endallergiestogether

End Allergies Together

Join our national movement to end life-threatening food allergies and donate to help us fund promising research

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Two evenings with one goal: #endallergies Save the date and join us in Greenwich, CT on 4/25 or Wellesley, MA on 5/2 for an Evening to EAT. Email event@endallergiestogether.com for more information or to reserve tickets. #endallergiestogether #foodallergies #anaphylaxis #anaphylaxisawareness #giveandgo #fundtheresearch #findacure #foodallergyawareness
1 in 12 #children in the United States has a severe #foodallergy . What was once rare is now commonplace, yet the constant #worry food allergy parents endure can be overwhelming, because when their children are out of their sight, they are vulnerable to foods that can kill them. So, what's a mother to do? Meet Elise Bates, President & Co-Founder of Ending Allergies Together, aka EAT. Her non-profit has raised 1.7 million dollars to find out why food allergies are on the rise and what we can do to stop the #epidemic . Hear Elise's story and be informed AND inspired. #endallergies #endallergiestogether #fundtheresearch #findacure #foodallergies #foodallergyawareness #anaphylaxis #storybehindhersuccess #16LifeLessons #mydoveproductions @candy_oterry
Check out the latest episode from Boston's beloved radio host @candy_oterry featuring EAT President, Elise Bates. Download this and other episodes from The Story Behind Her Success series on the podcast app or you can listen here: https://www.candyoterry.com/podcast #storybehindhersuccess #endallergies #endallergiestogether #fundtheresearch #findacure
In honor of Elijah 🧡 #elijasecho #Repost @elijahsecho with @get_repost ・・・ The Elijah-Alavi Foundation Inc. is one that is very close to many of our hearts, and we are working very hard to honor Elijah's memory. With every donation given, it will go to directly to the Elijah-Alavi Foundation Inc so we can utilize our mission/initiative by providing the training and education in these New York City Schools/Daycare centers etc at no cost to them. Come and stand with my family and I. We encourage you to share Elijah-Alavi story and video by using the hashtag #elijahsecho and promote food allergy/anaphylaxis and asthma awareness and safety. You can click on the donate button below or click on the link https://www.facebook.com/beelijahsecho/ Watch the full video click the link in the profile.
Groundbreaking food allergy news: about 31 million people in the United States have food allergies. Not the 15-17 million as previously estimated. Thanks to Dr. Ruchi Gupta's two recent milestone population and behavior studies, we now know that roughly 7.6% of children and 10.8% of adults have convincing food allergies. That's 31 million Americans. This has real implications for the FDA and NIH as well as our general understanding of this condition. Dr. Ruchi told EAT, "Between these recent national surveys, we have a more accurate estimation of food allergy prevalence in the U.S. at around 31 million". Dr. Kari Nadeau also involved in these studies told EAT, "The findings (also) reveal that adult food allergies are more common than previously suspected and contradict a long-held assumption that food allergies almost always emerge in childhood." Big thanks to Ruchi Gupta, Sean N. Parker Center for Allergy & Asthma Research at Stanford University, Sean Parker, and the many, many others involved in making this happen. Studies found here: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2720064 http://www.aappublications.org/news/2018/11/16/foodallergies111618 Fund the Research. Find the Cures. #foodallergies #foodallergy #endallergies
Thank you @elijahsecho 🧡🙏🧡 #Repost @elijahsecho with @get_repost ・・・ Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time. —Thomas A. Edison I won’t stop fighting for you my son. you did not die in vain and your life has to have a purpose. #elijahsecho #elijahaw
🙌🏼🙌🏼 #Repost @thelandofcan with @get_repost ・・・ I was in the car crying because I had failed another food challenge. My doctor and parents had been exceptionally hopeful about this one, and I happened to believe their optimism a bit too much. The letdown hurt. _ On my ride home, my parents were trying to reassure me. They were giving all the “It’s going be OK” lines. I wasn’t having it. _ That’s when they pulled the car into a supermarket parking lot. My mom turned around. - “JJ, here’s another food challenge,” she said in an excited tone. “Let’s count all of the foods in here that you can eat.” _ I looked at her oddly. “I’m not getting out of the car, mom!” She wasn’t having it. _ We went inside the grocery store, walked past the carts, and stood at the base of the aisle. “We’ll start here.” _ My parents immediately started counting items in the first aisle. A few moments later, I joined them. We literally stood there counting out loud. I lost count after aisle three. _ My sense of “CAN” was born in aisle three, and it’s grown ever since. _ Read full post. Link in bio. - #thelandofcan #thelandofnot #jjvulopas #canspirational #foodallergy #foodallergies #foodallergiessuck #foodallergymom #foodallergylife #foodallergyfamily #foodallergyawareness #foodallergykid #foodallergykids #foodallergymama #peanutallergy #glutenfree #dairyfree #anaphylaxis #allergymom #canpaign #endallergies #endallergiestogether @safeandincluded @faactnews @foodallergyfund @elijahsecho @redsneakersforoakley @kidswithfoodallergies @endallergiestogether @foodallergy @kidswithfoodallergies @nonuts4me
Go, Chloe, Go! 🙏🙏🙏 #Repost @redsneakersforoakley with @get_repost ・・・ Some hopeful news this morning. Here is an update on Chloe’s condition from Jess Barker: . Thank you everyone for your generosity and for keeping Chloe and her family and friends in your thoughts and prayers. . Right now, Chloe's doctors are continuously monitoring the swelling in her brain with what is called a neurovent catheter, which measures the pressure in her skull. After more testing, EEGs, and CAT scans, doctors have concluded that while there is still swelling in Chloe's brain, she did not suffer from a major stroke and she has good and even blood flow in her brain. . Chloe will remain sedated in the ICU for the next few days in order to give her more time to lower her inter-cranial pressure. . This is excellent news and a great step towards Chloe's recovery. . Keep Cheering for Chloe! https://www.gofundme.com/6nxrkhc . This is a video of Chloe skydiving. Soar Chloe, may your strong spirit see you through this. ❤️ . . . . #prayersforchloe #anaphylaxis #foodallergy #recovery #stopanaphylaxis #endallergiestogether #life #soar
Important reminder to practice self-care and reach out for help, if needed, as our #foodallergy community reels from difficult news and tragic loss via @counselor_tamara “When the food allergy community experiences a loss, it can effect many within the community, even if they didn't know the family personally. Compassion and support are extended not only to the family, but also each other. But if you find yourself unable to resurface or find balance again after processing these losses, please don't hesitate to reach out to a clinical counseling professional for support. Life with food allergies often involves a roller coaster of emotions. That is one main reason why myself and my food allergy-knowledgeable counseling peers are coming together to strengthen the food allergy mental health network; so you have access to resources and to those who not only *get it* right away, but are clinically trained to help you through whatever you're experiencing.” http://www.foodallergycounselor.com/about.html
Great article about #foodallergy #treatments in @washingtonpost by @shefali.luthra “If any one of them succeeds, it could change my life.” Well investigated and thoughtfully expressed. https://www.washingtonpost.com/national/health-science/new-treatments-for-peanut-allergies-sound-promising-but-questions-remain/2019/01/04/227bb658-0491-11e9-9122-82e98f91ee6f_story.html?noredirect=on&utm_term=.f35 #endallergies #endallergiestogether #fundtheresearch #findacure
#Repost @redsneakersforoakley with @get_repost ・・・ ‪This beautiful young woman is clinging to her life in a medically induced coma in the ICU after a severe reaction to peanuts. Prayers, and possibly a miracle, needed to save this beautiful young woman Chloe Alt. 🙏🏻💔 On Saturday, December 29th, Chloe suffered a serious and severe reaction to a peanut allergy. While out for dinner, celebrating her 24th birthday, she lost consciousness and was transported to the hospital in an ambulance. At the hospital, complications progressed and Chloe’s heart stopped for over 10 minutes. After stabilization, doctors immediately started to cool down her body temperature in order to reduce damage to the brain and increase her chances of recovery. Chloe began to fight, trying to lift her head up and move around, and even trying to pull out her intubation tube. Later that night she was transferred to the ICU. Doctors have put her into a medically induced coma in order to keep her calm and comfortable, while allowing her body the time it needs to heal and recover. They kept her in the cooling state for two days and then gradually allowed her body to warm up on its own. As her body was warming up, she began to jerk and shake which prompted the doctors to put her under heavy sedation and paralytics. They followed up with a 24-hour EEG (records electrical patterns in the brain), CAT scans, and an MRI that led doctors to believe Chloe should remain sedated in the ICU for at least 4-5 more days. Chloe’s doctors have reduced her visitors to only one at a time with no stimulation allowed, such as talking or touching. This is due to the strong responsiveness that she has been having. At the moment the future is unclear but we ask for your thoughts and prayers for Chloe’s quick and full recovery. Please see the GoFundMe page started by her friend Jess Barker. Every dollar given will go directly towards Chloe’s medical and recovery expenses. We are looking forward to the day that Chloe will see all of the love and generosity contributed by her loved ones and the support that’s been given to her and her family. https://www.gofundme.com/6nxrkhc (live link on our Facebook) #anaphylaxi
Thank you @iceculinary for featuring our Director of Partnerships and Outreach @jackieourman and @endallergiestogether in a recent blog post... Jackie Ourman (Culinary/Management, ‘13) is the director of partnerships and outreach for End Allergies Together (EAT), a nonprofit funding research to cure life-threatening food allergies, in Connecticut. When Jackie was diagnosed with celiac disease and had children with life-threatening allergies, she attended ICE and started a food blog, Celiac and Allergy Friendly Epicurean (CAFE), to help others living with related challenges. "The fact that one bite of food can end anyone’s life is unfathomable to me, especially considering the importance of eating to fulfill basic needs and bring people together socially," Jackie says. "I am passionate about changing that for the 17 million people who live with this invisible illness, including my own children." How you can help: EAT has an online store with gifts and apparel and accepts online donations. Jackie suggests raising awareness with EAT's campaign regarding how to handle anaphylaxis: “Give Epinephrine and Go Call 911.” https://www.ice.edu/blog/philanthropic-culinary-careers-give-back
Camron Jean-Paul 💔 “Some patients with food allergies can react strongly to the smell of certain foods, and inhaling food most often causes an asthmatic reaction, according to a 2009 study published in Clinical and Molecular Allergy. In rare cases, the smell of cooked fish triggered life-threatening reactions in children, according to the study.” https://www.nydailynews.com/new-york/nyc-crime/ny-metro-boy-11-dies-brooklyn-home-possible-fish-allergy-20190102-story.html
It’s with heavy hearts that we report the first apparent #foodallergy #anaphylaxis death for 2019 which occurred on New Year’s Day. “An 11-year-old Brooklyn boy died at his home on New Year's Day from a food allergy reaction, authorities say Cops were called to the child's home in Canarsie around dinner time; the boy was found unconscious and was pronounced dead at a hospital Police didn't describe the nature of the food allergy, sources tell News 4 that authorities are looking into whether it was fish-related” https://www.google.com/amp/s/www.nbcphiladelphia.com/news/national-international/11-Year-Old-Boy-Dies-Brooklyn-503788281.html%3famp=y #endallergies #endallergiestogether #fundtheresearch #findacure
PLEASE report your experiences from lack of #sesame labeling to the FDA before end of 2018! We need your voice. Link to form below. From @shmallergy : Sesame can be labeled in a number of challenging ways. In addition to the long list of alternative names, sesame can be listed as “seasoning,” “spices,” or “natural flavoring.” This makes it nearly impossible to know whether a product actually contains this allergen or not without calling manufacturers. The FDA is finally considering a request to add sesame to the Food Allergen Labeling and Consumer Protection Act (FALCPA) requiring manufacturers to label for sesame as they currently do for the #Top8 #allergens (peanut, milk, egg, tree nuts, wheat, fish, shellfish, and soy). All of the national #foodallergy non-profits are weighing in to give supporting documentation and research, but the #FDA needs to hear from you! Please take a minute to report your experience and challenges to the FDA using this form below: https://www.regulations.gov/comment?D=FDA-2018-N-3809-0001 Thank you Allergy Shmallergy #foodallergies #foodallergy #endallergies
Your year-end gift to #foodallergy research will now have DOUBLE the impact thanks to a very generous donor! https://eat.rallybound.org/Donate #fundtheresearch #findacure #endallergies #endallergiestogether
EAT is pleased to announce the second recipient of the 2018 $500,000 "EAT Discovery Grant" titled "SEAL (Stopping Atopic dermatitis and Allergy) Study: Prevent the allergic march by enhancing the skin barrier”. EAT will be partnering with other institutions on this study expected to launch in 2019. Recipients include some of the top researchers and institutions in food allergy research: Kari Nadeau, MD, PhD (PI, Stanford) Gideon Lack, MD (PI, St. Thomas, London) Donald Leung, MD, PhD (PI, National Jewish, Denver) Helen Brough, MD (co PI, St. Thomas, London) Susan Chan, MD (co PI, St. Thomas, London) Tee Bahnson, PhD (co PI, Benaroya Research Institute) The primary goal is to study the effects of proactive skin therapy vs. reactive skin therapy for prevention of proven (oral food challenge positive) food allergies between the intervention groups. The primary outcome will be the cumulative number of challenge-proven food allergies within the study group until 3 years of age. Congratulations to these recipients! #FundtheResearch . #FindtheCures . #endallergies #endallergiestogether @SNPCenterStanford National Jewish Health King's College London
Help us #fundtheresearch and #findacure for #foodallergies #yearendgiving #donate at https://eat.rallybound.org/Donate (Link in profile ⬆️)
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