- "Today was a good day. ☺️❄️🌌
Nothing big happened; no major accomplishments, I didn’t do anything exciting or hang out with any of my friends, hell I didn’t even finish my to-do list.
But today was still good, because I woke up this morning and was able to get out of bed without blacking out. I was able to walk around the apartment and run errands with my mom and chat with friends and play with my dog. These little, everyday moments are ones that I took for granted for 22 years. It never occurred to me that one day I might not be able to do all of these things; and once that day came I realized how meaningful these ordinary moments truly are.
Today was about as “ordinary” as they come, and for that reason alone it was a good day. No medical scares, no severe tachycardic or presyncope episodes, no emergent doctors visits.... just me, my mom, and my dog enjoying each other’s company and doing a few things that needed to get done.
Sure, I would love to be skydiving or kayaking or hiking my way around the world. But for right now, I am pretty freaking happy with ordinary."
We can't always win....or at least that's what they tell me. 🤷
This handsome hubby of mine kicked my butt tonight in game night. But that's okay because even though I hate losing in board games (I'm a total Monica! btw if you don't get that reference we probably can't be f.r.i.e.n.d.s 😜), I love spending quality tech-free one-on-one time with him! It fills my love tank even if I don't win a single round. ❤️
What are your favorite technology-free activities to do indoors with loved ones during the winter? I'd love some other ideas.
#marriedlife #games #instagood #capture_today
take your time • def taking this statement to the max. I have been very slow lately... physically I find myself taking so much longer to get ready in the morning and smaller tasks take way more energy from me. The fatigue is really hitting me H A R D. Mentally, I am trying to stay stress free esp at work but its creating a distance that starts to get filled with anxiety but I am working on that and taking my walking breaks. Each day I am even more juiced to head home, make dinner then cuddle with my loves and binge on shows. Even though my energy is low lately, home has really been so comforting to me. Most of the energy I do have has been put into reorganizing and purging all thanks to @mariekondo.
U think as minimal enthusiasts we would be good but were always open to learning and got rid of more things. Our little home is really coming together. ❤️
What sparks joy for you? ✨
1999/2000/or 2001 vs. 2018/2019
💖👤 My #howhardhasaginghityou
wasn't gonna happen since I had stayed off FB as long as possible + had to make a new profile in 2012 anyways... 🤷🏼♀️ 📸 But then I stumbled across these old selfie snaps from before social media and had to play along! Can we make a new game? 🤔 #selfiesbeforesocialmedia
for those born before the 90's hit 💥📅😘 hehe 🔹 ️Seriously kids, think about it: THERE WAS NO SUCH THING AS SOCIAL MEDIA WHEN I TOOK THOSE 🤯 I was just practicing a new skill, enjoying the technology of a camera over a 30lb cam-corder I usually played with, documenting my self, contemplating who I was and would be, and practicing a little self-love at a time of a girl's life when it begins to be most difficult. 🌹🙌❣ ➡️ Gah, what would I say to her if I could? 👋
💌 I'd tell her ... you are always worthy of love and healing, little one. Don't forget that, because you have one hellll of a ride ahead... Sometimes it will look hopeless, and your loving heart will cause you so much pain on top of the physical that is about to set in... cruel ironies will break that soft heart and then become your dear friend, teaching you to see that the universe is always truly actually on your side- and God really is listening, don't worry. The best seeds take decades to blossom. 🌱🌺 You are gonna BLOW YOURSELF AWAY with your strength and heart so buckle up because it's about to begin... When you flail in the dark- and you will on countless occasions- KNOW that you have everything you need to overcome. 💪🕊 It will be a couple of decades until you are able to blossom, despite your best plans, but it will all be worth it. 🌞❣😭❤🙋🏼♀️🌈 #10yearchallenge #20yearchallenge
The last just over 24 hours have been incredible. Also regret not taking artsy pictures of Newcastle because it was so pretty. The architecture like it was so pretty and would have made for some good artsy shots. But yes this has been incredible.
I've stayed fully vegan whilst away. Proves how easy it is to find options tbh and Newcastle is decent for vegans so if you wanted a sit down meal it would be just at easy. Was basically RT4 today because nausea but not because higher fat and protein and not enough cals. Largely liquid cals today cause nausea 😂 glad I ordered some protein. Powder.
I've never been to Newcastle before and navigating myself in the dark was Interesting. Walked down some slightly dogy seeming corners because that's where Google said late at night, got lost and got a lot of steps and elevation in. Checked into a hotel alone and slept!
Everyone up north is so nice compared to down here!
Learnt how to use the metro, hint: it's not like the underground. I did get on the wrong train 😂. Met some incredible people and all got through the civil service assessment together! The activities were so interesting and it's made me want it more so I'll be applying next year. I deffo needed the extra time tho!!! So glad I advocated for myself!
A very intense day and I've been in a lot of pain. Esp with the right ovary and fighting a baby migraine. But once I'm back I can sleep and then get up tomorrow. Food shop. Use forest all day so I actually focus and catch up on all the lectures I missed today.
Current mood 🤣 masking up and praying for the best! We all know I can’t afford to get “normal people sick” 😬 (shoutout to @snarkynurses
for always having prime content)
Another cavalier in progress. My favourite breed, but then I may be a little biased 💕
Say this loud.
Say this proud.
CHOOSE PEOPLE WHO CHOOSE YOU.
This right here is HUGE. ^^^
As someone with physical disabilities, chronic pain and invisible illnesses, as well as mental illnesses, this means so much to me. I can’t count how many times I have been given “that look” by doctors who don’t want to even hear me out, how many times where I’ve asked my boyfriend to come with me to appointments just to make sure that we don’t leave before addressing every item on the list because by now I know better. My boyfriend has come to enough appointments that he now knows better too. He’s seen male doctors raise their voice at me and tell me that I’m making a big deal out of nothing… when it’s ended up being one helluva something.
I know myself so well; like when a really smart therapist I had suggested that I talk to a psychiatrist about prozac for my PTSD because I was having such severe obsessive and intrusive thoughts for years. I know prozac is also used to treat depression… but it does nothing for MY depression. However, I stay on it because it really does do wonders for those PTSD mind-fuck volatile symptoms. I’ve had doctors literally tell me to my face, “No, it is also helping your depression”.
I know my body so well; like I don’t just know when my period is coming, I know when my legs or cervical spine or lumbar spine aren’t going to work. Like many things I talk about, it’s a process, and some days I’m stronger than others (and that’s okay because progress isn’t linear), but I know my body, and I know my pain. I won’t have someone tell me otherwise, not anymore. You know your body, and you know your pain, and if other people don’t get it, then I guess they better get used to you saying it until it finally gets through to them. I believe you. Xoxo Lauren aka @dad.jokes.in.mom.jeans
#selfcare #selfcaresupply #spoonie #spoonielife #spooniesupport #spooniesunite #spooniestrong #spooniesisters #spooniesisterhood #ptsd #trauma #recoveryisnotlinear #depression #anxiety #mentalhealth #mentalillness #mentalhealthmatters #chronicillnesswarrior #chrnoicpainwarrior #mentalillnesswarrior #chronicallyill #chronicfatigue #chronicpain #chronicpainawareness #invisibleill
Spoonie life sometimes 🙇♀️😅
Not my words, source unknown 💛
Day 11: Guilty pleasures 🌸 “What's my guilty pleasure? The thing is, I never feel guilty about pleasures.” ~Tom Hiddleston 🌸 TH said it best! Why should we feel guilty about pleasure??? Doing things that please you and make you feel good should never make you feel guilty! I see “guilty pleasures” as a part of self care. So I’m going to enjoy that piece of cake or watch that cheesy rom com and I’m going to own it!! Guilty pleasure? Let’s burn that oxymoron to the ground and let our pleasures fire us up. What’s your “not guilty” pleasure? ✨💕💫 Photo by @csswarriors77
Since I’m ill I learned a lot about myself and how I want to live my life. I can honestly say I feel a deep and intense mission that goes beyond my other work as a brand strategist and designer. I feel this mission literally through my heart, lungs, veins and my entire being. I wish I had more energy and feeling healthy, but that’s not the case. Day by day. Breathe in and breathe out. Trust the revolution. ❤️
Did the silly season get the better of anyone else 🙋🏼♀️? I got so excited that I was bug free & well enough to celebrate that I pulled a celebration muscle (that’s a thing). I am now dying a slow death over here from some kind of zombie virus 🦠🧟♀️ (or throat infection, but zombie virus sounds cooler 😎). When I lived in the UK it took approximately 78 days to get a doctor’s appointment, so I used to just cut up a heap of raw garlic and take it twice a day. Worked a treat (and has the added bonus of keeping vampires at bay) & is heaps better for your gut than antibiotics. We are on day two of the garlic regime, and I’ve thrown in a green smoothie to boot because why just smell like garlic when you can also turn your tongue green? Highly recommended if you hate people and want everyone to steer clear 🙅🏼♀️😂. #glutenfree #dairyfree #grainfree #greensmoothie #spinach #celery #mango #garlic #guthealth #antiinflammatoryfood #chronicfatigue #byebyemycoplasma #greenisgood #wahlswarrior #spoonie #spooniesisters #vegan #vegetarian
I wish I knew who to give credit to because this is so beyond accurate! Feels extra real today as I smile and power through a 12 hour shift in a busy ER while feeling like complete crap.
Happy to be home, but I am beyond exhausted. Pain levels are insane but there's always so much to do. Good things cats fix all 😽🐾
Chronically Successful Photo Challenge Day 12 Success
If you had asked me a couple of years ago what my idea of success was, it woould be very different to what I would say today. Before my illness took me down, I was a full time retail manager. With no education, I had worked my way to the top of the ladder and to me, that was success. I had made it. I had the great job, the good wage and all off the love and respect that came along with it. I was finally a success. But when it all came crashing down, I came to realize something. A great job and good income shouldn't be my measure of success. It is too easily taken away. I don't need a high profile job and fancy things to be successful. All I need is to be happy and that is why I chose this photo to represent success because to me, success isn't a career or a degree or completeing a challenge. Success to me is finding the ability to smile and enjoy everyday no matter what. I might be sick and broke, but I still keep my head up, I keep cracking jokes and I keep smiling. That to me is the ultimate success.
#csphotochallenge #chronicallysuccessful @chronically_successful #ankylosingspondylitis #chronicpain #chronicillnesswarrior #spooniesisters #zebrastrong #inspiration #success
I may not a Doctor, but as a holistic health and natural living advocate and professional — I 100% live by these principles:
1. Use the healing power of nature
2. Identify and Treat the cause
3. Do no harm
4. Teach instead of tell
5. Treat the WHOLE person, not just their symptoms.
It took me 10 YRS of western medicine, doctors and treatments/surgeries for me to WAKE THE FU*CK UP. I actually can’t believe how ignorant I was! Unfortunately I learned & experienced the travesties of the drug-laden western medicine personally - leading me to be worse off at age 22 than when I began becoming ill at age 12.
It took me going through my own endless rabbit hole of western treatments (& a post HPV vaccine chronic illness spiral) until I opened my mind & eyes to all the hypocrisies & greed that don’t just lead, but OWN the western medical world. At my poor body’s expense AND at the $180,000 my parents paid for all my top level health insurance, treatments & surgeries 😱😱😱 All of which brought me NO WHERE CLOSER TO HEALING !!!
So since my transition in 2013, I made a vow that I would never be close minded to anything and I would always do tons of research - opening my eyes to both & every side of a situation and to never just listen to someone & take it at that. I vowed that I would always be my own advocate, do my own research and become my OWN best Doctor. I vowed that I would always ask questions & never blindly believe someone telling me something is fact before I’ve thoroughly researched it for my own. THIS is how I became a holistic health/lifestyle advocate & professional and I vow to help as many people “see the light” as I can so they too don’t have to waste 5, 10, 15 years down the Western Medical & Conventional Living Rabbit hole only to end up suffering more 💜
You CAN heal y’all!! RUN FAR away from any Doctor who tells you “this isn’t curable” or “you’ll have this for life,” or “you’ll need to take this drug for life.” NOPE. Fuck that! I’m living Proof & SO many others are too! Do NOT believe the ignorant, uneducated “Doctors.” - Instead, look towards enlightened Doctors like @dr.jess.md @dr.carriejones @doctor.g_ @drjolenebrighten @plateful.health
What’s wrong with me: Part 1
I was 15 years old, 6am some morning, and I developed sharp abdominal pain on my lower right side, I was throwing up and I was confused. I had gone to sleep the night before with abdominal pain, assuming I’d just sleep it off.
Lucky for me, my mum recognised the symptoms of appendicitis and I was rushed to A&E.
I was sent to triage quickly and they confirmed suspected appendicitis. This is when my memory becomes hazy, I was in so much pain I’ve blanked out small bits of this day.
Next thing I remember, I’m in a children’s ward opposite a very young boy. I remember trying not to cry or grimace too much because I didn’t want to scare him! A junior doctor walked in prodded me, asked me questions, confirmed suspected appendicitis and left. Then another came and did the same thing an hour or two later. Then a more senior doctor did the same a few hours later. All of them mentioned I had classic appendicitis, but no one explained what that meant.
I was moved to the young person’s ward, and the cycle continued. Around 10 hours had passed and I hadn’t been allowed pain relief, food or water. I was in agony, crazy hungry and very dehydrated. More waiting.
13 hour mark approx. a surgeon walks in, he says I have appendicitis and I’ll have surgery either later or tomorrow. He says if I feel it burst, not to worry it’s not a big deal.
And it burst. Man, did that hurt. But I was young and quiet and all the nurses were rushing around, my parents were exhausted, but this wasn’t a big deal right? So because it wasn’t important, I didn’t tell anyone.
Big mistake. No one in my family had ever had appendicitis, so none of us knew how critical my situation was. For anyone out there - tell someone if you think your appendix has burst, it will save your life.
16 hour mark. The person in line before me for surgery either had a quick fix or died, so I was next. By this point, I’m crying constantly, in pain beyond agony, feeling jittery, dizzy and barely conscious. I was terrified as I was wheeled away, I don’t remember if my dad came with me to be anaesthetised I just remember being scared.
If I hadn’t have gone in then, chances are I would’ve died.
As part of my daily goal to get 8 + servings of fruits & veggies a day, I try to have a large salad for lunch. This Pesto Zoodle Pasta 🍝 has about 4 servings of fruit + veg. I already had 4 servings in my breakfast shake so I guess I can eat cake for dinner right? Here’s the recipe for the pesto I made:
1/3 C fresh basil
1/3 C nooch
1/3 C veggie broth
3 cloves garlic
1 C spinach
Juice of 1/2 lemon
Blitz until creamy with some texture. This made 3 servings for me. I threw it on my zucchini noodles and added raw onion, cherry tomatoes, and balsamic vinegar. I toasted up some @nashobabakery
Rosemary Garlic Bread 🥖 on the side. This meal is under 500 calories (including 2 slices of bread!!) for anyone trying to watch their intake, and it’s LOADED with nutritional benefits. Raw onion and garlic are extremely helpful for fighting viruses + bacteria- hello flu season 🤧! It also contains nutritional yeast which is high in protein, B vitamins, chromium, and gives food a CHEESEY 🧀taste...who wouldn’t want that? This lunch is light yet hearty, full of fiber, minerals, and water, and if you need one more reason to try it, it tastes reaaaally good! Bon Apetit! .
#spoonie #healthylifestyle #autoimmunediet #organicfood #vegansofig #plantbasedathlete #arthritis #organiclife #winterfashion #spooniesisters #smoothie #organic #veganrecipes #nontoxic #detox #nontoxicliving #autoimmunedisease #autoimmune #gastroparesis #medicalmedium #wholefoods #wholefoodplantbased #aip #whatveganseat #yogi #yoga #chronicpain #invisibleillness #balancedlife #meatlessmonday
Tomorrow is the day! It’s all happening! 🙈🥳🥳🥰🙈
It’s the official launch of our brand new home! ☺️
The shop is reopening after the Christmas break in its permanent new shiny home! This also means the pre orders will be open on our new love yourself more 2019 box for the next 2 weeks. Plus if you’ve entered the giveaway there will be an announcement email landing in the lucky inbox! Annnnd even if you didn’t win don’t worry, check anyway for a 10% off voucher code to spend online!
It’s all a go tomorrow and it’s been a long few weeks making sure it’s all ready but, we’re super excited it’s soon time to share it with you. We’re so grateful for each and everyone of you who have already given us so much support to this point. None of this would be happening or be possible without you so sending massive hugs through the screen! We hope you’ll love it as much as we do and that it will become a hub for anyone needing to connect and feel less alone when living with a chronic and/or mental illness.
Keep an eye out tomorrow for all the latest launch news! 👀💖
Hey everybody, I decided with it being a #newyear
and one of my #goals
is to spread more #awareness
, that I would change my Instagram name. So as you can see the new name is lizzieslupuslife 💜 I chose this name because my name is Lizzie, I’ve got Lupus, and this is my life ☺️ I want to share what my experience is like living with Lupus, and while I don’t dwell or allow Lupus to dictate my life, it does greatly affect how I live. Anywhooooo, just want to give y’all an explanation for the #newname
Veganism doesn't need to be extravagant, it doesn't need to be healthy, it doesn't need to be expensive and it doesn't need to be cheap. It just needs to be you. Eat what works for you, how that works for you when that works for you.
Just heated up some Tesco taco beans (my fav with some peppers from last night) added some sweetcorn and a huge load of rice as I'm going away tonight and didn't want the other half open in the fridge.
And obviously tahini!!! Nearly gone through the jar in a week. I have a problem.
Kinda think I feel better without excessive amounts of coffee. Fatigue and migraine wise. So resisted the 2nd coffee today. Don't know how long coffee limiting will last though! Because it's automatically what we reach for now in society to give us a boost even if we know it's bad for people with ME/CFS like me!! #vegan #veganism #mecfs #cfsme #myalgicencephalomyelitis #chronicillness #chronicfatiguesyndrome #hypermobilespectrumdisorder #hsd #fibromyalgia #fibro #endowarrior #endosister #spooniesisters #spoonie
Sunday night shoutout to my fellow #potsies
... who else out there is looking forward to their Monday morning infusion of #lactatedringers
(Warning long post 😂)
I've got a bunch of songs for 2019! The first song I listen to literally everyday is Fly Like A Bird by Mariah Carey 🕊 it's pretty much about having faith in God and he'll never leave or forsake you 🙏🏼 And that's one thing I would want to work on is getting closer to God. ✝️
I love so many songs from Little Mix like No More Sad Songs, Little Me, Power, Shout Out To My Ex but I really love their recent song Strip and it about loving yourself, being confident and not caring about what other thinks. I'm working on loving myself and not caring what others think about me 💖
I literally listen to the entire album Stripped by Christina Aguilera there's just so many uplifting songs on there including Beautiful, The Voice Within, Soar, Impossible and Fighter 💕
Another Song I love is Better In Time by Leona Lewis and it's about how life isn't going good right now but it will get better in time just take one day at a time ⏱💚
I have a bunch of Demi Lovato songs that I love as well like Waiting For You, Sorry Not Sorry, Confident, Really Don't Care, Skyscraper and Warrior.Warrior is my all time favorite because all of us spoonies are fighters and warriors! We've all been through so much and all the stuff we've been through has made us stronger than ever. 🙏🏼💪🏽💜
A few other songs I like is:
JoJo ft Remy Ma - FAB
Bea Miller - Brand New Eyes
Ariana Grande - Breathin
Panic! At The Disco - High Hopes
Sia - Bird Set Free & The Greatest
Kelly Clarkson - Stronger (What Doesn't Kill You)
Alessia Cara - Scars To Your Beautiful
Posted by @barbaraadams1313
Those intervals though 💪🏼🙌
Aaaaand this is why we have a lobby full of patients in the ER for things that aren’t considered “emergent”. 🤬 healthcare is so, so broken.