johnelle814

Johnelle

💜Lupus Warrior💜Dermatomyositis Warrior 💜A warrior with moxie

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Really Lupus??? I’m so glad that you haven’t started attacking my inside organs but do you have to attack my face?! At least you aren’t an invisible disease today 🙄🤣🤬 #overit #dermatomyositis #plaquenil #myositisawareness #myositis #methotrexate #lupus #lupusawareness #lupusflare #leavemealone #fuckthismess #notsoinvisible #benlysta #ineedamask
Fun weekend=not so fun Monday! I’m glad that I went ahead and took today off of work and was able to get some rest! I upped my dosage of methotrexate yesterday and it has barely touched the joint pain that I am in today! BUT! I am alive and still able to move, so I’ll take that as a win! #lupus #lupusawareness #lupussucks #myositis #myositisawareness #dermatomyositis #restday #butterflyrash #methotrexate #plaquenil #onthecouch
We left Atlanta at 930am and returned to our driveway at 730pm and it’s only a 4.5 hour drive! We never stay on track and that is the beauty of life! TAKE THE ROAD LESS TRAVELED! #lupus #lupusawareness #lupuswarrior #myositis #dermatomyositis #autoimmunedisease #hike #beautifulscenery #alwaysanadventure #nature #queenoftherock
Today we attended the Georgia Lupus Empowerment Summit and learned so much. I saw people who have been living with this horrible disease for 30+ years which gives me hope. I also saw people that had only been diagnosed for 1 week and my heart broke for them because I know that feeling of hopelessness after being diagnosed. One of the sessions we attended today was about removing the mask. When we are asked how we are doing, we always answer with “I’m good”, but we all know that that is a lie. We all hide behind a mask. Behind that mask hides the fear of rejection, anxiety, depression, pain, and much more. But we have to remove that mask and be the light in our lives. Plus, I am so thankful for my loving, caring and supportive husband who stands beside me and helps me through this crazy journey! @ebkelly86 @lupusgeorgia #lupus #lupusawareness #lupuswarrior #lupusfoundationofamerica #myositis #dermatomyositis #plaquenil #methotrexate #benlysta #injections #removethemask #fullyloveyourself #theongoingkey #besthusband
Sometimes I wish I had the life of a dog! I would sleep all day, bathe in the sun, and hang my head out of the window!! Although today started out rough, it ended with a nice fall breeze and some yard work. I have had a tough go battling different symptoms and sadness because of this incurable disease but it’s nice to have a good support system to stand by me. #lupus #lupusawareness #myositis #dermatomyositis #raiseawareness #weinerdog #blueeyebrowneye #trammelandmom #kidsanddogs #fall #supportsystem #hubbylovesme
I have some of the most thoughtful people in my life! Not only did they nominate my name to be included on some lupus awareness apparel, they also bought me a hoodie once they were printed!! I am so thankful and blessed to be able to spread awareness about this cruel disease that haunts so many of us! #blessed #lupus #lupusawareness #lupuswarrior #myositisawareness #dermatomyositis #teespring #methotrexate #plaquenil #hurryupcoolweather #spreadtheword
Foam rollers to the rescue!! I have the worst SI joint pain lately and my rheumatologist recommended using a foam roller. Between the roller, stretching, and practicing better posture, I have a small amount of relief today. Plus I’m sure the shot of methotrexate yesterday helped too. #80dayobsession #rollandrelease #lupus #lupusawareness #lupuswarrior #myositis #dermatomyositis #methotrexate #injections #jointpain #moxie #cantstopme
This is amazing!!! Our voices were heard! #lupuswarrior #myositis #lupus #myositiswarrior #advocate #raiseawareness
All alone in the gym today 🤣🤣 With Dermatomyositis and Lupus comes muscle fatigue and weakness. I can’t do as much as I used to be able to do but I can still move! #lupus #lupuswarrior #lupusawareness #myositis #dermatomyositis #gym #ellipticalworkout #trustandbelieve #livingmybestlife #keepmoving #cantstopmenow
You can’t have a rainbow without sunshine and a little rain! This was my view on the way to my doctors appointment today. Everything went well and I even get to come off of one of my medications! Although I have had some rain lately the sunshine always shines through to show me a rainbow. I was also told today that I was an inspiration. It is hard to believe that someone thinks of me as inspiration but I am glad that I can show others that there is a way to push forward even when you may not want to. I try hard to show up and give my all each day even when my all isn’t much. #lupus #lupusawareness #myositis #myositiswarrior #plaquenil #methotrexate #rainbow #sunshine #rain #happy #inspiration #showup #livingmybestlife #trustandbelieve
Gotta love a flare 😢. My legs, arms, stomach and face are broken out. Steroids, here I come 🤬 #lupus #lupuswarrior #myositis #myositiswarrior #dermatomyositis #fucklupus #flare #plaquenil #methotrexate #steroids
Today is National Myositis Awareness today!! Along with Lupus, I have Dermatomyositis. Dermatomyositis is a rare inflammatory autoimmune disease marked by muscle weakness and a skin rash. #raiseawareness #lupus #lupuswarrior #lupusawareness #myositis #myositiswarrior #dermatomyositis #stayactive
How you doin’??? Seriously though...how are you doing? I am actually feeling ok today! Made it through work, the gym, and housework! #lupus #lupuswarrior #dermatomyositis #methotrexate #plaquenil #photobooth #gold
I couldn’t make it to the gym today so beachbody on demand came thru! I love having my workouts with me wherever I go! #cize @shaunt #theongoingkey #beyou #believeinyourself #idancedmyheartout #lupus #lupuswarrior #dermatomyositis #trustandbelieve #sweat
I had macarons for the first time today! YUM!!!!! Blueberry cheesecake was my favorite! #whoops #macarons #lupus #lupuswarrior #dermatomyositis #pb &j #yummy
Even when the odds are stacked against you, believe in yourself. There are plenty of days that I just want to curl up in a ball and give up fighting, but I don’t. I sure as hell don’t have the energy or strength to go to the gym, but I go. Never give up! #myositiswarrior #lupusawareness #lupuswarrior #curlyhair #plaquenil #methotrexate #lazydays #gymlife #keeppushing
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