#spoonielife

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Ahh the fun of heart rate going up to 150 and being out of breath just getting dinner (a Microwave sandwich lol and milk) and also your laundry out of the dryer. The 146 is after I’d just been bending to do that and carrying it into my room then the slightly lower is me going back to the kitchen (because I’m determined to walk around when I can and do little exercises when I can) was totally out of breath but took a moment before going back for food (still standing but taking a few breaths and that better it) then the 103 is just sitting down and the 98 is sitting down a bit longer and feet fully up on bed. I’m still undiagnosed and we kind of have a few other important things to worry about as well but still gonna document these. My resting heart rate has been in the 90s today anyway and more the hearing the swishing sounds in my head (tinnitus...which I’ve always had off and on, once in awhile ringing but mostly pulse like sounds... I’ve always before put it to sinus and my hearing issues as a kid but 🤷🏼‍♀️) so that’s that #Spoonie #spoonielife
Because there is not enough awareness of autoimmune diseases and what takes away from us #lupus #fibromyagia #pacemaker #seizures #staystrong #spoonielife
EMPOWER. Love yourself enough to set boundaries. Your time and energy are precious. You get to choose how you use it. #Diversability • • • [Image Description: in black text on a white background, “ Love yourself enough to set boundaries. Your time and energy are precious. You get to choose how you use it. - Anna Taylor” At the bottom, centered in block text #diversability and the Diversability logo in black.]
When you’ve been “sick” for as long as I have, I sometimes forget to appreciate that even with everything going on, I’ve survived 100% of what’s been thrown at me so far, and I (and my body) can survive this too. ✨ Today I gave my poor, broken body a hug and said silently, “I love you. I forgive you. Thank you for carrying me this far”. . I WILL beat this Lyme thing, but dang is it hard and I can’t do it all on my own. Please click the link in my bio and consider donating if you’re able or sharing the fundraiser with someone who might want to help.
Taking advantage of the 3 day weekend with Virtual Reality 💙
Last minute sleepover, 💛 Abby wanted her cousin to hang out, and since tomorrow is no school - it's a sleepover! I used to see him daily, before/after school, since he caught the bus from the stop in front of my house. But this year, he switched school districts. And I miss him!! All his middle school swag, fart jokes, and floss dances, ;) . And after being sick and mucho uncomfortable this week, with a big scoop of frustration dealing with Drs and the ER -- having these two and their silly shenanigans totally lifts my spirits and fills up my heart. Love these weirdos. . So, I made a quick run over to @papamurphys to grab goodies -- half pepperoni for little guy/half Hawaiian for wild child, plus breadsticks, and Smores pizza for dessert. #loveat425 #papamurphys 💛💛💛 . We're cooking 'em now. At 3pm. For.... linner. Lunch-dinner. Lol. Because battling on Xbox requires fuel. ;) . #januarychallenge Day 20: #Dinner + #fmspad . #pizza 🍕 #familyfun #easydinner #tiredmomma #wherethetiredgirlsare #momlife #singlemom #chronicillness #chronicpain #spoonie #spoonielife #spoonies #pizzanight #makeyourownfun #makeyourownmagic #makelifegood #mommahood #momlifeyo #familynight
My Saturday night 🤦‍♀️ After coming home from the Womxn’s March in Denver, I was stretching to crack my back when I suddenly got severe stabbing pains inside my left ribs that made it difficult to move and breathe. The pain spread to my shoulder, giving me a “dead arm” sensation. I was terrified that it was the lung condition pleurisy, a common lupus-related inflammatory issue, so we rushed to urgent care. Long story short, it (thankfully) was not pleurisy but rather a muscle strain (lol, ugh). Doctor’s order is rest, pain meds, and heating pads 🔥 I’m glad that we went to urgent care anyway. I don’t want to take any chances with my health. It was such a relief to learn that it’s nothing serious. Have other spoonies had any scary false alarms?
Don’t tell me you feel bad for me; tell me I’m a warrior 💜💜💜
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I don’t like making these types of posts. I hate it with every fiber of my being. But this is reality... this is the raw TRUTH. Life with chronic illness isn’t glamorous. Nothing about it is fun. It’s not cute little kids riding on their IV poles like scooters in hospital hallways. It’s not the smiling hospital selfie you see your friend take to distract themself from the fact that their insides are on fire. The past month and a half has been nothing but draining and frustrating. I am EXHAUSTED to say the least. I’ve been having horrible fatigue spells that leave me bed bound most of the time and make me sleep much of the day and night away (a lot of why I haven’t been posting as much because I don’t feel well enough to). Some moments, I can’t even lift my head off the pillow. Because of this, I’ve also had to use my wheelchair a lot more. I pretty much stopped eating most solid food and the only thing I’ve been able to really hold down well is soup. The pain when I eat is excruciating and the nausea is even more unbearable. If I have one bite of regular food, my stomach becomes super distended and painful. My CRPS has spiraled out of control. I begin my next round of treatment really soon, and as much as I hate how I feel during and the next few weeks after, I’m ready to get it over with already and I’m hoping and praying to find some relief after that. The last round was ineffective since I had gone so long since getting treatment from the shortage, and ketamine infusions need to build up in your system. I’m getting a lot of weird reactions/allergies to random things that I’ve never been allergic to before (thank you, MCAS). And I’ve just been so so weak. Utterly weak. Most of the time, I’m dizzy and I’ve been blacking out much more frequently. To sum it up, I’m a mess right now. I’m sorry this isn’t a happy update. I am trying so hard to be strong and stay positive, but it’s okay to not be okay sometimes, too. It’s okay to be vulnerable. But even in this chaos, I am finding grace. I am fighting with all of my might. And I won’t let ANYTHING stop me. These diseases have taken so much, but they can never take my spirit. I’m stronger than them. I WILL WIN THIS🦋
Exhaustion is forcing me to take sit down breaks in strange places, so Argos is practicing helping me get up💕🐾 . . #sdit #helper #dogtraining #positivereinforcement #clickertraining #lymie #lymelife #lymedontkillmyvibe #chronicillnesswarrior #lymewarrior #puppylove #puppytraining #dogsofinstagram #argos #ilovemydog #spoonie #spoonielife
Anyone else’s nerve pain and muscle spasms ratcheted up due to these single digit temps?
Hey guys, Me and Jack are back in our newly decorated room!! We’re so happy with how it’s turned out apart from some of the parts of the new bed frame not arriving so hopefully we’ll be able to sort that tomorrow. My mum, Jack and his dad have worked so hard and I’m ridiculously grateful. Having a clean, comfortable, lovely place to spend my time is so important as at the moment my bedroom is where I spent the majority of my days. Although I haven’t felt well today and things have kept going wrong (I’m literally so clumsy😩) I’m feeling so happy and positive about mine and Jacks new room☺️ this week I will be slowly putting my clothes and other bits and pieces back I just hope I can do it slowly and pace myself! Also sorry about the lighting in this video the tv is on in the background🤦🏼‍♀️ Sending love and spoons❤️🥄 #butyoudontlooksick #invisibleillness #myalgicencephalomyelitis #chronicillness #chronicpain #chronicfatigue #cfsme #spoonie #spooniesupport #spreadingawareness #spoonielife #canyouseeMEnow #mentalhealth #deppression #mentalhealthawareness #video #vlog #vlogger #videodiary #positive #weightlossgoals #weightloss #weightlossjourney ##weightlosstransformation #weightlossmotivation #rest #selflove #warriors #spooniewarrior #millionsmissing
Interested in more content and discussions like this? Take a minute to join my Facebook group Chronically Ill Entrepreneurs & Creatives (link in bio!). I’m looking to build a strong and vibrant community around our experiences! . . . . #chronicillnesscommunity #chronicillnesswarrior #selflove #heartcentered #womenoftheworld #bosswomen #ontheroadtofulltime #babeyougotthis #9tothrive #womenbusinessowners #femaleentrepreneurship #laptoplife #womenwithgoals #innerceo #gracenotperfection #spoonielife #spooniegirl #spoonies
Current situation. Thankful for a snowblower, a partner that can use it, Netflix, and lots of fuzzy blankets. #snowedin #spoonielife #spoonie
Freezing ❄...having trouble focusing😵...sleepy😴...and I have a mountain of homework💻 to complete by midnight🌙#snapchatfilters #photolab #spoonie #spoonielife #college #scatterbrained #overwhelmed #momsofig #momsofinsta #momlife #chronicfatigue #chronicpain #winterisbullshit #fuckwinter #momswhocuss #ugh #procrastination
Aaah. Almost asleep already. Goodnight lovelies! 😚 No sleep for 48+ hours n had to get professional compresses n shiz for a bad (yuck) wound. ...So I hope to sleep deep and long and dream about rainbows, butterflies and a world where things will be ok. zzz..... 😴😴#SuperBloodMoon#FullMoon #spoonielife #thespooniesisterhood #luciddreams #zzz #finally #sleeeeep
Dinner is served! Here’s a great vegetarian dish 🍽 . Sautée onions and garlic. Add crushed pepper and cumin and sauté. Add chick peas and sauté, then add spinach, chopped parsley, and diced tomatoes. Cook for 10 minutes on medium heat and when almost done, add salt, pepper, lemon juice, lemon zest, and manchego cheese. It turned out great! 😋👍🏼 . Making an effort to eat whole foods can increase nutrients and antioxidants in your body and reduce inflammation that can lead to heart disease ❤️ . . . . . . . . . #luroot #luroothealth #eatvegetarian #eathealthy #healthyliving #livinghealthy #wholefoods #spoonielife #spoonieproblems #chronicdepression #spooniewarrior #spoonielife #spoonies #chronicdisease #chronicillness #selfmanagement #selfcare #beinspired #healthspo #healthspiration #fitfam #fitspo #healthyfood #fitspiration #nursecindy #iammovingforward #vegetarian #vegetarianrecipes
Reposted from @boundtoglisten - Join Me for Free Class in NYC Jan 22nd! You can sign up online from link in my bio or send me a dm with you email address so I can send you the details for class and location specifics. In 2019 it is my mission to start controlling my EDS to the best of my ability and so far it is working out great! I would love for you all to join in on this with me and take back control from such a powerful condition. 💪 It takes time and the progress is slow, that does not mean it is not work the effort! Living your best life with a chronic illness should be possible for everyone and working out alone in pain sucks. So join me and we will work through this together and don’t get discouraged as it took me a year to get back to where I am and the pain still comes, the tears, the frustrations, the am I really doing anything but it works if you are consistent. On your lowest pain days is when you do the most strengthening so try that before just jumping in on a flare up day! I hope to see some of you in class next week 🎉 ps spaces are filling up for NYC so be sure to rsvp A portion of BTGs proceeds will go to @ehlersdanlossociety #linkinbio #booknow #dmme #freeclass #nyc #liveonline #personalgoals #letsdothistogether #findwhatworksforyou #itsajourney #strongmindstrongbody #setgoalsandcrushthem #persistencepays #chronicpainwarrior #chronicillness #chronicpain #chronicfatigue #invisibleillness #ehlersdanlossyndrome #spoonielife #spooniestrong #healthtips #medicalmarijuanapatient #cbdoil #naturalmedicine #boundtoglisten #chronicillnesscommunity #subscribenow
Welcome to Chronically Can! Our goal is to share stories of what chronic illness fighters CAN do! • Often times because we are sick we are told we can’t do things, but we can find ways to do what we want weather it’s just simply getting out of bed or following a passion started a job or college. • We want to show everyone that yes people with chronic illness fight through lots of symptoms, hospital stays and doctors appointments. However, we are more than a disease or condition, we are people with goals and dreams that we are following. • If you want to share your story how you Chronically Can, then just DM us and we would be more than happy to share your story here! #chronicallycan #chronicillness
⛅️Sometimes You Just Gotta Get Away From it All... Go Out & Get Some Sun ☀️ Actually, Relax on Your Days Off & Enjoy God’s Blessings🙏🏼👊🏼💯 Yesterday...My Husband and I Did just that, it was So Relaxing ✅ #LiveWithGuts #AutoimmuneWarrior #Autoimmune #autoimmunedisease #autoimmunewarrior #Cali #autoimmunehealing #spoonielife #spooniesupport #autoimmunewellness #VitaminD #autoimmuneawareness #Spoonies #enjoythelittlethings #invisibleillness #Relaxing #Chill #Meditate #autoimmunedisorder #Spoonie #Zen #SpoonieStrong #Nature #CaliGirl #sundayfunday #godsplan #Vibes #Blessed
ME is een ernstig invaliderende ziekte. Maar je ziet er niks van. Of toch? Met deze actie laten ME warriors wereldwijd hun 2 gezichten zien: het gezicht van dat ene goede moment en het gezicht van de uren en dagen die niemand ziet. 👥 . Wanneer je ME hebt, heeft je lichaam problemen met energie. "moe" is niet het juiste woord. Iemand die moe is, heeft nl meestal ook geen zin in een activiteit. Iemand met ME heeft dat juist meestal wel. Het is een actieve geest, boordevol plannen en inspiratie, gevangen in een lichaam dat totaal leeg is. Een Duracell konijn zonder batterij. Erg? Ja, maar het allerergste zijn misschien wel de vele andere symptomen die daarbij komen. Want het zenuwstelsel en het brein hebben ook te lijden onder deze ziekte. Gevolgen zijn neurologische storingen, problemen met ademhaling, hart of temperatuurregeling... Het niet kunnen verwerken van prikkels en informatie... De lijst is eindeloos. 😒 ME is geen nieuwe ziekte. Maar bij ons in Nederland jarenlang miskend en weggewuifd, met tragische gevolgen voor velen. Het treft miljoenen volwassenen, jongeren en kinderen wereldwijd. Zij verdienen het serieus te worden genomen. ❤️ ❤️ #raiseawareness #mecfs #TwoFacesofME #mecfswarrior #spooniewarrior #spoonielife #pwme #MEaction #chronicfatigue #chronicillness #fibromyalgie #chronicpain #raiseyourvoice #standingup #chronischziek #eerlijk #jewaregezicht #mecvs #memama #butyoudontlooksick #millionsmissing
anyone else feeling a bit of a caffeine buzz this morning? ☕️
The road to good health is never a straight line🏋️‍♂️ Anyone else get into a good flow of mostly good days and building strength only to hit a roadblock that sets you way back? In my case, the hubby got very sick over the holidays and ended up in the hospital for three weeks. Taking care of two babies and a very sick husband derailed my focus on self care - - slowly getting back to it. #selfcare #takingcareofme #healthgoals2019 #autoimmunedisease #ms #spoonielife #momfitness #staystrong #msstrong #multiplesclerosis #curems
Holy sweetness!!! . These are the real deal. So good! If you like Oreo's for the cream center...you need these in your life NOW! . And YES I had just 1 😋
Very excited for these beauties to arrive 😍 one of the best things about my improved health is getting to wear pretty shoes again because I’m stick/crutch free. #newshoes #monsoonaccessorizeme #monsoonshopping #velvetshoes #bows #thatcolourthough #vintagestyle #spoonielife #enjoyingimprovedhealth #hopeful
2 hours left of the clearance sale!! Although I may accidentally fall asleep and delete the items in the morning 🤣🤣😉 so take advantage while you can!! This amazing sweatshirt is the last in the clearance sale and it’s now £18!!!’ Instead of £30 and available up to size 5XL. Go go go because it isn’t staying lovelies ⚡️✌️😘
My first humira injection since the week before Christmas 😱 Its been a long month! I started with a cold so missed an injection, then my cold turned into an infection and despite seeing no less than 3 different doctors and nurses and having telephone conversations with 2 more, I didn't get antibiotics until 3 weeks after the initial onset. For saying how important it is for people with suppressed immune systems to get treatment quickly, they sure took their time! I currently have lots of pain and swelling in my joints. My eyes are sore and my psoriasis is becoming problematic again. The HS, which had pretty much cleared up after the first 2 injections, is starting to creep back in and cause me pain and discomfort. I managed an hour or two out this morning and now in properly shattered - very clumsy (proprioception issues from hypermobility syndrome) and ready for my bed. Humira hangover tomorrow 👍 but feeling so positive that it will help again! #psoriaticarthritis #psoriasis #hidradenitissuppurativa #pcos #Fibromyalgia #hypermobilitysyndrome #rheumatoidarthritis #pain #painmanagement #humira #adalimumab #chronicillness #chronicpain #chronicallyawesome #autoimmunedisease #spoonielife #spoonie #stayingpositive #medication #mobility #fightingback #painrelief #spooniesupport
Just finished a great restorative yoga class. Fitness is important and I love to lift weights and dance. I also love yoga, and when I’m not feeling awesome doing some slow movement yoga and stretching is great. #gymlife #spoonielife #spoonie #yogatherapy #movementtherapy #chronicpain #sundayselfcare #selfcare #sundaystretch #youvegotmoxie
Haven't quite made it to Netflix yet, but plenty of Outlander and football has been had today. Trying to recharge this faulty battery of mine a bit by taking it easy. How's your Sunday? #spoonies #spoonielife #spoonieproblems #chronicillness #zebrastrong #mastie #EDS #MCAS #POTS #POTSSYNDROME #PTSD #Gastroparesis #IBS #fibromyalgia #mecfs #InterstitialCystitis #sundaybumday #chargie
I wish doctors could experience the pain so many of us endure on a daily basis to see how life changing it is. . . How much it cuts you down to feeling like your completely useless. How it feels to have to be a prisoner of ones body stuck home unable to do much of anything forget about going out to enjoy yourself or do daily tasks, forget about family time, forget about being able to have a family, forget about sleeping, the list of punishments never ends..... . . Nope they just throw pills at you and then down play your pain when you say you won’t take them as you don’t want to become an addict. They’ll sit in that chair across from you and say I know what you mean when you explain your useless pain filled life to them but the reality is the don’t know a god damn thing about what we’re feeling or going thru because if they didn’t they’d offer to do more then they do. . . Patient in Patient out on to the next one make money money while we’re left to decay away.... . I just want a sliver of my life back that’s all it’s really not that much to ask for.... I know I’ll probably never live pain free but I just want to live, cause this shit ain’t living.... . . . #herniateddisc #herniateddiscs #bulgingdisc #bulgingdiscs #degenerativediscdisease #arthritis #ulcerativecolitis #inflammatoryboweldisease #asthma #cardiacarrestsurvivor #depression #anxiety #chronicpain #chronicillness #invisibleillness #mentalhealth #spoonie #spooniesupport #mentalhealthawareness #spoonieproblems #spoonielife #mylife #painispain #stuckinbed #dailyquotes #disabled #disabledlife #doctorsofinstagram #handicapped #chronicpainwarrior
Happy Sunday! Remember to love yourself today - be kind, be mindful, breathe in deep to energize yourself for a new week. 💕 . #reachouttogether #mentalhealthawareness #encouragetoexpress
Chronic Illness Photo Challenge Day 20: Advice for someone newly diagnosed : My goodness there are so many things I wish I had known before I was diagnosed or more so the long process of finding one. But here we go... This doesn’t have to define you and this doesn’t have to dictate your life. It will be an added factor and there will be a constant game of adapting to symptoms. But you are more than your diagnosis. You’re gonna want to give up. There will be days you say, “I can’t do this anymore.” and that’s okay, because It’s okay to not be okay especially when it feels as though your body is betraying you. Don’t let this stop you from doing things you love. Take advantage of the good days and give yourself a lot of slack on the bad ones. I’m not going to say it gets better but you learn how to manage. And if you let it, this difficult time will teach you so much and grow you in ways deeper than physical. : And when you’re listening to someone’s “medical” advice for the billionth time count to 10 before you explode. Accept their good intentions and filter everything. Remember not to compare yourself to others. Your journey is exactly that YOURS. : : : @chronically_inspiring #chronicallyinspiringchallenge #chronicpain #chronicillness #chronicillnesswarrior #spoonie #spoonielife #depression #ptsd #anxietydisorder #fybromyalgia #chronicpainsyndrome #reflexsympatheticdystrophy #celiacdisease #arthritis #gerd #Gastroesophagealrefluxdisease #ichoosehope #glutenfree #glutenfreelife #celiac #fatigue #chronicfatigue
This pretty much hits the nail on the head when it comes to managing multiple #chronicillnesses at once. #sicklife #chronicillnessishard #spoonielife #chronicconditions
Meal prepping for lunch this week. Chicken, broccoli, brown rice and grapes.
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January 15 when I went to Kärdla with my grandmother and got an x-ray of my hand 😊 Swipe for #arthritishands#spoonielife #rheumatoidarthritis #chronicillness #chronicpain #spoonie #hiiumaa #winter #winterstories #myvisualdiary
We went to the Women's March!! POWER ON!! And I thought it a good time to revisit all we've done in the disability community too, for our own rights. https://www.meriahnichols.com/a-short-history-of-the-disability-rights-movement/⁣ _⁣ _⁣ _⁣ _⁣ _⁣ _⁣ _⁣ _⁣ #365dayswithdisability #disability #disabilityawareness #disabilitypride #disabled #deafpride #downsyndrome #spoonie #chronicillness #spoonielife #ptsdawareness #cptsd #spoons #autism #mentalhealth #fatigue #chronicpain #ptsd #brainfog #anxiety #bipolar #meawareness #depression #PEM #TBI
I got some very special presents for her, I always choose gift based on if I’d like to receive it myself & obviously based around there likes/dislikes, how about you?? How do you choose gifts?? ___________________________________________________________________________________________ #edstype3 #fibromyalgia #nervepain #subluxation #chronicpain #chronicillness #livingwithchronicillness #livingwithchronicpain #parentingwithchronicpain #painsomnia #interstitialcystitis #monthlies #allergicreaction #allergictoeverything #mentalhealthawareness #mentalhealthmatters #endthestigma #honest #letstalk #northeastbloggers #zebrastrong #rare #spoonie #spoonielife #lifeinmybed #howmanyspoonstouse #gofundme #cbdvape #cbdlife
Update on what is happening. I am learning to appreciate life and spend more time BALANCING my schedule while working around my autoimmune diseases.💗 I have been enjoying my reseller business at Gertrude’s Place but missing my LuLaRoe community. We are working on clearance of all our old inventory and coming up with a plan for new LuLaRoe without getting myself overwhelmed and feeling sick again. BALANCE....it is all about BALANCE. So many new things coming for Lularoe and my Gertrude’s Place...I am so excited. It IS OKAY to enjoy both and that is exactly what I am going to do! STAY TUNED......
I love this quote and have to keep reminding myself of it constantly because I can be inpatient with myself sometimes ° It doesn't matter if I go as fast as a rabbit or as slow as a turtle 😂 as long as I'm moving, I'll get there! 💗 . . #perfectlystyledphoto
Right it’s time to get all this lovely makeup from my photo shoot off my face 🤦🏻‍♀️ As you can see the prospect fills me with enthusiasm 🤣 I can’t help thinking it’s going to be a mammoth task! 😱🤪 #sillyselfie #silly #timeforbed #makeup #makeupremoval #pamperyourself #pampertime #formerostomate #severeasthmatic #severeasthma #hypermobilityspectrumdisorder #zebra #spoonie #spoonielife #spooniewarrior #ketowarrior #ketofam #postphotoshoot #postphotoshootselfie
When your kittens eyeliner is more on point than yours ever is. 😆😆😆😆 This is Arthur, BTW. . . . #caturday #kittysofinstagram #kittymomma #authorsofIG #authorsofinstagram #authorsofinsta #writingcommunity #writersofig #writerslife #spoonielife
✨𝔸𝕝𝕝 𝕪𝕠𝕦 𝕟𝕖𝕖𝕕 𝕚𝕤 𝔽𝕒𝕚𝕥𝕙, 𝕋𝕣𝕦𝕤𝕥 𝕒𝕟𝕕 𝕒 𝕝𝕚𝕥𝕥𝕝𝕖 𝕓𝕚𝕥 𝕠𝕗 ℙ𝕚𝕩𝕚𝕖 𝔻𝕦𝕤𝕥✨🧚‍♀️ . . . . When I was little, I was in hospital a lot I was always on Peter Pan ward @greatormondst i used to watch Peter Pan all the time I loved it I don’t know why but I always have and I sometimes wish that I could fly if to Neverland and play all day and fly all nigh I sometimes wish that I could get away and be magical I have always loved magic. Today my cousin came around and I played the ukulele and she sung it’s a thing that we do together then we went to the wildlife park and it was freezing 🥶 but we had Tea and that makes everything better I wonder what this week will bringXx . . . . . #spoonielife #teenblogger #migrainesufferer #neverland #personalblog #peterpan #blog #tinkerbell #cousins #chronicallyill #warrior #notallheroeswearcapes #quotes #magic #greatormondstreethospital #hospital #joy
Me & myself. Over one hour. On the floor. On my mat. Physical therapy. UNdoing what’s not working. Millimeter by millimeter, digging in my muscles & releasing... the old ways. 🔥💋 . . . . . . . . #chronicpain #chronicillness #spooniestrong #spoonie #brainfog #invisibleillness #pain #spinalstenosis #Degenerativejointdisease #Hemachromatosis #Pots #PotsSyndrome #osteoarthritis #Tachycardia #Spoonielife #hemochromatosis #blood #bonemarrow #bones #inspirationalquotes
💚 I had to remind myself of this today! • 💪🏽 It’s been hard for me the past few days, physically, mentally & emotionally, but the worst part of it all was thinking that I wasn’t allowed to feel that way. I had to remind myself that it’s okay to have these negative thoughts sometimes, we just can’t let them control us. • 🥶 Hope you all have a wonderful Sunday and if you’re in NYC, Stay Warm! • 🎨: @baggyinthebronx#happybaglife #sunday #nocolonstillrollin #ostomyblogger #ostomate #goodvibesonly #positivevibes #ulcerativecolitisawareness #crohns #spoonie #stoma #ileostomy #ileostomybag #ileostomylife #ulcerativecolitisfighter #spoonielife #spooniewarrior #ibd #positivevibes #ostomyart #chronicillness #crohnsdisease #ibdgang #ostomy #ostomyawareness #ostomybag #illu #creative #illustrator
Good night world 🐱💛
Day 20 - FEAR 😱 I used to feel quite anxious about a lot of things and would often hold back at work. However, I realised life’s too short and everyone’s human. Yes you may be doing a piece of work for your CEO or Manager but they are human too. You can only do your best. Don’t talk yourself out of doing things based on your fears. #csphotochallenge #chronicallysuccessful
Trying to spot the clangers on the moon from my back garden. Nae luck yet. . Fond childhood memories of The Clangers very quickly get destroyed if you Youtube for clips now - that show was bizarre!! . . #MakeEveryDayAnAdventure #photography #nightphotography #moonphotography #moon #theclangers #ehlersdanlossyndrome #hypermobilitysyndrome #chronicillnesswarrior #chronicallyill #disabled #spoonie #spoonielife #chronicpain #fibromyalgia #disabledandcute #chronicallyfabulous #thespooniesisterhood #spooniesunite #highlandsofscotland #canonphotography
Healing the mind, body and spirit. Sarah Small aka @autoimmunetribe is one of my new go-tos for healing information and inspiration. . Her words of wisdom work for EVERYONE struggling with illness, no matter what your specific diagnosis is. . As an all around bad-ass babe, with a positive mindset, she takes a no BS approach to healing through identifying past traumas and limiting beliefs, embracing spirituality, meditation suggestions, and practical, actionable life/health advice. . A big part of why I love her page & podcast is that she refuses to accept that chronic illness is a forever thing. This is my "Truth" and it at the core of why I continue work to find strategies to improve my health and why I I want to dedicate my life to helping others. . I'm sharing this with you guys today because not all only did this awesome lady take a moment out of her day to show some kindness, love and support to a total stranger (me), but also because all of us who struggle with illness are part of the same tribe. . When our doctors, family, and friends fail us, we still have each other. By listening, supporting each other and raising each other up, we can heal our own bodies and create the positive change we want to see in the world. . Check out @autoimmunetribe and click the link in her bio to check out her courses and podcast. . #Sundaymotivation #holistichealing #mindbodyspirit #chronicpain #fibromyalgia #fibrowarriors #painwarrior #spoonielife #autoimmune #cfs #endometriosis #migraine #mentalhealth #youarenotalone #livepainfreely
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