End Allergies Together

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Thank you for sharing your story, @ollergy #giveandgo “What I’ve learned on this food allergy journey so far is that no two reactions are alike. Some say that each reaction can be more severe. I’ve even read studies that reactions vary by the food. No matter what the case is, epinephrine is the one and only defense against anaphylaxis and an allergic reaction.” #Repost @ollergy with @get_repost ・・・ "Today I’m here to talk to you about what a reaction looks like. This is a post I’ve debated writing for a long time. It’s really personal and it’s really hard to relive. I’ve also feared being judged for writing about it. What ultimately has me here today is that I know that so many other stories and messages helped us make the right decision and ultimately saved Ollie’s life. Messaging about epinephrine use and reaction response from organizations like @foodallergy Research & Education, @redsneakersforoakley , @endallergiestogether , and @elijahsecho (just to name a few) are forever engrained in my mind and surely helped us."⠀ .⠀ As the holidays approach, there are going to countless instances where you're around a lot of people and a lot of food. It's a great time to make sure your epinephrine is not expired, your emergency plan is up to date, and you're as ready as you can be to deal with a reaction should the need arise.⠀ .⠀ https://ollergy.com/reaction/ .⠀ .⠀ .⠀ #foodallergies #foodallergymom #foodallergy #kidswithfoodallergies #foodallergylife #soyfree #eggfree #dairyfreeliving #dairyfree #peanutfree #treenutfree #allergyfriendly #top8free #cookingwithkids #kidsinthekitchen #organic #organicfood #realfood #ollergy #parenting #parenthood #motherhood #fare #allergyawareness #allergies #anaphylaxis
#Repost @webelay with @get_repost ・・・ Today, on #WorldKindnessDay , we're saying THANK YOU to all of the kids without allergies, who go the extra mile to keep their friends with #foodallergies safe. Many kids living with severe food allergies are more at risk of being bullied or excluded, leaving them feeling embarrassed and ashamed. Let's encourage their peers to keep up the #kind work by simply letting them know that you and your child are very, very grateful. #FoodAllergyAwareness
Check out the #swag @fablogcon Still time to join if you are in Denver. Great speakers and #foodallergyfriendly brands here for the next two days!
EAT announces the first of two recipients of the 2018 "EAT Discovery Grant". Collaboration among two or more scientists at different institutions was a funding requirement. Recipients include some of the top minds in microbiome research: - Rima Rachid, MD, Boston Children’s Hospital - Talal Chatila, MD, Boston Children’s Hospital - Eric Alm, PhD, MIT Biological Engineering; MIT Broad Institute - Elizabeth Hohmann, MD, Massachusetts General Hospital "An Open Label Phase I Trial to Evaluate the Safety and Efficacy of Fecal Microbiota Transplantation (FMT) in Peanut Allergic Patients." This study looks at whether oral frozen encapsulated FMT is a safe and potentially effective treatment option for peanut allergies in 10 adults. Showing safety is a critical step to opening up this area of food allergy research for which FMT has shown positive outcomes in animal studies. FMT has been successfully used in clinical trials in adults and youth with recurrent abdominal C Difficile infection and is being evaluated for other conditions such as obesity and inflammatory bowel disease. FMT capsules for this study will be obtained from OpenBiome. Please contact Meghan Fitzgerald at Boston Children's Hospital if you would like more information about being a participant in this trial. P: 617.355.4729 E: Meghan.Fitzgerald@childrens.harvard.edu Congratulations to these recipients! Please stay tuned for more information on our second recipient team in the coming days. #FundtheResearch . #FindtheCures . #endallergies #endallergiestogether @broadinstitute @bostonchildrens @massgeneral
We will be at #fablogcon this weekend. Hope to see you there! #Repost @fablogcon with @get_repost ・・・ Get your passes now! Link here: http://fablogcon.com. Tickets include meals, admission to expo, medical and social sessions, swag bags, and more! #fablogcon #denver #medicalconference #blogger #blogconference #celiacdisease #glutenfree #foodallergies #allergyfriendly #top8free #glutenfreedenver #expo
One year ago today, the Silvera family experienced the worst tragedy imaginable. They have channeled their pain into advocacy for all of us in the #foodallergy community and we are so appreciative of their work. We mourn with you @elijahsecho and we are here to support you in any way we can. #Repost @elijahsecho with @get_repost ・・・ 2:49pm One year ago, November 3, 2017, was a Friday and Elijah was set to complete his first full week at his Pre-K. The day began like any other but ended, for Dina and I, the way no parents could ever imagine--weeping over our baby boy's lifeless body, our hearts shattered. Elijah was 3 years old. Everyone knows that the number one responsibility of any parent is the protection of their children. When we learned that Elijah went into anaphylactic shock because he was given a grilled cheese sandwich by an adult at his pre-K despite them having well documented his severe allergy to dairy, despite many conservation with the Pre-K about their ability to work with children with severe food allergies, despite them saying they have a medically trained staff, despite so many things we thought we did right, we were beyond ourselves. We cried. We mourned. We got to work. Our resolve is clear: this will never happen to another family. As a result, the Elijah-Alavi Foundation was formed to continue Elijah’s echo and focus on three things: - Access - Education - Equity We cannot begin to dissect the details of that Friday--candidly, the thoughts are just too painful--but what we can do and have done is take a look at the research, continue to build partnership with other foundations and nonprofits, work closely with legislators and policymakers, and grow a network of providers to help address some underlying issues that were clear and present on that Friday in November. In other words, we can ensure that Elijah’s life continues to have an impact in his absence. We can, as we’ve been calling it, continue Elijah’s Echo. continue read at https://www.facebook.com/beelijahsecho/
EAT funded these six research efforts in under two years... and two more announcements coming SOON! Stay tuned! Thank you to those committed to #foodallergy science: Broad Institute of MIT and Harvard, Sean N. Parker Center for Allergy & Asthma Research at Stanford University Children's Hospital of Philadelphia The University of Chicago Allergy/Immunology Program Imperial College London Cincinnati Center for Eosinophilic Disorders at Cincinnati Children's Children’s Hospital Colorado #foodallergies #foodallergy #EndAllergies #endallergiestogether #FundtheResearch #FindaCure
Great to see Steve Carell helping with #foodallergyawareness in this new PSA #Repost @foodallergy with @get_repost ・・・ Our new PSA voiced by actor Steve Carell encourages Americans to understand food allergies & how to help those at risk for anaphylaxis. We are extremely grateful to Steve for lending his time to raise awareness on behalf of millions of Americans living with #foodallergies
#Repost @keepsmilin4abbie with @get_repost ・・・ Halloween is just around the corner! Here’s our tips and tricks to make sure all trick or treaters stay safe on halloween 🧡🖤 #stopanaphylaxis @redsneakersforoakley recommends feeding kids dinner before trick-or-treating which is also great advise!
The teal is to give you an extra set of eyes this #Halloween . We love the #tealpumpkinproject but not everyone participates. Share some other ways you can still have fun yet keep #foodallergy kids safe while trick-or-treating tomorrow.
So true! One of the best lessons our kiddos (and anyone) with #foodallergies learn is empathy. Being on the receiving of how wonderful it feels hopefully teaches them to pay it forward throughout their lives. #foodallergyawareness #endallergies #endallergiestogether #Repost @thelandofcan with @get_repost ・・・ In this week’s Food Allergy Podcast, JJ and his parents talk about the importance of teaching empathy to children who have food allergies. Duration: 3:32. Link in @thelandofcan bio. ⠀ #thelandofcan #thelandofnot #jjvulopas #canspirational #foodallergy #foodallergies #foodallergymom #foodallergyawareness #foodallergyfriendly #foodallergykids #foodallergymama #peanutallergy #glutenfree #dairyfree #anaphylaxis #canpaign
Inspired to see more voices joining the conversation around #foodallergies . Only by working together can we raise awareness of the challenges of this life-threatening condition that affects 1.5M children in the United States. While the focus of this campaign is on peanut allergies specifically, since that is what Tia’s son, Cree, is managing, we know that the burdens described are relatable for any of the allergens we face and it’s great to see someone lending their powerful voice to help others understand the sometimes invisible challenges of #anaphylaxis . #Repost @tiamowry with @get_repost ・・・ I keep most things private, but today, I want to share something with you that many of you do not know about me. My son Cree is one of  1.5 million children in the U.S. living with peanut allergy. "Is a peanut allergy really that serious?" The simple answer is "yes." Exposure of even trace amounts of peanut can trigger a potentially severe, life-threatening reaction, and that's stressful for children and their parents. Avoidance isn't always possible. I never make a decision about where Cree goes or what he eats without considering the risk of exposure. I want to educate others on what it's like to live with peanut allergy and that's why I have partnered with DBV Technologies on the Talking Peanut Allergy campaign. This campaign is so personal for me and I want to share my experiences to help spark a dialogue. If you're caring for a child with peanut allergy, or know someone who is, know you're not alone! Sign up for more stories, tips and resources on TalkingPeanutAllergy.com #foodallergyawareness #anaphylaxisawareness #endallergiestogether #endallergies
#Repost @spokininc with @get_repost ・・・ The guide we hope you never use - an action plan if your food allergic child is bullied. Disability rights lawyer and food allergy mom, Mary Vargas, tells us what to focus on during this emotional time. . . . Link here: https://www.spokin.com/6-steps-to-stop-food-allergy-bullies/ #foodallergybullying #noappetiteforbullying #schoolbullying #foodallergyparents #unityday #unityday2018 #BullyingPrevention #stopbullying #antibullying #nobullying #allergyfriendly #foodallergy #foodallergies #foodallergyfriendly #foodallergymom
We love this spin on the #tealpumpkinproject by @amandacantley which not only raises awareness while celebrating #halloween but also inspires friends and family to do the same while raising money for #foodallergy #research . Thank you, Elle, Amanda and Blake Cantley 🧡💙 🎃 . . . In honor of Elle, we will hold a “Team Elle Belle Teal Pumpkin Party” on October 20th! We invite you and your family to come join us to paint teal pumpkins, wear your costumes, enjoy some Halloween treats and show your support for Elle! Additionally, Blake and I would like to challenge you to spread the word of the TPP in honor of Elle! Take a picture of your teal pumpkin on your front door, post it to social media, mention the Teal Pumpkin Project and hashtag #teamellebelle (tag us too so we see it!). For every TPP picture posted in honor of Elle during the month of October, we will make a donation of $50 that will go directly to food allergy research. So even if you can't attend the event, this is a great way to still participate!
This is why we fund #microbiome #research for #foodallergies . . . Are we allergic to food or what’s being done to it? ~ @robynobrienusa . . . A joint report from six consumer and environmental groups has graded the top 25 fast-food chains on the use of antibiotics in the burgers they sell. Bad news for 22 of them: They received a failing grade. The overuse of antibiotics in animals is accelerating the rise of bacteria that are resistant to such medicines, according to the World Health Organization, which considers antibiotic resistance “one of the biggest threats to global health, food security, and development today.” According to the Centers for Disease Control, 2 million Americans get an infection from such bacteria each year, with 23,000 of those cases leading to death. More than 70% of the medically important antibiotics sold in the U.S. go to food animals,” the report said. “Many meat producers routinely give the drugs to animals that are not sick either to promote faster growth or to prevent disease caused by factory farm production practices.” Read more here: http://fortune.com/2018/10/17/burger-chains-antibiotic-use/
#Repost @faactnews with @get_repost ・・・ A Message from @hersheycompany The Hershey Company wants #peanut -allergic consumers to be aware of a new product launch: a Hershey’s Milk Chocolate bar with Reese’s Pieces candy. The bar will be marketed in both a standard size and a king size version and will be on store shelves in December of 2018. The product label (image provided below) clearly calls out the presence of Reese’s Pieces on the front, includes a large swath of the familiar Reese’s orange color on both the front and back, and, of course, lists peanuts in the ingredient statement. Peanuts are present both in the Reese’s Pieces and separately as chopped peanuts, which are visible in the bar itself once the packaging is opened/removed. The Hershey Company wants consumers managing a peanut allergy to know that this product is produced in a separate facility from the 1.55 standard size Hershey’s Milk Chocolate Bar, which does not contain peanut or tree nut ingredients, is produced on a line that does not manufacture any peanut or tree nut items, and is made in a facility that does not process peanuts. The snack, king, XL, and giant sizes of Hershey’s Milk Chocolate Bar continue to carry the following Allergy Information Statement: “ALLERGY INFORMATION: MANUFACTURED ON THE SAME EQUIPMENT THAT PROCESSES ALMONDS.” Because ingredients or manufacturing processes can change, we always recommend that consumers read the label prior to purchasing or consuming any of our products. For more information, please contact The Hershey Company at 1-800-468-1714. HERSHEY'S #Hershey #FAACT #foodsafety #foodallergy #foodallergies #allergy #allergies #anaphylaxis #education #awareness #allergyawareness #outreach #nuts #peanuts #ShareTheFAACTs #KnowTheFAACTs
We are so incredibly appreciative of this initiative launched by @snacksafely today! SnackSafely.com Adds “Purchase on Amazon” Capability with Proceeds to Benefit #foodallergy #research Shoppers can search for food products that meet their family’s restrictions to 11 allergens via the the Safe Snack Guide – a resource used by thousands of schools and tens of thousands of families nationwide – and Allergence, the company’s product screening service. Now, once they’ve found a product they like, they can purchase it on Amazon with the click of a button. All affiliate proceeds from purchases will be donated to End Allergies Together (EAT), the non-profit dedicated to accelerating treatments and cures for the growing food allergy epidemic. “Our mission is to make it easy for consumers to find and purchase Free From products from our 90+ reputable partner manufacturers that have agreed to go above and beyond the FDA’s lax allergen disclosure requirements,” said Dave Bloom, CEO of SnackSafely.com. “By partnering with EAT, we are proud to contribute toward their mission of funding research into therapies for food allergy. The founders of EAT underwrite administrative expenses so that 100% of net proceeds go toward the goal of finding and developing cures.” “Everyone at EAT is personally impacted by life-threatening food allergies. SnackSafely.com, the Safe Snack Guide, and Allergence are valuable resources for us and the broad food allergy community. We are very appreciative of their support and hope people will utilize Allergence to shop allergy-safe foods and help fund the critical research we need to find better diagnostics, prevention strategies and ultimately, cures,” said Elise Bates, President of End Allergies Together. Ready to get started? Download the latest copy of the Safe Snack Guide and register for your free account with the Allergence allergy-friendly product screening service.
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