johnelle814

Johnelle

💜Lupus Warrior💜Dermatomyositis Warrior

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What you may see in this picture is a pretty smile or my brown eyes, but what you don’t see is the pain. You don’t see the aching joints or the sleepless nights. You don’t see how I cry because of my diagnosis. You may see clear skin but you don’t see the handful of medications and injections that I take to keep my skin looking normal. You can’t see the exhaustion, fatigue, muscle weakness, depression, but just because you can’t see it, doesn’t mean that it doesn’t exist! #lupusawareness #myositiswarrior #fucklupus #dermatomyositis #photosensitive #plaquenil #benlysta #methotrexate #theongoingkey #livingmybestlife #fatigue #browneyes #lupusfoundationofamerica #myositisassociation #invisibleillness #fighter
First day of 5th grade! He was excited and ready to go this morning! #trammelandmom #lupusawareness #myositiswarrior #welovecats #firstdayofschool #boymom
36 years young today! I am a very lucky girl and have been blessed with special people in my life! I was celebrated throughout the entire day! #blessed #loved #birthday #lupusawareness #myositiswarrior #thunderfromdownunder #glutenfree #roses
You are braver than you believe, Stronger than you seem, and Smarter than you think! Someone said today “every day above ground is a good day”. With an autoimmune disease it isn’t always easy to feel that way but it’s the truth! #blessed #thankful #alive #lupussucks #lupuswarrior #strong #theongoingkey #myositiswarrior #liveyourbestlife
I stayed strong for as long as I could! Crazy work schedule, Wild weekend, plus everyday stress finally got the best of me. I’m on the couch and don’t plan on moving! #lupussucks #myositiswarrior #lupuswarrior #nostress #netflix #methotrexate #plaquenil #theongoingkey #liveyourbestlife #rest
It’s always fun when we make last minute trips! We started the day in New Orleans at the butterfly museum and ended it by dancing on the bar and celebrating my upcoming birthday! And I got to meet @craigtracyart and see his amazing gallery! Here’s to recovering his week 😔. #lupussucks #lupuswarrior #myositiswarrior #methotrexate #sotired #sore #neworleans #coyoteuglyneworleans #penthouse #liveyourbestlife #theongoingkey
Having lupus sucks! But glitter sunscreen makes the photosensitivity a little more acceptable! And I found gluten free ice cream cones 🤗. #myositiswarrior #dermatomyositis #lupuswarrior #fucklupus #iloveicecream #sunscreen #glitter #shinebrightlikeadiamond #curlyhairdontcare #photosensitive
Meditate: think deeply or focus one’s mind for a period of time for spiritual purposes or as a method of relaxation. Sometimes you just have to stop, relax, and focus on yourself. Life is hard! #meditate #yoga #lavender #lupuswarrior #myositiswarrior #dermatomyositis #overit #keeppushing #beachbodyondemand #methotrexate #benlysta #peoplesuck #hopeitwasworthit #igotstokeeponmoving
Anniversary dinner!! We clean up good 💜😘 #dauphins #3years #wefine #lupuswarrior #myositiswarrior
My brain said to work out. My body had different plans! I was able to make 20 minutes of a HIIT workout. The most important thing is that I tried and did some type of movement today! #igottokeeponmoving #nottodaylupus #dermatomyositiswarrior #lupuswarrior #cantstopme #youcandoit #beachbodyondemand #theongoingkey #autoimmunedisease
OWA amusement park was great! The sun stayed behind the clouds so I lasted longer than I thought I would!! #owa #rollinthunder #lupuswarrior #photosensitive #amusementpark
Happy Anniversary to me!! I love my orchid! And I think he brings me chocolate just so I will share with him 🤣😘 #anniversary #3years #purpleforlupus #orchid #sweet
Another one bites the dust! Here’s to feeling apathetic, having headaches, and feeling like crap for a few days! #methotrexate #lupuswarrior #lupie #lupussucks #myositiswarrior #blah #tired
Alabama Safari Park was amazing!! We fed lots of animals and played with the budgies!! #alabamasafaripark #funtimes #ostrich #camel
July 11, one of the worst days of my life! BUT, I celebrate it! Today marks my 2 year anniversary with LUPUS. Over the past 2 years I have had multiple surgeries and procedures, poked with 5 million needles, injected with low doses of chemo, lost some hair, taken handfuls of pills, been deprived of the sun and gluten, cried a gazillion tears and faked a lot of smiles. I have also learned to love life. I try my damndest to love the new me, because my body and mind has taken a major impact (it is hard). I continue to workout at least 3 days a week. I eat healthy. I try not to let things stress me. And I do whatever the f*%k I want because we are never promised tomorrow! I believe in me and I will never give up on me! #lupuswarrior #lupusawareness #myositiswarrior #dermatomyositiswarrior #trustandbelieve #theongoingkey #nevergiveup #cry #shots #methotrexate #plaquenil
I so wasn’t feeling good today but I pulled myself together and dressed up for a party!! We won most patriotic 🤣🤣 #wewon #mostpatriotic #lupuswarrior #dermatomyositiswarrior #4thofjuly #rockon #merica
Now I remember how methotrexate makes me feel 😩😴🤧 I took my 2nd injection of methotrexate yesterday and I have been on the couch all day. Dizzy, headache, and just drained! #lupuswarrior #lupusawareness #lupussucks #myositiswarrior #dermatomyositiswarrior #tired #methotrexatehangover #benlysta #trustandbelieve #listentoyourbody #restwhenneeded
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