#spoonielife

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When you’ve got an hour and a half total time to whip up a quick cake for your nan before college tomorrow... 🤣🤦🏼‍♀️ hopefully I can pull something together in time... but for now it’s time to watch hollyoaks whilst it gets cold enough to poor a drizzle on top of 🤦🏼‍♀️🤦🏼‍♀️😂 #studygram #study #spoonie #spoonielife #student #faith #friday #instagood #motivation #chronicallyme #ehlersdanlossyndrome #edswarrior #fibromyalgia #fibroflare #ehlersdanlossyndrome #pots #gastroparesis #spoonie #thursday #sendspoons #homebaker #cake #pink #roses #chocolate #baking #bakeoff #motivationdaily
Hey guys! In case you didmt see my live video we are doing a Christmas gear sale!!! We will be doing premade but also customs and everything will be discounted! Here are some of my fabrics! Dm for a custom order! Meet our pawtners: @sd_lady_eleanor @emilyszekely . . . #servicedogteam #servicedoggearaddiction #servicedog #servicedoggearforsale #servicedoggear #servicedoglife #servicedogs #spoonie #spoonielife #spoonieforlife #gear #servicedogvest #servicedogvestsale #servicedogvests #dogs #patches #dogsofinstagram #instagramdogs #doglovers #doglover #dog #cutedog #dogmodel #instadog #dogs_of_instagram #dogsofinstaworld #mutt
As quickly as I start to feel better... it can all go downhill again. I am trying to stay positive, but Autoimmune Disease is destroying me. Joints, Bowels, Organs, constantly on fire from the inflammation that burns throughout my body. Too afraid to move too much or eat the wrong thing or have too much fun or stay too still or be near people with possible bugs. Too poorly to live normally but not poorly enough to justify giving up. Falling into self loathing depression every time the flare takes hold. It’s exhausting. I’m exhausted.
How to make somewhere look cosy - add fairy lights! My husband did this when I needed to spend an afternoon in bed. It's so pretty! - - - #cosyplace #fairylights #chronicillness #chronicillnesswarrior #spoonie #myalgicencephalomyelitis #m .e. #pots #dysautonomia #Endometriosis #spoonielife #chronicillnesslife #cfs #pacing
Living life as a chronic 'Spoonie' I literally never go 'actual shopping' (I do everything online) but 2day as I had an appointment in Uxbridge, I thought I might aswel go in to 'Primark' 🙈🙈🙈 to get sum PJ's (due to me seeing sum that looked good advertised) & more importantly I wanted to go to 'The Works' (stationary/accessories shop, I got 44 Gel pens, 5 cute highlighters, a to do list clip board & 2 sets of PJ's (Harry Potter & Mickey Mouse) so now I'm a relatively happy, shopped Spoonie....& that will do for 2day #uxbridge #shopping #theworks #primark #shopping #pajamas #stationary #bulletjournal #spoonie #spoonielife #spoonieliving
HOWEVER......I do recall saying no cucumber. They decided to hide it under the lettuce as a surprise. Funny thing is, I can eat cucumber in a duck pancake roll no bother, but put it in a sandwich and I feel like I’m eating shampoo or face cream. And cucumber sandwiches, cucumber on its own. Who does that. Nowadays, I keep the cucumber for my eyes. #cfwarrior #foodie #calories #aberdeenroyalinfirmary #comedinewithaberdeenroyalinfirmary #cucumber #cucumbermask #cucumbereyes #65roses #spoonie #spoonielife
Pretty #snow ! ❄️🌨️❄️🌨️ Also, I'm still alive, barely... Chronic illness is truly awful #spoonie #spoonielife #chronicillness
Trying to look like I don't feel like refried death so I don't scare people while running errands. 🤞👍😭 I can't believe how long my hair has gotten. #gratuitousselfie #selfieasselfcare #chronicillness #fibromyalgia #gravesdisease #purplehairdontcare #spoonielife
I am enough...
A little Queen's House #tbt 👑 Back when I actually did stuff - like travelled, visited places or even just went to the cinema. On the other hand, currently, I've spent almost a couple hundred on physiotherapy this week, so that's some ~fun~ stuff I'm doing. 💁🏻 #queenshouse #greenwich #london #architecture #classicalarchitecture #symmetry #inigojones #travel #exploring #slowliving #spoonielife #shinyhappybloggers #thegirlgang #thatsdarling #pursuepretty #tbloggers #lbloggers #fbloggers #linkinbio
Pretty sunsets make everything better right? An hour and forty minutes after my original appointment time this morning, well it ended up being afternoon, I finally got to see my consultant at the hospital to discuss my abscess that just won’t heal, six months post surgery. I have to have an MRI and I might need surgery. One of those lovely have to wait and see things.
Why did I see giant inflatable Frostys on Election Day?!? Stop it. #repost via @naomi_lane112815 #autumn18 #mykneeshurt #spoonielife 🙅🏾‍♀️❄️🌨
#days 1,038, 1,039, 1,040 & 1,041 it is getting harder to fight being sick. BUT IT'S BETTER TO FIGHT BEING SICK...THAN ALLOWING YOURSELF TO BE SICK. THIS IS WHAT I KEEP TELLING MYSELF!! 👄👄 🚶‍♀️👣🌏 #dailykms #msswarrior #queenoftheroad #walk #mostprolificwalker #walking   #fuckms   #walkingaroundtheworld #fuckchronicillness #beatanxietyanddepression #mmj #thc #cbdoil   #ms #hemochromatosis #chronicpain #osteoarthritis   #chronicfatigue #depression #anxiety #distress #mentalhealthawareness #emotionalwellness   #spoonie  #spoonielife #workingonwellness   #willpowerismyname   #befuckingawesome
"It's less important what you do, and more important to just let yourself be who you are." - Derek Avery, Episode 38⠀ ⠀ This Is Not What I Ordered: a #podcast on full-hearted living with #chronicillness + #health challenges.⠀⠀⠀⠀ ⠀⠀⠀⠀ Link to listen in bio <3⠀ ⠀⠀⠀⠀ #fatherhood #vulnerability #selflove #disability #chronicpain #pain #headache #spoonie #spoonielife #chronicallyawesome #NWIOpodcast #spiritual #selfhelp #humor #chronicallychill #autoimmune #chronicwisdom #spirit #encouragement #interviews #chronicpain
Loved yesterday's trip to @dove_song_dairy with my mom! (And a good thing we went yesterday before the snow hit!) It's always a great excuse to spend time with @parchment_portraits , plus it's beautiful drive and it's so fun to try their #homemadesweets ! This trip just CALLED for us to give their #applecidermarshmallows a try - nothing sounds more like Fall than THAT! They just melt in your mouth! If you're ever in the #bernvillepa area when they're open, be sure to check them out! . . #goatfarm #countrydrive #localtourist #burlapandlacebeauty
Something new is coming...
Day 29 - Somewhere you’d like to travel to. For me that has to be New York City. ♥️ I’ve always wanted to go, I can’t see myself being able to handle it though, I find London hard enough these days and I know my way around fairly well. ♥️ I always tell my husband that I wish I was well enough to travel and he reassures me by saying even if I were well we wouldn’t have the money to travel anyway 🙃 ♥️ Btw what kind of BS is it that iPhones have updated their emojis but still no disability emojis? They promised them a year ago! I can tell you I’m cold. 🥶but not that I’ll be out with my walking stick... [ID: a New York City skyline, just as the sun is setting off screen to the right] . . . . . #disabilityninjas #disabilityninjasphotochallenge #chronicillness #chronicallyill #chronicpain #chronicfatigue #fibromyalgia #fibrowarrior #spoonie #spoonielife #invisibleillness #butyoudontlooksick #whatfibromyalgialookslike
The snow in its early stages makes everything look brilliant and new. Almost like a storybook. Its dazzling and blinding and in Hershey it looks downright magical. I can't help but draw comparisons between the first snow of the season and living with an illness people can't see. From the outside everything is beautiful and you have to remind yourself that the ice lurking underneath that snow is just looking to take you out and all you can do is put one foot in front of the other and try to make it through without any permanent damage. Those of you in these parts-stay warm and safe. #ehlersdanloslife #ehlersdanlossyndrome #edsawareness #spoonielife #spoonietravels #invisibleillness #rarediseases #zebrastrong #travelingwhilesick #dysautonomia #snow #Pennsylvania #Hershey
Erin's #firstsnowday ! ☃️ nothing like enjoying the great outdoors from the comfort and warmth of inside 🤷🏻‍♀️ lol! . . #ourerinlee #snowdayfun #burlapandlacebeauty
There's something special about a Nana's lap. . Something uniquely comforting about her hugs. . I feel so blessed to watch my Mom have such a special relationship with my daughter (and nephews). I never had that with any grandparents and always wished that I did. . . . . . . . . . . . #embracethechaos #sacramentomoms #postpartumjourney #momlifestruggles #momstrong #blessedmama #wifelife #momsohard #momstruggles #toddler #toddlerlife #toddlermom #toddleradventures #spoonie #spooniemom #spoonielife #vasculitis #vasculitiswarrior #prednisone #momgoals #fitnessjourney #weightlossjourney #momonamission #momoftwo #nanasrock #stronglikemom #proudmama #madeformore #Last90Days
I’m trying a new weekly spread, I needed more space per day and this is what my brain came up with 😜😅 last two pictures is my old design (yes I made two weekly spreads for next week, exactly why I’m normally not too far ahead 😉) do you like my new design? . . . #fightingfibromyalgia #spoonielife #bulletjournal #bujo #danishbujo #stm #scribblesthatmatter #grandstoriesdesign #americancrafts #stickers #stickersaddict #tombow #tombowaddict
Okay, got that outta my system. On to doing one chore & then a movie. Hope you’re having a low pain & sickie day. #this #sotrue #mytruth #myspoonielife #spoonie #myspooniejourney #chronicillness #chronicpain #chronicfatigue #truth #purpleness #invisibleillness #autoimmunedisease #spoonielife #spoonietruth #sickandinpain #autoimmuneillnesses 💜🌻🌷
Check out my latest blog post for an overview of some of the POTS treatments I've tried over the past few years. It's important to remember, that what works for me might not work for you as everyone with POTS will have different underlying causes. It's also important to keep working with your doctor to try new treatments until you find one that works for you. - - - #chronicillnesswarrior #invisibledisability #invisibleillness #spoonie #pots #dysautonomia #treatment #hospital #doctor #health #blogpost #spoonielife #spoonielove #chronicillness
Today I fasted. I had been craving a cleanse day for a really long time and it actually went a bit better than I expected. I have a bit of a headache but nothing major. At some point I was feeling all sorry for myself and guilty for not being able to be “productive”, because I have debts, I was feeling like something is wrong with me because I’m still single (pathetic much?)... And then I started reading the Yoga Sutras of Patanjali (see previous post), and afterwards I heard a little voice in my head, so peaceful, so kind and so full of love, that said “I’m a good person”. I always get big revelations when I fast. . And you may laugh but this was a big ah-ha moment for me. Of course I’m a good person. I’ve never committed any crime, I’ve never stolen, I’ve practically never lied in my life, I say good morning, please, thank you and good bye, I care for other people, I am considerate and kind & generous, I’m not a materialist. I think I am pretty open-minded, I recycle, try to avoid plastic, try to consume mindfully & educate myself... I read books and go in Nature. Mind you I’m - obviously - not perfect (so very far from it), but I most definitely am a good person. I am becoming aware of the fact that I have gone through a lot (like a LOT a lot) more stuff in my life than most people. Some of the things I’ve been through don’t even seem real, in hindsight. But they are. And so yes, maybe I am temporarily unable to work, and my body is giving me a hard time, and I can’t contribute to society in the capitalist way for a while; and maybe some of my traumas still need to be processed so I can feel relaxed about dating... but I am a good person and I do the work. I am trying my very best and I think I should stop comparing myself to the IG version of people & life for a while (how about forever?) - and so should you. This is a reminder that your worth is not determined by antiquated standards of patriarchal values. You are worth it. You are so totally deserving of love (and self-love) and kindness, respect and compassion. 💗 . . . . #redefine #yogisofinstagram #healing #healingjourney #youareworhit #bekindtoyourself #youareloved #youareperfectjustthewayyouare
Being able to keep working, for me, is largely going to have to be about me changing MYSELF, because my physical situation continues to not change, unfortunately. At least not yet.⠀ .⠀ Which requires me, then, to do this whole working thing differently. It means reducing my hours, which, I have to admit, is a blow to my pride. I feel like “just another woman who couldn’t handle the demands of full-time ministry.” I’m trying to get that voice to shut up. It’s gone from yelling to whispering, but the dang thing is still there.⠀ .⠀ The challenge to change myself is going to challenge my pride in more ways that one. It may require a change of role. It will most definitely mean lost opportunities. It will require the vocalization of the word “NO” at a greater frequency. It will demand I work fewer hours and take on fewer projects. This is not who I’ve been.⠀ .⠀ But, at least to some extent, who I’ve BEEN has gotten me here to who I am NOW. Sick and tired. And I have to own that.⠀ .⠀ I have to own that I’ve said yes to my own detriment. That I’ve focused on pleasing others more than taking care of myself. That I’ve allowed my ambition to blow past my physical capacity. That I’ve put others before myself and my family way too many times.⠀ .⠀ With the help of my current spiritual director (and the two who came before her), I am exorcising these tendencies. I am understanding the lies that drive them. I am grieving loss where grief is appropriate. And I am learning to accept that my physical situation may not change, or at least may not change much. So that means the change has to be in my heart. In my mind. In my actions.⠀ .⠀ And I’m trying my best to put it into practice. One day at a time.⠀ ⠀ .⠀ .⠀ .⠀ #functionalish#chronicblogs#chronicblogger#chronicwarrior#chronicsurvivor#chronicallyfabulous#chronicillnesscommunity#chronicillnesswarrior#chronicillness#chronicpain#chronicfatigue#epsteinbarr#depression#anxiety#insomnia#fibro#fibrofighter#countingspoons#spoonie#spoonies#spoonielife#spoontheory#invisibleillness#butyoudontlooksick#livingwithlimits#abundantlife#womanoffaith#faithblogger
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💖🧠 I want to show a little appreciation for this amazing lady who has been such an inspiration to me and a good friend while facing her own brain injury. A couple of weeks ago @eileen.ramsay came to visit with her beautiful dog Jenson and treated me to an afternoon tea at home. Doggy cuddles, cake and great company was just what the doctor ordered! I haven’t drunk any alcohol since the accident so it’s still in the fridge, shock horror! I might save it for Christmas 😂🤗🐶🍰
We’re picking up fallen branches and sliding around outside, so we’d advise staying home and ordering one of these 💃🏻💃🏻💃🏻
Happy Thursday guys! I hope your week has gone well! I got great news back on my endoscopy (stomach scope) yesterday. The gastritis causing inflammation in my stomach is gone, no signs of ulcers, and all biopsies are clear! I had been having severe stomach pains everday for 6 months, when I finally went to the ER in September and they found the gastritis. My holistic practitioner and I have been working hard the last 6 weeks to heal the situation and it appears to have worked beautifully! It feels so good to know that our bodies can heal without toxic drugs that cause other problems. I always get a kick out of the Dr's face when I tell them what I did to heal that didnt involve any of their medications 😄 I know they're only trying to help in the best way they know how. But, a little more props to natural medicine wouldn't hurt! 😉 Today I'm wearing three of my staples for this season: a beret, straight leg jeans, and leopard! Shop this look by clicking the link in my bio and clicking "Shop My Instagram"! 😘
Why be Sad about the Shit Hand I've been Dealt When I can be Thankful for the Support, Love, and Care around me💕✌ I may have a lot of Pain But at Least those Around me Love and Help me😊😍 .. .. _________________________________ #coachkylie #fall #autumn #family #love #endowarrior #endometriosis #endosisters #chronicpain #spoonie #spoonielife #grateful #thankful #appreciation #inspire #motivation #happiness #inspiring #thoughtoftheday #wordsofwisdom #lifelessons #words #qotd #dreadhead #hippiegirl #dreadlocks #boho #alternativegirl #dreads #endosucks
The future is bright when we fight together. the truth is... #humancare is the only thing that we really crave. It’s easy to do if we would all just get out of our own way a little more. The Future of Healthcare is the presence of HumanCare. #healthbeme #webewarrior #peoplemattermost #caremore #godogood 🍊🍊 What makes you, you? What will you do when you get the chance to live your best life?
Tried to find a filter that would make me look less like the living dead but obviously I had no luck 🧟‍♀️ Thank you @plexusworldwide for Slim - only way I’m able to do anything today. It really is a magically drink. I slept 12 hours but I still feel like another 12 is needed. The kid was late for school and I’m just a disaster today (more so than usual). I guess that’s what I get for over doing it yesterday. ❓Anyone else with CFS/ME or any other chronic illness work fulltime and able to get through it better than me!? Would love to hear some helpful solutions to my current problem ❓ #chronicillness #chronicfatiguesyndrome #fibromyalgia #zombie #walkingdead #plexus #needmoresleep #helpme #help #spoonie #spoonielife
This quote from Maya Angelou really speaks volumes to me. There are days when we sail along without many challenges and other days it seems like they come one right after another. Don't let your setbacks discourage you, let defeat be your fuel. ⛽ It is through our greatest challenges that we become #Undefeated . 💪 If you are looking for support, please join us in our Friends In The Fight group (link in my bio) and we will help in any way that we can. . . #MightyWell #MightyWarrior #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Hope #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #LymeDontKillMyVibe #Spoonie #SpoonieLife #SpoonieCommunity #NeverGiveUp #KeepFighting #Healing #LivingwithChronicIllness #SupportSystem#QuoteOfTheDay #SicknessIntoStrength #StartUpLife
Let's talk migraines 🤯 Migraines present themselves differently for everyone, but all have one thing in common: debilitating pain. 🤯 Migraines are also know as 'seriously ouchie noggin no no's' or 'touch me and die' 🤯 Mine are always the same and have been since I was very young. Whenever I get one I always, without fail, wake up with it due to a random change in blood pressure while I sleep. The pain is above my left eyebrow and is so agonising it's hard to move, speak or open my eyes. I'm rarely sick, but once it passes I'm left with dizzyness and a general hangover without the fun. 🤯 Here's what I find helps: 💙 Black out eye mask 💙 A cool pack either across my forehead or at the base of my neck 💙Tiger balm across the area of pain and temples 💙 Water 💙 Aspirin 💙 When the worst has passed and it's more of a headache, fresh air and a walk if I have the energy 👌 NB I took these pics this evening once my migraine had passed for the purpose of this post. Using my phone during a migraine is virtually impossible. What do you find helps? Let me know! As always, peace love and spoons ☮️💜🥄 . . . . . . #spoonie #spoonielife #spooniesisterhood #chronicillness #chronicfatigue #myalgicencephalomyelitis #canyouseeMEnow #cfsME #butyoudontlooksick #butyoudontlookill #hashimotos #hashimotosdisease #hypothyroidism #thyroiddisease #autoimmunity #fibrosucks #fibromyalgia #chronicpain #autoimmunedisease #hashimotosthyroiditis #millionsmissing #mentalhealth #mentalhealthawareness #migraine #anhedonicdepression #depression #fms #chronicpain #insomnia
🏆🏆🏆 CONGRATULATIONS to @cobycarr our contest winner! ✨You will receive a one-of-a-kind @sergiopettis hand signed 200mg Grand Daddy Purp CBD Vape Cartridge! 🔥✨ . . . ➡️ 😊 THANK YOU to all who entered! (Winner was selected via random number generator)💚 . . . #cbdistillery #cbdmovement #thecbdistillery #420 #cannabis #cannabiscommunity #cbd #hemp #cbdoilforsale #cbdhempoil #cannabidiol #buycbdoil #relaxationstation #icantsleep #spoonie #healing #plantbased #keepcalm #spooniestrong #spoonielife #wellnesswarrior #thenewhealthy #plantstrong #selfcare #relief #lifechanging
Ginger spice and everything nice🎁 Big shoutout to my family for not eating all these biscuits before I took photos of them! Honestly, the only thing I can think of that’s better than gingerbread is gingerbread coated in chocolate. It tastes like literal heaven. What are your favourite Christmas cookies?🍪
How cute is my new medical alert bracelet! ⠀ This gives me a piece of mind knowing if I pass out or cant talk for myself, paramedics and by standards are still able to help 💪🏼😁
“We either make ourselves miserable or we make ourselves strong. The amount of work is the same.”—Carlos Castaneda • • • One of the best ways to deal with an invisible illness is to learn about it through others. I love reading other people’s stories, how they cope with it, how strong they are, and the desire to keep on going. Feeling like you have the flue 24/7 for the most part, the aches the shooting pain, the short term memory loss, lack of sleep... it goes, can be draining. But even though the physical pain is immense the Will has to be stronger. #chronicpain #fibromyalgia #awareness #fibromyalgiawarrior #fibromyalgiaawareness #chronicfatigue #chronicillness #chronicillnesswarrior #chroniclife #health #positivity #staystrong #dontgiveup #bepositive #invisibleillness #pain #living #life #motivational #spoonie #spoonielife #spoonieproblems #instahealth #littleblackdress #keepgoing #keepfighting #positivevibes #positivethinking #strength
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