#tinyfighter

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💩🎉💩🎉💩🎉💩🎉💩 Dear Cutler, I'm working on the decorations and streamers for my 4-week-hospital-iversary party today. 😜 I thought these were ironically appropriate..... Please bust me outta here!!! Im about to lose my shit entirely....... XOXO, Clara Violet PS. Is there something stuck to my shoe!?!? #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
We reveal our first ever records, with surprising results! Let us know in the comments what your first album was. Be honest now! We clearly were... #firstalbum #firstrecord #smallbytes #tinyfighter #interview #indiemusic #twistedsister #aqua #newkidsontheblock #depechemode #hairmetal #eurodance #boyband #vinyl #cassette
A baby Ten little fingers, Ten tiny toes, The sweetest of smiles And a cute little nose. All these add up  To a very special thing... A baby --- The greatest of gifts That life can bring.
We spent the weekend with Swedish super producer Plec Johansson at his @thepanicroomse studios in Skövde. Here he is sporting a rather fetching new #tinyfighter t-shirt. Nice! 👍 #newmusic #recordingstudio #recording #vocals #tshirt #bandshirt #merchandise #skovde #monday #newmusicalert #producer #mixing #sonicdeluxe
On Sundays the @concordia_mn Hockey Team volunteers their time with the kids at @sanfordhealth... On Sundays Clara LOVES to hang with the volunteers... This Sunday she found a Grand Forks kid to flirt with. 😍 "Hard to get" is a work in progress... #allsmiles #obvious #claraviolet #tinyfighter #3mendous @claraandcutler
Dear Clara, I LOVED FaceTiming with you guys this morning. It makes me feel so much better to see your smile and have you tell me (and my mommy and my daddy) that YOU ARE STILL THREE!!!! Also, I was very sad that you had to go and talk to the doctors, cause Lana was singing all of my very favorite songs. I love that amazing mommy of yours. So I will sit here with my iPad and some snacks (goldfish... duh) and wait for our next phone date. Get well soon. I miss you. You are my best friend. Cutler James ❤️❤️#facetime #callme #mygirl #bestfriendgoals #christmascupids #bffs #pintsizepowercouple #claraviolet #tinyfighter #getwellsoon #cutlerjames #beautifulsoul #toddlers #toddlersofinstagram #superman #t21blessed #downsyndrome #morealikethandifferent #changetheworld #theluckyfew #love #kindnessmatters #hospitallife #lovemygirl
Ja synttärit vaan jatkuu... #tinyfighter #engångalltid #hifk #birthdayboy
Eloise after her first exhibition fight. My three year old is tougher than me. ❤️ #bjjgirls #tinyfighter #diegobispoacademy
🌫🌤🌫🌤🌫🌤🌫 Dear Cutler, The sun is pouring in... but it still feels pretty cloudy this morning. I am back at Sanford Childrens. Things were going great at home... we got all settled in... and then yesterday morning I starting checking boxes on the "watch for these things at home" list. ✔😕✔😟✔ After sending some pics and a call to my fave surgeon (followed by some tears from everyone in the house) Mommy, Alex and I made our way back to Fargo. I was in the OR by 830pm... and we are back to square one. Hopefully, we won't have to stay too long. We are all set up to heal at home- once its safe again. I'm still sleeping off the anesthesia and pain meds this morning... not even the bright, east-facing window could wake me today. They filled my corner suite, so please send cheer to 903. ❤💚 Love you, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #instatoddler #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Christmas Magic for my #tinyfighter
Voi luoja mistä tota energiaa riittää. #tinyfighter #watchoutworld #pogostick #endlessenergy #dreambig
“Reworks” is out now! Featuring a beautiful chamber-pop version of Want Friends by the wonderful @jessiahmusic and a super chilled remix of Hollow Talk by the wonder-brothers #Step5 & #Perambulum . Listen on Spotify etc.... #reworks #remix #cover #wantfriends #hollowtalk #jessiah #newmusic #newmusicalert #newmusicfriday #outnow ‼️ #spotify #tinyfighter #chamberpop #chill #remixalert #remixsong #coversong #record #fridaymood #weekendvibes
❤💚❤💚❤💚❤ Dear Cutler, GUESS WHAT!?!?!?! Yep. This is my I'M HOME face! After a long day of hurry-up-and-wait, and training, and supply gathering... I'm finally HOME with my peeps. ❤ I think sleeping in my own bed, and healing with my fave kids will be the ticket to a happy tummy by Christmas... my #1 wish this year! Can't wait to see YOU, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #HOMESWEETHOME #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Sweet girl didn't have a very fun morning. But did really well doing something she HATES! It wasn't perfect, but I feel like we made some progress.❤️ A sparkly pink donut and a trip to the library for a new Fancy Nancy book this afternoon, because boy did she deserve it! 📖 #EllaRhi #IAlife #wheresthepoop #mrkhwarrior #tinyfighter #tinyreader #FancyNancy #library #preschoolreading #legendarydoughnuts #donutlover #tinkerbelldonut #medicalPTSD #medicaltrauma #progress #healing #datewithmama
These two. #tinyfighter and #babyb
😍❤😁❤😘 . Watch gorgeous foster kitties LIVE 24/7 at YouTube.com/c/KittenOClock/live They are *all* available for adoption! . #Repost @kittenoclock • • • • • Will box for ham. . Panda has one of those incorrigible purrsonalities that I find irresistible. She’s a fighter and that’s why she survived the streets. . She and her main squeeze Mr. Knightly are still available for adoption! If you have ham she’ll love you! . . @urban_cat_alliance @kittencuddlerm #urbancatalliance #cutecats #dailykitten #cutecatsclub #tinyfighter #tinybutmighty #RescueCatsOfSydney #worthsaving #adoptdontshop #catsoftheworld #watchkittens #adoptme #adoptablecats #catsgatosgatti #catractive #ilovekittens #BestMeows #FosterKittensOfInstagram #InstaKitty #TheNightNightClub #catsofinstagram #weeklyfloof #ilovekittens #sydneyaustralia #sydneycats
Need some inspiration this holiday season from a #tinyfighter ? Our featured story, @claraandcutler , is ready to give it to you. Her mother, Lana Beaton, shares: "Clara lights up a room with her smile, humbles those around her with her strength and resilience, and leaves a trail of joy wherever she goes. Her bubbly personality has opened the door for many amazing opportunities to spread awareness." Clara chose #ProjectArmchair for online sales to benefit. #BecauseICan
Watch our version of Robyn’s gorgeous Dancing On My Own, recorded live during our US tour. Full video here: https://youtu.be/6aQw4b4uN7o Produced by @robfitzgeraldphoto & @hipvideopromo Camera: @robfitzgeraldphoto & @mickeykundrath Sound: @walterskevinb #robyndancingonmyown #robyn #musicvideo #livemusic #instavid #instavideo #dancing #tinyfighter #newmusic #tuesdayvibes #loft #loftsessions #swedishband #sweden #indie #indiepop #dancingonmyown #cover #liverecording #harmonies
Can’t believe that this little boy is already 10 years old! Happy Birthday Lapa!#birthdayboy #10 #myson #tinyfighter #dreambig
Last night I took some time to look at Vincent’s newborn photos. I never like to look at them because a few hours after these pictures our lives we turned up- side- down as his critical coarch was detected. I went out for this photography session and didn’t return home for nearly 3 weeks! Even though he looks so sick in the pictures now we had no idea what was about to happen... but I can compare them to how far he has come... ♥️ my little #mendedlittlehearts #chdwarrior #chdawareness #brokenheart #tinyfighter #teamvincent #hearthero
🦄💙🦄💙🦄💙🦄 Dear Cutler, Its been a busy weekend at Sanford... so many cool things in the works! ALMOST makes up for the fact that we are closing in on 3 weeks since I've been privy to the real world. Daddy & Stella were here all weekend: that makes me and mommy all kinds of warm amd fuzzy. My great-auntie & uncle came to hang out (oh my, did we have a good giggle!) And our friends at WDAY stopped by to get a taste of our little gong show! I mean... what a full calendar! I'm still holding strong... and I really mean HOLDING STRONG... as in I'm strong-arming this holding pattern keeping me here. My tummy is just not budging towards "better." It may be time to start reevaluating my goal. In my humble opinion, HOME ANY WAY POSSIBLE seems like what we need to shoot for. For tonite, me and mommy are tucked in for a quiet evening, watching Christmas movies, playing Fruit Ninja and plotting our escape. Love you to bits, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Size comparison of how little George is 👶🏻📱 My camera is bigger and weighs more than him 😱 Thank you @perfectlypreemie for his adorable NICU outfit! #preemie #perfectlypreemie #nicu #nicubaby #tinyfighter
Our perfect little fighter is a MONTH old today, & is weighing 4lbs 3oz! Oh how we love this boy so much! #TinyFighter #PerfectBoy #CarterRyan @othobrooks
‼️My little is home ♥️ ❓Question: A lot of you are friends in the med/ pharm space and I want your opinion. We were started on broad spectrum antibiotics (Rocephin) even AFTER seeing positive results from the viral panel while we waited for cultures... I am considering giving a hard no to abx without a bacterial cause identified in the future because this is not the first time they have thrown abx our way without an underlying diagnosis... especially when we had a viral cause identified...thoughts⁉️MD said this was standard practice, which it is- but does that make it right? #letmehearit #controversial #bestpractices #mendedlittlehearts #heartmom #tinyfighter #chdawareness #chdwarrior #hearthero #brokenheart #antibiotics #medicine
Your daily dose of hilarious: trying to explain to a 3 year old the difference between a cheeseburger and a hamburger. #toddlerlogic #jamesonlee #tinyfighter #beefcake #BEbrave
"Hearts are wild creatures, that's why our ribs are cages" #tinyfighter #bird #tiny #caged #protected
My new great nephew Gianni Michael! Welcome to the world my sweet boy! You’re a fighter and you’re gonna do great things. Aunt Nay loves your little self so much already and I can’t wait to hold you. 💕♥️❤️🎂👶🏻 #25weeker #tinyfighter #GianniMichael #miraclebaby #nephew #11 /27/18
💩💙💩💛💩💙💩 Dear Cutler, In case you're wondering if I'm getting enough TLC at Sanford Hospital... I am. ❤ Mommy went to grab some lunch while I was tucked in for a snooze... and came back to find me and my girls, just hanging out... in the nurses station. I don't wanna brag, but I kinda think I'm one of their fave patients. 😍 As for an update... there isn't one. Things are still in a holding pattern. Thought maybe we took a forward baby step yesterday... but nope, this morning had different plans. SO- no plans for home just yet... I'm about to start thinking we'll need to hang some Christmas lights up in here. 😜 Kidding... sort of. Cant wait to chat today! Love you, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
Captured four scabies kittens today, one is still out in the cold. While trying to give this hot mess meds it got away from me and terrorized the bathroom and me. "You're an Angry Elf!" came out of my mouth. Welcome Angry Elf and siblings to our home. #angryelf #feralkitten #kittensofinstagram #rescued #tinyfighter #spayandneuter #adoptdontshop #tnvr #fosteringsavelives #meow #pawsneedclaws @stfrancisrescuetampa
Our little Superman is showing how strong he is again while at the hospital with a high fever 🤒... his heart ♥️ is doing great but you never can be too careful with this little guy. On another note every doctor and nurse we come across already know him and his story like “hi sweet Vincent, we’ve heard all about you” #chdwarrior #mendedlittlehearts #heartmom #brokenheart #tinyfighter #baby #teamvincent
As promised here is part 2 of the Loft Sessions - Live in New York. Full video here: https://youtu.be/37v5Nj9LcmI Enjoy! Produced by @robfitzgeraldphoto & @hipvideopromo Cameras @robfitzgeraldphoto & @mickeykundrath Sound & mixing @walterskevinb #unplugged #acoustic #harmonies #livemusic #tinyfighter #loft #recording #newyork #nyc #lowereastside #chinatown #newmusicalert #tour #tourlife #swedishband #vocals #yousaidtome
Christmas is in full effect here. Christmas tree is up. Gingerbread house is done. Tomorrow we make ornaments. This weekend we start baking cookies. Hello Christmas. I love you. #christmas2018 #gingerbreadhouse #jamesonlee #tinyfighter #beefcake #BEbrave
It's not a very big tree, but its ours and we love it. Jameson made sure his Lightning McQueen was front and center and the tallest ornament on the tree. #christmas2018 🎄 #jamesonlee #tinyfighter #beefcake #BEbrave
Will box for ham. . Panda has one of those incorrigible purrsonalities that I find irresistible. She’s a fighter and that’s why she survived the streets. . She and her main squeeze Mr. Knightly are still available for adoption! If you have ham she’ll love you! . #willboxforham #tinyfighter #tinybutmighty #floatlikeabutterflystinglikeabee #adoptdontshop #spayandneuter #catsofinstagram #kittencam #kittenlady #kittenplay #rescuecatsofsydney #lovemeow #kittensofinstagram
• CYBER MONDAY SALE & FUNDRAISER FOR ANDI FAYE LACEY • . . . All orders placed today will receive 15% off when you use the code : CYBERMONDAY15 on our website or Etsy shop. (Candles are currently only available through Etsy) . . . On top of receiving 15% off for yourself, I will continue to donate $5 from the purchase of each bracelet and $2 from the purchase of each mug/ candle to the Lacey Family to support them on their new journey as a family spending the first few months of sweet little Andi Faye’s life in the Surrey Memorial NICU. . . . This will be the last sale I put on before Christmas so why not get a deal and help out a #preemiefamily !?!? . . . If you are local to Dawson Creek- shoot me a message on here or text 250-219-4078 to place an order to avoid paying shipping. . . . If you would like to make a donation to the Lacey Family please call text email or message me on Fb or Instagram ❤️ #nicuwarrior #bornfighting #tinyfighter #andifayelacey
God is so good. At 3 months pregnant I found out I had a tear in my placenta and I could be at risk of losing my baby girl. She remained strong and she made it through it . Then at 21 weeks along we were hit with news that our princess had cpam which means she has a mass either solid or liquid in her lung. It was difficult to see her heart pushed to the right side of her chest and being told she was at risk of heart failure if the lesion grew bigger . Eventually her heart was in the right position and every appointment she remained strong and didnt let the condition stop her from coming home a strong little girl . Soon she will be getting a MRI or CT scan to see when is the right time to do surgery to remove her cpam. I know this is another barrier that she will crush through and I cant wait to see the many fights she will win in her lifetime. We would like to say thank you to our beautiful family . We love that you guys prayed for us, took care of Iliyah and Issac when we needed, and that you were the best support system we could ask for . We cant thank you all enough and we love you very much . Thank you to Peter Yu of #chocchildrens for explaining the process of surgery and giving us a better understanding of what our princess was going through. Also, I'm very thankful to the staff at #ucirvinehealth for seeing me during my pregnancy and taking care of this very rare but special baby girl that I gave birth to. They did a great job when I delivered by having the NICU team in the room to check out her breathing and by doing two xrays to see what needed to be done once surgery day comes. Lastly, I like to thank you baby . You made sure to get me to LA twice a week and sometimes more . I would've broke down even more if it weren't for you always thinking positive and going on this journey with me . I couldn't have asked for a better husband and father. Overall, Issac and I have a special little girl and we know she is a fighter and a blessing from God. We love you Inayah. #ccamawareness #cpamawareness #cpam #ccam #rarebutspecial #cpambaby #mirclebaby #cpamwarrior #princess #blessing #3rdbaby #strong #tinyfighter #inayah #Godschild #cpamstory
Dear Thanksgiving, Bravo. Being thankful is cool and so is yummy food. I love this holiday. Also... I love Clara. Ready for leftovers, Cutler James ❤️❤️#gobblegobble #thanksgiving #thankful #redismycolor #holidays #ndss #dsdn #nothingdownambassadors2018 #claraviolet #tinyfighter #bestfriends #bffs #pintsizepowercouple #toddlerfashion @oldnavy #toddlerlife #picoftheday #morealikethandifferent #theluckyfew 💙💛
We've been dealing with the aftermath of a very independent 3 year old who's had no say over his own body and space the last few days; but for now, he sleeps peacefully in his own comfy bed. Sleep well my son, tomorrow is a new day and we will continue to help your brave soul work through your frustrations and fears together, because you are never alone. #jamesonlee #tinyfighter #beefcake #BEbrave
Don't mind the overly exhausted mom look, 3 days in the hospital will do that to you. Santa Claus came by just in time to give Jameson a new teddy bear before we got to go home. And he rode in with all his biker buddies for a little parade. #santasbikerun #discharged #jamesonlee #tinyfighter #beefcake #BEbrave
Poor thing was trying to eat an apple as big as his head with one arm that doesn't bend 🤣🤣🤣 #jamesonlee #tinyfighter #beefcake #BEbrave Dsiclaimer: mama tried to help and offered to cut it up, he refused so I sat back and laughed. #sorrynotsorry
❄💛❄💛❄💛❄ Dear Friends, Sneaking in a Holiday Hello... albeit at the last minute! Hope everyone had a great day! 💙 We sure did! Scott's mom & sister brought a DELICIOUS turkey and all the fixins up to the hospital... we had Cully's Cabin all to ourselves and the kids all played together all afternoon. Best it could possibly have been!! Panic has officially set in now tonite. I lost my shit giving Clara a bath ... and I cant stop crying. :( There is so much to be thankful for (with all of YOU on my list) and I'm a puddle because I won't be able to blow raspberries on her impossibly ticklish tummy tomorrow... indefinitely. I have faith in her team... and such a hopeful heart that tomorrow will go seamlessly, and that we will find more answers than questions. Regardless, my mommy-❤-strings are pulled pretty tight... Soaking up all your strength & prayers, Lana #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #morealikethandifferent #nothingdownaboutit #theluckyfew #instakids #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
We had the pleasure of performing stripped back versions of our songs in a beautiful Lower East Side loft during our New York visit. We’ll be releasing these once a week in the run-up to Christmas. Starting with this...enjoy! Full video: https://youtu.be/mNrKvlV-v9o Super massive thanks to @robfitzgerald22 @mickeykundrath @walterskevinb & @hipvideopromo #unplugged #livemusic #livemusicnyc #musicvideo #tinyfighter #loft #nyc #newyork #lowereastside #acoustic #harmonies
I am #thankful for many blessings this year... But I am especially #grateful for the cardio thoracic surgeon that saved sweet Vincent when his heart ♥️ was smaller than a walnut and in need of repair. I will dedicate this Thanksgiving moment of gratitude to him because quite literally he saved my son’s life. #mendedlittlehearts #hero #chdwarrior #chdawareness #chd #heartmom #1in110 #tinyfighter #survivor #teamvincent #mighty #thanksgiving #countyourblessings #hearthero #brokenheart #baby
Here we go again ... waiting for his doctor at John's Hopkins to weigh in on what we need to do. #jamesonlee #tinyfighter #beefcake #BEbrave
Tonight, at swim lesson, William earned a MAJOR AWARD! #tinyfighter #swimmer
The Hair Apparent #tinyfighter #casualfriday
😷💤😷💤😷💤 Dear Cutler, Bedtime Stories vs Bedtime Vitals........ thats a toss up tonight. The good news is, I nailed both of 'em. The not as good news is, Im not making so much progress... maybe kinda going backwards a little. BUT, we have a handle on it. I know you (and all our friends) have been worried about me... and I know you have all been saying lots of prayers, and sending lots of light my way... we feel it! I may not be where I was hoping to be healthwise by today, but I'm definitely WHERE I need to be! My team is comin' in hot at Sanford... and that makes everyone (especially my mom) much more at ease. We should know more tomorrow about what direction my gut is going to take me... will keep ya posted. Also, your dinosaur jammies were ON POINT yesterday! I got some new Ho-Ho-Ho jams... and mom needs to go get more... these are wrangling all my lines quite nicely, but they are my only pair!! #timetoshop Miss you MUCHO, Clara Violet #kickinghirschsprungsass #tinyfighter #claraviolet #downsyndrome #downsyndromelove #downsyndromerocks #downsyndromeawareness #t21 #trisomy21 #upsyndrome #theluckyfew #pintsizedpowercouple #chromiehomies #bonuschromiehomies #t21blessed #2018Ambassadors
My #goals for this #givingtuesday include filling this basket for my #mendedlittlehearts families. They offered us #support and #hope when Vincent was at #UVA so we have decided to host a supply drive to give back. I am so #thankful for our wonderful @clocktower_rva brokerage for participating! 🏡 ♥️ 🦃 🙏🏼🍗🎄✨ #chdwarrior #teamvincent #tinyfighter #heartmom #chdawareness #braverybags #giving #grateful #living #winning #brokenheart #survivor #hearthero #1in110 #chd
You asked, we delivered. Tiny Fighter t-shirts now available!! Choose a colour scheme (3 options - see images), your size (S, M, L, XL, XXL) and then either DM or email us at asktinyfighter@gmail.com with your order. Just $15 USD plus postage. Then sit back and watch out for your friendly post-person to deliver the goods! #tshirt #bandshirt #musicshirt #merchandise #design #tshirtdesign #tinyfighter #order #rockshirt #mondaymotivation #newclothes
Dear Clara and Family, We love you. Our hearts hurt knowing that you have had a crappy week... But our hearts are happy that you are snuggled in closer to home with a plan that EVERYONE agrees on. That Sanford is a pretty AWESOME place... a “home away from home” sometimes. If you need anything... LET. US. KNOW. Mommy is already planning a trip and a care package. 😉 Sending love, hugs, and a little message, Cutler James ❤️❤️ *PS. Yes, that’s Tom Brady in the background. Ugh. My bro likes the Pats... I don’t know why. 😜😜#getwellsoon #hospitallife #weloveyou #bffs #claraviolet #tinyfighter #cutlerjames #beautifulsoul #tummyprobs #hugs #kisses #loveyou #downsyndrome #ndss #dsdn #momlife #mamabear #yougotthis #pintsizepowercouple #theluckyfew #nothingdownambassadors2018 #family
Välillä treenataan jotain uutta 💀 #kohtasattuujuhaaleukaan #tinyfighter #nomorebrokenbones
Born 8 weeks premature at 3 lbs 4.6 oz, James spent 40 days in the NICU. He is now ~30 lbs and nearly three years old! #worldprematurityday . . . #tinyfighter #nicugrad #preemiepower
Lucas. This morning you had a major meltdown. I don’t really know why. Could have been that I put socks on you. And then one sock came off and that made you even more mad than the fact that I put socks on you at the first place.. Our morning was far from perfect. But honey, I can’t even begin to tell you how happy I am that I get the opportunity to ride these meltdowns through with you, that you get so mad at me but then we make up. And that we then ended today with you and me playing hide and seek and you laughing that bubbly laugh while I caught you and kissed your neck. On #worldprematurityday I think about all the tiny fighters out there and I feel a little extra grateful for both the good and the bad. I’m just so grateful that you’re here and that I get the opportunity to get to know you. Hold you. Love you more than words can say baby boy. #tothemoonandback #tinyfighter #preemie #letterstoyou
Theo. Today it’s 6 days until you turn 2. And while I’m writing this I have your feverish sleeping body on my chest. And I soak in every moment. So grateful that I get to hold you. Comfort you. That I can kiss your neck or stroke your back when ever I want to. That I know that even if you’re sick right now you’ll feel better in a day or two and I’ll soon see you run around, coming up with different mischiefs with your brother. I’m so happy to get the opportunity to be at your side through everything tiny one. The good and the bad. That I get the opportunity to get to know you. That you’re here. I’m in true awe over their strength. Words can never describe how much I love you. On this #worldprematurityday I celebrate all the tiny fighters, you included. #tothemoonandback #tinyfighter #preemie #letterstoyou
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