do this is a good start. 👍👍 . If you are a person living with pain make sure your healthcare practitioners are not doing this! If you need help and guidance please DM me...happy to help👍 . . —————————————— #chronicpain #spoonie #spoonielife #chronicillness #chronicallyill #chronicpainwarrior
https://medium.com/@afflicted /open-letter-to-netflix-regarding-the-afflicted-docuseries-d2b5263c9eb6 . . This is the open letter to Netflix to remove and make official apology for the documentary Afflicted. Apologies this is not a link. Copy and paste into your internet browser. It brings up the open letter, it's high profile contributors and an opportunity to sign at the end. Thank you, Emma. #spoonie #spoonielife #wellbeing #anxiety #wellness #mentalhealthawareness #spoonie #spoonielife #myalgicencephalitis #lymedisease #disabilityawareness
On my way back home from #arizona , I had to stop and get my favorite treat: pickle pear cactus honey. This stuff is seriously delicious and very IC friendly! #interstitialcystitis #ic #icwarrior #icdiet #chronicillness #endowarrior #endo #endostrong #spoonie #spoonielife #broken #shopping #az #azlife #phoenix #vacation #traveltuesday #trackandfield #cactus
Getting back to knitting because the joint pain in my hands is finally feeling better. I’m slowly getting back to what my “normal”/“semi-functional” life is. It’s crazy how MY normal is so different from the person next to me. But I’m working on not comparing my normal to someone else’s. And only worrying about me and striving to be the best version of myself day in and day out. #lymesucks #lymelife 💚 #spoonielife #lymewarrior #lymedontkillmyvibe
💖 Wore this pair of slippers all summer at the market. 👣 Well, not THIS exact pair, but same style. 😉 Figured they’d be really visible. 😎 And wouldn’t you know, it was my best seller. 💁🏻‍♀️ If I had more feet I’d do really well. ☺️ You’ll find these in the Slipper Shop in the Heart of Montana section. 💖 Yep, that’s Montana on the side — for you non-northwest US folks. If I lived in California I’d have a problem ... 😉 Link in the profile. 👆🏼
Oops I did again... Celebrating one of my favorite Spoonie! ❤️❤️❤️🌺🌺🌺🌺 Art heals the soul if not the body... .Send you bi es of love my Spoonie friends. Tip for creative spoonies: painting on small canvas allow you to paint in comfy position. They weight few so for people like me who suffer a lot of hands, and can't keep weighting objects it's bearable if not totally painless. The issue is more about eyes and not trembling... . . . #picoftheday #creative #creativity #createeveryday #spoonie #SpoonieLife #arthritis #asthma #migraina #allergies #spinepain #staypositive #arttherapy #creativespoonie #arthealsthesoul
IC Awareness Month Fact #8 : your side needs to know! Do not suffer in silence. If you are experiencing symptoms, your doctor may have answers or can refer you to a specialist who can find them. #interstitialcystitis #ic #icwarrior #icdiet #bladderpain #bladderpainsyndrome #bladderhealth #pelvicfloor #pelvicpain #chronicillness #chronicpain #pain #endowarrior #endo #spoonie #spoonielife #sick #doctor #urology #ask #research #tellthem #cure #healthy
Были мы на ярмарке органических продуктов на Контрактной площади в Киеве. Для меня всегда считался продукт органическим,это тот,который не только был выращен в экологических условиях,но и сама технология производства этого продукта должна быть так же натуральной и не вредить здоровью. . Что я увидела на ярмарке. Самое первое что "бросилось в глаза", это цены,они были неоправданно высокими. На прилавках стояли различные продукты,от овощей до растительных масел,кисломолочки и мяса,даже сало было,но это совсем отдельная тема. Так вот,к примеру,мед,в пластиковой таре,на солнце,о какой полезности может идти речь,если мед при контакте с кислородом теряет свойства свои,а при дневном свете и итоге становится просто сладким сиропом,без целебных свойств. Кисломолочка,в составе одни грибковые закваски и дрожжи, масла растительные,ребята,цены на них капец. Льняное,кунжутное, подсолнечное и т.д. масла можно купить даже просто в супермаркете,в аптеке,и в разы дешевле. . Одним словом ярмарка меня не порадовала своим разнообразием органических продуктов.
🌸🌼🌺 Another beautiful fall garden — this time on campus. 💁🏻‍♀️ Walk by it every day and never stopped to take a closer look. 🙄 Mega Zinnia patch! So pretty. 🤗
Well, it’s that time already. I’m heading back to St.Pauls for yet an other admission. I’ve kept this one a little quiet, and that’s only because so much rides on this admission. I haven’t been 100% honest with how much health has been in the last month or so, and that’s mostly because I haven’t come to terms with it yet. But also, I think if I don’t say it out loud, maybe there’s a chance I can change it still, and this silly conversation I had to have with people would have been pointless. So if it’s going to be pointless, then I’ll save you all and I’ll just get better so we don’t have to have that conversation. I love these boards. I leave little messages for Ben and the kids (George and Izzy) from time to time, but I thought it would be fun to have a count down to when I’ll be home, each day they can change the number, and each day I’ll be 1 day closer to being back with the people I love the most. So without saying too much, please send me all of your healing vibes. This girl could really use them 💜 #cysticfibrosis #hospitallife #hospital #cf #themighty @cfcanada @themightysite @cf_foundation #goodvibes #fingerscrossed @letterfolk #spoonie #spoonielife I will keep you all updated. So let’s all hope for positive updates 💪🏻
Hello folks! 🌻Endoblossoms🌻 is a project I've been working on for more than a year. It's still a process, and it won't be perfect right away. . . . Update coming soon ! . . Best regards- Cecilie Isabella 💛 . . . #EndometriosisAwareness #Endopain #Endohell #Endosistersunite #Endosisters #Endosøstre #EndEndoForUs #WeAreWarriors #MyEndometriosisJourney #Chronicpain #ChronicpainWarrior #Spooniesister #Spoonielife   #Zombiemode #WeAreTheWalkingDead #IAmTheWalkingDead #Endosisterpower #Endobellysisters #Endoproblems #IAmOneInTen #AskMeAboutEndo #EndoAdvocate #Exhausted #PTSD #Depression
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