Ahh the fun of heart rate going up to 150 and being out of breath just getting dinner (a Microwave sandwich lol and milk) and also your laundry out of the dryer. The 146 is after I’d just been bending to do that and carrying it into my room then the slightly lower is me going back to the kitchen (because I’m determined to walk around when I can and do little exercises when I can) was totally out of breath but took a moment before going back for food (still standing but taking a few breaths and that better it) then the 103 is just sitting down and the 98 is sitting down a bit longer and feet fully up on bed. I’m still undiagnosed and we kind of have a few other important things to worry about as well but still gonna document these. My resting heart rate has been in the 90s today anyway and more the hearing the swishing sounds in my head (tinnitus...which I’ve always had off and on, once in awhile ringing but mostly pulse like sounds... I’ve always before put it to sinus and my hearing issues as a kid but 🤷🏼♀️) so that’s that #Spoonie #spoonielife
Love yourself enough to set boundaries. Your time and energy are precious. You get to choose how you use it.
[Image Description: in black text on a white background, “
Love yourself enough to set boundaries. Your time and energy are precious. You get to choose how you use it. - Anna Taylor” At the bottom, centered in block text #diversability
and the Diversability logo in black.]
When you’ve been “sick” for as long as I have, I sometimes forget to appreciate that even with everything going on, I’ve survived 100% of what’s been thrown at me so far, and I (and my body) can survive this too. ✨
Today I gave my poor, broken body a hug and said silently, “I love you. I forgive you. Thank you for carrying me this far”. .
I WILL beat this Lyme thing, but dang is it hard and I can’t do it all on my own.
Please click the link in my bio and consider donating if you’re able or sharing the fundraiser with someone who might want to help.
Taking advantage of the 3 day weekend with Virtual Reality 💙
Last minute sleepover, 💛 Abby wanted her cousin to hang out, and since tomorrow is no school - it's a sleepover! I used to see him daily, before/after school, since he caught the bus from the stop in front of my house. But this year, he switched school districts. And I miss him!! All his middle school swag, fart jokes, and floss dances, ;) .
And after being sick and mucho uncomfortable this week, with a big scoop of frustration dealing with Drs and the ER -- having these two and their silly shenanigans totally lifts my spirits and fills up my heart. Love these weirdos. .
So, I made a quick run over to @papamurphys
to grab goodies -- half pepperoni for little guy/half Hawaiian for wild child, plus breadsticks, and Smores pizza for dessert. #loveat425 #papamurphys
We're cooking 'em now. At 3pm. For.... linner. Lunch-dinner. Lol. Because battling on Xbox requires fuel. ;) .
Day 20: #Dinner
🍕 #familyfun #easydinner #tiredmomma #wherethetiredgirlsare #momlife #singlemom #chronicillness #chronicpain #spoonie #spoonielife #spoonies #pizzanight #makeyourownfun #makeyourownmagic #makelifegood #mommahood #momlifeyo #familynight
My Saturday night 🤦♀️ After coming home from the Womxn’s March in Denver, I was stretching to crack my back when I suddenly got severe stabbing pains inside my left ribs that made it difficult to move and breathe. The pain spread to my shoulder, giving me a “dead arm” sensation. I was terrified that it was the lung condition pleurisy, a common lupus-related inflammatory issue, so we rushed to urgent care. Long story short, it (thankfully) was not pleurisy but rather a muscle strain (lol, ugh). Doctor’s order is rest, pain meds, and heating pads 🔥 I’m glad that we went to urgent care anyway. I don’t want to take any chances with my health. It was such a relief to learn that it’s nothing serious. Have other spoonies had any scary false alarms?
Don’t tell me you feel bad for me; tell me I’m a warrior 💜💜💜
I don’t like making these types of posts. I hate it with every fiber of my being. But this is reality... this is the raw TRUTH. Life with chronic illness isn’t glamorous. Nothing about it is fun. It’s not cute little kids riding on their IV poles like scooters in hospital hallways. It’s not the smiling hospital selfie you see your friend take to distract themself from the fact that their insides are on fire. The past month and a half has been nothing but draining and frustrating. I am EXHAUSTED to say the least. I’ve been having horrible fatigue spells that leave me bed bound most of the time and make me sleep much of the day and night away (a lot of why I haven’t been posting as much because I don’t feel well enough to). Some moments, I can’t even lift my head off the pillow. Because of this, I’ve also had to use my wheelchair a lot more. I pretty much stopped eating most solid food and the only thing I’ve been able to really hold down well is soup. The pain when I eat is excruciating and the nausea is even more unbearable. If I have one bite of regular food, my stomach becomes super distended and painful. My CRPS has spiraled out of control. I begin my next round of treatment really soon, and as much as I hate how I feel during and the next few weeks after, I’m ready to get it over with already and I’m hoping and praying to find some relief after that. The last round was ineffective since I had gone so long since getting treatment from the shortage, and ketamine infusions need to build up in your system. I’m getting a lot of weird reactions/allergies to random things that I’ve never been allergic to before (thank you, MCAS). And I’ve just been so so weak. Utterly weak. Most of the time, I’m dizzy and I’ve been blacking out much more frequently. To sum it up, I’m a mess right now. I’m sorry this isn’t a happy update. I am trying so hard to be strong and stay positive, but it’s okay to not be okay sometimes, too. It’s okay to be vulnerable. But even in this chaos, I am finding grace. I am fighting with all of my might. And I won’t let ANYTHING stop me. These diseases have taken so much, but they can never take my spirit. I’m stronger than them. I WILL WIN THIS🦋
Anyone else’s nerve pain and muscle spasms ratcheted up due to these single digit temps?
Welcome to Chronically Can! Our goal is to share stories of what chronic illness fighters CAN do!
Often times because we are sick we are told we can’t do things, but we can find ways to do what we want weather it’s just simply getting out of bed or following a passion started a job or college.
We want to show everyone that yes people with chronic illness fight through lots of symptoms, hospital stays and doctors appointments. However, we are more than a disease or condition, we are people with goals and dreams that we are following.
If you want to share your story how you Chronically Can, then just DM us and we would be more than happy to share your story here! #chronicallycan #chronicillness
ME is een ernstig invaliderende ziekte. Maar je ziet er niks van. Of toch? Met deze actie laten ME warriors wereldwijd hun 2 gezichten zien: het gezicht van dat ene goede moment en het gezicht van de uren en dagen die niemand ziet. 👥
Wanneer je ME hebt, heeft je lichaam problemen met energie. "moe" is niet het juiste woord. Iemand die moe is, heeft nl meestal ook geen zin in een activiteit. Iemand met ME heeft dat juist meestal wel. Het is een actieve geest, boordevol plannen en inspiratie, gevangen in een lichaam dat totaal leeg is. Een Duracell konijn zonder batterij. Erg? Ja, maar het allerergste zijn misschien wel de vele andere symptomen die daarbij komen. Want het zenuwstelsel en het brein hebben ook te lijden onder deze ziekte. Gevolgen zijn neurologische storingen, problemen met ademhaling, hart of temperatuurregeling... Het niet kunnen verwerken van prikkels en informatie... De lijst is eindeloos. 😒
ME is geen nieuwe ziekte. Maar bij ons in Nederland jarenlang miskend en weggewuifd, met tragische gevolgen voor velen. Het treft miljoenen volwassenen, jongeren en kinderen wereldwijd. Zij verdienen het serieus te worden genomen. ❤️
#raiseawareness #mecfs #TwoFacesofME #mecfswarrior #spooniewarrior #spoonielife #pwme #MEaction #chronicfatigue #chronicillness #fibromyalgie #chronicpain #raiseyourvoice #standingup #chronischziek #eerlijk #jewaregezicht #mecvs #memama #butyoudontlooksick #millionsmissing
anyone else feeling a bit of a caffeine buzz this morning? ☕️
These are the real deal. So good! If you like Oreo's for the cream center...you need these in your life NOW!
And YES I had just 1 😋
2 hours left of the clearance sale!! Although I may accidentally fall asleep and delete the items in the morning 🤣🤣😉 so take advantage while you can!! This amazing sweatshirt is the last in the clearance sale and it’s now £18!!!’ Instead of £30 and available up to size 5XL. Go go go because it isn’t staying lovelies ⚡️✌️😘
Meal prepping for lunch this week. Chicken, broccoli, brown rice and grapes.
Update on what is happening.
I am learning to appreciate life and spend more time BALANCING my schedule while working around my autoimmune diseases.💗
I have been enjoying my reseller business at Gertrude’s Place but missing my LuLaRoe community.
We are working on clearance of all our old inventory and coming up with a plan for new LuLaRoe without getting myself overwhelmed and feeling sick again. BALANCE....it is all about BALANCE.
So many new things coming for Lularoe and my Gertrude’s Place...I am so excited. It IS OKAY to enjoy both and that is exactly what I am going to do!
I love this quote and have to keep reminding myself of it constantly because I can be inpatient with myself sometimes
It doesn't matter if I go as fast as a rabbit or as slow as a turtle 😂 as long as I'm moving, I'll get there! 💗
Day 20 - FEAR 😱
I used to feel quite anxious about a lot of things and would often hold back at work. However, I realised life’s too short and everyone’s human. Yes you may be doing a piece of work for your CEO or Manager but they are human too. You can only do your best. Don’t talk yourself out of doing things based on your fears.
Healing the mind, body and spirit. Sarah Small aka @autoimmunetribe
is one of my new go-tos for healing information and inspiration.
Her words of wisdom work for EVERYONE struggling with illness, no matter what your specific diagnosis is.
As an all around bad-ass babe, with a positive mindset, she takes a no BS approach to healing through identifying past traumas and limiting beliefs, embracing spirituality, meditation suggestions, and practical, actionable life/health advice.
A big part of why I love her page & podcast is that she refuses to accept that chronic illness is a forever thing. This is my "Truth" and it at the core of why I continue work to find strategies to improve my health and why I I want to dedicate my life to helping others.
I'm sharing this with you guys today because not all only did this awesome lady take a moment out of her day to show some kindness, love and support to a total stranger (me), but also because all of us who struggle with illness are part of the same tribe.
When our doctors, family, and friends fail us, we still have each other. By listening, supporting each other and raising each other up, we can heal our own bodies and create the positive change we want to see in the world.
Check out @autoimmunetribe
and click the link in her bio to check out her courses and podcast.
#mindbodyspirit #chronicpain #fibromyalgia #fibrowarriors #painwarrior #spoonielife #autoimmune #cfs #endometriosis #migraine #mentalhealth #youarenotalone #livepainfreely