johnelle814

Johnelle

💜Lupus Warrior💜Dermatomyositis Warrior 💜A warrior with moxie

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You won today Lupus. But I’ll be back tomorrow! You never realize how much something as simple as UV lighting bothers you. #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #uvlights #suckedthelifeoutofme #fatigue #ugh #noworkouttoday #takecareofyourself
Day 1 of Transform 20 is in the books. I was actually impressed with myself. I used a step instead of modifying. I actually got some height in my jump. And I didn’t pass out after 20 straight minutes of high intensity training! TAKE THAT LUPUS! TAKE A HIKE MYOSITIS! #transform20 #beachbodyondemand #shaunt #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #autoimmunedisease #iwintoday #livingmybestlife
After a long week of working out a little yoga and stretching seemed to put everything back in to place. I’m ready to start a new program on Monday!! #yoga #clearyourmind #stretch #t25 #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #autoimmunedisease #benlysta #methotrexate #plaquenil #woman
This is an image of a human body. I circled where it hurts! EVERYWHERE! Does this stop me from getting up and going to work? Nope. Does it stop me from being a wife and mom? Nope. Does it stop me from going to the gym? Nope! Lupus sucks. Dermatomyositis sucks. But if I live each of my days dwelling on the pain and inconvenience, then did I really ever live? Don’t get me wrong, there are days when these diseases win. But it isn’t everyday. And I made a mental commitment to live my best life and enjoy each day that I’m not in a flare. Wake up, get up, and LIVE! #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #autoimmune #autoimmunediseases #pain #keepgoing #livingmybestlife #theongoingkey #conqueryourmind #transformyourlife #live #love #behappy #mom #wife
So I could’ve skipped my workout...I really wanted to. I went to the gym and all the private rooms were taken, i almost left but I stayed! I got stuck in the stinky racquet ball room. Which, by the way, echos like crazy!! It’s hard to cuss out @shaunt when even a whisper echos! 😆🤣🙄 It’s crazy but I feel so much better when I workout! #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #insanity #fastandfurious #transorm20 #livingmybestlife #sweat #consistency #gymhairdontcare #sore #ontrack #beachbodyondemand #theongoingkey #autoimmunedisease
I don’t know who decided that this workout was a good idea but they crazy! But hey, I completed it and I didn’t die 🤦🏻‍♀️ #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #shaunt #focust25 #whatthemess #imadeit #gymhairdontcare #keepgoing
Get ready everyone! You are about to be my accountability! Even though I suffer from these wonderful diseases, I still do my best to eat right and exercise. Sooooooo, you may see some work outs, you may see some struggles, and you may see some defeat! But I’ll keep going because I will not let these diseases win over me! #dermatomyositisfighter #dermatomyositis #lupusawareness #lupus #lupuswarrior #theongoingkey #shaunt #transform20 #trustandbelieve #shakeology #accountability #watchme #beachbodyondemand
It was a beautiful day today so we made a run for the beach! I love the crash of the waves, sand under my feet and wind in my hair! We are lucky to live so close. #lupus #lupusawareness #lupuswarrior #dermatomyositis #dermatomyositisfighter #sunshine #beach #seashells #sand #spurofthemoment #alwaysanadventure #husband #beachhairdontcare #barefootgypsy
Two words that can mean so many different things...I’m fine. Unfortunately with a chronic illness, we have to downplay our symptoms so others around us don’t get worried. We smile when we are in pain. We keep going when we know we need to rest. We say I’m fine when we know we feel like death. Remember to take time for yourself because It is important for your physical and mental health. Stay strong warriors. #lupus #lupusawareness #lupuswarrior #chronicillness #dermatomyositisfighter #dermatomyositis #imfine #smile #mentalhealth #keeppushing #staystrong
Happy New Year! I hope that this year will bring lots of love, fun, and fellowship with friends and family. 2018 wasn’t my worse year but also not my best. I was down and depressed a lot this year and I know life will never be the same with a chronic illness but I will not let it destroy the love I have for life! #lupus #lupusawareness #dermatomyositisfighter #dermatomyositis #lupuswarrior #happynewyear #livingmybestlife #plaquenil #methotrexate #benlysta #injections #toomanymedstoname #justkeepswimming #browneyes #blessed #happy #loved
He did goooooood!!!! My ring has a purple stone to represent my lupus! And the necklace and earrings are covered in diamonds! I must have been good this year! Plus I got an ancestry dna kit and I can’t wait to see the results, plus a trip to the spa! #besthusband #helovesme #iwasgoodthisyear #lupus #lupusawareness #lupuswarrior #dermatomyositis #dermatomyositisfighter #purple #christmas2018
Before my husband left the house this morning, he picked me a beautiful rose and brought it to me. Yesterday I was feeling great! Today, not so much! Did I do too much? Did I eat something wrong? Am I having a flare? Who knows! I just know that I am still in bed at noon with a pounding headache and a very upset tummy! I need to get up and finish some holiday preparations but I’m not moving until my body says I can! #lupusawareness #dermatomyositisfighter #dermatomyositis #lupuswarrior #benlysta #lupus #nospoonstoday #methotrexate #headache #rose
As 2018 comes to an end, I can’t help but look back and see how far I have come. I started this year out having a major surgery, lots of unanswered questions, new medications and a lot of pain. My flares were constant and my skin was not in the best shape. My joints were giving me fits and I just didn’t feel like myself. Very depressed to say the least. But on the bright side, i recovered well from my surgery, I worked out with my favorite instructor @shaunt , I went for my first trip to Disney with my husband, my medication finally started working together and my skin looks amazing. My flares are few and far between and I have been working on my strength to relieve the hip joint issues. I actually feel like a normal person and it feels great. The thing about an invisible disease is just that, it is invisible to everyone around you, even the ones that see you every day. It is hard to let down your walls and let people see just how bad things are because you don’t want to worry them. Just remember to be kind to everyone because we are all fighting an internal battle! #lupusawareness #dermatomyositisfighter #dermatomyositis #lupuswarrior #benlysta #methotrexate #flare #noflare #lupus #lupuswarrior #dermatomyositisfighter #livingmybestlife #invisibleillness #humbleandkind #love
Ugh!!!!!!!! Traffic was horrendous today! This traffic reminds me of how I feel everyday living with this disease. I want to get to my destination quickly but everything is in my way! I started the day with a major headache, followed by joint pain, plus muscle pain. Nevertheless, I kept going. But it’s ok because it teaches me patience and perseverance! #lupus #lupusawareness #lupuswarrior #dermatomyositis #dermatomyositisfighter #benlysta #plaquenil #methotrexate #headache #traffic #overit #justkeepmoving
I got these bad boys 2 years ago. Last year my vision corrected itself back to 20/20. Lately I’ve noticed some blurry vision so I guess I’ll pull them back out and be cute for a little while!! Eye exam this week to figure it all out 🙄 #lupusawareness #dermatomyositisfighter #dermatomyositis #lupuswarrior #benlysta #plaquenil #methotrexate #rayban #lupus #eyes #cutiepatootie
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