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Its 2:56 in the morning and it is surprisingly quiet in the ER. I’m so grateful for the wonderful staff here that always take such good care of me. Hopefully I’ll be in my bed by morning. Sending all the healing vibes I can to others out there dealing with health issues that land you in places like this. Be strong fellow spoonies, we got this! . . . . . . . #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesses #hospital #hospitallife #hospital #iv #iwannagohome
🙌💖❣ @myhealthquirks - "Today was a good day. ☺️❄️🌌 Nothing big happened; no major accomplishments, I didn’t do anything exciting or hang out with any of my friends, hell I didn’t even finish my to-do list. But today was still good, because I woke up this morning and was able to get out of bed without blacking out. I was able to walk around the apartment and run errands with my mom and chat with friends and play with my dog. These little, everyday moments are ones that I took for granted for 22 years. It never occurred to me that one day I might not be able to do all of these things; and once that day came I realized how meaningful these ordinary moments truly are. Today was about as “ordinary” as they come, and for that reason alone it was a good day. No medical scares, no severe tachycardic or presyncope episodes, no emergent doctors visits.... just me, my mom, and my dog enjoying each other’s company and doing a few things that needed to get done. Sure, I would love to be skydiving or kayaking or hiking my way around the world. But for right now, I am pretty freaking happy with ordinary."
We can't always win....or at least that's what they tell me. 🤷 . This handsome hubby of mine kicked my butt tonight in game night. But that's okay because even though I hate losing in board games (I'm a total Monica! btw if you don't get that reference we probably can't be f.r.i.e.n.d.s 😜), I love spending quality tech-free one-on-one time with him! It fills my love tank even if I don't win a single round. ❤️ . What are your favorite technology-free activities to do indoors with loved ones during the winter? I'd love some other ideas. . #marriedlife #games #instagood #capture_today
take your time • def taking this statement to the max. I have been very slow lately... physically I find myself taking so much longer to get ready in the morning and smaller tasks take way more energy from me. The fatigue is really hitting me H A R D. Mentally, I am trying to stay stress free esp at work but its creating a distance that starts to get filled with anxiety but I am working on that and taking my walking breaks. Each day I am even more juiced to head home, make dinner then cuddle with my loves and binge on shows. Even though my energy is low lately, home has really been so comforting to me. Most of the energy I do have has been put into reorganizing and purging all thanks to @mariekondo. U think as minimal enthusiasts we would be good but were always open to learning and got rid of more things. Our little home is really coming together. ❤️ What sparks joy for you? ✨
Living with a chronic condition can be frustrating. Some may tell you that you’ll feel better eventually or that’s it all in your head. Although some chronic conditions can’t be cured, they can be managed. Your steps may look different than someone else’s but they are just as valid . What have you done to manage your chronic condition? . . . . . . . . . #luroot #luroothealth #nursecindy #chronicdepression #spooniewarrior #positivevibes #spoonielife #spooniewarrior #spooniesisters #healthyliving #livinghealthy #chronicdisease #selfcare #chronicillness #selfmanagement #lupus #ibs #fibromyalgia #pots #autoimmune #diabetes #iammovingforward #anxiety #beencouraged #beinspired
1999/2000/or 2001 vs. 2018/2019 💖👤 My #howhardhasaginghityou wasn't gonna happen since I had stayed off FB as long as possible + had to make a new profile in 2012 anyways... 🤷🏼‍♀️ 📸 But then I stumbled across these old selfie snaps from before social media and had to play along! Can we make a new game? 🤔 #selfiesbeforesocialmedia for those born before the 90's hit 💥📅😘 hehe 🔹 ️Seriously kids, think about it: THERE WAS NO SUCH THING AS SOCIAL MEDIA WHEN I TOOK THOSE 🤯 I was just practicing a new skill, enjoying the technology of a camera over a 30lb cam-corder I usually played with, documenting my self, contemplating who I was and would be, and practicing a little self-love at a time of a girl's life when it begins to be most difficult. 🌹🙌❣ ➡️ Gah, what would I say to her if I could? 👋 💌 I'd tell her ... you are always worthy of love and healing, little one. Don't forget that, because you have one hellll of a ride ahead... Sometimes it will look hopeless, and your loving heart will cause you so much pain on top of the physical that is about to set in... cruel ironies will break that soft heart and then become your dear friend, teaching you to see that the universe is always truly actually on your side- and God really is listening, don't worry. The best seeds take decades to blossom. 🌱🌺 You are gonna BLOW YOURSELF AWAY with your strength and heart so buckle up because it's about to begin... When you flail in the dark- and you will on countless occasions- KNOW that you have everything you need to overcome. 💪🕊 It will be a couple of decades until you are able to blossom, despite your best plans, but it will all be worth it. 🌞❣😭❤🙋🏼‍♀️🌈 #10yearchallenge #20yearchallenge
The last just over 24 hours have been incredible. Also regret not taking artsy pictures of Newcastle because it was so pretty. The architecture like it was so pretty and would have made for some good artsy shots. But yes this has been incredible. I've stayed fully vegan whilst away. Proves how easy it is to find options tbh and Newcastle is decent for vegans so if you wanted a sit down meal it would be just at easy. Was basically RT4 today because nausea but not because higher fat and protein and not enough cals. Largely liquid cals today cause nausea 😂 glad I ordered some protein. Powder. I've never been to Newcastle before and navigating myself in the dark was Interesting. Walked down some slightly dogy seeming corners because that's where Google said late at night, got lost and got a lot of steps and elevation in. Checked into a hotel alone and slept! Everyone up north is so nice compared to down here! Learnt how to use the metro, hint: it's not like the underground. I did get on the wrong train 😂. Met some incredible people and all got through the civil service assessment together! The activities were so interesting and it's made me want it more so I'll be applying next year. I deffo needed the extra time tho!!! So glad I advocated for myself! A very intense day and I've been in a lot of pain. Esp with the right ovary and fighting a baby migraine. But once I'm back I can sleep and then get up tomorrow. Food shop. Use forest all day so I actually focus and catch up on all the lectures I missed today.
I managed to ski! 3 or 4 days rest later, and I managed half a day of bumps, jumps and awesome fun. I got to ski my favourite skis, my #armadaskis TSTw’s. I’ll have to get a picture because they’re just so damn gorgeous! • Today is my first day with no Gabapentin (Neurontin, or if you’re really cool the ‘ront). I’ve been weaning off for 3 weeks and haven’t felt much withdrawals, but today it hit. Nausea, chills and hot flushes, dizziness and feeling faint was my lot. It was nothing compared to my Pregabalin (Lyrica) withdrawals, but still it’s never pleasant! • I paid for my skiing sins big time with a huge flare-up on top of the withdrawals, but je ne regrette rien!!! . . . #lesmenuires #ski #mountain #skiing #france #hautesavoie #spoonie #spoonielife #spooniesisters #spooniecommunity #chronicillness #chronicpain #chronicpainwarrior #chronicpelvicpain #wherethetiredgirlsare #endometriosis #endowarrior #skiingislife
Repost from @unicorn.zebra 💜 “Past few days have been crash, flare, migraine, muggle sick. I’ve been celebrating my ‘little wins’ like making myself a sandwich and taking a shower to try and keep myself in better spirits. I had a wonderful Christmas period I knew a crash was possible, it was more than worth it. This is why we #buildaladder “ . . . . . . . . #outofspoons #spooniesisters #spoonie #spooniestrong #spoonies #spoonieproblems #spooniewarrior #chronicillness #chronicallyfabulous #disabledandcute #chronicillnesswarrior #chronicpain #chronicpainwarrior #ehlersdanlos #peripheralneuropathy #potsie #ehlersdanlossyndrome #eds #endometriosis #endowarrior #cvid #invisibleillness #butyoudontlooksick #posturalorthostatictachycardiasyndrome #connectivetissuedisorder #dysautonomia #migraine #invisibledisability #spoonielife
Current mood 🤣 masking up and praying for the best! We all know I can’t afford to get “normal people sick” 😬 (shoutout to @snarkynurses for always having prime content)
𝟚𝟘𝟘𝟡 - 𝟚𝟘𝟙𝟡 . . . . A lot has happened in the ten years between those 2 photos. I have had multiple surgeries and countless hospital appointments and been given a load of medications and had a lot of procedures 🏥 but then I have been given 2 amazing siblings that love me dearly I have been blessed with one amazing dog that totally changed my life I have made new friends and been portrayed by former ‘friends’ I have been able to go on amazing family holidays with all the squad and I have been able to be a part of so many peoples lives I am looked up at by lots of my little cousins I’m known as “Pop Pop” by most of the little ones!! I am so grateful to be able to be on this earth with all the people that I love. Yes my life isn’t perfect I’m not always feeling great and I’m not always happy but I try and I have hope that one day things will be easier and things are pretty good most of the time. Life flies by blink and you’ll miss it!! . . . . . #10yearchallenge #notallheroeswearcapes #blog #spoonie #4vs13 #ichosejoy #hospital #personalblog #friends #family #imloved ❤️ #teenblogger #assistancedog #blogger #cronicillness #school #iloveanimals #girltoteenager #spoonielife #medicationmonday #collage #spooniesisters #cronicmigraines
Another cavalier in progress. My favourite breed, but then I may be a little biased 💕
· ♥❥♥ Say this loud. Say this proud. · · CHOOSE PEOPLE WHO CHOOSE YOU. ♥❥♥
This right here is HUGE. ^^^ • • As someone with physical disabilities, chronic pain and invisible illnesses, as well as mental illnesses, this means so much to me. I can’t count how many times I have been given “that look” by doctors who don’t want to even hear me out, how many times where I’ve asked my boyfriend to come with me to appointments just to make sure that we don’t leave before addressing every item on the list because by now I know better. My boyfriend has come to enough appointments that he now knows better too. He’s seen male doctors raise their voice at me and tell me that I’m making a big deal out of nothing… when it’s ended up being one helluva something. • • I know myself so well; like when a really smart therapist I had suggested that I talk to a psychiatrist about prozac for my PTSD because I was having such severe obsessive and intrusive thoughts for years. I know prozac is also used to treat depression… but it does nothing for MY depression. However, I stay on it because it really does do wonders for those PTSD mind-fuck volatile symptoms. I’ve had doctors literally tell me to my face, “No, it is also helping your depression”. • • I know my body so well; like I don’t just know when my period is coming, I know when my legs or cervical spine or lumbar spine aren’t going to work. Like many things I talk about, it’s a process, and some days I’m stronger than others (and that’s okay because progress isn’t linear), but I know my body, and I know my pain. I won’t have someone tell me otherwise, not anymore. You know your body, and you know your pain, and if other people don’t get it, then I guess they better get used to you saying it until it finally gets through to them. I believe you. Xoxo Lauren aka @dad.jokes.in.mom.jeans 💜💜💜 • • 🎨 @thesweetfeminist 🎨 • • #selfcare #selfcaresupply #spoonie #spoonielife #spooniesupport #spooniesunite #spooniestrong #spooniesisters #spooniesisterhood #ptsd #trauma #recoveryisnotlinear #depression #anxiety #mentalhealth #mentalillness #mentalhealthmatters #chronicillnesswarrior #chrnoicpainwarrior #mentalillnesswarrior #chronicallyill #chronicfatigue #chronicpain #chronicpainawareness #invisibleill
Spoonie life sometimes 🙇‍♀️😅 ••• Not my words, source unknown 💛
Day 11: Guilty pleasures 🌸 “What's my guilty pleasure? The thing is, I never feel guilty about pleasures.” ~Tom Hiddleston 🌸 TH said it best! Why should we feel guilty about pleasure??? Doing things that please you and make you feel good should never make you feel guilty! I see “guilty pleasures” as a part of self care. So I’m going to enjoy that piece of cake or watch that cheesy rom com and I’m going to own it!! Guilty pleasure? Let’s burn that oxymoron to the ground and let our pleasures fire us up. What’s your “not guilty” pleasure? ✨💕💫 Photo by @csswarriors77
Here are a few things I sewed over the years, this post is for you dear @invisibleillnesses_ , for all my fellow spoonies and also for my healthy friends. #fibromyalgie #diabetestype2 #fibromyalgia #RLS #restlesslegssyndrome #chronicpain #chronicillness #Hashimoto #CBDÖl #cannabidiol #RLS #happynewyear #VEGAN #veggie #SPOONIE #sistersinpain #spooniesisters #sewing @pattydooblog
Day 15 of the #chronicallyinspiringchallenge is what makes me smile. Well making my lovely boy laugh always is the best part of the day. On bad days I pull it together just long enough to share a funny and then hide in a dark room. Day was worth it. (And he is totally hilarious). #chronicallyfabulous #chronicillness #spooniesisters #spoonie #chronicpain #fibromyalgia #migraine #coeliac #hashimotosdisease #hemochromatosis #canberramums
Since I’m ill I learned a lot about myself and how I want to live my life. I can honestly say I feel a deep and intense mission that goes beyond my other work as a brand strategist and designer. I feel this mission literally through my heart, lungs, veins and my entire being. I wish I had more energy and feeling healthy, but that’s not the case. Day by day. Breathe in and breathe out. Trust the revolution. ❤️
Did the silly season get the better of anyone else 🙋🏼‍♀️? I got so excited that I was bug free & well enough to celebrate that I pulled a celebration muscle (that’s a thing). I am now dying a slow death over here from some kind of zombie virus 🦠🧟‍♀️ (or throat infection, but zombie virus sounds cooler 😎). When I lived in the UK it took approximately 78 days to get a doctor’s appointment, so I used to just cut up a heap of raw garlic and take it twice a day. Worked a treat (and has the added bonus of keeping vampires at bay) & is heaps better for your gut than antibiotics. We are on day two of the garlic regime, and I’ve thrown in a green smoothie to boot because why just smell like garlic when you can also turn your tongue green? Highly recommended if you hate people and want everyone to steer clear 🙅🏼‍♀️😂. #glutenfree #dairyfree #grainfree #greensmoothie #spinach #celery #mango #garlic #guthealth #antiinflammatoryfood #chronicfatigue #byebyemycoplasma #greenisgood #wahlswarrior #spoonie #spooniesisters #vegan #vegetarian
I wish I knew who to give credit to because this is so beyond accurate! Feels extra real today as I smile and power through a 12 hour shift in a busy ER while feeling like complete crap.
What it looks like trying to curl my hair the fast way. It hurts so bad!!! 🤬 Therefore, this is the reason for the pony tail, then curl and release. Saves me a lil time and spares my arms a bit. I wish it didn't hurt so drastically to raise my arms!!! 🤬🤬🤬 What r ur easy tricks for hair Do's? #spoonie #spoonies #spoonielife #lifeofaspoonie #lifeasaspoonie #spoonieproblems #spoonietricks #spooniehacks #spooniesisters #spooniemommy #chronicallyill #chronicillnesses #chronicpain #invisibleillnesses #invisiblyill #hairhacks
Happy to be home, but I am beyond exhausted. Pain levels are insane but there's always so much to do. Good things cats fix all 😽🐾
We are an Arthritis Family 😔. Posted @withrepost@girlwitharthritis New JA Column! 💙 Link in bio. Caregivers need support just as much as patients! JA parents especially! It's not easy to care for a chronically ill child who appears totally healthy to the rest of the world. #kidsgetarthritistoo #arthritis #juvenilearthritis #juvenilearthritisawareness #arthritisawareness #arthritiswarrior #chronicpainwarrior #chronicpainawareness #caregiver #spoonie #spooniesisters #spooniestrong #ja
Chronically Successful Photo Challenge Day 12 Success If you had asked me a couple of years ago what my idea of success was, it woould be very different to what I would say today. Before my illness took me down, I was a full time retail manager. With no education, I had worked my way to the top of the ladder and to me, that was success. I had made it. I had the great job, the good wage and all off the love and respect that came along with it. I was finally a success. But when it all came crashing down, I came to realize something. A great job and good income shouldn't be my measure of success. It is too easily taken away. I don't need a high profile job and fancy things to be successful. All I need is to be happy and that is why I chose this photo to represent success because to me, success isn't a career or a degree or completeing a challenge. Success to me is finding the ability to smile and enjoy everyday no matter what. I might be sick and broke, but I still keep my head up, I keep cracking jokes and I keep smiling. That to me is the ultimate success. #csphotochallenge #chronicallysuccessful @chronically_successful #ankylosingspondylitis #chronicpain #chronicillnesswarrior #spooniesisters #zebrastrong #inspiration #success
I may not a Doctor, but as a holistic health and natural living advocate and professional — I 100% live by these principles: 1. Use the healing power of nature 2. Identify and Treat the cause 3. Do no harm 4. Teach instead of tell 5. Treat the WHOLE person, not just their symptoms. _ It took me 10 YRS of western medicine, doctors and treatments/surgeries for me to WAKE THE FU*CK UP. I actually can’t believe how ignorant I was! Unfortunately I learned & experienced the travesties of the drug-laden western medicine personally - leading me to be worse off at age 22 than when I began becoming ill at age 12. _ It took me going through my own endless rabbit hole of western treatments (& a post HPV vaccine chronic illness spiral) until I opened my mind & eyes to all the hypocrisies & greed that don’t just lead, but OWN the western medical world. At my poor body’s expense AND at the $180,000 my parents paid for all my top level health insurance, treatments & surgeries 😱😱😱 All of which brought me NO WHERE CLOSER TO HEALING !!! _ So since my transition in 2013, I made a vow that I would never be close minded to anything and I would always do tons of research - opening my eyes to both & every side of a situation and to never just listen to someone & take it at that. I vowed that I would always be my own advocate, do my own research and become my OWN best Doctor. I vowed that I would always ask questions & never blindly believe someone telling me something is fact before I’ve thoroughly researched it for my own. THIS is how I became a holistic health/lifestyle advocate & professional and I vow to help as many people “see the light” as I can so they too don’t have to waste 5, 10, 15 years down the Western Medical & Conventional Living Rabbit hole only to end up suffering more 💜 _ You CAN heal y’all!! RUN FAR away from any Doctor who tells you “this isn’t curable” or “you’ll have this for life,” or “you’ll need to take this drug for life.” NOPE. Fuck that! I’m living Proof & SO many others are too! Do NOT believe the ignorant, uneducated “Doctors.” - Instead, look towards enlightened Doctors like @dr.jess.md @dr.carriejones @doctor.g_ @drjolenebrighten @plateful.health 💜❤️
...and so #Christmas deconstruction continues. It took weeks to get up, why do I think it should take minutes to take down and put away? Especially when I have to stop every few minutes to catch my breath #lymeproblems . I'll keep hyper lapsing my progress in my stories. #christmastree #chronicillness #spoonies #spooniesisters #lymedisease
Beware. The blanket is the only think keeping you safe right now... Do you dare move it? 🙃 #keeptalkingmh 🌻 #bipolar #depreasion #socialanxiety #anxiety #migraines #spoonie #spooniesisters #fibrowarrior 💜 #endowarrior 💛
What’s wrong with me: Part 1 I was 15 years old, 6am some morning, and I developed sharp abdominal pain on my lower right side, I was throwing up and I was confused. I had gone to sleep the night before with abdominal pain, assuming I’d just sleep it off. Lucky for me, my mum recognised the symptoms of appendicitis and I was rushed to A&E. I was sent to triage quickly and they confirmed suspected appendicitis. This is when my memory becomes hazy, I was in so much pain I’ve blanked out small bits of this day. Next thing I remember, I’m in a children’s ward opposite a very young boy. I remember trying not to cry or grimace too much because I didn’t want to scare him! A junior doctor walked in prodded me, asked me questions, confirmed suspected appendicitis and left. Then another came and did the same thing an hour or two later. Then a more senior doctor did the same a few hours later. All of them mentioned I had classic appendicitis, but no one explained what that meant. I was moved to the young person’s ward, and the cycle continued. Around 10 hours had passed and I hadn’t been allowed pain relief, food or water. I was in agony, crazy hungry and very dehydrated. More waiting. 13 hour mark approx. a surgeon walks in, he says I have appendicitis and I’ll have surgery either later or tomorrow. He says if I feel it burst, not to worry it’s not a big deal. And it burst. Man, did that hurt. But I was young and quiet and all the nurses were rushing around, my parents were exhausted, but this wasn’t a big deal right? So because it wasn’t important, I didn’t tell anyone. Big mistake. No one in my family had ever had appendicitis, so none of us knew how critical my situation was. For anyone out there - tell someone if you think your appendix has burst, it will save your life. 16 hour mark. The person in line before me for surgery either had a quick fix or died, so I was next. By this point, I’m crying constantly, in pain beyond agony, feeling jittery, dizzy and barely conscious. I was terrified as I was wheeled away, I don’t remember if my dad came with me to be anaesthetised I just remember being scared. If I hadn’t have gone in then, chances are I would’ve died.
What do you mean this isn’t how you’re supposed to greet customers? 😂🧐 Anyways, I’ve been super sick and still sick and well, always sick. But these previous days, my flare up has been INSANE. Basically I’ve been living in the bathroom or my bed. At least I’m traveling to my bathroom these days 😂. But I have been able to test our some more indie brands and some brands I love. Some stuff I love I’ve come to hate. But my skin hasn’t been as dry and I’m so happy about that. But today it’s a natural ‘glow’/ mess because I did not have energy or time to do more. Plus if I’m having mouth explosions at work, it fucks up my entire makeup. How are you? 👄 👄 👄 #kidneywarrior #spooniestrong #spoonieproblems #chronicpain #invisibleillness #butyoudontlooksick #fighter #spoontheory #Flare #flareUp #painsomnia #spooniesisters #keeppushing #chronicfatiguesyndrom #chronicfatigue #nervepain #stomach #projectpancommunity #panningcommunity #projectpan
As part of my daily goal to get 8 + servings of fruits & veggies a day, I try to have a large salad for lunch. This Pesto Zoodle Pasta 🍝 has about 4 servings of fruit + veg. I already had 4 servings in my breakfast shake so I guess I can eat cake for dinner right? Here’s the recipe for the pesto I made: 1/3 C fresh basil 1/3 C nooch 1/3 C veggie broth 3 cloves garlic 1 C spinach Juice of 1/2 lemon Blitz until creamy with some texture. This made 3 servings for me. I threw it on my zucchini noodles and added raw onion, cherry tomatoes, and balsamic vinegar. I toasted up some @nashobabakery Rosemary Garlic Bread 🥖 on the side. This meal is under 500 calories (including 2 slices of bread!!) for anyone trying to watch their intake, and it’s LOADED with nutritional benefits. Raw onion and garlic are extremely helpful for fighting viruses + bacteria- hello flu season 🤧! It also contains nutritional yeast which is high in protein, B vitamins, chromium, and gives food a CHEESEY 🧀taste...who wouldn’t want that? This lunch is light yet hearty, full of fiber, minerals, and water, and if you need one more reason to try it, it tastes reaaaally good! Bon Apetit! . . . . . . . . . #spoonie #healthylifestyle #autoimmunediet #organicfood #vegansofig #plantbasedathlete #arthritis #organiclife #winterfashion #spooniesisters #smoothie #organic #veganrecipes #nontoxic #detox #nontoxicliving #autoimmunedisease #autoimmune #gastroparesis #medicalmedium #wholefoods #wholefoodplantbased #aip #whatveganseat #yogi #yoga #chronicpain #invisibleillness #balancedlife #meatlessmonday
Tomorrow is the day! It’s all happening! 🙈🥳🥳🥰🙈⁣ ⁣ It’s the official launch of our brand new home! ☺️ ⁣ The shop is reopening after the Christmas break in its permanent new shiny home! This also means the pre orders will be open on our new love yourself more 2019 box for the next 2 weeks. Plus if you’ve entered the giveaway there will be an announcement email landing in the lucky inbox! Annnnd even if you didn’t win don’t worry, check anyway for a 10% off voucher code to spend online!⁣ ⁣ It’s all a go tomorrow and it’s been a long few weeks making sure it’s all ready but, we’re super excited it’s soon time to share it with you. We’re so grateful for each and everyone of you who have already given us so much support to this point. None of this would be happening or be possible without you so sending massive hugs through the screen! We hope you’ll love it as much as we do and that it will become a hub for anyone needing to connect and feel less alone when living with a chronic and/or mental illness. ⁣ Keep an eye out tomorrow for all the latest launch news! 👀💖
Create your own custom hoodie to support & raise awareness for ANY condition or disease!🌟 . I love these custom listings because even the rarest of rare conditions can be represented. It’s so hard to find cute awareness apparel for most of our chronic illnesses, so that’s why I wanted these custom hoodies (& t-shirts) to be an option!💕 What rare condition do you have? . . . . . . . . #raredisease #rarecondition #customhoodie #spooniesisters #spoonie #spoonielife #spoonies #spooniestrong #spooniesupport #spooniewarrior #chronicillness #butyoudontlooksick #chronicpain #chronicillnesswarrior #chronicpainwarrior #invisibleillness #ehlersdanlossyndrome #chiarimalformation #maythurnersyndrome #medianarcuateligamentsyndrome #nutcrackersyndrome #vasculitis #potsuralorthostatictachycardiasyndrome #hyperparathyroidism #antiphospholipidsyndrome #mixedconnectivetissuedisease #centralsensitization #amyloidosis #ivig #achalasia
New JA Column! 💙 Link in bio. Caregivers need support just as much as patients! JA parents especially! It's not easy to care for a chronically ill child who appears totally healthy to the rest of the world. #kidsgetarthritistoo #arthritis #juvenilearthritis #juvenilearthritisawareness #arthritisawareness #arthritiswarrior #chronicpainwarrior #chronicpainawareness #caregiver #spoonie #spooniesisters #spooniestrong #ja
Hey everybody, I decided with it being a #newyear and one of my #goals is to spread more #awareness about #lupus , that I would change my Instagram name. So as you can see the new name is lizzieslupuslife 💜 I chose this name because my name is Lizzie, I’ve got Lupus, and this is my life ☺️ I want to share what my experience is like living with Lupus, and while I don’t dwell or allow Lupus to dictate my life, it does greatly affect how I live. Anywhooooo, just want to give y’all an explanation for the #newname 💜💜💜💜💜💜💜
We had snow for all of about 24 hours this weekend, but we made the most of it. My thighs are sore from all the hills I climbed back up after sledding down. 🛷 🏔❄ . I've been so wrapped up in well...life...this week, that it was really nice to just PLAY for a while. Physical play can be a hard one for me because my body just isn't in a great place. But sometimes the consequences are worth it. And giggling with my kid as we bail out of a sled is one of those times. . . . . . . . #lymewarrior #lyme #lymies #lymedontkillmyvibe #chronicillness #lymedisease #chroniclyme #chronicillness #healing #healingjourney #healingmyself #healingmybody #healingenergy #getbetter #lymediseaseawareness #lymediseasehealing #lymediseaseawarenessmonth #lymediseasesucks #lymediseasewarrior #lymelife #spoonies #spoonie #spoonielife #spooniesisters #spooniewarrior #lymestrong #morethanlyme #butyoudontlooksick
Veganism doesn't need to be extravagant, it doesn't need to be healthy, it doesn't need to be expensive and it doesn't need to be cheap. It just needs to be you. Eat what works for you, how that works for you when that works for you. Just heated up some Tesco taco beans (my fav with some peppers from last night) added some sweetcorn and a huge load of rice as I'm going away tonight and didn't want the other half open in the fridge. And obviously tahini!!! Nearly gone through the jar in a week. I have a problem. _________ Kinda think I feel better without excessive amounts of coffee. Fatigue and migraine wise. So resisted the 2nd coffee today. Don't know how long coffee limiting will last though! Because it's automatically what we reach for now in society to give us a boost even if we know it's bad for people with ME/CFS like me!! #vegan #veganism #mecfs #cfsme #myalgicencephalomyelitis #chronicillness #chronicfatiguesyndrome #hypermobilespectrumdisorder #hsd #fibromyalgia #fibro #endowarrior #endosister #spooniesisters #spoonie
Day 14 of the #chronicallyinspiringchallenge is myths about my illness. Tough one as I seem to have several diseases (coeliac, hashimotos, Hemochromatosis) that probably aren’t the main story for my pain and fatigue symptoms. I probably have fibromyalgia, due to very not getting diagnosed with anything else useful. It’s all in a realm of medical mystery. Lots and lots of scientific and not so scientific ideas on causes and treatments, but nothing solid. So I guess the myth is that giving something a name means there is a cure. Or an agreed upon plan of best possible treatment. Basically I’m making it up as I go. P.s. this is a dawn of pain photo. The sun does eventually rise. #chronicallyfabulous #chronicillness #spooniesisters #chronicpain #chronicpainwarrior #fibromyalgia #hashimotosdisease #coeliac #hemochromatosis
Wishing I could be back here instead of setting 4 alarms for between 6 and 6:30 am tomorrow 😅😅😅 I’m so excited to be starting my new job as a #cna and every opportunity that it will bring me (🗺🏡💜)but I’m so nervous for the challenges that having a #fulltimejob as a #chronicallyill #spoonie will also bring me... *deep breath* #wishmeluck #spooniesisters 💞 #fibrolife #outofspoonstoday #fibrofog #eosinophilicesophagitis #autoimmunedisease #spoonielife #spoonies #spoonieproblems #spooniesupport #outofspoons #chronicillness #chronicpain #chronicfatigue #chronicpainwarrior #fatigue #fibromyalgia #pain #spooniewarrior
Sunday night shoutout to my fellow #potsies ... who else out there is looking forward to their Monday morning infusion of #lactatedringers ?! 🤣🙋🏼‍♀️
(Warning long post 😂) I've got a bunch of songs for 2019! The first song I listen to literally everyday is Fly Like A Bird by Mariah Carey 🕊 it's pretty much about having faith in God and he'll never leave or forsake you 🙏🏼 And that's one thing I would want to work on is getting closer to God. ✝️ I love so many songs from Little Mix like No More Sad Songs, Little Me, Power, Shout Out To My Ex but I really love their recent song Strip and it about loving yourself, being confident and not caring about what other thinks. I'm working on loving myself and not caring what others think about me 💖 I literally listen to the entire album Stripped by Christina Aguilera there's just so many uplifting songs on there including Beautiful, The Voice Within, Soar, Impossible and Fighter 💕 Another Song I love is Better In Time by Leona Lewis and it's about how life isn't going good right now but it will get better in time just take one day at a time ⏱💚 I have a bunch of Demi Lovato songs that I love as well like Waiting For You, Sorry Not Sorry, Confident, Really Don't Care, Skyscraper and Warrior.Warrior is my all time favorite because all of us spoonies are fighters and warriors! We've all been through so much and all the stuff we've been through has made us stronger than ever. 🙏🏼💪🏽💜 A few other songs I like is: JoJo ft Remy Ma - FAB Bea Miller - Brand New Eyes Ariana Grande - Breathin Panic! At The Disco - High Hopes Sia - Bird Set Free & The Greatest Kelly Clarkson - Stronger (What Doesn't Kill You) Alessia Cara - Scars To Your Beautiful Posted by @barbaraadams1313
Got his hair cut! It was in desperate need and it looks awesome!!! Normally it just gets buzzed but now he’s old enough to get it styled. He would not sit still because it tickled so it was a long process. #spoonie #spoonielife #spooniewarrior #chronicillness #chronicpain #chronicfatigue #staypositive #blessed #spreadawareness #asthma #fibromyalgia #invisibleillness #anxiety #socialanxiety #sensoryprocessingdisorder #ehlersdanlossyndrome #texas #staystrong #zebra #spooniesisters #haircut
I adore watching her lessons, the trust she has in those beautiful beasts and the encouragement of her instructor. The place she is learning is a rescue, this amazing boy had a rough start to life, he's head shy and takes time to trust yet he nuzzled her and let her hug him the first day. I wish I could trail ride with her, it breaks my heart to say I can't right now, my body is so unstable that I just have to take the good, watching her learn. . . #spoonieknows #hypertonicpelvicfloordisfunction #spoonie #spooniesunite #spoonieproblems #unchargeables #pelvicpainproblems #pelvicpainsupport #spoonies #chronicpelvicpain #spooniecommunity #pelvicpainwarrior #hypertonicpelvicfloor #pelvicpainsucks #unchargeableswarrior #pelvicpainisnojoke #spooniesisters #chronicpainsucks #chronicpainsurvivor #spoonietruth #spoonielife #chronicpainwarrior #spooniestrong #rescuehorses #rescuehorsesofinstagram #rescuehorse #rescuehorsesarethebest #rescuehorsesrock
Dreams don’t just come to us while we wait. Sometimes we have to go out and get them...one (sometimes painful) step at a time 😬 . What’s your dream and what have you done to see it come to fruition? . . . . . . . . . . . #luroot #luroothealth #nursecindy #iammovingforward #goalsetting #makeyourdreamscometrue #thinkpositive #spooniewarrior #chronicdepression #spoonielife #ibs #anxiety #selfcare #selfmanagement #spooniesisters #healthspo #healthspiration #fitspo #fitspiration #beencouraged #bethankful #positivevibes #positivequotes
Trying not to see that Monday is in the forecast! Weekends go by way too quickly! I get up at 6AM during the week for my medical treatments so the weekends are great to have the time to rest and relax after doing our errands. It’s so nice to have time that doesn’t revolve around my health and I truly wish it didn’t fly by so fast! I wish you all a wonderful week ahead! To all my fellow spoonies, I’ll be sending healing thoughts your way and cheering you through any challenges that lie ahead this week! . . . . . . . . . #sunday #sundayvibes #sundaymood #sundaythoughts #sundays #sundayafternoon #theweekendisalmostover #sundayfeels #whyarentweekends3days #haveagreatweek #spoonie #spoonies #spooniegirl #spoonielife #spooniestrong #spoonieproblems #spooniewarrior #spooniesisters #chronicallyill #chronicillness #chronicillnesslife #chronicillnesswarrior #chronicillnesses
What am I thankful for today? . . Today the weather has been horrendous, and while my crappy window has let the wind and the cold in I've been so lucky to even have a roof over my head in the first place. I have plenty of blankets I can snuggle up under, a bed to hide away in, warm clothes, and friends to whine about it to. Not everyone is lucky enough to have those things. I really feel for the people living on the streets at times like this and I'm thankful that I have the resources that I do 💚 . . . . . #selfcare #selfcarematters #empoweringwomen #empowerment #empoweringquestions #spoonie #spooniesisters #spoonielife #intentionalliving #youhavethepower #powerofpositivity #positivevibes #positivenergy #dreamchaser #slowliving #lifestyler #lifestyleblogger #lifestyle #healthythinking #healthy #healthymind #souljourney #souljourney #positivemindset #spiritualgrowth #spiritualawakening #healing #truth #manifest #goodvibes
Those intervals though 💪🏼🙌
Aaaaand this is why we have a lobby full of patients in the ER for things that aren’t considered “emergent”. 🤬 healthcare is so, so broken.
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