We are excited so see Ms. Ashley @thatchiqashley
competing with her team. 😁
AWESOME PRIZE ALERT!!! Thank you to Diana Palumbo Bernier and Steppin' Out Dance Academy for donating this amazing private aerial class for up to 6 people for the 6th Annual Cassidy’s Run for the Kids 5K (and Fun Walk)! You don't want to miss your chance to win this fabulous prize so make sure to get you and your family to Sylvan Street Grille Salisbury on June 3rd for this year's Cassidy 5K and post-race festivities! "You and a group of friends can be circus performers for the day! The winner will learn skills and tricks on the aerial fabric and trapezes while dancing on air! Great for parties or just for fun, the sky is the limit. Build strength, coordination, grace, and self-confidence during this fun 60 minute class with one of our highly trained and certified instructors at Steppin' Out Dance Academy in Kingston, NH. Certificate can be used for a group of up to six people, all ages welcome!" www.steppinoutdanceacademy.com
Interested in donating an item for this year's raffle? Send us an email at: rafflesC5K@runthecircle.org
To sign up for this year's race or to donate directly visit: www.runthecircle.org/cassidy
#cassidyscrusaders #cassidy5k #tcs #treachercollins #treachercollinssyndrome #steppinoutdanceacademy #steppinout #SODA #aerial #trapeze #kingstonnh #kingston #dance #fundraiser #5k
Working on some Baha softband headbands while my girls play together nicely. 😃
Today was a beautiful day for an outing. Shelby finally had a proper hearing screening done this afternoon. The Audiologist was amazing! Not only was she friendly, patient, and thorough, she explained things in a way that we clueless parents could understand. We look forward to working with her as Shelby grows.
Shelby should have access to a Baha in the next month or so! 👏👏👏 Thankful that our little corner of Michigan has all the specialists we need, and that they mesh well with Jeff and I. It's blessings like those that make all of this "adjusting to our new normal" that much easier. .
#baha #treachercollinssyndrome #tcslife #wonderbaby #audiologist #thankful #parenthood #lifeisbeautiful #choosekind #ccakids #lovemelovemyface #prettygirl
My girls got free sunglasses at the Dr’s office. These are terrible and don’t stay on either kid. 😬 So both girls are using Little Sis’s baha softbands to keep them on. Sliding the glasses arm between the layer of elastic and velvet. It was working nicely until Little Sis popped the lenses out of her sun glasses. Someday we should get real sunglasses...
This set of Baha Softband Headbands makes my heart happy, because these are going to India!! They are being delivered by a friend who is currently in the USA. I lived in India long enough to know how challenging it is to receive packages in the mail there...
UPDATE: Shipping paid by @amymrsk
❤️ Thank you!
And last but not least is this cute blanket for Baby PJ! ❤️ Baby PJ was born with Treacher Collins Syndrome. It's the same syndrome portrayed in the popular book and movie Wonder. PJ spent the first 9 weeks of his life in the NICU. He endured 2 surgeries to help him breathe and eat. He still has a long road ahead of him. PJ is a champion for #treachercollinssyndrome
awareness and the #choosekind
movement. You can learn more about PJ on Instagram @pjs_playhouse
He’s absolutely the sweetest and cutest baby boy and we’re so excited to send him a blanket. But we’re also excited to share with you more information about who nominated him...@beekindbox.
It really deserves it’s own post though, so for now, let’s send Baby PJ some love!! ❤️ #welovePJ #lucysloveblankets
If anyone is interested in donating $10 to cover shipping, please leave your paypal address or you can send it directly to mine. www.PayPal.Me/VeronicaBlaylock OR you may use the Venmo: www.venmo.com/Veronica-Blaylock. Thank you so much for joining us in spreading love!!❤️
WONDERful!! Good things DO happen to good people!! Hard to say which is more awesome.. making the gymnastics team or meeting her favorite team- The Mets. But Hannah Klein of Commack, got both tonight. We profiled Hannah back in November, because she lives with the same genetic condition as the fictional boy, Auggie Pullman, in the movie and best-selling book, “Wonder”. It is called Treacher Collins Syndrome, and Hannah and her family are doing all they can to raise awareness. #AMAZIN
’ !!! #treachercollinssyndrome #wonder @wonder_movie @mets @abc7ny #mets #abc7ny #amazinmets
Calling all Cassidy's Crusaders!! We are seeking scratch tickets for our post race raffle! Many people have asked how they can help and the answer is simple: Send a scratch ticket of any denomination to add to our scratch ticket basket that will be raffled off after this year's 6th Annual Cassidy’s Run for the Kids 5K (and Fun Walk)! This was one of our most popular prizes last year and helped to raise a tremendous amount of money for Cassidy and The Nicholas Family!
If you send a scratch ticket, please include your name, phone number and address and you will be automatically entered into the drawing for the scratch ticket basket! The drawing will take place on June 3, 2018 at our post race raffle at Sylvan Street Grille Salisbury!
Increase your odds of winning by sending scratch tickets of higher denominations (with a cap at 50 entries)! $1 Scratch tickets = 1 Entry
$2 Scratch tickets = 2 Entries
$5 Scratch tickets = 5 Entries
$10 Scratch tickets = 10 Entries
$20 Scratch tickets = 20 Entries
Scratch tickets MUST be received by 6/1 in order to qualify for entry into the scratch ticket basket. Regular priced raffle tickets for this prize will be available for purchase on race day!
All scratch tickets can be mailed to:
c/o Rachel Jones
47 Pleasant Street
West Newbury, MA 01985
To sign up for this year's race in advance or donate directly visit: www.runthecircle.org/cassidy
We are currently seeking more raffle prizes for our post-race festivities!
To donate an item for our raffle email: rafflesC5K@runthecircle.org
#cassidyscrusaders #cassidy5k #tcs #treachercollins #treachercollinssyndrome #scratchtickets #raffle #winbig #fundraiser
Came home from vacation and hit the ground running. Got all these Baha softband headbands made last night and in the mail this morning. I should be caught up on orders today, by the end of nap-time.
Our recent Speech Therapy pop-quiz had questions like, “does she say sentences with 3 words? 4 words?” What parent sits around and counts this stuff? Well today she said, “Mama, I wan my monkey shirt.” And “I wan hep my pants on!” So 6 words.
We were late to the 8am service at Bethel, so the kid’s classes were full. Big Sis was devastated. So we went to the 9:30 service at Twinview campus. Where we ran into more friends from Colorado! Big Sis went to her class, but the Toddler nursery was full, so I kept Little Sis with me. (She didn’t want to go to class anyway). I noticed Sign Language interpreters, so I asked my daughter, “do you want Sign Language?” Little Sis said, “yeah.” So we ditched Dada and our friends and sat with the deaf group. I got to practice answering questions like, “are you deaf?” “what’s your name?” And “how old is she?” (Is it rude to talk/sign during church?). Little Sis enjoyed watching so many people sign. She pointed to her shirt and signed, “blue” and “yellow.” After church, my new deaf friend asked to pray for our family, and got an interpreter to join us. They thanked us for sitting with them and invited us to come again next time we’re in Redding. I had so much fun hanging out with them!
The first night PipSqueak slept on her little mattress in the closet in the bedroom. Dada & Mama slept on this very noisy bed. During the night, the heater turned on, which was loud and scary for Big Sis, who was sleeping out on the very uncomfortable futon. So the 2nd night Mama slept on the camping mattress on the floor next to Big Sis. (that was the best night’s sleep). By the 3rd night, PipSqueak joined Dada on the big bed. If Big Sis has known the closet was empty, she would have moved in there. #musicalbeds #justgotosleep
Playgrounds and potty training. Pants are optional. She was doing great at home, but not so good with random new potties, and not a fan of using the little potty in the truck (she wants us to carry it into the real bathroom). So we’re running out of dry pants ...
We bikes 4+ miles, bridge to bridge and a some extra.
Gotta stretch after the long drive, and get the kids tired so they’ll go to bed easy.
“PJ’s for PJ” was a big success!! Our friends at New Hope Christian Academy in Columbus, Ohio got to wear their pajamas to school yesterday in honor of spreading kindness! We got to FaceTime with them in our jammies too! They shared their motto for this event - “Kinder than Necessary” ❤️🧡💛💚💙💜 Thank you @allison_catlos
for coming up with such a brilliant idea, being such a great teacher, and organizing this event! These kids are going to grow up in a better world of their own making!! 🌈
TBT 😍 Priceless Memories 💙❤
1. Kendrick 2. Ezekiel 3. JJ 4. Kendo 5. Katona 6. Anida 7. Sassy Six
The little potty-training Princess completely refuses to wear a diaper, so I’m prepared with a potty and an extra car seat, just in case. That’s how we roll.
20 Wochen pures Glück. Schon 20 Wochen lang bringst Du mich zum strahlen.
Niemals hätte ich erahnen können wie gut es sich anfühlt wenn DU in mir heranwächst!
Von Beginn an hatte ich keine wirklichen Nebenwirkungen und konnte die Zeit bis hier her voller Dankbarkeit genießen!
Ich bin so gespannt wie die Reise mit DIR weitergeht...
Can you imagine being 5 years old and fielding the questions of a few hundred children about differences in people and bullying? I can't, but Cassidy thinks it's no sweat! Just another reason I love this brave girl! She'll be speaking to the students at Danvers Elementary tomorrow who watched "Wonder" and answering any questions they may have! Just amazing!
To sign up for this year's race visit: www.runthecircle.org/cassidy
#cassidy5k #cassidyscrusaders #tcs #treachercollins #treachercollinssyndrome #wonder #choosekind #antibullying
Big Sis is obsessed with Princesses, especially Elsa. So now Little Sis will only wear her “Elga” headband. So I ordered more colors of velvet backing and new Elsa elastic and made this Baha softband for her. So now she has options again. But this one will probably be more favorite since it has Olaf too.
Silly girl wanted to go night-night wearing undies and gocks (normally she wears diaper and footie PJs). So I dressed her in underwear, socks (attached to leggings aka tights) and a shirt. She woke up dry at 11pm. I put her on the potty, and she didn’t go, but asked for a diaper and went back to bed.
That is giant progress in potty training. But I’m not ready for night-training, just earn my trust to wear undies all day, and then please sleep through the night. She’s now sleeping 😴 through the night about 4x a week, which is way better than only 1x a week.
Shelby says, "Good morning!" 🌅
She has been rocking this bottle business over the past few days. 🙌🙌