#treachercollinssyndrome

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Already #uglycrying this morning 20 minutes in. Sweet movie, now gotta check out the book #wonderthemovie #cinema #worthwatching #treachercollinssyndrome #differentnotless #love
Ashton face reveal!! Ft. Stevie trying to convince Ashton into admitting that hugs are amazing. 2 things. 1, Stevie has a speech impediment which is why u see he's stuttering (I don't have a specific diagnosis for him yet, but I can tell u that he has a difficult time forming sentences; he has an idea of what he wants to say, but can't quite put it into words so he stutters a lot and usually ends up repeating the entire sentence once he knows what he wants to say). 2, I state this in Ashton's ref sheet, but Ashton has Treacher Collins, which is a condition that causes that certain bones and tissues in the face aren't developed. He's very insecure about his face, which is why he wears a mask. I'm still learning about TCS so expect to see more changes in Ashton's design. In the meantime, I hope u like this baby boy that tries to act tough but is actually very soft.
@Regrann from @luciahernandezfitness - El gym no solo sirvió para mi cuerpo... también me ayudó a olvidar mis problemas. No lo veo tan solo como algo superficial. Lo hago porque me gusta. Lo veo como filosofía de vida y será así hasta el fin. Progresando día tras día, siendo una mejor versión de mi cada día. Todo esto comenzó tratando de olvidar la mierda de vida que vivía, el infierno que me hacían pasar... fue doloroso, pero todo eso ya se cerró! El fisioculturismo me ha dado fuerza, confianza, carácter, actitud, voluntad, humildad... 📍Cuando emprendía esta aventura como bikini Fitness sabía que tenía que dejar muchas cosas atrás, tenía que empezar a aceptarme tal y como soy, con mis defectos e imperfecciones, me tenía que aceptar a mí misma sin reservas y por completo. Con la cabeza bien fría y clara debía decidir si seguir operándome o no, sin dudarlo elegí que no, elegí poder disfrutar de la vida, poder vivir mi sueño, comprendí que la vida no tiene sentido si no la vives, llevaba 20 años sin saber lo que era vivir, me he pasado esos años de hospital en hospital... Ya era hora de poder disfrutar y más que nada poder cumplir mi sueño, ya era hora de poder ser feliz. Con el tiempo empecé a sentirme más cómoda conmigo misma. Aceptarse uno mismo es la condición previa para el cambio. Siempre se puede estar peor y siempre se puede estar mejor, pero lo importante es aceptar la situación y dentro de ella intentar hacer todo lo posible por disfrutar y mejorar nuestra vida. ¿si no te aceptas tu, por qué vas a esperar que los demás te acepten? ¿si no te respetas a ti mismo, como quieres que los demás lo hagan? Aceptarse a sí mismo no significa que te gustes por completo y que no quieras cambiar nada. Significa dejar de negarse la verdad, aceptar que tu cara y tu cuerpo son los tuyos, sean como sean. No avergonzarte de ti y no tener miedo de mirarte en el espejo. Es decirte a ti mismo “Esta soy yo, soy así y no lo niego”.📍 #treachercollins #treachercollinssyndrome #tcs
El gym no solo sirvió para mi cuerpo... también me ayudó a olvidar mis problemas. No lo veo tan solo como algo superficial. Lo hago porque me gusta. Lo veo como filosofía de vida y será así hasta el fin. Progresando día tras día, siendo una mejor versión de mi cada día. Todo esto comenzó tratando de olvidar la mierda de vida que vivía, el infierno que me hacían pasar... fue doloroso, pero todo eso ya se cerró! El fisioculturismo me ha dado fuerza, confianza, carácter, actitud, voluntad, humildad... 📍Cuando emprendía esta aventura como bikini Fitness sabía que tenía que dejar muchas cosas atrás, tenía que empezar a aceptarme tal y como soy, con mis defectos e imperfecciones, me tenía que aceptar a mí misma sin reservas y por completo. Con la cabeza bien fría y clara debía decidir si seguir operándome o no, sin dudarlo elegí que no, elegí poder disfrutar de la vida, poder vivir mi sueño, comprendí que la vida no tiene sentido si no la vives, llevaba 20 años sin saber lo que era vivir, me he pasado esos años de hospital en hospital... Ya era hora de poder disfrutar y más que nada poder cumplir mi sueño, ya era hora de poder ser feliz. Con el tiempo empecé a sentirme más cómoda conmigo misma. Aceptarse uno mismo es la condición previa para el cambio. Siempre se puede estar peor y siempre se puede estar mejor, pero lo importante es aceptar la situación y dentro de ella intentar hacer todo lo posible por disfrutar y mejorar nuestra vida. ¿si no te aceptas tu, por qué vas a esperar que los demás te acepten? ¿si no te respetas a ti mismo, como quieres que los demás lo hagan? Aceptarse a sí mismo no significa que te gustes por completo y que no quieras cambiar nada. Significa dejar de negarse la verdad, aceptar que tu cara y tu cuerpo son los tuyos, sean como sean. No avergonzarte de ti y no tener miedo de mirarte en el espejo. Es decirte a ti mismo “Esta soy yo, soy así y no lo niego”.📍 #treachercollins #treachercollinssyndrome #tcs
What’s your favorite color? Big Sis: Purple! Little Sis: My favit color is orange! My sisser’s favit color is purple! . Can you guess which kid has been in Speech Therapy since birth??
She understands “matching” and “the same as” but ABCs are tricky! She seems to finally be getting the hang of it...
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My amazing daughter who strives everyday enjoys learning. Reading & singing are her favorites things to do. She seems so advanced for her age and so alert. We love using her hearing aid every time she is awake. #goldenchild #rarediamond #family #treachercollinssyndrome
I send most of my time putting her feet back in the floor...
Just the guys, hanging out after daddy gets home from work! 😍 Walt had a busy week with the early intervention (EI) SLP and teacher of the deaf/hard of hearing coming out, as well as the county health nurse. Walt continued the trend of loving everyone he meets, and everyone says he is right on track for his age!! They especially commented on how good his communication was, which is fantastic and a testament for getting his BAHA so early in his life! #treachercollinssyndrome #speechtherapy #hardofhearing #oticon #baha #ccakids #earlyintervention
Naše kámoška Beátka s #treachercollinssyndrome je nadpozemská a jedinečná kámoška. Moc bych si přála, abychom věnovali co nejvíce pozornosti a péči v přístupu našich děti ke všem odlišnostem a jinakostem, které nám život přináší. Je to o nás rodičích, jakým způsobem přistupujeme k tomu, jak vedeme naše děti. My sami se občas nacházíme v rozpacích a nevíme, jak přistoupit například k lidem s tímto syndromem. Chtěla bych vás moc poprosit, abyste svým dětem pustili film Neobyčejný kluk, kde jsou všechny tyto aspekty s citem a v pravdě předány Největším dárkem pro tyto děti ( nejenom děti s TC syndromem) je to BÝT SPOLU. Hrát si... zpívat.... přátelit se... protože jsme JEDNO a všichni toužíme po tom stejném.... Po lásce... přátelství ... respektu.... a sounáležitosti... Sledujte profil @betcs.cz , který vedou užasní rodiče Beátky - Eliška s Daliborem, kteří se snaží o osvětu v tomto tématu a já jsem v tom s nimi. Pojďme se , prosím, na svět dívat vic srdcem, než očima.... DĚKUJU VÁM S láskou Tamara.
New haircut...really just a little trim and a fresh pony tail.
I'm sharing again in hopes that someone can help! My husband @sebastiangarcia60427 lost his hearing aid! He can't function properly without it, he is a welder and needs to be able to hear his co-workers! Please help us! gofundme.com/missingsense #tcs #treachercollinssyndrome #treachercollins #lovemelovemyface #baha #boneadhesivehearingaid #cochlearimplant #gofundme
How did you meet some of your forever friends? For Lisa Taylor, an online search for support groups for her daughter's rare condition, Treacher Collins syndrome, led her to meet Judy Mosher. Living 800 miles apart couldn't stop these two from becoming friends. As the patient coordinator for the Craniofacial Center at Dayton Children's, Judy was able to connect Ava and her mom to Dr. Gordon and they traveled from Illinois for craniofacial surgery this past May. And Judy never left their side. She was there to support the family before, during and after surgery! Check out how Ava is doing post surgery and learn more about this specially friendship. Link to story temporarily in profile
Do another video, ok?
Je découvre tranquillement le visage de ma fille. Celui qui était jusqu'alors caché par les pansements. Un petit bébé hospitalisés, c'est se réjouir de chaque petite victoire (lire ici : banalité pour quiconque). 💕⚘ . . #chusaintejustine #bebetracheo #tracheotomy #trachbaby #gastrostomie #gastrostomy #littlewarrior #supermom #treachercollinssyndrome #tcs #syndrometreachercollins
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She should wear a bib, but even that would be no match for ketchup and BBQ sauce...
Bullying is NEVER ok! We love @pjs_playhouse and have been following his story since his mom shared it. PJ has a beautiful soul and we have no doubt he will do amazing things with his life ❤️ #Repost @pjs_playhouse with @get_repost ・・・ (Link in bio) Thank you to all the people who reposted the video of PJ’s bullies!! Not only did we get their accounts banned from Instagram but we also brought some awareness to this horrible epidemic!! ❤️🙏🏼❤️🙏🏼 #choosekind #peeejarmy • • #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #gtube #gerd #hardofhearing #microtia #bahahearingaid #mandibulardistraction #craniosynostosis #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #nicu #picu #specialneeds #specialneedschildren #wonder #wonderthemovie #wonderbaby #auggiepullman
Happy Monday!
I just want to address some comments about the yahoo article. • • • “Let the go fund me scam begin” : I completely understand that its human nature to be skeptical, but I would like everyone to know that we do not have a go fund me page, nor do we plan to. We raised and donated thousands of dollars last year and will do the same again this year. Rest assured that we are more interested in giving than receiving. • • “You just want attention” : The A-word you’re looking for is awareness, not attention. We use our social media platform and will use this yahoo article to promote the importance of the wonder speaker program and the volunteering/fundraising work that we do. • • “If you weren’t on social media, you wouldn’t have to deal with cyber bullies” : Yes, I understand that it is my choice to expose myself to cyber bullies. However, every other parent proudly posts pictures of their beautiful babies without fear of being threatened... Why should I be any different? Why should I have to hide? It is not in my character to run from problems. We are fighting for a world that is more accepting of differences. By hiding, we are encouraging the problem to continue. I refuse to back down and I will continue to educate and advocate for children with special needs in an attempt to make a kinder environment for my son. ❤️🦖❤️🦖 - Mama T-Rex
It has been so much fun including Shelby in our family meals, even if she doesn't eat the same way as the rest of us. Tonight, she'll have the same green beans, oven potatoes, and chicken legs we ate through her feeding tube. But first, mashed bananas! Yum! *In the fridge- we're still weaning Shelbs off the bottle and on to a sippy, but she loves whole milk. Behind that are bottles of her blenderized oatmeal & milk for 2 breakfasts to go with her beloved bananas. Next to that are two meals worth of tonight's dinner, all blended up and ready to go, as well as a container for more blending tomorrow. I add healthy fats to her blends as needed. It isn't nearly as intimidating now that I've embraced the mindset that she can eat how she would sans tube (but better!), it's just going in another way. 😊 #gtube #blenderizeddiet #realfood #treachercollinssyndrome #aglimpseintoourworld #specialneeds #trach #extraneeds #handsfullheartfull #momof6 #largefamily #homeschoolers
Hello everyone💕, yesterday I met with amazing Beatka and her family @betcs.cz Beatka was born with Treacher Collins Syndrom (TCS). This syndrome affects mainly face, but people born with this are not mentally affected. Unfortunately, many people don't know this disorder and that's why I decided to help Beatka and her family to increase awareness of TCS. I looking forward to helping her 😊💕. #treachercollinssyndrome
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The Princess Hair Tie motivated her to allow a loose pony tail. It’s a bit messy, but she seems to have forgotten it’s there...
“I eat cheese!!” ...the whole block of cheese...
So anyone who follows my friend @crystalkouri_hairmakeup knows she's not just an incredible celebrity makeup artist. She is an amazing mother to @pjs_playhouse who has #treachercollinssyndrome This beautiful boy is a #wonderbaby He is so strong. These 16 plus miles cardio tonight Friday gym night for me , are truly dedicated. To @pjs_playhouse and @crystalkouri_hairmakeup story on how he's been bullied already in his young life. These wanna be big shots need and will be stopped . It's there insecurities with themselves that make them feel superior by bullying others. All kids are beautiful. We are all different, but we are all #godschildren , and god only creates beauty. So realize your insulting gods creation his child. As he created us all how he meant us to be to serve this world. So I suggest Bully's. You use your energy not for negativity or hurting others. But fixing yourself and the hurt you carry deep inside. Drop the stone and ask for help. But @beconscious.bekind because we will @officialstopbullyingpage_ @stop._the_.hate With myself and @joe_the_runner and so many others. #owwrunagainstbullying . We love you @pjs_playhouse Your beyond a diamond 💎 your an angel super baby of god. 🙏💯😇🌠 #treachercollinssyndrome #owwrunagainstbullying #pjsplayhouse #purposedrivenlife #charitymiles #dedicatedtoyou #wonderthemovie #wonderbaby #stopbullying #antibullying #educateouryouth #safeschools #bekind #socialmediapositivity #bullyingendshere #fitnessgirl #lifetimefitness #leapfoundation #nonprofit #faceforwardla #eventbrite #valwarnertv #krisjenner #athletes #workoutroutine #gymsharkwomen #healtheworld 🌎 #allgodschildren #kloveradio
It’s time for a hair cut, but that’s worse than trying to brush her hair... She refuses to have pigtails, so now she gets food dried in her hair which leads to painful hair brushing. I have been putting her headband farther back, but there’s still hair in her face...
Me ha tocado ser yo, ser auténtica. #treachercollins #treachercollinssyndrome #tcs
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My "mess" was very visible today. 😬 Last night was quite sleepless for this mama. My back is bothering me. I'm hormonal. All the cards were stacked against me. 😒 I had my times mixed up for Shelby's first of two home visits today, so when the doorbell rang before I had even so much looked at a toothbrush, I went into all out panic mode. 😱 I scooped up random blankets, towels, and drinking glasses, and tossed them anywhere but the living room, adjusted my frizzed out messy bun, slapped on some deodorant, and squeezed some toothpaste into my mouth before answering the door. No time for makeup, no time for my "introvert, but you gotta be social today" inner pep talk. It all just happened so fast. 🌀 But we survived. Shelby showed off a bit. I acted a little bit like a grown up. Not a solid win, but I'll consider myself a winner anyway, because life happens, and we survived. 💪 So cheers to all the hot mess moms out there who get it. I see you, girls. You've got this. 🙌😘😎
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Look what I spotted when I searched "What is Treacher Collins Syndrome Ashley" This is what I want to continue is to carry on Raising awareness of Facial Disfigurement/Difference... #FacialDifference #FacialDisfigurement #Raisingawareness #TreacherCollinsSyndrome #AshleyCarter #google #googleposts #googlesearch #MentalHealth #mentalpain
****the link is now in my bio**** Keep making noise people!!! it works!!! I don’t know how to link the article but you should check it out!!! #standuptobullying @pjs_playhouse with @get_repost ・・・ (Link in bio) Thank you to all the people who reposted the video of PJ’s bullies!! Not only did we get their accounts banned from Instagram but we also brought some awareness to this horrible epidemic!! ❤️🙏🏼❤️🙏🏼 #choosekind #peeejarmy • • #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #gtube #gerd #hardofhearing #microtia #bahahearingaid #mandibulardistraction #craniosynostosis #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #nicu #picu #specialneeds #specialneedschildren #wonder #wonderthemovie #wonderbaby #auggiepullman
(Link in bio) Thank you to all the people who reposted the video of PJ’s bullies!! Not only did we get their accounts banned from Instagram but we also brought some awareness to this horrible epidemic!! ❤️🙏🏼❤️🙏🏼 #choosekind #peeejarmy • • #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #gtube #gerd #hardofhearing #microtia #bahahearingaid #mandibulardistraction #craniosynostosis #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #nicu #picu #specialneeds #specialneedschildren #wonder #wonderthemovie #wonderbaby #auggiepullman
(Link in PJs bio) Thank you to all the people who reposted the video of PJ’s bullies!! Not only did we get their accounts banned from Instagram but we also brought some awareness to this horrible epidemic!! ❤️🙏🏼❤️🙏🏼 #choosekind #peeejarmy @pjs_playhouse • • #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #gtube #gerd #hardofhearing #microtia #bahahearingaid #mandibulardistraction #craniosynostosis #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #nicu #picu #specialneeds #specialneedschildren #wonder #wonderthemovie #wonderbaby #auggiepullman
Okay so I just started following these 2 Instagram & YouTube famous sisters 👭👩🏾👩🏾 And they have become viral on their social media accounts by raising awareness together for this genetic disorder that they were born with called Treacher-Collins Syndrome or TCS, Basically, Treacher-Collins Syndrome (TCS) is a genetic disorder and disability that causes (usually major) deformities to the facial bones in your skull, and it can cause a lot of irregular deformities to the facial muscles and bones in your skull, to the point of affecting physical appearance. And because people with TCS tend to have the same or similar facial features as people with other genetic disorders like Down Syndrome for example, a lot of people tend to mistake them for people with Down Syndrome and similar disorders, when the two disorders are completely separate and different from each other. And unlike a lot of other genetic disorders and disabilities, TCS is one genetic disorder that doesn't actually affect people's intelligence or intellect so it's not actually classified as an intellectual disorder or a learning disability, because it doesn't actually affect intellect or intelligence or cognitive function; people with TCS still have the same normally functioning level intelligence and intellect and IQ level as most other average or super-intellectual people. And, these 2 sisters Asia and India, they've become viral on their social media because of them raising awareness for TCS as a once-rare but now increasingly-common disorder and because they were cruelly bullied about their appearance from it during their childhood and teenage years (both of them are like 23 and 21 respectively now tho). It just really inspired me tho because they were able to gain a lot of self esteem and confidence and pride in their inner and outer beauty. And they said as Christians, their Christian Faith in God and the Lord Jesus Christ helped them a lot as well. Basically, what I'm saying is, follow these 2 inspirational beauties 💘😍👩🏾👩🏾 for inspiration and encouragement 🙏🏾❤💯 @asiamekole @indiajanee
Both girls climbing :)
Look at how much I have changed since 2009!!! My facial parts have changed amazingly... and my hair... Loved the transformation!!! #Transformation #Hair #Body #FacialDisfigurment #facialshape #appearence #facialdifference #treachercollinssyndrome #AntiBullying
“I love that cuteness!” - Big Sis 😃
This is the highest she’s ever climbed. (Swipe to the side to watch part 2 of the video)
Herkese merhaba🤗💕 veeeeee beklenen tras oluduuuu😂 baroş ilk bilinçli trasini olmus bulunmakta😍😍😍 cok yakiskikli olmamismi?? Bence cok tatli ve cekici olmuş bayiliyorum bu hallerine delikanli oldu artik büyüdü 2 yasinda 😔😔 masallah benim ogluma onu bana veren nasip eden rabbime binlerce kez şükürler olsun🙏🙏 iyiki varsin oğlum 💚💚 NOT: Neden saçını kestirdin derseniz eger ki barani trakeostomisinden dolayi yikamak cok zor oluyor..saçları cok gur ve heba oluyor bende birazcik kestirdim yanlarını aldirdim tamsmen üstlerden de azcik aldılar seni seviyorum @binnur_ipek ❤❤ #treachercollinssyndrome #treachercollinssyndromebeautiful #treachercollins #TCS #tcsmom #mucizeoglum #farkinavar #farkindalik #mucize #sackesimi #kisasac #wonderson #iyiki
. Wonder(奇蹟男孩) 如果必須在「正確」跟「仁慈」之間做一個選擇,就選擇「仁慈」吧。 “When given the choice between being right or being kind, choose kind.” . 善以待人,因為人人都在為人生奮鬥。 若你真的很想看清一個人,你只需要⋯用心看。 Be kind, for everyone is fighting a hard battle. And if you really wanna see what people are… all you have to do… is look. #崔契爾柯林斯症候群 #下頷骨顏面發育不全 #TreacherCollinsSyndrome #wonder
Whoever wrote this/these is utter shit. Karma’s coming. #Repost @_annapaquin with @get_repost ・・・ YOU MUST WATCH THIS and SHARE: I have NEVER seen or heard such horrific #cyberbullying that frankly sound to me more like DEATH THREATS and certainly DEATH WISHES upon another human. And this person being attacked is a 12 MONTH OLD #specialneedschild .... I simply have no words. Apparently this kind of behavior doesn’t rise to the level of deserving legal action. I DISAGREE. Please watch this and look at the full link on bio of @pjs_playhouse and you tell me, this beautiful innocent child and parents HOW YOU FEEL! And if you know any action that can be taken please speak up. ALSO @instagram ???? You need to STOP this !!!! #Repost @pjs_playhouse with @get_repost ・・・ Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
So someone can make a death threat to me and I can have them placed in jail but this can slide? I stand with you and your family @pjs_playhouse Something needs to be done. #Repost @pjs_playhouse • • • • • Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
Well this makes sick and it makes me sad because no one should go through this and I know how it feels to be picked on or bullied and it hurts so much and some people need to learn that bullying isn’t the answer and it needs to stop. I’m sorry that you are going through this. Don’t listen to the haters about your beautiful and adorable baby my friend and you a wonderful mother. I’m sending you love and I’m sending you hugs ❤️💜❤️💜❤️❤️❤️@pjs_playhouse #repost By @pjs_playhouse with @get_repost ・・・ Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse "
Please share this, and let @instagram and the world know this bullying and abuse won't be tolerated. Reposted from @_annapaquin - YOU MUST WATCH THIS and SHARE: I have NEVER seen or heard such horrific #cyberbullying that frankly sound to me more like DEATH THREATS and certainly DEATH WISHES upon another human. And this person being attacked is a 12 MONTH OLD #specialneedschild .... I simply have no words. Apparently this kind of behavior doesn’t rise to the level of deserving legal action. I DISAGREE. Please watch this and look at the full link on bio of @pjs_playhouse and you tell me, this beautiful innocent child and parents HOW YOU FEEL! And if you know any action that can be taken please speak up. ALSO @instagram ???? You need to STOP this !!!! #Repost @pjs_playhouse with @get_repost ・・・ Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse - #regrann
This video is absolutely disturbing BUT it NEEDS to be shared. NO child ahould be subject to such hatred. Honestly this world scares me #bekind #lovenothate #Repost @pjs_playhouse • • • Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
This makes me sick as a disabled person, see we get bullied too but this broke me in two. WATCH IT #Repost @_annapaquin ・・・ YOU MUST WATCH THIS: I have NEVER seen or heard such horrific #cyberbullying that frankly sound to me more like DEATH THREATS and certainly DEATH WISHES upon another human. And this person being attacked is a 12 MONTH OLD #specialneedschild .... I simply have no words. Apparently this kind of behavior doesn’t rise to the level of deserving legal action. I DISAGREE. Please watch this and look at the full link on bio of @pjs_playhouse and you tell me, this beautiful innocent child and parents HOW YOU FEEL! And if you know any action that can be taken please speak up. ALSO @instagram ???? You need to STOP this !!!! #Repost @pjs_playhouse with @get_repost ・・・ Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
YOU MUST WATCH THIS and SHARE: I have NEVER seen or heard such horrific #cyberbullying that frankly sound to me more like DEATH THREATS and certainly DEATH WISHES upon another human. And this person being attacked is a 12 MONTH OLD #specialneedschild .... I simply have no words. Apparently this kind of behavior doesn’t rise to the level of deserving legal action. I DISAGREE. Please watch this and look at the full link on bio of @pjs_playhouse and you tell me, this beautiful innocent child and parents HOW YOU FEEL! And if you know any action that can be taken please speak up. ALSO @instagram ???? You need to STOP this !!!! #Repost @pjs_playhouse with @get_repost ・・・ Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING - ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats.... but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
Treacher Collins Syndrome is not for the weak, my precious little bug now has a gofundme page if anyone is interested in reading just a little about her and about TCS please follow the link in my bio and please share the gofundme on fb twitter snap and here anything would be appreciated for this little gems expensive lifestyle for her needs. My daughter is healthy thank God but TCS has caused her to need a trache tube in order for her to breathe until further surgeries down the line happen. She has a collapsed throat due to TCS and many TCS features you may know a little of TCS by the movie Wonder ❤ if you'd like to read more or learn more i have certain posts public on my Facebook (Alejandra Cendejas Aguilar) and her gofundme being shared on all my social media Have a blessed day everyone❤ prayers are always appreciated #TCS #TCSAWARENESS #TreacherCollinsSyndrome #GodBless #Blessed #SpreadLoveEverywhere #SpreadKindness #Educateyourself #Goodvibesonly #GoFundMe
Sorry for no update until now, we had a busy week after surgery with Grandma Toni coming to town, and Walt fighting a rash he picked up in the hospital! So the update: Walt did FANTASTIC! Dr. Urbinelli (our fave surgeon 🤩) took out his distractors, and we had to spend the night in the PICU just to make sure oxygen levels stayed up! He did great, and only needed Tylenol and lots of snuggles for pain for a few days after surgery--except the first night, which was SO SAD to hear the little guy in pain 😥 we have a post op appointment this week and then on to the next discussion--g-tube or not 😣 #treachercollinssyndrome #micrognathia #plasticsurgery #OHSU #oticon #snuggles #choosekind
Here’s what our sledding adventure looked like the majority of the 3 hours we were at the hill. Big Sis having a blast with her new friends. Little Sis begging to take a nap someplace warm.
She uses her feet to adjust the mirror so she can see me, which improves communication...
Child: Do we have any good food? Me: nope, only yucky food. Child: You are not saying the truth! That is lying! That’s not the truth! We do have good food! Me: ok, then please eat it... #doesntunderstandsarcasm #whosekidareyou
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