#theluckyfew

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When your early dropping off your sister and you get to play on the swings! #happyface #downsyndromediaries #downsyndrome #downsyndromelife #theluckyfew #nothingdownaboutit
🎂🎂🎂🎂🎂🎂It’s my Birthday! 🎂🎂🎂🎂🎂. I couldn’t quite work out how to take my new phone out of the box so I thought I’d answer it in the box. My mum says it’s like an 1980s phone! 🤣 #Birthday #birthdaygirl #birthdaygift #myfirstmobile #phone #newphone #whoyougonnacall #photo #photography #model #teenmodel #disabledmodel #downsyndromemodel #iwouldntchangeathing #teamzebedee #ablefinder #iamable #theluckyfew #happybirthdaytome #happybirthday #smile 😀
I can’t believe it’s almost the end of September! The weather has turned cold, the heating is on and Autumn is most definitely in its way 🍂🍁I’m sad to say that our current reps and enthusiasts will be finishing at the end of this month ☹️ I love this photo of Harper and Quinn @baileyandthebabies - they have been the perfect reps, promoting my little business and providing me with a constant stream of beautiful images just like this one. It has also been a real honor to be a small part of Nicola’s mission to raise awareness about Down Syndrome. If you would like to apply to rep for us please keep an eye out for info on how to enter at the end of the month #Harper #quinn #brandreps #beautifultwins #twinsisters #twinnies #babygirls #twinning #sisters #downsyndrome #downsyndromeawareness #nothingdownaboutit #theluckyfew
Embracing her strength + her femininity ❤️💪✨Had a few hours to myself to get a some errands done while my mom watched the kids after Wynter’s PIP and just before her speech therapy. Stopped by one my favorite local shops, @rubysgarden and picked up the most sparkly, fun tutu skirt and a new cape for my big girl. It’s safe to say she LOVED them both and went straight to her mirror to check herself out and recite her daily affirmations. 😊❤️ It made me so happy, and it was the BEST part of my day. ✨ I only wish I had recorded her instead of taken a photo! ☺️ #WynterKaori . . . . . #newmama #uniteinmotherhood #motherhood #parenthood #mymotherhoodjourney #motherhoodunplugged #nothingdownaboutit #theluckyfew #t21 #upsyndrome #MoreAlikeThanDifferent #changingthefaceofbeauty #dsdn #standup4ctfob #warriorgirl #lightofmylife #childhoodunplugged #2yearsold #growingup #playingdressup #toddlerlife #biggirl #happygirl
"It's a momma singing songs about the Lord It's a daddy spending family time the world says he cannot afford These simple moments change the world... Dream small Don't bother like you've gotta do it all Just let Jesus use you where you are One day at a time Live well Loving God and others as yourself Find little ways where only you can help With His great love A tiny rock can make a giant fall" -Josh Wilson 🎶
I’m missing my roommate, his determination, grit and humor. My days are better because of him. #downsyndromerocks #theluckyfew #downsyndrome #nothingdownaboutit
Can you tell she loves her little sister? 💕 Jayne couldn’t wait to meet Elsa but had to have Millie by her side! They have the sweetest bond! * * #sistersandbestfriends #morealikethandifferent #disneyland #disneyprincesses #meetingelsa #downsyndrome #nothingdownaboutit #upsyndrome #downsyndromecutie #theluckyfew #trisomy21 #lifeisbetterwithyou
We had the cutest little visitor and her beautiful mama stop by the office today! 💖 Still can remember celebrating that adorable girl three years ago. #jacksbasket #babyz #allgrownup #lovedandadored #theluckyfew #celebratingbabieswithdownsyndrome
I am continually amazed by this precious daughter of mine. She is beyond anything I could have asked for. #littlemiss #blessed #momlife #downsyndrome #messybun #rockinthepink @savedownsyndrome #nothingdownaboutit #trisomy21 @downsyndromemagazine @globaldownsyndrome #theluckyfew
Well as one good up the other good down. I'm pretty sure it's not HFMD. I'll likely head back to the Dr with Ryder tomorrow. 106 fevers??? We should have the strep results tomorrow however we've had strep lots and it hasn't been this bad. . . #myboys #theluckyfew #fever #nothingdownaboutit #lifeisbetterwithyou #schoolgerms
Coming soon on a sound cloud near you, is DRUM ROLL .... Advocate Like A Mother PODCAST!!!! @advocatelikeamother @_ashleymontano and I - @meeshellsullivan are coming together to help parents find their voice. Our mission is really to help one mom to the next to find their voice to advocate like a mother. We are all go getter advocates for our babes. I’m so excited to engage in such an open conversation with you guys and raise awareness!!! Advocating is so much more than a simple caption on Instagram. We want to help you build confidence and inspiration for you to join in the community. We are going to be having some rad guests on our show. Talking about IEP meetings. Talking about government topics like IHSS and SSI. Finding community and real relationships, resources and links. Also hear some amazing stories on how to stand up for your babes. Please follow our Instagram @advocatelikeamother 🙌🏽 And please tag your friends to let them know😘#advocatelikeamother #advocatelikeamotherpodcast
Apparently I almost missed National Daughters Day! A shame for my sweet little girl. I LOVE this little girl and am honored to be her Mom. She is smarter than I ever could be, funnier, stronger, more resilient and amazing that anyone could every give her credit for and she loves to cuddle when she isnt wiggling out of your arms or throwing a spontaneous dance party 💃🏻 🎉 👶 💕 happy daughters day little moose. You are brilliant and amazing and I would trade you for the world. . . . . . #theluckyfew #downsyndrome #nothingdownaboutit #morealikethandifferent #t21 #downsyndromeawareness #love #changingthefaceofbeauty #upsyndrome #trisomy21 #dsdn #downsyndromelove #downsyndromerocks #wouldntchangeathing #downrightperfect #specialneeds #happy #lifeisbeautiful #dsawareness #iamable #alilsomethingextra #homiewithanextrachromie #lifeifbetterwithyou #myannarocks #nationaldaughtersday
The bittersweet symphony of Down syndrome continued this past month with a battle for extending speech therapy services for our Kado. While he technically qualifies for therapy due to his delay in expressive speech, his receptive language puts him at the cusp of “within normal limits” thus having Regional Center end our contract with our so loved @iceckids therapist, Ms Kendall. Thank you for giving Kaden his VOICE these past few months. His vocabulary has exploded and we will keep up with you in group on Mondays. Here’s to our next adventure with in-home services beginning next week. RCOC wants to see KC “in his natural environment with parent participation” for speech therapy so here go the next 5 months of whatever that entails. Wish us luck! Ms. K- in Kaden’s words, “oh my goodness! I lala you!” #downsyndromeawareness #kadencameron #speechtherapy #t21 #theluckyfew
Coming soon on a sound cloud near you, is DRUM ROLL .... Advocate Like A Mother PODCAST!!!! @advocatelikeamother @_ashleymontano and I are coming together to help parents find their voice. Our mission is really to help one mom to the next to find their voice to advocate like a mother. We are all go getter advocates for our babes. I’m so excited to engage in such an open conversation with you guys and raise awareness!!! Advocating is so much more than a simple caption on Instagram. We want to help you build confidence and inspiration for you to join in the community. We are going to be having some rad guests on our show. Talking about IEP meetings. Talking about government topics like IHSS and SSI. Finding community and real relationships, resources and links. Also hear some amazing stories on how to stand up for your babes. Please follow our Instagram @advocatelikeamother 🙌🏽 And please tag your friends to let them know😘#advocatelikeamother #advocatelikeamotherpodcast
I couldn’t choose just one 😍😩 she is perfection. 🦋 she’s 7 months old and only 13 days post op from open heart surgery ♥️😱. She is my hero! Since we’ve been home she’s been so chill (like always) you would have never thought she just had major surgery! My strong warrior princess 👑 💕 you are amazing! I love you so much🦋🌻 . . . #heartwarrior #chdwarrior #theluckyfew #nothingdownaboutemma 💛 #upsyndrome #morealikethandifferent #warriorprincess #emmavalentina 🦋 #mixedbaby #vietxican #daddysgirlmommysworld
Madeline is still not participating at school. She sits and refuses to read her sight words or say her letter sounds. She is so capable and we have worked so hard to prepare for this. I am at a loss as to what is best for her. I know she is comprehending things but how much good is it really doing her. #specialneedsmom #downsyndrome #trisomy21 #t21 #theluckyfew #chromosomallyenhanced #inclusionmatters #momsofinstagram #teachermom
I was working intensively yesterday on a few blockers I’ve had lately, (terrifying ones, like schooling decisions for my child with special needs) and you know what popped into my head? “It’s safe to take small steps.” Sometimes it feels like a drop in the bucket and it’s not worth it.. the thought of doing less than ‘everything’ can make you spiral a little into icky places. Deep breath and mantra- “It’s safe to take small steps.” Works for everything. Kat x
Today’s caption is brought to you by one of our heroes Jean Vanier (this is a quote from his book Becoming Human). . “To reveal someone’s beauty is to reveal their value by giving them time, attention, and tenderness. To love is not just to do something for them but to reveal to them their own uniqueness, to tell them that they are special and worthy of attention.” . Shout the worth of someone today, let them know they belong and are worthy. Tell them they are loved. . #theluckyfew #becominghuman #jeanvanier #shouththeirworth #downsyndrome
. A little playtime before bedtime 🚼💤 . . #raelynlee #ourraeofsunshine #whatacutie #daddysgirl #theluckyfew
I love this shirt. I love the meaning behind it and I love that I have a matching one. I also love that Charlie came home today with her very first school activity. It was the cutest thing I've ever seen. She did fingerpainting with numbers and when I took it out of her folder she was super excited to show me. Gah, I love her teacher and her school. . . Charlie's amazing jeans are from @olive.and.blush_ and they just came out with new fall designs! Use code CHARLIE10!! 🎀: @sewamazingandmore use code charlie! . . #toddlersofinstagram #toddlersofig #instatoddler #instacute #instakids #kidsofig #kidsofinstagram #downsyndrome #theluckyfew #morealikethandifferent #nothingdownaboutit #downrightperfect #downsyndromelove #savedownsyndrome #changingthefaceofbeauty #charliesway #parkdays #florida #floridaliving #minime #momlife #advocate #iamable #tribe #motherhood #kidsofig #kidsofinstagram #school #etsyofig #etsyofinstagram #alilsomethingextra #extrachromosomeextracute
When Oskar met Brax... lucky for Osky Brax didn't seem to mind a car being driven on his tail 😹😻😸 • • #lessonsfromoskar #youcandrivecarsoncattails #didntgetthescarfacelook #cat #catsofinstagram #ragdoll #friends #catchups #nhill #loveshiscars #carcrazy #t21 #theluckyfew #morealikethandifferent #downsyndrome
Joseph must be going through a growth spurt, this is second dinner, 😂 of course he shared half of everything with Leia the dog, lol #trisomy21 #nothingdownaboutit #downsyndromecutie #downsyndromelove #downsyndromeawareness #downsyndrome #downsyndromerocks #theluckyfew #T21 #T21rocks
The last week has been insanely busy with the #adreamretreat2018 and the two upcoming buddy walks I help organize...but my sweet Hammy keeps catching my attention with what seems like a burst of new “skills”. I shared tonight in my stories a clip of him opening the fridge. He couldn’t get the other side open, or found what he was looking for and gave up, but I sat there in awe, grateful I had my phone to capture it. Last week when he wanted more gapes, he grabbed me by the pants and pulled me (my chair) over to the table and handed me the bag. But this week he has discovered it’s easier to push my chair from the back, even using the handles a few times. And he’s throwing tantrums!! Not having meltdowns, which are totally different. Tantrums are more typical toddler reactions, where as meltdowns are more related to sensory overload and unregulated emotions. Cad ate the last veggie straw yesterday and put the empty bag in the trash. Hammy lost it, threw himself on the floor face down whining and yelling. He jumped up, got the bag out of the trash and once he realized they were all gone, collapsed back to the floor flailing and shrieking. A potato chip immediately stopped the convulsions. It was just a normal toddler tantrum!! I never dreamed a tantrum would leave me celebrating! I feel so lucky to be on this journey, a journey that has opened to my eyes to seemingly inconsequential accomplishments and gawking in wonderment at my precious boys a hundred times a day. How did I get so lucky?! #worthy #downsyndrome #theluckyfew #downsyndromerocks
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A night out with my mama, celebrating @quincydjones 85th birthday. My dad’s been playing music with and for Q since @michaeljackson Off The Wall album and he’s in the band tonight. Love how Quincy has musically filled up my life for as long as I can remember. It’s an honor to be here celebrating him tonight. @honeysilverstein #theluckyfew
It's my birthday, I can wear my cake if I want to!! 😂 #2ndbirthday #koltontheo #sugarnut #iamable #ablefinder #dsdn #theluckyfew #upsyndrome
33 ain’t so bad... 😌❤️ Thanks for all the birthday love, I’m one lucky mama.
When I was 17, I had the dream to some day adopt a baby with Down syndrome. At 24, I still have this dream. When I talk about my dream, I affectionately call her “Squishy”.(Babies with DS have low muscle tone, so they squish into you like a little bag of flour when you hold them ☺️). I’ll enroll her in yoga and gymnastics. We’ll have an 8 bedroom penthouse in Austin, TX, overlooking the river (Squish needs a playroom, a yoga studio, gymnastics room, and art room). I’ll raise her to be a strong, independent adult. I’m so happy when I dream of life with Squishy! 🙂💛🥑🌈🐠🍰🧘🏽‍♀️🌱🍭✨
Her hair gets crazier with each bath. 🤘 #trisomy21 #downsyndrome #preemie #theluckyfew
This child will eat anything! This delightful combo was choc cake and beans! Levi's become slightly obsessed with food lately and will lunge at anyone that has anything edible! I have started being more aware of his portions as he just eats and eats! . . . #greedy #foodie #food #cake #eatout #wouldntchangeathing #ablefinder #downsyndromelove #downsyndrome #advicewelcome #changingthefaceofbeauty #morealikethandifferent #lifeisbetterwithyou #love #muckypup #downsyndromeawareness #nothingdownaboutit #treat #theluckyfew #downrightbeautiful
Jackson says he is famous!!! Thanks @brackduncan & LEX18 for the great news story about #buddiesofthebluegrass and our #Rawefaith story!!! Cant wait until OCTOBER 7th!!! Tickets are only $15! Message me for more info!!! #downsyndrome #theluckyfew #internationaladoption #waitingforyou #reecesrainbow
It’s starting to happen!!! We are ready to kick off Down syndrome Awareness Month!! Be on the lookout for one of our many billboards popping up!! . . . . . #downsyndrome #upsidedowns #nothingdownaboutit #downsyndromerocks #downsyndromeawareness #upsyndrome #upwithdowns #theluckyfew #trisomy21 #t21 #lovesyndrome #downrightperfect #ican #anythingispossible
“I admit I was scared to have you after I found out the diagnosis. I didn’t know if I wanted you at times. I prayed I would feel different once you were here. My prayers were answered. I love you more then I ever thought I could love. I don’t see a diagnosis. Honestly, I don’t even think about it much. You are CAMDEN, a beautiful gift from God. You are so much more then I ever dreamed of. I can’t wait to spend the rest of my life with you sweet child. I am blessed 💙” . I wanted to re-share a post that I made on my personal page a while back. I share this because I want you all to know that I plan to be TRANSPARENT on this blog. I share this because, just maybe one of you are going through something hard, something uncomfortable, or know someone who is. We will all encounter hard things in life. Things that will rock our world. However, often the things that we fear the most are not that bad in the end; and sometimes things turn out better than you could ever imagine. . My whole life I was worried that I would have a child with special needs… (I still think it’s strange that I always thought about it). When we found out, we were devastated. We thought that our life was over. We grieved hard and feared the unknown. A process that we needed to go through… . As I look down at my sweet Camden. My life is turning out MUCH BETTER than I ever dreamed it could prior to the diagnosis. I feel more complete than I ever have before. . So, if you’re going through something tough, I pray that you too will come out of it better than before. I encourage you to keep your head up during tough times and keep putting one foot in front of the other because things may just turn out amazing :) . #cambenstribe #t21 #homiewithextrachromie #downsyndromelove #dsdn #t21awareness #downrightperfect #nothingdownaboutit #morealikethandifferent #theluckyfew
My girl Chaney is getting married!! Everyone wish her a wonderful day! I love all that Calvin has brought to my life. Including some of the most bad ass girls I’ve ever met! Including this hot mama! @chaney_lyn88 #partay #chaneysbridalshower2018 #theluckyfew
The twins transitioned to front facing car seats and are enjoying the new perspective 😊 #FergusonSisters #ValkyrieJuneFerguson #TwinsRaeAndSloan
Hooray!!! We’ve raised over $4000 for @dsaco_cbus ‘s Columbus Buddy Walk!! Thank you for all of your amazing support!! #columbus #buddywalk #kindisthenewcool #theluckyfew #downsyndromeawareness #kindnessmatters #petitephilanthropist #miniadvocate #girlswholead #columbuskids
Happy #NationalDaughtersDay to my beautiful babe. You’ve been an absolute adventure since the day you arrived. You’ve been thru SO much in your 14.5 months of life. You are my hero. You make my world go ‘round, sweet child of mine. Thank you for making me a Mama after all these years. You were worth the wait. 💜💜 • • • • #babiesofinstagram #babygirl #sweetbabygirl #downsyndrome #downsyndromeawareness #t21 #trisomy21 #t21rocks #bonuschromosome #theluckyfew #theupsideofdowns #lifeisbetterwithyou #shouttheirworth #somuchworth #dontdismyability #nothingdownaboutit #morealikethandifferent #changingthefaceofbeauty #extrachromosomesrock #extrachromosomeextracute #extrachromosomeextraawesome #extrachromosomeextrasass #extrachromosomeextralove
Que suuuuper ha sido el día de hoy!!! ... y para cerrar con broche de oro, una deliciosa cena con mi Sultán!!! 😍😍😍 Qué más puedo pedir! Feliz noche! Les mando muchos besitos y Pancho tambien! 😁💕💕💕 #love #amor #cena #misultan #segunmajo #sindromededown #theluckyfew
@okcthunder @rumblethebison Thank you so much for coming out tonight to support The Courage League! It was a blast watching the game and I know that you now have a new little Thunder fan for life. #okcthunder #rumblethebison #courageleague #t21 #scottierose #thunderup #theluckyfew
Can he be any cuter? 😍#upfordowns #dsdn #theluckyfew #downsyndromelove
This little angel came into the world a year ago and blessed our lives beyond our wildest dreams. She’s the strongest, most extraordinary little human I’ve ever had the pleasure of knowing and somehow I got the honor of being her mommy. She’s taught me more in one year than all of my years combined and her story’s only just beginning. Happy Birthday Bella Skye💜 Thank you to @kristenmarieimagery for making this shoot so very special. #bella #happybirthday #babygirl #1stbirthday #baby #babiesofig #photography #heartwarrior #chd 📸 @kristenmarieimagery #love #mommydaughter #sandiego #virgo #theluckyfew
All this love for one little extra chromosome. Thank you @jacksbasket for a wonderful evening! Our family is so thankful for the community Down syndrome has connected us to. @carissa12leigh , you, my friend, have a gift from God, and I’m thankful to have you in my life. Feisty really does get things done! #theluckyfew #shouttheirworth
One week post-op. Gunnar got his #hearthero cape from @everfanheroes ! Now we can call him Super Gunnar! #theluckyfew #shouttheirworth
Peace. God is good all the time. All the time, God is good. #peace #peacebestill #theluckyfew #shouttheirworth
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